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trip2 
Senior Member 
Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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 Posted: Feb 14 2009 at 10:38am |
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Krisa, excuse my ditziness my dear.
I can't find many of you who have just joined. If you wouldn't mind look for Pamela Tinney, that would help but I'll keep looking.
Edited by trip2 - Feb 14 2009 at 10:39am |
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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dragonwing
Senior Member
Joined: Feb 07 2009 Location: Michigan Status: Offline Points: 327 |
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Posted: Feb 14 2009 at 3:54pm |
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I'm on facebook -- Joyce Zweedyk
Also, I just found out that my insurance will pay for the BRCA test so it is sheduled for March 17th. |
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Joyce
http://dragonzwing14.wordpress.com/ Infiltrating ductal carincoma w/ focal papillary features Stage IIa, 3 cm S Node neg, Taxotere/Cytoxan x 6 33 radiation BRCA neg Praise God! |
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trip2
Senior Member
Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Feb 14 2009 at 5:16pm |
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Joyce so glad to hear you will be having the BRCA test!
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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dragonwing
Senior Member
Joined: Feb 07 2009 Location: Michigan Status: Offline Points: 327 |
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Posted: Feb 15 2009 at 2:38pm |
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Pam:
What exactly do they do and what should I expect? |
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Joyce
http://dragonzwing14.wordpress.com/ Infiltrating ductal carincoma w/ focal papillary features Stage IIa, 3 cm S Node neg, Taxotere/Cytoxan x 6 33 radiation BRCA neg Praise God! |
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Netterz
Senior Member
Joined: Oct 05 2007 Location: United States Status: Offline Points: 405 |
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Posted: Feb 15 2009 at 7:35pm |
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OK, I know EXACTLY how this woman feels.... and I bet I am atleast twice her age...... and she is right, ofcourse,I think that it is awesome to be able to see pictures of everyone, and every thing. I am not sure I have fell into the deeper level of addiction she has hit..... crap.... I am still trying to figure out how 3/4 of the things available on the site!!!
But anyways.... I thought those of you who are on facebook.....would get a good laugh out of this... and how many of US are addicted!!!!
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T-Neg diag.5/07-40yo
Stage IIIa Grade III 7/26 +nodes ax. 4-A/C pre-lumpectomy 2 Taxol post +Tissue involvement Finished Rad 4/08 DX of Advanced CTCL 2/09 Lansing,MI |
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dragonwing
Senior Member
Joined: Feb 07 2009 Location: Michigan Status: Offline Points: 327 |
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Posted: Feb 16 2009 at 4:53am |
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Hey Netterz -- you aren't far from me! Kalamazoo, MI!
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Joyce
http://dragonzwing14.wordpress.com/ Infiltrating ductal carincoma w/ focal papillary features Stage IIa, 3 cm S Node neg, Taxotere/Cytoxan x 6 33 radiation BRCA neg Praise God! |
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trip2
Senior Member
Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Feb 16 2009 at 12:59pm |
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Joyce Myriad labs will send a package with exactly what they want and it is done by their standards. Whomever you see to do the bloodraw, your Onc nurse? will just draw blood for the vials Myriad sends, they go back in the box with the paperwork properly signed and mailed off.
Then in well it was around 2 weeks for me I received a letter from Myriad with my information saying I had been tested and it told that I did have a specific mutation which will have some letters, numbers and brca 1+.
My sister received hers which told her she was negative. Your Oncologist will also receive this information and should be discussed with them as to how it would apply to your treatment.
I hope you get a negative! Edited by trip2 - Feb 16 2009 at 1:00pm |
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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dragonwing
Senior Member
Joined: Feb 07 2009 Location: Michigan Status: Offline Points: 327 |
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Posted: Feb 16 2009 at 2:02pm |
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That was going to be my next question -- which way do I want to be positive or negative. At first, I thought being a triple negative was a good thing, but then I found out otherwise -- that TNBC is the least type of breast cancer the researchers seem to know about.
