our beloved cg--- is gone |
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dmwolf 
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Joined: Jan 22 2009 Location: Berkeley, CA Status: Offline Points: 3619 |
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 Posted: Sep 23 2011 at 11:08pm |
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Connie, sweet, dear, feisty, knowledgeable, protective, Connie. Dog lover, daily walker over hills, great story teller, sweetest voiced, beloved Connie. I'll miss her. I've been missing her already, terribly actually, since she stopped participating in the board. I used to love how she'd swoop in to newbies to make sure they were well educated and well loved. As Steve said, she was afraid of scaring us. We missed her, and she missed out on our many hands carrying her through the most difficult part of the journey, but we each travel our own path and she wanted the last almost two years to be mostly private. I talked to her on the phone a couple of times, always feeling enriched by the experience.
Goodbye, Connie. I wish medicine could have done better by you. Thanks Steve for your posts and all you did for her and all you do for all of us. Connie, we'll hold a place in our hearts for you, for always. |
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DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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TNBC_in_NS
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Joined: Jul 26 2009 Location: NS Canada Status: Offline Points: 2028 |
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Posted: Sep 24 2011 at 11:04am |
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Oh my dear, sweet, Canadian Sister! You may be gone but never to be forgotten!
Thank you Steve for letting us know about Connie.
I just read Steve's post and was happy that you chose my birthday to return to our Heavenly Father. As a sister transcriptionist and TNBC fighter, you have been a wealth of knowledge to me and this forum and your presence has been missed for some time now, but we always held hope that you would jump back in as you sometimes did over the past two years of my diagnosis in 2009 and then re-diagnosis this year.
Thank you my friend for your candour, your lightness, and most of all your love that you shared so freely with us all. May the blessings of our Lord Jesus Christ be upon you, your family and all who were blessed to know you personally and virtually. You are a GREAT LADY! Thank you for being you!
Rest now little one and know that we will all meet again and yes, we know each other by our love for each other.
May this forum continue its great work of knowledge, friendship, and most of all LOVE....
PS: Say hello to Paco for us and let him know we thank him for his loyalty to you too!
Love and hugs, Helen in Nova Scotia, Canada
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Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear
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TracyAMac
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Joined: Aug 01 2010 Location: Toronto, Canada Status: Offline Points: 401 |
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Posted: Sep 24 2011 at 9:14pm |
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I am so saddened to hear about the loss of our dear friend Connie
We never met but I had the pleasure of exchanging e-mails with her; a fellow Canadian and Ontarian. Connie was always very strong and resolute in her approach to life and her treatment. The loss of yet another great woman struck down by this disease brings a range of range of emotions and thoughts to the surface for me. One of them is to keep pushing and fighting for more research and better treatments for TNBC. Tracy in Toronto |
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TN&non-TN tumors April/10 Gr3&2;1 metaplastic
Rmast.1/9 nodes w/isolated t.cells Taxotere&Cytoxan x6 Bone cancer 1980 age17;surgery&chemo AC+Methotrexate BRCA-ve On hormone therapy & Metformin Trial |
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SagePatientAdvocates
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Joined: Apr 15 2009 Status: Offline Points: 4748 |
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Posted: Sep 24 2011 at 9:44pm |
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Happy belated birthday, dear Sis....
 hope you are doing well.
hugs, Steve |
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I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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tninalabama
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Joined: Aug 13 2010 Location: Alabama Status: Offline Points: 187 |
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Posted: Sep 24 2011 at 10:21pm |
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So saddened to read of Connie's passing. RIP.
Pam
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Dx 11/07,stII bgr3,1/8+, metaplastic, recurrence 11/09, lymph dis 12/13+ 07/10, rad,x28 9/10,02/11 mets
BRCA neg 5-FMC since 03/12 PET 04/12,no progression Bone scan clear 06/12 |
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nmunoz
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Joined: Jan 20 2009 Location: Miami, FL Status: Offline Points: 371 |
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Posted: Sep 25 2011 at 9:10am |
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Rest in peace Connie. Thanks for being such a wonderful person and giving us so much through your wisdom and courage.
We will miss you. Natalia |
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Natalia, 38 years
Dx TNBC 10/22/08, BRCA1+ Double Mx 11/20/08 with Recon. 3/37 nodes Rads 7 weeks done 8/09 ACx4 every 2 weeks and Tx12 weeks. Avastin e/3 weeksx10 (Clinical Trial) Done Dec/09 |
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123Donna
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Joined: Aug 24 2009 Location: St. Louis, MO Status: Offline Points: 13510 |
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Posted: Sep 25 2011 at 12:33pm |
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If I could send one last note to Connie it would be this - Connie when I joined this forum in 2009 I was such a novice and understood nothing about TNBC. You welcomed me with open arms. I had never participated in an online forum before and am a very private person. I was cautious of this forum and these people offering advice. I kept thinking was this place for real and can I trust these people. You quickly friended me and with your knowledge, humor and advice made me feel so welcomed. I looked forward to your posts and advice. I loved the colorful stories you'd tell, especially when talking about your beloved Paco. I felt we had a connection with our love of dogs. I know when you had the recurrence you chose to fight this battle with dignity and privacy. I respect your choice and honor the path you took. I wish you would have leaned on us more to help you through this last battle. This past year I kept looking for you to post, hoping to hear from you. I miss you. My biggest wish is that you realized how many people you helped and the lives you impacted. I don't think you truly understood how important you were to all of us. You were a bright shining light to your TNBC sisters. Till we meet again, dear Connie.
Donna |
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
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SagePatientAdvocates
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Joined: Apr 15 2009 Status: Offline Points: 4748 |
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Posted: Sep 25 2011 at 2:57pm |
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Dear Donna,
what a lovely, lovely post. Rest assured that Connie did have some help on the final journey. I also believe that she knew that she was important to us and also I think she was more comfortable helping others than leaning on us. She was a giver and sometimes givers find it hard to accept from others. But I think it is very important for all of us to realize that while she loved this TNBC Foundation family of ours she loved her privacy and also did not want to be a burden on any of us as she faced such difficult days. I could not convince her otherwise and I stopped talking about it. I left it, very clearly, as “Connie, if you change your mind and would like me to post for you, again, or ask for prayers for you, please let me know.” A couple of times she did post and asked for prayers but, basically, I decided to step to the side and have our relationship continue privately. And as with everyone I am trying to help I always do so privately. Whatever I knew about Connie’s condition stayed off the boards and I will always follow that practice. She, at times, wrote candidly about what was happening to her...but for much of the time stayed silent. I stayed silent, all of the time, except when I wrote things that she instructed I write. Donna, again, you have captured the essence of Connie so eloquently with your post. She loved you and she loved all of us. I hope my words, above, further help you understand her long periods of silence. Also, at times, the intensity of her struggle made it almost impossible, in my opinion, to reach out to anyone. When you are living a nightmare it is hard to be ‘normal.’ Under the circumstances I think she did a monumentally beautiful job in continuing to be supportive to the women she met in Toronto. I think she found that easier to do, one-on-one, than share, what she was going through, here. She had a lot more of herself invested in this site than any of us will ever know. The women in the infusion room saw what she was enduring so for her, it was just ‘easier’ and none of it was easy. Yet, she found the time to help some women very directly including advice regarding the complicated Canadian healthcare system. No easy task as I am sure TracyMac can attest to. Stay well, dear Donna. all the best, Steve |
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I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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harbin
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Joined: May 25 2008 Location: United States Status: Offline Points: 180 |
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Posted: Sep 25 2011 at 3:02pm |
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I re-read some of Connie's post. She is such a wonderful and inspiring woman. She made great contribution to this community. She will be missed. |
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4/08 dx IDC,stg2,neg. nodes,4xAC,8xTexol& Avastin,BRCA-
3/10 Recurr Chestwall,surgery 6/10 Lung mets 10/10 Parp 05/11 Surgery on 2 lung nodules 08/11 Parp failed 10/11 Cyberknife 1 lung nodule |
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HappyGoLucky
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Joined: Apr 22 2009 Location: New Jersey Status: Offline Points: 454 |
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Posted: Sep 25 2011 at 4:35pm |
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To the wonderful and caring tnbc community
Donna that was so authentically shared, thank you. Connie is with us in spirit here and Donna you just pulled us into that warm space of love and trust and caring that the people here have for each other.....
I came on here in April 2009 absolutely clueless and thinking triple neg was a good dx and
I read Connies posts. I liked her feistyness and found I would come back even if it scared the heck out of me and it hurt a lot when someone passed away.
It made me dare to look at the in depth informational posts. For the longest time I wouldn't look at metastatic threads. Nope thats not for me! Had no clue and did not want to learn the progression of the disease.
But you come to love the posters and u look forward to reading the humorous stories about treatment and our race to the finish of our chemo, small advances and crazy chemo experiences and the personal stuff and u realize u are involved and can no longer look away.
We were very fortunate to have had Connie on this board. All the women who have passed through this portal were my teachers.
Love and Peace,
Karen Edited by HappyGoLucky - Sep 26 2011 at 10:51am |
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2/2009 7cm tumor, sent nod. pos. Lumpectomy 3/19/09,a/c dose dense+avastin clinical trial, taxol avastin stopped with pneumonia. 33 Rads 01/2010 ~ reccur 2011 supraclav.and internal mammary nodes. rad
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Debris
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Joined: Jun 07 2010 Location: Forsyth,Georgia Status: Offline Points: 756 |
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Posted: Sep 25 2011 at 7:15pm |
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Oh Steve, just read this posting. Your heart must be so full of sorrow, and ye tsuch beautiful memories.
God Bless Connie, may she rest in Peace, and may you, and her family, be comforted by your memories of her life and love. Deborsah. |
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4/12 Xeloda/Tykerb
2 Carboplatin 12/11 Dx IA 9 Gemzar/Taxotere Dx IBC:FEC 5 Ixempra/Sprycel 2 25 Rad 10/10 BRCA1-/2suv 9 NED 6 Stg4 Grd3 many nodes no Sx/Rad. Taxol/Avastin 06/08 Dx DCIS 0/SN Rads/AIs |
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Autumn10182001
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Joined: Aug 18 2009 Location: Highland, NY Status: Offline Points: 557 |
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Posted: Sep 25 2011 at 9:01pm |
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I have no words.. Connie.. rest in peace, thank you for all you gave, to all of us..
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DX2/99 Stg I,ER+PR+ Chemo lumpectomy - Neg nodes,rads, tamox,femara. DX4/09, Stg IIB /III, TNBC IDC, Grade III, 2.5CM, mastectomy. 4AC DD,12 wkly taxol,BRAC1&2Neg, Right Mast 11/25/09
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jody
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Joined: Nov 04 2008 Location: La Verne, California Status: Offline Points: 105 |
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Posted: Sep 25 2011 at 9:20pm |
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Like many others, Connie was one of the first people to reach out to me in early 2008 when I was first diagnosed. She helped SO very much with this (then especially) little known about illness. I think one of the best ways we can honor her is to always jump in to help the "Newbies" even if you have to repeat yourself for the hundredth time....She NEW that we were scared and NEEDED her wisdom .. she was always there...R.I.P Connie and thank you for doing your part...we will continue for you!
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diagnosed 4/16/08 stage 1, node neg TN grade 3,lumpectomy 4/30/08 chemo a/c 6 rnds, finished 9/08. Radiation begins 11/6/08 La Verne, California
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denise07
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Joined: Jun 26 2010 Location: pa Status: Offline Points: 997 |
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Posted: Sep 25 2011 at 10:21pm |
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I am so orry to hear of the great loss of cg,I pray for her and her family. Ipray she is in a better place now no more suffering.
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DX Idc 10/07,st2,gr3,2/6 lymphnodes
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SagePatientAdvocates
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Joined: Apr 15 2009 Status: Offline Points: 4748 |
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Posted: Sep 25 2011 at 10:34pm |
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Well, I am going to forward this thread to Connie’s family and if there are more posts in the next few days, I shall update it and forward it again.
