Who is on Facebook?
Printed From: TNBC Foundation
Category: TNBC Forums
Forum Name: Archived Topics
Forum Description: Archived Topics
URL: http://forum.tnbcfoundation.org/forum_posts.asp?TID=2495
Printed Date: Mar 26 2026 at 11:25pm
Software Version: Web Wiz Forums 12.01 - http://www.webwizforums.com
Topic: Who is on Facebook?
Posted By: trip2
Subject: Who is on Facebook?
Date Posted: Dec 26 2008 at 2:17am
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I saw this on the Force website forum and thought it was a great idea to get to see some members pictures/visit. Anyone besides me? ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Replies:
Posted By: CarynRose
Date Posted: Dec 26 2008 at 9:07am
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I'm there....
c a r y n r o s e n b e r g
from Central NJ ------------- Orig dx 6/03 - St.2a, IDC gr.3,0 nodes, TNBC/BRCA1+ 7/07 St 4 mets to nodes/lungs. PACA/Rads NED 11/07-10/08 Lepto mets 10/08 Rads for 4 brain tumors 4/10. Leptomets return 6/10 |
Posted By: trip2
Date Posted: Dec 26 2008 at 10:34am
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Hi Caryn, I'll see if I can find you, mine is under Pamela Tinney. It looks like you have a space between each letter but then I am tired so maybe it is my crossed eyes. lol
love Pam ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: CarynRose
Date Posted: Dec 26 2008 at 11:06am
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Yes, I did that so spammers who might be on this site can't pick it up. I'll see you on Facebook!------------- Orig dx 6/03 - St.2a, IDC gr.3,0 nodes, TNBC/BRCA1+ 7/07 St 4 mets to nodes/lungs. PACA/Rads NED 11/07-10/08 Lepto mets 10/08 Rads for 4 brain tumors 4/10. Leptomets return 6/10 |
Posted By: sibu
Date Posted: Dec 26 2008 at 11:51am
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I'm donna russell in west palm beach. Pam, I found you! Caryn, you're much more sophisticated than I to know how to avoid spammers...is there a way to do that with the piles of paper mail we get? Besos, Donna ------------- Donna, age 42 Dx IDC 12/06, 5/18 Nodes + BRCA1+ Double mast. 1/07 Chemo 6 X TAC 6/07, rads 10/07 Hyst./Recon. 12/07 |
Posted By: Bunnysmama
Date Posted: Dec 26 2008 at 5:43pm
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I'm s t e p h a n i e p i t m a n from the Boston, MA area. ------------- Dx 11/06 @ age 37 IDC Stage I, Grade 3 BRCA2+ |
Posted By: Beth Anne
Date Posted: Dec 27 2008 at 1:31am
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Hi Pam, I think I found you and I sent you a message... I am Elizabeth Lundvall Snohomish Washington ------------- Dx 5/07 DCIS Stage3 gr9 A/C x 6, Abrax x 16 Bi-Mass 2/08 Navelbine x 12, finished radiation end of July 08. DX Brain Met's 2/09StageIV CK3/09.Brain resection4/09 WBR Dreaming of dancing with Ned! |
Posted By: Cheryl51
Date Posted: Dec 27 2008 at 6:39am
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I'm on facebook. Are we supposed to put our name here so that folks could find us? 'Splain me... Cheryl51 ------------- Diagnosed 3/07, Stage IIB, Grade 3, 2/10 nodes positive |
Posted By: Nancy Bell
Date Posted: Dec 27 2008 at 7:30am
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I'm there too. ------------- dx 8/17/2007 IDC Grade 3 Stage2 lumpectomy 9/19/2007 1.2cm w/extension into multiple intramammary lymph nodes SNL 0/1 Ki-67 81% Dose Dense AC/T completed 2/21/08 37 rads completed 5/02/08 |
Posted By: sibu
Date Posted: Dec 27 2008 at 7:33am
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Yes, Cheryl, you have to either give your name (or what you're listed under) and location, or the e-mail address you signed up under, for people to find you. dr ------------- Donna, age 42 Dx IDC 12/06, 5/18 Nodes + BRCA1+ Double mast. 1/07 Chemo 6 X TAC 6/07, rads 10/07 Hyst./Recon. 12/07 |
Posted By: Bunnysmama
Date Posted: Dec 27 2008 at 12:05pm
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Nancy Bell, how are you listed on Facebook? ------------- Dx 11/06 @ age 37 IDC Stage I, Grade 3 BRCA2+ |
Posted By: Cheryl51
Date Posted: Dec 27 2008 at 12:39pm
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thanks! I can be found by the name of
Cheryl Krauter.
