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lady4law View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote lady4law Quote  Post ReplyReply Direct Link To This Post Posted: Jul 24 2007 at 7:42am
I wondered about that myself....I hear the shot is between $2,000 - 4,000.
Is that correct? I'd be afraid I might drop it...then where woudl I be?
IBC/TN 6/07 Lymph, Chemo, Mast w/rec, chemo, 2 infect surg, exchg (2x) redo rec (2x) 4 new tumors esophagus, colon, chest, mouth, (10/11- 5th SUV7)"Activity" in spine hip
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bunnysmama Quote  Post ReplyReply Direct Link To This Post Posted: Jul 24 2007 at 8:01am
According to neulastainfo.com, "Depending on where you buy your dosage from, the cost of Neulasta is between $3000 and $7000.00 per syringe, but you will receive discounts if you buy more than one syringe at a time."  This part I found amusing: "If you have Medicare or qualify for Medicare then some people have been able to pay as low as $1500 for one syringe."  As LOW as???  You figure most people have a minimum of four treatments, which means four syringes of Neulasta, which equals a minimum of $6,000!
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lady4law View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote lady4law Quote  Post ReplyReply Direct Link To This Post Posted: Jul 24 2007 at 8:05am
no kidding ...I will have 6...that;s $18,000-42,000!
SOme one is getting rich.
IBC/TN 6/07 Lymph, Chemo, Mast w/rec, chemo, 2 infect surg, exchg (2x) redo rec (2x) 4 new tumors esophagus, colon, chest, mouth, (10/11- 5th SUV7)"Activity" in spine hip
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bunnysmama Quote  Post ReplyReply Direct Link To This Post Posted: Jul 24 2007 at 8:19am

It's sad to think that people who qualify for Medicare are over 65 or disabled, meaning most will be on a fixed income.  That is a LOT of money for people in that group to spend, especially for something that is a necessity.

It makes me feel even more fortunate that the health care coverage I have has been exceptional, and my copayment for Neulasta was only $25.

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lady4law View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote lady4law Quote  Post ReplyReply Direct Link To This Post Posted: Jul 24 2007 at 12:22pm
I was not chanrged my $25 copayment, but perhaps because it was given in the infusion center not the Dr's office.
I'lll like to find a web site that posts the costs of these drugs.
IBC/TN 6/07 Lymph, Chemo, Mast w/rec, chemo, 2 infect surg, exchg (2x) redo rec (2x) 4 new tumors esophagus, colon, chest, mouth, (10/11- 5th SUV7)"Activity" in spine hip
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Post Options Post Options   Thanks (0) Thanks(0)   Quote woolie Quote  Post ReplyReply Direct Link To This Post Posted: Jul 26 2007 at 5:07pm
The Neulatsa is pretty standard. I get mine the day after but one week later I got severe bone pain which can be a side effect. If you experience this the Md told be to take pain pills and drink alot of water, luckily the pain only lasted one night.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote woolie Quote  Post ReplyReply Direct Link To This Post Posted: Jul 26 2007 at 5:09pm
Neulasta is pretty routine the day after chemo. I got severe bone pain one week later and needed pain meds and the MD said to drink alot of water so I am floating away.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote lady4law Quote  Post ReplyReply Direct Link To This Post Posted: Jul 26 2007 at 6:41pm
That's really scary as I have been sick ever since the drug was admiinistered. (Last Saturday). Today I saw my ONC and she said my white count is STILL very low and I must stay away from my dogs and birds and eat special foods, no fresh stuff. It hard to believe I am going to feel even worse tomorrow or Saturday. 
IBC/TN 6/07 Lymph, Chemo, Mast w/rec, chemo, 2 infect surg, exchg (2x) redo rec (2x) 4 new tumors esophagus, colon, chest, mouth, (10/11- 5th SUV7)"Activity" in spine hip
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Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Jul 27 2007 at 3:18am
Jean I didn't realize you had to stay away from your dogs and birds, both of which I have in my house??  Is this because of possible infection while your counts are low?  I did know about the fresh fresh foods.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote woolie Quote  Post ReplyReply Direct Link To This Post Posted: Jul 27 2007 at 3:45am
You should probably talk to a dietitian about which fresh foods. I believe anything with a hard skin like bananas or citrus and melons are ok.They really wants you to avoid salads and fruit that you bite into.Kepp your animals in a different area of the house ,wash your hands frequently and have someone care for them for now.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote woolie Quote  Post ReplyReply Direct Link To This Post Posted: Jul 27 2007 at 3:47am
Neulasta costs 6 grand per shot and with my insurance if I got it at a local pharmacy it would cost me 600 dollars.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bunnysmama Quote  Post ReplyReply Direct Link To This Post Posted: Jul 27 2007 at 4:25am
Lady4law,
 
I also developed neutropenia despite the fact that I took Neulasta after every treatment.  I ended up with a severe sinus infection at the same time, so my onc put me on some serious antibiotics.  She told me that I should avoid any raw fruits and vegetables - any raw foods at all - to prevent bacteria from entering the body.  She also said it's particularly important to avoid any cuts or scrapes on your skin, again to protect yourself from bacteria.  The good news is that your white blood count tends to rebound quickly after it reaches its lowest point.  In my case, because of that one bad episode, I was put on prophylactic antibiotics after each subsequent chemo treatment.  My blood counts still dropped, but I was able to avoid any additional infections.
 
Hope that helps.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote lady4law Quote  Post ReplyReply Direct Link To This Post Posted: Jul 27 2007 at 10:25am
Darn I responded and then lost the whole thing.

Is there a special diet called neutropenia? I swear that's what my doctor said I was suppose to be on until I see her partner next week.

I had a difficult time getting any words in yesterday at the Onc. My husband was sitting on one side, my son on the other. They continued to talk none-stop. I thought I was going nuts. I was extremely weak, but I could talk. I know they are concerned, but I really got nothing out of the visit other than my white count is very low. My Onc didn't weight me, take my BP, or examine me. (There was concern that besides IDC, I might also have IBC. I wanted her to note the "rash" had returned!)

Thes guys continue to keep up this non-stop talking with the Office help, driving them nuts about 2 appointments, that I knew when they were to be made, CBC day b4 office visit. Also relative to more RXs and they needed my Phram & Ins info, which I had in my hand. I felt like they both believed I had lost my mind with last weeks chemo.
Has this happened to you?

IBC/TN 6/07 Lymph, Chemo, Mast w/rec, chemo, 2 infect surg, exchg (2x) redo rec (2x) 4 new tumors esophagus, colon, chest, mouth, (10/11- 5th SUV7)"Activity" in spine hip
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Post Options Post Options   Thanks (0) Thanks(0)   Quote lady4law Quote  Post ReplyReply Direct Link To This Post Posted: Jul 27 2007 at 10:27am
True, and she did mention Bananas....but I thought they go bad in a day adn their sick is easily broken. I am not eating much of anything and yet some how I gained 3 pounds.

IBC/TN 6/07 Lymph, Chemo, Mast w/rec, chemo, 2 infect surg, exchg (2x) redo rec (2x) 4 new tumors esophagus, colon, chest, mouth, (10/11- 5th SUV7)"Activity" in spine hip
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Post Options Post Options   Thanks (0) Thanks(0)   Quote lady4law Quote  Post ReplyReply Direct Link To This Post Posted: Jul 27 2007 at 10:29am
I hadn't eaten for days, toast, oatmeal, and really thought a Chiness Chicken Salad sounded good...first thing that did....and the Dr said NO.
IBC/TN 6/07 Lymph, Chemo, Mast w/rec, chemo, 2 infect surg, exchg (2x) redo rec (2x) 4 new tumors esophagus, colon, chest, mouth, (10/11- 5th SUV7)"Activity" in spine hip
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bunnysmama Quote  Post ReplyReply Direct Link To This Post Posted: Jul 27 2007 at 10:30am
Lady4law,
 
Neutropenia is actually the name of the condition that happens when your neutrophils (a type of white blood cell) gets too low.  They are what destroy the bacteria in your blood.  That's why it's so important for you to avoid anything that may cause an infection until your white blood counts bounce back up again.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Jul 28 2007 at 3:46am
Jean your taste for food will probably change as you have already noticed.  Some things you ate before will sound terrible and sometimes strange things sound good.
Right now about all I enjoy is watermelon and cereal.
The first time around I ate popcorn and oranges.
Ya just never know.
 
Good luck to you, I know you are having  hard time,
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lady4law View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote lady4law Quote  Post ReplyReply Direct Link To This Post Posted: Jul 28 2007 at 6:43am
I did have a craving for Chiness Chicken Salad....and still do. I wonder if I'll still want that next Thursday after my weekly check-up. (hopefully I can eat by then.) y husband got me some frozen single servings of oatmeal, to eat when he was gone. (Trader Joes) They are pretty good. However, soon I finsihed mine small portion this AM, the nausia set back in. I really must get something healthy down me as I now feel like I am coming down with a cold, running nose and cough.

I know fresh veggies & most fruit are out, but what about canned veggies, i.e soup?


IBC/TN 6/07 Lymph, Chemo, Mast w/rec, chemo, 2 infect surg, exchg (2x) redo rec (2x) 4 new tumors esophagus, colon, chest, mouth, (10/11- 5th SUV7)"Activity" in spine hip
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bunnysmama Quote  Post ReplyReply Direct Link To This Post Posted: Jul 28 2007 at 8:06am

Sounds like you're going through a rough time!  I know it's hard, but hang in there.  Also, keep an eye on those cold symptoms.  When your neutrophils are down and your body's defense system is weakened, things like colds that are normally merely an inconvenience can now quickly get worse.  Are you checking your temperature?  I was told that if your temp gets over 100.5 you should call your doctor immediately.

I did eat canned fruit during the times I had neutropenia, anything that was already cooked.  In fact, what I craved most during treatments were smoothies.  Have you ever heard of the cookbook "Eating Well Through Cancer" by Holly Clegg & Gerald Miletello?  I don't know if you like to cook, but this cookbook has a section on neutropenia with easy things to prepare.  In case you don't have it, here's a list of the recipes in that section.  If any of them sound good, I can copy the recipe on here so you can try it.
 
- Quick cheese grits
- Pumpkin soup
- Cheese broccoli soup
- Two-potato bisque
- Artichoke soup
- Easy crab soup
- Linguine florentine
- Loaded potatoes
- Cheesy shrimp rice casserole
- Chicken pot pie
- Chicen piccata
- Very good veal
- Hot fruit compote
- Heavenly yam delight
- Mocha cappuccino pudding pie
- Baked peach delight
- Peach smoothie
- Peach weight gain shake
- Basic weight gain shake
- Hot cocoa drink supplement
 
All of the recipes use canned fruits and veggies and are safe to eat.  I tried several of them and they were good.  As I said, I'm happy to share any you might like.
 
Take good care of yourself! 
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Post Options Post Options   Thanks (0) Thanks(0)   Quote PineHouse Quote  Post ReplyReply Direct Link To This Post Posted: Jul 28 2007 at 1:39pm
Wow, Bunnysmama, I like the menu you posted here.  Maybe I'll go look for that book.  Thanks for posting it.
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