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TNBC & Pregnant

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Topic: TNBC & Pregnant
Posted By: Scott
Subject: TNBC & Pregnant
Date Posted: Dec 08 2009 at 2:44pm
Hi everyone, My wife was diagnosed with tnbc on Oct. 13th, and to make the situation even more incredible she's also 25 weeks pregnant. I've visited this site many times since then & have not seen this discussed. I was wondering if anyone else has experienced this. Thank you, Scott



Replies:
Posted By: kirby
Date Posted: Dec 08 2009 at 2:49pm
Scott,
 
My heart goes out to you and your wife. I hope someone is able to give you more info. With my sketchy memory it seems that this subject was brought up by someone that had been in this situation but they were speaking well after the fact.. Hopefully they will chime in if they are still posting.


-------------
kirby

dx Feb. 2001. Age 44
Lumpectomy

2cm. no nodes stage 1 grade 3

4 rnds AC, 35 rads


Posted By: dmwolf
Date Posted: Dec 08 2009 at 6:46pm
I don't recall anyone on here being in that situation, but I've known non-TNBC women who were diagnosed with aggressive breast cancer while pregnant, and they have done very well.  They had chemo starting their second trimesters, and went on to deliver perfect babies.

Somehow, even hard chemo like AC doesn't manage to cross the placental barrier.  It's incredible, but true.  I've seen these kids with my own eyes, and they are fine, as are their mamas.    So try not to be too scared.

Much luck,
Denise


-------------
DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.


Posted By: unklez
Date Posted: Dec 08 2009 at 6:52pm
Scott,

Incredible as it may sound, this situation has happened before. If I remember correctly, the big need is to ensure that your wife's oncologist and the surgeon and the obgyn are all talking. They should all know your priorities amongst mother's life, limb and quality of life and child's life, organs and quality of life etc.  I think the general thought is to avoid radiation while pregnant which should not be an issue given that your wife has 15 more weeks to go before delivery.

Please let us know what the doctors are advising, her stage, and treatment plan.



-------------
Wife Dx: Jul/09. Age: 37. Size: 3cm. BRCA: -ve. Lumpectomy: Aug/09. Micromet 1/9 node. Chemo Start: Sep/09. E5103. DD ACB-> DD Abraxane (Taxol reaction). Zometa (S0307). Canadian Fraction Rads.


Posted By: 123Donna
Date Posted: Dec 08 2009 at 9:09pm
Scott,

How terrible.  I'm so sorry to hear about your wife.  You have my deepest sympathy.  Can you tell us about the treatment the drs are recommending?

Donna


-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: Scott
Date Posted: Dec 09 2009 at 12:13pm
My wife had a double masectomy on Oct. 23rd, has had 2 rounds of AC with 2 more to go originally, but after her oncologist & obgyn talking with MD Anderson and Arkansas Childerns Hospital they have decided to add a 5th round of AC to gain the baby an extra 3 wks before inducing my wife at 35 weeks. The reasoning behind that is its most effective to start the 12 Taxol treatments between 2-4 weeks after ending AC, but that schedule would have put our Princess being brought in at 32 weeks, which all of the doctors agreed was to risky on her.  After the Taxol my wife will have 6 weeks of radiation. Thank you all for your kind words, Scott


Posted By: WarriorChick
Date Posted: Dec 14 2009 at 1:17pm
Hello all...Scott is my wonderful husband and you will all get to know him well I'm
sureSmileHe is well educated on my cancer and I can't imagine going thru this journey with anyone else! He truly is amazingHeartI'm new at this posting thing, FB I'm a whiz at, so this make take me a little while to get used to, but I so look forward to chatting with you as we go thru the journey called cancer together! With God faith and given strengths, the support of our loved ones and those around us, we will all be Warriors aganist this battleWink


Posted By: rena
Date Posted: Dec 14 2009 at 2:43pm
Hi Scott and Warrior Chick. I juts want to wish you the best and give you this link to the Young Survivor Coalition website: http://www.youngsurvival.org/search?search=pregnant&x=0&y=0.  If you read the survivor stories, you'll find some by women who found their cancer while pregnant. Take care! Rena

-------------
Diagnosed 9/86. 1 cm tumor, 22 positive lymph nodes. CMFVP chemo, weekly for one year. 7 weeks radiation. BRCA2-positive. Multiple attempts at reconstruction (three's a charm)


Posted By: kirby
Date Posted: Dec 14 2009 at 2:45pm
welcome WarriorChick,
 
sorry you have to be here. How wonderful to have a supportive knowledgeable husband to be with you during this time.


-------------
kirby

dx Feb. 2001. Age 44
Lumpectomy

2cm. no nodes stage 1 grade 3

4 rnds AC, 35 rads


Posted By: dmwolf
Date Posted: Dec 14 2009 at 4:46pm
Scott and Warriorchick - that fifth round of AC has me worried.  I thought there was a lifetime cap of 4 ACs (unless you are getting a greatly reduced dose) because of the cardiotoxicity of adria.   Is your dose smaller than the usual amount given?  If not, please look into this.  You might be much better off stopping at 4 doses, letting your pregnancy come to term and having the baby, and then starting T once you have delivered.    Do you have numbers on what your increase in risk is by having a longer delay between the end of AC and the start of T?   With drugs like Herceptin and Aromatase inhibitors, there are studies suggesting delays don't matter to long term outcome.     Anyways, best of luck.  I just wanted to give you a heads up.

love,
d


-------------
DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.


Posted By: dmwolf
Date Posted: Dec 14 2009 at 4:47pm
Another idea, and probably what they have in mind:  fractionated doses of AC, so the last two of five doses have half the adria in the combo.    That way you wouldn't risk your future heart health and would avoid a long gap without chemo.  
love,
d


-------------
DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.


Posted By: Kellyless
Date Posted: Dec 14 2009 at 6:42pm
I wasn't pregnant when I was diagnosed, but my son was born at 34 weeks, 16 years ago!  He spent a week in the hospital for jaundice and not having much of a sucking reflex yet.  His lungs were perfect, no breathing issues - he was 6 lb's, 5 oz.  After a week under the lights he was good as gold and we brought him home.  Now he's 16, like I said, 5'10", smart as a whip and gorgeous.  I couldn't have asked for a better teenager while going thru all of this, this year!  So - I can attest that a baby only cooked to 34 weeks can be just perfect. 
And in looking for the bright side in a bad situation - the good news is your baby will have no memory of mommy going thru this!  THAT can be hard.  My son lost 20 lb's while I was going thru chemo.  Your wife will get thru this, and it will only be a story to your child when she is older. 


-------------
IDC, 2.2 cm, Stage IIb,lumpectomy 1/30/09 ACx4,Tx4 36 rads
6/1/16 Local recurrence same breast, same spot 1.8cm Carb.4x every 3 wks, Taxol 12x once wk. Dbl Mast. PCR!! Reconstruction fail, NED!


Posted By: SagePatientAdvocates
Date Posted: Dec 14 2009 at 6:47pm
Dear Scott and Warrior Chick,

I am so very, very sorry you are going through this...and it is an issue that is not rare..

this may be of some help-

http://www.medscape.com/viewarticle/588930 - http://www.medscape.com/viewarticle/588930

I am not a medical professional and I will not give you medical advice on this but i do care...you have touched a nerve deep in my soul with your story.

I happen to be at MD Anderson as I have an early CT scan tomorrow a.m. and a meeting with the doc at 1 pm. 

If you guys would like a heartfelt hug from an old man...you got it...you can me a PM and I will send you my email and phone number..I am in rm. 720 at Rotary House and would be happy to see you, even later tonight if you are around. 

I am a father of six and adore children...maybe it would help just to talk a bit?

please try to stay strong...

in your corner,

Steve




-------------
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates


Posted By: SusanE1104
Date Posted: Dec 14 2009 at 8:07pm
Dear Scott and Warriorchick,
Oh, I hope, I hope for a good outcome!!  It sounds like you have the best minds working together for your best treatment.  Keep us posted!
My very best wishes!
SusanSmile


-------------
Susan 62 1987 Stage 1   1/09 Stage IV bilat. mast. liver mets BRCA1+ Taxol & Avastin
8/09 NED
12/09 liver mets Taxol/Avastin
4/10 liver mets
11/22 Parp Car/gem
parp failed
2/2011 Ixempra


Posted By: Scott
Date Posted: Dec 14 2009 at 8:22pm
Thank you all for your kind words, we are going to get that 5th AC question answered Thursday when my beautiful bride has round 3. Steve, this warrior princess will also be our 6th...we have a 14, 12, 6, 3, & 1 yr old, I tried to pm you but your box was full, I'll try again later tonight. Everybody have a great evening.
Scott
 


Posted By: Terje
Date Posted: Dec 14 2009 at 8:28pm
Is AC the only chemo regime approved for use during pregnancy?

Couldn't they throw another chemo regime besides Taxol inbetween the AC and T to buy you enough time to bring the baby to term?

I'm just wondering.


