TEAM SUZIE
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Topic: TEAM SUZIE
Posted By: NINASUZIE
Subject: TEAM SUZIE
Date Posted: Nov 26 2010 at 10:36pm
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TEAM SUZIE- tpic name change to keep track and help together easier Today 11/25/10,my forearm was killing me and ended up at the ER after CT scan..radius broke! the ER doc found a tumor on the bone scan that had not been shared w/me. I am heartbroken and called for my daughters to just be together this weekend. I thank all of you, knowing that you know all that I feel right now.....one year since finishing tx and did all that was recommended....I am sooooo sad and heartbroken for my girls 25/32, single, but fiances....I am at peace for all I did and will do that is MY decision...so much to learn....so ready to be the Warrior cancer has taught me to be. I do have metaplastic and do not wish to scare any with the same, nor any of us...group,tight hug ------------- Suzie ************** Dx: 1/09 Metaplastic TN IDC/3.5CM/DCIS/1.0;4/09 L mastectomy;6-11/09 Cytoxan/Taxotere X6;BRACA-; Recurrance 11/10 bone mets broke arm;Lung mets;rads X15; chemo/parp tbd 1/11 |
Replies:
Posted By: krisa
Date Posted: Nov 26 2010 at 10:45pm
I have you in my prayers and your family too.
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Posted By: SagePatientAdvocates
Date Posted: Nov 26 2010 at 11:02pm
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I am stunned by your news, Suzie... I am so very, very sorry... Please know that we are here for you..and always shall be.. I am sending you my contact info just in case... my heart is with you, Steve ------------- I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates |
Posted By: SagePatientAdvocates
Date Posted: Nov 26 2010 at 11:14pm
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Dear Suzie, sent you a PM but your box is full... in your corner, Steve ------------- I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates |
Posted By: cg---
Date Posted: Nov 26 2010 at 11:26pm
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Dear Suzie, As a woman with widespread metastases, lung, lymph nodes, pelvic, etc., since March of this year, I know the feeling of having your heart in your throat and your stomach in your toes. One thing I have learned from my quick study of metastases is that it is better to be in the bones than organs (not easy to appreciate when you do not want any of it anywhere - but that is what we are told). The first thing you have to do is to get control of your pain. You lose your clear-headed focus to get your treatment plan in order if you are in pain. My kind and compassionate oncologist taught me this valuable lesson and she was absolutely correct. You will be pleased to find that the bisphosphonates have a remarkable effect on the bone pain. I am currently on clodronate (Clasteon) it is an oral bisphosphonate. They have injectables also that you may have. The bisphosphonate circles the 'break' and strengthens the bone so it does not fracture again. The bisphosphonate is also thought to have anti-tumor properties also. The bisphosphonate is also a great pain reliever, along with an anti-inflammatory you should be hopefully be comfortable. Please ensure that your oncologist finds you an orthopedic surgeon that deals with pathological fractures (those caused by tumors) to have the past healing outcomes and alignment of your bones. There are new treatment options in the field of radiology to deal with bone metastases and hopefully your radiation oncologist is aware of these. If not, we will provide you what you need to share with your treating physicians.
It is a great shock I know, but we will help you through this next hurdle.
Love,
Connie
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Posted By: SagePatientAdvocates
Date Posted: Nov 26 2010 at 11:28pm
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so wonderful to have you back, Connie.. all the best, Steve ------------- I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates |
Posted By: cg---
Date Posted: Nov 26 2010 at 11:36pm
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Thank you Steve,
No one knows better than I the therapeutic healing effect that comes from the loving, caring people of this forum with all the support they give in every form imaginable. I believe I have seen a few yamulkas perched on the heads of the saints on the holy cards!
Love,
Connie
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Posted By: TracyAMac
Date Posted: Nov 26 2010 at 11:46pm
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Hi Suzie I am sorry to hear about this news but glad you could share it with everyone on this site - we are here for you! I am so inspired by the support of Connie and others Sending you healing thoughts Tracy in Toronto ------------- TN&non-TN tumors April/10 Gr3&2;1 metaplastic Rmast.1/9 nodes w/isolated t.cells Taxotere&Cytoxan x6 Bone cancer 1980 age17;surgery&chemo AC+Methotrexate BRCA-ve On hormone therapy & Metformin Trial |
Posted By: Pink Warrior
Date Posted: Nov 26 2010 at 11:55pm
I'm sorry, Suzie. You will be in my thoughts and prayers. Sending hugs.------------- Dx:10/09,IDC Stg 2,Gr 3,TN BRCA 1&2 - Partial DD EC/AC Local recur 11/10 BMX 12/10 Right proph TC x 4 Rads x 33 9/11 Skin mets, mediastinal & hilar nodes Abraxane/Avastin |
Posted By: NINASUZIE
Date Posted: Nov 27 2010 at 7:54am
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crying/angry docs did no tests after tx for 1yr/shower lol/metaplastic???/is this stage IV criteria?/info good/pm box ready/should post on met forum....cookie baking, tree trimming/hugs today....so grateful for all of you....praying for you oh yeah ------------- Suzie ************** Dx: 1/09 Metaplastic TN IDC/3.5CM/DCIS/1.0;4/09 L mastectomy;6-11/09 Cytoxan/Taxotere X6;BRACA-; Recurrance 11/10 bone mets broke arm;Lung mets;rads X15; chemo/parp tbd 1/11 |
Posted By: outnumbered
Date Posted: Nov 27 2010 at 9:51am
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Suzie,
Hugs and prayers coming your way from NJ!!!!
XOXO ------------- ~Sara DX @ age 40 6/24/08 Stage 1 Grade 3 BRCA1+ 187delAG BMX (nipple-areola-sparing) 8/5/08 Redo BMX (remove nipple and areola) w/ Lat Flap 7/6/09 BSO 9/3/09 NED since 08/05/2008 |
Posted By: LRM216
Date Posted: Nov 27 2010 at 10:55am
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Suzie,
I am so very, very sorry to hear about your arm and am totally shocked by your post. I thank God that Connie is back with us and has been able to give you the wonderful advice she posted above. I feel as though we are all suddenly being blind-sided by this freaking disease - I just want to scream "What the HEll is going on here"???? When one of us gets news we weren't expecting or ever hoping to hear again, it effects each and every one of us on this board - to the core - as no one on the face of this earth, no matter how much we love them or they love us, can feel or better understand the fear, depression and sadness that comes along with this news, than another that is walking on the same path, sharing the same hope that maybe this has been beaten down forever, and then to find it's reared its ugly head again.
Please know that you are in my thoughts and in my heart. I wish for you all the best and that a treatment plan is started as soon as possible.
