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Lillie
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Location: Eastern NC
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Posted: Mar 23 2012 at 7:22pm |
Dear Twin Genie,
I also have the scar that looks like a "ragged crescent roll". I'm not sure if my surgery was skin sparing, but I could have done without some of the excess.
Maybe we can go on the buddy plan and have cosmetic surgery on our scars????
Love and God Bless,
Lillie
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Dx 6/06 age 65,IDC-TNBC Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED
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Genie
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Location: San Antonio
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Posted: Mar 23 2012 at 10:19pm |
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Lillie, That buddy plan for cosmetic surgery sounds like a good deal. I could also stand a tummy tuck since gravity has really been playing havoc with my body with the loss of about 30 lbs. Just don't know if I could face any more surgeries - I've already had more than my share.
Wish we could meet someday - I know that we would be great friends with so much to share.
Love from your "twin sister, Genie
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DX 3/10/08 at age 67, IDC. Stage 1, Grade 3, 1.5 cm. KI-67 99% at MX . Bilateral mastectomy 4/1/08 Node-, BRCA 1/2-,BARD1+, TX:Cytoxan/Taxotere x4,3 in family with TNBC
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LRM216
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Location: Marietta, GA
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Posted: Mar 24 2012 at 7:56am |
Three years later, and I still find it so absolutely amazing that God has brought us all together for all this shared love and support, and tied us together with a ribbon that even life and all it's pitfalls can never sever. How blessed we are to have each other.
Love,
Linda
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Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg
4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33
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Grateful for today
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Location: U.S.A.
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Posted: Mar 24 2012 at 10:58pm |
Hi Mindy,
Hope all continues to go smoothly.
It was great to read yesterday that 2 of your drains remain almost empty (one on each side) and the other 2 remain almost half full.
I will join you in being realistically optimistic for a good final report.
I just added to my original post about surgery something that is very important that
I forgot to include : Physical Therapy!
This is what I put on the original post:
"At some point post-op, ask your MD for a physical therapy eval. Many physical therapists feel
everyone who has had a mastectomy (with or without reconstruction) would benefit from a
physical therapy evaluation.
see PT info on link: http://breastfree.org/viewer.php?num=7
With caring and positive thoughts,
Grateful for today..........Judy
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Grateful for today
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Posted: Mar 30 2012 at 12:12am |
mindy555 wrote:
on 3/29/12 on other forum
........We're off to MDA again today for just one appointment, then we'll head right back after. It's a lot of driving though I'm getting used to it. It's really not bad... and thank goodness Randy enjoys being behind the wheel. Unlike me, he's always up for a road trip. Thank God for this precious man who's such a blessing to me. I couldn't have done any of this without him! I don't have my final pathology, though maybe will have it tomorrow.. I'm hoping! My oncology surgeon reminded me the final could be quite different than what they found during surgery. I pray it's as positive as the preliminary path! I need your prayers, too! Thank you my dear family.God Bless ALL my sisters and brothers. You ALL remain in my heart whether I'm on board or not. ALWAYS.With Much Love, Mindy
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Mindy,
Sending love, prayers and cyberhugs to you for your trip and appointment.
Grateful for today..............Judy
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mindy555
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Joined: Aug 13 2011
Location: Oklahoma
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Posted: Mar 31 2012 at 2:28pm |
Dearest Judy and all  ... You're simply wonderful and have helped immensely! Here's my most recent update: Final path isn't in yet, though should be early next week or by the time I go back. My surgeon doesn't want me to start physical therapy until drains are out. 2 were removed yesterday and the other 2 will be removed next Friday. Much to my surprise and relief, removal didn't hurt a bit. My surgeon doesn't like to leave drains in too long for risk of infection, even though I was put on antibiotics after surgery for 14 days. Removal of those 2 drains have lightened the load tremendously! Just an FYI: She removes anything 30 mls or under after a given time. (the 2 removed were only producing 2-4 mls, very little) The last 2 are around 30 mls or less, but she wants to give them another week. I can now resume all antioxidants both in food and supplementation. I'm already on an anti-inflammatory diet and supplements. Also taking Vit D-3, calcium and magnesium citrate and try to eat enough alkaline foods. I've made an appt. with my wonderful primary care doc. I want to discuss referrals to homeopathic experts in the area, have him test and closely monitor vitamin D levels and talk about going on Metformin based on all the information here. Thanks to all for your invaluable support and prayers. You've made this part of the journey so much smoother. With much love and gratitude! Mindy
Edited by mindy555 - Mar 31 2012 at 2:42pm
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Dx July 2011 56 yo Stage I IDC,TN,Grade 3 Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia Daughter also BRCA1+ Mass grew on Taxol FEC 6x better BMX 3/19/12 pCR NED BSO 6/2012
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mindy555
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Posted: Mar 31 2012 at 2:55pm |
LRM216 wrote:
Three years later, and I still find it so absolutely amazing that God has brought us all together for all this shared love and support, and tied us together with a ribbon that even life and all it's pitfalls can never sever. How blessed we are to have each other.