Cheryl51 ------------- Diagnosed 3/07, Stage IIB, Grade 3, 2/10 nodes positive |
Posted By: trip2
Date Posted: Dec 27 2008 at 4:06pm
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This has been great although I still cannot find CarynRose. Tried the letter space thing and no go. I'll see if I can figure it out.
I have really enjoyed seeing your pictures and your families. Seems to bring us closer. ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: jadesloge
Date Posted: Dec 27 2008 at 4:10pm
| I am on facebook. Julie Desloge. |
Posted By: trip2
Date Posted: Dec 27 2008 at 4:13pm
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Hi Julie,
That is great, I'm glad you checked in to let us know.
Hugs to you ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: trip2
Date Posted: Dec 27 2008 at 6:11pm
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I can't find Julie either and there are over 100 Nancy Bell's so guess I'll call it a night. ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: jadesloge
Date Posted: Dec 28 2008 at 5:46am
| If the foundation is okay with it, people can put the triple negative logo on their profile picture so they know they have the right person. |
Posted By: trip2
Date Posted: Dec 28 2008 at 9:09am
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julie and Nancy Bell is there some specific way to find you? ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: myjourney
Date Posted: Dec 28 2008 at 9:30am
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Hey girls. I am on facebook, Heather Bakstad ------------- 33 year old 1.8 cm tumor/Node Neg Lumpectomy 7/1/08 BRCA 1 & 2 Negative AC DONE!! 9/17/08 Four of 'em Taxotere done! 11 of 12 ~1/31/08 33 radiation My blog: heathersjourneytohealth.blogspot. |
Posted By: Nancy Bell
Date Posted: Dec 29 2008 at 6:49am
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Phoenix, AZ network.
Pam,
How is yours listed? I thought I found you and I sent 2 different friend requests.
------------- dx 8/17/2007 IDC Grade 3 Stage2 lumpectomy 9/19/2007 1.2cm w/extension into multiple intramammary lymph nodes SNL 0/1 Ki-67 81% Dose Dense AC/T completed 2/21/08 37 rads completed 5/02/08 |
Posted By: Nancy Bell
Date Posted: Dec 29 2008 at 7:33am
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ok. found ya ------------- dx 8/17/2007 IDC Grade 3 Stage2 lumpectomy 9/19/2007 1.2cm w/extension into multiple intramammary lymph nodes SNL 0/1 Ki-67 81% Dose Dense AC/T completed 2/21/08 37 rads completed 5/02/08 |
Posted By: Netterz
Date Posted: Dec 29 2008 at 10:49am
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I think I am, I seem to recall getting an ID on there yrs ago when it first came out, cuz my daughter was using it, and wanted to see if it was ok for her.... I will have to look and see if I can find it... if not, I will start a new one :)
------------- T-Neg diag.5/07-40yo Stage IIIa Grade III 7/26 +nodes ax. 4-A/C pre-lumpectomy 2 Taxol post +Tissue involvement Finished Rad 4/08 DX of Advanced CTCL 2/09 Lansing,MI |
Posted By: BrendaF
Date Posted: Dec 29 2008 at 11:01am
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Yes, I'm there. BrendaspaceFunk Cleveland, OH
Like Caryn, I don't like to write my name first last on a forum where phishers are looking for the format. Just enter it normally - firstname lastname.
I also noticed there is a tnbcfoundation group there. Has anyone joined it? I have. ------------- Dx 2005 2 cm, 5/12 nodes, A/C + T, 28 rads. Dx mets 12/07 mediastinal and supraclavicular nodes, carbo + taxotere X 6. brain, lymph, pleura, bone mets. Started Xeloda 8/24/09 |
Posted By: Netterz
Date Posted: Dec 30 2008 at 12:09am
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Am there, as Netterz Brews....... or can be found with a search on my email.....netterz66 ATgmailDOTCOM.... sorry about the way its written out, I just dont want spammerz to be able to grab it from a site search. ------------- T-Neg diag.5/07-40yo Stage IIIa Grade III 7/26 +nodes ax. 4-A/C pre-lumpectomy 2 Taxol post +Tissue involvement Finished Rad 4/08 DX of Advanced CTCL 2/09 Lansing,MI |
Posted By: trip2
Date Posted: Dec 30 2008 at 7:03am
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Ok Brenda thanks for the info and here's my dumb question, I still cannot understand what you mean by the name thing. Caryn's I tried as she typed and couldn't find her?? Help! ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: Bunnysmama
Date Posted: Dec 30 2008 at 7:08am
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Pam, when the girls type their names this way, it's in "code" so they can't be found by spammers and phishers surfing the web.
