Surgery Moved.. Too Soon?
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Topic: Surgery Moved.. Too Soon?
Posted By: mindy555
Subject: Surgery Moved.. Too Soon?
Date Posted: Feb 14 2012 at 2:31pm
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Hi all. I had my 6th and final round of FEC yesterday. My local
oncologist was disturbed surgery (bilateral mastectomy) was scheduled so far out after last chemo on 3/30
and recommended a week break after the 3rd round then surgery. THAT
seemed a bit too soon to me. I think she was sensitive to my case and
the fact I'll have residual tumor, not wanting to wait too long and
afraid it may undo the productivity of chemo. As it turns out, my surgeon at MDA needed to reschedule too. Now I'm moved up to March 5th which is in week 3 of the chemo round, and seems VERY early. But the surgeon is fine with it. They'll do all the preliminary testing of course. I only wish for more energy and to not feel so puny. I know it's primarily anemia w/ low white and red blood counts. I have 3 major work project deadlines before I leave end of this month. Everything is coming down at once... all very time-consuming and takes a lot of energy and brain power.. which obviously I'm lacking. I'm taking a deep breath, wondering if it's even possible.. Yes, it HAS to be. Waiting on more info so I can get started. I'm shaky, and try to stop myself from hyperventilating.. chalk it up to feeling overwhelmed. I'm really "with it" alright <snicker> I just posted this in the welcome newcomer section.  On my way to delete that one.I need the magic energy pill! My heart is so heavy. I know you all too are feeling the great loss of our Kim and Barbi. Simply too sad and too much. Such a tough blow to all. My mantra right now.. This too shall pass. Though I know my heart will ache for our losses, many days to come. Best wishes to all, Mindy ------------- Dx July 2011 56 yo Stage I IDC,TN,Grade 3 Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia Daughter also BRCA1+ Mass grew on Taxol FEC 6x better BMX 3/19/12 pCR NED BSO 6/2012 |
Replies:
Posted By: janet c.
Date Posted: Feb 14 2012 at 2:52pm
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Mindy,
I guess I had responded to you in the other section while you were removing it so make sure you go look. Take care. Janet ------------- dx 12/08 @47yrs.old TNBC stage 2a grade 3, 2.1cm. partial mastectomy sentinal node negative BRACA negative Cytocan/Taxatere x4 radiation 36 or 38rounds |
Posted By: mindy555
Date Posted: Feb 14 2012 at 2:56pm
Thanks Janet.. I will.  I hope you're doing well!!!!! Mindy ------------- Dx July 2011 56 yo Stage I IDC,TN,Grade 3 Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia Daughter also BRCA1+ Mass grew on Taxol FEC 6x better BMX 3/19/12 pCR NED BSO 6/2012 |
Posted By: LRM216
Date Posted: Feb 14 2012 at 3:35pm
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Mindy:
I can well imagine all that is coming down on you right now, what with the impending surgery moved up, the normal pre-surgery jitters, the chemo timing, and all else involved, has to be horribly nerve-wracking. Just want you to know that I am thinking of you and will continue to do so. We will all be be with you on the 5th, I promise!
Hugs,
Linda ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: debB
Date Posted: Feb 14 2012 at 3:40pm
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Hi Mindy,
I am so with you and feeling the heavy heart today. So very, very sad. Lately it seemes like I am just perking up and something else hits and brings me right back down...and this darn gloomy, Midwest winter weather doesn't help much! Regarding surgery... What I was told is that they like to look at a 3-6 week window after finishing chemo. You are barely scratching at that 3 week mark. I think it becomes a balancing act of trying to get enough chemo out of your system that you get healing, but not too far out where you risk growth returning. Having work projects coming to a head surely doesn't help your stress level at all. Any way you can break it into bite-sized pieces so it doesn't seem so overwhelming? Nothing more satisfying that crossing things off a list! That added onto the stress of not anticipating a pCR, coordinating your various docs, travelling out of state, AND being the one doing it ALL... your plate is very full. I would say delegate where you can, even if it is just the dishes, let go of what you are willing, and try to do something that is just for you each and every day. Take a deep breath (or two)and stay strong sister! Deb ------------- Dx 4/29/11, 46 yrs old, 3.9 cm tumor, Stg 2 Grade 3 chemo 4 rounds DD AC, 12 weekly taxol, finish. Lumpectomy, 2mm residual tumor. 37 rounds rads completed. Cisplatin/PARP trial |
Posted By: christina1961
Date Posted: Feb 14 2012 at 4:05pm
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Hang in there, Mindy! I fully understand trying to deal with work pressure during all of the treatment and treatment decisions. Sometimes I just panic, but like Deb said, try to break it down. If there is any way at all you can cut yourself a little slack, whether extending a deadline you ordinarily would not extend - do it. We have to be gentle with ourselves.
My surgery was 31 days after completing six cycles of TAC. I could have gone one week earlier but the oncologist allowed me to take a trip. (At the time he thought I had a pcr.)I would have been fine to do the surgery at the 3 week mark- on the trip I walked for 4 miles several days during the week. Most likely you will be feeling much better soon. I had a unilateral MX. ------------- 2.5 cm TNBC, BRCA-, diag. 2/11, neoadj chemotherapy, uni MX, y2cm,2/16 nodes, RCBII, tumor retested 5-10%ER+,PR-,Her2-, rads, clin trial eribulin 10/11-2/12, tamox. |
Posted By: mindy555
Date Posted: Feb 15 2012 at 1:17pm
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Dearest Janet, Linda, Deb and Christina - Thank you, thank you for your very helpful & sound advice. Frankly just being here for me means more than anything. I know you all understand the ups, downs, frustrations, fears and our recent sadness. I admire you all- I'm extremely grateful for each of you. Feeling better already.. My first meeting is a few hours. Now I can at least get the ball rolling. I think just knowing I have deadlines coming up and not having all the information I need..(as I call "hurry up and wait" mode) is the hard part of work.. like wasting precious time. Everything else will fall into place as I do a lot of praying. While overwhelming at times, work keeps my mind off of the health crazies while being productive and I love what I do. Thank you all for your beautiful support! Linda, thanks for thinking of me on the 5th. Love to all you incredible women and friends. Your support means SO much! Mindy ------------- Dx July 2011 56 yo Stage I IDC,TN,Grade 3 Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia Daughter also BRCA1+ Mass grew on Taxol FEC 6x better BMX 3/19/12 pCR NED BSO 6/2012 |
Posted By: cheeks
Date Posted: Feb 15 2012 at 2:54pm
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Dear Mindy, My most positive thoughts and prayers will be with you. Mom's surgeon must be thinking the same way. She will be going to Mayo on the 7th of March. Blair------------- Lump found 11/08 DX: 2/09 @52 TNBC L. Mast. 3/26/09, SN-, BRCA-, 4.5 cm (post surgical)T2NOMO Chemo: 4/09-10/09 Taxol x 12, A/C x 4, No rad.No recon. NED 1/17. New Primary right breast TN, 2/2018. |
Posted By: mainsailset
Date Posted: Feb 15 2012 at 4:32pm
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Dear Mindy, a little trick I use when one of these roller coaster rides grabs my life like this one is grabbing yours...here it is. It takes focus and a quiet place but for me it works.
I have a conversation with myself. I start by defining that there are 2 me's. Me#1 is my everyday girl, I like her very much and she has done well taking care of the business of my life. She is now scared and doesn't know where she'll find the energy, the focus or the heart to make the right choices. I then invite Me#2 into the room.
Me#2 is a shadow self. She is strong, a warrior, smart and never gives up but she can't manage the everyday stuff and frankly she's a bit pushy. But both of us know her value. So I tell her that I'm turning things over to her for a few hours, a few days or even a week. It gives Me#1 time to recuperate and I won't have to worry about her. Me#2 tells me that I can cry when she's finished, but to step aside while she goes to battle for me. I agree and tell her I promise not to ask for her help for too long. There is always an end point to our bargain.
I know this sounds bizarre, but it works. You can front load all the characteristics you need for your chosen battle into the Me#2 and give your every day girl a break! It really helps with the energy as you're no longer trying to live on 2 planets at once.
Btw, do find out if your surgeon has experience with TN's and ask how the surgery will differ from a non TN. We've had some good threads here lately on surgery and I know I've learned alot.
You're such a good warrior, be good to yourself.
