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trip2
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Joined: Jun 03 2007
Location: Under Palm Tree
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Points: 8549
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Posted: Nov 30 2010 at 7:47pm |
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Yes Suzie let us know if you have problems changing your topic, it should work doing exactly what Donna said. I agree with Linda this would really help us zero in and keep track.
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Stage 2 2003
Stage 1 2007
BRCA 1+
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NINASUZIE
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Joined: Mar 01 2009
Location: United States
Status: Offline
Points: 323
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Posted: Dec 01 2010 at 9:42pm |
pam, just did...is thid enough? I see TEAM DONNA under met/reoc forum...should I post there or is this helpful?  hugs to you!
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Suzie
**************
Dx: 1/09 Metaplastic TN IDC/3.5CM/DCIS/1.0;4/09 L mastectomy;6-11/09 Cytoxan/Taxotere X6;BRACA-; Recurrance 11/10 bone mets broke arm;Lung mets;rads X15; chemo/parp tbd 1/11
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123Donna
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Joined: Aug 24 2009
Location: St. Louis, MO
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Points: 13510
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Posted: Dec 02 2010 at 7:37am |
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Suzie,
Congrats on getting your thread renamed. I like "Team Suzie"!
How are you doing? Have you seen your onc yet?
Donna
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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dmwolf
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Joined: Jan 22 2009
Location: Berkeley, CA
Status: Offline
Points: 3619
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Posted: Dec 02 2010 at 11:24am |
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Team Suzie - right on!! Sign me up. love you, d
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DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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trip2
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Joined: Jun 03 2007
Location: Under Palm Tree
Status: Offline
Points: 8549
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Posted: Dec 05 2010 at 1:08pm |
Suzie what is happening with you? Been thinking about you dear...
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Stage 2 2003
Stage 1 2007
BRCA 1+
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TNBC_in_NS
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Joined: Jul 26 2009
Location: NS Canada
Status: Offline
Points: 2028
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Posted: Dec 05 2010 at 1:46pm |
Dear Susie:
So sorry to hear this news. I have a large post to send you but the system won't let me post. Will send a message.
Hugs, Helen in NS
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Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear
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NINASUZIE
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Joined: Mar 01 2009
Location: United States
Status: Offline
Points: 323
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Posted: Dec 06 2010 at 8:33pm |
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as i pray for ee, i post an update...i am fighting mets in 2 places...bone w/radiation starting wed...lung met biopsy fri....w/tx plan mtg next week. paliative care team called for pain mgt of arm, help for self care/meals....so i can focus on dr/tx choices.
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Suzie
**************
Dx: 1/09 Metaplastic TN IDC/3.5CM/DCIS/1.0;4/09 L mastectomy;6-11/09 Cytoxan/Taxotere X6;BRACA-; Recurrance 11/10 bone mets broke arm;Lung mets;rads X15; chemo/parp tbd 1/11
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TracyAMac
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Joined: Aug 01 2010
Location: Toronto, Canada
Status: Offline
Points: 401
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Posted: Dec 06 2010 at 8:42pm |
Hi Suzie Just want you to know that I am thinking about you. You have so much on your mind and plate. We are hear to listen if you need to chat, vent, ask questions or cry. Your fellow Metaplastic TNBC friend from Toronto  Tracy
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TN&non-TN tumors April/10 Gr3&2;1 metaplastic
Rmast.1/9 nodes w/isolated t.cells
Taxotere&Cytoxan x6
Bone cancer 1980 age17;surgery&chemo AC+Methotrexate
BRCA-ve
On hormone therapy & Metformin Trial
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trip2
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Joined: Jun 03 2007
Location: Under Palm Tree
Status: Offline
Points: 8549
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Posted: Dec 06 2010 at 8:49pm |
Suzie so good to hear from you!
Sounds like the plan is going into action, be sure and let others help, rest and take care. Update us when you can, I can tell you have alot going on but we are here, remember that and thinking of you..
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Stage 2 2003
Stage 1 2007
BRCA 1+
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123Donna
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Joined: Aug 24 2009
Location: St. Louis, MO
Status: Offline
Points: 13510
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Posted: Dec 06 2010 at 9:00pm |
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Suzie,
So good to hear from you. Please let us know what your treatment plan for the lung mets once you have your meeting. It's good you're getting some help and support. You need to focus on you and your treatment. We are here for you to vent, discuss or just listen.
Hugs,
Donna
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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outnumbered
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Joined: Feb 02 2009
Location: New Jersey
Status: Offline
Points: 525
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Posted: Dec 06 2010 at 9:02pm |
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~Sara
DX @ age 40 6/24/08 Stage 1 Grade 3 BRCA1+ 187delAG
BMX (nipple-areola-sparing) 8/5/08
Redo BMX (remove nipple and areola) w/ Lat Flap 7/6/09
BSO 9/3/09
NED since 08/05/2008
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LRM216
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Joined: Mar 18 2009
Location: Marietta, GA
Status: Offline
Points: 1196
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Posted: Dec 06 2010 at 9:35pm |
Suzie:
Hugs and best wishes - am thinking of you.
Linda
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Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg
4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33
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zoomommy2
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Joined: Sep 26 2009
Location: Denver, CO
Status: Offline
Points: 1356
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Posted: Dec 06 2010 at 10:16pm |
Suzie,
Praying for peace and calm while you decide on treatments. Praying for successful treatment for you.
Lee in Denver
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dx6/09,stageII,gr3,(L)mastectomy 7/09,ACx4,Taxolx7,Avastin study,gall bladder surgery 1/10,4/11 Stage 4, mets to lung, 4/11 Started Taxotere and Xeloda, 5/11 Taxotere stopped, off Xeloda
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Carol (Tenn)
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Joined: Aug 06 2009
Location: Paris,Tennessee
Status: Offline
Points: 2707
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Posted: Dec 07 2010 at 7:33am |
Dear Suzie,
I have caught up with you and I love the "Team" idea. It makes it easy for those of us that can't read all the posts everyday.
I pray for you and all others everyday. I know you keep fighting and win!
Love and Prayers,
Carol
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St 2 Gr 3, A/C/T, DD Radiation x35 Rec chest wall 07/09 Radiation x28 NED 10/24/11 NED 10/5/12 NED 03/15/13
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conniec
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Joined: Sep 14 2010
Location: SC
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Points: 120
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Posted: Dec 07 2010 at 8:08am |
Dear Suzie, Praying for your tx plan to come together. Praying for your pain to be eased and strength renewed. (((hugs))) Connie
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Age 40,
Felt lump 8/20/10
Lumpectomy 9/7
DX 1.5 tumor stg I 9/13 margin not clear
Double MX w/ expanders 10/8
Final tumor size 1.7, 0/3 + nodes
AC-T chemo 11/8 - 2/21
TE/implant exchange 3/29
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Debris
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Joined: Jun 07 2010
Location: Forsyth,Georgia
Status: Offline
Points: 756
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Posted: Dec 07 2010 at 10:54am |
Suzie,
Praying for successful treatments for you, and the relief from pain. 
God Bless.
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4/12 Xeloda/Tykerb
2 Carboplatin
12/11 Dx IA
9 Gemzar/Taxotere Dx IBC:FEC
5 Ixempra/Sprycel
2 25 Rad
10/10 BRCA1-/2suv
9 NED
6 Stg4 Grd3 many nodes no Sx/Rad. Taxol/Avastin
06/08 Dx DCIS 0/SN Rads/AIs
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NINASUZIE
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Joined: Mar 01 2009
Location: United States
Status: Offline
Points: 323
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Posted: Dec 09 2010 at 7:29pm |
TEAM SUZIE ALSO ON REOC/METS SITE....TOMORROW, 10TH IS LUNG BIOPSY....SCARED...PRAY FOR NO COMPLICATIONS/GOOD THOUGHTS....MY SWEET DAGHTER SAID IT'S JUST SO AGRESSIVE, MOM AND WANTS THE BEST CARE/QUALITY OF LIFE FOR ME....BOTH MY DAUGHTERS WILL BE THERE...ALL OF YOU I TAKE W/ME....I AM SOOOOO GRATEFUL FOR EACH OF YOU...HUGGING YOU  LOVE U!!
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Suzie
**************
Dx: 1/09 Metaplastic TN IDC/3.5CM/DCIS/1.0;4/09 L mastectomy;6-11/09 Cytoxan/Taxotere X6;BRACA-; Recurrance 11/10 bone mets broke arm;Lung mets;rads X15; chemo/parp tbd 1/11
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SagePatientAdvocates
Senior Advisor
Joined: Apr 15 2009
Status: Offline
Points: 4748
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Posted: Dec 09 2010 at 7:46pm |
"All of you I take with me" and all of us are with you...
good luck...sounds so trite...but I know you know what I mean..
prayers continue, dear Suzie,
Steve
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I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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zoomommy2
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Joined: Sep 26 2009
Location: Denver, CO
Status: Offline
Points: 1356
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Posted: Dec 09 2010 at 7:46pm |
Suzie,
You will do fine with the lung biopsy! Praying that you breeze through it with no complications. You have wonderful daughters, but you know that! Let us know how the biopsy turns out.
Lee in Denver
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dx6/09,stageII,gr3,(L)mastectomy 7/09,ACx4,Taxolx7,Avastin study,gall bladder surgery 1/10,4/11 Stage 4, mets to lung, 4/11 Started Taxotere and Xeloda, 5/11 Taxotere stopped, off Xeloda
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Carol (Tenn)
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Joined: Aug 06 2009
Location: Paris,Tennessee
Status: Offline
Points: 2707
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Posted: Dec 09 2010 at 9:06pm |
Our prayers are with you Suzie, feel the love!
Carol
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St 2 Gr 3, A/C/T, DD Radiation x35 Rec chest wall 07/09 Radiation x28 NED 10/24/11 NED 10/5/12 NED 03/15/13
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