When they type the word "at" in their name, you should actually use the @ symbol. And when they say dot com, you should actually type .com as you would in an e-mail address.
Hope that helps!
 ------------- Dx 11/06 @ age 37 IDC Stage I, Grade 3 BRCA2+ |
Posted By: myjourney
Date Posted: Dec 30 2008 at 7:31am
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This is really cute!! ------------- 33 year old 1.8 cm tumor/Node Neg Lumpectomy 7/1/08 BRCA 1 & 2 Negative AC DONE!! 9/17/08 Four of 'em Taxotere done! 11 of 12 ~1/31/08 33 radiation My blog: heathersjourneytohealth.blogspot. |
Posted By: msm082455
Date Posted: Dec 30 2008 at 7:39am
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Hi ! I'm on Facebook........
MicheleBrownMarchesani......... There are quite a few women from the Komen Boards an Facebook also. But, I'm a triple negative, so it would be great to get to know others like me......
Thanks,
Michele
|
Posted By: BrendaF
Date Posted: Dec 30 2008 at 8:41am
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Pam, type in Caryn's name normally. She added the spaces so she wouldn't type it in regular format on an open forum, where phishers can "harvest" names. ------------- Dx 2005 2 cm, 5/12 nodes, A/C + T, 28 rads. Dx mets 12/07 mediastinal and supraclavicular nodes, carbo + taxotere X 6. brain, lymph, pleura, bone mets. Started Xeloda 8/24/09 |
Posted By: trip2
Date Posted: Dec 30 2008 at 9:07am
Oh ok, what an idiot, can I blame chemo? ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: trip2
Date Posted: Dec 30 2008 at 9:11am
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Hi Michele and thanks for letting everyone know.
I am really enjoying getting to know our members better.
Michele are you going thru treatments or already finished? ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: Lisa L
Date Posted: Dec 30 2008 at 11:32am
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I just signed up LisaspaceLong. ------------- Dx 8/05 age 43 mast & lat flap 10/05 Triple neg BRCA neg IDC 4.5cm rt br 0/1 sen node 6 A/C 5 Taxol, 25 rads 11/05-6/06 Central Illinois Currently NED |
Posted By: trip2
Date Posted: Dec 30 2008 at 1:51pm
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Great Lisa I'll try to find you.
Have a good evening ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: Bunnysmama
Date Posted: Dec 30 2008 at 2:05pm
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Lisa, are you listed on Facebook in Chicago? ------------- Dx 11/06 @ age 37 IDC Stage I, Grade 3 BRCA2+ |
Posted By: msm082455
Date Posted: Dec 30 2008 at 3:23pm
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Hi Pam!
I'm a 4 year survivor!!!!!
|
Posted By: trip2
Date Posted: Dec 30 2008 at 3:52pm
http://www.smileycentral.com/?partner=ZSzeb001_ZSYYYYYYYYUS"> http://smiley.smileycentral.com/download/index.jhtml?partner=ZSzeb095_ZSYYYYYYYYUS&utm_id=7923"> ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: JulieS
Date Posted: Dec 30 2008 at 7:03pm
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Hi all, I am also on facebook. Julie Schroeder from Renton, WA. |
Posted By: txhart
Date Posted: Dec 30 2008 at 7:11pm
Ok, I must be behind times. My kids got me on myspace. How do I get on Face Book? no clue. Wish I could just copy and paste!  ------------- Linda age 48 Triple Negative Stage 2B IDC 2.7 Diagnosed 7/24/08 12 rounds Paclitaxel 4 rounds FEC, surgery Feb 3, 6 wks of rad |
Posted By: trip2
Date Posted: Dec 30 2008 at 8:38pm
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Hi Linda,
Just go to http://www.facebook.com - http://www.facebook.com sign in and you are ready to go.
