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new triple negative cancer dx

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barbara 26 View Drop Down
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    Posted: Jun 04 2009 at 5:20pm
i am new to forum.  I was dx with breast cancer in april, and learned I was triple negative this past week.  I had a lumpectomy on 5/8/09.  and met with an onc 6/2 to discuss options regarding chemo.  I am 69 years old, and had been working as an er nurse prior to may 8th.  my cancer was 1cm, grade 3, undifferenciated, invasive with negative nodes. I never had a braca test.  I was offered 2nd generation regimen and third generation regimen.  The regimens did not seem to offer me that much difference in outcome.  I plan to start radiation rx within the next 2 weeks.  I AM IN  otherwise good health.  I would appreciate any input anyone out there might have as this is all new to me.
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Nancy View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Jun 04 2009 at 9:58pm
Hi Barbara,
 
I am Nancy and my daughter Lori was dx wirth TNBC June 2007. Welcome to the site, but sorry we had to meet this way.
 
Are you saying that you will not be taking chemo, but are planning on doing radiation? We have tons of info here on the site, and many articles for you to read which are located in the TNBC News, Resources & Tips forum. Just click right on those words, and scroll down the page to forum topics. There are about 42 pages of info. Pam (trip2) posts new info there almost every day, and is always researching for everyone here on the site.
 
Lori teaches second grade but is also a nurse...not practicing for many years now, but once a nurse always a nurseWink
 
May I ask where you live and will be receiving treatments? We live in Altoona, PA and Lori lives 12 miles form us.She had surgery at Magee Women's hospital in Pittsburgh, and treatments here in Altoona.
 
If there is a family history of cancer, and in particular breast cancer, you may want to have the BRCA testing, as the gene mutation can be passed from both parents. Lori tested negative for the BRCA gene mutation.
 
Please tell us more about yourself if you don't mind, and ask any and all questions you may have. I will now send you a private message with my email, so that I can send you directions for retrieveing all the information here on the site.
Hugs,
Nancy
Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008
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Post Options Post Options   Thanks (0) Thanks(0)   Quote mefowler Quote  Post ReplyReply Direct Link To This Post Posted: Jun 06 2009 at 10:41am
When I checked on Adjuvant!, it looked to me like you would have at most a 4% increase in ten-year survival with third-generation chemotherapy.  Only you can decide whether that is enough difference to make chemotherapy worthwhile for you.  Regardless, you can come here for support and encouragement.  I wish you all the best.
 
Maire
53 yo, dx'd 11/08 at 51, 2.9 cm IDC, node-neg, neoadj chemotx with Taxotere/carboplatin q3wks x 6, lumpectomy 4/09, path showed pCR, margin reexcision 5/09, rad'n 6-8/09, intermittent Tarceva, dc'd
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Post Options Post Options   Thanks (0) Thanks(0)   Quote mefowler Quote  Post ReplyReply Direct Link To This Post Posted: Jun 06 2009 at 10:53am
Dear Barbara,
 
I found this, a very similar situation to yours, just thought you might want to see it and the recommendation.  You can find it at this web site: http://cme.medscape.com/viewarticle/564815
 
Hope this is helpful.
 
Maire
53 yo, dx'd 11/08 at 51, 2.9 cm IDC, node-neg, neoadj chemotx with Taxotere/carboplatin q3wks x 6, lumpectomy 4/09, path showed pCR, margin reexcision 5/09, rad'n 6-8/09, intermittent Tarceva, dc'd
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Loricarol View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Loricarol Quote  Post ReplyReply Direct Link To This Post Posted: Jun 06 2009 at 1:17pm
Barbara
I was diagnosed April 30th and had mastectomy 5/5 for a cancer very similar to yours. But i had two tumors 1cm and 2cm very near one another. I was told also triple negative invasive cancer with no nodes involved and clear margins. Grade 3 poorly differentiated and a stage 1. Because my entire breast was removed Im told i will not need Rads but was told that i must have chemo. Im starting 6/17. The outcomes were confusing to me when showed to me. Im 45 and also a RN im opting to take the chemo. I hope that all goes well with you. God Bless You!
Lori
DX 4/30/2009 IDC, stage 1 ,grade 3,2 tumors,node negative,clear margins ,BRCA negative left breast mastetcomy, 4 cycles of Adramycin and Cytoxan 12 weekly treatments of Taxol start 8/12. No rads.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Loricarol Quote  Post ReplyReply Direct Link To This Post Posted: Jun 06 2009 at 1:23pm
Marie

Great article thanks a lot for posting it it is awesome when articles like this one are made available for us new comers to read as many times we are wrestling with decisions and have so many questions that need answers. I liked this very reputable source from Johns Hopskins!
Lori

Edited by Loricarol - Jun 06 2009 at 1:25pm
DX 4/30/2009 IDC, stage 1 ,grade 3,2 tumors,node negative,clear margins ,BRCA negative left breast mastetcomy, 4 cycles of Adramycin and Cytoxan 12 weekly treatments of Taxol start 8/12. No rads.
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