Mainy ------------- dx 7/08 TN 14x6.5x5.5 cm tumor 3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear |
Posted By: LRM216
Date Posted: Feb 15 2012 at 8:00pm
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Good post, Mainy. And by the way, we love both of you - the #1 and the #2! ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: mindy555
Date Posted: Feb 18 2012 at 1:16am
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Actually Mainy, your idea doesn't sound bizarre to me at all. In fact, I've used a variation of your two girl technique.. Seriously! Again, thanks for all of your good wishes and support. Next week I'll be burning some high speed rubber. But hey! I finished the majority of work project #1 at around 10 PM tonight. A major benefit of doing 'the home office thing' since 2004 is I can work through some odd hours. Hmmm. Come to think of it, I did that when I didn't home office, but here I can finagle my time differently and don't have the responsibility of 17 employees. Next week I'll be out a lot on production shoots. Trying to avoid crowds with this 3 week flu crud infesting our area. Nasty stuff. My sincere love to all, Mindy ------------- Dx July 2011 56 yo Stage I IDC,TN,Grade 3 Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia Daughter also BRCA1+ Mass grew on Taxol FEC 6x better BMX 3/19/12 pCR NED BSO 6/2012 |
Posted By: SandraB
Date Posted: Feb 18 2012 at 3:45am
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Wishing you lots of luck for your upcoming surgery, Mindy. I, too, will be thinking of you March 5 - I do hope it goes smoothly and that you heal beautifully. love, Sandra x ------------- Dx 09/2011 TNBC BRCA 1 & 2 - T2 2.5cm N1 3/29 nodes. Lumpectomy & ALND 10/2011 FEC-D 11/11 - 03/12 Radiation finished 05/2012 |
Posted By: Lillie
Date Posted: Feb 18 2012 at 10:07am
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Dear Mindy,
Best of luck on all your work, surgery and all that is coming at you right now. The 3 week crud is for real. I went to the doctor yesterday, after fighting it for almost 3 weeks. I'm now on amoxicillin and some good cough syrup w/codeine. Us girls who've had TNBC get a bit antsy when the cough begins to control our lives. Stay healthy Mindy and God Bless, Lillie ------------- Dx 6/06 age 65,IDC-TNBC Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED |
Posted By: 123Donna
Date Posted: Feb 18 2012 at 10:27am
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Mindy, I hope these next few weeks fly by for you. I was very anxious before my surgery so maybe staying busy will help you. It's so difficult to stay away from these flying germs this time of the year. You are such an inspiration to all of us and we love your posts. Hugs, Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: Grateful for today
Date Posted: Feb 20 2012 at 12:41am
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Mindy,
No small achievement to finish the final and 6th round of FEC. You did it. I had my surgery (unilateral mastectomy) 4 weeks after my last chemo dose...... so it wasn't 3 weeks but close to 3 weeks. Some thoughts on surgery............... Pick and choose what seems helpful. Disregard the rest. Call your surgeon's office about how to get a both arm measurement before surgery. Some places use a tape measure. Some use a perometer. Some physical therapy departments and some vascular departments do the arm measurements. Maybe...hopefully your surgeon's office already has a plan for this. Reason for pre-surgery arm measurements: Baseline to have in case there is a question of swelling/lymphedema in the future. (of course, you will not get lymphedema, but good to have as a baseline) Many do not have this done.......so if not possible to do, don't worry.....but worth asking about.......either locally or surgery facility. Think about your "healing cave". When you get home, where will you spend time? Do you have a recliner? If not, is it possible you can borrow one? Some people have suggested that a "recliner" is almost a must for s/p double mastectomy. If not a recliner, can you adapt a chair with pillows etc for easing getting into and out of? Plan on what to have nearby in advance.....helpful things as well as "healing" things. Accept ALL help offered esp. the first week. One can manage by oneself if that is the only option. Any help makes the recovery so much easier. Also you can always cancel any planned help...........you are in charge of your recovery plan. Make list of what you will bring to hospital on surgery day. Pack bag before last minute. Pack chap stick for dry lips. Get Bath wipes (optional but a big help) from drug store. (Not baby or hand wipes....personal bath wipes) May be helpful the first few days instead of washcloth/towel/soap. Food in house that you think you would like after surgery. Have some bland, easy to digest things (just in case). Have favorite beverages. Check that you will be able to get things safely at home after surgery. Question put the frequently used things lower. So, when your help leaves, you are all set. You may get your arm range of motion back quickly but until the drains are out, many have some restrictions regarding reaching overhead. Check with your surgeon's nurse re; best way they recommend to manage the drains after mastectomy. Some places have a belt with pockets. Some places advise a camisole with drain pockets. Just in case you have a rich relative or friend or are due for a special gift from yourself consider.......the Jacki (jacket) costs around $124 plus postage. Link: http://www.thejacki.com/index.htm - http://www.thejacki.com/index.htm NOTE: Doubt if any cancer center or hospitals provide this "free" to patients but would suggest one checks before getting one. I did not get one. Appears those who do, find the Jacki helpful. Your surgeon or on your pre-op visit, it will be explained about the drains connected with a mastectomy......care for them.....time varies how long they are in....... etc. If no one has mentioned post op drains, don't be concerned. You will be given all the info you need. If you find mind body techniques helpful....and/or visualization and relaxation type CD'ss, would suggest you look into: Peggy Huddleston's CD and book. Prepare for surgery: Heal Faster. http://www.healfaster.com/ - http://www.healfaster.com/ If you plan to get either the book or the CD, I would suggest getting the CD. It's best to get both, but if you gets only one, get the CD. The CD does suggest that one completes the page in Peggy’s book for: Healing statements for surgery (page 257) and to make copies to bring on surgery day. You may be able to borrow the book from a library and copy page 257. I used the book and CD. Found them very helpful. I figured if they didn't help at least they couldn't hurt. See the TNBC thread: http://forum.tnbcfoundation.org/the-after-surgery-tips_topic3104.html - http://forum.tnbcfoundation.org/the-after-surgery-tips_topic3104.html Please post if you have any questions on anything I have said. With caring and positive thoughts, Grateful for today.........Judy |
Posted By: Grateful for today
Date Posted: Feb 23 2012 at 12:43am
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Hi Mindy,
Think you said you would be on production shoots this week. Be good and gentle with yourself......take care of yourself. Just wanted to send caring and positive thoughts to you during this busy week, Grateful for today............Judy |
Posted By: LRM216
Date Posted: Feb 23 2012 at 9:35am
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Keep as busy as possible until the 5th! We are all here for you and will be hovering over you on the day of surgery, even if only in thoughts and spirit.
Hugs,
Linda ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: Grateful for today
Date Posted: Feb 26 2012 at 10:51pm
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Hi Mindy,
Sending continued caring and positive thoughts. If you have any questions on the above Feb 20 post, just post and will try to answer. Grateful for today..........Judy |
Posted By: mindy555
Date Posted: Feb 27 2012 at 12:04am
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Hey Judy! I hadn't gotten around to posting here due to working long hours. On the SS forum tonight I think someone needed to duct tape my mouth however. Hey, just making up for lost time. I'll have some time tomorrow and probably do have questions. My surgeon is very TN savvy, so I'm confident in her skill and what to look for with TN and metaplasia, the answers she's given me to my multitude of questions and the accuracy of pathology at MDA. But, the experience of those who have been through it is most valuable of all. Thank you for hanging with me through this and will write with any questions tomorrow or the weekend since I'm taking my computer. I leave for MDA Tuesday to make my first early AM Wednesday appointment. I'll have a bunch of pre-op tests Wed-Fri, a free weekend besides picking up my daughter and son from the airport, then surgery Monday the 5th. Thanks again Judy. You're always extremely helpful and I appreciate you so much! Hugs, Mindy ------------- Dx July 2011 56 yo Stage I IDC,TN,Grade 3 Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia Daughter also BRCA1+ Mass grew on Taxol FEC 6x better BMX 3/19/12 pCR NED BSO 6/2012 |
Posted By: mindy555
Date Posted: Feb 27 2012 at 12:10am
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Dear Sweet Linda, I love the thought of you all hovering over me in thought and spirit. You sure know how to make a girl feel blessed and loved. Much love, Mindy ------------- Dx July 2011 56 yo Stage I IDC,TN,Grade 3 Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia Daughter also BRCA1+ Mass grew on Taxol FEC 6x better BMX 3/19/12 pCR NED BSO 6/2012 |
Posted By: mindy555
Date Posted: Feb 27 2012 at 12:26am
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SandraB- Your thoughts mean so much to me. Thank you, thank you for your good wishes. You're such a sweetheart. I'm wishing YOU all the best!!! Donna- I've crammed a month's worth of work in a very short time. For the last few weeks I haven't even had time to think about upcoming surgery. It's actually been good, though I'm worn slick. I notice if I get up too fast I feel like I'll black out. It hasn't stopped me since I'm self employed and have no one to delegate any of the work. (not to mention I'm a control freak and it's my reputation & name on the line). What's funny is this heavy work load with immediate deadlines happens almost always before I'm leaving town for more than a long weekend. Unfortunately the reward of my work isn't followed by a luxury cruise or relaxation on the white sands of the Caribbean ..  ha!I cleaned house as best I could Saturday. The thought of coming home after surgery to something other than very clean and de-cluttered was enough to motivate even though I had little energy. Thanks for thinking of me Will keep everyone posted. Lots of hugs & love being sent your way, Donna.Lillie- so glad you finally kicked the crud. I have a slight cold, but nothing horrible. Hope you had an enjoyable get-away. Your blessings and thoughts are so appreciated, dear lady. Sending you lots of love, too. Blair- You've been such a good friend. My kindred pal who also sheds tears when she prays. Let me tell you, the faucet has been turned on more times than not these last several months. I'm praying your Mom has an uneventful surgery with a speedy recovery. Is your Mom's surgery on the 7th or is she there on that date for pre-op? Thanks to all of you for your caring support. Beyond a world of helpful tips and information, there's no place as comforting as the loving family who make up this forum-- the place I call my cyber home. Very best wishes and love to all, Mindy ------------- Dx July 2011 56 yo Stage I IDC,TN,Grade 3 Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia Daughter also BRCA1+ Mass grew on Taxol FEC 6x better BMX 3/19/12 pCR NED BSO 6/2012 |
Posted By: debB
Date Posted: Feb 28 2012 at 7:39am
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Dear Mindy,
Safe travels today! We will all be thinking about you and praying for you on Monday!! Deb ------------- Dx 4/29/11, 46 yrs old, 3.9 cm tumor, Stg 2 Grade 3 chemo 4 rounds DD AC, 12 weekly taxol, finish. Lumpectomy, 2mm residual tumor. 37 rounds rads completed. Cisplatin/PARP trial |
Posted By: LRM216
Date Posted: Feb 28 2012 at 8:34am
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Sending you off with love, hugs and all good wishes for a successful surgery and quick and uneventful recovery.
