Neulastia
Printed From: TNBC Foundation
Category: TNBC Forums
Forum Name: Archived Topics
Forum Description: Archived Topics
URL: http://forum.tnbcfoundation.org/forum_posts.asp?TID=142
Printed Date: Mar 26 2026 at 8:24pm
Software Version: Web Wiz Forums 12.01 - http://www.webwizforums.com
Topic: Neulastia
Posted By: lady4law
Subject: Neulastia
Date Posted: Jul 19 2007 at 4:29pm
| Is it normal procedure to have neulastia the day after chemo? Iam having my first chemo tomorrow and suppose to have the neulastia Saturday. |
Replies:
Posted By: trip2
Date Posted: Jul 20 2007 at 3:44am
|
I know alot of ladies get them including me. It can really make a difference during that nadir period, the first 7 to 10 days after chemo when your white blood cell count drops. It helps keep them from dropping too low. ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: peach
Date Posted: Jul 20 2007 at 5:04am
| I get mine the day after chemo, they give it to me in my stomach I don't feel a thing. Best of luck today. |
Posted By: PineHouse
Date Posted: Jul 20 2007 at 6:57am
|
I get my Neulasta the day after chemo too on my current chemo. I had a different treatment 3 years ago where I had to give myself Neupogen (similar medication to boost WBC) injection once a day for a few days during the chemo cycle. That was an interesting experience. ------------- Stage IV lung-06/06 brain-12/08 BRCA1 TNBC Avastin+Taxol,Carboplatin,PARP-Inhibitor,Navelbine+Xeloda,Avastin+Ixempra,Doxil+Cytoxan Currently Abraxane+Gemzar (3/09) http://pinehouse.wordpress.com/ |
Posted By: MicheleM
Date Posted: Jul 20 2007 at 9:44am
|
Hi.......
I had chemo on Fridays and then nuelasta on Sunday.......I think that's pretty standard....... ------------- Michele DX,8-04,IDC, Stage 2A, Gr.3, Lumpectomy/sentinel node biopsy, clear margins, triple negative, 4 A/C, 4 Taxol, 33 Rad |
Posted By: Lisa L
Date Posted: Jul 20 2007 at 12:24pm
|
I also had neulasta the day following chemo. The onc nurse taught my husband how to do it so we wouldnt have to go back for the shot. It stings a little, but is over with quickly. It goes just below your skin, not deep into a muscle. It can cause muscle pain also, but it wasnt bad. Good luck to you, and remember, if you have side effects, dont be afraid to call and ask for some differrent meds. No need to suffer too much! good luck to you. ------------- Dx 8/05 age 43 mast & lat flap 10/05 Triple neg BRCA neg IDC 4.5cm rt br 0/1 sen node 6 A/C 5 Taxol, 25 rads 11/05-6/06 Central Illinois Currently NED |
Posted By: fd411
Date Posted: Jul 20 2007 at 2:01pm
|
When I was doing TAC, I got chemo on a Thursday and the Neulasta the following Monday. Usually the injection is given 24 hours after chemo. For me, my counts went way down before the neulasta started to bring them back up. ------------- Ferne 2006 - Stage IIIA IDC; TAC, lumpectomy, rads 5/07 Mets to lungs, chest, supe clav and axillary nodes 7/07 Skin mets, neck nodes 9/07 Liver mets, more nodes 1/08 Brain Mets, more nodes |
Posted By: lady4law
Date Posted: Jul 20 2007 at 4:56pm
|
THank you allI am very weell tonight and wll have amy neulasria to morroow. O hop rof feel better.
|
Posted By: trip2
Date Posted: Jul 21 2007 at 7:49am
|
Jean how did your first chemo treatment go? ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: lady4law
Date Posted: Jul 21 2007 at 3:14pm
|
CHmeo was't as babd as I thought it woudl be. May thing...as expected...was the IV. Grist nurse poked around both arms, put a hot pad on...then poked around some more. (We we first went in, we say a guy that always does my son;s chemo on the first try...he kept an eye out for me and asfter seeing her do this for about 10+ minutes, he can over and asked her if he coudl do it. ONe try but I started bleeding, so he had to juse the other arm. One try.