Let us know when you are in and how you are listed and we'll find you or look for our names. You are gonna enjoy this. ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: krisa
Date Posted: Dec 31 2008 at 1:13pm
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Pam,
I found you on Facebook--- :)
Krisa
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Posted By: BrendaF
Date Posted: Dec 31 2008 at 5:40pm
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I see that there are two groups - TNBC Foundation, and "Support the TNBC Foundation." I'm in the first one, and it has nearly six hundred members. The second has only fourteen members, and about half of them are you guys. Is either group actually associated with the foundation? ------------- Dx 2005 2 cm, 5/12 nodes, A/C + T, 28 rads. Dx mets 12/07 mediastinal and supraclavicular nodes, carbo + taxotere X 6. brain, lymph, pleura, bone mets. Started Xeloda 8/24/09 |
Posted By: Lisa L
Date Posted: Jan 01 2009 at 4:28am
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I'm out of Peoria Illinois.
I find the whole facebook thing sort of confusing! I think i'm getting old.
If I ever get a decent picture of myself, I'll replace the avitar. The animated version is better than the real thing  ------------- Dx 8/05 age 43 mast & lat flap 10/05 Triple neg BRCA neg IDC 4.5cm rt br 0/1 sen node 6 A/C 5 Taxol, 25 rads 11/05-6/06 Central Illinois Currently NED |
Posted By: trip2
Date Posted: Jan 01 2009 at 1:04pm
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Oh no no Lisa go for it. I am struggling to find something to put up, I'm usually behind the camera.
Brenda I think the larger TNBCFoundation is this Foundation, I recognized a name or two. The other one that most of us joined would be a good place to chatter about anything since we don't have room here for a chat room. A thought anyway.
Big hug
------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: Bunnysmama
Date Posted: Feb 11 2009 at 2:36pm
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Bumping this message up for any new members who might be on Facebook. This is a fun post, and it's been really great meeting so many of your there! ------------- Dx 11/06 @ age 37 IDC Stage I, Grade 3 BRCA2+ |
Posted By: txhart
Date Posted: Feb 11 2009 at 2:49pm
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YAY! I finally did it. I'm on facebook now. L i n d a H a r t
I copied the way CarynRose did it because I don't know anything about spammers. ha. so don't use the spaces. the pic is of my grandson, I still have to transfer my bald pics from my camera. can't find the cable. can I still blame chemo brain? ------------- Linda age 48 Triple Negative Stage 2B IDC 2.7 Diagnosed 7/24/08 12 rounds Paclitaxel 4 rounds FEC, surgery Feb 3, 6 wks of rad |
Posted By: Bunnysmama
Date Posted: Feb 11 2009 at 2:56pm
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Hooray, Linda!!! I just tried to find you on Facebook, but there are 364 people with your same name listed.
Where are you from? Maybe that would help me find you... ------------- Dx 11/06 @ age 37 IDC Stage I, Grade 3 BRCA2+ |
Posted By: msm082455@aol.c
Date Posted: Feb 11 2009 at 2:56pm
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Linda,
I tried to Facebook you, but there are about 6 Linda Harts. Maybe if you want to find me, I'm under Michele Brown Marchesani. I am a 4 year survivor. I don't post on here much, but I do read every day!
|
Posted By: msm082455@aol.c
Date Posted: Feb 11 2009 at 2:58pm
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Bunnysmama,
I'm sorry, but I don't know your name. How would I find you on facebook? Or, if you'd like, you can find me. Or, if we are already friends, I'm sorry. :-(
|
Posted By: Bunnysmama
Date Posted: Feb 11 2009 at 3:00pm
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We are already friends. I'm S t e p h a n i e P i t m a n. Isn't it weird how we all have these alter egos for the purpose of this site? ------------- Dx 11/06 @ age 37 IDC Stage I, Grade 3 BRCA2+ |
Posted By: Lauriejn
Date Posted: Feb 11 2009 at 3:44pm
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L a u r i e N e w e l l from Albany, NY Which group is everyone in? ------------- Dx Oct2008- IDC Gr 3/Stage 3C Mastectomy 11/7/08- 6/21 nodes Bone Mets dx Dec 2008-Stage 4 Albany, NY BRCA neg |
Posted By: dmwolf
Date Posted: Feb 11 2009 at 4:56pm
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I just got on, too. I'm Denise M. Wolf from Berkeley.