Posted By: Scott
Date Posted: Dec 14 2009 at 8:35pm
Hi Terge, that I dont know, we do know that the AC is safe during the 2nd & 3rd trimester and that taxol isnt safe during pregnancy at all. I also dont know if the window is big enough to try a middle chemo....they're just trying to buy us an extra 2-3 weeks.
Scott


Posted By: Terje
Date Posted: Dec 14 2009 at 9:44pm
I'm not sure it would matter if the window isn't big enough. I mean, if there's anything that might be safe and work, what does it matter if it's used for half as long as it's supposed to?

Does chemo not work the first few rounds, then it starts to work later as it builds in one's system? I don't believe that's the case.

If A/C works for a while, then something else works for a while longer, then Taxol works to finish things off adding something that works in between AC and Taxol has to work more than just A/C followed by Taxol. Stopping for any amount of time to wait in the middle I would think would let things grow back, wouldn't you think?

Originally posted by dmwolf dmwolf wrote:

With drugs like Herceptin and Aromatase inhibitors, there are studies suggesting delays don't matter to long term outcome.


I'm just guessing here because I truly don't have a clue, but I would think that maybe a delay before the start of treatment might not matter, but if you're treating with one thing to shrink things down, then delay before switching to something else to get rid of the rest would allow the rest to grow to more during the delay.

I'm also guessing that the reason to start with one thing then switch to another is because maybe the first treatment is better suited to larger tumors while the second treatment is better suited to smaller tumors. Allowing the tumors to grow back would require another round of the first treatment.

I really truly don't know, but it makes sense to me that things would be that way.

However another reason to switch might be that A/C is just plain bad for you and you can't tolerate it for a longer period of time, but if they could they would continue with it.

Another worry I would have is that I've now seen two people who did A/C followed by Taxol where the A/C worked, then the Taxol failed completely. I don't know how often that occurs, but I heard that Taxol costs $4000/week and there are chemo sensitivity tests out there that can be done. I would guess that the test would cost somewhere around $10k (but I really have no clue. Everything medical seems to cost way more than I think it should. For example a bed for 1 hour hooked up to a machine about 2'x2'x2' and about 30 seconds with a doctor costs $3k while I think it shouldn't cost more than $100.)

But anyway, considering that Taxol might cost $4000/week it seems worth it to pay $10k for a test that takes 10 days to figure out if it will even work, and included in that cost they'll figure out exactly which drugs do work.

Here's a link to a chemo sensitivity test site that does a good job of explaining things.
http://www.chemosensitivity.com/ - http://www.chemosensitivity.com/

This is an email response from a cancer researcher who's wife was TNBC when he was asked about chemo sensitivity testing.

Quote We had these chemosensitivity tests done. Problem is that they need to be done on fresh tumor, so requires a surgery or biopsy. Depending on where the tumors are, could be more risk. The top two places are Rational Therapeutics in Long Beach, and an oncologist at UC Irvine whose name escapes me. It is a controversial topic in oncology. I believe the data that they are predictive, however I also don't think they are worth unnecessary surgery. There is the risk that one biopsy will have different chemosensitivity than another tumor site, if they have different mutations.


I agree with his argument that it's possible that not all tumors are genetically the same if there are more than one, but if a drug doesn't work on one tumor that you test why bother using it even if it might work on the others?

Anyway I've rambled on enough.

Terje


Posted By: Scott
Date Posted: Dec 14 2009 at 10:29pm
Im not an oncologist, but I would hope that if they could throw one treatment of a pregnancy safe chemo in the middle to gain us more time and still be effective then wouldnt one of them have thought of that? I guess we'll just have to hope that my beautiful bride is one of the many that taxol does help since her tumor was removed during her double masectomy in Oct.


Posted By: SagePatientAdvocates
Date Posted: Dec 14 2009 at 11:46pm
Dear Scott,

My PM box is now open...sorry about that...just got back to my room..happy to see you guys if you happen to be here and up...

but it is probably late for you guys...maybe tomorrow?..just don't know my schedule..I should have some time in the a.m. after my CT scan if you would like to share a meal..again, if you are here..

all the best,

Steve


-------------
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates


Posted By: dmwolf
Date Posted: Dec 15 2009 at 12:19am
Steve, much luck with the CT scan tomorrow.  I don't know if this will annoy or comfort you, but I *know* you are fine.  Your vibes are exceedingly healthy.
love,
d


-------------
DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.


Posted By: SagePatientAdvocates
Date Posted: Dec 15 2009 at 1:15am
Thanks, Denise..

much appreciated..glad you made it home o.k.

love,

Steve


-------------
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates


Posted By: SagePatientAdvocates
Date Posted: Dec 15 2009 at 6:56am
Dear Scott and Warrior Chick,

just sent you a PM with my cell phone number and email address...

all the best,

Steve


-------------
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates


Posted By: susie72404
Date Posted: Dec 15 2009 at 8:19am
I don't know if this will apply to your being pregnant,but my Mom had 6 rounds of AC when she was treated for non-Hodgkins Lymphoma as did a friend of mine. So I know patients are given more than 4 rounds and do just fine.

So sorry you have to deal with any of this. My prayers are with you...blessings.. :)

-------------
Susie Age 56 at DX
dx10/08,stage1,grade3
lumpectomy,.75cm. tumor,SNneg.,
12/08 began 4xAC,03/09-05/09 35rads
BRCA2+ June 2009
oophorectomy10/6/09,bilateral prophylatic mastectomy June 2010


Posted By: Scott
Date Posted: Dec 15 2009 at 9:36am
Hi Susie,  that is so very encouraging, Did the docs have any reservations about the extra AC doses that they gave your mon?
 
Steve, we're actually in Arkansas but I would still like to give you a call....I'll give you a call this evening.  Thanks, Scott


Posted By: Terje
Date Posted: Dec 15 2009 at 12:42pm
Originally posted by Scott Scott wrote:

Im not an oncologist, but I would hope that if they could throw one treatment of a pregnancy safe chemo in the middle to gain us more time and still be effective then wouldnt one of them have thought of that? I guess we'll just have to hope that my beautiful bride is one of the many that taxol does help since her tumor was removed during her double masectomy in Oct.


You make a good point. But you have to remember, just because they're doctors doesn't make them flawless. That's why second opinions are so important.

I searched a little and found this:

http://www.fetal-exposure.org/resources/index.php/1998/10/01/cancer-chemotherapy-and-pregnancy/ - Cancer, Chemotherapy, and Pregnancy

It has a list of several common chemotherapeutic agents and their possible teratogenic effects, but it lacks many of the agents I've seen while reading about TNBC. Adriamycin and cyclophosphamide are mentioned, but Taxol is missing. Carboplatin and gemcitabine are also missing.


Posted By: susie72404
Date Posted: Dec 15 2009 at 2:35pm
Hi Scott,
They did not have any reservations, and my friend, Pride, just had 6 rounds of AC in 2009 for non-Hodgkins Lymphoma, and she is just fine. So, I am saying this to be encouraging. I think with some cancers this is the standard of care.

However, so sorry you have to deal with this at all... :)Susie

-------------
Susie Age 56 at DX
dx10/08,stage1,grade3
lumpectomy,.75cm. tumor,SNneg.,
12/08 began 4xAC,03/09-05/09 35rads
BRCA2+ June 2009
oophorectomy10/6/09,bilateral prophylatic mastectomy June 2010


Posted By: kirby
Date Posted: Dec 15 2009 at 3:38pm
I am surprised that 6 rounds of AC were given. I was told in 2001 that no more than 4 were given because of potential heart issues.

-------------
kirby

dx Feb. 2001. Age 44
Lumpectomy

2cm. no nodes stage 1 grade 3

4 rnds AC, 35 rads


Posted By: susie72404
Date Posted: Dec 15 2009 at 7:16pm
My Mom had 6 rounds of AC in 1989 and my friend, Pride, had 6 rounds AC in 2009. Both were fine afterwards. Both had non -Hodgkins lymphoma.

