TNBC & Pregnant |
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dmwolf 
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Joined: Jan 22 2009 Location: Berkeley, CA Status: Offline Points: 3619 |
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 Posted: Dec 15 2009 at 12:19am |
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Steve, much luck with the CT scan tomorrow. I don't know if this will annoy or comfort you, but I *know* you are fine. Your vibes are exceedingly healthy.
love, d |
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DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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SagePatientAdvocates
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Joined: Apr 15 2009 Status: Offline Points: 4748 |
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Posted: Dec 15 2009 at 1:15am |
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Thanks, Denise..
much appreciated..glad you made it home o.k. love, Steve
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I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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SagePatientAdvocates
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Joined: Apr 15 2009 Status: Offline Points: 4748 |
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Posted: Dec 15 2009 at 6:56am |
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Dear Scott and Warrior Chick,
just sent you a PM with my cell phone number and email address... all the best, Steve
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I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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susie72404
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Joined: Dec 07 2008 Location: Birmingham,Al Status: Offline Points: 107 |
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Posted: Dec 15 2009 at 8:19am |
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I don't know if this will apply to your being pregnant,but my Mom had 6 rounds of AC when she was treated for non-Hodgkins Lymphoma as did a friend of mine. So I know patients are given more than 4 rounds and do just fine.
So sorry you have to deal with any of this. My prayers are with you...blessings.. :) |
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Susie Age 56 at DX
dx10/08,stage1,grade3 lumpectomy,.75cm. tumor,SNneg., 12/08 began 4xAC,03/09-05/09 35rads BRCA2+ June 2009 oophorectomy10/6/09,bilateral prophylatic mastectomy June 2010 |
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Scott
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Joined: Dec 08 2009 Location: Arkansas Status: Offline Points: 126 |
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Posted: Dec 15 2009 at 9:36am |
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Hi Susie, that is so very encouraging, Did the docs have any reservations about the extra AC doses that they gave your mon?
Steve, we're actually in Arkansas but I would still like to give you a call....I'll give you a call this evening. Thanks, Scott
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Terje
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Joined: Nov 07 2009 Location: San Jose Status: Offline Points: 215 |
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Posted: Dec 15 2009 at 12:42pm |
You make a good point. But you have to remember, just because they're doctors doesn't make them flawless. That's why second opinions are so important. I searched a little and found this: Cancer, Chemotherapy, and Pregnancy It has a list of several common chemotherapeutic agents and their possible teratogenic effects, but it lacks many of the agents I've seen while reading about TNBC. Adriamycin and cyclophosphamide are mentioned, but Taxol is missing. Carboplatin and gemcitabine are also missing. |
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susie72404
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Joined: Dec 07 2008 Location: Birmingham,Al Status: Offline Points: 107 |
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Posted: Dec 15 2009 at 2:35pm |
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Hi Scott,
They did not have any reservations, and my friend, Pride, just had 6 rounds of AC in 2009 for non-Hodgkins Lymphoma, and she is just fine. So, I am saying this to be encouraging. I think with some cancers this is the standard of care. However, so sorry you have to deal with this at all... :)Susie |
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Susie Age 56 at DX
dx10/08,stage1,grade3 lumpectomy,.75cm. tumor,SNneg., 12/08 began 4xAC,03/09-05/09 35rads BRCA2+ June 2009 oophorectomy10/6/09,bilateral prophylatic mastectomy June 2010 |
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kirby
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Joined: Oct 09 2007 Location: bay area,california Status: Offline Points: 1088 |
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Posted: Dec 15 2009 at 3:38pm |
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I am surprised that 6 rounds of AC were given. I was told in 2001 that no more than 4 were given because of potential heart issues.
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kirby
dx Feb. 2001. Age 44 Lumpectomy 2cm. no nodes stage 1 grade 3 4 rnds AC, 35 rads |
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susie72404
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Joined: Dec 07 2008 Location: Birmingham,Al Status: Offline Points: 107 |
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Posted: Dec 15 2009 at 7:16pm |
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My Mom had 6 rounds of AC in 1989 and my friend, Pride, had 6 rounds AC in 2009. Both were fine afterwards. Both had non -Hodgkins lymphoma.