------------- DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10. |
Posted By: ChrissieD
Date Posted: Feb 12 2009 at 4:34am
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I am on facebook too...Christine Navin Doherty from Boston
My profile picture is my daughter holding some blow up unicorn or something. Funny though a girl I grew up down the street from found me the other day and she said the picture looked just like me as a kid...I don't see it. Linda, I am blaming that on chemo brain too!! I think if I get dementia when I am 95 (this is when my nanna started having her episodes) I am still going to be blaming chemo brain :) ------------- 39 from MA, Mom(8.5 and 6), Lumpectomy IDC 1.5cm Stage I, Grade 3 ACx4 Taxolx4 dose dense started 11/17; Bi-lateral Mastectomy with expanders scheduled for 3/24/09 God is carrying me through ! |
Posted By: Bunnysmama
Date Posted: Feb 12 2009 at 4:43am
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ChrissieD, you're from the Boston area? Me too! I live up in Newburyport. It's great to see a sister here who's local!
------------- Dx 11/06 @ age 37 IDC Stage I, Grade 3 BRCA2+ |
Posted By: txhart
Date Posted: Feb 12 2009 at 5:16am
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My maiden name was so original there was only one of me. Now I see that there are a million Harts! you can find me by location I think. Check Texas City ------------- Linda age 48 Triple Negative Stage 2B IDC 2.7 Diagnosed 7/24/08 12 rounds Paclitaxel 4 rounds FEC, surgery Feb 3, 6 wks of rad |
Posted By: krisa
Date Posted: Feb 12 2009 at 6:16am
i sent an invite to those of you i could find--hope i have the right people. 
|
Posted By: trip2
Date Posted: Feb 12 2009 at 12:52pm
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Krisa,
Do I have you? I need to go check, if I don't I'll come back and ask how to reach you. ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: trip2
Date Posted: Feb 12 2009 at 1:28pm
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Krisa I cannot find you, what is your name listing?
Can't find some of the others here also, need to go back and dig. ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: krisa
Date Posted: Feb 12 2009 at 1:52pm
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pam, yes, we have been friends since january :) i use krisa on this board because the name kris was already taken. |
Posted By: Bunnysmama
Date Posted: Feb 12 2009 at 2:42pm
Linda, I'm sorry but I still can't find you!  Maybe you could find me and then I could add you? It's S t e p h a n i e P i t m a n from the Boston area.------------- Dx 11/06 @ age 37 IDC Stage I, Grade 3 BRCA2+ |
Posted By: txhart
Date Posted: Feb 13 2009 at 4:44am
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Sorry Stephanie, I just checked facebook to see how Texas City could not be found because I think I'm the only one here. ha. It's got me listed as network: Houston. So I'll just change that now. Got you as a friend :) ------------- Linda age 48 Triple Negative Stage 2B IDC 2.7 Diagnosed 7/24/08 12 rounds Paclitaxel 4 rounds FEC, surgery Feb 3, 6 wks of rad |
Posted By: trip2
Date Posted: Feb 14 2009 at 10:38am
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Krisa, excuse my ditziness my dear.
I can't find many of you who have just joined. If you wouldn't mind look for Pamela Tinney, that would help but I'll keep looking.
------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: dragonwing
Date Posted: Feb 14 2009 at 3:54pm
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I'm on facebook -- Joyce Zweedyk Also, I just found out that my insurance will pay for the BRCA test so it is sheduled for March 17th. ------------- Joyce http://dragonzwing14.wordpress.com/ Infiltrating ductal carincoma w/ focal papillary features Stage IIa, 3 cm S Node neg, Taxotere/Cytoxan x 6 33 radiation BRCA neg Praise God! |
Posted By: trip2
Date Posted: Feb 14 2009 at 5:16pm
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Joyce so glad to hear you will be having the BRCA test! ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: dragonwing
Date Posted: Feb 15 2009 at 2:38pm
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Pam: What exactly do they do and what should I expect? ------------- Joyce http://dragonzwing14.wordpress.com/ Infiltrating ductal carincoma w/ focal papillary features Stage IIa, 3 cm S Node neg, Taxotere/Cytoxan x 6 33 radiation BRCA neg Praise God! |
Posted By: Netterz
Date Posted: Feb 15 2009 at 7:35pm
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OK, I know EXACTLY how this woman feels.... and I bet I am atleast twice her age...... and she is right, ofcourse,I think that it is awesome to be able to see pictures of everyone, and every thing. I am not sure I have fell into the deeper level of addiction she has hit..... crap.... I am still trying to figure out how 3/4 of the things available on the site!!!