Linda ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: cheeks
Date Posted: Feb 28 2012 at 8:44am
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Mindy, A safe road trip for you and your family. Mom will be there on the 7th for an MRI to see if the tumors are smaller and hopefully since she has had a good response to the chemo the surgery will follow within the week. Blair  ------------- Lump found 11/08 DX: 2/09 @52 TNBC L. Mast. 3/26/09, SN-, BRCA-, 4.5 cm (post surgical)T2NOMO Chemo: 4/09-10/09 Taxol x 12, A/C x 4, No rad.No recon. NED 1/17. New Primary right breast TN, 2/2018. |
Posted By: LRM216
Date Posted: Feb 28 2012 at 8:52am
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Blair:
Good luck to you and Mom next week too! Keep us posted.
------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: cheeks
Date Posted: Feb 28 2012 at 9:17am
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Linda, Thank you. I don't think i posted it here but her counts on the CA 125 had gone down after 2 of her 3 chemo's from 586 to 28 so hopefully the tumors have shrunk a good bit and are operable now. One of my sister's is driving her to Mayo in Jacksonville where she will remain until after surgery - at least that is her surgeon's plan for now. Blair ------------- Lump found 11/08 DX: 2/09 @52 TNBC L. Mast. 3/26/09, SN-, BRCA-, 4.5 cm (post surgical)T2NOMO Chemo: 4/09-10/09 Taxol x 12, A/C x 4, No rad.No recon. NED 1/17. New Primary right breast TN, 2/2018. |
Posted By: mindy555
Date Posted: Mar 03 2012 at 3:34pm
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Hi all my lovely sisters and co-survivors, I wanted to let you know this surgery WAS too soon after chemo. I had an ECG, blood work and ultrasound before seeing my surgeon. My white blood count was way too low to even think about surgery. At the time of rescheduling initially this was a real concern of mine, as you know. Anyway, we drove the 7 hours back on Thursday. I was beat and not interested in anything but resting. I've been a little blue, but would never want to proceed with surgery under the circumstances.. I told the surgeon's nurse I'd be getting blood drawn at home and faxed to them before driving back for pretesting. The new surgery date is March 19th. Thanks for all your prayers and good wishes for tomorrow, but I'm home now and once again in holding pattern.  ------------- Dx July 2011 56 yo Stage I IDC,TN,Grade 3 Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia Daughter also BRCA1+ Mass grew on Taxol FEC 6x better BMX 3/19/12 pCR NED BSO 6/2012 |
Posted By: Lillie
Date Posted: Mar 03 2012 at 3:43pm
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Dear Mindy,
So sorry you had to travel so much just to learn that your WBC was too low for surgery. I will be praying for the counts to improve between now and the 19th. I hope you pull out of the 'blues' soon, and know that we all are thinking about and loving you through the days ahead. God Bless, Lillie ------------- Dx 6/06 age 65,IDC-TNBC Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED |
Posted By: Lee21
Date Posted: Mar 03 2012 at 4:43pm
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Mindy That's a real bummer and I'm sure a huge let down -- but know that you'll be much stronger in a couple weeks to go through surgery. A thought: did you get a MRI post chemo to assess status? You said you had an ultrasound, was that a breast US? Lee ------------- 12/9/11 @59,IDC,grade3, TNBC,3cm(MRI),SLNB0,stage IIA, BRCA1 variant 1/30/12 DD AC-T, 6/7/12 Lumpectomy, ypT1b(0.8 cm), 7/9/12 Rads x 30 11/9/12, clinical trial cisplatin/rucaparib, cisplatin-only arm |
Posted By: mindy555
Date Posted: Mar 03 2012 at 5:00pm
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No MRI. The only MRI I've had was unilateral pre-chemo. I've had right breast ultrasounds to assist in determining how the mass is reacting to chemo throughout treatment. This last breast ultrasound showed further shrinkage. My white blood count was low due to being soon after 6th and last FEC treatment. I've had no shots during treatment to keep counts up and made it through treatment, thankfully. Thanks for your thoughts, Lee. Mindy God Bless You, dearest Lillie! ------------- Dx July 2011 56 yo Stage I IDC,TN,Grade 3 Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia Daughter also BRCA1+ Mass grew on Taxol FEC 6x better BMX 3/19/12 pCR NED BSO 6/2012 |
Posted By: BamaRachel
Date Posted: Mar 03 2012 at 5:10pm
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I'm so sorry to hear about the delay, Mindy. Take good care of yourself between now and the 19th. We will be praying for you!!
------------- DX 7/5/11, TN Invas; Lump w/clear marg., 7/21/11; Stage 2A. Grade 3, 2.6 c; 0/6 nodes; TX 8/22/11 4DD E/C; 4Taxotere; Chemo ended 1/3/12; 33 Radiation Treatments, ended 3/15/12. |
Posted By: mindy555
Date Posted: Mar 03 2012 at 5:20pm
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Aww, thanks sweet Rachel. Your prayers mean so much. Hugs, Mindy ------------- Dx July 2011 56 yo Stage I IDC,TN,Grade 3 Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia Daughter also BRCA1+ Mass grew on Taxol FEC 6x better BMX 3/19/12 pCR NED BSO 6/2012 |
Posted By: 123Donna
Date Posted: Mar 03 2012 at 6:50pm
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Mindy, I know you must be so disappointed, but you'll be stronger in a few weeks and better able to tackle surgery. Can they give you Neulasta or Neupogen to help with your wbc? When I finished chemo last spring, my wbc was really low. Too low for the last treatment and I had to stop. They gave me one neupogen shot and it helped boost my counts. Rest and take care of yourself sweetie. We love you. Hugs, Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: mindy555
Date Posted: Mar 04 2012 at 1:10am
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You're always a gem, Donna. I got the feeling from my MDA surgeon that she wanted the wbc to come up on its own. Never have I been offered a neupogen shot both at home or at MDA. I proceeded with the last 2 rounds of FEC with lower than desired wbcs. I think I'll do the 10 day blood test as I did while still on chemo .. then again before leaving for MDA in a few weeks. Sending much love.. ((( Donna )))) ------------- Dx July 2011 56 yo Stage I IDC,TN,Grade 3 Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia Daughter also BRCA1+ Mass grew on Taxol FEC 6x better BMX 3/19/12 pCR NED BSO 6/2012 |
Posted By: LRM216
Date Posted: Mar 04 2012 at 8:29am
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Mindy:
While I can well understand your feelings at this time, and especially after the long trip there and back, I am actually relieved that they are waiting a bit longer. I purposely did not post this in your earlier threads as I did not want to alarm you right before your surgery.
I had a very large lumpectomy from the right side of my breast where it meets the chest straight over to nipple, above and around nipple and then mid breast of left side over to the sternum. It was a lulu of an incision called a "bat wing." Two weeks after this, it all had to be reopened as two margins were not clean. The re-excision was even more painful to heal from than the original. My chemo was scheduled for 5 weeks after the first surgery.
At my onc visit I mentioned that although most of the scab had worn off, I did have a small section where the incision connected to the nipple (very tiny area) that was still scabbed and raw pink flesh could be seen underneath it. Three doctors all examined it and each cleared me for the chemo, the onc, my vascular surgeon who put in the port cleared me, and the breast surgeon. Had my first round of adriamycin two days later. Two days after that I was in the hospital with cellulitis of my breast, 102 fever, and neutropenia. I was hospitalized for a full week, pumped full of heavy duty IV's of two different types of antibiotics, could not get out of bed to do anything - had to be masked whenever a doctor or nurse entered, as did they, and only my mother could see me (all masked up as well) - no flowers, limited diet, etc. I got through it without any further complications, but had to continue infusions (since I was still on chemo - this was only my first of 8) - every a.m. - 7 days a week - for 6 very long weeks. It was a nightmare. It also delayed my second round of chemo from two to three weeks, which also scared me. I also had to be on full antibiotics through each remaining chemo "just in case."
Point being, I am glad they all responded as they did with your low counts. While I have full faith and much respect and love for all my doctors - my chemo obviously should not have been started due to my incision not being 100% healed. I don't blame any of them, but it sure was a situation I would never again want to go through - and I am most grateful that you won't have to either.
The extra few weeks will ensure that your body will better handle the surgery, with less reason for any complications as it heals from the assualt of surgery on top of an immune system whacked by the chemo, such as mine was. Good luck and keep your chin up! We will all be waiting right along side of you.
Hugs,
Linda
------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: LRM216
Date Posted: Mar 04 2012 at 8:36am
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Lol! Sorry for the long diatribe I wrote when I guess I could have just summed it all up by saying - "better to be safe, than sorry"! ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: Charlene
Date Posted: Mar 04 2012 at 11:31am
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Mindy,
Just want you to know that you're in my prayers! I hope that this time will pass quickly and that your blood counts will totally recover from the chemo.