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Susie Age 56 at DX
dx10/08,stage1,grade3 lumpectomy,.75cm. tumor,SNneg., 12/08 began 4xAC,03/09-05/09 35rads BRCA2+ June 2009 oophorectomy10/6/09,bilateral prophylatic mastectomy June 2010 |
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WarriorChick
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Joined: Dec 11 2009 Location: Arkansas Status: Offline Points: 81 |
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Posted: Dec 16 2009 at 5:41pm |
 Thanks so much to all of you for your kind words and encouragement! 2for1 and I feel so blessed to have yet another way of meeting such special people during this time in our lives...as I've already said, God has so blessed our family! I'm still doing well...and still have hair, some of it ,which is a shocker to not only me, but everyone it seems! HA! I guess it's the prenatal vitamins or just the fact that I had a TON of hair to begin with, thanks to my dads
gene
 I was going to have my hairdresser come over so the kids could help her shave it, but decided to wait and see if I could make it a little longer. I just want to make sure that my kiddos are a part of it, I think that's important in helping them understand all that I'm going thru as well Not looking forward to my treatment tomorrow, just because you never know when you might have icky side effects and I've been REALLY lucky so far not to have any.....hopefully I won't this time either, but if I do I'm in good hands...hubby's here to good care of his preggo princess So I'll be in good hands! We've got the little ones with friends tonight for the weekend and nana & papa will get the 2 big kiddos tomorrow for the weekend. I miss them already, but I know they will all be having a great time Interesting to hear all the different oppinions regarding me having a 5th round of A/C...There are so many mixed emotions...BUT I am young and healthy and I have to believe that my wonderful oncologist wouldn't do anything to harm me or my little warrior baby
 And I've asked God to take care of us both from the start of all this and have felt his loving presence the entire time. Beleive me when I say that my FANTABULOUS husband has done TONS of research regarding A/C and will be talking to my oncologist about any concerns tomorrow I assure you all Thank you Steve for all the wonderful information you gave Scott last night! We both appreciate you deeply and look forward to a growing friendship!On another note, my hubby and I had a wonderful family night last night with our kiddos! Dinner and the Christmas lites at the square..pony rides and a carriage ride! These are the precious memories I cherish
 Hope you all have a cozy evening!God Bless you all
WarriorChick |
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SagePatientAdvocates
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Joined: Apr 15 2009 Status: Offline Points: 4748 |
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Posted: Dec 16 2009 at 5:54pm |
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Dear Warrior Chick,
with all the grief you are going through, you are truly blessed with Scott...after several talks with him his love and caring for you is so beautiful, so deep...I often write to women going through chemo and/or tough recuperations from treatment or surgery..."try to find the beauty in each day"...well Scott is the beauty from what I can see and I am sure your kids are as well... I wish I had a magic wand for you guys...all I can promise you is that I will try to get you as much information as possible so that you can ask your medical advisors good questions and as I mentioned to Scott sometimes getting a second opinion is difficult because the second opinion is different than the first and then you have some tough choices to make.. I know time is of the essence and I will try my best to help. I am calling Scott now...we missed each other when I was at airport this morning....just got home.. Warrior Chick, your positive attitude is so important...Hang tough!!!! you and your family remain in my prayers.. always, Steve
Edited by steve - Dec 16 2009 at 6:01pm |
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I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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Susi Q
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Joined: Dec 16 2009 Status: Offline Points: 1 |
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Posted: Dec 16 2009 at 5:59pm |
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Hi Scott and Warrior Chick. I just joined TNBC and saw your posts! I was 22 weeks pregnant when diagnosed and am also triple negative. I am almost three years out and have a healthy three year old boy! You might want to check out http://www.pregnantwithcancer.org . They have good info and support for people diagnosed when pregnant.
Good luck and keep thinking of the good things!
Susi
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Carol (Tenn)
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Joined: Aug 06 2009 Location: Paris,Tennessee Status: Offline Points: 2707 |
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Posted: Dec 16 2009 at 6:13pm |
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Warrior Chick and Scott,
Welcome to the family! I'm sorry you have to here but you are truly amongst the most caring helpful people on the net and everywhere.
I read all the pages up to here and I see you got a lot of good info. If it's out there our group has found it.
My prayers are with you both and the rest of the kiddies....if you think you might need a little spiritual encouragement, we have that too. Just go to Support Groups and then Spiritual Support. Please feel free to add your thoughts at any time.
Love and Prayers,
Carol
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St 2 Gr 3, A/C/T, DD
Radiation x35 Rec chest wall 07/09 Radiation x28 NED 10/24/11 NED 10/5/12 NED 03/15/13 |
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WarriorChick
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Joined: Dec 11 2009 Location: Arkansas Status: Offline Points: 81 |
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Posted: Dec 16 2009 at 6:52pm |
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Scott is awesome Steve and everything you said about him is so true. He is incrediable and loves me more than I probably will ever know
I say that because I tell him that all the time! HEE!! We are truly soulmates and see the beauty in eachother that no one else ever has or ever will, it's a wonderful feeling and a testament that God has a plan for us
all
 Thank you again for all you are doing to help us. I can't thank you enough! I am so glad you are finally home! Prayers & many Blessings for you our new friend and God Bless!WarriorChick
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WarriorChick
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Joined: Dec 11 2009 Location: Arkansas Status: Offline Points: 81 |
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Posted: Dec 19 2009 at 11:05am |
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Hello all! Just had round 3 if A/C Thrusday and this go around has been a little tougher on me. I just feel "blah" and soooooo tired this time around. I don't if "blah" is an explanation of feeling, but it's the only word I can think of to describe it Our kiddos are all with friends and family and I miss them tremendously!!!! We always send them away, that sounds bad huh~HA,during treatment time just in case I have any bad side effects. I don't want them to see that part of it if it happens. I was 21 when my mother was diagnosed with Bone & Lung caner (at the age of 39yr) and I can still remember how hard it was on her. I don't want my babies to remember that part of this disease if it happens to me Well friends, I hope all of you are doing well and all geared up for HO~HO!! I know we are looking forward to Christmas morning with our babies! Yet another memory to make and remember forever!!! God Bless you all and thank you for your support and kind words. Scott and I are so grateful for you all |
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SagePatientAdvocates
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Joined: Apr 15 2009 Status: Offline Points: 4748 |
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Posted: Dec 19 2009 at 11:24am |
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Dear Warrior Chick,
I am going to make this short because, as you know, I have a lot of work to do with Scott this weekend. I did want to reaffirm what I said about Scott. I have had a lot more contact with him since I wrote the other day and I continue to marvel at his love for you and his desire to understand the situation you are in and help you through it in the most intelligent way possible. Your beautiful post above shows how much you appreciate him and I know he adores and appreciates you. You are both blessed. It is o.k. to tell us honestly what you are experiencing on this journey. No one will ever feel you are a complainer as you go through your chemo. And yes, headaches can be part of it, too. My daughter experienced the same. I think it is very important for you to get your feelings out on this forum and for you to receive the support that I know will be coming your way from this wonderful TNBCF family. Hope you have a lovely holiday with your family.. in your corner, always, Steve
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I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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WarriorChick
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Joined: Dec 11 2009 Location: Arkansas Status: Offline Points: 81 |
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Posted: Dec 19 2009 at 11:59am |
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Thanks Steve
 One of the hardest things for me to do during this journey (as I like to call it) has been to reach out to others. I am a very strong woman and have always felt that I could handle it all, but thru this God has shown me that it's ok to lean on your friends and those that are out there for you. Of course I'm always leaning on hubby, he's always there to pick me up if he see's I'm not my usual self But asking others for help instead of being the one to help is something I'm learning to do. I'm glad to know that the headaches are normal,it feels like I can't get it to go away this time around for some reason. And as I'm sure Scott has probably mentioned to you & our other new friends on
here
 I have been so emotional the last week or so...I'm sure a combo of being preggo and chemo at the same time! HA! I know I will feel so much more at ease once our little miracle princess arrives and I can hold her and know she is ok. In my heart I know God has her in his loving hands and that she is and will be fine, I just can't wait to see her precious little face and the joy in her daddys eyes when he has her in his armsThank you..I feel I can't say that enough, for all you are doing to help Scott & I out as we go thru this. You are very dear to us and we appreciate you're help more than you know!NOW..get to work! HA!!!! Hubby is hard at it as well
 God Bless!
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Carol (Tenn)
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Joined: Aug 06 2009 Location: Paris,Tennessee Status: Offline Points: 2707 |
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Posted: Dec 19 2009 at 12:45pm |
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Warrior Chick,
You brought a huge smile to my face. It does this old heart good to see the love shared by you and Scott.
My husband and I have been married for 46 years. As you might guess we've had our "moments", but we are committed and nothing could keep us apart. He's always been so strong and able to attack any situation head on. But when this got us, I saw him waver just a bit. It was the first time I saw him cry since our child died. He gathered it all up and became my staunchest supporter. I too, had some emotional times and he was always there to hold me and tell me everything was going to be all right. During the night I can feel him just touch me...pat actually...like he was making sure I was still there. I love him so much, it's hard to explain...but I'm sure you know exactly.
I've read that sometimes husbands don't do so well. I've read that sometimes they just walk out...I can't see how they could..but it happens..
I am happy to see you have God in your life. He has been with me through this whole ordeal, even when I wasn't with Him.
Have a wonderful day and if you feel led please comment on the Spiritual Support thread.
Love and Prayers,
Carol
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St 2 Gr 3, A/C/T, DD
Radiation x35 Rec chest wall 07/09 Radiation x28 NED 10/24/11 NED 10/5/12 NED 03/15/13 |
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WarriorChick
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Joined: Dec 11 2009 Location: Arkansas Status: Offline Points: 81 |
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Posted: Dec 20 2009 at 10:33am |
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Carol thank you
I can't wait to celebrate 46yrs with my hubby!! You are an inspiration to us that true love is there...and we're just not the lucky ones! HA! This whole journey, as I have chosen to call it, has brought us even closer than we were....and we thought we were pretty dang closeI look at Scott and my heart just swells with emotions because he is so wonderful and I love him so very much. How blessed are we to have such strong, loving husbands at our side thru this. God is GOOD!! I've seen my hubby cry very, very few times as well...on our wedding day and when we got the call about my cancer are the ones that stick out....and seeing that side of him makes me love him even moreI too love that pat at night, just knowing he is there...hearing him breath~better yet snore ha....it is so comforting to me. I've said it from the start of this that I can not imagine going thru this with anyone else at my side, he is my soulmate and I love him with all my heart. As my kids and I tell each other...."love you to the moon and back"!! He is my Always & Forever!!!
So good to know that there are other cheesy, in love couples out thereThank you for all your kind words and God Bless you sweet friend!
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arleneb
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TNBC Foundation Administrator Joined: Nov 03 2009 Status: Offline Points: 394 |
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Posted: Dec 30 2009 at 11:43am |
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Here is another woman who is currently pregnant and battling TNBC
http://www.sarahjanesarmy.org/home/sarah-s-story |
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Scott wrote:
HA! Had to go back to the oncologist office yesterday to get a shot to help boost my white blood cell count....just LOVED it when the nurse said,"If you feel like your having a heart attack or your chest hurts really bad..it's just a side effect. Take some Tylenol and it should help." WOW! Thank goodness she told us cuz if I had had that happen to me I woulda been in chemo panic mode! HA! No chest pains, but dang did that WASP sting of a shot hurt like the dickens
Hubby was there holding my hand of course so it eased the pain! I've had a headache this time around too, is that normal I guess? Good grief I feel like a complainer! BUT I still have had no real nausea and I still have some hair
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