Linda ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: 123Donna
Date Posted: Nov 27 2010 at 11:53am
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Suzie, I am shocked and saddened to hear your news. I know you've been in pain for some time and was hoping it was not what you feared. We are here for you and will help you out in anyway we can. I've said this before, but I don't know what I would have done without my friends on this forum to help and hold me up every step of the way in fighting this horrible disease. Sending you a great big hug, Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: NINASUZIE
Date Posted: Nov 27 2010 at 1:23pm
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OMG.....it is more!!!! Apparently my CT scan showed lung mets!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! ------------- Suzie ************** Dx: 1/09 Metaplastic TN IDC/3.5CM/DCIS/1.0;4/09 L mastectomy;6-11/09 Cytoxan/Taxotere X6;BRACA-; Recurrance 11/10 bone mets broke arm;Lung mets;rads X15; chemo/parp tbd 1/11 |
Posted By: dmwolf
Date Posted: Nov 27 2010 at 1:26pm
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Suzie, I'm so sorry to hear about your arm. sh*t, double sh*t, triple sh*t. I hate cancer. It is NOT supposed to start in a far extremity like a radius. Well, Connie's advice is excellent. If you have to have a met, bone is the place for it to be. If you go to the website online community Inspire For Advanced Breast Cancer (google it), you will find that there are many many women who've been living with bone mets for years, and I mean LOTS of years. 15, 20, and so on. So don't count yourself out yet. This may well be a chronic condition to be dealt with (true with visceral mets too but even more so with bone mets) As Connie says, the first thing they are likely to do is put you on a bisphosophate. Zometa is the drug of choice for this in the US. Beyond that, you'll have to see what the recommendation is. And as Connie says don't be shy about treating your pain. We're here for you, as Donna says every step of the way. Much love, Denise ------------- DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10. |
Posted By: dmwolf
Date Posted: Nov 27 2010 at 1:29pm
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Suzie, I just saw your last post after I posted. Sweetie, I'm so sorry. Lung & bone. Shocking. Well, here we have lots of sisters traveling the same road with insight and courage. We will help carry you through. love you, d ------------- DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10. |
Posted By: NINASUZIE
Date Posted: Nov 27 2010 at 1:30pm
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did you read that they did find lung mets......it's official that I have lost my mind!!!!!!!!!!!!!!!!! ------------- Suzie ************** Dx: 1/09 Metaplastic TN IDC/3.5CM/DCIS/1.0;4/09 L mastectomy;6-11/09 Cytoxan/Taxotere X6;BRACA-; Recurrance 11/10 bone mets broke arm;Lung mets;rads X15; chemo/parp tbd 1/11 |
Posted By: LRM216
Date Posted: Nov 27 2010 at 1:34pm
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Suzie:
OMG - This is so hard to fathom - when did you find this out about lung mets? I am whirling, I can only imagine what you are feeling. Is this all from your er visit? ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: 123Donna
Date Posted: Nov 27 2010 at 2:24pm
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Suzie, I'm at a loss for words. You are definitely shocked and overwhelmed right now. Are you taking anything to help with the anxiety? Do you have Ativan? Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: Pink Warrior
Date Posted: Nov 27 2010 at 2:36pm
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Unbelievable. I can't express how sorry I am to hear this. Like Donna, I too am at a loss for words. Praying so hard for you, sweetie. Kim ------------- Dx:10/09,IDC Stg 2,Gr 3,TN BRCA 1&2 - Partial DD EC/AC Local recur 11/10 BMX 12/10 Right proph TC x 4 Rads x 33 9/11 Skin mets, mediastinal & hilar nodes Abraxane/Avastin |
Posted By: LRM216
Date Posted: Nov 27 2010 at 2:41pm
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Dear God, Donna, I think all of us sitting at our computers right now need to partake in an ativan - communal style. I going for one of my own right now - haven't taken one in months - but I'm needing it right now too. I feel as though we are all caught up in an avalanche. I want so much to reach out and protect you, Suzie, Pink Warrior, Diane, Pam, Connie and all the others on our board having to go through all this new trauma - and yet I can't do a damn thing other than type sentences on a computer screen. ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: NINASUZIE
Date Posted: Nov 27 2010 at 2:57pm
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It was yesterday before the ER for a scheduled CT of chest, abdomen and pelvis. NO ONE told us the outcome......I was just reviewing the discharge paperwork as my family was to arrive....it said addn'l dx:metasticized bc to lung!!!!!!!!!!!!!!! I called my primary doc who gave some details that there were nodules/lesions seen in both lungs....now I have faith, but if it weren't for my family being around me.....I would collapse....thank you to all of YOU as well...going to rest while they food shop....hugs ------------- Suzie ************** Dx: 1/09 Metaplastic TN IDC/3.5CM/DCIS/1.0;4/09 L mastectomy;6-11/09 Cytoxan/Taxotere X6;BRACA-; Recurrance 11/10 bone mets broke arm;Lung mets;rads X15; chemo/parp tbd 1/11 |
Posted By: trip2
Date Posted: Nov 27 2010 at 3:06pm
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Suzie joining in on your group hug, we are all here for you..
Linda you write so much of what I am thinking but can't put into words as you do. It does make one feel helpless when we continue to read of others, our friends and sisters in this forum who keep learning of their cancer coming back. Typing something to show our support makes me feel so lame sometimes, I wish I could do so much more to show how much I care, to make things better, help our sisters to feel better..it is important to remember we have many women in this forum who have had their disease progress that are doing very well and living many years. ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: LRM216
Date Posted: Nov 27 2010 at 3:28pm
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We are all in this together - and that has to be a plus, right? Thank God, for this forum. There is always strength in numbers. ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: sue
Date Posted: Nov 27 2010 at 3:42pm
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Ninasuzie, So sorry for you about this news, but know I am here for you throughout. Prayers for you and your family. ------------- Dx 7/10, age 53. TNBC left breast, stage I, grade 3, IDC 0.5 cm, DCI 2.5 cm, 0/8 lymph nodes neg. BRCA-. T/C x4 finished 2/09/11, rads x34 finished 4/21/11. |
Posted By: NINASUZIE
Date Posted: Nov 27 2010 at 7:38pm
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I know we have our own journey with TN....I honor each one's on our site....and Pam, that is what the hope comes from...we gtve each other the love, knowledge and strength we need to go through our own journey...you give me courage to face this battle as a warrior, knowing it's gonna be all right...my anxiety is quelled by love and taking care of myself and ask for help from those who are truly supportive....Team Suzie...you are precious and I am so grateful! huggggg, ------------- Suzie ************** Dx: 1/09 Metaplastic TN IDC/3.5CM/DCIS/1.0;4/09 L mastectomy;6-11/09 Cytoxan/Taxotere X6;BRACA-; Recurrance 11/10 bone mets broke arm;Lung mets;rads X15; chemo/parp tbd 1/11 |
Posted By: SagePatientAdvocates
Date Posted: Nov 27 2010 at 8:04pm
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Dear Suzie, I am stunned....truly stunned...I am so sorry that you received such awful news. words fail me except to say that we are with you and will support you anyway we can.. please don't hesitate to call me if you wish...I sent you my contact info... in your corner, always, Steve ------------- I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates |
Posted By: zoomommy2
Date Posted: Nov 27 2010 at 10:00pm
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Suzie,
I'm just reading all this lousy news! Group hug first! Boy, do I hate this cancer!!!!!!!!! For you and for all of us!!!!!!!! And not to be told anything is the ultimate insult! I am so sorry, but that won't help you any right now. I am praying for this all to be manageable, mentally and physically. Rant all you want. Nobody has more right than you do!