Tod ay he gave me my Nuelastia. ONE TRY...and I actually didn't feel a time. He ribbed my arm well putting the drug in , and the needle was very small. be great if her was my nurse next time. Looks like my chemo has been changed from 3 cycles (3 weeks apart) to 6 treatments. Puts of fthe mastectomy until October? more chemo, the relocating my pacemaker than RADS....looks like a long year. Jean |
Posted By: trip2
Date Posted: Jul 22 2007 at 4:33am
|
Jean, good, I'm glad your first treatment wasn't all that bad, that is a little tough when you don't have a port. Hate the needle poking! I wonder why they couldn't put a port in since you are having 6 instead of 3?
I'm also glad to hear you got your Neulasta shot, it should really help you during the next few days as it kicks in with your white blood cell count.
I'm sorry they have added more chemo treatments. Yes it does make for a longer year but evidently they decided it was the best for you. Things will come, we are forced to learn patience and it is really hard to do.
 I have been dealing with my situation since early February, they just added 2 more treatments on me last week so I can understand a little of how you feel.
I sure hope you get thru this as smoothly as possible. Keep us posted and ask questions if you have them, we're here for you. ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: Bunnysmama
Date Posted: Jul 23 2007 at 9:19am
| Just out of curiosity, when all of you got (or are currently getting) your Neulasta, did you give it to yourself or did someone do the injection for you? In my case, I got the prescription ahead of time (thank the lucky stars for health insurance - that stuff is exPENsive!!) and kept it in my fridge, then my chemo nurses would give me instructions on my treatment days for what time I should take the Neulasta the following day. It was always a minimum of 24 hours later so that the chemo would have a chance to leave my system before I took the shot, otherwise the chemo would kill the effects of the Neulasta. But I always gave myself the injection instead of having to go back to the hospital. Just wondering how others do it. |
Posted By: lady4law
Date Posted: Jul 23 2007 at 11:17am
|
I was first told I would have 3 chmeo treaments (cycles) then surgery, followed by more chemo. My Oncologist did mention any increase but my hosiptial papers said 6 chemos as scheudaled. With my son his cycles where 2 sesions. I wonder if I misundersstood her or if she did add 3 more after reviewing my PET/CT. SHe was very vague about the results. She just said the PET showed activity in my left breast, near the surgical site and under my arm (lymphnode). She did not explain what that "acticity" is.
I am having my husband contact my regualar GP, who also was sent the reportss, and ask if she coudl formward copies to us and explain thena littel better. I have very little energy to day so forgive these psoting if it makes no sence. Jean ------------- IBC/TN 6/07 Lymph, Chemo, Mast w/rec, chemo, 2 infect surg, exchg (2x) redo rec (2x) 4 new tumors esophagus, colon, chest, mouth, (10/11- 5th SUV7)"Activity" in spine hip |
Posted By: lady4law
Date Posted: Jul 23 2007 at 11:20am
|
I wondered about that also. M husband was a NYFD and paramedic for 17 years, he knows how to give shots. I woudl rahter he gave me the shot and save me from the trip all the way back to the hospital.
He doesn't neeed a lesson on how to give a shot, I woudl, but I coudl not do it, and would have to return to recieve the meds. Jean ------------- IBC/TN 6/07 Lymph, Chemo, Mast w/rec, chemo, 2 infect surg, exchg (2x) redo rec (2x) 4 new tumors esophagus, colon, chest, mouth, (10/11- 5th SUV7)"Activity" in spine hip |
Posted By: Lisa L
Date Posted: Jul 23 2007 at 2:22pm
|
My onc nurse showed my husband how to give the shots so we were able to do it at home. I felt like I was living at the doctos office already without going back another day! They go in just under the skin in your belly so they are not to bad. ------------- Dx 8/05 age 43 mast & lat flap 10/05 Triple neg BRCA neg IDC 4.5cm rt br 0/1 sen node 6 A/C 5 Taxol, 25 rads 11/05-6/06 Central Illinois Currently NED |
Posted By: Vicki G
Date Posted: Jul 23 2007 at 2:31pm
|
I had Neulasta after each A/C. Chemo on Friday's and gave myself a shot on Saturday's. Then with Taxol they switched me to Neupogen. 7 shots for 7 days! Now that sucked! It was bad enough doing it once a week...That is one thing I could never get used to.