Blessings,
Charlene ------------- DX 3/10 @59 ILC/TNBC Stage 1, Grade 2, Multifocal; Lumpectomy/re-excision SNB 0/4 nodes, BRCA-; Taxotere/Cytoxan X4, 30 rads 3/14:NED |
Posted By: Lee21
Date Posted: Mar 04 2012 at 11:50am
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Linda -- that was a terrible ordeal and I am glad you pulled through. If you don't mind my asking, from your signature you had a small tumor -- why did they decide to do what sounded like more than just a simple lumpectomy? My ultrasound said my tumor was small 1.7cm but because of nipple discharge the surgeon wanted to do a central lumpectomy. I had a 2nd opinion elsewhere and they wanted a MRI as part of the evaluation. The MRI showed my tumor to be quite a bit bigger, 3cm (even bigger if you consider the volume of tumor mass). My 2nd opinion recommended neoadjuvant chemo because the planned lumpectomy would be disfiguring for a small breasted person. So I wonder how many of those instances when the planned surgery didn't work out turned out to be inadequate pre-op evaluation. Lee ------------- 12/9/11 @59,IDC,grade3, TNBC,3cm(MRI),SLNB0,stage IIA, BRCA1 variant 1/30/12 DD AC-T, 6/7/12 Lumpectomy, ypT1b(0.8 cm), 7/9/12 Rads x 30 11/9/12, clinical trial cisplatin/rucaparib, cisplatin-only arm |
Posted By: LRM216
Date Posted: Mar 04 2012 at 12:31pm
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No, Lee, the problem I had was that my 1.2 cm nodule was squarely in the middle of my breast 5 cms below the nipple. I am full breasted so my surgeon decided that this would be the best way to go to insure getting it all and any DCIS. I did not have a lot of DCIS - less than 25% as my path reads, but there was a scant amount in two margins so the re-excision was needed, and got clear margins after that surgery. If not, the breast would have been removed. I had a breast MRI prior to surgery as well. My BS is in a group of very esteemed breast surgeons (all women) that are very busy women here in the Atlanta area. Women come from all over to have their surgery with them. I still see her every 6 months for mammos - and a MRI every year. It's absolutely amazing, but even with that large an incision - I have almost no trace whatsoever of the incision scar. It was a rough time right after that 1st chemo, and I sure wouldn't want to see anyone else go through it . I felt that tiny bit of incision scab left should have put the chemo off another week or so, but the pro's felt it was fine. Ummmmm.........
Linda ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: Lee21
Date Posted: Mar 04 2012 at 12:46pm
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Linda, Thank you for the clarification. Sounds like you have a really good relationship with your BC surgeon. Just blame it on my ever present questioning nature (which has already stressed my relationship with my med onc). I started chemo less than 2 weeks after my SLNB -- the SNLB obviously is a much smaller surgical procedure although I was a bit concerned but I did fine. Lee ------------- 12/9/11 @59,IDC,grade3, TNBC,3cm(MRI),SLNB0,stage IIA, BRCA1 variant 1/30/12 DD AC-T, 6/7/12 Lumpectomy, ypT1b(0.8 cm), 7/9/12 Rads x 30 11/9/12, clinical trial cisplatin/rucaparib, cisplatin-only arm |
Posted By: debB
Date Posted: Mar 04 2012 at 7:13pm
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Oh Mindy!
I am so sorry for the disappointing turn of events. It has to be hard when you are all geared up to go. Hopefully you can use the next few weeks to take a breather and get some rest. We all know that you will be physically much better in a few weeks to face the road to recovery. Stay strong! Hugs! Deb ------------- Dx 4/29/11, 46 yrs old, 3.9 cm tumor, Stg 2 Grade 3 chemo 4 rounds DD AC, 12 weekly taxol, finish. Lumpectomy, 2mm residual tumor. 37 rounds rads completed. Cisplatin/PARP trial |
Posted By: Grateful for today
Date Posted: Mar 08 2012 at 11:33pm
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Hi Mindy,
Sorry that you had all the anticipation, anxiety, rush to get things done and a looong drive only to have your surgery date changed. Glad you have extra time to get yourself ready for your surgery part of your treatment plan. Glad you will have even more good wishes. Glad that you will now have additional confidence in your intuitive knowledge of your body. You said from the start.....March 5 was too soon. Some thoughts on surgery............... Pick and choose what seems helpful. Disregard the rest. Call your surgeon's office about how to get a both arm measurement before surgery. Some places use a tape measure. Some use a perometer. Some physical therapy departments and some vascular departments do the arm measurements. Maybe...hopefully your surgeon's office already has a plan for this. Maybe this was already done on your recent trip. Or maybe you can have measurements done locally. Reason for pre-surgery arm measurements: Baseline to have in case there is a question of swelling or lymphedema in the future. (of course, most women will not get lymphedema, but good to have as a baseline) Risks for lymphedema: ALND/sentinel node biopsy (less risk than ALND) /mastectomy/ had surgery in the armpit before now/radiation to the lymph node areas after lymph node surgery Many do not have this done.......so if not possible to do, don't worry.....but worth asking about.......either locally or surgery facility. If above not done, with body facing the wall, mark on a wall or closet door etc how high both arms can reach above straight up........this way you know what you could do before surgery......not everyone can reach straight up to a full 180 degrees (flexion) before surgery. Think about your "healing cave". When you get home, where will you spend time? Do you have a recliner? If not, is it possible you can borrow one? Some people have suggested that a "recliner" is almost a must for s/p double mastectomy. If not a recliner, can you adapt a chair with pillows etc for easing getting into and out of? Plan on what to have nearby in advance.....helpful things as well as "healing" things. Accept ALL help offered esp. the first week. One may be able to manage by oneself if that is the only option. Any help makes the recovery so much easier. Also you can always cancel any planned help...........you are in charge of your recovery plan. Make list of what you will bring to hospital on surgery day. Pack bag before last minute. Pack chap stick for dry lips. Get Bath wipes (optional but a big help) from drug store. (Not baby or hand wipes....personal bath wipes) May be helpful the first few days instead of washcloth/towel/soap. Go thru your clothes and find a few really easy to get into tops for the first week or so. Depending on weather, zippered light fleece tops might be good. Anything zippered or real full and roomy. If you have a silk pajama top or robe, try wearing. Silk pajamas (from the bottom of the drawer. felt so good next to the skin to sleep in. (Disregard if hot flashes are an issue). Food in house that you think you would like after surgery. Have some bland, easy to digest things (just in case). Have favorite beverages. Check that you will be able to get things safely at home after surgery. Question put the frequently used things lower. So, when your help leaves, you are all set. You may get your arm range of motion back quickly but until the drains are out, many have some restrictions regarding reaching overhead. Check with your surgeon's nurse re; best way they recommend to manage the drains after mastectomy. Some places have a belt with pockets. Some places advise a camisole with drain pockets. Just in case you have a rich relative or friend or are due for a special gift from yourself consider.......the Jacki (jacket) costs around $124 plus postage. Link: http://www.thejacki.com/index.htm - http://www.thejacki.com/index.htm NOTE: Doubt if any cancer center or hospitals provide this "free" to patients but would suggest one checks before getting one. I did not get one. Appears those who do, find the Jacki helpful. Your surgeon or on your pre-op visit, it will be explained about the drains connected with a mastectomy......care for them.....time varies how long they are in....... etc. If no one has mentioned post op drains, don't be concerned. You will be given all the info you need. If you find mind body techniques helpful....and/or visualization and relaxation type CD'ss, would suggest you consider looking into: Peggy Huddleston's CD and book. Prepare for surgery: Heal Faster. http://www.healfaster.com/ - http://www.healfaster.com/ If you plan to get either the book or the CD, I would suggest getting the CD. It's best to get both, but if you get only one, get the CD. The CD does suggest that one completes the page in Peggy’s book for: Healing statements for surgery (page 257) and to make copies to bring on surgery day. You may be able to borrow the book from a library and copy page 257. I used the book and CD. Found them very helpful. I figured if they didn't help at least they couldn't hurt. See the TNBC thread: http://forum.tnbcfoundation.org/the-after-surgery-tips_topic3104.html - http://forum.tnbcfoundation.org/the-after-surgery-tips_topic3104.html Please post if you have any questions on anything I have said. With caring and positive and quick recovery thoughs, Grateful for today.......Judy ---------------------------------------------- Mindy, Addendum on 3/24/12. At some point post-op, ask your MD for a physical therapy eval. Many physical therapists feel everyone who has had a mastectomy (with or without reconstruction) would benefit from a physical therapy evaluation. see PT info on link: http://breastfree.org/viewer.php?num=7 - http://breastfree.org/viewer.php?num=7 Judy ----------------------------------------- Linda, Thank goodness everything finally turned out OK for you. What an experience to have gone through. With caring and positive thoughts, Grateful for today..........Judy edited to make a link live |
Posted By: mindy555
Date Posted: Mar 09 2012 at 4:54am