Love,
Linda |
AMEN beautiful sister! Love you! Mindy
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Dx July 2011 56 yo Stage I IDC,TN,Grade 3 Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia Daughter also BRCA1+ Mass grew on Taxol FEC 6x better BMX 3/19/12 pCR NED BSO 6/2012
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mindy555
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Posted: Mar 31 2012 at 3:10pm |
Dear Lillie & Genie! You two are already great friends! I DO hope you guys get to meet in person! You really should!! Then watch out world! You two will tear-up the town! LOL Love you both 
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Dx July 2011 56 yo Stage I IDC,TN,Grade 3 Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia Daughter also BRCA1+ Mass grew on Taxol FEC 6x better BMX 3/19/12 pCR NED BSO 6/2012
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Genie
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Posted: Mar 31 2012 at 4:20pm |
Mindy, Praying for a calmness and peace for you as you await your path results. It feels good to at least get 2 of the drains removed - hopefully the last two will come out at the next visit. I feel a real closeness to everyone on this forum but sweet Lillie and I have so many things in common. Even though I know I can't meet most of you during this time on earth, I have the blessed assurance that we will meet and know each other in that great place where our Lord is. It would be absolutely wonderful if I could meet you all now. I have had the pleasure & honor of meeting two of our ladies, Gail & MJ, and our wonderful Steve. God is so good to me and continues to pour out blessings daily on me. Love you precious Mindy!  Genie
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DX 3/10/08 at age 67, IDC. Stage 1, Grade 3, 1.5 cm. KI-67 99% at MX . Bilateral mastectomy 4/1/08 Node-, BRCA 1/2-,BARD1+, TX:Cytoxan/Taxotere x4,3 in family with TNBC
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Grateful for today
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Posted: Apr 01 2012 at 10:06am |
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Mindy,
Great news that you are now minus 2 drains and 2 left-just waiting to come out.
By all means, follow your MD recommendation for when is best for that physical therapy eval.
Just a thought......you might want to consider running the question about when is best time for
the eval by both your surgeons. Guess what? Surgeons can have different opinions about when
to have a physical therapy eval. Also if you do plan to have the eval, it would be great if you found
a physical therapist with a lot of experience in post mastectomy care. Your local oncologist may
have a list....or maybe the nurse in your local MD's office can research the info.....or maybe
a physical therapist at MD Anderson can refer you to someone in your home area.
Please continue to be good and gentle with yourself as you heal from the surgery.
With caring and positive thoughts,
Grateful for today............Judy
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debB
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Posted: Apr 12 2012 at 5:47pm |
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And just so you don't have to feel like you high jacked the other thread.....CONGRATULATIONS!!
Big hugs,
Deb
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Dx 4/29/11, 46 yrs old, 3.9 cm tumor, Stg 2 Grade 3 chemo 4 rounds DD AC, 12 weekly taxol, finish. Lumpectomy, 2mm residual tumor. 37 rounds rads completed. Cisplatin/PARP trial
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Grateful for today
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Posted: Apr 12 2012 at 11:03pm |
Quoted from thread: Residual disease following neoadjuvant chemo 4/12/12 1:47pm
mindy555 wrote:
It's official... straight from the doctor's mouth... confirmed in "final" path; pCR~ Negative nodes~ No carcinoma detected~ Period.*Shocked* Bless my FEC-riddled brain.. I'm still attempting to wrap my head around what I was absolutely NOT expecting..Yesterday was the most joyful, grateful, ever! Since the last MDA visit nine "daze" ago, I've been fumbling around in a state of "How Can This Be?" Interesting. I could accept the diagnoses back in July '11 with complete confidence... never once asking "why me" - yet THIS had me totally bamboozled.
As I continue blathering on, now in the wrong thread... I write with an untouchable bond like no other between my sisters & brothers here.Mindy
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Mindy,
Warm and big hugs to you on your good news.....pCR.
So happy for you.
Pleasant dreams tonight!
With caring and very positive thoughts,
Grateful for today...............Judy
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mindy555
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Posted: Apr 13 2012 at 9:04am |
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Dear Judy- I'm on a PT regimen 3x a day. Your generosity in most helpful information makes this forum a wonderful resource for us all! I say we crown you our "Informative Goddess."
Deb, Judy and all who have been here to support... you'll never know how much it means to me. I carry loving thoughts of you all with me daily.
Much love and gratitude for each of you!!!! I can't imagine this journey without you beside me.
Mindy
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Dx July 2011 56 yo Stage I IDC,TN,Grade 3 Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia Daughter also BRCA1+ Mass grew on Taxol FEC 6x better BMX 3/19/12 pCR NED BSO 6/2012
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Grateful for today
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Posted: Apr 13 2012 at 11:39am |
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Mindy,
Just love seeing the " pCR " in your signature.
Again, so happy for you.
You are much too kind.
When I first starting reading the forums, I was thrilled to find so much information and so much
sharing. Since I am about 1 1/2 year post diagnosis, I still have some fairly recent info
and thoughts. Since I am an information person and like to know about important things to
the Nth degree, I wanted to share whatever I could on the forums. I try to keep in mind that
we are all the same and yet different in many ways.
The way I look at it.........we all wear the 'Informative Goddess" crown whenever we post.
We share our knowledge.....and our questions.........and our support.
It is a good gift to share..........Knowledge is power.
With caring and positive thoughts,
Grateful for today...............Judy
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denise07
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Posted: Apr 13 2012 at 2:21pm |
MINDY,
CONGRATULATIONS!!!!! SUCH WONDERFUL NEWS!!!!!!
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DX Idc 10/07,st2,gr3,2/6 lymphnodes
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christina1961
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Posted: Apr 13 2012 at 3:47pm |
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YAY!!! I'm very happy for you! Congratulations!
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2.5 cm TNBC, BRCA-, diag. 2/11, neoadj chemotherapy, uni MX, y2cm,2/16 nodes, RCBII, tumor retested 5-10%ER+,PR-,Her2-, rads, clin trial eribulin 10/11-2/12, tamox.
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Lillie
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Posted: Apr 13 2012 at 4:53pm |
Hi Mindy,
What a wonderful thing to be able to share pCR. Congratulations 
What do these initials stand for; TVH w/BSO?
Have a Great Day.
God Bless,
Lillie
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Dx 6/06 age 65,IDC-TNBC Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED
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mindy555
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Posted: Apr 13 2012 at 8:44pm |
Lillie- I probably should have written TAH w/BSO - The definition is TAH-BSO: Total Abdominal Hysterectomy with Bilateral
Salpingo-Oophorectomy (removal of uterus, cervix, both ovaries, both
tubes, through an abdominal incision) I'll find out more when I consult an oncology GYN here. I want to go for the "full monty" with prophylactic surgery due to BRCA 1+ status, my age & peace-of-mind .
TVH is Total Vaginal Hysterectomy (removal of uterus and cervix through the vagina)
I believe the surgery to accomplish 'all plumbing removal' must be performed through the abdomen. Still learning.... Always learning. (now if I could only remember all the great stuff I've learned!  ) Hugs, Mindy
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Dx July 2011 56 yo Stage I IDC,TN,Grade 3 Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia Daughter also BRCA1+ Mass grew on Taxol FEC 6x better BMX 3/19/12 pCR NED BSO 6/2012
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Grateful for today
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Posted: Jun 19 2012 at 1:05am |
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Copied from Mindy's post on another thread:
"Posted: Jun 17 2012 at 5:47pm
................................
I have BSO surgery Wednesday. Hopefully prophylactic due to the BRCA mutation = high risk for ovarian cancer. Pre-surgical testing is tomorrow. After much deliberation I decided to wait on the full hysterectomy since it's a crazy hectic time in my business. Every doc says the laparoscopic oophorectomy is a much quicker recoup time. I'll go back for a TVH later.
If you will, send prayers my way on Wednesday? Surgery is at 9am.
Love,
Mindy
==================================================
Mindy,
Be assured you have tons of positive thoughts and prayers for your Wed prophylactic
BSO surgery.
As you are waiting for your surgery on Wed morning, think and feel the love and good
wishes and prayers for you.
Grateful for today............Judy
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LRM216
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Posted: Jun 19 2012 at 8:33am |
Mindy:
Lots of love, lots of prayers and all good wishes being sent your way , and know that we will all be there with you in mind, if not in body. Hope your recovery is smooth as glass and quick as a wink.
Love,
Linda
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Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg
4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33
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