But I injected myself in my hip. The nurse showed me with the first injection but never mentioned my belly...Hmmmm. And YES that stuff is a fortune!!! Vicki ------------- Lb Lumpectomy, IDC, Stage 2, Grade 3, 1+ node, 4 x A/C, 4 x Taxol, 33 x Rads. NED almost 4 yrs. Los Angeles, Ca. |
Posted By: fd411
Date Posted: Jul 23 2007 at 3:16pm
|
I went back to the infusion room at the hospital to get my shot. I don't think I could give myself a shot or let a friend do it.
------------- Ferne 2006 - Stage IIIA IDC; TAC, lumpectomy, rads 5/07 Mets to lungs, chest, supe clav and axillary nodes 7/07 Skin mets, neck nodes 9/07 Liver mets, more nodes 1/08 Brain Mets, more nodes |
Posted By: lady4law
Date Posted: Jul 23 2007 at 4:21pm
|
THe nurse asked me where I wanted it, stomach or arm...I took the arm. I thought it woudl hurt less. ------------- IBC/TN 6/07 Lymph, Chemo, Mast w/rec, chemo, 2 infect surg, exchg (2x) redo rec (2x) 4 new tumors esophagus, colon, chest, mouth, (10/11- 5th SUV7)"Activity" in spine hip |
Posted By: lady4law
Date Posted: Jul 23 2007 at 4:23pm
|
That's waht happened to my son. He had a raction to the Nuelesta so they gave him the other drug. He also had to have a blood test done every day after 3 shots. Once his count reached a good number they stopped the shots. ------------- IBC/TN 6/07 Lymph, Chemo, Mast w/rec, chemo, 2 infect surg, exchg (2x) redo rec (2x) 4 new tumors esophagus, colon, chest, mouth, (10/11- 5th SUV7)"Activity" in spine hip |
Posted By: trip2
Date Posted: Jul 24 2007 at 3:10am
|
Well I have to drive to my clinic 40 miles one way to get the Nuelasta shot the day after being there for chemo. I have them give it in the hip since I have lymph nodes taken from both axillas.
I had thought maybe the ones who did them at home lived too far away so asked about it myself but my Onc nurse told me alot of insurance companies don't like the idea since they are so expensive. ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: lady4law
Date Posted: Jul 24 2007 at 7:42am
|
I wondered about that myself....I hear the shot is between $2,000 - 4,000.
Is that correct? I'd be afraid I might drop it...then where woudl I be? ------------- IBC/TN 6/07 Lymph, Chemo, Mast w/rec, chemo, 2 infect surg, exchg (2x) redo rec (2x) 4 new tumors esophagus, colon, chest, mouth, (10/11- 5th SUV7)"Activity" in spine hip |
Posted By: Bunnysmama
Date Posted: Jul 24 2007 at 8:01am
| According to neulastainfo.com, "Depending on where you buy your dosage from, the cost of Neulasta is between $3000 and $7000.00 per syringe, but you will receive discounts if you buy more than one syringe at a time." This part I found amusing: "If you have Medicare or qualify for Medicare then some people have been able to pay as low as $1500 for one syringe." As LOW as??? You figure most people have a minimum of four treatments, which means four syringes of Neulasta, which equals a minimum of $6,000! |
Posted By: lady4law
Date Posted: Jul 24 2007 at 8:05am
|
no kidding ...I will have 6...that;s $18,000-42,000!
SOme one is getting rich. ------------- IBC/TN 6/07 Lymph, Chemo, Mast w/rec, chemo, 2 infect surg, exchg (2x) redo rec (2x) 4 new tumors esophagus, colon, chest, mouth, (10/11- 5th SUV7)"Activity" in spine hip |
Posted By: Bunnysmama
Date Posted: Jul 24 2007 at 8:19am
|
It's sad to think that people who qualify for Medicare are over 65 or disabled, meaning most will be on a fixed income. That is a LOT of money for people in that group to spend, especially for something that is a necessity. It makes me feel even more fortunate that the health care coverage I have has been exceptional, and my copayment for Neulasta was only $25. |
Posted By: lady4law
Date Posted: Jul 24 2007 at 12:22pm
|
I was not chanrged my $25 copayment, but perhaps because it was given in the infusion center not the Dr's office.