-------------
Susie Age 56 at DX
dx10/08,stage1,grade3
lumpectomy,.75cm. tumor,SNneg.,
12/08 began 4xAC,03/09-05/09 35rads
BRCA2+ June 2009
oophorectomy10/6/09,bilateral prophylatic mastectomy June 2010


Posted By: WarriorChick
Date Posted: Dec 16 2009 at 5:41pm

Thanks so much to all of you for your kind words and encouragement! 2for1 and I feel so blessed to have yet another way of meeting such special people during this time in our lives...as I've already said, God has so blessed our family! I'm still doing well...and still have hair, some of it,which is a shocker to not only me, but everyone it seems! HA! I guess it's the prenatal vitamins or just the fact that I had a TON of hair to begin with, thanks to my dads
gene I was going to have my hairdresser come over so the kids could help her shave it, but decided to wait and see if I could make it a little longer. I just want to make sure that my kiddos are a part of it, I think that's important in helping them understand all that I'm going thru as well  Not looking forward to my treatment tomorrow, just because you never know when you might have icky side effects and I've been REALLY lucky so far not to have any.....hopefully I won't this time either, but if I do I'm in good hands...hubby's here to good care of his preggo princess So I'll be in good hands! We've got the little ones with friends tonight for the weekend and nana & papa will get the 2 big kiddos tomorrow for the weekend. I miss them already, but I know they will all be having a great timeParty
Interesting to hear all the different oppinions regarding me having a 5th round of A/C...There are so many mixed emotions...BUT I am young and healthy and I have to believe that my wonderful oncologist wouldn't do anything to harm me or my little warrior babyStarAnd I've asked God to take care of us both from the start of all this and have felt his loving presence the entire time. Beleive me when I say that my FANTABULOUS husband has done TONS of research regarding A/C and will be talking to my oncologist about any concerns tomorrow I assure you allWinkThank you Steve for all the wonderful information you gave Scott last night! We both appreciate you deeply and look forward to a growing friendship!
On another note, my hubby and I had a wonderful family night last night with our kiddos! Dinner and the Christmas lites at the square..pony rides and a carriage ride! These are the precious memories I cherishHeartHope you all have a cozy evening!
God Bless you all
WarriorChick


Posted By: SagePatientAdvocates
Date Posted: Dec 16 2009 at 5:54pm
Dear Warrior Chick,

with all the grief you are going through, you are truly blessed with Scott...after several talks with him his love and caring for you is so beautiful, so deep...I often write to women going through chemo and/or tough recuperations from treatment or surgery..."try to find the beauty in each day"...well Scott is the beauty from what I can see and I am sure your kids are as well...

I wish I had a magic wand for you guys...all I can promise you is that I will try to get you as much information as possible so that you can ask your medical advisors good questions and as I mentioned to Scott sometimes getting a second opinion is difficult because the second opinion is different than the first and then you have some tough choices to make..

I know time is of the essence and I will try my best to help. I am calling Scott now...we missed each other when I was at airport this morning....just got home..

Warrior Chick, your positive attitude is so important...Hang tough!!!!

you and your family remain in my prayers..

always,

Steve


-------------
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates


Posted By: Susi Q
Date Posted: Dec 16 2009 at 5:59pm
Hi Scott and Warrior Chick.  I just joined TNBC and saw your posts! I was 22 weeks pregnant when diagnosed and am also triple negative.  I am almost three years out and have a healthy three year old boy!  You might want to check out http://www.pregnantwithcancer.org - http://www.pregnantwithcancer.org  . They have good info and support for people diagnosed when pregnant.
Good luck and keep thinking of the good things!
Susi


Posted By: Carol (Tenn)
Date Posted: Dec 16 2009 at 6:13pm
Warrior Chick and Scott,
Welcome to the family! I'm sorry you have to here but you are truly amongst the most caring helpful people on the net and everywhere.
I read all the pages up to here and I see you got a lot of good info. If it's out there our group has found it.
My prayers are with you both and the rest of the kiddies....if you think you might need a little spiritual encouragement, we have that too. Just go to Support Groups and then Spiritual Support. Please feel free to add your thoughts at any time.
Love and Prayers,
Carol


-------------
St 2 Gr 3, A/C/T, DD
Radiation x35
Rec chest wall 07/09
Radiation x28
NED 10/24/11
NED 10/5/12
NED 03/15/13


Posted By: WarriorChick
Date Posted: Dec 16 2009 at 6:52pm
Scott is awesome Steve and everything you said about him is so true. He is incrediable and loves me more than I probably will ever knowHeartI say that because I tell him that all the time! HEE!! We are truly soulmates and see the beauty in eachother that no one else ever has or ever will, it's a wonderful feeling and a testament that God has a plan for us
allBig smile Thank you again for all you are doing to help us. I can't thank you enough! I am so glad you are finally home! Prayers & many Blessings for you our new friend and God Bless!
WarriorChick


Posted By: WarriorChick
Date Posted: Dec 19 2009 at 11:05am

Hello all! Just had round 3 if A/C Thrusday and this go around has been a little tougher on me. I just feel "blah" and soooooo tired this time around. I don't if "blah" is an explanation of feeling, but it's the only word I can think of to describe itHA! Had to go back to the oncologist office yesterday to get a shot to help boost my white blood cell count....just LOVED it when the nurse said,"If you feel like your having a heart attack or your chest hurts really bad..it's just a side effect. Take some Tylenol and it should help." WOW! Thank goodness she told us cuz if I had had that happen to me I woulda been in chemo panic mode! HA! No chest pains, but dang did that WASP sting of a shot hurt like the dickensHubby was there holding my hand of course so it eased the pain! I've had a headache this time around too, is that normal I guess? Good grief I feel like a complainer! BUT I still have had no real nausea and I still have some hairso I'm doing good I think! My wonderful husband is a God send and I love him so much. Having him by my side during this journey God has put before us sure is one heck of a ride, but it has made our love for one another even stronger than it was before and I love knowing that I am forever with my soul-mate.....our life together is AMAZING and we are so blessed! Funny how things like this make you really appreciate one another and brings you closer than you were before you startedGod is AMAZING!

Our kiddos are all with friends and family and I miss them tremendously!!!! We always send them away, that sounds bad huh~HA,during treatment time just in case I have any bad side effects. I don't want them to see that part of it if it happens. I was 21 when my mother was diagnosed with Bone & Lung caner (at the age of 39yr) and I can still remember how hard it was on her. I don't want my babies to remember that part of this disease if it happens to me

Well friends, I hope all of you are doing well and all geared up for HO~HO!! I know we are looking forward to Christmas morning with our babies! Yet another memory to make and remember forever!!!

God Bless you all and thank you for your support and kind words. Scott and I are so grateful for you all



Posted By: SagePatientAdvocates
Date Posted: Dec 19 2009 at 11:24am
Dear Warrior Chick,

I am going to make this short because, as you know, I have a lot of work to do with Scott this weekend.

I did want to reaffirm what I said about Scott. I have had a lot more contact with him since I wrote the other day and I continue to marvel at his love for you and his desire to understand the situation you are in and help you through it in the most intelligent way possible. Your beautiful post above shows how much you appreciate him and I know he adores and appreciates you. You are both blessed.

It is o.k. to tell us honestly what you are experiencing on this journey. No one will ever feel you are a complainer as you go through your chemo. And yes, headaches can be part of it, too. My daughter experienced the same. I think it is very important for you to get your feelings out on this forum and for you to receive the support that I know will be coming your way from this wonderful TNBCF family.

Hope you have a lovely holiday with your family..

in your corner, always,

Steve


-------------
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates


Posted By: WarriorChick
Date Posted: Dec 19 2009 at 11:59am
Thanks SteveSmileOne of the hardest things for me to do during this journey (as I like to call it) has been to reach out to others. I am a very strong woman and have always felt that I could handle it all, but thru this God has shown me that it's ok to lean on your friends and those that are out there for you. Of course I'm always leaning on hubby, he's always there to pick me up if he see's I'm not my usual selfEmbarrassed But asking others for help instead of being the one to help is something I'm learning to do. I'm glad to know that the headaches are normal,it feels like I can't get it to go away this time around for some reason. And as I'm sure Scott has probably mentioned to you & our other new friends on
hereThumbs Up I have been so emotional the last week or so...I'm sure a combo of being preggo and chemo at the same time! HA! I know I will feel so much more at ease once our little miracle princess arrives and I can hold her and know she is ok. In my heart I know God has her in his loving hands and that she is and will be fine, I just can't wait to see her precious little face and the joy in her daddys eyes when he has her in his armsHeartThank you..I feel I can't say that enough, for all you are doing to help Scott & I out as we go thru this. You are very dear to us and we appreciate you're help more than you know!
NOW..get to work! HA!!!! Hubby is hard at it as wellGeek
God Bless!


Posted By: Carol (Tenn)
Date Posted: Dec 19 2009 at 12:45pm
Warrior Chick,
You brought a huge smile to my face. It does this old heart good to see the love shared by you and Scott.
My husband and I have been married for 46 years. As you might guess we've had our "moments", but we are committed and nothing could keep us apart. He's always been so strong and able to attack any situation head on. But when this got us, I saw him waver just a bit. It was the first time I saw him cry since our child died. He gathered it all up and became my staunchest supporter. I too, had some emotional times and he was always there to hold me and tell me everything was going to be all right. During the night I can feel him just touch me...pat actually...like he was making sure I was still there. I love him so much, it's hard to explain...but I'm sure you know exactly.
I've read that sometimes husbands don't do so well. I've read that sometimes they just walk out...I can't see how they could..but it happens..
I am happy to see you have God in your life. He has been with me through this whole ordeal, even when I wasn't with Him.
Have a wonderful day and if you feel led please comment on the Spiritual Support thread.
Love and Prayers,
Carol


-------------
St 2 Gr 3, A/C/T, DD
Radiation x35
Rec chest wall 07/09
Radiation x28
NED 10/24/11
NED 10/5/12
NED 03/15/13


Posted By: WarriorChick
Date Posted: Dec 20 2009 at 10:33am
Carol thank youHeartI can't wait to celebrate 46yrs with my hubby!! You are an inspiration to us that true love is there...and we're just not the lucky ones! HA! This whole journey, as I have chosen to call it, has brought us even closer than we were....and we thought we were pretty dang closeStarI look at Scott and my heart just swells with emotions because he is so wonderful and I love him so very much. How blessed are we to have such strong, loving husbands at our side thru this. God is GOOD!! I've seen my hubby cry very, very few times as well...on our wedding day and when we got the call about my cancer are the ones that stick out....and seeing that side of him makes me love him even moreHeartI too love that pat at night, just knowing he is there...hearing him breath~better yet snorePigha....it is so comforting to me. I've said it from the start of this that I can not imagine going thru this with anyone else at my side, he is my soulmate and I love him with all my heart. As my kids and I tell each other...."love you to the moon and back"!! He is my Always & Forever!!!
So good to know that there are other cheesy, in love couples out thereBig smileThank you for all your kind words and God Bless you sweet friend!


Posted By: arleneb
Date Posted: Dec 30 2009 at 11:43am
Here is another woman who is currently pregnant and battling TNBC

http://www.sarahjanesarmy.org/home/sarah-s-story


Posted By: WarriorChick
Date Posted: Dec 30 2009 at 12:19pm
Oh thank you very much for sharing!!! Smile
XO


Posted By: SagePatientAdvocates
Date Posted: Dec 30 2009 at 12:34pm
Dear Arlene,

thanks for posting..

I could not open the story clicking on the link you provided-

I am using the hyperlink function, now...don't know if that will work either..

http://www.sarahjanesarmy.org/home/sarah-s-story - http://www.sarahjanesarmy.org/home/sarah-s-story

Happy, Healthy New Year to you and thanks again for all of your help..

Steve

Dear Warrior Chick and Scott,

Prayers continue...my heart is with all of you...

always,

Steve


-------------
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates


Posted By: Scott
Date Posted: Dec 30 2009 at 9:49pm
Hi everyone, I neglected to update everyone on our last onc appt where we discussed adding a 5th AC to my beautiful brides chemo, so we could buy an extra 3 weeks for our little warrior princess to continue to grow. We are adding the extra treatment, it will be a full dose as will #4's tomorrow...not fractioned as we were afraid he might do. The onc said that the toxicity difference between 4 & 5 AC treatments is very little, in fact as someone posted earlier alot of lymphoma patients get 6 cycles of it. Why people with tnbc only get 4 is a question that I'm not qualified to answer, but hopefully someone on here can shed some light on that.
 
Have a great evening, Scott


Posted By: kirby
Date Posted: Dec 30 2009 at 11:57pm
I was always told the reason they only did 4 tx of AC was because of the possibility of toxicity to the heart. I don't know anything about what lymphoma patients get. And my info is what I was told in 2001. I don't think they were doing muga scans then, at least I never had one.

-------------
kirby

dx Feb. 2001. Age 44
Lumpectomy

2cm. no nodes stage 1 grade 3

4 rnds AC, 35 rads


Posted By: WarriorChick
Date Posted: Dec 31 2009 at 8:07am
PartyHappy New Years Eve All!!! My wonderful hubby and I wanted to thank all of you for your continued support, encouragment and help as we go along this journey! It has really helped us a lot, especially my hubby,to be able to come to you for advice and thoughts & prayersSmileAs we all head into 2010 I pray for all of our health, happiness, and that each of continue to allow ourselves to grow in our walks with the Lord! I know this new year will bring so much to my family & I  and we look forward to all the MANY memories we will make with our children and those special ones hubby & I will make togetherHeartThank you all again and we look forward to continuing to get to know you all! God Bless and remember......have a SAFE & Fun New YEARS!!!!!
***Steve~ We want to thank you SO very much from the bottom of our hearts for all you are doing and have done for us. I've said it before, but God has a way of shining light on things and you have most definatly been and we know will continue to be, a shining light in the journey for Scott & I. I am so glad that my fantabulous hubby has you to lean on and come to during this time. And I know in my heart that we will only continue to build a special friendship with you that will last for many years to come! God Bless you dear friend and know the Norwoods are wishing you and your precious family the greatest in 2010!!!!!
***Hubby~I love you honey more than you will ever know! You are my rock, my best friend, my lover, the one I love to laugh & cry with, the person I know I can always count on and the one I can't wait to to grow old with...holding your hand and loving you even more than I did the day we metWinkYou are amazing to me and your strength, your love for our family, your love for me and all the hard work...everything you do never goes unappreciated! I am SO glad God sent you to me honey and I look forward to an AWESOME 2010 with you and our precious kiddos and can't wait for all the memories we will make....AND I can't wait to see our precious little Warrior Princess in your arms!!!! I love you muches~always my love!!!! Your wife!


Posted By: trip2
Date Posted: Jan 01 2010 at 12:55pm
Hi Scott,
 
Kirby is correct, they are concerned about Anthracycline-Induced Cardiotoxicity
 
http://www.annals.org/content/125/1/47.full - http://www.annals.org/content/125/1/47.full
 
Best wishes,


-------------
Stage 2 2003
Stage 1 2007
BRCA 1+


Posted By: WarriorChick
Date Posted: Jan 02 2010 at 11:47am
It's so hard to know what is the right thing to do sometimes isn't it. I get so confused with all the pros & cons to having A/C #5,but I have to trust that God is taking care of me & our precious little miracle. It's really scary, the unknowns, of this entire chemo/cancer process. Something and a place I never thought I would be, but here we are and decisions have to made and I guess we have to do all our research and then go from there. I am so blessed to have such a strong, loving, caring, WARRIOR hubby at my side,who has amazed me with his strength during all this. I am so blessed to have him by my side and so proud! He has done and continues to do so much to make sure that our little miracle & I are getting the best treatment, the safest treatment and all the treatment that we need...WOW how awesome is the Lord my friends! And not to mention our new friends that have and continue to go out of their way to guide us along this journey. Thank you to each of you and your help is soooo greatly appreciated beyond words! Steve you are incrediable and I know I've said it before,but you have touched Scott & I so deeply and we are so Blessed to have you as our friend!
God Bless All and I hope 2010 has started off GREAT! I know I look forward to a fresh year full of love & new memories with my precious hubby and my beautiful kiddos and all my family!


Posted By: unklez
Date Posted: Jan 02 2010 at 11:52am
Dear WarriorChick,
So nice to see your pink letters! Great that hubby is with you all the way.
Remind me please why you are considering getting AC #5?


-------------
Wife Dx: Jul/09. Age: 37. Size: 3cm. BRCA: -ve. Lumpectomy: Aug/09. Micromet 1/9 node. Chemo Start: Sep/09. E5103. DD ACB-> DD Abraxane (Taxol reaction). Zometa (S0307). Canadian Fraction Rads.


Posted By: Scott
Date Posted: Jan 02 2010 at 12:20pm
Hi Unklez, In order to start the taxol within the 2 to 4 week window after finishing AC, that would have put us needing to induce the baby at 32 weeks. Nobody involved in my beautiful brides care was comfortable with that at all, so after our onc consulting with MD Anderson it was decided to add the 5th AC to buy us an extra 3 wks to get the the magical 35th week, where the chances of complications go way down.
 
Scott


Posted By: unklez
Date Posted: Jan 02 2010 at 12:26pm
Dear Scott,
Thanks for explaining. What is this 2-4 week window?



-------------
Wife Dx: Jul/09. Age: 37. Size: 3cm. BRCA: -ve. Lumpectomy: Aug/09. Micromet 1/9 node. Chemo Start: Sep/09. E5103. DD ACB-> DD Abraxane (Taxol reaction). Zometa (S0307). Canadian Fraction Rads.


Posted By: Scott
Date Posted: Jan 02 2010 at 12:35pm

For taxol to be most effective following the AC it is suggested that it be started within 2 to 4 wks of your last AC treatment.

Scott


Posted By: unklez
Date Posted: Jan 02 2010 at 12:47pm
Thanks Scott.






-------------
Wife Dx: Jul/09. Age: 37. Size: 3cm. BRCA: -ve. Lumpectomy: Aug/09. Micromet 1/9 node. Chemo Start: Sep/09. E5103. DD ACB-> DD Abraxane (Taxol reaction). Zometa (S0307). Canadian Fraction Rads.


Posted By: SagePatientAdvocates
Date Posted: Jan 02 2010 at 9:02pm
Hi all,

I just wanted to mention an excellent resource, if anyone else here runs into PABC (Pregnancy Associated Breast Cancer), and that resource is Dr. Jennifer Litton at MD Anderson (MDA) in Houston.

If anyone is interested in this topic here is a paper she wrote with some colleagues from MDA-

javascript:AL_get%28this,%20jour,%20Womens%20Health%20%28Lond%20Engl%29.%29; - Womens Health (Lond Engl). 2009 May;5(3):243-9.

Breast cancer diagnosis during pregnancy.

http://www.ncbi.nlm.nih.gov/pubmed?term=Litton%20JK%5BAuthor%5D&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVAbstract - Litton JK , http://www.ncbi.nlm.nih.gov/pubmed?term=Theriault%20RL%5BAuthor%5D&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVAbstract - Theriault RL , http://www.ncbi.nlm.nih.gov/pubmed?term=Gonzalez-Angulo%20AM%5BAuthor%5D&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVAbstract - Gonzalez-Angulo AM .

