Horrible weekend |
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majjers 
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Joined: Feb 05 2008 Location: USA Status: Offline Points: 278 |
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 Posted: Jun 19 2013 at 1:45pm |
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Note to Tracy: Before they inject the dye to see which is your sentinel node, where it drains, etc., make sure they give you some numbing medication because that needle goes right into the nipple area and OMG - ouch! Mine wasn't just dye, it was "only about 2-3 drops of dye along with a radioactive material." The radioactive part was to make the sentinel node warm to the touch, as well as dyed. I thought - oh well, 2-3 drops is no big deal. It was the most painful thing I've ever experienced - like a swarm of bees stinging you on the bare chest. And was I ever mad when I got back to the pre-surg room and my Surgeon was not happy that I didn't get any local.
 On a lighter note, the lumpectomy vs. mastectomy has not changed since 2007. My surgeon said the same thing. I really hope you don't fret too much about your hair. It's not about the outside of any of us that counts, it's what is on the inside that has been and will always be there. Take care of you and stay positive that you will beat this! traci
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dx 5/25/07, Stage 2A,TNGr3
DD 4 AC,4 Taxol 32 rads BRCA 1&2 (-) 7/11 mets to lung; Too many lines of chemo to list! The saga continues but only GOD numbers my days! |
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tracyinva
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Joined: May 23 2013 Location: Alexandra, VA Status: Offline Points: 219 |
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Posted: Jun 19 2013 at 2:24pm |
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getting ready to go in for my pre-chemo blood work up. Just had a fight with mom on the phone about bills for the cost of my care. She gave me some money to pay for some of these huge bills and somehow she started out of blue on my case about where it was being spent. I am very responsible and only use the money for bills. Long story short.. I told her I didn't want to argue since I have to worry about myself right in getting treated. I probably wont' talk to her for a while now.. I basically sent her an email saying she could have least waited until my treatment was over to argue...this is not the time to argue...all these problems with be sorted later. Just ruined my whole day.
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Diagnosed 4/29
Lymph nodes clear on MRI on 5/20 2x2 statge 1 or 11A AC and T 6/9 - 9/13 final mri- no lymph 4mm or less residual Lump right side on 10/16 7 nodes taken - all clear - clean margins |
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tracyinva
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Joined: May 23 2013 Location: Alexandra, VA Status: Offline Points: 219 |
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Posted: Jun 19 2013 at 5:06pm |
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I am so unhappy with my oncologist I switched to new one in the office also. For 4 days in the hospital she never once called or was reachable. Another one from the office saw me for 3 of the 4 days when I was there and was much more personal and he even tried to spring me early from the hospital. He was very open and I felt like I could talk to him more easily. I am completely glad I made the switch.
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Diagnosed 4/29
Lymph nodes clear on MRI on 5/20 2x2 statge 1 or 11A AC and T 6/9 - 9/13 final mri- no lymph 4mm or less residual Lump right side on 10/16 7 nodes taken - all clear - clean margins |
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tracyinva
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Joined: May 23 2013 Location: Alexandra, VA Status: Offline Points: 219 |
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Posted: Jun 19 2013 at 5:07pm |
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BTW - the lab said my numbers were great now and onto the next chemo
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Diagnosed 4/29
Lymph nodes clear on MRI on 5/20 2x2 statge 1 or 11A AC and T 6/9 - 9/13 final mri- no lymph 4mm or less residual Lump right side on 10/16 7 nodes taken - all clear - clean margins |
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tracyinva
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Joined: May 23 2013 Location: Alexandra, VA Status: Offline Points: 219 |
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Posted: Jun 19 2013 at 5:09pm |
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I also found out my initial finding was Stage1A or 11A. I dont know what both mean.
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Diagnosed 4/29
Lymph nodes clear on MRI on 5/20 2x2 statge 1 or 11A AC and T 6/9 - 9/13 final mri- no lymph 4mm or less residual Lump right side on 10/16 7 nodes taken - all clear - clean margins |
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Lillie
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Joined: Jul 10 2009 Location: Eastern NC Status: Offline Points: 3616 |
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Posted: Jun 19 2013 at 7:05pm |
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Dear Tracy,
 I am sending you some Great Big Hugs. Believe it or not, a lot of us have experienced great pain and stress from family, during treatment. That subject has been discussed a lot on various threads. I believe they are scared, don't know how to act, in denial, and don't have a clue unless they've experienced it themselves.
I wish I had answers for all your questions and could make all your pain go away, but I can't. Just know that you are not alone. We Love You and just keep on posting whatever is on your mind.
I know this sounds stupid, but try to have a good hair experience. I had a difficult time in the beginning, but wearing cute hats, my wig, bandannas and such turned out to be a neat experience. At Christmas I wore a Santa hat and knew it got a lot of attention. Experiencing the growth of new hair is a neat thing also. Please don't be sad and cry.