I'lll like to find a web site that posts the costs of these drugs. ------------- IBC/TN 6/07 Lymph, Chemo, Mast w/rec, chemo, 2 infect surg, exchg (2x) redo rec (2x) 4 new tumors esophagus, colon, chest, mouth, (10/11- 5th SUV7)"Activity" in spine hip |
Posted By: woolie
Date Posted: Jul 26 2007 at 5:07pm
The Neulatsa is pretty standard. I get mine the day after but one week later I got severe bone pain which can be a side effect. If you experience this the Md told be to take pain pills and drink alot of water, luckily the pain only lasted one night. 
|
Posted By: woolie
Date Posted: Jul 26 2007 at 5:09pm
Neulasta is pretty routine the day after chemo. I got severe bone pain one week later and needed pain meds and the MD said to drink alot of water so I am floating away. 
|
Posted By: lady4law
Date Posted: Jul 26 2007 at 6:41pm
|
That's really scary as I have been sick ever since the drug was admiinistered. (Last Saturday). Today I saw my ONC and she said my white count is STILL very low and I must stay away from my dogs and birds and eat special foods, no fresh stuff. It hard to believe I am going to feel even worse tomorrow or Saturday.
------------- IBC/TN 6/07 Lymph, Chemo, Mast w/rec, chemo, 2 infect surg, exchg (2x) redo rec (2x) 4 new tumors esophagus, colon, chest, mouth, (10/11- 5th SUV7)"Activity" in spine hip |
Posted By: trip2
Date Posted: Jul 27 2007 at 3:18am
|
Jean I didn't realize you had to stay away from your dogs and birds, both of which I have in my house?? Is this because of possible infection while your counts are low? I did know about the fresh fresh foods. ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: woolie
Date Posted: Jul 27 2007 at 3:45am
You should probably talk to a dietitian about which fresh foods. I believe anything with a hard skin like bananas or citrus and melons are ok.They really wants you to avoid salads and fruit that you bite into.Kepp your animals in a different area of the house ,wash your hands frequently and have someone care for them for now. 
|
Posted By: woolie
Date Posted: Jul 27 2007 at 3:47am
| Neulasta costs 6 grand per shot and with my insurance if I got it at a local pharmacy it would cost me 600 dollars. |
Posted By: Bunnysmama
Date Posted: Jul 27 2007 at 4:25am
|
Lady4law,
I also developed neutropenia despite the fact that I took Neulasta after every treatment. I ended up with a severe sinus infection at the same time, so my onc put me on some serious antibiotics. She told me that I should avoid any raw fruits and vegetables - any raw foods at all - to prevent bacteria from entering the body. She also said it's particularly important to avoid any cuts or scrapes on your skin, again to protect yourself from bacteria. The good news is that your white blood count tends to rebound quickly after it reaches its lowest point. In my case, because of that one bad episode, I was put on prophylactic antibiotics after each subsequent chemo treatment. My blood counts still dropped, but I was able to avoid any additional infections.
Hope that helps.
|
Posted By: lady4law
Date Posted: Jul 27 2007 at 10:25am
|
Darn I responded and then lost the whole thing. Is there a special diet called neutropenia? I swear that's what my doctor said I was suppose to be on until I see her partner next week. I had a difficult time getting any words in yesterday at the Onc. My husband was sitting on one side, my son on the other. They continued to talk none-stop. I thought I was going nuts. I was extremely weak, but I could talk. I know they are concerned, but I really got nothing out of the visit other than my white count is very low. My Onc didn't weight me, take my BP, or examine me. (There was concern that besides IDC, I might also have IBC. I wanted her to note the "rash" had returned!) Thes guys continue to keep up this non-stop talking with the Office help, driving them nuts about 2 appointments, that I knew when they were to be made, CBC day b4 office visit. Also relative to more RXs and they needed my Phram & Ins info, which I had in my hand. I felt like they both believed I had lost my mind with last weeks chemo. Has this happened to you? ------------- IBC/TN 6/07 Lymph, Chemo, Mast w/rec, chemo, 2 infect surg, exchg (2x) redo rec (2x) 4 new tumors esophagus, colon, chest, mouth, (10/11- 5th SUV7)"Activity" in spine hip |
Posted By: lady4law
Date Posted: Jul 27 2007 at 10:27am
|
True, and she did mention Bananas....but I thought they go bad in a day adn their sick is easily broken. I am not eating much of anything and yet some how I gained 3 pounds. ------------- IBC/TN 6/07 Lymph, Chemo, Mast w/rec, chemo, 2 infect surg, exchg (2x) redo rec (2x) 4 new tumors esophagus, colon, chest, mouth, (10/11- 5th SUV7)"Activity" in spine hip |
Posted By: lady4law
Date Posted: Jul 27 2007 at 10:29am
|
I hadn't eaten for days, toast, oatmeal, and really thought a Chiness Chicken Salad sounded good...first thing that did....and the Dr said NO.