But anyways.... I thought those of you who are on facebook.....would get a good laugh out of this... and how many of US are addicted!!!!
http://www.huffingtonpost.com/tara-stiles/help-im-addicted-to-faceb_b_166726.html - http://www.huffingtonpost.com/tara-stiles/help-im-addicted-to-faceb_b_166726.html ------------- T-Neg diag.5/07-40yo Stage IIIa Grade III 7/26 +nodes ax. 4-A/C pre-lumpectomy 2 Taxol post +Tissue involvement Finished Rad 4/08 DX of Advanced CTCL 2/09 Lansing,MI |
Posted By: dragonwing
Date Posted: Feb 16 2009 at 4:53am
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Hey Netterz -- you aren't far from me! Kalamazoo, MI!
------------- Joyce http://dragonzwing14.wordpress.com/ Infiltrating ductal carincoma w/ focal papillary features Stage IIa, 3 cm S Node neg, Taxotere/Cytoxan x 6 33 radiation BRCA neg Praise God! |
Posted By: trip2
Date Posted: Feb 16 2009 at 12:59pm
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Joyce Myriad labs will send a package with exactly what they want and it is done by their standards. Whomever you see to do the bloodraw, your Onc nurse? will just draw blood for the vials Myriad sends, they go back in the box with the paperwork properly signed and mailed off.
Then in well it was around 2 weeks for me I received a letter from Myriad with my information saying I had been tested and it told that I did have a specific mutation which will have some letters, numbers and brca 1+.
My sister received hers which told her she was negative. Your Oncologist will also receive this information and should be discussed with them as to how it would apply to your treatment.
I hope you get a negative! ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: dragonwing
Date Posted: Feb 16 2009 at 2:02pm
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That was going to be my next question -- which way do I want to be positive or negative. At first, I thought being a triple negative was a good thing, but then I found out otherwise -- that TNBC is the least type of breast cancer the researchers seem to know about. I am really hoping and praying that "hereditary" isn't something my daughter and grandchildren have to worry about. I have 3 beautiful grandchildren. Matthew is 13 and the twins, Koy and Rayne, are 4. ------------- Joyce http://dragonzwing14.wordpress.com/ Infiltrating ductal carincoma w/ focal papillary features Stage IIa, 3 cm S Node neg, Taxotere/Cytoxan x 6 33 radiation BRCA neg Praise God! |
Posted By: Nancy
Date Posted: Feb 16 2009 at 3:09pm
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Joyce,
If you are referring to the BRCA test, you want to hope for BRCA1 and BRCA2- ....negative. Being HER2 - is also a good thing....as HER2+ is a more agressive cancer.
If you have a family history of cancer...any type, and if you are BRCA- that family history trumps the BRCA gene mutation. There are women on this site who never knew they were TN, and are 7,10, 14, 19, 20 years from dx.
Lori tested negative. Lori has 2 daughters and 1 son, and it was her son who was more upset thinking that there was a possiblity that he could develop a hereditary cancer. He is a young man who always considers the consequences. We have 12 grandchildren and 5 great-grandchildren, and that was real concern for Lori and all of us.
Nancy ------------- Nancy DD Lori dx TNBC June 13,2007 Lumpectomy due to incorrect dx of a cyst mastectomy July 6 2007 chemo ACT all 3 every 3 weeks 6 tx Aug-Nov 28 rads ended Jan 2008 |
Posted By: dragonwing
Date Posted: Feb 16 2009 at 3:18pm
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Thanks Nancy for your reply. Considering I'm adopted and my birth mother was also adopted, I would like to be able to know something.
------------- Joyce http://dragonzwing14.wordpress.com/ Infiltrating ductal carincoma w/ focal papillary features Stage IIa, 3 cm S Node neg, Taxotere/Cytoxan x 6 33 radiation BRCA neg Praise God! |
Posted By: phoenix
Date Posted: Feb 17 2009 at 8:35am
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Hi Pam
I'm suffering from chemo brain I e-mailed you and got you mixed up with Nancy. I always read both of your post's! You always find such good information. My Onc. followup care nurse reconmmended your site, I had already registered, joined about 5 months ago. But I thought it was nice
that she would refer me to you. My group of doctors etc. are with the NYOH.
