TEAM SUZIE |
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LRM216 
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Joined: Mar 18 2009 Location: Marietta, GA Status: Offline Points: 1196 |
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 Posted: Jan 04 2011 at 8:33pm |
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Suzie and Carol
Many gentle hugs to both of you.
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Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
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TNBC_in_NS
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Joined: Jul 26 2009 Location: NS Canada Status: Offline Points: 2028 |
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Posted: Jan 04 2011 at 8:53pm |
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Suzie:
Sending Hugs to you and hope you are managing ok...
Wondering how you are making out...
Hugs, Helen in NS
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Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear
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Carol (Tenn)
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Joined: Aug 06 2009 Location: Paris,Tennessee Status: Offline Points: 2707 |
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Posted: Jan 04 2011 at 10:19pm |
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I don't get around to all the boards the way I should.
Helen, Now I understand your question about xrays....that was back in the middle of Dec. Everything is fine. Onc going to look at the ribs again by CT in March. But he is almost certain it's due to the fall.
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St 2 Gr 3, A/C/T, DD
Radiation x35 Rec chest wall 07/09 Radiation x28 NED 10/24/11 NED 10/5/12 NED 03/15/13 |
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NINASUZIE
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Joined: Mar 01 2009 Location: United States Status: Offline Points: 323 |
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Posted: Jan 05 2011 at 9:50pm |
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Pam,
I am so sorry that I have missed these wonderful postings you poured yourself into team suzie and they are wonderful and thank you so very very much to you and everyone for the imput...we can do so much together....bless you all
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SagePatientAdvocates
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Joined: Apr 15 2009 Status: Offline Points: 4748 |
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Posted: Jan 05 2011 at 10:27pm |
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Dear Suzie,
I had the pleasure of meeting Pam about 18 months ago about an hour outside of Dallas. Had dinner with her, her daughter and DH. I can tell you that she is truly a marvelous women...In spite of several difficult medical issues she gives her heart and soul to this site and has helped so many, many of us with her diligent research on our behalf and with her insightful posts. She is very smart, caring and funny...Not a bad combo, huh? I would say her only failing is that she likes to sit under palm trees on the beach with their fronds gently blowing in the breeze...not an easy task in January in Oklahoma...  She is a lovely woman..I can see her now..shaking her head and saying “why is he saying so much?” well the answer, dear Pam, as Suzie and all of us have recognized you are just so very, very special and I want to acknowledge that. I hope 2011 is kind to you, health-wise.. with my love, Steve
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I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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outnumbered
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Joined: Feb 02 2009 Location: New Jersey Status: Offline Points: 525 |
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Posted: Jan 06 2011 at 12:25pm |
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Steve... I second that!
Suzie, How are you making out these days? Just thinking of you...
XO
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~Sara
DX @ age 40 6/24/08 Stage 1 Grade 3 BRCA1+ 187delAG BMX (nipple-areola-sparing) 8/5/08 Redo BMX (remove nipple and areola) w/ Lat Flap 7/6/09 BSO 9/3/09 NED since 08/05/2008 |
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NINASUZIE
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Joined: Mar 01 2009 Location: United States Status: Offline Points: 323 |
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Posted: Jan 06 2011 at 1:37pm |
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Ditto, Steve for every Pam, outnumbered, Zoomommy2, Lee in Denver, 123 Donna and oh just go ahead and add the whole memberlist, including the precious, loving friends of Nancy Zenna-Block who payed her legacy forward...and every precious spouse, friend, family member, advocate, caregiver, medical angel, doctor who cares....hugs from cyberspace...
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Suzie
************** Dx: 1/09 Metaplastic TN IDC/3.5CM/DCIS/1.0;4/09 L mastectomy;6-11/09 Cytoxan/Taxotere X6;BRACA-; Recurrance 11/10 bone mets broke arm;Lung mets;rads X15; chemo/parp tbd 1/11 |
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dmwolf
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Joined: Jan 22 2009 Location: Berkeley, CA Status: Offline Points: 3619 |
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Posted: Jan 06 2011 at 1:47pm |
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Suzie, how is your arm? I've been thinking of you.
love, d |
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DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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NINASUZIE
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Joined: Mar 01 2009 Location: United States Status: Offline Points: 323 |
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Posted: Jan 06 2011 at 2:03pm |
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Beth and D...
My arm is responding to rads...just finished tx. Some pain and swelling, but I think the broken arm rads helped and doing another scan in 4 wks is the plan to see the healing. Still in sling, elevated, very carefully not moved. The OTHER arm is now daily acting the same
 ...call into onc while nurse cares for the pain...I am now the queen of pillows...lol, piled left and right! Rad Onc has passed the baton to Medical BC Onc now...since we have to watch for more bone mets/sites and want to discuss the zometa alternative as part of tx, and the lung mets, seeing the Onc makes sense...now systemic tx/chemo...whole other question/getting second opinion on case/tx with the help of my dear friends here.....I thank you everyday....how are both of you?????? |
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Suzie
************** Dx: 1/09 Metaplastic TN IDC/3.5CM/DCIS/1.0;4/09 L mastectomy;6-11/09 Cytoxan/Taxotere X6;BRACA-; Recurrance 11/10 bone mets broke arm;Lung mets;rads X15; chemo/parp tbd 1/11 |
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Carol (Tenn)
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Joined: Aug 06 2009 Location: Paris,Tennessee Status: Offline Points: 2707 |
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Posted: Jan 06 2011 at 2:42pm |
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Suzie,
I don't post here often but when I read your posts I can almost feel your wonderful attitude in spite of all you're going through. Keep the faith, Suzie, you are inspiring to all.
Carol
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St 2 Gr 3, A/C/T, DD
Radiation x35 Rec chest wall 07/09 Radiation x28 NED 10/24/11 NED 10/5/12 NED 03/15/13 |
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Carol (Tenn)
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Joined: Aug 06 2009 Location: Paris,Tennessee Status: Offline Points: 2707 |
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Posted: Jan 06 2011 at 2:43pm |
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Hey Denise,
I haven't talked to you in ages....how are you doing????
I stay pretty busy on the Spiritual Support end of the site and don't get around much anymore....gee...that last phrase sounds like it might make a good song title....(dating myself)
anyway..love you sister...
Carol
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St 2 Gr 3, A/C/T, DD
Radiation x35 Rec chest wall 07/09 Radiation x28 NED 10/24/11 NED 10/5/12 NED 03/15/13 |
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dmwolf
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Joined: Jan 22 2009 Location: Berkeley, CA Status: Offline Points: 3619 |
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Posted: Jan 06 2011 at 3:31pm |
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Suzie, I'm glad the radiation seems to be helping, and hope the healing has already started. Sorry about the other arm, though. Hopefully it's just strained from using it to compensate for your 'queenly' lady of leisure arm.
I'm doing pretty well, other than walking around with a cold that turned into a sinus infection and now back into a cold/flu since antibiotics. I'm slurping soup at my desk at this very moment. We had a nice holiday break, going to LA for a week and leaving the kids with the grandparents for a while when we returned. Lots of books, movies, hanging with friends, running, and yoga, the latter two of which have been nixed since the cold-monster came to visit. My marriage seems to have taken a turn for the better, amazingly enough. Our 15 year wedding anniversary is tomorrow, and we are both feeling pretty optimistic. My chest is still less than lovely with my pretty botched reconstruction, but I don't want to revisit this quite yet. Maybe in a couple of months. Thanks for asking. love, d |
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DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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Carol (Tenn)
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Joined: Aug 06 2009 Location: Paris,Tennessee Status: Offline Points: 2707 |
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Posted: Jan 06 2011 at 3:47pm |
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Man, I have a terrible memory but I remember someone on the spiritual support mentioning a botched reconstruction, but I don't know who....of course my problem is chemobrain, I would never admit to being old...lol...
Happy to hear there are positive signs at your house...I will pray that all is well and soon.
Love,
Carol
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St 2 Gr 3, A/C/T, DD
Radiation x35 Rec chest wall 07/09 Radiation x28 NED 10/24/11 NED 10/5/12 NED 03/15/13 |
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zoomommy2
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Joined: Sep 26 2009 Location: Denver, CO Status: Offline Points: 1356 |
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Posted: Jan 06 2011 at 3:52pm |
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Denise,
Hope that cold finally goes away. Mine is hanging on way too long. It's nice to hear about your trip to LA without kids. Hoping that things continue to look up in the marriage area! Congratulations a day early on your 15 yr anniversary.
Lee in Denver
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dx6/09,stageII,gr3,(L)mastectomy 7/09,ACx4,Taxolx7,Avastin study,gall bladder surgery 1/10,4/11 Stage 4, mets to lung, 4/11 Started Taxotere and Xeloda, 5/11 Taxotere stopped, off Xeloda
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NINASUZIE
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Joined: Mar 01 2009 Location: United States Status: Offline Points: 323 |
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Posted: Jan 06 2011 at 5:07pm |
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Beth,
Thinking of you, too....see the posting below here....can I ask how you are as well? And can I say that I DO love your "tat"! I was just talking with my daughters about my always wanting a small tattoo and one we can all have...might be a heart with strings....for a poem I wrote them called "Heartstrings" that I learned to grow as they have become the amazing adult women at 25/32 (this sunday) that they are! Thank you sooo much for your love and support over the miles hugs
hey, we do xo too....so xoxoxoxoxoxo! |
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Suzie
************** Dx: 1/09 Metaplastic TN IDC/3.5CM/DCIS/1.0;4/09 L mastectomy;6-11/09 Cytoxan/Taxotere X6;BRACA-; Recurrance 11/10 bone mets broke arm;Lung mets;rads X15; chemo/parp tbd 1/11 |
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NINASUZIE
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Joined: Mar 01 2009 Location: United States Status: Offline Points: 323 |
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Posted: Jan 06 2011 at 5:17pm |
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Yuck on that cold turned sinus to cold...altitudes must be tough at times like this on sinuses! Whoa, LA...that's amazing!!!! Yeah, you really are working on being you on many fronts....including the beautiful breasts you WILL have, girlfriend!!!!! Marriages take a hit, we are not 80 and shuffling around reminding to use a cane, right? HE is ONE LUCKY GUY!!!!!! We took a big hit, too. Here for ya....hugs
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Suzie
************** Dx: 1/09 Metaplastic TN IDC/3.5CM/DCIS/1.0;4/09 L mastectomy;6-11/09 Cytoxan/Taxotere X6;BRACA-; Recurrance 11/10 bone mets broke arm;Lung mets;rads X15; chemo/parp tbd 1/11 |
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NINASUZIE
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Joined: Mar 01 2009 Location: United States Status: Offline Points: 323 |
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Posted: Jan 06 2011 at 5:20pm |
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Is your username zoom/mommy2 sounding or zoo mommy2 sounding? Love it both ways!
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Suzie
************** Dx: 1/09 Metaplastic TN IDC/3.5CM/DCIS/1.0;4/09 L mastectomy;6-11/09 Cytoxan/Taxotere X6;BRACA-; Recurrance 11/10 bone mets broke arm;Lung mets;rads X15; chemo/parp tbd 1/11 |
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NINASUZIE
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Joined: Mar 01 2009 Location: United States Status: Offline Points: 323 |
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Posted: Jan 06 2011 at 5:24pm |
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Yes, that chemobrain is all too real. And as my family/friends (here as well) say, meds in the mix are just "SO" much fun...not! Tennessee is so beautiful, springs are lovely there, having lived in SW Ohio years back. Stick w/us and we WILL always remember what is worth saving and with a breath of kindness, blow the rest away hugs
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Suzie
************** Dx: 1/09 Metaplastic TN IDC/3.5CM/DCIS/1.0;4/09 L mastectomy;6-11/09 Cytoxan/Taxotere X6;BRACA-; Recurrance 11/10 bone mets broke arm;Lung mets;rads X15; chemo/parp tbd 1/11 |
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zoomommy2
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Joined: Sep 26 2009 Location: Denver, CO Status: Offline Points: 1356 |
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Posted: Jan 06 2011 at 8:25pm |
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My user name I picked when I was doing foster care. It was a zoo around here and I'm a mommy, so I became zoomommy2 because somebody else already had plain zoomommy. I do foster care/rescue for dogs now, so the zoo continues!
Lee in Denver
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dx6/09,stageII,gr3,(L)mastectomy 7/09,ACx4,Taxolx7,Avastin study,gall bladder surgery 1/10,4/11 Stage 4, mets to lung, 4/11 Started Taxotere and Xeloda, 5/11 Taxotere stopped, off Xeloda
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NINASUZIE
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Joined: Mar 01 2009 Location: United States Status: Offline Points: 323 |
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Posted: Jan 06 2011 at 10:11pm |
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And you have nothing else going on in your life....hmmmm, with your abilities...I'd say I would definitely want you in charge...zoomommy2(all/many/us)...here's to the zoo in our lives!!!! hugs
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Suzie
************** Dx: 1/09 Metaplastic TN IDC/3.5CM/DCIS/1.0;4/09 L mastectomy;6-11/09 Cytoxan/Taxotere X6;BRACA-; Recurrance 11/10 bone mets broke arm;Lung mets;rads X15; chemo/parp tbd 1/11 |
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