Love and God Bless,
Lillie
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Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED |
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tracyinva
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Joined: May 23 2013 Location: Alexandra, VA Status: Offline Points: 219 |
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Posted: Jun 19 2013 at 10:10pm |
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Efficacy and Safety Study of NeuVax(TM) Vaccine to Prevent Breast Cancer Recurrence Disease Types: Breast I found this clinical trial that I hope I can get on after my chemo and everything is over. It's worth a shot. |
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Diagnosed 4/29
Lymph nodes clear on MRI on 5/20 2x2 statge 1 or 11A AC and T 6/9 - 9/13 final mri- no lymph 4mm or less residual Lump right side on 10/16 7 nodes taken - all clear - clean margins |
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tracyinva
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Joined: May 23 2013 Location: Alexandra, VA Status: Offline Points: 219 |
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Posted: Jun 19 2013 at 10:13pm |
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I am just going to try yoga, or take up some form of meditating or something to relax me. Put my mind in a place that is enjoyable.
I started to become a wig fanatic already. I am up to three wigs and I haven't even lost my hair yet. Its kind of fun. Its like I get to play anyone i want anytime. I have heard when your hair is getting ready to fall out you should have some itching on your scalp? I"m just waiting on that to start. My chemo is Friday and 2 days after most of my hair should be gone I am guessing but no scalp itching yet.
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Diagnosed 4/29
Lymph nodes clear on MRI on 5/20 2x2 statge 1 or 11A AC and T 6/9 - 9/13 final mri- no lymph 4mm or less residual Lump right side on 10/16 7 nodes taken - all clear - clean margins |
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tracyinva
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Joined: May 23 2013 Location: Alexandra, VA Status: Offline Points: 219 |
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Posted: Jun 20 2013 at 8:24pm |
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Where is my hair going to start to fall out?. Tomorrow will be day 14 and not one piece or strand has fallen out yet.
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Diagnosed 4/29
Lymph nodes clear on MRI on 5/20 2x2 statge 1 or 11A AC and T 6/9 - 9/13 final mri- no lymph 4mm or less residual Lump right side on 10/16 7 nodes taken - all clear - clean margins |
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123Donna
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Joined: Aug 24 2009 Location: St. Louis, MO Status: Offline Points: 13510 |
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Posted: Jun 20 2013 at 8:39pm |
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Tracy,
Mine started on day 15. I remember I kept tugging at my hair each day and suddenly some strands came out around day 15. It took several more days before the rest fell out. We shaved it that night to about 1/8" long. You'll notice that right before it starts falling out your scalp will feel funny, an achy itchy type of feeling. Donna
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
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Natalie
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Joined: Nov 11 2011 Location: Bay Shore NY Status: Offline Points: 473 |
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Posted: Jun 20 2013 at 8:40pm |
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Tracy,
I would highly reccomend Yoga, I continued to try to do it throughout treatment. I also had a friend doing Reiki on me. They both helped in relaxing me and felt good on my body. As for the hair? I remember it just being an all over thinning at first, then bang. Natalie
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TNBC stage1 size 1.8, grade3 no nodes 4/11 Lumpectomy 5/11 4cycles DD A/C 4cycles DD Taxol. Double Mastectomy 12/11 BRCA all neg
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tracyinva
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Joined: May 23 2013 Location: Alexandra, VA Status: Offline Points: 219 |
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Posted: Jun 20 2013 at 9:31pm |
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I can tell the hair is thinning on my arms and legs and no more hair growth under my chin which is nice so I don't have to pluck anymore. I do notice gradual signs...I has a real bad problem of the itching my private parts last night. Is that normal? I got some cream to coat and soothe and I dont' have the need to itch was just curious if it could be from the chemo and if I should bring it up with nurse tomorrow.
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Diagnosed 4/29
Lymph nodes clear on MRI on 5/20 2x2 statge 1 or 11A AC and T 6/9 - 9/13 final mri- no lymph 4mm or less residual Lump right side on 10/16 7 nodes taken - all clear - clean margins |
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tracyinva
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Joined: May 23 2013 Location: Alexandra, VA Status: Offline Points: 219 |
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Posted: Jun 20 2013 at 9:44pm |
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could the itching be from the crapload of antibiotics they gave me in the hospital? I did not have it until I was out.
Edited by tracyinva - Jun 20 2013 at 9:45pm |
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Diagnosed 4/29
Lymph nodes clear on MRI on 5/20 2x2 statge 1 or 11A AC and T 6/9 - 9/13 final mri- no lymph 4mm or less residual Lump right side on 10/16 7 nodes taken - all clear - clean margins |
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Lillie
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Joined: Jul 10 2009 Location: Eastern NC Status: Offline Points: 3616 |
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Posted: Jun 20 2013 at 9:56pm |
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Hi Tracy,
You need to check with your doctor about the itch in your private parts. Antibiotics can cause yeast infections; and they really can cause intense itching and pain.
