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WarriorChick View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote WarriorChick Quote  Post ReplyReply Direct Link To This Post Posted: Dec 30 2009 at 12:19pm
Oh thank you very much for sharing!!! Smile
XO
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SagePatientAdvocates View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote SagePatientAdvocates Quote  Post ReplyReply Direct Link To This Post Posted: Dec 30 2009 at 12:34pm
Dear Arlene,

thanks for posting..

I could not open the story clicking on the link you provided-

I am using the hyperlink function, now...don't know if that will work either..


Happy, Healthy New Year to you and thanks again for all of your help..

Steve

Dear Warrior Chick and Scott,

Prayers continue...my heart is with all of you...

always,

Steve
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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Scott View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Scott Quote  Post ReplyReply Direct Link To This Post Posted: Dec 30 2009 at 9:49pm
Hi everyone, I neglected to update everyone on our last onc appt where we discussed adding a 5th AC to my beautiful brides chemo, so we could buy an extra 3 weeks for our little warrior princess to continue to grow. We are adding the extra treatment, it will be a full dose as will #4's tomorrow...not fractioned as we were afraid he might do. The onc said that the toxicity difference between 4 & 5 AC treatments is very little, in fact as someone posted earlier alot of lymphoma patients get 6 cycles of it. Why people with tnbc only get 4 is a question that I'm not qualified to answer, but hopefully someone on here can shed some light on that.
 
Have a great evening, Scott
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kirby View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote kirby Quote  Post ReplyReply Direct Link To This Post Posted: Dec 30 2009 at 11:57pm
I was always told the reason they only did 4 tx of AC was because of the possibility of toxicity to the heart. I don't know anything about what lymphoma patients get. And my info is what I was told in 2001. I don't think they were doing muga scans then, at least I never had one.
kirby

dx Feb. 2001. Age 44
Lumpectomy

2cm. no nodes stage 1 grade 3

4 rnds AC, 35 rads
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WarriorChick View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote WarriorChick Quote  Post ReplyReply Direct Link To This Post Posted: Dec 31 2009 at 8:07am
PartyHappy New Years Eve All!!! My wonderful hubby and I wanted to thank all of you for your continued support, encouragment and help as we go along this journey! It has really helped us a lot, especially my hubby,to be able to come to you for advice and thoughts & prayersSmileAs we all head into 2010 I pray for all of our health, happiness, and that each of continue to allow ourselves to grow in our walks with the Lord! I know this new year will bring so much to my family & I  and we look forward to all the MANY memories we will make with our children and those special ones hubby & I will make togetherHeartThank you all again and we look forward to continuing to get to know you all! God Bless and remember......have a SAFE & Fun New YEARS!!!!!
***Steve~ We want to thank you SO very much from the bottom of our hearts for all you are doing and have done for us. I've said it before, but God has a way of shining light on things and you have most definatly been and we know will continue to be, a shining light in the journey for Scott & I. I am so glad that my fantabulous hubby has you to lean on and come to during this time. And I know in my heart that we will only continue to build a special friendship with you that will last for many years to come! God Bless you dear friend and know the Norwoods are wishing you and your precious family the greatest in 2010!!!!!
***Hubby~I love you honey more than you will ever know! You are my rock, my best friend, my lover, the one I love to laugh & cry with, the person I know I can always count on and the one I can't wait to to grow old with...holding your hand and loving you even more than I did the day we metWinkYou are amazing to me and your strength, your love for our family, your love for me and all the hard work...everything you do never goes unappreciated! I am SO glad God sent you to me honey and I look forward to an AWESOME 2010 with you and our precious kiddos and can't wait for all the memories we will make....AND I can't wait to see our precious little Warrior Princess in your arms!!!! I love you muches~always my love!!!! Your wife!
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trip2 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Jan 01 2010 at 12:55pm
Hi Scott,
 