I think it is a lovely testament to Connie and will show her loved ones how cherished she was here. As always, there are many, whose lives Connie touched, who have completed treatment, are NED and do not post. That is simply the reality of this site and is totally understandable. with my love to all of you, Steve
Edited by steve - Sep 25 2011 at 10:35pm |
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I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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Shelly Rae
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Joined: Apr 25 2009 Location: US Status: Offline Points: 318 |
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Posted: Sep 25 2011 at 10:46pm |
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" Eternal Rest Grant Unto Her Oh Lord And May Perpetual Light Shine Upon Her and May The Souls of The Faithful Departed Through the Mercy of God Rest in Peace." Amen
You will be missed, Shelly Rae
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4/09 age 47 Stage 3a, Gr 3,1 node micro ACx4 Tx4 Rads x 33, done Dec.1,2009 NED
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Katastrophe
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Joined: Jul 22 2010 Location: Australia Status: Offline Points: 287 |
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Posted: Oct 02 2011 at 9:09am |
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Sometimes words just dont cut it .... Kat xxxx
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Age 49. Stg2 gr3 19mm lump in L/br 1 lymph node in L/br 3/14 lymph nod under left arm full clear bil/mast 6rds Chemo 3wkly 25rds Rad 18rds of Avastin finished treatment on 19th August 10.
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tofu
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Joined: Feb 22 2008 Location: Yokohama, Japan Status: Offline Points: 37 |
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Posted: Oct 02 2011 at 8:32pm |
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Dear Steve and everyone, I informed Connie from Nancy's e-mail. I have no words to describe my grief in English.
Connie is my first friend and mate of TNBC.
And she helped me, introduced me other TNBC mates, and informed me a lot of important TNBC information. I'll pray for Connie and her family.
I believe as long as anyone keeps in mind about Connie, she is alive. And we never forget her. Thank you Steve and Nancy. with love and grief
Edited by tofu - Oct 03 2011 at 10:05am |
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Aug/07 age:48 IDC TNBC Neo-adjuvant EC+T Feb/08 Mastectomy & reconstruction with DIEP-flap. 4.7x2.7cm N0 g3 May/08-Apr/09 Xeloda to4f.blog110.fc2.com |
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dmayes
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Joined: Apr 23 2009 Location: Alberta, Canada Status: Offline Points: 183 |
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Posted: Jun 12 2012 at 4:28pm |
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This is sad news! Connie was my first real hope and friend on this site! Being a new comer to Canada, then discovering I had TNBC - I was rattled and ready to board the first plane home! But Connie put me on the path of knowledge, and given her armour of questions and resolve - I pushed and got the treatment I wanted (not the standard every day response)! I was able to work with a wonderful Onc in Edmonton and with his help I got out of the maze and into some real options for treatment. Connie - without you I truely believe I would not be here today! I believe the standard treatment here would not have helped me at all. My onc was most impressed by my knowledge of TNBC (thanks again Connie) and welcomed by pushing the options! He indeed wanted to refer me to some specialists - but here unless you ask, you do not receive! Rest well, Connie! I am glad there is a Angel like you now watching me from the heavens - help me stay on the right path and keep me seeking those options! Hugs Forever DM
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Debs | Laugh every day, Love every minute.
Dx Mar09 - LB IDC 4.5cm - 0 nodes. BRCA - Cytoxin/Taxotere x4 end Jul09. ReCon surgery March10. |
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mainsailset
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Joined: Jul 27 2008 Location: Washington State Status: Offline Points: 5004 |
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Posted: Jun 12 2012 at 4:49pm |
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DM, on one of my last phone conversations with her she spoke of you and how proud she was of the work you had done to become a strong and informed survivor. Like you, I am humbled by her contribution to so many here and I know she is looking out for us and nudging us to keep asking question.
Take care
Mainy
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dx 7/08 TN 14x6.5x5.5 cm tumor
3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear |
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