Department of Breast Medical Oncology, The University of Texas MD Anderson Cancer Center, 1515 Holcombe Boulevard, Houston, TX 77030-4009, USA. jlitton@mdanderson.org

Breast cancer diagnosed during pregnancy is a challenging situation for the patient and her medical team. As women are delaying childbirth, the incidence is expected to increase. Most of the data surrounding the diagnosis and treatment of cancer during pregnancy is in case reports and small cohort studies. However, the data continues to expand regarding the safety of systemic treatments during the second and third trimesters for both the mother and the fetus. In this article, the use of diagnostic imaging, procedures, surgery and chemotherapy are reviewed as well as prognosis and future pregnancies after the treatment for breast cancer.

..................

All in all, I found this to be a really important article on PABC.  I found the bibliography extremely useful. Dr. Litton made it user friendly by highlighting what she felt were particularly important studies. I was then able to reference them as well and go over them with Scott. One downside...the article cost $60 to view. Hopefully you can view the article without cost at a local University medical library.

all the best,

Steve










-------------
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates


Posted By: Scott
Date Posted: Jan 05 2010 at 4:05pm
Hi Everyone,
My beautiful bride & I met with the baby doc today to finalize our plans, we are going to be bringing our little "Warrior Princess" into this big 'ol world in 28 days. So far everything is looking good, next Wed we go in for the last ultrasound, tour the neonatal wing at the hospital, & meet with the neonatologist. They are going to give my bride 2 days worth of steriods on the 18th & 19th of Jan. to help the babys lungs develop further..she checks in the hospital on Feb 1st & their going to induce on the 2nd, start Taxol 5 days later. Best case scenario for baby Taige is 10 days in icu, worst case is 4 weeks. Please keep my bride & soon to be princess in your prayers.
Scott


Posted By: WarriorChick
Date Posted: Jan 05 2010 at 4:16pm
A bundle of nerves is what this chemo/preggo momma isConfusedI can't believe in 28 days our percious little new baby girl will be here, in our arms and free from the comfort of her mommas belly! (although it may not have been so comforting the last couple months! HA!)I pray that everything with my last A/C treatment next week goes well and that God brings our little princess into this world safe & healthyHeartThen gives me the strength to finish up this journey! Which I know he will, he's on our side and has blessed us thus far on the ride! Thank you all for your prayers, please continue them...my wonderful hubby & I & our precious family need them! God Bless!


Posted By: dmwolf
Date Posted: Jan 05 2010 at 8:14pm
You are a warrior indeed, and that baby is going to be yet another tough little chick in great company.
love,
Denise


-------------
DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.


Posted By: 123Donna
Date Posted: Jan 05 2010 at 9:42pm
Scott and Warrior Chick,

You are an inspiration to us all.


-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: WarriorChick
Date Posted: Jan 05 2010 at 9:51pm
Donna & Denise, thanks girls! My wonderful hubby gave me the Warrior Chick name at the start of this  journey, he musta knew what he was thinkin' huh! HEE!!! I feel so impowered by Gods strength like never before and it is amazing how he works to me. You guys have all inspired hubby & I and continue to do so daily as we follow along with one another and share our stories. God Bless each of youStar


Posted By: Donna Z
Date Posted: Jan 05 2010 at 10:10pm
Warrior chick and Scott I know I will be looking so forward to hearing about when your little princess is born. You two really are amazing. Everyone on this board is but it is so very special to follow along how your baby and you two are doing navigating all of this.

Donna


-------------
Dx 03/09 TN, Stg 2a, gr 3, 1.7 cm Taxol X 12, FAC X 4, segmental mastec Sept 10/09,
1 pos/29, from Canada, Treatment MDAnderson, rads X 30 started Oct 29/09. Zometa start Nov 24/09


Posted By: unklez
Date Posted: Jan 05 2010 at 10:14pm
Warrior Chick and Scott,
Good luck. Please keep us posted as things develop.



-------------
Wife Dx: Jul/09. Age: 37. Size: 3cm. BRCA: -ve. Lumpectomy: Aug/09. Micromet 1/9 node. Chemo Start: Sep/09. E5103. DD ACB-> DD Abraxane (Taxol reaction). Zometa (S0307). Canadian Fraction Rads.


Posted By: SagePatientAdvocates
Date Posted: Jan 05 2010 at 10:16pm
Hi all,

I just got permission from Scott (and I am sure Warrior Chick does not mind as well) to post the following information I received from an oncologist at MD Anderson. I was told "it is absolutely amazing how babies, very often, get through chemo with virtually no side effects." I told this to Scott a few minutes ago with my prayer "from his lips to G-d's ears."

Warrior Chick, Scott, all of us are counting the days and praying for a smooth delivery, a healthy baby, and a good outcome for Mommy, as well..

you both remain in my prayers,

Steve


-------------
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates


Posted By: Carol (Tenn)
Date Posted: Jan 06 2010 at 12:56am

God Bless you all!! And I know He will...I love reading about you...I must apologize for not answering your last post to me. I must have missed it somehow. And Yes we are so blessed to have loving husbands..and I know that you and Scott with surpass our 46 years.

I can't wait to hear from you on our Spiritual thread when that beautiful miracle is born.
Love, Prayers and Hugs,
Carol


-------------
St 2 Gr 3, A/C/T, DD
Radiation x35
Rec chest wall 07/09
Radiation x28
NED 10/24/11
NED 10/5/12
NED 03/15/13


Posted By: Kellyless
Date Posted: Jan 06 2010 at 11:02am
We're having a baby, right here on the TNBC board!  So exciting, thanks you two for sharing with us here!  I mentioned before, my water broke 6 weeks early with my son, I went to the hospital early Wed. morning and they started me on the steroids, my son was born early Friday morning - his lungs were perfect, never had to have help breathing.  He had a lil jaudice and was slow to get the sucking started, but after a week he came home and did perfectly from then on.  He's a big strapping 16 year old now.  We'll be waiting on baby pics!  So exciting..........

-------------
IDC, 2.2 cm, Stage IIb,lumpectomy 1/30/09 ACx4,Tx4 36 rads
6/1/16 Local recurrence same breast, same spot 1.8cm Carb.4x every 3 wks, Taxol 12x once wk. Dbl Mast. PCR!! Reconstruction fail, NED!


Posted By: Scott
Date Posted: Jan 06 2010 at 12:16pm
Hi Kellyless, thank you for sharing such an uplifting story...hopefully Baby Taige will do just as well as your son did. My beautiful bride will have lots of baby pics ( that I'm sure of).


Posted By: WarriorChick
Date Posted: Jan 09 2010 at 8:14am
Hello friends! What a ruff time we are having hereConfusedMy hubby took me to the ER at Willow Creek (that's the baby hosptial here that we go to)on Thursday I'm thinking around 3ish...I was just really having a hard time, felt terrible..had had stomach pain the night before...it's hard to explain, it was just bad. Thank goodness our kids didn't have school Thursday, our son Clay was home to help with the girls & our Boo and what a HUGE help he was, I didn't even get off the couch till Hubby came and got meCryAnyhoo...got to the ER, I was checked and I'm dilated 1cm already and man did she wanna come meet her mommy & daddy!!! HA!! BUT they put me on meds to stop that, gave me other meds for my headache and gave me a blood transfusion because my red blood cells were so low and gave me a shot of steriods for Taiges lungs. They kept me overnight & sent me home yesterday afternoon. Thank goodness we have such an awesome support system here to help us with our kiddosStarWe have been so so blessed beyond words. They are with friends right now until tomorrow. I went back to the hospital at 5 yesterday for another steriod shot and was still dilated 1. They didn't want to keep me there due to my white blood cells being extremly low and risk of me catching something....so I'm basicly on house arrest! (I'm a terrible speller as you have probably already figured out, so bear with meTongue) I didn't sleep well last night, I'm sure mostly due to nerves and anxiety and the fact that I'm feeling some aching in my hips & legs and heartburn that doesn't seem to wanna go awayUnhappy. Always sumpin with us chemo chicks huhEmbarrassedMy fabulous hubby is sleeping soundly and I am so grateful for that, he is so strong and so wonderful...I am, as I always say so so blessed to have himHeartI worry about him during all of this, trying to stay so strong for the kids & I. I so don't want him to overdue it...My Warrior Hubby that he
 isCoolAnd I worry about my kiddos, are we doing the right thing by having them be gone so much during all this? It's so hard to know what is the best thing to do, we feel we are doing the best for them,but it's the most they have EVER been gone and it's so hard on me...I miss them terribly. But I know that I have to be 100% in order to give them 100% and I know God is guiding them as he is us all during this journey and reminding them at all times that they are our #1 and we love them muches & muches....all we do is for them!
We are also so anxious or our precious little miracle to arrive, yet worried right now and full of anxiety with all we are going thru. Our hope is the stays in the oven till after this last A/C treatment then they will let her come on into this BIG O' world if she decides too....which her daddy says is gonna happen~I think he is just wanting to get his hands on herHeartI can't wait to see that moment!
OK my friends, I've rambled on enough for all I'm sure! HA! Please keep us, our kiddos and or precious Warrior Baby in your prayers. We know God hears all and we feel his might power everyday!
God Bless and happy SaturdaySmile


Posted By: SagePatientAdvocates
Date Posted: Jan 09 2010 at 8:25am
Dear Warrior Chick,

I am very glad you posted so that everyone knows what is going on and can send you and Scott their support.

Please tell Scott I sent him some text messages..

I believe you are doing the right thing regarding your children. There is a ton of love in your family and they will be fine.

I had dinner last night with friends and her little boy was born two months premature...3 lbs. 2 oz and he is 7 now and is in excellent health and developmentally is a brilliant young man..we discussed some online courses for him because he is so advanced academically.

My prayers continue and I am looking forward to seeing you both on Monday..

in your corner, always,

Steve


-------------
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates


Posted By: WarriorChick
Date Posted: Jan 09 2010 at 8:35am
Steve~Thank you so much for your support! It means the so much to usSmileIt makes me feel better to know that others agree with us where the kiddos are concerend and I know in my heart that this is all such a small bump in our long life toghther and that we will soon be looking back and saying man what a ride...the kids will feel the same way no doubt! We are so looking forward to seeing you Monday as well dear friend! And wish you nothing but safe travels hereThumbs UpThank you also for the info on your friends son! It helps as well to hear encourging things like that when you are in our situation!
God Bless
**And I will let hubby know you messaged him, I know he will get back with you soonWink**


Posted By: Donna Z
Date Posted: Jan 09 2010 at 10:15am
Scott and Warrior chick and kiddos. Know that there are many prayers with you this week. I had to go on strict bed rest with my second son and our #1 son had to be looked after by others for months. Hard stuff but he did amazing with the adjustments. He was only 2, I couldn't lift him and he learned to climb into the grocery cart himself and all kinds of things. #2 came early anyways; born at 36 weeks and started gaining a pound a week and never looked back. He has only gone to the hospital for a broken thumb and is now 24. Nothing like what you and your family is going through now. It is a blessing if others can look after your kids as I am sure they feel wonderful being able to help out!

Donna


-------------
Dx 03/09 TN, Stg 2a, gr 3, 1.7 cm Taxol X 12, FAC X 4, segmental mastec Sept 10/09,
1 pos/29, from Canada, Treatment MDAnderson, rads X 30 started Oct 29/09. Zometa start Nov 24/09


Posted By: 123Donna
Date Posted: Jan 09 2010 at 11:12am
Warrior Chick and Scott,

So glad to hear you're hanging in there.  I'm glad they got the contractions to stop and hope the little one can wait a little longer before entering this world.  You need to take care of yourself as much as possible so you'll be strong when this baby joins you.  Your other children will be fine and you're very lucky to have the support of family and friends.  My dh and his siblings were very young when their dad was battling melanoma.  His mom was away from home at the hospital a lot and the grandparents stepped in and provided so much help and support to the family.  All the kids hold their grandparents in the highest esteem for what they did for them.  I believe your kids will appreciate the help and support that others are giving your family.


-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: dmwolf
Date Posted: Jan 09 2010 at 11:27am
Warrior chick - you haven't had your 5th AC?  If not, maybe you should give your body a rest and wait for it until after you have your baby.  You sound super run down, and the next AC won't help with that.  Are any of your doctors discussing the possibility? 

You guys have been through so much, and with such amazing high spirits.  You are truly blessed with love.

-Denise


-------------
DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.


Posted By: Terje
Date Posted: Jan 09 2010 at 3:43pm
Warrior chick, for heartburn, try some mint tea and see if it helps.

Terje


Posted By: WarriorChick
Date Posted: Jan 09 2010 at 4:05pm
Oh thank you Terje! I will def try that, I'm at my wits end with this heartburn...UGH nothing is helping me so far and dang that stuff makes a Warrior miserableLOL
God Bless


Posted By: Tambu
Date Posted: Jan 09 2010 at 5:34pm
Hello Scott and Warrior Chick.I am sorry that you have to go through this.I found a lump 2 weeks before my delivery date and they thought it was a clogged milk duct.10 days later I was diagnosed as being TNBC as the tumor was 3 cm,that was on 11/14/08.On 1/8/09 I had a Left Mastectomy ,no lymph node involvement,diagnosed as Stage 2a,Grade 3.I had dose dense chemo,4 rounds of A/C,the 4 rounds of Taxol.Being postpartum,the side effects were a little more harsh.I had genetic testing done and I am BRCA 2 negative,but my BRCA 1 showed a variant mutation that they have never seen before.So I opted to have a laparoscopic vaginal assisted hysterectomy on 10/20/09.I alos just had a Right prophylactice Mastecttomy with bilateral reconstruction on 1/7/09.I am only 2 days post op,but I am glad with the decision I made.After wearing the prosthesis for 1 year,it really became bothersome.My Husband,family,and co-workers were wonderful through the whole process.My fight and my drive each day are my Husband and my children.I have a 10 year old high functioning autistic son,a 5 year old son (who is my biggest cancer advocate),and my 1 year old Daughter Sydney,my angel.I can tell you it is a difficult journey,but you will get through it.Everything in our house is now pink and we have participated in Relay for Life and Susan G. Komen Race for the Cure.If you ever want to talk let me know.My prayers and thoughts are with you and your family during this time.

-------------
Tammy
38 years old
dx: TNBC 11/17/08
3cm tumor
1/8/09 Left Mastectomy
Grade 3
Stage 2 N0
2 benign nodes removed
Clear Margins


Posted By: Scott
Date Posted: Jan 09 2010 at 6:45pm
Help Terge, having a tough time finding the mint tea...have been to Target and am now headed to Wal-Mart, any other suggestions?
Thanks, Scott


Posted By: WarriorChick
Date Posted: Jan 09 2010 at 9:18pm
Tambu how uplifiting and wonderful it is to hear your story! Thank you so much for sharing with usSmileThis has been a really challenging journey God has placed before us and we have tackled it thus far with the help of his almighty strength! Your words are so encourging and greatly appreciated! We have 5 children, 4 at home and soon to add another! So we can understand how hard it can be on everyone, this emotional rideShockedWe have been very blessed with a huge support system that surrounds us, prayers that we feel daily and as I said God working on us and guiding us as we go. There have been some tuff spots, we have been going thru one the past few days, but we are strong in our faith and I have the most fantabulous hubby in the world by my sideHeartI'm sure you can relate to how awesome it is to have your soulmate to lean on and encourge you, support you and hold you during all this. I am so happy to hear you are doing well and our prayers go out to you and your precious family! God Bless you and thank you for sharing with us! I hope we can communicate often on this site, it is such a refreshing, supportive place for my hubby & I.
God Bless


Posted By: 123Donna
Date Posted: Jan 09 2010 at 10:44pm
Scott,

Did you find the mint tea?  We have it in our local grocery store in the aisle where there's coffee and tea products.  I hope you found some.

Donna


-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: Terje
Date Posted: Jan 09 2010 at 10:55pm
Scott, this is the mint tea I've used.

Bigelow Mint Medley Herbal Tea
http://www.amazon.com/Bigelow-Medley-Herbal-20-Count-Boxes/dp/B000GFYRKI - http://www.amazon.com/Bigelow-Medley-Herbal-20-Count-Boxes/dp/B000GFYRKI

I've never had to buy it so I'm not sure where to. It seems standard for what companies around here buy for their break rooms and I've used it many times at work for acid reflux after eating Indian food for lunch.

I hope you're able to find some and it helps.

Terje


Posted By: unklez
Date Posted: Jan 10 2010 at 12:29am
Scott, WarriorChick,

You should be able to find mint tea on Amazon like Terje wrote or at any supplement store or A&P.



-------------
Wife Dx: Jul/09. Age: 37. Size: 3cm. BRCA: -ve. Lumpectomy: Aug/09. Micromet 1/9 node. Chemo Start: Sep/09. E5103. DD ACB-> DD Abraxane (Taxol reaction). Zometa (S0307). Canadian Fraction Rads.


Posted By: Scott
Date Posted: Jan 10 2010 at 2:59am
Hey Guys, found it..same brand you metioned Terge, gotta love wal-mart. Not only did I find it. but it worked..gave my beautiful bride some greatly needed relief. I am still struggling with the shopping deal & I really appreciate all the tips.
Scott


Posted By: WarriorChick
Date Posted: Jan 10 2010 at 11:06am
Thank you for the Mint Tea idea...hubby found it at the store (his not so fave place to go as of lateConfused)It did seem to help which is wonderful! I finally got some much needed sleep last night, thanks to hubby getting a little upset with his Warrior ChickAngryHEE!! Momma hates to take all these meds, but the doc at given us something to help me sleep and my FANTABULOUS hubby insisted that I take it....I did with some
reluctancyShockedBut it did help...slept from about 12-230am then came to my lounge chair and slept till about 9am! Still feel like I need to catch up, but feel at least somewhat rested a littleWinkAnd hopefully hubby will be over being agitated with his Warrior this morning when he wakes up! HEE!! I'm thiking he might be in need of some much needed sleep himself my friendsHeartPraying God makes this a good day! I can't get out and go to churchCryBut I can pray from home & I know her hears! God Bless you all for your continued support and pray for my wonderful hubby that he gets some rest as well and that the Lord continues to give him the strength to keep doing the wonderful loving job he is doing of taking care of me and our Warrior Baby to be along with our other kiddos and all the other things he has to doHeartHe's our rock! Happy Sunday to All and God Bless


Posted By: kirby
Date Posted: Jan 10 2010 at 11:40am
Tea can be made of fresh mint if you have that growing in your yard. Often mint just takes over so I grow it in a pot. Tends to die back though this time of year. Just steep the freshly picked as you would a store bought bag. Doesn't need to be dried.
Ginger tea was good for chemo nausea.

