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mindy555
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Posted: Feb 27 2012 at 12:26am |
SandraB- Your thoughts mean so much to me. Thank you, thank you for your good wishes. You're such a sweetheart. I'm wishing YOU all the best!!! Donna- I've crammed a month's worth of work in a very short time. For the last few weeks I haven't even had time to think about upcoming surgery. It's actually been good, though I'm worn slick. I notice if I get up too fast I feel like I'll black out. It hasn't stopped me since I'm self employed and have no one to delegate any of the work. (not to mention I'm a control freak and it's my reputation & name on the line). What's funny is this heavy work load with immediate deadlines happens almost always before I'm leaving town for more than a long weekend. Unfortunately the reward of my work isn't followed by a luxury cruise or relaxation on the white sands of the Caribbean ..  ha! I cleaned house as best I could Saturday. The thought of coming home after surgery to something other than very clean and de-cluttered was enough to motivate even though I had little energy. Thanks for thinking of me  Will keep everyone posted. Lots of hugs & love being sent your way, Donna. Lillie- so glad you finally kicked the crud. I have a slight cold, but nothing horrible. Hope you had an enjoyable get-away. Your blessings and thoughts are so appreciated, dear lady. Sending you lots of love, too. Blair- You've been such a good friend. My kindred pal who also sheds tears when she prays. Let me tell you, the faucet has been turned on more times than not these last several months. I'm praying your Mom has an uneventful surgery with a speedy recovery. Is your Mom's surgery on the 7th or is she there on that date for pre-op? Thanks to all of you for your caring support. Beyond a world of helpful tips and information, there's no place as comforting as the loving family who make up this forum-- the place I call my cyber home. Very best wishes and love to all, Mindy
Edited by mindy555 - Feb 27 2012 at 1:07am
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Dx July 2011 56 yo Stage I IDC,TN,Grade 3 Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia Daughter also BRCA1+ Mass grew on Taxol FEC 6x better BMX 3/19/12 pCR NED BSO 6/2012
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debB
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Location: Central Illinoi
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Posted: Feb 28 2012 at 7:39am |
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Dear Mindy,
Safe travels today! We will all be thinking about you and praying for you on Monday!!
Deb
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Dx 4/29/11, 46 yrs old, 3.9 cm tumor, Stg 2 Grade 3 chemo 4 rounds DD AC, 12 weekly taxol, finish. Lumpectomy, 2mm residual tumor. 37 rounds rads completed. Cisplatin/PARP trial
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LRM216
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Location: Marietta, GA
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Posted: Feb 28 2012 at 8:34am |
Sending you off with love, hugs and all good wishes for a successful surgery and quick and uneventful recovery.
Linda
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Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg
4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33
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cheeks
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Location: North Carolina
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Posted: Feb 28 2012 at 8:44am |
Mindy,
A safe road trip for you and your family. Mom will be there on the 7th for an MRI to see if the tumors are smaller and hopefully since she has had a good response to the chemo the surgery will follow within the week.
Blair 
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Lump found 11/08 DX: 2/09 @52 TNBC L. Mast. 3/26/09, SN-, BRCA-, 4.5 cm (post surgical)T2NOMO Chemo: 4/09-10/09 Taxol x 12, A/C x 4, No rad.No recon. NED 1/17. New Primary right breast TN, 2/2018.
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LRM216
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Location: Marietta, GA
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Posted: Feb 28 2012 at 8:52am |
Blair:
Good luck to you and Mom next week too! Keep us posted.
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Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg
4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33
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cheeks
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Location: North Carolina
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Posted: Feb 28 2012 at 9:17am |
Linda,
Thank you. I don't think i posted it here but her counts on the CA 125 had gone down after 2 of her 3 chemo's from 586 to 28 so hopefully the tumors have shrunk a good bit and are operable now. One of my sister's is driving her to Mayo in Jacksonville where she will remain until after surgery - at least that is her surgeon's plan for now.
Blair
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Lump found 11/08 DX: 2/09 @52 TNBC L. Mast. 3/26/09, SN-, BRCA-, 4.5 cm (post surgical)T2NOMO Chemo: 4/09-10/09 Taxol x 12, A/C x 4, No rad.No recon. NED 1/17. New Primary right breast TN, 2/2018.
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mindy555
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Location: Oklahoma
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Posted: Mar 03 2012 at 3:34pm |
Hi all my lovely sisters and co-survivors, I wanted to let you know this surgery WAS too soon after chemo. I had an ECG, blood work and ultrasound before seeing my surgeon. My white blood count was way too low to even think about surgery. At the time of rescheduling initially this was a real concern of mine, as you know. Anyway, we drove the 7 hours back on Thursday. I was beat and not interested in anything but resting. I've been a little blue, but would never want to proceed with surgery under the circumstances.. I told the surgeon's nurse I'd be getting blood drawn at home and faxed to them before driving back for pretesting. The new surgery date is March 19th. Thanks for all your prayers and good wishes for tomorrow, but I'm home now and once again in holding pattern.