I live in the Albany area and am on facebook. I saw someone else from Albany but now can't find her posting or name, I would like to locate her on facebook.
Anyone from the Albany or on facebook please e-mail me I would love to hear from you. PM me and I will send you my e-mail address for facebook
phoenix ------------- phoenix DX 7/08 Lumpectomy 8.22,08 Stage II Triple Neg. No node Clear Margins started to go into blood vessals. IDC 4 A/C Dose Dense 12 Taxol rads in March Albany,N.Y Capitol Region |
Posted By: trip2
Date Posted: Feb 17 2009 at 10:38am
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Hi Phoenix That is great news that your nurse told you about this site! That means word is starting to get around and that is what we want, so cool. I will be emailing you thanks. Also I would suggest you delete your email from your post because of spammers around. We don't want to show any more personal info than is necessary. Members can PM you to get your information.
Thanks, ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: asinglerose
Date Posted: Feb 17 2009 at 11:18am
I am aleida glau from west palm beach fl. just signed up ------------- Aleida dx 8/22/08, TNBC, IDC, Lumpectomy/10/6/08 right breast/ 8mm/ clear nodes/ clear margins/ Stage1/ TAXOTERE/CYTOXAN every 3 weeks X4/ 45 RADS! PRAYING FOR THE BEST!! |
Posted By: Fear Nothing
Date Posted: Feb 17 2009 at 9:58pm
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Jodi Waymoth, Champaign, Urbana network (Live in Effingham, IL) Going through treatments now. We have two young children at home (6 and 4) and we are trying really hard to maintain some normalcy for them at home. I would love to network and get to know other young moms fighting this same battle. |
Posted By: BrendaF
Date Posted: Apr 03 2009 at 1:23pm
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Bump!
It took forever today to find this. ------------- Dx 2005 2 cm, 5/12 nodes, A/C + T, 28 rads. Dx mets 12/07 mediastinal and supraclavicular nodes, carbo + taxotere X 6. brain, lymph, pleura, bone mets. Started Xeloda 8/24/09 |
Posted By: GinaMarie
Date Posted: Apr 04 2009 at 2:30pm
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I just joined facebook too!! Under mailto:Babyrn028@aol.com - Babyrn028@aol.com Gina Petretta Would love to add some of my favorite ladies!!! ------------- gigi Stage 1 Grade 3 dx may 2008 2 lumpectomies, first one wrong dx of fibroadenoma!! chemo 4 rounds ovr 3 mos Taxotere/Cytoxan BRCA 1+ Bilat mast. with Lat flap recon done 1/9/09!!! No rads!! |
Posted By: trip2
Date Posted: Apr 04 2009 at 3:22pm
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Great Gina, I'll give ya a yell. ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: billie
Date Posted: Apr 15 2009 at 3:15pm
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Hi Ladies,
I too have joined facebook.But I have to say that I probabaly am not very much fun to play with.I told my husband that all the members that have asked me to be their friend are probably going to kick me off if I do not take the time to find the hidden eggs.For someone that does not have a clue as to what they are doing,I have to say that it takes a lot of time for me to even try to figure it out."He He".Maybe I am saved now,because Easter is over with.Do you think?
Never fear!! One day it is going to come to me as to what I need to do and I am going to become a whiz at it.To all you facebook ladies that have asked me to become your friend,please do not kick me off as your friend.I am just a little slow.