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Dear Linda- Not a diatribe, dear heart. I'm glad you told me what you went through. I'm just so sorry you had to live that nightmare.. how dreadfully awful for you. Forgive my ignorance. Can they not determine a clean margin before they close up the incision? I know I've heard others say they had to go back because they didn't get a clean margin the 1st time. I recently read of a lady who went back 3 times. Linda, I can't imagine with such a large incision having to be reopened for a second surgery. Bless your heart. You really went though so much. It doesn't surprise me the second surgery was a lot more painful. Then starting chemo so soon after.. and becoming terribly ill.. That all truly SUX. Don't ever worry about upsetting me. I do need to take the time to rethink some questions and get my ducks in a row. This last trip I was so busy before I left. I was literally completing some business details about 10 minutes before I left which got us into Houston after 11 PM. Right now I think I'm in "shut-down-brain-mode", not giving enough thought to this surgery. Maybe a form of denial which keeps me comfortably numb (gee, thanks Pink Floyd!) My biggest concern at the moment is- what if my wbcs are still too low when I test here next Wed? I do want to have this behind me.. at some point...lol. I knew in my heart it was too early. I think my surgeon was slightly taken back when I saw her. With the few days they're "in office" it's quite possible she wasn't aware it was so early after the last chemo cycle. I dealt with her PA who probably quickly rearranged the appointment because I raised such a ruckus about it being too far out- for fear of undoing what little progress I made with chemo. Now who is on a rambling streak? And with insomnia to boot. Ahem.. it's almost 4 am here. That means it's 9 days, 2 hrs. and 4 minutes before I need to check in for surgery. But who's counting? You're a dear person Linda. I'm glad you shared with me. Love, Mindy I DO want to answer Deb, Judy and any others I've missed. I think sleep is in order first. ------------- Dx July 2011 56 yo Stage I IDC,TN,Grade 3 Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia Daughter also BRCA1+ Mass grew on Taxol FEC 6x better BMX 3/19/12 pCR NED BSO 6/2012 |
Posted By: mindy555
Date Posted: Mar 10 2012 at 6:54pm
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Dear Charlene, Thanks for your kind words and support. You're a blessing to this forum. I'm extremely grateful to each of you who have supported me through this waiting period. Deb- I dropped you an email. Thanks as always for your friendship and support. While this week seems like the longest, unproductive week of my life.. there's much to do next week. First on the list is to reach my health providers this calendar year and get my medical deductible squared away to satisfy my insurance. I need to gain clarification on their letter regarding review of my reconstructive surgery - IF that even happens at the time of surgery. Since my mass appears to be so close to the skin surface, the reconstructive surgeon may need to make an incision through the skin to obtain a clean margin. This will need to heal first. As you know I'm having a skin sparing bilateral MX. Reconstruction pales in comparison to anything which could jeopardize the best surgical outcome. I have much faith in my TN savvy surgical team. We've covered all these bases. I'll receive antibiotics for surgery and pain meds after. The follow-up exam hasn't changed online yet, though I know from the last planned surgery it will fall a little over 3 weeks post-op. Judy- dear, wonderful Judy.. How can I thank you enough for taking so much of your time to provide excellent post-op tips along with questions to ask my surgeon. I do know I'll have 2 drains on each side. I've tried to prepare for post-op in almost every way. The only thing I'm missing is a recliner. I'll look into renting or buying one next week. I've heard from Donna, you and others that it's the most comfortable way to rest and get up and down after this type of surgery. You've helped more than you know. You brought up a few things that I wasn't aware of, and elaborated so helpfully on other points. Your information and support has been invaluable. Thank you and may many blessings be yours Judy!!! A round of big hugs to all my sisters Without your support this time would have been a lot more stressful & difficult for me. My love, gratitude and best wishes to you all, Mindy ------------- Dx July 2011 56 yo Stage I IDC,TN,Grade 3 Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia Daughter also BRCA1+ Mass grew on Taxol FEC 6x better BMX 3/19/12 pCR NED BSO 6/2012 |
Posted By: debB
Date Posted: Mar 18 2012 at 10:13pm
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Dearest Mindy,
We are all hoping and praying that all is smooth sailing for surgery tomorrow. I sincerely hope that the bloodwork all got sorted out and everything is going ahead as scheduled. I pray that all goes smoothly and you will soon be on the road to recovery!! Many hugs coming your way, Deb ------------- Dx 4/29/11, 46 yrs old, 3.9 cm tumor, Stg 2 Grade 3 chemo 4 rounds DD AC, 12 weekly taxol, finish. Lumpectomy, 2mm residual tumor. 37 rounds rads completed. Cisplatin/PARP trial |
Posted By: Grateful for today
Date Posted: Mar 18 2012 at 10:53pm
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Dear MIndy,
Sending tons of good wishes your way for surgery and the best and quickest of recoveries. Love and lots and lots of cyber hugs to you, Mindy. Grateful for today...............Judy |
Posted By: 123Donna
Date Posted: Mar 18 2012 at 11:41pm
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Mindy, Thinking of you on this eve prior to your surgery tomorrow. Will be saying a special prayer for you. Hugs, Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: turtle
Date Posted: Mar 19 2012 at 6:36am
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Mindy, Wishing you the best of luck with your surgery today! We are all in your corner pulling for you!! ------------- DX IDC TNBC 1/15/12 @ 46; MRI 2.4cm gr3 BRCA2+ 6174delT; LMX 1/31/12 2.5cm, pT2pNO(i)pMX, lymphovascular invasion present; 2/20/12 TAC X 6; 7/2/12 Rad X 25; 9/27/2012 2nd mastectomy & BSO surgery |
Posted By: Charlene
Date Posted: Mar 19 2012 at 7:23am
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Mindy,
Thinking of you and praying for your surgery to go well and for your recovery to be smooth.
Charlene ------------- DX 3/10 @59 ILC/TNBC Stage 1, Grade 2, Multifocal; Lumpectomy/re-excision SNB 0/4 nodes, BRCA-; Taxotere/Cytoxan X4, 30 rads 3/14:NED |
Posted By: Natalie
Date Posted: Mar 19 2012 at 8:42am
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Mindy,
I have read many of your posts, I believe this is my first post to you. I see an uneventful and smooth surgery and recovery for you. Just feel strong about this one.
Sincerely,
Natalie ------------- TNBC stage1 size 1.8, grade3 no nodes 4/11 Lumpectomy 5/11 4cycles DD A/C 4cycles DD Taxol. Double Mastectomy 12/11 BRCA all neg |
Posted By: Genie
Date Posted: Mar 19 2012 at 8:42am
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Dear Mindy, You are in my thoughts and prayers today. My prayer is for the surgery to be uneventful and the recovery as pain free as possible. Hugs, Genie ------------- DX 3/10/08 at age 67, IDC. Stage 1, Grade 3, 1.5 cm. KI-67 99% at MX . Bilateral mastectomy 4/1/08 Node-, BRCA 1/2-,BARD1+, TX:Cytoxan/Taxotere x4,3 in family with TNBC |
Posted By: Lee21
Date Posted: Mar 19 2012 at 8:58am
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Mindy
Good luck to you and pulling for the best outcome possible - Lee ------------- 12/9/11 @59,IDC,grade3, TNBC,3cm(MRI),SLNB0,stage IIA, BRCA1 variant 1/30/12 DD AC-T, 6/7/12 Lumpectomy, ypT1b(0.8 cm), 7/9/12 Rads x 30 11/9/12, clinical trial cisplatin/rucaparib, cisplatin-only arm |
Posted By: Lillie
Date Posted: Mar 19 2012 at 12:42pm
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Dear Mindy,
I am praying for total success with your surgery and a good recovery. God Bless, Lillie ------------- Dx 6/06 age 65,IDC-TNBC Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED |
Posted By: nmunoz
Date Posted: Mar 19 2012 at 12:43pm
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Thinking about you Mindy and sending positive thoughts your way.
Hugs, Natalia ------------- Natalia, 38 years Dx TNBC 10/22/08, BRCA1+ Double Mx 11/20/08 with Recon. 3/37 nodes Rads 7 weeks done 8/09 ACx4 every 2 weeks and Tx12 weeks. Avastin e/3 weeksx10 (Clinical Trial) Done Dec/09 |
Posted By: LRM216
Date Posted: Mar 19 2012 at 2:28pm
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Mindy,
My thoughts and prayers remain with you. I hope for a very successful surgery (which it will be), and a totally easy recovery.
Hugs,
Linda ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: Grateful for today
Date Posted: Mar 20 2012 at 12:07am
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Mindy,
The prior posts are our pre-surgery wishes. Now, for some post surgery wishes. Post surgery wishes that all went very well.......all meds working just as they should...... wishes that you will be feeling better every day. Lots of love and cyber hugs, Grateful for today............Judy |
Posted By: LRM216
Date Posted: Mar 20 2012 at 8:41am
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Mindy:
From this point out - may each day just keep getting better and easier for you.
Love,
Linda ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: cheeks
Date Posted: Mar 20 2012 at 8:52am
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Mindy, Love you, Blair ------------- Lump found 11/08 DX: 2/09 @52 TNBC L. Mast. 3/26/09, SN-, BRCA-, 4.5 cm (post surgical)T2NOMO Chemo: 4/09-10/09 Taxol x 12, A/C x 4, No rad.No recon. NED 1/17. New Primary right breast TN, 2/2018. |
Posted By: 123Donna
Date Posted: Mar 20 2012 at 9:12am
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Mindy, Sending healing thoughts your way. Hugs, Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: christina1961
Date Posted: Mar 20 2012 at 5:42pm
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Mindy,
Thinking of you and sending positive thoughts and energy your way for quick healing!