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Dx July 2011 56 yo Stage I IDC,TN,Grade 3 Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia Daughter also BRCA1+ Mass grew on Taxol FEC 6x better BMX 3/19/12 pCR NED BSO 6/2012
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Lillie
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Posted: Mar 03 2012 at 3:43pm |
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Dear Mindy,
So sorry you had to travel so much just to learn that your WBC was too low for surgery. I will be praying for the counts to improve between now and the 19th.
I hope you pull out of the 'blues' soon, and know that we all are thinking about and loving you through the days ahead.
God Bless,
Lillie
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Dx 6/06 age 65,IDC-TNBC Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED
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Lee21
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Posted: Mar 03 2012 at 4:43pm |
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Mindy That's a real bummer and I'm sure a huge let down -- but know that you'll be much stronger in a couple weeks to go through surgery. A thought: did you get a MRI post chemo to assess status? You said you had an ultrasound, was that a breast US? Lee
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12/9/11 @59,IDC,grade3, TNBC,3cm(MRI),SLNB0,stage IIA, BRCA1 variant 1/30/12 DD AC-T, 6/7/12 Lumpectomy, ypT1b(0.8 cm), 7/9/12 Rads x 30 11/9/12, clinical trial cisplatin/rucaparib, cisplatin-only arm
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mindy555
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Location: Oklahoma
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Posted: Mar 03 2012 at 5:00pm |
No MRI. The only MRI I've had was unilateral pre-chemo. I've had right breast ultrasounds to assist in determining how the mass is reacting to chemo throughout treatment. This last breast ultrasound showed further shrinkage. My white blood count was low due to being soon after 6th and last FEC treatment. I've had no shots during treatment to keep counts up and made it through treatment, thankfully. Thanks for your thoughts, Lee. Mindy God Bless You, dearest Lillie! 
Edited by mindy555 - Mar 03 2012 at 5:07pm
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Dx July 2011 56 yo Stage I IDC,TN,Grade 3 Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia Daughter also BRCA1+ Mass grew on Taxol FEC 6x better BMX 3/19/12 pCR NED BSO 6/2012
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BamaRachel
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Posted: Mar 03 2012 at 5:10pm |
I'm so sorry to hear about the delay, Mindy. Take good care of yourself between now and the 19th. We will be praying for you!!
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DX 7/5/11, TN Invas; Lump w/clear marg., 7/21/11; Stage 2A. Grade 3, 2.6 c; 0/6 nodes; TX 8/22/11 4DD E/C; 4Taxotere; Chemo ended 1/3/12; 33 Radiation Treatments, ended 3/15/12.
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mindy555
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Posted: Mar 03 2012 at 5:20pm |
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Aww, thanks sweet Rachel. Your prayers mean so much.
Hugs, Mindy
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Dx July 2011 56 yo Stage I IDC,TN,Grade 3 Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia Daughter also BRCA1+ Mass grew on Taxol FEC 6x better BMX 3/19/12 pCR NED BSO 6/2012
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123Donna
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Posted: Mar 03 2012 at 6:50pm |
Mindy,
I know you must be so disappointed, but you'll be stronger in a few weeks and better able to tackle surgery. Can they give you Neulasta or Neupogen to help with your wbc? When I finished chemo last spring, my wbc was really low. Too low for the last treatment and I had to stop. They gave me one neupogen shot and it helped boost my counts. Rest and take care of yourself sweetie. We love you.
Hugs,
Donna
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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mindy555
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Posted: Mar 04 2012 at 1:10am |
You're always a gem, Donna.  I got the feeling from my MDA surgeon that she wanted the wbc to come up on its own. Never have I been offered a neupogen shot both at home or at MDA. I proceeded with the last 2 rounds of FEC with lower than desired wbcs. I think I'll do the 10 day blood test as I did while still on chemo .. then again before leaving for MDA in a few weeks. Sending much love.. ((( Donna ))))
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Dx July 2011 56 yo Stage I IDC,TN,Grade 3 Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia Daughter also BRCA1+ Mass grew on Taxol FEC 6x better BMX 3/19/12 pCR NED BSO 6/2012
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LRM216
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Posted: Mar 04 2012 at 8:29am |
Mindy:
While I can well understand your feelings at this time, and especially after the long trip there and back, I am actually relieved that they are waiting a bit longer. I purposely did not post this in your earlier threads as I did not want to alarm you right before your surgery.
I had a very large lumpectomy from the right side of my breast where it meets the chest straight over to nipple, above and around nipple and then mid breast of left side over to the sternum. It was a lulu of an incision called a "bat wing." Two weeks after this, it all had to be reopened as two margins were not clean. The re-excision was even more painful to heal from than the original. My chemo was scheduled for 5 weeks after the first surgery.
At my onc visit I mentioned that although most of the scab had worn off, I did have a small section where the incision connected to the nipple (very tiny area) that was still scabbed and raw pink flesh could be seen underneath it. Three doctors all examined it and each cleared me for the chemo, the onc, my vascular surgeon who put in the port cleared me, and the breast surgeon. Had my first round of adriamycin two days later. Two days after that I was in the hospital with cellulitis of my breast, 102 fever, and neutropenia. I was hospitalized for a full week, pumped full of heavy duty IV's of two different types of antibiotics, could not get out of bed to do anything - had to be masked whenever a doctor or nurse entered, as did they, and only my mother could see me (all masked up as well) - no flowers, limited diet, etc. I got through it without any further complications, but had to continue infusions (since I was still on chemo - this was only my first of 8) - every a.m. - 7 days a week - for 6 very long weeks. It was a nightmare. It also delayed my second round of chemo from two to three weeks, which also scared me. I also had to be on full antibiotics through each remaining chemo "just in case."
Point being, I am glad they all responded as they did with your low counts. While I have full faith and much respect and love for all my doctors - my chemo obviously should not have been started due to my incision not being 100% healed. I don't blame any of them, but it sure was a situation I would never again want to go through - and I am most grateful that you won't have to either.
The extra few weeks will ensure that your body will better handle the surgery, with less reason for any complications as it heals from the assualt of surgery on top of an immune system whacked by the chemo, such as mine was. Good luck and keep your chin up! We will all be waiting right along side of you.
Hugs,
Linda
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Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg
4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33
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LRM216
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Posted: Mar 04 2012 at 8:36am |
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Lol! Sorry for the long diatribe I wrote when I guess I could have just summed it all up by saying - "better to be safe, than sorry"!
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Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg
4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33
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Charlene
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Posted: Mar 04 2012 at 11:31am |
Mindy,
Just want you to know that you're in my prayers! I hope that this time will pass quickly and that your blood counts will totally recover from the chemo.
Blessings,
Charlene
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DX 3/10 @59 ILC/TNBC Stage 1, Grade 2, Multifocal; Lumpectomy/re-excision SNB 0/4 nodes, BRCA-; Taxotere/Cytoxan X4, 30 rads 3/14:NED
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Lee21
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Posted: Mar 04 2012 at 11:50am |
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Linda -- that was a terrible ordeal and I am glad you pulled through. If you don't mind my asking, from your signature you had a small tumor -- why did they decide to do what sounded like more than just a simple lumpectomy? My ultrasound said my tumor was small 1.7cm but because of nipple discharge the surgeon wanted to do a central lumpectomy. I had a 2nd opinion elsewhere and they wanted a MRI as part of the evaluation. The MRI showed my tumor to be quite a bit bigger, 3cm (even bigger if you consider the volume of tumor mass). My 2nd opinion recommended neoadjuvant chemo because the planned lumpectomy would be disfiguring for a small breasted person. So I wonder how many of those instances when the planned surgery didn't work out turned out to be inadequate pre-op evaluation. Lee
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12/9/11 @59,IDC,grade3, TNBC,3cm(MRI),SLNB0,stage IIA, BRCA1 variant 1/30/12 DD AC-T, 6/7/12 Lumpectomy, ypT1b(0.8 cm), 7/9/12 Rads x 30 11/9/12, clinical trial cisplatin/rucaparib, cisplatin-only arm
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LRM216
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Posted: Mar 04 2012 at 12:31pm |
No, Lee, the problem I had was that my 1.2 cm nodule was squarely in the middle of my breast 5 cms below the nipple. I am full breasted so my surgeon decided that this would be the best way to go to insure getting it all and any DCIS. I did not have a lot of DCIS - less than 25% as my path reads, but there was a scant amount in two margins so the re-excision was needed, and got clear margins after that surgery. If not, the breast would have been removed. I had a breast MRI prior to surgery as well. My BS is in a group of very esteemed breast surgeons (all women) that are very busy women here in the Atlanta area. Women come from all over to have their surgery with them. I still see her every 6 months for mammos - and a MRI every year. It's absolutely amazing, but even with that large an incision - I have almost no trace whatsoever of the incision scar. It was a rough time right after that 1st chemo, and I sure wouldn't want to see anyone else go through it . I felt that tiny bit of incision scab left should have put the chemo off another week or so, but the pro's felt it was fine. Ummmmm.........
Linda
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Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg
4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33
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Lee21
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Posted: Mar 04 2012 at 12:46pm |
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Linda, Thank you for the clarification. Sounds like you have a really good relationship with your BC surgeon. Just blame it on my ever present questioning nature (which has already stressed my relationship with my med onc). I started chemo less than 2 weeks after my SLNB -- the SNLB obviously is a much smaller surgical procedure although I was a bit concerned but I did fine. Lee
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12/9/11 @59,IDC,grade3, TNBC,3cm(MRI),SLNB0,stage IIA, BRCA1 variant 1/30/12 DD AC-T, 6/7/12 Lumpectomy, ypT1b(0.8 cm), 7/9/12 Rads x 30 11/9/12, clinical trial cisplatin/rucaparib, cisplatin-only arm
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