------------- IBC/TN 6/07 Lymph, Chemo, Mast w/rec, chemo, 2 infect surg, exchg (2x) redo rec (2x) 4 new tumors esophagus, colon, chest, mouth, (10/11- 5th SUV7)"Activity" in spine hip |
Posted By: Bunnysmama
Date Posted: Jul 27 2007 at 10:30am
|
Lady4law,
Neutropenia is actually the name of the condition that happens when your neutrophils (a type of white blood cell) gets too low. They are what destroy the bacteria in your blood. That's why it's so important for you to avoid anything that may cause an infection until your white blood counts bounce back up again.
|
Posted By: trip2
Date Posted: Jul 28 2007 at 3:46am
|
Jean your taste for food will probably change as you have already noticed. Some things you ate before will sound terrible and sometimes strange things sound good.
Right now about all I enjoy is watermelon and cereal.
The first time around I ate popcorn and oranges.
Ya just never know.
Good luck to you, I know you are having hard time, ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: lady4law
Date Posted: Jul 28 2007 at 6:43am
|
I did have a craving for Chiness Chicken Salad....and still do. I wonder if I'll still want that next Thursday after my weekly check-up. (hopefully I can eat by then.) y husband got me some frozen single servings of oatmeal, to eat when he was gone. (Trader Joes) They are pretty good. However, soon I finsihed mine small portion this AM, the nausia set back in. I really must get something healthy down me as I now feel like I am coming down with a cold, running nose and cough. I know fresh veggies & most fruit are out, but what about canned veggies, i.e soup? ------------- IBC/TN 6/07 Lymph, Chemo, Mast w/rec, chemo, 2 infect surg, exchg (2x) redo rec (2x) 4 new tumors esophagus, colon, chest, mouth, (10/11- 5th SUV7)"Activity" in spine hip |
Posted By: Bunnysmama
Date Posted: Jul 28 2007 at 8:06am
|
Sounds like you're going through a rough time! I know it's hard, but hang in there. Also, keep an eye on those cold symptoms. When your neutrophils are down and your body's defense system is weakened, things like colds that are normally merely an inconvenience can now quickly get worse. Are you checking your temperature? I was told that if your temp gets over 100.5 you should call your doctor immediately. I did eat canned fruit during the times I had neutropenia, anything that was already cooked. In fact, what I craved most during treatments were smoothies. Have you ever heard of the cookbook "Eating Well Through Cancer" by Holly Clegg & Gerald Miletello? I don't know if you like to cook, but this cookbook has a section on neutropenia with easy things to prepare. In case you don't have it, here's a list of the recipes in that section. If any of them sound good, I can copy the recipe on here so you can try it.- Quick cheese grits
- Pumpkin soup
- Cheese broccoli soup
- Two-potato bisque
- Artichoke soup
- Easy crab soup
- Linguine florentine
- Loaded potatoes
- Cheesy shrimp rice casserole
- Chicken pot pie
- Chicen piccata
- Very good veal
- Hot fruit compote
- Heavenly yam delight
- Mocha cappuccino pudding pie
- Baked peach delight
- Peach smoothie
- Peach weight gain shake
- Basic weight gain shake
- Hot cocoa drink supplement
All of the recipes use canned fruits and veggies and are safe to eat. I tried several of them and they were good. As I said, I'm happy to share any you might like.