Love,
Christina ------------- 2.5 cm TNBC, BRCA-, diag. 2/11, neoadj chemotherapy, uni MX, y2cm,2/16 nodes, RCBII, tumor retested 5-10%ER+,PR-,Her2-, rads, clin trial eribulin 10/11-2/12, tamox. |
Posted By: mindy555
Date Posted: Mar 21 2012 at 6:16pm
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WOW! You ALL are simply the BEST!!! I'm touched, humbled (and blown away) by all of your awesome good wishes!! It shouldn't surprise me one bit.. but I opened this thread and couldn't believe all of you posting such wonderful positive thoughts for surgery!... You've always been the best support there is. My heartfelt gratefulness for each of you. "Thank you" really doesn't seem adequate. Friday I finished up pre-op testing with a lymphoscintigraphy. I'm sure most of you are familiar. For those who aren't, it's a method used to check the lymph system for disease w/ a radioactive substance that flows through the lymph ducts and can be taken up by lymph nodes. In my case they injected it into the breast. A scanner is used to follow the movement of the substance on a computer screen. Lymphoscintigraphy is used to find the sentinel lymph node- the first node to receive lymph from a tumor- in my case were removed for dissection on both left and right sides to be checked for tumor cells. Normally my surgeon said she wouldn't remove the left sentinel, though one of my early MRIs at diagnoses was inconclusive. My kids arrived Sunday. We enjoyed some yummy seafood.. a laughter-filled time over dinner, then roamed around Houston hitting a few fun shops they wanted to check out. Surgery went extremely well! The scheduled time turned out to be about 3 hours later.. only because my surgeon had a prior procedure which took longer than anticipated. I was wheeled into surgery at around 1:30 and came out at about 6:30. Both surgeons at different times sat down with Randy, my daughter and son to give them the full scoop. They said I remained totally stable throughout- then went over the results of the initial frozen pathology. Absolute pathology will be in around 10 days from surgery... give or take a few days. They also told my family I could go home as early as the following day if I felt up to it. Due to Tuesday's weather my kid's flight was delayed, so we stuck around to make sure they got off okay... then hit the road in less than 24 hours after the beginning of surgery yesterday... after our tutorial on how to care for drains. Ah, the drains!  lol.From frozen preliminary path nodes were negative... they obtained a clean margin and both surgeons seemed very pleased. We were all on the same page that expander reconstruction would only happen IF the margin was adequate as my residual was fairly close to the skin surface. I was fully aware I'd have an incision at the tumor site otherwise, which would require healing. I can't sing the praises loud enough for both of these brilliant women- my oncology surgeon who our wonderful Steve referred.... and the reconstructive surgeon who is also brilliant, warm and communicative. I'm beyond grateful I had an exceptionally skilled surgical team. And, most importantly.. backed with abundant positive thoughts & prayers! Donna- I think in the past you've referred to the drains as "pesky"... I'd have take that up a notch... or 5 with a few curse words thrown in.. ha! They're very important- so I'm keeping the affirmation of "temporary" forefront in my mind. Honestly, the drains and the tightness of the surgical bra are the most irritating part of post op thus far. Judy- All of your post-op tips were SO helpful. Each of you got me through this in your own special way. You've all become and remained a huge part of my heart. I realize this is a novelette. I needed to express how much you lifted my spirits and continue to do so. YOU ALL ROCK! xxxooo Mindy ------------- Dx July 2011 56 yo Stage I IDC,TN,Grade 3 Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia Daughter also BRCA1+ Mass grew on Taxol FEC 6x better BMX 3/19/12 pCR NED BSO 6/2012 |
Posted By: K in Sugar Land
Date Posted: Mar 21 2012 at 6:24pm
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So happy this is behind you Mindy and elated at all of the good news. You my friend are the one who ROCKS! You remain in my prayers for healing and comfort. ------------- Dx IDC TNBC MDA2/11 age 51 T2N0M0 Grd 3 4.8cm BRCA- vitD22 Taxol 12wk FAC once 3 wk for 12 wk Complete chemo8/11 Tumor not seen on scans Lumpsurgery 0/4 nodes9/11 pCR 30rads done11/11 NED vitD3903/12 |
Posted By: Genie
Date Posted: Mar 21 2012 at 6:26pm
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Mindy, So thankful that the surgery is over and that there were no complications. Now I'm praying for an uneventful recuperation and a rapid removal of those darn drains. I hated mine and was so anxious to have them removed. I'm also praying that you have little or no pain. Just remember to pamper yourself a little and let others do for you! In other words this is not the time to be "Wonder Woman". Love & hugs from San Antonio, Genie ------------- DX 3/10/08 at age 67, IDC. Stage 1, Grade 3, 1.5 cm. KI-67 99% at MX . Bilateral mastectomy 4/1/08 Node-, BRCA 1/2-,BARD1+, TX:Cytoxan/Taxotere x4,3 in family with TNBC |
Posted By: LRM216
Date Posted: Mar 21 2012 at 6:28pm
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Mindy:
You sound wonderful! I am so happy all the surgery is over and behind you now - with the exception of the drains, which I hope you are rid of shortly. Rest well and take special care of yourself - don't rush anything too soon. Am so very grateful all went well and that you are basking in the love of your wonderful family.
Gentle hugs to you,
Linda ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: christina1961
Date Posted: Mar 21 2012 at 6:39pm
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Great news on the lymph nodes, too! That is fantastic! I'm so glad all went well.
Love,
Christina ------------- 2.5 cm TNBC, BRCA-, diag. 2/11, neoadj chemotherapy, uni MX, y2cm,2/16 nodes, RCBII, tumor retested 5-10%ER+,PR-,Her2-, rads, clin trial eribulin 10/11-2/12, tamox. |
Posted By: 123Donna
Date Posted: Mar 21 2012 at 6:43pm
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Mindy, It sounds like the surgery went extremely well and I'm so happy for you. I hope the drive home wasn't too bad or at least the pain pills will make it feel tolerable. How many drain tubes do you have? I had 3 on each side and they were the pits. No way you can be comfortable with those things in. Take care and get plenty of rest. Love you! Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: dmwolf
Date Posted: Mar 21 2012 at 7:06pm
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Mindy, congratulations on what sounds like a very successful surgery! Negative lymph nodes is great news!! We love you, sweetie! Rest up, spend time with beloveds, eat chocolate, read, watch movies, take walks...take excellent care as you recover. love, d ------------- DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10. |
Posted By: mindy555
Date Posted: Mar 21 2012 at 7:08pm
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Donna, I have 2 drains on each side. Really large and cumbersome drains. The PITS is right! They each hold 100ccs and measure approx. 3.5" wide x 4" long. I go back a week from Friday. Randy has been wonderful helping drain and measure. much love! Mindy ------------- Dx July 2011 56 yo Stage I IDC,TN,Grade 3 Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia Daughter also BRCA1+ Mass grew on Taxol FEC 6x better BMX 3/19/12 pCR NED BSO 6/2012 |
Posted By: debB
Date Posted: Mar 21 2012 at 7:11pm
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Hey Mindy!!
SO very glad to hear that things went very well and you are feeling good. You sound like your usual perky self! I am also glad to hear negative nodes! YAY! I hope you are able to take this time to focus on yourself and healing. Take advantage and be the princess for a bit! Love, Deb ------------- Dx 4/29/11, 46 yrs old, 3.9 cm tumor, Stg 2 Grade 3 chemo 4 rounds DD AC, 12 weekly taxol, finish. Lumpectomy, 2mm residual tumor. 37 rounds rads completed. Cisplatin/PARP trial |
Posted By: Charlene
Date Posted: Mar 21 2012 at 7:14pm
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Mindy,
So good to hear from you--thanks for posting! You are in my prayers for a quick and uneventful recovery.
Charlene ------------- DX 3/10 @59 ILC/TNBC Stage 1, Grade 2, Multifocal; Lumpectomy/re-excision SNB 0/4 nodes, BRCA-; Taxotere/Cytoxan X4, 30 rads 3/14:NED |
Posted By: mindy555
Date Posted: Mar 21 2012 at 7:26pm
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Hi Denise.. Chocolate... I love the way you think! My surgeon said there's a 5-10% the actual pathology could show positive nodes. I'm staying enrolled in The-School-of-Power-of-Positive thinking for NEGATIVE however. Donna- We hit a few storms making visibility on the highway pretty scary coming home. It was a little touch 'n go being the back seat driver I 'y'am! I manged to get pretty creative with a blanket and several pillows.. I can DEFO see where a recliner would be handy! Unfortunately we don't have one. Who knows.. may rent before all is said and done. I have good mobility in my arms but am trying to use my stomach muscles to maneuver moving up and down. I made the mistake of reaching for something too high and heavy. Don't think I'll repeat that brain-trust move. ------------- Dx July 2011 56 yo Stage I IDC,TN,Grade 3 Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia Daughter also BRCA1+ Mass grew on Taxol FEC 6x better BMX 3/19/12 pCR NED BSO 6/2012 |
Posted By: 123Donna
Date Posted: Mar 21 2012 at 7:31pm
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Mindy, I thought the drains looked like grenades, just the way they were shaped. My hubby gave me a lanyard that I'd attach them to when I was able to take a shower. At first he did all the draining/milking and kept a chart on how much was drained from each tube, time of day, etc. Then he'd total them up at the end of the day so we could see how much was draining from each tube. After a while, I was able to drain the tubes myself and keep record. It was much easier than I thought it would be. Hope your's does very well and they can come out quickly! Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: Natalie
Date Posted: Mar 21 2012 at 7:50pm
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Mindy,
I am very glad you came through the surgery good. I along with everyone else pray for a smooth uneventful recovery. I also had four drains,the last one came out about 5 weeks out because it clogged and could not clear it. Now I still have fluid waiting to be absorbed. Oh well, small potatoes compared to how things can go.