-------------
kirby

dx Feb. 2001. Age 44
Lumpectomy

2cm. no nodes stage 1 grade 3

4 rnds AC, 35 rads


Posted By: 123Donna
Date Posted: Jan 10 2010 at 11:58am
Warrior Chick,

It's good to hear you got some needed rest.  I hope Scott did so as well.  It can be difficult on the caregiver both emotionally and physically.  Both of you take care of yourselves!

Donna


-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: SagePatientAdvocates
Date Posted: Jan 11 2010 at 11:11pm
Dear all,

I just wanted you to know that I spent a marvelous day with Scott and Warrior Chick and also met most of their children.

I think it is, perhaps, very hard for many outside of our community to understand how blessed a couple can be even though cancer is in their lives. I say 'their' because I feel Scott feels everything Warrior Chick does.

Their love for each other and their children is absolutely beautiful to behold.

I rejoice in their love, and deeply admire how they treat each other and their children..and the courage and positive attitude they both exhibit.

Thank you both for sharing your lives with me.

You have been, are and will be in my prayers..

your friend, always,

Steve


-------------
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates


Posted By: WarriorChick
Date Posted: Jan 11 2010 at 11:58pm
Hello all! I hope everyone has had a wonderful evening! My wonderful hubby & I had the pleasure of spending the day with our new dear friend Steve! We both have felt so blessed from the start of our growing friendship and after meeting Steve and spending the day with him we know in our hearts that God sent him to usSmileOur children got the chance to meet him which was exciting for them as well, I've told them about Mr. SteveStarso it was good for them to meet the man that has helped mommy & daddy thru this journey we are on. We look forward to seeing you again our friend and as I said...Pinky PromiseWinkCan't break those! Hubby & I know we will have a lifelong friendship with you and look forward to someday soon meeting your fantabulous family as well!
God Bless and thank you so much for taking time to come visit us! I'm so glad you got to see the love that Scott & I share with one another....he is my Knight in Shining Armour and I love it that others can see the love we have together!
God Bless, Safe Travels


Posted By: dmwolf
Date Posted: Jan 12 2010 at 12:16am
Such sweetness!

-------------
DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.


Posted By: diane1234
Date Posted: Jan 12 2010 at 2:50pm
Scott and Warriorchick, 
       I have not been on the boards very much lately. I just completed #15 of my 30 radiation treatments today. I had double mastectomy on 5/21/2009. Then started Chemo three weeks later. I did 12 weekly taxol and then 4 FAC. I want to say hello. I noticed you all are in Arkansas. Well me too. I did read a post on breastcancer.org of another pregnant woman undergoing treatment for TNBC. I just recall her posting pictures of her (CHEMO BUDDY) when he was born. He was healthy and completely adorable. 

GOD BLESS ALL OF YOU


-------------
dx 4/09 at 36 yrs old. dbl Mast. 5/09. 12 weekly Taxol 4 FAC tri weekly. 32 rads completed 2/2010. Its Back 5/2010!! Chest wall, Mediastinal node, Lft mammary node and liver. Back on chemo.


Posted By: Scott
Date Posted: Jan 12 2010 at 9:39pm
I just wanted to let everyone know how much all the prayers, thoughts, & support are appreciated. You ALL are an amazing community of men & women, and we feel so lucky to have found you & even more blessed that you have accepted both my beautiful bride & I into this loving family.
 
Steve, what a wonderful honor it was to meet you my friend. You are such a caring & thoughtful man that has already touched our lives in such a profound way. Spending the day with you yesterday was such a comforting time for both Cristy & I, and like we agreed--we shall meet again in the very near future (pinky promise), and you dont break a pinky promise with "Warrior Chick"
Your friend, Scott


Posted By: Scott
Date Posted: Jan 12 2010 at 9:44pm
Diane1234,
 It is great to meet you, we live in Fayetteville, what part of our great state are you in? Thanks for the tip, I've been following the same thread on that board, I believe she calls herself "Pure", is that who you were  referring to? Its very inspirational & we pray that our little "warrior princess" will turn out just as healthy.
Scott


Posted By: WarriorChick
Date Posted: Jan 13 2010 at 9:17am
Well all...it's official! I am now a  melon headEmbarrassedHEE!! That's what I call it and no offense please to anyone else. We had a little clipping party at our house last night and ya know it went wellClapMy sweet hairdresser came to our house and the kids & my wonderful hubby all helped! I actually had a surge of empowerment when it was all done! The kids did great! Our 3 year old daughter Rylee Ann wanted to shave her head too! HA! And she actually got a little upset & cried at one point, we think it all kinda scared her at first, but she got some momma & daddy luvins and told me I looked beautifulHeartBoo~our 1 year old, got to participate with a little help from daddy! Clay, our 12 year old said I looked cool! And our 6 year old daughter Remington did well at first, she was nervous we could tell, but did great till bedtime when mommy tucked her in and then bless her heart she started to cry and said she just wanted mommy back the way she wasCryBroke my heart, but after we talked about it and I explained it all to her, she was ok! Such innocence in a child,it's so precious! I am so very blessed to have such support at home and without my beautiful family this wouldn't be as easy, but they make it so easy to smile along this journey along with the support from the LordWinkMy HOT hubby thinks his Warrior chick REALLY looks like a Warrior nowHeartI think he's kinda excited about it! HEE!!!
We go today to tour the NICU and meet with the doctors & nursers that will be taking care of our Warrior Baby when she arrives! Chemo #5 tomorrow, then a break for a little bit....guess I may get a chance to feel normal, or somewhat then start the Taxol and feel poopie again! HA!
God Bless you all and Happy Wednesday to you!


Posted By: mrsmurphy
Date Posted: Jan 13 2010 at 10:31am

Hey Warrior Chick, I havent been on in a while and wanted to connect with you because I just read this string of posts.  I was also diagnosed with grade 3, stage 2, 2 pos lymph when 29 weeks pregnant with twins.  I got my news on my 33rd birthday, 10 days before my 4 other children, husband and I were to fly from WA to TX for a military pcs move, our house sold and in boxes.  It was so fast growing when I was told on a Thursday, they opened the or for me on Sunday for a lymphnodal section and lumpectomy, I got rest on Monday and Tuesday the movers came.  We were in the hotel and Wed night I went into preterm labor, had my twins 10 weeks early and we were stuck homeless in WA.

I can fill in the middle details later, but the good news is we are ALL settled in TX, the babies are now nearly 7 months and doing great, we are homeschooling and making friends, and I got unbelievable help when we flew in and in 2 weeks was in for the double mastectomy and then had chemo.  I am doing radiation now and have 17 treatments left to go.  PET scan in feb and if all looks good during the summer, then reconstruction!

my hair is growing back, so I fit in with the Marines and soliers around me...but its GROWING.  The worst was no eyebrows, no eyelashes, no nothing.  But its back.

Its great to hear your positive attitude and witness your husbands involvement, God blessed us with amazing husbands when we needed them!
 
God bless you, everyone .....keep up the good fight and great attitudes!  That, I think, can be the hardest part!
 
Mrs. Murphy


-------------
33yo mom to 6 dd, diag 6/09, while preg w twins! Grade 3, stage 2 tumor (4cm), 2 pos lymph, triple neg, dble mast 7/09, chemo done Nov 09, radiation done Feb 10! BRCA -, new boobs sched for July!


Posted By: WarriorChick
Date Posted: Jan 13 2010 at 11:41am
WOW what a story Ms. Murphy!!! God Bless you and your courageWinkWe all have a story to tell behind this journey God has put us on don't we! I am so glad to hear your babies are doing so well and that you my friend are too! I have yet to loose the eyebrows or lashes...we'll see what happens! Got one of my sassy wigs on today with a cute hat and I am feelin' goodStarHEE!! My heart just overflowed this morning when my precious 1 year old Boo woke up and I went in to get him and he just smiled his BIG O' beautiful smile and loved on me!! I thought wow, he doesn't even notice mommy has no hairSmile
Thank you again for sharing your story with me! God has so blessed our family during this time and we have felt his presence from day one and it has done nothing but grow stronger & stronger along with our faith! My husband is an amazing man and I love him more than words could ever say, I'm so glad you have that same support & love, it is sooo very important!
God Bless you dear new friend!


Posted By: SagePatientAdvocates
Date Posted: Jan 13 2010 at 12:04pm
Dear Warrior Chick and Scott,

There have been a number of threads here and on other sites about how to tell children about Momma's (as you would say Smile) cancer. As with all of this, I don't believe, there is no precise, correct answer. Every family dynamic is different as is every child. What is clear, 99% of the time, is that none of us want to hurt our children. Our inclination, often, is to try and protect them from experiences that will be painful.

But looking back on it the thing that really helped me get through my mother's terminal disease was her honesty. From day one she shared everything with me and as she was a single mom and didn't have anyone else to lean on I became her rock. Yes, at age 17, it was extremely difficult and it was a 3 year battle. It would have been difficult for me at age 7, 27, 37 etc. To be honest, I will be 66 in about 2 weeks and I am still grieving.

Sharing with me really helped my mom. We could talk openly and honestly about what was going on. She did not have to go through her journey in secrecy. Little did I dream that 40 years after she passed I would go through another breast cancer journey with my daughter who was dx with TNBC at age 36. Having open honest discussions with her and being with her through four months of chemo and various surgeries forged a life-long bond that was strengthened through adversity. And, fortunately, we hope she is cured, whereas my mom was not.

Warrior Chick and Scott, I just want to tell you how much I admire you for making the children part of this experience in the loving way you have. As we discussed each of your children are different but what is consistent is the love you shower on all of them. Keeping this a secret with more chemo and a long course of radiation therapy coming up, while well intentioned, would not have worked and asking a 14 year old to not tell a 6 year old and/or the 6 year old not to shre with the 3 year old would also not have worked in my opinion. This bond that your children now share will forge closer relationships in later life, as well, and will serve as a life lesson for them as they meet adversities of their own as adults and parents. And certainly some of the individual conversations you have will probably be slightly different.

Warrior Chick, I feel I know you a lot better than I did before. 99% of my conversations prior to my visit were with Scott. After spending a full day with you I saw the deep love you have for your children and I also saw the love they have for you. Yes, you are a very strong woman and I admire that strength and your positive attitude but you are also a loving wife and mother. I knew about the loving wife part from Scott but it is the loving mother part that blew me away and your sharing your buzz cut yesterday epitomizes how you have handled this. Openly and lovingly...and yes, I feel your pain and I am glad you shared it with us. But, again, I feel you are doing the right thing by sharing...and they and everyone else in your life knows that you are a beautiful woman, inside and out, with and without hair..and your hair will grow back..

Your children will help you get through this arduous journey and your and Scott's love for them will help them get through it also.

Please know that your TNBCF family will be with you every step of the way and no need to worry about our "pinky promise" ever expiring. I am delighted to have you guys as friends and that will never change. You are 'stuck' with me for the duration. Smile

with my love to you and your kids, always,

Steve


p.s. tell Remington I have a new TicTacToe trick for her next time we meet..and there will be a next time..


-------------
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates


Posted By: mrsmurphy
Date Posted: Jan 13 2010 at 3:28pm
Yes, kids are so resiliant, they can take about anything!  My oldest is 9, so talking about what was happening was probably easier, I am a big believer about age appropriate talk.  The big girls know what cancer is, they all know mommy was/is sick, lost breasts, hair, has to rest and go to the doctor, the little ones just ask when Im getting my boobies back and want to touch my head. 

I had a harder time with the talk though, I dont want to talk about it much because Im a crier, and I shaved my head all by myself because I just didnt want anyone around for that.  It had been falling out in clumps and my scalp was all sored, it just wasnt a fun experience.

The hardest was finding my oldest crying, afraid I was going to die, afraid kids could get cancer and she was going to suffer, she is my sensitive one.

Im so happy you are making the most of your experience with your family through it, God will provide and keep the faith!

Mrs. Murphy


-------------
33yo mom to 6 dd, diag 6/09, while preg w twins! Grade 3, stage 2 tumor (4cm), 2 pos lymph, triple neg, dble mast 7/09, chemo done Nov 09, radiation done Feb 10! BRCA -, new boobs sched for July!


Posted By: WarriorChick
Date Posted: Jan 13 2010 at 4:08pm
Thank you Steve for the kind wordsSmileMy children & Scott are my life and I am so glad they are on this walk with me! It has been so important to me to make them a part of this whole journey we are on, I've always been very honest & open with them about things and I knew in my heart this was something they needed to be a part of as well. I agree with you Mrs. Murphy as does Steve I think, that you have to do things age appropiatly and we all deal with that in our own wayWinkMy kiddos have seen my surgery scars, felt them, heck they saw it when the drains were inDeadI've read a great book that was given to us regarding cancer & chemo to our 6 & 3 year old daughters which they love...it's called Paper Chain. We've talked about the port and daddy has talked with them about the chemo, he's right there with me on helping explain everything to themBig smileAnd the Clipper party was great! I told our 6 year old, when she got upset last night at one point, that I would let her take a picture everyday when mommies hair started to grow back and she could make a scrapbook out of it, so we could see what it looked like going from now to back to the normal old mommyStarShe loved that idea!
Thank you all for all your support as I've said over & over again, Hubby & I know we are so blessed to have each of you and this site to come to and it has helped us so very much!
Steve you know we love ya muches!!!! I hope you and your Lady Love have had a great mini vaca!! Much needed I know!
Mrs. Murphy, such a pleasure having you here to share you journey as well!!
God Bless All


Posted By: SagePatientAdvocates
Date Posted: Jan 13 2010 at 5:51pm
Hi Mrs. Murphy and Warrior Chick,

I probably could have expressed myself more clearly than what I wrote above-

"And certainly some of the individual conversations you have will probably be slightly different."

I meant age appropriate conversations on an individual basis. The problem comes in when the kids talk amongst themselves and it is hard to monitor those talks and/or instruct older siblings what to say. It is, I think, up to a parent's judgment at times, as well. I think a parent knows his/her child and can tailor the conversations and all situations and all children/relationships are different. No easy path to any of this, from my experience, especially with 4 kids in the house from 14 to 1.

all the best,

Steve






-------------
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates


Posted By: Scott
Date Posted: Jan 13 2010 at 8:56pm

Mrs. Murphy, what a inspirational story...6 GIRLS...oh my goodness, oh my goodness, oh my goodness :). Seriously, its so good to hear your doing well & I bet those beautiful daughters have their Daddy wrapped right around their little fingers.

All my best, Scott


Posted By: Scott
Date Posted: Jan 13 2010 at 9:17pm
Just wanted to let everyone know the latest, as some of you know my beautiful bride is scheduled for AC #5 tomorrow, which is neccesary to try and get our "warrior princess" to 35 wks before inducing & without messing up the timing of when to start the Taxol. Sometimes its damn if you do & damn if you dont, so the million dollar question is (Yes my dear friend Steve is deeply worried about this right along with us) does my beautiful bride have the chemo & if so what if Taige comes the next few days, you should not give birth within 14 days of chemo. What if she doesnt do chemo and Ms. Taige stays put until Feb 2nd, well then my beautiful bride has missed the optimal time for starting the Taxol.
   We hoped the answer would be a test that my bride was given this morning called a Fetal Fibronectin Test, it somehow measures protien & if the test is negative, then your very likely not to give birth for at least 2 to 3 weeks. If its positve it means "NOTHING", you could give birth in a day or a month. Well guess what, it was positve...Thats the Norwood luck for ya :), so after discussing with both the onc & obgyn my bride is having #5 tomorrow. The main factor that came into play was that as of 2 days ago she was dilated to 1 & she actually was a little less dilated today, and that fact that our obgyn assured our onc that if our "warrior princess" tried to come within the next 14 days that he would stop her. So off we go in the a.m., everyone please keep my beautiful bride & princess in your thoughts and prayers tomorrow.
Scott
 
P.S.  Steve...Dr. G is still waiting for a return call from LR, he's out of the state, and as you well know that very well may affect our next planned step.


Posted By: WarriorChick
Date Posted: Jan 13 2010 at 9:41pm

I agree with you Steve 100%SmileI may be the one that didn't explain myself properly my friend! You & I are on the same parenting page with all thatStar

God Bless


Posted By: SagePatientAdvocates
Date Posted: Jan 14 2010 at 12:10am
Dear Scott,

sorry about the result...as Roseannerosannadanna used to say on SNL..."if it's not one thing it's another"

I am praying that this treatment will be well tolerated...

hugs to you both,

Steve


-------------
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates


Posted By: WarriorChick
Date Posted: Jan 14 2010 at 7:54am
Morning allEmbarrassedUp getting my Big kiddos ready for school! Has anyone ever heard of a 6 year old that doesn't like powderd donuts?!!! What is wrong with that childConfusedNervous about chemo this morning, I'm always nervous on chemo day though. Praying this 5th & final round of A/C goes well, I know it will...Taige & I are in Gods loving hands! I do always look forward to spending the day with my wonderful hubby thoughWinkAnd then he'll be with me all weekend so that means lots of snugglin' and movies on the couch since momma will be chemo pooped! HA! God Bless you all and Happy Thursday to you!
***Steve~ I told Remi about your new game and she grinned from ear to ear and wants to know what the name isLOL****



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