Lee in Denver ------------- dx6/09,stageII,gr3,(L)mastectomy 7/09,ACx4,Taxolx7,Avastin study,gall bladder surgery 1/10,4/11 Stage 4, mets to lung, 4/11 Started Taxotere and Xeloda, 5/11 Taxotere stopped, off Xeloda |
Posted By: 123Donna
Date Posted: Nov 28 2010 at 2:13am
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Suzie, Please talk to your onc about bisphophonates to help with the bone pain. I found this research article on Denosumab (Prolia). I'd also ask your onc about Denosumab. Denosumab Delays Bone Complications in Women with Metastatic Breast Cancer Among women with bone metastases from breast cancer, denosumab may be more effective than Zometa® (zoledronic acid) at delaying or preventing bone complications such as fracture. The results of this Phase III clinical trial were published in the Journal of Clinical Oncology. Metastatic cancer refers to cancer that has spread to distant sites in the body. Several types of cancer—including breast cancer—have a tendency to spread to the bone. Bone metastases can lead to serious problems such as fracture and spinal cord compression and may require treatment with surgery or radiation therapy. Bisphosphonate drugs such as Zometa are commonly used to reduce the risk of complications from bone metastases. Researchers continue, however, to explore new approaches to treatment. Denosumab is a drug that targets a protein known as the RANK ligand. This protein regulates the activity of osteoclasts (cells that break down bone). Denosumab has been approved for the treatment of postmenopausal osteoporosis and has also shown promising results in the management of bone metastases and treatment-related bone loss. To directly compare denosumab to Zometa among breast cancer patients with bone metastases, researchers conducted a Phase III clinical trial among more than 2,000 patients. Study participants were assigned to receive either denosumab or Zometa. The objective of the study was to determine whether the occurrence of bone complications (“skeletal related events”) differed between the two study groups. The bone complications that were evaluated were fracture, radiation to the bone, surgery to the bone, and spinal cord compression.
The results of this study suggest that denosumab may be more effective than Zometa at delaying or preventing skeletal complications in breast cancer patients with bone metastases. Reference: Stopeck AT, Lipton A, Body J-J et al. Denosumab compared with zoledronic acid for the treatment of bone metastases in patients with advanced breast cancer: a randomized, double-blind study. Journal of Clinical Oncology [early online publication]. November 8, 2010 ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: TysMom
Date Posted: Nov 28 2010 at 10:49am
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I want so badly to say something profound, but all I can come up with is cancer sucks. We are all here for you. I am so sorry that this is happening to you. Saying lots of prayers and sending good thoughts your way. ------------- 44 at dx TN IDC Gr3/St 3 1/17 nodes+ 5cm tumor removed 3/12/10 Taxol weekly for 12 weeks FINISHED 7/21/10 9 Avastin FINISHED 9/1/10 DD A/C 4 tx-FINISHED 9/15/10 BI-MX 10/6/10 BRCA 1/2 neg |
Posted By: trip2
Date Posted: Nov 28 2010 at 1:21pm
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Team Suzie, I like that!
I have been thinking about you, this may be off the wall as I am not a white coat but could there be a possibility the bone cancer could be a new cancer as opposed to bc spreading there? I know you will learn everything soon thank heavens, so glad you don't have a long wait, the week-end is bad enough.
Sending warm hug Suzie
Here are a list of some trials, maybe you could get into if interested?
http://www.clinicaltrials.gov/ct2/results?term=metastatic+triple+negative+breast+cancer - http://www.clinicaltrials.gov/ct2/results?term=metastatic+triple+negative+breast+cancer
http://www.clinicaltrials.gov/ct2/results?term=triple+negative+breast+cancer+AND+bone - http://www.clinicaltrials.gov/ct2/results?term=triple+negative+breast+cancer+AND+bone
http://www.clinicaltrials.gov/ct2/results?term=triple+negative+breast+cancer+lung - http://www.clinicaltrials.gov/ct2/results?term=triple+negative+breast+cancer+lung ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: TracyAMac
Date Posted: Nov 28 2010 at 1:36pm
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Suzie, Pam brings about a good point to ask if this could be a new cancer in the bone. You could also inquire if you should have a p53 gene mutation test - a positive mutation is often but not always associated with Li Fraumeni Syndrome - a disorder that greatly increases risk of developing several different cancers in one's life time - people who have the p53 mutation are discouraged for having raditation if at all possible as it can create very unstable cell states and could trigger new cancers. The test is usually given if you and/or several family members developed certain cancers at a fairly young age. Sorry you have so much to deal with. One of my BC tumours was also metaplastic and TN - I wish there was more they could give us for this in terms of screening and treatment. Tracy in Toronto ------------- TN&non-TN tumors April/10 Gr3&2;1 metaplastic Rmast.1/9 nodes w/isolated t.cells Taxotere&Cytoxan x6 Bone cancer 1980 age17;surgery&chemo AC+Methotrexate BRCA-ve On hormone therapy & Metformin Trial |
Posted By: trip2
Date Posted: Nov 28 2010 at 1:48pm
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Tracy has a good point. I think we should start a new thread called "Team Suzie", what do ya think?
http://www.cancer.gov/cancertopics/genetics/predictive-testing-p53-mutations - http://www.cancer.gov/cancertopics/genetics/predictive-testing-p53-mutations ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: LRM216
Date Posted: Nov 28 2010 at 4:54pm
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Yes, good idea, this way we can all keep track of how everyone is doing - add specific things we learn that may help them, etc. Every one of our gals experiencing a problem should start their own thread, it would be helpful to all and this way something important for one won't get buried in someone else's thread.