You could swing the drains around like tassles....naaa don't do it. It doesn't work. LOL
All my best,
Natalie ------------- TNBC stage1 size 1.8, grade3 no nodes 4/11 Lumpectomy 5/11 4cycles DD A/C 4cycles DD Taxol. Double Mastectomy 12/11 BRCA all neg |
Posted By: Grateful for today
Date Posted: Mar 21 2012 at 8:24pm
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Mindy,
Wow! Never imagined someone writing such a great post......only 2 days after surgery! .....and after a long post op car trip! Try to follow Genie's suggestion....this is not the time to be "Wonder Woman"............. ............hmmmmm.......that may be difficult for you since you are "A Wonder Woman"! ........and "Our "Unsinkable Molly Brown"! Thanks so much for posting to let us know how well things went and how great you are doing. Please, please and please again.............rest and be good and be gentle with yourself......... it's OK if you want to read the forums........but maybe wait a bit until you get back to posting. We always say listen to your body.......and you do know how to do that so well. So, then, guess it's OK for you to listen to your body..........trying to say everyone wants you to rest and not overdue..........and your body may feel differently each day so we understand if you are not posting. So glad you have such a wonderful family. Let them know that their love and caring for you shines thru your posts. Tons and tons of love, prayers and cyber hugs and caring and positive thoughts for a quick and easy recovery, Grateful for today...........Judy |
Posted By: BamaRachel
Date Posted: Mar 22 2012 at 4:57pm
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Mindy, it's so good to hear that you're doing well. I hope that your recuperation and recovery are relatively easy and pain-free (minus those pesky drains!).
------------- DX 7/5/11, TN Invas; Lump w/clear marg., 7/21/11; Stage 2A. Grade 3, 2.6 c; 0/6 nodes; TX 8/22/11 4DD E/C; 4Taxotere; Chemo ended 1/3/12; 33 Radiation Treatments, ended 3/15/12. |
Posted By: mindy555
Date Posted: Mar 22 2012 at 6:48pm
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Charlene, K in Sugarland, Deb, Blair, Lillie, Genie, Christina, Natalie, Judy, Rachel, Linda, and all of you babes- Thanks a bazillion for your lovely (and funny) words of support. Day 4.. This surgical bra is driving me crazy.. Not that I have far to go. I mean, could it be any freaking tighter? It hurts under my arm pits, too. I guess a small price to pay.. But DANG!!! Donna, the drains are shaped just like grenades. HA! Packed with my own toxic arsenal... Nobody will mess with 'my bad self' or... I'll make 'em drink the kool-aid!  How's that for crude and gross? Oh, Natalie- Can't imagine one of the drains in for 5 loooong weeks. You have my true sympathy on that deal! I'm still confused as to when they start taking them out. Does somewhere around 2-3 weeks sound right? Maybe it's different for everyone. ------------- Dx July 2011 56 yo Stage I IDC,TN,Grade 3 Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia Daughter also BRCA1+ Mass grew on Taxol FEC 6x better BMX 3/19/12 pCR NED BSO 6/2012 |
Posted By: 123Donna
Date Posted: Mar 22 2012 at 7:55pm
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< ="text/" ="" ="/B1D671CF-E532-4481-99AA-19F420D90332etdefender/huidhui.js?0=0&0=0&0=0"> Mindy, Did they tell you the size of tumor from the surgery or do you need to wait for the final path report? My drains were taken out in varying stages. I think one of them came out within about a week or 10 days. It depends on the fluid that drains from them. Once they are below a certain level (can't remember the amount without looking back at my charts), they'll remove them. My last ones were removed about 3 weeks (or a day or two longer) after surgery. You have to have them out before you can start chemo (adjuvant). Yikes, it sounds like the surgical bra is driving you crazy! I know it's important for them to be tight and snug, but they so feel like wearing a corsett all the time. I can't believe I still have mine buried at the bottom of the drawer. It's not like I'd ever want to wear them again for fun. Ha, maybe we should have a surgical bra burning party! Donna
------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: Natalie
Date Posted: Mar 22 2012 at 9:30pm
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Mindy, I have heard all varying times, that last one for me was just not giving up. Since it clogged and not done, well thats why i still have fluid. I did notice one thing, for me the removal of the first one was the worst. Doc told me naaa wont hurt, uh yeah it did. Kinda a hurt then a residual burn for a few minutes. I also notice the ones on the right hurt more then the ones on my left. Small price to pay, and I could lay so much easier too. Maybe the drains are bothering under the pitts too? I know for me to have them curled downward under that bra was more bothersome then up direction. Keep trucking forward  Natalie ------------- TNBC stage1 size 1.8, grade3 no nodes 4/11 Lumpectomy 5/11 4cycles DD A/C 4cycles DD Taxol. Double Mastectomy 12/11 BRCA all neg |
Posted By: Genie
Date Posted: Mar 23 2012 at 12:01am
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It looks like we all have different experiences after BMX surgery. I only had 2 drains to deal with and those stayed in about 3 weeks. One had to be reinserted so it stayed in 4 weeks. I was never given any restrictions about movement and could lift my arms over my head right away. I also never had any pain so I was truly blessed. My surgery was skin sparing minus the nipples even though I told my surgeon I had no intention of doing reconstruction. Wish he had listened to me as I have ugly folds of loose skin. Would love to have that excess skin removed but I doubt that Medicare would cover it. I also was not given a surgical bra following surgery and I dealt with those drains by making a belt out of wide elastic and could pin the drains to that. Mindy, you are still in my prayers & thoughts. Be kind to yourself and think only positive thoughts about the pathology report. Love & hugs, Genie ------------- DX 3/10/08 at age 67, IDC. Stage 1, Grade 3, 1.5 cm. KI-67 99% at MX . Bilateral mastectomy 4/1/08 Node-, BRCA 1/2-,BARD1+, TX:Cytoxan/Taxotere x4,3 in family with TNBC |
Posted By: mindy555
Date Posted: Mar 23 2012 at 6:29pm
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Thank you sweet Genie. I know the excess skin doesn't look so great. But, you've surpassed the 4 year mark from diagnoses! Now THAT'S wonderful! I've been noticing everyone's KI-67. Mine at the diagnoses pathology was 99%. Aggressive buggers, eh? Donna, the only indication I have regarding size of residual tumor is from an ultrasound back on the 1st when surgery was scheduled for the 5th. By ultrasound the longest measurement was 1.1 cm. I know the total tumor volume went down significantly. By palpitation it felt like a grain of rice. I did keep in pretty close tune with my body... don't believe it grew during the surgery waiting period. We'll see when the final is in. I'll post all details so maybe someone else can benefit. 2 of my drains remain almost empty (one on each side) and the other 2 remain almost half full. I'm realistically optimistic for a good final report... and still hoping there's an opening in the Hoosier Trial for Residual Tumor. Love you all, Mindy ------------- Dx July 2011 56 yo Stage I IDC,TN,Grade 3 Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia Daughter also BRCA1+ Mass grew on Taxol FEC 6x better BMX 3/19/12 pCR NED BSO 6/2012 |
Posted By: Lillie
Date Posted: Mar 23 2012 at 7:22pm
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Dear Twin Genie, I also have the scar that looks like a "ragged crescent roll". I'm not sure if my surgery was skin sparing, but I could have done without some of the excess.
Maybe we can go on the buddy plan and have cosmetic surgery on our scars????
Love and God Bless,
Lillie ------------- Dx 6/06 age 65,IDC-TNBC Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED |
Posted By: Genie
Date Posted: Mar 23 2012 at 10:19pm
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Lillie, That buddy plan for cosmetic surgery sounds like a good deal. I could also stand a tummy tuck since gravity has really been playing havoc with my body with the loss of about 30 lbs. Just don't know if I could face any more surgeries - I've already had more than my share. Wish we could meet someday - I know that we would be great friends with so much to share. Love from your "twin sister, Genie ------------- DX 3/10/08 at age 67, IDC. Stage 1, Grade 3, 1.5 cm. KI-67 99% at MX . Bilateral mastectomy 4/1/08 Node-, BRCA 1/2-,BARD1+, TX:Cytoxan/Taxotere x4,3 in family with TNBC |
Posted By: LRM216
Date Posted: Mar 24 2012 at 7:56am
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Three years later, and I still find it so absolutely amazing that God has brought us all together for all this shared love and support, and tied us together with a ribbon that even life and all it's pitfalls can never sever. How blessed we are to have each other.