I am really hoping and praying that "hereditary" isn't something my daughter and grandchildren have to worry about. I have 3 beautiful grandchildren. Matthew is 13 and the twins, Koy and Rayne, are 4. |
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Joyce
http://dragonzwing14.wordpress.com/ Infiltrating ductal carincoma w/ focal papillary features Stage IIa, 3 cm S Node neg, Taxotere/Cytoxan x 6 33 radiation BRCA neg Praise God! |
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Nancy
Senior Member
Joined: Jul 23 2007 Location: Altoona, PA Status: Offline Points: 3814 |
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Posted: Feb 16 2009 at 3:09pm |
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Joyce,
If you are referring to the BRCA test, you want to hope for BRCA1 and BRCA2- ....negative. Being HER2 - is also a good thing....as HER2+ is a more agressive cancer.
If you have a family history of cancer...any type, and if you are BRCA- that family history trumps the BRCA gene mutation. There are women on this site who never knew they were TN, and are 7,10, 14, 19, 20 years from dx.
Lori tested negative. Lori has 2 daughters and 1 son, and it was her son who was more upset thinking that there was a possiblity that he could develop a hereditary cancer. He is a young man who always considers the consequences. We have 12 grandchildren and 5 great-grandchildren, and that was real concern for Lori and all of us.
Nancy
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Nancy
DD Lori dx TNBC June 13,2007 Lumpectomy due to incorrect dx of a cyst mastectomy July 6 2007 chemo ACT all 3 every 3 weeks 6 tx Aug-Nov 28 rads ended Jan 2008 |
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dragonwing
Senior Member
Joined: Feb 07 2009 Location: Michigan Status: Offline Points: 327 |
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Posted: Feb 16 2009 at 3:18pm |
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Thanks Nancy for your reply. Considering I'm adopted and my birth mother was also adopted, I would like to be able to know something.
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Joyce
http://dragonzwing14.wordpress.com/ Infiltrating ductal carincoma w/ focal papillary features Stage IIa, 3 cm S Node neg, Taxotere/Cytoxan x 6 33 radiation BRCA neg Praise God! |
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phoenix
Newbie 
Joined: Sep 22 2008 Location: United States Status: Offline Points: 19 |
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Posted: Feb 17 2009 at 8:35am |
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Hi Pam
I'm suffering from chemo brain I e-mailed you and got you mixed up with Nancy. I always read both of your post's! You always find such good information. My Onc. followup care nurse reconmmended your site, I had already registered, joined about 5 months ago. But I thought it was nice
that she would refer me to you. My group of doctors etc. are with the NYOH.
I live in the Albany area and am on facebook. I saw someone else from Albany but now can't find her posting or name, I would like to locate her on facebook.
Anyone from the Albany or on facebook please e-mail me I would love to hear from you. PM me and I will send you my e-mail address for facebook
phoenix Edited by phoenix - Feb 17 2009 at 11:35am |
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phoenix
DX 7/08 Lumpectomy 8.22,08 Stage II Triple Neg. No node Clear Margins started to go into blood vessals. IDC 4 A/C Dose Dense 12 Taxol rads in March Albany,N.Y Capitol Region |
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trip2
Senior Member
Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Feb 17 2009 at 10:38am |
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Hi Phoenix That is great news that your nurse told you about this site! That means word is starting to get around and that is what we want, so cool. I will be emailing you thanks. Also I would suggest you delete your email from your post because of spammers around. We don't want to show any more personal info than is necessary. Members can PM you to get your information.
Thanks, Edited by trip2 - Feb 17 2009 at 10:39am |
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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asinglerose
Groupie 
Joined: Oct 10 2008 Location: United States Status: Offline Points: 58 |
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Posted: Feb 17 2009 at 11:18am |
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I am aleida glau from west palm beach fl. just signed up
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Aleida
dx 8/22/08, TNBC, IDC, Lumpectomy/10/6/08 right breast/ 8mm/ clear nodes/ clear margins/ Stage1/ TAXOTERE/CYTOXAN every 3 weeks X4/ 45 RADS! PRAYING FOR THE BEST!! |
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Fear Nothing
Groupie
Joined: Feb 03 2009 Location: United States Status: Offline Points: 48 |
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Posted: Feb 17 2009 at 9:58pm |
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Jodi Waymoth, Champaign, Urbana network (Live in Effingham, IL) Going through treatments now. We have two young children at home (6 and 4) and we are trying really hard to maintain some normalcy for them at home. I would love to network and get to know other young moms fighting this same battle. |
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BrendaF
Senior Member
Joined: Dec 07 2007 Location: United States Status: Offline Points: 401 |
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Posted: Apr 03 2009 at 1:23pm |
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Bump!
It took forever today to find this.
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Dx 2005 2 cm, 5/12 nodes, A/C + T, 28 rads.
Dx mets 12/07 mediastinal and supraclavicular nodes, carbo + taxotere X 6. brain, lymph, pleura, bone mets. Started Xeloda 8/24/09 |
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GinaMarie
Senior Member
Joined: Jun 19 2008 Location: New Jersey Essex cty Status: Offline Points: 137 |
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Posted: Apr 04 2009 at 2:30pm |
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I just joined facebook too!! Under Babyrn028@aol.com Gina Petretta Would love to add some of my favorite ladies!!! |
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gigi
Stage 1 Grade 3 dx may 2008 2 lumpectomies, first one wrong dx of fibroadenoma!! chemo 4 rounds ovr 3 mos Taxotere/Cytoxan BRCA 1+ Bilat mast. with Lat flap recon done 1/9/09!!! No rads!! |
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trip2
Senior Member
Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Apr 04 2009 at 3:22pm |
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Great Gina, I'll give ya a yell.
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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billie
Senior Member
Joined: Mar 30 2008 Location: United States Status: Offline Points: 345 |
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Posted: Apr 15 2009 at 3:15pm |
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Hi Ladies,
I too have joined facebook.But I have to say that I probabaly am not very much fun to play with.I told my husband that all the members that have asked me to be their friend are probably going to kick me off if I do not take the time to find the hidden eggs.For someone that does not have a clue as to what they are doing,I have to say that it takes a lot of time for me to even try to figure it out."He He".Maybe I am saved now,because Easter is over with.Do you think?
Never fear!! One day it is going to come to me as to what I need to do and I am going to become a whiz at it.To all you facebook ladies that have asked me to become your friend,please do not kick me off as your friend.I am just a little slow.
Love and Huggggsss to all.Billie
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Billie posting for sis Betty/67/caucasion female/diagnosed 2-27-08/gradeIII/7mm/invasive ductal carcinoma/T N /clear margins/node neg/4 X's taxotere-cytoxan/36 rads/7-08 PET/CT double image/no cancer
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julie
Groupie
Joined: May 11 2008 Location: Iowa Status: Offline Points: 40 |
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Posted: Apr 16 2009 at 3:15am |
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I don't know if this has already been said, but I think you can set up a group for TNBC facebook groupies. I set one up for all of my "Breast Friends" on facebook. Then you can have them all in one spot on your facebook.
Let me know if you want me to set one up or if this has already been done. I didn't read through all of the posts. Julie |
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37 years old
dx 3/15/08 4/15/08 Double mast/expanders stage 3a, grade 3 Triple negative,in 4 nodes dose dense A/C, Taxol, Radiation, Avastin |
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MaryinSarasota
Senior Member
Joined: Nov 08 2008 Location: Sarasota Status: Offline Points: 362 |
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Posted: Apr 16 2009 at 5:06am |
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Wow! Great idea!
I am there too. Mary Hubley from Sarasota Florida See ya there! |
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53 @ Dx 5/08 Stage 1, grade 3, IDC 1.6 cm, 0 nodes, TNBC, lumpectomy, chemo TAC-6, radiation-34 12/18/08
NED-10/09, PBM w/TE recon. 7/10, removal of TE/infec 8/10. CT chest. Rec fat-graft & stem cells |
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