I like your idea, Pam. It makes great sense. ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: 123Donna
Date Posted: Nov 28 2010 at 5:01pm
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Suzie, I like Pam and Linda's suggestion. Suzie - you can edit and change your Thread Topic to "Team Suzie". This will keep the thread about your situation and you can keep posting letting us know what you find out. ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: NINASUZIE
Date Posted: Nov 28 2010 at 5:45pm
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ok.... "team Suzie"as a new topic? also understand I have bone/lung mets....same/different....we shall see. I do have metaplastic TN as it is...tomorrow it begins, to unravel not just for me, but for all of us. hugs ------------- Suzie ************** Dx: 1/09 Metaplastic TN IDC/3.5CM/DCIS/1.0;4/09 L mastectomy;6-11/09 Cytoxan/Taxotere X6;BRACA-; Recurrance 11/10 bone mets broke arm;Lung mets;rads X15; chemo/parp tbd 1/11 |
Posted By: NINASUZIE
Date Posted: Nov 28 2010 at 5:52pm
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don't know how tech wise to do this idea, Donna...you? Maybe just my name like others having changes/events. my CT scan dx read breast cancer matastis to lung. ------------- Suzie ************** Dx: 1/09 Metaplastic TN IDC/3.5CM/DCIS/1.0;4/09 L mastectomy;6-11/09 Cytoxan/Taxotere X6;BRACA-; Recurrance 11/10 bone mets broke arm;Lung mets;rads X15; chemo/parp tbd 1/11 |
Posted By: 123Donna
Date Posted: Nov 28 2010 at 5:56pm
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Suzie, I changed the topic name of one I created before. OK, I posted something and then tried it out and it didn't work. You will need to go to the very first post on this thread you created. Then click on Post Options, then Edit Post. It should bring up your original post where you typed the subject heading. Just change it to your new thread heading. I hope this works, let me know if it doesn't. Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: Carol (Tenn)
Date Posted: Nov 28 2010 at 6:48pm
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Dear Suzie, I am stunned as well. You are so in my prayers. I hope you can get this all worked out tomorrow and I pray for a good nights sleep tonight.
Love and Prayers,
Carol ------------- St 2 Gr 3, A/C/T, DD Radiation x35 Rec chest wall 07/09 Radiation x28 NED 10/24/11 NED 10/5/12 NED 03/15/13 |
Posted By: Susie
Date Posted: Nov 29 2010 at 8:39am
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From one Susie to another Suzie,
I am SOOOOO sorry!! I am sending you big hugs and lots of prayers!!
I HATE CANCER!!!!
------------- dx 10/08,age 56,.75 cm. Stage1 Grade3,lumpectomy,SN neg..,AC 12/08-02/09,35rads,03/09-05/09,BRCA2+(E1415X),06/09,oophorectomy 10/09, Zometa - IV/mo.,07/09-08/10, lumpectomy #2 10/20/10 NED |
Posted By: trip2
Date Posted: Nov 30 2010 at 7:47pm
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Yes Suzie let us know if you have problems changing your topic, it should work doing exactly what Donna said. I agree with Linda this would really help us zero in and keep track. ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: NINASUZIE
Date Posted: Dec 01 2010 at 9:42pm
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pam, just did...is thid enough? I see TEAM DONNA under met/reoc forum...should I post there or is this helpful? hugs to you! ------------- Suzie ************** Dx: 1/09 Metaplastic TN IDC/3.5CM/DCIS/1.0;4/09 L mastectomy;6-11/09 Cytoxan/Taxotere X6;BRACA-; Recurrance 11/10 bone mets broke arm;Lung mets;rads X15; chemo/parp tbd 1/11 |
Posted By: 123Donna
Date Posted: Dec 02 2010 at 7:37am
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Suzie, Congrats on getting your thread renamed. I like "Team Suzie"! How are you doing? Have you seen your onc yet? Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: dmwolf
Date Posted: Dec 02 2010 at 11:24am
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Team Suzie - right on!! Sign me up. love you, d ------------- DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10. |
Posted By: trip2
Date Posted: Dec 05 2010 at 1:08pm
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Suzie what is happening with you? Been thinking about you dear... ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: TNBC_in_NS
Date Posted: Dec 05 2010 at 1:46pm
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Dear Susie:
So sorry to hear this news. I have a large post to send you but the system won't let me post. Will send a message.
Hugs, Helen in NS ------------- Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear |
Posted By: NINASUZIE
Date Posted: Dec 06 2010 at 8:33pm
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as i pray for ee, i post an update...i am fighting mets in 2 places...bone w/radiation starting wed...lung met biopsy fri....w/tx plan mtg next week. paliative care team called for pain mgt of arm, help for self care/meals....so i can focus on dr/tx choices. ------------- Suzie ************** Dx: 1/09 Metaplastic TN IDC/3.5CM/DCIS/1.0;4/09 L mastectomy;6-11/09 Cytoxan/Taxotere X6;BRACA-; Recurrance 11/10 bone mets broke arm;Lung mets;rads X15; chemo/parp tbd 1/11 |
Posted By: TracyAMac
Date Posted: Dec 06 2010 at 8:42pm
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Hi Suzie Just want you to know that I am thinking about you. You have so much on your mind and plate. We are hear to listen if you need to chat, vent, ask questions or cry. Your fellow Metaplastic TNBC friend from Toronto  Tracy ------------- TN&non-TN tumors April/10 Gr3&2;1 metaplastic Rmast.1/9 nodes w/isolated t.cells Taxotere&Cytoxan x6 Bone cancer 1980 age17;surgery&chemo AC+Methotrexate BRCA-ve On hormone therapy & Metformin Trial |
Posted By: trip2
Date Posted: Dec 06 2010 at 8:49pm
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Suzie so good to hear from you!
Sounds like the plan is going into action, be sure and let others help, rest and take care. Update us when you can, I can tell you have alot going on but we are here, remember that and thinking of you.. ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: 123Donna
Date Posted: Dec 06 2010 at 9:00pm
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Suzie, So good to hear from you. Please let us know what your treatment plan for the lung mets once you have your meeting. It's good you're getting some help and support. You need to focus on you and your treatment. We are here for you to vent, discuss or just listen. Hugs, Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: outnumbered
Date Posted: Dec 06 2010 at 9:02pm
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[[[HUGS]]] ------------- ~Sara DX @ age 40 6/24/08 Stage 1 Grade 3 BRCA1+ 187delAG BMX (nipple-areola-sparing) 8/5/08 Redo BMX (remove nipple and areola) w/ Lat Flap 7/6/09 BSO 9/3/09 NED since 08/05/2008 |
Posted By: LRM216
Date Posted: Dec 06 2010 at 9:35pm
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Suzie:
Hugs and best wishes - am thinking of you.
Linda ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: zoomommy2
Date Posted: Dec 06 2010 at 10:16pm
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Suzie,
Praying for peace and calm while you decide on treatments. Praying for successful treatment for you.
Lee in Denver ------------- dx6/09,stageII,gr3,(L)mastectomy 7/09,ACx4,Taxolx7,Avastin study,gall bladder surgery 1/10,4/11 Stage 4, mets to lung, 4/11 Started Taxotere and Xeloda, 5/11 Taxotere stopped, off Xeloda |
Posted By: Carol (Tenn)
Date Posted: Dec 07 2010 at 7:33am
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Dear Suzie,
I have caught up with you and I love the "Team" idea. It makes it easy for those of us that can't read all the posts everyday.
I pray for you and all others everyday. I know you keep fighting and win!
Love and Prayers,
Carol ------------- St 2 Gr 3, A/C/T, DD Radiation x35 Rec chest wall 07/09 Radiation x28 NED 10/24/11 NED 10/5/12 NED 03/15/13 |
Posted By: conniec
Date Posted: Dec 07 2010 at 8:08am
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Dear Suzie, Praying for your tx plan to come together. Praying for your pain to be eased and strength renewed. (((hugs))) Connie ------------- Age 40, Felt lump 8/20/10 Lumpectomy 9/7 DX 1.5 tumor stg I 9/13 margin not clear Double MX w/ expanders 10/8 Final tumor size 1.7, 0/3 + nodes AC-T chemo 11/8 - 2/21 TE/implant exchange 3/29 |
Posted By: Debris
Date Posted: Dec 07 2010 at 10:54am
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Suzie,
Praying for successful treatments for you, and the relief from pain.
God Bless. ------------- 4/12 Xeloda/Tykerb 2 Carboplatin 12/11 Dx IA 9 Gemzar/Taxotere Dx IBC:FEC 5 Ixempra/Sprycel 2 25 Rad 10/10 BRCA1-/2suv 9 NED 6 Stg4 Grd3 many nodes no Sx/Rad. Taxol/Avastin 06/08 Dx DCIS 0/SN Rads/AIs |
Posted By: NINASUZIE
Date Posted: Dec 09 2010 at 7:29pm
|
TEAM SUZIE ALSO ON REOC/METS SITE....TOMORROW, 10TH IS LUNG BIOPSY....SCARED...PRAY FOR NO COMPLICATIONS/GOOD THOUGHTS....MY SWEET DAGHTER SAID IT'S JUST SO AGRESSIVE, MOM AND WANTS THE BEST CARE/QUALITY OF LIFE FOR ME....BOTH MY DAUGHTERS WILL BE THERE...ALL OF YOU I TAKE W/ME....I AM SOOOOO GRATEFUL FOR EACH OF YOU...HUGGING YOULOVE U!! ------------- Suzie ************** Dx: 1/09 Metaplastic TN IDC/3.5CM/DCIS/1.0;4/09 L mastectomy;6-11/09 Cytoxan/Taxotere X6;BRACA-; Recurrance 11/10 bone mets broke arm;Lung mets;rads X15; chemo/parp tbd 1/11 |
Posted By: SagePatientAdvocates
Date Posted: Dec 09 2010 at 7:46pm
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"All of you I take with me" and all of us are with you... good luck...sounds so trite...but I know you know what I mean.. prayers continue, dear Suzie, Steve ------------- I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates |
Posted By: zoomommy2
Date Posted: Dec 09 2010 at 7:46pm
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Suzie,
You will do fine with the lung biopsy! Praying that you breeze through it with no complications. You have wonderful daughters, but you know that! Let us know how the biopsy turns out.
Lee in Denver ------------- dx6/09,stageII,gr3,(L)mastectomy 7/09,ACx4,Taxolx7,Avastin study,gall bladder surgery 1/10,4/11 Stage 4, mets to lung, 4/11 Started Taxotere and Xeloda, 5/11 Taxotere stopped, off Xeloda |
Posted By: Carol (Tenn)
Date Posted: Dec 09 2010 at 9:06pm
|
Our prayers are with you Suzie, feel the love!
Carol ------------- St 2 Gr 3, A/C/T, DD Radiation x35 Rec chest wall 07/09 Radiation x28 NED 10/24/11 NED 10/5/12 NED 03/15/13 |
Posted By: mefowler
Date Posted: Dec 10 2010 at 12:17am
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Dear Suzie, I was so sad to read about your recurrence and the horrible way you learned about it. I am thinking of you. My daughter is getting married in Cape Cod next spring, and I would love to get together while I am there. Take care of yourself and let me know if there is anything I can do.Maire ------------- 53 yo, dx'd 11/08 at 51, 2.9 cm IDC, node-neg, neoadj chemotx with Taxotere/carboplatin q3wks x 6, lumpectomy 4/09, path showed pCR, margin reexcision 5/09, rad'n 6-8/09, intermittent Tarceva, dc'd |
Posted By: outnumbered
Date Posted: Dec 10 2010 at 6:56am
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Prayers daily, but especially today...
I hope the biopsy goes smoothly... ------------- ~Sara DX @ age 40 6/24/08 Stage 1 Grade 3 BRCA1+ 187delAG BMX (nipple-areola-sparing) 8/5/08 Redo BMX (remove nipple and areola) w/ Lat Flap 7/6/09 BSO 9/3/09 NED since 08/05/2008 |
Posted By: tninalabama
Date Posted: Dec 11 2010 at 10:29pm
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Suzie,
I hope that you get your answers. This is so frustrating not to get any warning and then find out by accident!?! You are in my prayers.
We all need hugs!!Pam ------------- Dx 11/07,stII bgr3,1/8+, metaplastic, recurrence 11/09, lymph dis 12/13+ 07/10, rad,x28 9/10,02/11 mets BRCA neg 5-FMC since 03/12 PET 04/12,no progression Bone scan clear 06/12 |
Posted By: NINASUZIE
Date Posted: Dec 12 2010 at 2:17pm
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Maire,
I remember meeting here...dr, right, w/cape cod family? How are you doing this year? What tests have they done for monitoring you? Keep in touch and check TEAM SUZIE on both TALK/REOC/METS FORUM
h ------------- Suzie ************** Dx: 1/09 Metaplastic TN IDC/3.5CM/DCIS/1.0;4/09 L mastectomy;6-11/09 Cytoxan/Taxotere X6;BRACA-; Recurrance 11/10 bone mets broke arm;Lung mets;rads X15; chemo/parp tbd 1/11 |
Posted By: NINASUZIE
Date Posted: Dec 16 2010 at 8:09am
|
She could only say it was from the bc, not another cancer. Since this is one of THE centers in the world, I blew up and had a melt down....pulled the team together, asked she send it to another lab for the hopes of at least more specifics to recommend other than Doxil and Cisto/Carboplatin indefinitely....and I already have heart issues and hadn't done Adriamycin. So, I am seeing the cardio onc next week while I go through radiation for my broken arm this/next/next week.
Also starting the Metastatic support group, see the Onc....she looked so defeated and had so little to offer after coming off the conference in TX....now biophosphonates...not very promising either.
What have others done for chemo to do say, by pill to stave off liver involvment and spread when I am the worst side effects person on chemo! I did it on cytoxan/taxotere thinking every horrible side effect was for my greater good....not so.
I asked if scans would have changed this progression....no, still would've progressed to stage iv. I feel pretty good considering the broken forearm on pain meds and surprised to feel so well when the lung path looks pretty awful....
I put here I have pushed for my SSI app to be fast tracked so I can stop worrying about money. I met w/their psychiatrist, gave me another dose of anti anxiety meds/day.
She says average time...2 years....but, I simply state....I have NOW and want to stay feeling as well as possible to be with/do with family/friends whatever the time.
I imply NO pessimissm here for me or you all....but, I hope what I get for Christmas is another Christmas, you know? Picking out new clothes, scarves and a girly spa time for me and my daughters.....my heart is breaking, but I am strong....carry me and I'll carry you...big group hug ------------- Suzie ************** Dx: 1/09 Metaplastic TN IDC/3.5CM/DCIS/1.0;4/09 L mastectomy;6-11/09 Cytoxan/Taxotere X6;BRACA-; Recurrance 11/10 bone mets broke arm;Lung mets;rads X15; chemo/parp tbd 1/11 |
Posted By: 123Donna
Date Posted: Dec 16 2010 at 8:38am
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Suzie, I have no magical words for you, just wanting to wrap my arms around you and give you a big hug. Sending my cyber hug now. Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: outnumbered
Date Posted: Dec 16 2010 at 8:38am
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{{SIGH}}}}
All I can say is keep on keeping on and as you well know, we are all here for you!!!! It sounds to me like you have your head in the game and are doing the next right thing.
Hugs Right back at you!!
XO ------------- ~Sara DX @ age 40 6/24/08 Stage 1 Grade 3 BRCA1+ 187delAG BMX (nipple-areola-sparing) 8/5/08 Redo BMX (remove nipple and areola) w/ Lat Flap 7/6/09 BSO 9/3/09 NED since 08/05/2008 |
Posted By: TracyAMac
Date Posted: Dec 16 2010 at 8:57am
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Suzie, as a fellow Metaplastic TNBC warrior, you are constantly in my thoughts, Please ensure you get some regular sleep - and if you need more meds to help you with this that is ok -your body will thank you. Keep doing what you need to do to feel that you are getting the best support possible . We are here for you Tracy in Toronto ------------- TN&non-TN tumors April/10 Gr3&2;1 metaplastic Rmast.1/9 nodes w/isolated t.cells Taxotere&Cytoxan x6 Bone cancer 1980 age17;surgery&chemo AC+Methotrexate BRCA-ve On hormone therapy & Metformin Trial |
Posted By: dmwolf
Date Posted: Dec 16 2010 at 3:20pm
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Suzie, you have our love and support through thick and thin. I hope you have many, many Christmases ahead of you. Enjoy your precious daughters and each precious day. love, d ------------- DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10. |
Posted By: zoomommy2
Date Posted: Dec 16 2010 at 3:46pm
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Suzie,
I understand and applaud your meltdown! We all need them from time to time! Praying that the SS Disability comes through quickly for you. You don't need to worry over money now. Statstics are just numbers on a paper. They aren't you! We are all here for you. Group hug right back at you.
Lee in Denver ------------- dx6/09,stageII,gr3,(L)mastectomy 7/09,ACx4,Taxolx7,Avastin study,gall bladder surgery 1/10,4/11 Stage 4, mets to lung, 4/11 Started Taxotere and Xeloda, 5/11 Taxotere stopped, off Xeloda |
Posted By: trip2
Date Posted: Dec 16 2010 at 4:23pm
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Joining the group hug to Suzie!
Let us know how things are going, we are here for ya Suzie.. ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: trip2
Date Posted: Dec 18 2010 at 12:10pm
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Suzie, did you see the list of new trials for tnbc Mainy posted? Wondering if anything would work for you??
http://clinicaltrials.gov/ct2/results?term=triple+negative+breast+cancer&recr=&rslt=&type=&cond=&intr=&outc=&lead=&spons=&id=&state1=&cntry1=&state2=&cntry2=&state3=&cntry3=&locn=&gndr=&rcv_s=09%2F01%2F2010&rcv_e=12%2F16%2F2010&lup_s=&lup_e - http://clinicaltrials.gov/ct2/results?term=triple+negative+breast+cancer&recr=&rslt=&type=&cond=&intr=&outc=&lead=&spons=&id=&state1=&cntry1=&state2=&cntry2=&state3=&cntry3=&locn=&gndr=&rcv_s=09%2F01%2F2010&rcv_e=12%2F16%2F2010&lup_s=&lup_e ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: trip2
Date Posted: Dec 18 2010 at 1:31pm
|
Two more links you might find helpful Suzie,
http://www.mbcnetwork.org/page.aspx?nm=mission - http://www.mbcnetwork.org/page.aspx?nm=mission
http://www.inspire.com/groups/advanced-breast-cancer - http://www.inspire.com/groups/advanced-breast-cancer
http://mbcnetwork.org/news/category/headline-news - http://mbcnetwork.org/news/category/headline-news
Above link, scroll down, has some treatment options that might be beneficial for you. ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: trip2
Date Posted: Dec 18 2010 at 1:50pm
|
Suzie how is the pain, better?
Did you see this info?
http://topnews.us/content/230374-ibandronate-beneficial-patients-breast-cancer-and-bone-metastases-many-ways - http://topnews.us/content/230374-ibandronate-beneficial-patients-breast-cancer-and-bone-metastases-many-ways ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: Carol (Tenn)
Date Posted: Dec 18 2010 at 4:14pm
|
Suzie,
I am hugging you with all my granny might...my grandkids love my granny hugs....
I am praying for you, praying strength, praying peace, praying love and most of all praying miracles.
Love and Prayers,
Carol
P.S.
I ask your prayers too, that my fractured ribs are just that. I'll find out Monday. ------------- St 2 Gr 3, A/C/T, DD Radiation x35 Rec chest wall 07/09 Radiation x28 NED 10/24/11 NED 10/5/12 NED 03/15/13 |
Posted By: NINASUZIE
Date Posted: Dec 18 2010 at 5:00pm
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dearest Granny, best hugs everrrrr! Thank you for your prayers....YES, I am praying back! Tell me more, so I can channel prayers just for you....hugs back...I am here |
Posted By: Carol (Tenn)
Date Posted: Dec 18 2010 at 5:06pm
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Suzie,
I had my annual bone scan last week and they saw a spot on two of my ribs. I had taken a fall a few weeks back and assuming that's when they were fractured. Only thing that worries me is that I felt no pain.
Anyway, my onc saw the report and ordered xrays to the particular area and I will get the results of those Monday when I see him for my scheduled appt.
Soooo here we go again.... ------------- St 2 Gr 3, A/C/T, DD Radiation x35 Rec chest wall 07/09 Radiation x28 NED 10/24/11 NED 10/5/12 NED 03/15/13 |
Posted By: 123Donna
Date Posted: Dec 18 2010 at 5:35pm
|
Suzie, How's your arm? Are you getting relief from the pain? When do you see your onc next? Please print out the list of clinical trials for tnbc and see if you would benefit from one of them. Always in your corner! Hugs, Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: trip2
Date Posted: Dec 20 2010 at 2:25pm
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Carol please let us know what you find out.. ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: trip2
Date Posted: Jan 04 2011 at 7:37pm
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Suzie, did you see this? Maybe it is a thought?
http://www.breastcancer.org/tips/new_research/20101109.jsp - http://www.breastcancer.org/tips/new_research/20101109.jsp ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: LRM216
Date Posted: Jan 04 2011 at 8:33pm
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Suzie and Carol
Many gentle hugs to both of you. ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: TNBC_in_NS
Date Posted: Jan 04 2011 at 8:53pm
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Suzie:
Sending Hugs to you and hope you are managing ok...
Wondering how you are making out...
Hugs, Helen in NS ------------- Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear |
Posted By: Carol (Tenn)
Date Posted: Jan 04 2011 at 10:19pm
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I don't get around to all the boards the way I should.
Helen, Now I understand your question about xrays....that was back in the middle of Dec. Everything is fine. Onc going to look at the ribs again by CT in March. But he is almost certain it's due to the fall. ------------- St 2 Gr 3, A/C/T, DD Radiation x35 Rec chest wall 07/09 Radiation x28 NED 10/24/11 NED 10/5/12 NED 03/15/13 |
Posted By: NINASUZIE
Date Posted: Jan 05 2011 at 9:50pm
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Pam,
I am so sorry that I have missed these wonderful postings you poured yourself into team suzie and they are wonderful and thank you so very very much to you and everyone for the imput...we can do so much together....bless you all
|
Posted By: SagePatientAdvocates
Date Posted: Jan 05 2011 at 10:27pm
|
Dear Suzie, I had the pleasure of meeting Pam about 18 months ago about an hour outside of Dallas. Had dinner with her, her daughter and DH. I can tell you that she is truly a marvelous women...In spite of several difficult medical issues she gives her heart and soul to this site and has helped so many, many of us with her diligent research on our behalf and with her insightful posts. She is very smart, caring and funny...Not a bad combo, huh? I would say her only failing is that she likes to sit under palm trees on the beach with their fronds gently blowing in the breeze...not an easy task in January in Oklahoma...  She is a lovely woman..I can see her now..shaking her head and saying “why is he saying so much?” well the answer, dear Pam, as Suzie and all of us have recognized you are just so very, very special and I want to acknowledge that. I hope 2011 is kind to you, health-wise.. with my love, Steve ------------- I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates |
Posted By: outnumbered
Date Posted: Jan 06 2011 at 12:25pm
|
Steve... I second that!
Suzie, How are you making out these days? Just thinking of you...
XO ------------- ~Sara DX @ age 40 6/24/08 Stage 1 Grade 3 BRCA1+ 187delAG BMX (nipple-areola-sparing) 8/5/08 Redo BMX (remove nipple and areola) w/ Lat Flap 7/6/09 BSO 9/3/09 NED since 08/05/2008 |
Posted By: NINASUZIE
Date Posted: Jan 06 2011 at 1:37pm
|
Ditto, Steve for every Pam, outnumbered, Zoomommy2, Lee in Denver, 123 Donna and oh just go ahead and add the whole memberlist, including the precious, loving friends of Nancy Zenna-Block who payed her legacy forward...and every precious spouse, friend, family member, advocate, caregiver, medical angel, doctor who cares....hugs from cyberspace... ------------- Suzie ************** Dx: 1/09 Metaplastic TN IDC/3.5CM/DCIS/1.0;4/09 L mastectomy;6-11/09 Cytoxan/Taxotere X6;BRACA-; Recurrance 11/10 bone mets broke arm;Lung mets;rads X15; chemo/parp tbd 1/11 |
Posted By: dmwolf
Date Posted: Jan 06 2011 at 1:47pm
|
Suzie, how is your arm? I've been thinking of you. love, d ------------- DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10. |
Posted By: NINASUZIE
Date Posted: Jan 06 2011 at 2:03pm
|
Beth and D...
My arm is responding to rads...just finished tx. Some pain and swelling, but I think the broken arm rads helped and doing another scan in 4 wks is the plan to see the healing. Still in sling, elevated, very carefully not moved. The OTHER arm is now daily acting the same  ...call into onc while nurse cares for the pain...I am now the queen of pillows...lol, piled left and right! Rad Onc has passed the baton to Medical BC Onc now...since we have to watch for more bone mets/sites and want to discuss the zometa alternative as part of tx, and the lung mets, seeing the Onc makes sense...now systemic tx/chemo...whole other question/getting second opinion on case/tx with the help of my dear friends here.....I thank you everyday....how are both of you??????------------- Suzie ************** Dx: 1/09 Metaplastic TN IDC/3.5CM/DCIS/1.0;4/09 L mastectomy;6-11/09 Cytoxan/Taxotere X6;BRACA-; Recurrance 11/10 bone mets broke arm;Lung mets;rads X15; chemo/parp tbd 1/11 |
Posted By: Carol (Tenn)
Date Posted: Jan 06 2011 at 2:42pm
|
Suzie,
I don't post here often but when I read your posts I can almost feel your wonderful attitude in spite of all you're going through. Keep the faith, Suzie, you are inspiring to all.
Carol ------------- St 2 Gr 3, A/C/T, DD Radiation x35 Rec chest wall 07/09 Radiation x28 NED 10/24/11 NED 10/5/12 NED 03/15/13 |
Posted By: Carol (Tenn)
Date Posted: Jan 06 2011 at 2:43pm
|
Hey Denise,
I haven't talked to you in ages....how are you doing????