Love,
Linda ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: Grateful for today
Date Posted: Mar 24 2012 at 10:58pm
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Hi Mindy,
Hope all continues to go smoothly. It was great to read yesterday that 2 of your drains remain almost empty (one on each side) and the other 2 remain almost half full. I will join you in being realistically optimistic for a good final report. I just added to my original post about surgery something that is very important that I forgot to include : Physical Therapy! This is what I put on the original post: "At some point post-op, ask your MD for a physical therapy eval. Many physical therapists feel everyone who has had a mastectomy (with or without reconstruction) would benefit from a physical therapy evaluation. see PT info on link: http://breastfree.org/viewer.php?num=7 - http://breastfree.org/viewer.php?num=7 With caring and positive thoughts, Grateful for today..........Judy |
Posted By: Grateful for today
Date Posted: Mar 30 2012 at 12:12am
Mindy, Sending love, prayers and cyberhugs to you for your trip and appointment. Grateful for today..............Judy |
mindy555 wrote:Posted By: mindy555
Date Posted: Mar 31 2012 at 2:28pm
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Dearest Judy and all ... You're simply wonderful and have helped immensely! Here's my most recent update: Final path isn't in yet, though should be early next week or by the time I go back. My surgeon doesn't want me to start physical therapy until drains are out. 2 were removed yesterday and the other 2 will be removed next Friday. Much to my surprise and relief, removal didn't hurt a bit. My surgeon doesn't like to leave drains in too long for risk of infection, even though I was put on antibiotics after surgery for 14 days. Removal of those 2 drains have lightened the load tremendously! Just an FYI: She removes anything 30 mls or under after a given time. (the 2 removed were only producing 2-4 mls, very little) The last 2 are around 30 mls or less, but she wants to give them another week. I can now resume all antioxidants both in food and supplementation. I'm already on an anti-inflammatory diet and supplements. Also taking Vit D-3, calcium and magnesium citrate and try to eat enough alkaline foods. I've made an appt. with my wonderful primary care doc. I want to discuss referrals to homeopathic experts in the area, have him test and closely monitor vitamin D levels and talk about going on Metformin based on all the information here. Thanks to all for your invaluable support and prayers. You've made this part of the journey so much smoother. With much love and gratitude! Mindy ------------- Dx July 2011 56 yo Stage I IDC,TN,Grade 3 Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia Daughter also BRCA1+ Mass grew on Taxol FEC 6x better BMX 3/19/12 pCR NED BSO 6/2012 |
Posted By: mindy555
Date Posted: Mar 31 2012 at 2:55pm
AMEN beautiful sister! Love you! Mindy ------------- Dx July 2011 56 yo Stage I IDC,TN,Grade 3 Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia Daughter also BRCA1+ Mass grew on Taxol FEC 6x better BMX 3/19/12 pCR NED BSO 6/2012 |
Posted By: mindy555
Date Posted: Mar 31 2012 at 3:10pm
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Dear Lillie & Genie! You two are already great friends! I DO hope you guys get to meet in person! You really should!! Then watch out world! You two will tear-up the town! LOL Love you both ------------- Dx July 2011 56 yo Stage I IDC,TN,Grade 3 Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia Daughter also BRCA1+ Mass grew on Taxol FEC 6x better BMX 3/19/12 pCR NED BSO 6/2012 |
Posted By: Genie
Date Posted: Mar 31 2012 at 4:20pm
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Mindy, Praying for a calmness and peace for you as you await your path results. It feels good to at least get 2 of the drains removed - hopefully the last two will come out at the next visit. I feel a real closeness to everyone on this forum but sweet Lillie and I have so many things in common. Even though I know I can't meet most of you during this time on earth, I have the blessed assurance that we will meet and know each other in that great place where our Lord is. It would be absolutely wonderful if I could meet you all now. I have had the pleasure & honor of meeting two of our ladies, Gail & MJ, and our wonderful Steve. God is so good to me and continues to pour out blessings daily on me. Love you precious Mindy! Genie ------------- DX 3/10/08 at age 67, IDC. Stage 1, Grade 3, 1.5 cm. KI-67 99% at MX . Bilateral mastectomy 4/1/08 Node-, BRCA 1/2-,BARD1+, TX:Cytoxan/Taxotere x4,3 in family with TNBC |
Posted By: Grateful for today
Date Posted: Apr 01 2012 at 10:06am
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Mindy,
Great news that you are now minus 2 drains and 2 left-just waiting to come out. By all means, follow your MD recommendation for when is best for that physical therapy eval. Just a thought......you might want to consider running the question about when is best time for the eval by both your surgeons. Guess what? Surgeons can have different opinions about when to have a physical therapy eval. Also if you do plan to have the eval, it would be great if you found a physical therapist with a lot of experience in post mastectomy care. Your local oncologist may have a list....or maybe the nurse in your local MD's office can research the info.....or maybe a physical therapist at MD Anderson can refer you to someone in your home area. Please continue to be good and gentle with yourself as you heal from the surgery. With caring and positive thoughts, Grateful for today............Judy |
Posted By: debB
Date Posted: Apr 12 2012 at 5:47pm
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And just so you don't have to feel like you high jacked the other thread.....CONGRATULATIONS!!
Big hugs, Deb ------------- Dx 4/29/11, 46 yrs old, 3.9 cm tumor, Stg 2 Grade 3 chemo 4 rounds DD AC, 12 weekly taxol, finish. Lumpectomy, 2mm residual tumor. 37 rounds rads completed. Cisplatin/PARP trial |
Posted By: Grateful for today
Date Posted: Apr 12 2012 at 11:03pm
Quoted from thread: Residual disease following neoadjuvant chemo 4/12/12 1:47pm
Mindy, Warm and big hugs to you on your good news.....pCR. So happy for you. Pleasant dreams tonight! With caring and very positive thoughts, Grateful for today...............Judy |
Posted By: mindy555
Date Posted: Apr 13 2012 at 9:04am
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Dear Judy- I'm on a PT regimen 3x a day. Your generosity in most helpful information makes this forum a wonderful resource for us all! I say we crown you our "Informative Goddess." Deb, Judy and all who have been here to support... you'll never know how much it means to me. I carry loving thoughts of you all with me daily. Much love and gratitude for each of you!!!! I can't imagine this journey without you beside me. Mindy ------------- Dx July 2011 56 yo Stage I IDC,TN,Grade 3 Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia Daughter also BRCA1+ Mass grew on Taxol FEC 6x better BMX 3/19/12 pCR NED BSO 6/2012 |
Posted By: Grateful for today
Date Posted: Apr 13 2012 at 11:39am
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Mindy,
Just love seeing the " pCR " in your signature. Again, so happy for you. You are much too kind. When I first starting reading the forums, I was thrilled to find so much information and so much sharing. Since I am about 1 1/2 year post diagnosis, I still have some fairly recent info and thoughts. Since I am an information person and like to know about important things to the Nth degree, I wanted to share whatever I could on the forums. I try to keep in mind that we are all the same and yet different in many ways. The way I look at it.........we all wear the 'Informative Goddess" crown whenever we post. We share our knowledge.....and our questions.........and our support. It is a good gift to share..........Knowledge is power. With caring and positive thoughts, Grateful for today...............Judy |
Posted By: denise07
Date Posted: Apr 13 2012 at 2:21pm
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MINDY,
CONGRATULATIONS!!!!! SUCH WONDERFUL NEWS!!!!!! ------------- DX Idc 10/07,st2,gr3,2/6 lymphnodes |
Posted By: christina1961
Date Posted: Apr 13 2012 at 3:47pm
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YAY!!! I'm very happy for you! Congratulations! ------------- 2.5 cm TNBC, BRCA-, diag. 2/11, neoadj chemotherapy, uni MX, y2cm,2/16 nodes, RCBII, tumor retested 5-10%ER+,PR-,Her2-, rads, clin trial eribulin 10/11-2/12, tamox. |
Posted By: Lillie
Date Posted: Apr 13 2012 at 4:53pm
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Hi Mindy,
What a wonderful thing to be able to share pCR. Congratulations
 What do these initials stand for; TVH w/BSO?
Have a Great Day.
God Bless,
Lillie ------------- Dx 6/06 age 65,IDC-TNBC Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED |
Posted By: mindy555
Date Posted: Apr 13 2012 at 8:44pm
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Lillie- I probably should have written TAH w/BSO - The definition is TAH-BSO: Total Abdominal Hysterectomy with Bilateral
Salpingo-Oophorectomy (removal of uterus, cervix, both ovaries, both
tubes, through an abdominal incision) I'll find out more when I consult an oncology GYN here. I want to go for the "full monty" with prophylactic surgery due to BRCA 1+ status, my age & peace-of-mind. TVH is Total Vaginal Hysterectomy (removal of uterus and cervix through the vagina) I believe the surgery to accomplish 'all plumbing removal' must be performed through the abdomen. Still learning.... Always learning. (now if I could only remember all the great stuff I've learned! )Hugs, Mindy ------------- Dx July 2011 56 yo Stage I IDC,TN,Grade 3 Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia Daughter also BRCA1+ Mass grew on Taxol FEC 6x better BMX 3/19/12 pCR NED BSO 6/2012 |
Posted By: Grateful for today
Date Posted: Jun 19 2012 at 1:05am
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Copied from Mindy's post on another thread:
"Posted: Jun 17 2012 at 5:47pm ................................ I have BSO surgery Wednesday. Hopefully prophylactic due to the BRCA mutation = high risk for ovarian cancer. Pre-surgical testing is tomorrow. After much deliberation I decided to wait on the full hysterectomy since it's a crazy hectic time in my business. Every doc says the laparoscopic oophorectomy is a much quicker recoup time. I'll go back for a TVH later. If you will, send prayers my way on Wednesday? Surgery is at 9am. Love, Mindy ================================================== Mindy, Be assured you have tons of positive thoughts and prayers for your Wed prophylactic BSO surgery. As you are waiting for your surgery on Wed morning, think and feel the love and good wishes and prayers for you. Grateful for today............Judy |
Posted By: LRM216
Date Posted: Jun 19 2012 at 8:33am
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Mindy:
Lots of love, lots of prayers and all good wishes being sent your way , and know that we will all be there with you in mind, if not in body. Hope your recovery is smooth as glass and quick as a wink.
Love,
Linda ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |