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NinaE
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Joined: Dec 11 2009
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Points: 181
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Posted: Oct 08 2010 at 6:55am |
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Thank you so much for stopping by. My very best to all of you.
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Stage IV at dx in Dec 09, at age 38. Mets to lung, axillary, IM and mediastinal nodes.
4xAC-->dd Taxol. Dbl mast, 6/10. Radiation, 8/10. NED since June 2010.
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TNBC_in_NS
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Joined: Jul 26 2009
Location: NS Canada
Status: Offline
Points: 2028
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Posted: Oct 08 2010 at 10:48am |
Hi Donna!
Thanks so much for sharing your life and Ariel's with us! I am so happy she has a brother in all this up and down! You are an amazing lady to handle all that you are doing for the children, your hubby and Christine. Bless you all always and may the blessings of the Good Lord be upon you always... What a wonderful life you are making for these children, you and your hubby!
Return here when you can as you are now part of our family too!
Love and Hugs, Helen in NS xoxo
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Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear
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Autumn10182001
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Joined: Aug 18 2009
Location: Highland, NY
Status: Offline
Points: 557
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Posted: Oct 08 2010 at 10:38pm |
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Donna, thank you for the update.. I miss Christine.. I will add your husband to my prayers tonight.. and know that Christine is always with you... Autumn
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DX2/99 Stg I,ER+PR+ Chemo lumpectomy - Neg nodes,rads, tamox,femara. DX4/09, Stg IIB /III, TNBC IDC, Grade III, 2.5CM, mastectomy. 4AC DD,12 wkly taxol,BRAC1&2Neg, Right Mast 11/25/09
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diane1234
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Joined: Jun 05 2009
Location: Arkansas
Status: Offline
Points: 292
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Posted: Oct 09 2010 at 12:45am |
Donna,
I think of Christine and Ariel OFTEN. I always wonder how the young ones are doing. I am SO SO SORRY to hear about your husband. THANK GOD FOR PEOPLE LIKE YOU IN THIS WORLD. It gives me such peace to hear Ariel is adjusting well. Christine and I were dx around the same time. I was 36. I am now battling metastatic disease. IT IS SO HARD. I WORRY beyond believe about my kids. That is why hearing the news of Ariel doing VERY well gives me SUCH GREAT PEACE. YOU ARE AMAZING.....I will also add you and your husband to my prayers. I HATE CANCER....
May God Bless Us All,
Diane
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dx 4/09 at 36 yrs old. dbl Mast. 5/09. 12 weekly Taxol 4 FAC tri weekly. 32 rads completed 2/2010. Its Back 5/2010!! Chest wall, Mediastinal node, Lft mammary node and liver. Back on chemo.
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123Donna
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Joined: Aug 24 2009
Location: St. Louis, MO
Status: Offline
Points: 13510
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Posted: Jan 21 2011 at 9:53am |
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Donna and Ariel,
I wanted to ask how you're doing? We think of you, Christine and Ariel often. I was thinking of Christine (Sapphire Skies) the other day and miss her. I hope your husband's treatment is going well. We pray that Ariel is safe, happy and adjusting to her new life. Please post when you can.
Hugs,
Donna
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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Donnaquilt
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Joined: Jul 22 2010
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Points: 4
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Posted: Mar 01 2012 at 9:33pm |
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I just wanted to stop in and tell everyone hello. I am Chris's sister, Donna. She has been gone about a year and a half now. I am kind of shaky as I type this as it is heartbreaking to read some of her posts. We miss her so much.
Anyway, I wanted to let you all know that her daughter, Ariel is doing very well. Much better than I would have hoped. She is in 8th grade and has mostly A's and maybe one B in school. She sings in the school choir, and will be in a singing competition this weekend. I have her taking horse backing riding lessons and she just loves it.
We live near Lake Michigan and it has been a mild winter here. Every couple of weeks, she and I bundle up and go to the lake front and we poke around for sea glass. We have found some pretty pieces, and maybe this summer we'll take a jewelry class and make some necklaces. It is a nice bonding time. She likes to stop and have a Starbucks with me too. :-) I work in the childrens section of the public library. I've made her into quite a good reader. We both have just devoured the Hunger Game series and are eagerly waiting for the movie to come out.
Her father died when she was 5, and then after her mother died she had to move 2 hours away from her home to come and live with us. She has made many, many good friends, and I am thrilled about that.
She has a new bedroom she designed with purple walls, lime green and white accents. We bought a new white bedroom set to go with it. She has a nice, cozy setup.
We love having a girl in the family. Our son is 17, and was adopted as an infant. He never really liked being an only child. He is very active in high school, and when she goes next year to high school she will be very comfortable. She already knows a good amount of teens there and some of the teachers.
Immediately after my sister died, my hubby was diagnosed with a rare cancer, and was not expected to make it. He had 2 back to back bone marrow transplants at Froedtert Hospital in Milwaukee. He went thru a lot, lost a lot of his hearing from the chemo and had a lot of neuropathy (sp?) in his hands and feet. Slowly his hands and feet are getting better but he may never regain all of his balance and feeling.
After being off work for many months, he went back to work in Nov. 2011, and was laid off after only 7 weeks back. They had to do major layoffs across the country so it had nothing to do with his cancer. He only worked for that company for a year and a half. Less actually because of his illness. There are a few jobs out there in his field -- certainly more than there was 2 years ago.
We have hope and he has been cancer free for a few months now.
Now I am off to read up about some of you.
Donna and Dana, are you both still active on the boards? Dana, how are you doing? I think of you and your mother often.
Warm hugs to all, Donna and Ariel
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ann u
Senior Member
Joined: Jan 08 2010
Location: Arizona
Status: Offline
Points: 181
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Posted: Mar 01 2012 at 9:50pm |
Donna (and Ariel)
I'm glad you "checked in" with us. It's wonderful that Ariel seems to be doing so well, and it sounds like you have more than enough love to go around your family.