Take good care of yourself!
|
Posted By: PineHouse
Date Posted: Jul 28 2007 at 1:39pm
|
Wow, Bunnysmama, I like the menu you posted here. Maybe I'll go look for that book. Thanks for posting it. ------------- Stage IV lung-06/06 brain-12/08 BRCA1 TNBC Avastin+Taxol,Carboplatin,PARP-Inhibitor,Navelbine+Xeloda,Avastin+Ixempra,Doxil+Cytoxan Currently Abraxane+Gemzar (3/09) http://pinehouse.wordpress.com/ |
Posted By: lady4law
Date Posted: Jul 28 2007 at 2:01pm
|
Sounds good. My son and daughter-in-law just happen to be at "Boarders" right now. I am going to call him and see if he can locate the book for me. BUT just in case he cannot find it, I'd love the Cheese broccoli soup. I think I'll make 3-4 servings and freeze them for my next "Chemo-week".
------------- IBC/TN 6/07 Lymph, Chemo, Mast w/rec, chemo, 2 infect surg, exchg (2x) redo rec (2x) 4 new tumors esophagus, colon, chest, mouth, (10/11- 5th SUV7)"Activity" in spine hip |
Posted By: ruth
Date Posted: Oct 04 2007 at 7:39am
Yes it is normal. It keeps your white blood count high. I had my first treatment and the next day was given neulastia.
Ruth
|
Posted By: Darla
Date Posted: Oct 04 2007 at 2:17pm
|
When I had my 4 A/C chemo treatments I got the Neulasta shot immediately after chemo - the infusion nurse gave it to me. From what I've read here that's not the norm. For those of you who have to go back the next day or give the shot to yourself I suggest asking if you can be given the shot right away. The charge was over $7,000.00 but the insurance company paid about $2500 each time (I did not have to pay the difference). It is so unfair that someone who is not insured would have to pay the full billed amount thus subsidizing the insurance companies. |
Posted By: woolie
Date Posted: Oct 04 2007 at 2:33pm
| Dear Lady4Law : Just made a large pot of chicken vegetable soup and some cranberry yam bread for my chemo next week ,comfort foods JULES |
Posted By: lady4law
Date Posted: Oct 04 2007 at 6:09pm
|
I won't start (restart) my chemo for about 3 weeks (looks like 4 AC & 4-6 Taxotere) I had my bilateral mast/reconst AND relocation of my pacemaker last week. Was in the hospital for 1 week. My right side is very swollen this evening and I feel like vomiting.
------------- IBC/TN 6/07 Lymph, Chemo, Mast w/rec, chemo, 2 infect surg, exchg (2x) redo rec (2x) 4 new tumors esophagus, colon, chest, mouth, (10/11- 5th SUV7)"Activity" in spine hip |
Posted By: woolie
Date Posted: Oct 05 2007 at 1:47am
 Dear Lady4law: Best of luck to you , hope you feel better in this crazy world we live I will say it anyway God Bless YOU , I will pray for you. Jules
|
Posted By: BrendaStar
Date Posted: Oct 05 2007 at 3:43am
| Yes, I have the shot everytime a day after I have the chemo. |
Posted By: CarynRose
Date Posted: Oct 05 2007 at 5:18am
|
I get my neulasta shots right after I have my chemo treatments. The doctors feel there is no need to return the next day. So far, it's been fine.
Cheers,
Caryn
|
Posted By: lady4law
Date Posted: Oct 13 2007 at 3:10pm
|
unbelievable....I got to the hospital about 22 hours after my chemo, but was told I had to sit and wait 2 hours....in fact they brought out the drug co. info sheet.
------------- IBC/TN 6/07 Lymph, Chemo, Mast w/rec, chemo, 2 infect surg, exchg (2x) redo rec (2x) 4 new tumors esophagus, colon, chest, mouth, (10/11- 5th SUV7)"Activity" in spine hip |
Posted By: lady4law
Date Posted: Oct 13 2007 at 3:13pm
|
thank you I had the surgeries and GOOD news...my path report says CANCER FREE....yea BAD news, no sign of cancer anywhere....so why was I put thru all this surgery? There is NO SIGN of cancer anywhere, nodes, breast or skin. ------------- IBC/TN 6/07 Lymph, Chemo, Mast w/rec, chemo, 2 infect surg, exchg (2x) redo rec (2x) 4 new tumors esophagus, colon, chest, mouth, (10/11- 5th SUV7)"Activity" in spine hip |
Posted By: cg---
Date Posted: Oct 13 2007 at 3:56pm
|
Please refer to the manufacturer's precautions regarding Neulasta......
it is not to be given until 24 hours chemotherapy.
|
Posted By: cg---
Date Posted: Oct 13 2007 at 4:00pm
|
Sorry, the reply was sent before I finished.
I do not know of anyone receiving Neulasta the same day as chemotherapy. Apparently, according to the manufacturer's precautions....
Neulasta should not be given until 24 hours after chemotherapy. It has something to do with cytotoxic agents and splitting cells. The women with breast cancer at our clinic receive Neupogen (if you have chemotherapy on Friday....Neupogen shots start on Sunday).
|
Posted By: English Jan
Date Posted: Oct 13 2007 at 4:46pm
|
Hi All,
My ONC and nurses won't allow me to have the Neulasta before the 24 hours post chemo.
I go back to the ONC center, but it's no big deal only 5 miles away.
English Jan
|
Posted By: Darla
Date Posted: Oct 13 2007 at 4:49pm
Posted By: Bunnysmama
Date Posted: Oct 13 2007 at 4:52pm
|
I was also told that Neulasta should not be taken less than 24 hours out from chemo. Until that blast of chemo has been flushed out of your system, it will kill the colonies you introduce with the Neulasta shot and render them worthless. I was given instructions on how to give myself the injections at home 24 hours after every treatment. ------------- Dx 11/06 @ age 37 IDC Stage I, Grade 3 BRCA2+ |
Posted By: Darla
Date Posted: Oct 13 2007 at 5:01pm
|
Hi Bunnysmama, Can you explain what you mean by "it will kill the colonies you introduce"? Are you saying that those four horrible A/C treatments could have been for nothing? This discussion wasn't started until after I finished my A/C and I mentioned the day after Neulasta thing to my onc last time I met with him only to say that I was thankful that they didn't do it that way. I will definitely express my concern to him next time I see him. Thanks Darla |
Posted By: Nancy
Date Posted: Oct 13 2007 at 5:32pm
|
Darla,
I just told Lori today that so many of the women are getting their shots right after chemo. When I talked with her today, it was about 2:30 and she was going to give herselk the shot...which would not have been 24 hours until 4: 30. OMG! Do you mean that the chemo that she had yesterday would have been in vain????
 Some one post on this please!
Nancy |
Posted By: lady4law
Date Posted: Oct 13 2007 at 5:46pm
|
Darla I think that means the new cells will be killed by the chemo in our system, if the shot is given following the chemo. In othere words, the new white cells will be distroyed ------------- IBC/TN 6/07 Lymph, Chemo, Mast w/rec, chemo, 2 infect surg, exchg (2x) redo rec (2x) 4 new tumors esophagus, colon, chest, mouth, (10/11- 5th SUV7)"Activity" in spine hip |
Posted By: shellieh51
Date Posted: Oct 13 2007 at 5:50pm
| I had Neulasta the day following each AC infusion. The infusion center was emphatic that it occur 24 hours after infusion - oncologist would let me get it at any time the following day. It helped a great deal. I still have bone and joint pain and haven't had Neulasta since the end of April. AC was followed by Taxol and the onco keeps blaming it for the continued pain. Taxol is now two months behind me but the pain persists but is not as intense. Vicodin at night is the best relief. |
Posted By: Darla
Date Posted: Oct 13 2007 at 5:53pm
|
Hi Nancy, No! I was referring to my 4 A/C treatments because I had my Neulasta shot immediately after chemo each time. I was wondering what Bunnysmama meant when she said "it will kill the colonies you introduce" because I don't know what that means. I wouldn't worry about a couple of hours. See Lady4law's response to me. Sorry to cause you concern. Darla |
Posted By: Darla
Date Posted: Oct 13 2007 at 6:21pm
|
Thanks Lady4law, I thought I posted this already so if it appears twice I apologize. It's one thing for the Chemo to interfere with the Neulasta, I thought it was the other way around - so much confusion about this. I'm still upset that I was never told that the protocol was to wait 24 hours. Thanks Again Lady4law. Darla |
Posted By: Nancy
Date Posted: Oct 13 2007 at 6:48pm
|
Darla,
Thanks for replying. I am hoping then that the Neulasta will still do it's job.
I read that post way too fast. It means that the Neulasta will not be as effective if given less than the 24 hours after chemo. CarynRose needs to chime in here. She is so knowledgeable and she gets her shot right after chemo. Why can't all the oncs get together on these treatments. Where on the site did someone post that their onc stated that it didn't matter, (or something close to that statement). I will tell Lori to wait for the 24 hours. She read that you had to GIVE the shot no more than 24 hours after chemo, but not before. Last time she was so upset with herself that she was over one hour over the 24. As if you all don't have enoughto worry about.
Thanks again,
Nancy
|
Posted By: woolie
Date Posted: Oct 14 2007 at 2:44am
| The discussion about colonies are the neutrophils being formed in yur bone marrow. You need 24 hrs to clear the chemo so the Neulasta can do its job.I am not making comments about peoples doctors but they are probably not from a University setting. Small town doctors do not always stay on top of the most current info which is why forums like tis are great so you can learn. |
Posted By: Darla
Date Posted: Oct 14 2007 at 5:42am
|
Hi Woolie, Thanks for the info. As a displaced Buffalonian now living in Bloomington Indiana - and one of the few who received the Neulasta immediately I have to say this - this is no small town - It is the home of Indiana University (think Bobby Knight) and people come FROM the small towns of Southern Indiana to receive their treatment here. I have been very pleased with my care here and feel it has been top notch - which is why I assumed my onc was doing it the better way. When I meet with him I hope he is able to explain to me why they're in a very small minority in terms of their method of administering the Neulasta they way they do. I will definitely report back. Darla |
Posted By: lady4law
Date Posted: Oct 14 2007 at 11:35am
|
Darla: You should download the product information and take it with you. We all tend to trust our Drs and many times should not be. I trusted my Drs and now am sitting here in unbelievable pain. Two weeks ago I had a bilateral mast w/reconstruction. I also had to have my pacemaker moved from one side of my chest to the other, so I could have RADS on my left side. I now have FOUR wires running across my chest and heart do to the move. GUESS what? My path report came back ...NO CANCER...anywhere. The entire surgery appears to have been in vain. Now I will suffer for months during this reconstruction, and my body will never be the same...not to mention the possible heart complications do tot he moving of the pacemaker. (The expanders could tug at one of these wires and damage my heart. ALL BECAUSE I TRUSTED MY DOCTOR. I guess my only option is to file legal action and then I will most likely loose my other doctors, as they tend to stick together. - Jean ------------- IBC/TN 6/07 Lymph, Chemo, Mast w/rec, chemo, 2 infect surg, exchg (2x) redo rec (2x) 4 new tumors esophagus, colon, chest, mouth, (10/11- 5th SUV7)"Activity" in spine hip |
Posted By: Nancy
Date Posted: Oct 14 2007 at 12:02pm
|
Hi Woolie,
You are correct as to small town dr's. However, apparently Lori's dr. was right...24 hours after chemo. I was wrong in telling her that she could give herself the shot earlier. She was only off by 2 hours, so hopefully the Neulasta will be able to work properly. Boy! I bet these dr's wish there was no internet
 They were very seldom questioned before all this info was available to the person receiving treatment.Nancy
|
Posted By: Darla
Date Posted: Oct 14 2007 at 12:49pm
|
Jean, I am so saddened to hear what you've been put through for nothing. I can't imagine not taking legal action under the circumstances. It is so hard to know what to do sometimes. We all hear, "get a second opinion" but it's not always easy, practical, or affordable to do that and I cannot even imagine how the insurance companies deal with repeat consultations and tests. I'm sure everyone who participates in these discussion forums has heard about the woman who had a double mastectomy because they mixed up her biopsy tissue sample with someone else's. She was featured in a couple news stories last week. Jean, I don't know what your spiritual beliefs are but I hope you don't mind my praying for you while you recover from your surgeries. Please keep us all posted on your progress. Darla |