I stay pretty busy on the Spiritual Support end of the site and don't get around much anymore....gee...that last phrase sounds like it might make a good song title....(dating myself)
anyway..love you sister...
Carol ------------- St 2 Gr 3, A/C/T, DD Radiation x35 Rec chest wall 07/09 Radiation x28 NED 10/24/11 NED 10/5/12 NED 03/15/13 |
Posted By: dmwolf
Date Posted: Jan 06 2011 at 3:31pm
|
Suzie, I'm glad the radiation seems to be helping, and hope the healing has already started. Sorry about the other arm, though. Hopefully it's just strained from using it to compensate for your 'queenly' lady of leisure arm. I'm doing pretty well, other than walking around with a cold that turned into a sinus infection and now back into a cold/flu since antibiotics. I'm slurping soup at my desk at this very moment. We had a nice holiday break, going to LA for a week and leaving the kids with the grandparents for a while when we returned. Lots of books, movies, hanging with friends, running, and yoga, the latter two of which have been nixed since the cold-monster came to visit. My marriage seems to have taken a turn for the better, amazingly enough. Our 15 year wedding anniversary is tomorrow, and we are both feeling pretty optimistic. My chest is still less than lovely with my pretty botched reconstruction, but I don't want to revisit this quite yet. Maybe in a couple of months. Thanks for asking. love, d ------------- DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10. |
Posted By: Carol (Tenn)
Date Posted: Jan 06 2011 at 3:47pm
|
Man, I have a terrible memory but I remember someone on the spiritual support mentioning a botched reconstruction, but I don't know who....of course my problem is chemobrain, I would never admit to being old...lol...
Happy to hear there are positive signs at your house...I will pray that all is well and soon.
Love,
Carol ------------- St 2 Gr 3, A/C/T, DD Radiation x35 Rec chest wall 07/09 Radiation x28 NED 10/24/11 NED 10/5/12 NED 03/15/13 |
Posted By: zoomommy2
Date Posted: Jan 06 2011 at 3:52pm
|
Denise,
Hope that cold finally goes away. Mine is hanging on way too long. It's nice to hear about your trip to LA without kids. Hoping that things continue to look up in the marriage area! Congratulations a day early on your 15 yr anniversary.
Lee in Denver ------------- dx6/09,stageII,gr3,(L)mastectomy 7/09,ACx4,Taxolx7,Avastin study,gall bladder surgery 1/10,4/11 Stage 4, mets to lung, 4/11 Started Taxotere and Xeloda, 5/11 Taxotere stopped, off Xeloda |
Posted By: NINASUZIE
Date Posted: Jan 06 2011 at 5:07pm
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Beth,
Thinking of you, too....see the posting below here....can I ask how you are as well? And can I say that I DO love your "tat"! I was just talking with my daughters about my always wanting a small tattoo and one we can all have...might be a heart with strings....for a poem I wrote them called "Heartstrings" that I learned to grow as they have become the amazing adult women at 25/32 (this sunday) that they are! Thank you sooo much for your love and support over the miles hugs hey, we do xo too....so xoxoxoxoxoxo!------------- Suzie ************** Dx: 1/09 Metaplastic TN IDC/3.5CM/DCIS/1.0;4/09 L mastectomy;6-11/09 Cytoxan/Taxotere X6;BRACA-; Recurrance 11/10 bone mets broke arm;Lung mets;rads X15; chemo/parp tbd 1/11 |
Posted By: NINASUZIE
Date Posted: Jan 06 2011 at 5:17pm
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Yuck on that cold turned sinus to cold...altitudes must be tough at times like this on sinuses! Whoa, LA...that's amazing!!!! Yeah, you really are working on being you on many fronts....including the beautiful breasts you WILL have, girlfriend!!!!! Marriages take a hit, we are not 80 and shuffling around reminding to use a cane, right? HE is ONE LUCKY GUY!!!!!! We took a big hit, too. Here for ya....hugs ------------- Suzie ************** Dx: 1/09 Metaplastic TN IDC/3.5CM/DCIS/1.0;4/09 L mastectomy;6-11/09 Cytoxan/Taxotere X6;BRACA-; Recurrance 11/10 bone mets broke arm;Lung mets;rads X15; chemo/parp tbd 1/11 |
Posted By: NINASUZIE
Date Posted: Jan 06 2011 at 5:20pm
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Is your username zoom/mommy2 sounding or zoo mommy2 sounding? Love it both ways! ------------- Suzie ************** Dx: 1/09 Metaplastic TN IDC/3.5CM/DCIS/1.0;4/09 L mastectomy;6-11/09 Cytoxan/Taxotere X6;BRACA-; Recurrance 11/10 bone mets broke arm;Lung mets;rads X15; chemo/parp tbd 1/11 |
Posted By: NINASUZIE
Date Posted: Jan 06 2011 at 5:24pm
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Yes, that chemobrain is all too real. And as my family/friends (here as well) say, meds in the mix are just "SO" much fun...not! Tennessee is so beautiful, springs are lovely there, having lived in SW Ohio years back. Stick w/us and we WILL always remember what is worth saving and with a breath of kindness, blow the rest away hugs ------------- Suzie ************** Dx: 1/09 Metaplastic TN IDC/3.5CM/DCIS/1.0;4/09 L mastectomy;6-11/09 Cytoxan/Taxotere X6;BRACA-; Recurrance 11/10 bone mets broke arm;Lung mets;rads X15; chemo/parp tbd 1/11 |
Posted By: zoomommy2
Date Posted: Jan 06 2011 at 8:25pm
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My user name I picked when I was doing foster care. It was a zoo around here and I'm a mommy, so I became zoomommy2 because somebody else already had plain zoomommy. I do foster care/rescue for dogs now, so the zoo continues!
Lee in Denver ------------- dx6/09,stageII,gr3,(L)mastectomy 7/09,ACx4,Taxolx7,Avastin study,gall bladder surgery 1/10,4/11 Stage 4, mets to lung, 4/11 Started Taxotere and Xeloda, 5/11 Taxotere stopped, off Xeloda |
Posted By: NINASUZIE
Date Posted: Jan 06 2011 at 10:11pm
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And you have nothing else going on in your life....hmmmm, with your abilities...I'd say I would definitely want you in charge...zoomommy2(all/many/us)...here's to the zoo in our lives!!!! hugs ------------- Suzie ************** Dx: 1/09 Metaplastic TN IDC/3.5CM/DCIS/1.0;4/09 L mastectomy;6-11/09 Cytoxan/Taxotere X6;BRACA-; Recurrance 11/10 bone mets broke arm;Lung mets;rads X15; chemo/parp tbd 1/11 |