I am so jealous that you live near Lake Michigan. I was born in Michigan, and spent my summers on the beach of my grandparents cottage on Lake Huron - very fond memories for me. I think it's probably why I am an avid beachcomber. Every summer we venture over to San Diego, and I spend the week waking up at 5 in the morning and scouring the beach for just about anything, although beach glass is my favorite along with sand dollars.
Wishing you happiness
Ann
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8/06: IDC 1cm, 0/9 lymph nodes, lumpectomy, Mammosite radiation, 4 x A/C
5/07: BRCA1+ (5382insC)
11/09: IDC 3mm, double mastectomy w/reconstruction
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LRM216
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Joined: Mar 18 2009
Location: Marietta, GA
Status: Offline
Points: 1196
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Posted: Mar 01 2012 at 10:44pm |
Donna:
How broad Christine's smile must be as she watches over you, your family and Ariel. You are truly a wondrous woman, wife, mother and Aunt/mother, and Ariel was and is truly blessed to have you. I am so very, very sorry to hear about your husband's health, but am glad to hear he appears to be bouncing back. I pray for all good things for him and your family. Just when we think things can't possibly get any worse, we oftentimes find that yes, they can, and do. May God, and Christine continue to guard you all. I thank you so very much for coming on to the board to let us know. I think of Christine often, and still get the chills when I remember how fast things went downhill for her, and will always wonder, as I am sure we all do, why bad things have to happen to good people. I too know how very much you miss her, as I lost my daughter one year ago next month, and I too miss her with all my heart and soul. Life goes on after we lose our loved one, but it is vastly altered, as are we. God bless, and may love surround you all, always.
Linda
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Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg
4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33
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SagePatientAdvocates
Senior Advisor
Joined: Apr 15 2009
Status: Offline
Points: 4748
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Posted: Mar 02 2012 at 12:13am |
Dear Donna,
Exactly what my dear friend Linda said.
warmly,
Steve
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I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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123Donna
Senior Member
Joined: Aug 24 2009
Location: St. Louis, MO
Status: Offline
Points: 13510
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Posted: Mar 02 2012 at 9:47am |
Donna,
Yes, I'm still active on the boards. I had a recurrence in 2010/2011, but so far NED. Your post gave me such a big smile and warmed my heart to hear about you and Ariel. It still saddens me how we lost Christine so quickly. She was full of life and fought so hard. Ariel was everything to her. It helps me to know that Ariel has adjusted and is doing well with your family. She must be so proud of her new bedroom. I can just imagine Chris looking down on both of you and smiling at your loving family and all you've done for her. I pray that your husband continues to be NED.
Please drop in from time to time and let us know how Ariel is doing. We mourn our members that have passed and worry about their families that are left behind. It's comforting when we hear stories like yours. You sound like an amazing women. Bless you.
Hugs,
Donna
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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Autumn10182001
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Joined: Aug 18 2009
Location: Highland, NY
Status: Offline
Points: 557
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Posted: Mar 02 2012 at 11:06am |
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I touch base with Ariel once in a while on facebook. . I am glad she is doing so well, I too miss Chris.. I hate this disease.
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DX2/99 Stg I,ER+PR+ Chemo lumpectomy - Neg nodes,rads, tamox,femara. DX4/09, Stg IIB /III, TNBC IDC, Grade III, 2.5CM, mastectomy. 4AC DD,12 wkly taxol,BRAC1&2Neg, Right Mast 11/25/09
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nmunoz
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Joined: Jan 20 2009
Location: Miami, FL
Status: Offline
Points: 371
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Posted: Mar 02 2012 at 11:26am |
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Thanks for the update Donna; it means a lot for us here who cared about Chris and her daughter. I will be praying for you and your family.
Best,
Natalia
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Natalia, 38 years
Dx TNBC 10/22/08, BRCA1+
Double Mx 11/20/08 with Recon.
3/37 nodes
Rads 7 weeks done 8/09
ACx4 every 2 weeks and Tx12 weeks. Avastin e/3 weeksx10 (Clinical Trial) Done Dec/09
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Lillie
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Joined: Jul 10 2009
Location: Eastern NC
Status: Offline
Points: 3616
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Posted: Mar 02 2012 at 4:59pm |
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Dear Donna,
Thank you so much for updating since we last heard from you. It is so special to hear that you, your husband, your son and Ariel are doing well. I know you have been through a tough time, losing Chris and then your husband having so many health problems.
May God Bless you and your family. Chris (Sapphire Skies) was one of those people who captured my heart. I am so happy that her daughter has a special aunt like you.
Love,
Lillie
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Dx 6/06 age 65,IDC-TNBC Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED
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TNBC_in_NS
Senior Member
Joined: Jul 26 2009
Location: NS Canada
Status: Offline
Points: 2028
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Posted: Mar 02 2012 at 7:45pm |
Dear Donna, Thanks so much for this wonderful update! I am so happy to hear that you, hubby, Ariel & your son are doing wonderfully well! It was so hard to loose Christine, but when I see how much you have been doing for your family as well as Christine's it does my heart well. I too believe that Christine is smiling down on all of you and most of all you Donna for taking on this wonderful challenge of parenting a daughter. My own is now 43, but today it is not an easy job! You make it look so easy! May God Bless you with an abundance of LOVE, FAITH AND TREASURES beyond this world for being a wonderful mom/aunt/wife/friend/daughter & SISTER! Thanks again for the update on how your lives are unfolding so wonderfully well and yes, do drop by from time to time, to let us know how the first dances, etc. go... All the best, Helen in NS
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Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear
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