Kirby is correct, they are concerned about Anthracycline-Induced Cardiotoxicity
 
 
Best wishes,


Edited by trip2 - Jan 01 2010 at 12:57pm
Stage 2 2003
Stage 1 2007
BRCA 1+
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WarriorChick View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote WarriorChick Quote  Post ReplyReply Direct Link To This Post Posted: Jan 02 2010 at 11:47am
It's so hard to know what is the right thing to do sometimes isn't it. I get so confused with all the pros & cons to having A/C #5,but I have to trust that God is taking care of me & our precious little miracle. It's really scary, the unknowns, of this entire chemo/cancer process. Something and a place I never thought I would be, but here we are and decisions have to made and I guess we have to do all our research and then go from there. I am so blessed to have such a strong, loving, caring, WARRIOR hubby at my side,who has amazed me with his strength during all this. I am so blessed to have him by my side and so proud! He has done and continues to do so much to make sure that our little miracle & I are getting the best treatment, the safest treatment and all the treatment that we need...WOW how awesome is the Lord my friends! And not to mention our new friends that have and continue to go out of their way to guide us along this journey. Thank you to each of you and your help is soooo greatly appreciated beyond words! Steve you are incrediable and I know I've said it before,but you have touched Scott & I so deeply and we are so Blessed to have you as our friend!
God Bless All and I hope 2010 has started off GREAT! I know I look forward to a fresh year full of love & new memories with my precious hubby and my beautiful kiddos and all my family!
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unklez View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote unklez Quote  Post ReplyReply Direct Link To This Post Posted: Jan 02 2010 at 11:52am
Dear WarriorChick,
So nice to see your pink letters! Great that hubby is with you all the way.
Remind me please why you are considering getting AC #5?
Wife Dx: Jul/09. Age: 37. Size: 3cm. BRCA: -ve. Lumpectomy: Aug/09. Micromet 1/9 node. Chemo Start: Sep/09. E5103. DD ACB-> DD Abraxane (Taxol reaction). Zometa (S0307). Canadian Fraction Rads.
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Scott View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Scott Quote  Post ReplyReply Direct Link To This Post Posted: Jan 02 2010 at 12:20pm
Hi Unklez, In order to start the taxol within the 2 to 4 week window after finishing AC, that would have put us needing to induce the baby at 32 weeks. Nobody involved in my beautiful brides care was comfortable with that at all, so after our onc consulting with MD Anderson it was decided to add the 5th AC to buy us an extra 3 wks to get the the magical 35th week, where the chances of complications go way down.
 
Scott
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unklez View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote unklez Quote  Post ReplyReply Direct Link To This Post Posted: Jan 02 2010 at 12:26pm
Dear Scott,
Thanks for explaining. What is this 2-4 week window?

Wife Dx: Jul/09. Age: 37. Size: 3cm. BRCA: -ve. Lumpectomy: Aug/09. Micromet 1/9 node. Chemo Start: Sep/09. E5103. DD ACB-> DD Abraxane (Taxol reaction). Zometa (S0307). Canadian Fraction Rads.
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Scott View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Scott Quote  Post ReplyReply Direct Link To This Post Posted: Jan 02 2010 at 12:35pm

For taxol to be most effective following the AC it is suggested that it be started within 2 to 4 wks of your last AC treatment.

Scott
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unklez View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote unklez Quote  Post ReplyReply Direct Link To This Post Posted: Jan 02 2010 at 12:47pm
Thanks Scott.




Wife Dx: Jul/09. Age: 37. Size: 3cm. BRCA: -ve. Lumpectomy: Aug/09. Micromet 1/9 node. Chemo Start: Sep/09. E5103. DD ACB-> DD Abraxane (Taxol reaction). Zometa (S0307). Canadian Fraction Rads.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote SagePatientAdvocates Quote  Post ReplyReply Direct Link To This Post Posted: Jan 02 2010 at 9:02pm
Hi all,

I just wanted to mention an excellent resource, if anyone else here runs into PABC (Pregnancy Associated Breast Cancer), and that resource is Dr. Jennifer Litton at MD Anderson (MDA) in Houston.

If anyone is interested in this topic here is a paper she wrote with some colleagues from MDA-

Womens Health (Lond Engl). 2009 May;5(3):243-9.

Breast cancer diagnosis during pregnancy.

Litton JK, Theriault RL, Gonzalez-Angulo AM.

Department of Breast Medical Oncology, The University of Texas MD Anderson Cancer Center, 1515 Holcombe Boulevard, Houston, TX 77030-4009, USA. jlitton@mdanderson.org

Breast cancer diagnosed during pregnancy is a challenging situation for the patient and her medical team. As women are delaying childbirth, the incidence is expected to increase. Most of the data surrounding the diagnosis and treatment of cancer during pregnancy is in case reports and small cohort studies. However, the data continues to expand regarding the safety of systemic treatments during the second and third trimesters for both the mother and the fetus. In this article, the use of diagnostic imaging, procedures, surgery and chemotherapy are reviewed as well as prognosis and future pregnancies after the treatment for breast cancer.

..................

All in all, I found this to be a really important article on PABC.  I found the bibliography extremely useful. Dr. Litton made it user friendly by highlighting what she felt were particularly important studies. I was then able to reference them as well and go over them with Scott. One downside...the article cost $60 to view. Hopefully you can view the article without cost at a local University medical library.

all the best,

Steve










Edited by steve - Jan 16 2010 at 5:08pm
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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Scott View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Scott Quote  Post ReplyReply Direct Link To This Post Posted: Jan 05 2010 at 4:05pm
Hi Everyone,
My beautiful bride & I met with the baby doc today to finalize our plans, we are going to be bringing our little "Warrior Princess" into this big 'ol world in 28 days. So far everything is looking good, next Wed we go in for the last ultrasound, tour the neonatal wing at the hospital, & meet with the neonatologist. They are going to give my bride 2 days worth of steriods on the 18th & 19th of Jan. to help the babys lungs develop further..she checks in the hospital on Feb 1st & their going to induce on the 2nd, start Taxol 5 days later. Best case scenario for baby Taige is 10 days in icu, worst case is 4 weeks. Please keep my bride & soon to be princess in your prayers.
Scott
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Post Options Post Options   Thanks (0) Thanks(0)   Quote WarriorChick Quote  Post ReplyReply Direct Link To This Post Posted: Jan 05 2010 at 4:16pm
A bundle of nerves is what this chemo/preggo momma isConfusedI can't believe in 28 days our percious little new baby girl will be here, in our arms and free from the comfort of her mommas belly! (although it may not have been so comforting the last couple months! HA!)I pray that everything with my last A/C treatment next week goes well and that God brings our little princess into this world safe & healthyHeartThen gives me the strength to finish up this journey! Which I know he will, he's on our side and has blessed us thus far on the ride! Thank you all for your prayers, please continue them...my wonderful hubby & I & our precious family need them! God Bless!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote dmwolf Quote  Post ReplyReply Direct Link To This Post Posted: Jan 05 2010 at 8:14pm
You are a warrior indeed, and that baby is going to be yet another tough little chick in great company.
love,
Denise
DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Jan 05 2010 at 9:42pm
Scott and Warrior Chick,

You are an inspiration to us all.
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote WarriorChick Quote  Post ReplyReply Direct Link To This Post Posted: Jan 05 2010 at 9:51pm
Donna & Denise, thanks girls! My wonderful hubby gave me the Warrior Chick name at the start of this  journey, he musta knew what he was thinkin' huh! HEE!!! I feel so impowered by Gods strength like never before and it is amazing how he works to me. You guys have all inspired hubby & I and continue to do so daily as we follow along with one another and share our stories. God Bless each of youStar
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Donna Z Quote  Post ReplyReply Direct Link To This Post Posted: Jan 05 2010 at 10:10pm
Warrior chick and Scott I know I will be looking so forward to hearing about when your little princess is born. You two really are amazing. Everyone on this board is but it is so very special to follow along how your baby and you two are doing navigating all of this.

Donna
Dx 03/09 TN, Stg 2a, gr 3, 1.7 cm Taxol X 12, FAC X 4, segmental mastec Sept 10/09,
1 pos/29, from Canada, Treatment MDAnderson, rads X 30 started Oct 29/09. Zometa start Nov 24/09
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Post Options Post Options   Thanks (0) Thanks(0)   Quote unklez Quote  Post ReplyReply Direct Link To This Post Posted: Jan 05 2010 at 10:14pm
Warrior Chick and Scott,
Good luck. Please keep us posted as things develop.

Wife Dx: Jul/09. Age: 37. Size: 3cm. BRCA: -ve. Lumpectomy: Aug/09. Micromet 1/9 node. Chemo Start: Sep/09. E5103. DD ACB-> DD Abraxane (Taxol reaction). Zometa (S0307). Canadian Fraction Rads.
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