Good Luck and God Bless,
Lillie
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Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED |
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tracyinva
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Joined: May 23 2013 Location: Alexandra, VA Status: Offline Points: 219 |
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Posted: Jun 20 2013 at 10:59pm |
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I chatted with an online doc and he said to ask for Diflucan
I suppose I will call them in the a.m. to see how this is going to play out. I think they can give that to me an in iv and how that is going to mess up or maybe they can just give me cream. Has anyone ever heard of that. My chemo is at 10 a.m. I will call the office as soon as it is open.
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Diagnosed 4/29
Lymph nodes clear on MRI on 5/20 2x2 statge 1 or 11A AC and T 6/9 - 9/13 final mri- no lymph 4mm or less residual Lump right side on 10/16 7 nodes taken - all clear - clean margins |
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123Donna
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Joined: Aug 24 2009 Location: St. Louis, MO Status: Offline Points: 13510 |
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Posted: Jun 20 2013 at 11:24pm |
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Tracy,
Glad you chatted with your doc. This is from drugs.com Diflucan (fluconazole) is an antifungal antibiotic. Diflucan is used to treat infections caused by fungus, which can invade any part of the body including the mouth, throat, esophagus, lungs, bladder, genital area, and the blood. Diflucan is also used to prevent fungal infection in people with weak immune systems caused by cancer treatment, bone marrow transplant, or diseases such as AIDS. Diflucan may also be used for purposes not listed in this medication guide. How should I take Diflucan?Take Diflucan exactly as prescribed by your doctor. Do not take in larger or smaller amounts or for longer than recommended. Follow the directions on your prescription label. Your dose will depend on the infection you are treating. Vaginal infections are often treated with only one pill. For other infections, your first dose may be a double dose. Carefully follow your doctor's instructions. Tell your doctor if your symptoms do not improve. Take Diflucan with a full glass of water. Shake the oral suspension (liquid) well just before you measure a dose. To be sure you get the correct dose, measure the liquid with a marked measuring spoon or medicine cup, not with a regular table spoon. If you do not have a dose-measuring device Edited by 123Donna - Jun 20 2013 at 11:25pm |
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
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tracyinva
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Joined: May 23 2013 Location: Alexandra, VA Status: Offline Points: 219 |
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Posted: Jun 21 2013 at 9:19pm |
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Chemo 2 over. Has some orange juice before which was a mistake. After the chemo that seemed to really irritate my lining. I am not really hungry. My face bones really hurt and I have such bad headache. Took a pain pill. Alternating between apple juice and water. Any advice is appreciated.
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Diagnosed 4/29
Lymph nodes clear on MRI on 5/20 2x2 statge 1 or 11A AC and T 6/9 - 9/13 final mri- no lymph 4mm or less residual Lump right side on 10/16 7 nodes taken - all clear - clean margins |
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tracyinva
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Joined: May 23 2013 Location: Alexandra, VA Status: Offline Points: 219 |
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Posted: Jun 21 2013 at 9:22pm |
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They chose not to give me the diflucan I told them want happened. They did nothing. I do not itch or anything. I guess they are figuring g it's going to go away on its own.
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Diagnosed 4/29
Lymph nodes clear on MRI on 5/20 2x2 statge 1 or 11A AC and T 6/9 - 9/13 final mri- no lymph 4mm or less residual Lump right side on 10/16 7 nodes taken - all clear - clean margins |
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TriplePositiveGirl
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Joined: Oct 07 2010 Location: Los Angeles, CA Status: Offline Points: 667 |
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Posted: Jun 21 2013 at 10:41pm |
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Tracy,
Too much juice on an empty stomach will definitely cause you to have an upset tummy. I would highly recommend some bread or crackers or something to go with the juice/water. Lisa
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Diagnosed Jan 2010; Stage IIa, grade 2, 3.2cm in rt. breast, no nodes and BRCA-. 4 cycles Carbo/Gemzar 3/10; Lump 6/10; 2 cycles carbo/gem after surgery 8/10; 35 Rads finished 12/1/10. NED.
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Charlene
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Joined: Aug 14 2010 Location: Atlanta, GA Status: Offline Points: 613 |
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Posted: Jun 22 2013 at 8:51am |
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Tracy,
Hope things go much better for you this time. I agree about eating some crackers or bread and drinking lots of water. Take a pain pill and sleep as much as you can during the bad days. Charlene
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DX 3/10 @59 ILC/TNBC
Stage 1, Grade 2, Multifocal; Lumpectomy/re-excision SNB 0/4 nodes, BRCA-; Taxotere/Cytoxan X4, 30 rads 3/14:NED |
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