Love and Huggggsss to all.Billie ------------- Billie posting for sis Betty/67/caucasion female/diagnosed 2-27-08/gradeIII/7mm/invasive ductal carcinoma/T N /clear margins/node neg/4 X's taxotere-cytoxan/36 rads/7-08 PET/CT double image/no cancer |
Posted By: julie
Date Posted: Apr 16 2009 at 3:15am
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I don't know if this has already been said, but I think you can set up a group for TNBC facebook groupies. I set one up for all of my "Breast Friends" on facebook. Then you can have them all in one spot on your facebook. Let me know if you want me to set one up or if this has already been done. I didn't read through all of the posts. Julie ------------- 37 years old dx 3/15/08 4/15/08 Double mast/expanders stage 3a, grade 3 Triple negative,in 4 nodes dose dense A/C, Taxol, Radiation, Avastin |
Posted By: MaryinSarasota
Date Posted: Apr 16 2009 at 5:06am
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Wow! Great idea! I am there too. Mary Hubley from Sarasota Florida See ya there! ------------- 53 @ Dx 5/08 Stage 1, grade 3, IDC 1.6 cm, 0 nodes, TNBC, lumpectomy, chemo TAC-6, radiation-34 12/18/08 NED-10/09, PBM w/TE recon. 7/10, removal of TE/infec 8/10. CT chest. Rec fat-graft & stem cells |
Posted By: Diane in AZ
Date Posted: Apr 16 2009 at 7:19am
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I joined Facebook a couple of weeks ago and would love to have all you ladies sign on as my friend. I am Diane Krpan and with a last name like that, I doubt there will be more than one of us (but you never know). ------------- Diane Hope is the thing with feathers That perches in the soul, And sings the tune--without the words, And never stops at all |
Posted By: Valkayri
Date Posted: Apr 16 2009 at 9:13am
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I have been on for a while...so I can be ahead of the game when my kiddos get on:)
Kara White with a Miller in the middle of that:) St Louis network ------------- TNBC May 2008 @35 stage 2, grade 3 3.7 cm & under 1cm BRCA2+ dose dense, neo-adjuvent 4AC& 4Taxotere bilateral mast Oct.08 Reconstruction finished Nov 09 www.mishmashin.blogspot.com |
Posted By: trip2
Date Posted: Apr 16 2009 at 10:16am
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I really like your idea Julie, can you help us out?
I'm pretty new to FB but really enjoy it when I can
get over there.
Thanks and let us know!
------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: julie
Date Posted: Apr 16 2009 at 12:28pm
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Yes, let me see if I can get it figured out and then I will post it on here. I think that would help us to not be so exposed to identity theft, because we would be getting on a safe link, but we could still see each others faces. Let me try and I will let you know. Julie ------------- 37 years old dx 3/15/08 4/15/08 Double mast/expanders stage 3a, grade 3 Triple negative,in 4 nodes dose dense A/C, Taxol, Radiation, Avastin |
Posted By: julie
Date Posted: Apr 16 2009 at 12:43pm
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Ok, that seemed way to easy, so I am not sure if it worked. Go to your facebook and then go to applictions and search groups. The group name is TNBC groupies. After everyone gets on there, we can decide who wants to be in charge and assign it. It will be a nice way to advertise and to see each other. Try it out and let me know. Julie ------------- 37 years old dx 3/15/08 4/15/08 Double mast/expanders stage 3a, grade 3 Triple negative,in 4 nodes dose dense A/C, Taxol, Radiation, Avastin |
Posted By: trip2
Date Posted: Apr 16 2009 at 1:10pm
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Great, thanks Julie!! ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: billie
Date Posted: Apr 16 2009 at 4:55pm
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You know ladies,I would love to be right there with all of you on facebook,but that place makes me a little nervous.Who in the world is
The empty cup Runneth Over?Sue Furry(Is That one of us?(Group)I was so proud of myself because I finally caught Miss Pammie's cantubury egg and then I thought that I had really learnt something.But then I clicked on a quiz that a couple of our ladies took(sibu) and then I could not get out of it.Had to turn my computer off to get out of it.
Yes, I would love to see everyones beautiful face.But I have looked for what Julie is talking about The TNBC group,but dummy me,I have not found it yet.I will keep trying.But ladies ,please do not think that I am ignoring you when you ask me to find an egg.
Love to all Billie But I do think that what you are trying to do Julie is a wonderful Idea for us. ------------- Billie posting for sis Betty/67/caucasion female/diagnosed 2-27-08/gradeIII/7mm/invasive ductal carcinoma/T N /clear margins/node neg/4 X's taxotere-cytoxan/36 rads/7-08 PET/CT double image/no cancer |
Posted By: trip2
Date Posted: Apr 17 2009 at 11:20am
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Billie go to the search box on FB. Type in tnbcgroupies and there we are! Add an ies to the end of group.
You have to be very careful going into those applications. I have to stay focused on exactly what I am doing, too many other things trying to get your attention. On the egg thing, just click on the egg things and ignore everything else. Take your time.
Love ya ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |