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Horrible weekend

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Forum Name: Let's Talk About Chemotherapy
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Topic: Horrible weekend
Posted By: tracyinva
Subject: Horrible weekend
Date Posted: Jun 16 2013 at 10:26pm
I just wanted to let everyone know that on Friday I wasn't feeling well a week after my first email and I did not eat my dinner and wasn't feeling hungry. I then started to have a fever and it graduated to a fever of hundred .100.5by 11:30 PM.
As per my instructions from the oncologist I was told to go straight to the emergency room. I come to find out after being admitted my white blood cell count was all the way down to zero. Yes I said zero. I could not believe that. Since Friday I have been here in the hospital trying to rebuild my white blood cell count back. I had felt fine all week and had no symptoms until the evening when igota fever and no appetite. My white blood cell count was only coming back up slowly. It's slowly trickling each night so I am waiting to possibly go home tomorrow. They did not find any causeor infection from the white blood count being so low. So I am left to believe it was just a fluke as the doctor said or it could happen again. I am very thankful I recognized the signs of me feeling a little off balance and just went straight to the emergency room. They are sticking with the chemo still on Friday. My mass has almost completely gone down as its barely palpable anymore. So I am very thankful for that. I just thought I will let you all know in case you're wondering where I was. I had so many antibiotics over the past few days and had red man syndrome which I absolutely hated which was a side effect from one of the antibiotics. So hopefully I'll have a good rest the week after my discharge tomorrow.

-------------
Diagnosed 4/29
Lymph nodes clear on MRI on 5/20
2x2 statge 1 or 11A
AC and T 6/9 - 9/13
final mri- no lymph 4mm or less residual
Lump right side on 10/16
7 nodes taken - all clear - clean margins




Replies:
Posted By: 123Donna
Date Posted: Jun 16 2013 at 10:56pm
Tracy,

Did you get the Neulasta shot?  So sorry you had such horrible side effects and ended up in the hospital.  Hope you get to go home tomorrow.  Ask them about the Neulasta shot after your next chemo treatment.  It helps keep you wbc up.  Keep us posted.

Donna


-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: arabella
Date Posted: Jun 16 2013 at 11:12pm
So sorry you're having to go thru all this, Tracy.  Wishing you a good week ahead  at home with your WBC back in the normal range.

Kaye


-------------
Dx TNBC 1/2013; age 63; 1.1 cm; Stage 1, Grade 1(?); lumpectomy clear margins; ALND -; severe SEs to first TC and treatment stopped; radsX25; BRCA -
Recur 6/2015 Mastectomy


Posted By: tracyinva
Date Posted: Jun 17 2013 at 1:11pm
Yes I had the neulasta sot and it still happened.    My WBC is only 2.64 still.   Another day in the hospital with nothing found.;(

-------------
Diagnosed 4/29
Lymph nodes clear on MRI on 5/20
2x2 statge 1 or 11A
AC and T 6/9 - 9/13
final mri- no lymph 4mm or less residual
Lump right side on 10/16
7 nodes taken - all clear - clean margins



Posted By: sweetpickle
Date Posted: Jun 17 2013 at 2:00pm
Hi Tracy- The same thing happened to me all the way through chemo. I went to the nospital the first time it happened to me and the rest of the time I would lock myself away from everyone in my house for a few days. My wbc dropped to zero also in spite of getting the neulasta shot.

-------------
11/13/12 DX TNBC, BRCA 1+ Grade 3, 4.3cm tumor, susp. node under arm, 4 A/C biweekly & 4 Taxol biweekly


Posted By: ctlindah
Date Posted: Jun 17 2013 at 2:48pm
Hi Tracy,
 
Sending positive thoughts your way - hope you feel better and get home soon!
 
Linda
 


-------------
DX IDC TNBC 10/12 age 48, Stage 1, Grade 3, 1.5cm
Lumpectomy DD AC & Taxol BRCA- rads X30 finished 5/13


Posted By: 123Donna
Date Posted: Jun 17 2013 at 7:06pm
Tracy,

I'm so sorry and hope you get to come home soon.  

Donna


-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: Natalie
Date Posted: Jun 17 2013 at 8:13pm
Tracy,
That is horrible, sending prayers for this to be the one & only time. Get better.
Natalie


-------------
TNBC stage1 size 1.8, grade3 no nodes 4/11 Lumpectomy 5/11 4cycles DD A/C 4cycles DD Taxol. Double Mastectomy 12/11 BRCA all neg


Posted By: denise07
Date Posted: Jun 17 2013 at 9:42pm
Tracy,
So sorry this is happening sending prayers your way...hope you will be home soon and this never happens again.
Hugs
Denise


-------------
DX Idc 10/07,st2,gr3,2/6 lymphnodes


Posted By: tracyinva
Date Posted: Jun 17 2013 at 10:18pm
Sweet pickle did you go to the hospital each time it happened?.

-------------
Diagnosed 4/29
Lymph nodes clear on MRI on 5/20
2x2 statge 1 or 11A
AC and T 6/9 - 9/13
final mri- no lymph 4mm or less residual
Lump right side on 10/16
7 nodes taken - all clear - clean margins



Posted By: tracyinva
Date Posted: Jun 17 2013 at 10:19pm
I don't understand how this happened. You think it was because I work myself too hard around the seventh day when my white blood count was supposed to be at the lowest? I was feeling fine and I was moving furniture and I didn't feel like anything was wrong. So I don't know what caused it. They never found an infection or anything that cost white blood count drop to zero.

-------------
Diagnosed 4/29
Lymph nodes clear on MRI on 5/20
2x2 statge 1 or 11A
AC and T 6/9 - 9/13
final mri- no lymph 4mm or less residual
Lump right side on 10/16
7 nodes taken - all clear - clean margins



Posted By: 123Donna
Date Posted: Jun 17 2013 at 11:11pm
Tracy,

You did nothing wrong.  Chemo is some strong stuff and it affects everyone differently.  They may lower the dose next time to try to prevent this from happening again.  

Hugs,
Donna


-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: tracyinva
Date Posted: Jun 17 2013 at 11:14pm
Also how will I know how many lymph nodes are affected?. Will I to have to wait until I have my surgery done after chemo?Before chemoI had an MRI with the dye that showed no lymph nodes affected but they said that doesn't mean there is no cancer there so I was just curious how will I know how many nodes they will take out and what the overall prognosis is going to be? I noticed as of today my lump is not palpable anymore which I'm very very very happy about. Thanks in advance.

-------------
Diagnosed 4/29
Lymph nodes clear on MRI on 5/20
2x2 statge 1 or 11A
AC and T 6/9 - 9/13
final mri- no lymph 4mm or less residual
Lump right side on 10/16
7 nodes taken - all clear - clean margins



Posted By: tracyinva
Date Posted: Jun 17 2013 at 11:17pm
Donna they are going to say at the same dosage see if it happens again. If so, space they are going to reduce the dosage next the following time. The oncologist said he sees this all the time and sometimes it could be just a fluke other times it could happen all the time so he's going to stay the same goes for this time which I hope it doesn't happen again. I think I'm going to just take it easy around the seventh day and hide myself from room for a day or so

-------------
Diagnosed 4/29
Lymph nodes clear on MRI on 5/20
2x2 statge 1 or 11A
AC and T 6/9 - 9/13
final mri- no lymph 4mm or less residual
Lump right side on 10/16
7 nodes taken - all clear - clean margins



Posted By: 123Donna
Date Posted: Jun 18 2013 at 8:43am
Tracy,

Before the surgery they'll inject a dye into the tumor to see where it drains.  Then they'll remove the sentinel lymph nodes that are identified by the dye.  They'll examine the nodes to see if they have any cancer cells in them.  Good news that your tumor is no longer palpable!  The chemo is working.

http://www.breastcancer.org/treatment/surgery/lymph_node_removal/sentinel_dissection" rel="nofollow - http://www.breastcancer.org/treatment/surgery/lymph_node_removal/sentinel_dissection


-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: Lillie
Date Posted: Jun 18 2013 at 9:26am
Dear Tracy,
I am so sorry you had to experience this.  Maybe you could leave the strenuous work for a later day and just seclude yourself and rest.  I have seen this scenario at the clinic where I volunteer.  They just want you to allow your body to recover and not be around a lot of germs during this delicate time in your treatment.  Good luck and keep us posted.  YOU CAN DO THIS, WE ARE HERE TO HELP IN ANY WAY POSSIBLE..... WE ARE YOUR 'CHEER LEADERS'.... Rah! Rah! Rah!
 
Love and God Bless,
Lillie


-------------
Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA-
6/06 L/Mast/w/SNB,1of3 Nodes+
6/06 Axl. 9 nodes-
8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4
No Rads.
No RECON - 11/2018-12 yrs NED


Posted By: ctlindah
Date Posted: Jun 18 2013 at 9:44am
Hi Tracy,
 
I just had a thought.  What about Juicing?  A friend of mine sent me an email about it, and when I did it (I added all kinds of healthy things like spinach, carrots, apple, pineapple, Greek yogurt, Silk milk, etc.) for 2 of my 4 ACs my numbers came back good.  If nothing else it's good for you.  If you're interested it might be something to ask your doctor about.
 
Linda


-------------
DX IDC TNBC 10/12 age 48, Stage 1, Grade 3, 1.5cm
Lumpectomy DD AC & Taxol BRCA- rads X30 finished 5/13


Posted By: tracyinva
Date Posted: Jun 19 2013 at 12:39am
I bought a nutri bullet and juiced alll the week after the chemo. I had everything from spinach  to carrots, to pineapple, to blueberries and everything else I read that is good for cancer fighting.

That still didn't help. IMO I think the stress did it. I am under a lot personal and family stress right now with other members in my family that are sick right now also and I have  5 y/o that is like a germ factory. I  am a sanitizer freak after eating every meal. I am just going to take it easy. I am going to start my clariton tomorrow. The nurse said 2 2ays before and go till 2 days after the chemo. I think I start the day of last time. So maybe that will help also. 

I was also in the nutrition store today and ask the clerk how to boost your WBC and he said wheat greass so I had a wheat grass smoothie tonight. He has a grandson with lymphoma and get chemo and he said it helps him a lot.

I am going to show to the RN tomorrow to ask and make sure I can take it.

I just sat in the mirror tonight and cried some b/cause I know in less than a week all my hair will be gone. None of it has start evening coming out yet but I hear your getting close when your scalp starts to itch.




-------------
Diagnosed 4/29
Lymph nodes clear on MRI on 5/20
2x2 statge 1 or 11A
AC and T 6/9 - 9/13
final mri- no lymph 4mm or less residual
Lump right side on 10/16
7 nodes taken - all clear - clean margins



Posted By: tracyinva
Date Posted: Jun 19 2013 at 12:44am
I also read litearature that said if you get a lumpectomy you are still more at risk for a local reoccurence but my dr said it was the saime no matter what you get mastectomy or lumpectomy. can anyone clarify? If thats the case I might as well just had the mastectomy already. I am going through chemo before in hopes to shrink it enough to save my breast but whats the point if there is still is a greater chance of local and then I would be forced into mastectomy. I guess its's too late now. I hate now knowing how many nodes are affected since my surgery won't be until after. Will they do any more mri or dye scans in between the first chemo and last. Before i started I had 0 nodes they could see on the mri but that doesnt mean there is residual cancer. Honestly I am still just overwhelmed. Even before bed tonight. I had a nice smoothie with spinach, carrots, bluberrries  and mixed frozen fruit with my super boost powder that came with the machine.


-------------
Diagnosed 4/29
Lymph nodes clear on MRI on 5/20
2x2 statge 1 or 11A
AC and T 6/9 - 9/13
final mri- no lymph 4mm or less residual
Lump right side on 10/16
7 nodes taken - all clear - clean margins



Posted By: cheeks
Date Posted: Jun 19 2013 at 1:07am
Tracy, 

Look back a few entries on the thread. I think Donna left you a message about tests before surgery and a link. 

I think, not sure, what i've read is that survival is about the same whether lumpectomy or mastectomy...i don't remember reading your chance of recurrence was worse with a lumpectomy. Someone will correct me if i'm wrong.

Although i didn't have chemo first the goal with doing it that way is mostly to see if your tumor is responding to that/those particular drugs. 

Crying is okay...i hated losing my hair so bad i never even cut it...i was a real chicken. It will grow back sooner than you think. I had my last chemo in October(2009) and by December it was about 1/2 to 1/4 inch long. You'll have brand new "virgin" hair. 

Please do something to relax yourself even if you can't sleep. Soft music, warn bath, valium if needed..YOU are most important right now. 

We're here for you, Hug

Blair


-------------
Lump found 11/08
DX: 2/09 @52 TNBC
L. Mast. 3/26/09, SN-, BRCA-,
4.5 cm (post surgical)T2NOMO
Chemo: 4/09-10/09 Taxol x 12,
A/C x 4, No rad.No recon. NED 1/17. New Primary right breast TN, 2/2018.


Posted By: majjers
Date Posted: Jun 19 2013 at 1:45pm
Note to Tracy:  Before they inject the dye to see which is your sentinel node, where it drains, etc., make sure they give you some numbing medication because that needle goes right into the nipple area and OMG - ouch!  Mine wasn't just dye, it was "only about 2-3 drops of dye along with a radioactive material." The radioactive part was to make the sentinel node warm to the touch, as well as dyed.  I thought - oh well, 2-3 drops is no big deal. It was the most painful thing I've ever experienced - like a swarm of bees stinging you on the bare chest.   And was I ever mad when I got back to the pre-surg room and my Surgeon was not happy that I didn't get any local. Angry  
 
On a lighter note, the lumpectomy vs. mastectomy has not changed since 2007. My surgeon said the same thing. I really hope you don't fret too much about your hair.  It's not about the outside of any of us that counts, it's what is on the inside that has been and will always be there.  Take care of you and stay positive that you will beat this!
 
traci


-------------
dx 5/25/07, Stage 2A,TNGr3
DD 4 AC,4 Taxol
32 rads
BRCA 1&2 (-)
7/11 mets to lung; Too many lines of chemo to list! The saga continues but only GOD numbers my days!


Posted By: tracyinva
Date Posted: Jun 19 2013 at 2:24pm
getting ready to go in for my pre-chemo blood work up. Just had a fight with mom on the phone about bills for the cost of my care. She gave me some money to pay for some of these huge bills and somehow she started out of blue on my case about where it was being spent. I am very responsible and only use the money for bills. Long story short.. I told her I didn't want to argue since I have to worry about myself right in getting treated. I probably wont' talk to her for a while now.. I basically sent her an email saying she could have least waited until my treatment was over to argue...this is not the time to argue...all these problems with be sorted later. Just ruined my whole day.

-------------
Diagnosed 4/29
Lymph nodes clear on MRI on 5/20
2x2 statge 1 or 11A
AC and T 6/9 - 9/13
final mri- no lymph 4mm or less residual
Lump right side on 10/16
7 nodes taken - all clear - clean margins



Posted By: tracyinva
Date Posted: Jun 19 2013 at 5:06pm
I am so unhappy with my oncologist I switched to new one in the office also. For 4 days in the hospital she never once called or was reachable. Another one from the office saw me for 3 of the 4 days when I was there and was much more personal and he even tried to spring me early from the hospital.  He was very open and I felt like I could talk to him more easily.  I am completely glad I made the switch.

-------------
Diagnosed 4/29
Lymph nodes clear on MRI on 5/20
2x2 statge 1 or 11A
AC and T 6/9 - 9/13
final mri- no lymph 4mm or less residual
Lump right side on 10/16
7 nodes taken - all clear - clean margins



Posted By: tracyinva
Date Posted: Jun 19 2013 at 5:07pm
BTW - the lab said my numbers were great now and onto the next chemo

-------------
Diagnosed 4/29
Lymph nodes clear on MRI on 5/20
2x2 statge 1 or 11A
AC and T 6/9 - 9/13
final mri- no lymph 4mm or less residual
Lump right side on 10/16
7 nodes taken - all clear - clean margins



Posted By: tracyinva
Date Posted: Jun 19 2013 at 5:09pm
I also found out my initial finding was Stage1A or 11A. I dont know what both mean. 

-------------
Diagnosed 4/29
Lymph nodes clear on MRI on 5/20
2x2 statge 1 or 11A
AC and T 6/9 - 9/13
final mri- no lymph 4mm or less residual
Lump right side on 10/16
7 nodes taken - all clear - clean margins



Posted By: Lillie
Date Posted: Jun 19 2013 at 7:05pm
Dear Tracy,
HugHug I am sending you some Great Big Hugs. 
Believe it or not, a lot of us have experienced great pain and stress from family, during treatment.  That subject has been discussed a lot on various threads.  I believe they are scared, don't know how to act, in denial, and don't have a clue unless they've experienced it themselves.
I wish I had answers for all your questions and could make all your pain go away, but I can't.  Just know that you are not alone.  We Love You and just keep on posting whatever is on your mind.
 
I know this sounds stupid, but try to have a good hair experience.  I had a difficult time in the beginning, but wearing cute hats, my wig, bandannas and such turned out to be a neat experience.  At Christmas I wore a Santa hat and knew it got a lot of attention.  Experiencing the growth of new hair is a neat thing also.  Please don't be sad and cry. 
 
Love and God Bless,
Lillie 


-------------
Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA-
6/06 L/Mast/w/SNB,1of3 Nodes+
6/06 Axl. 9 nodes-
8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4
No Rads.
No RECON - 11/2018-12 yrs NED


Posted By: tracyinva
Date Posted: Jun 19 2013 at 10:10pm
http://virginiacancerspecialists.com/clinical-trials/detail/galena-biopharma-ph3-01-present/" rel="nofollow - Galena Biopharma PH3-01 “PRESENT”
Efficacy and Safety Study of NeuVax(TM) Vaccine to Prevent Breast Cancer Recurrence

Disease Types: Breast 
Available at:  http://virginiacancerspecialists.com/locations/detail/arlington-office/" rel="nofollow - Arlington Office ,   http://virginiacancerspecialists.com/locations/detail/fairfax-office/" rel="nofollow - Fairfax Office ,   http://virginiacancerspecialists.com/locations/detail/gainesville-office/" rel="nofollow - Gainesville Office ,   http://virginiacancerspecialists.com/locations/detail/loudoun-office/" rel="nofollow - Loudoun Office ,   http://virginiacancerspecialists.com/locations/detail/alexandria-office/" rel="nofollow - Alexandria Office


I found this clinical trial that I hope I can get on after my  chemo and everything is over.  It's worth  a shot.



-------------
Diagnosed 4/29
Lymph nodes clear on MRI on 5/20
2x2 statge 1 or 11A
AC and T 6/9 - 9/13
final mri- no lymph 4mm or less residual
Lump right side on 10/16
7 nodes taken - all clear - clean margins



Posted By: tracyinva
Date Posted: Jun 19 2013 at 10:13pm
I am just going to try yoga, or take up some form of meditating or something to relax me. Put my mind in a place that is enjoyable. 

I started to become a wig fanatic already. I am up to three wigs and I haven't even lost my hair yet. Its kind of fun. Its like I get to play anyone i want anytime. 

I have heard when your hair is getting ready to fall out you should have some itching on your scalp? I"m just waiting on that to start. My chemo is Friday and 2 days after most of my hair should be gone I am guessing but no scalp itching yet.


-------------
Diagnosed 4/29
Lymph nodes clear on MRI on 5/20
2x2 statge 1 or 11A
AC and T 6/9 - 9/13
final mri- no lymph 4mm or less residual
Lump right side on 10/16
7 nodes taken - all clear - clean margins



Posted By: tracyinva
Date Posted: Jun 20 2013 at 8:24pm
Where is my hair going to start to fall out?. Tomorrow will be day 14 and not one piece or strand has fallen out yet.


-------------
Diagnosed 4/29
Lymph nodes clear on MRI on 5/20
2x2 statge 1 or 11A
AC and T 6/9 - 9/13
final mri- no lymph 4mm or less residual
Lump right side on 10/16
7 nodes taken - all clear - clean margins



Posted By: 123Donna
Date Posted: Jun 20 2013 at 8:39pm
Tracy,

Mine started on day 15.  I remember I kept tugging at my hair each day and suddenly some strands came out around day 15.  It took several more days before the rest fell out.  We shaved it that night to about 1/8" long.  You'll notice that right before it starts falling out your scalp will feel funny, an achy itchy type of feeling.  

Donna


-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: Natalie
Date Posted: Jun 20 2013 at 8:40pm
Tracy,
I would highly reccomend Yoga, I continued to try to do it throughout treatment. I also had a friend doing Reiki on me. They both helped in relaxing me and felt good on my body.

As for the hair? I remember it just being an all over thinning at first, then bang.
Natalie


-------------
TNBC stage1 size 1.8, grade3 no nodes 4/11 Lumpectomy 5/11 4cycles DD A/C 4cycles DD Taxol. Double Mastectomy 12/11 BRCA all neg


Posted By: tracyinva
Date Posted: Jun 20 2013 at 9:31pm
I can tell the hair is thinning on my arms and legs and no more hair growth under my chin which is nice so I don't have to pluck anymore. I do notice gradual signs...I has a real bad problem of the itching my private parts last night. Is that normal? I got some cream to coat and soothe and I dont' have the need to itch was just curious if it could be from the chemo and if I should bring it up with nurse tomorrow.

-------------
Diagnosed 4/29
Lymph nodes clear on MRI on 5/20
2x2 statge 1 or 11A
AC and T 6/9 - 9/13
final mri- no lymph 4mm or less residual
Lump right side on 10/16
7 nodes taken - all clear - clean margins



Posted By: tracyinva
Date Posted: Jun 20 2013 at 9:44pm
could the itching be from the crapload of antibiotics they gave me in the hospital? I did not have it until I  was out.


-------------
Diagnosed 4/29
Lymph nodes clear on MRI on 5/20
2x2 statge 1 or 11A
AC and T 6/9 - 9/13
final mri- no lymph 4mm or less residual
Lump right side on 10/16
7 nodes taken - all clear - clean margins



Posted By: Lillie
Date Posted: Jun 20 2013 at 9:56pm
Hi Tracy,
You need to check with your doctor about the itch in your private parts.  Antibiotics can cause yeast infections; and they really can cause intense itching and pain.
 
Good Luck and God Bless,
Lillie


-------------
Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA-
6/06 L/Mast/w/SNB,1of3 Nodes+
6/06 Axl. 9 nodes-
8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4
No Rads.
No RECON - 11/2018-12 yrs NED


Posted By: tracyinva
Date Posted: Jun 20 2013 at 10:59pm
I chatted with an online doc and he said to ask for Diflucan 

I suppose I will call them in the a.m. to see how this is going to play out. I think they can give that to me an in iv and how that is going to mess up or maybe they can just give me cream. 

Has anyone ever heard of that. My chemo is at 10 a.m. I will call the office as soon as it is open.


-------------
Diagnosed 4/29
Lymph nodes clear on MRI on 5/20
2x2 statge 1 or 11A
AC and T 6/9 - 9/13
final mri- no lymph 4mm or less residual
Lump right side on 10/16
7 nodes taken - all clear - clean margins



Posted By: 123Donna
Date Posted: Jun 20 2013 at 11:24pm
Tracy,

Glad you chatted with your doc.  This is from drugs.com

Diflucan (fluconazole) is an antifungal antibiotic.

Diflucan is used to treat infections caused by fungus, which can invade any part of the body including the mouth, throat, esophagus, lungs, bladder, genital area, and the blood.

Diflucan is also used to prevent fungal infection in people with weak immune systems caused by cancer treatment, bone marrow transplant, or diseases such as AIDS.

Diflucan may also be used for purposes not listed in this medication guide.

How should I take Diflucan?

Take Diflucan exactly as prescribed by your doctor. Do not take in larger or smaller amounts or for longer than recommended. Follow the directions on your prescription label.

Your dose will depend on the infection you are treating. Vaginal infections are often treated with only one pill. For other infections, your first dose may be a double dose. Carefully follow your doctor's instructions. Tell your doctor if your symptoms do not improve.

Take Diflucan with a full glass of water. Shake the oral suspension (liquid) well just before you measure a dose. To be sure you get the correct dose, measure the liquid with a marked measuring spoon or medicine cup, not with a regular table spoon. If you do not have a dose-measuring  http://www.drugs.com/diflucan.html#" rel="nofollow">device , ask your pharmacist for one. Take Diflucan for the full prescribed length of time. Your symptoms may improve before the infection is completely cleared. Skipping doses may also increase your risk of further infection that is resistant to antifungal medication.



-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: tracyinva
Date Posted: Jun 21 2013 at 9:19pm
Chemo 2 over. Has some orange juice before which was a mistake. After the chemo that seemed to really irritate my lining.   I am not really hungry.   My face bones really hurt and I have such bad headache.   Took a pain pill. Alternating between apple juice and water.   Any advice is appreciated.    

-------------
Diagnosed 4/29
Lymph nodes clear on MRI on 5/20
2x2 statge 1 or 11A
AC and T 6/9 - 9/13
final mri- no lymph 4mm or less residual
Lump right side on 10/16
7 nodes taken - all clear - clean margins



Posted By: tracyinva
Date Posted: Jun 21 2013 at 9:22pm
They chose not to give me the diflucan     I told them want happened.   They did nothing.   I do not itch or anything.    I guess they are figuring g it's going to go away on its own.   

-------------
Diagnosed 4/29
Lymph nodes clear on MRI on 5/20
2x2 statge 1 or 11A
AC and T 6/9 - 9/13
final mri- no lymph 4mm or less residual
Lump right side on 10/16
7 nodes taken - all clear - clean margins



Posted By: TriplePositiveGirl
Date Posted: Jun 21 2013 at 10:41pm
Tracy,

Too much juice on an empty stomach will definitely cause you to have an upset tummy. I would highly recommend some bread or crackers or something to go with the juice/water. 

Lisa


-------------
Diagnosed Jan 2010; Stage IIa, grade 2, 3.2cm in rt. breast, no nodes and BRCA-. 4 cycles Carbo/Gemzar 3/10; Lump 6/10; 2 cycles carbo/gem after surgery 8/10; 35 Rads finished 12/1/10. NED.


Posted By: Charlene
Date Posted: Jun 22 2013 at 8:51am
Tracy,
Hope things go much better for you this time.  I agree about eating some crackers or bread and drinking lots of water.  Take a pain pill and sleep as much as you can during the bad days.
Charlene


-------------
DX 3/10 @59 ILC/TNBC
Stage 1, Grade 2, Multifocal; Lumpectomy/re-excision
SNB 0/4 nodes, BRCA-; Taxotere/Cytoxan X4, 30 rads
3/14:NED


Posted By: dawncoskren
Date Posted: Jun 22 2013 at 4:24pm
I really hope you feel better! Great news about the tumorStar.


Posted By: tracyinva
Date Posted: Jun 22 2013 at 9:42pm
My face was flushed all day. Las night was hell for me. The night after the steroid shot is the worst.   Another thing I noticed that eve since I got my port in I have been having sleep apnea. Like night every night but some night I gasp for air. My port is right above my heart on the left. The dr gave me ok to take Prilosec.   Not very hungry today.   I stayed in bed most of the beside night walks. 1 month down 3 to go my consult with my onco on Tuesday to go over my results this far.

-------------
Diagnosed 4/29
Lymph nodes clear on MRI on 5/20
2x2 statge 1 or 11A
AC and T 6/9 - 9/13
final mri- no lymph 4mm or less residual
Lump right side on 10/16
7 nodes taken - all clear - clean margins



Posted By: tracyinva
Date Posted: Jun 24 2013 at 12:00am
My fever is bouncing is back again bouncng around again tonight. It got up to 101.1 on my thermometer. I dont know what to do anymore...my head is not hot.. I took a warm bath..maybe a little too warm...I am getting so frustrated. Why is this happening again? I am only 2 days post chemo. They gave me a rx for my yeast infection finally.I am drinking lotsof cold water now.

-------------
Diagnosed 4/29
Lymph nodes clear on MRI on 5/20
2x2 statge 1 or 11A
AC and T 6/9 - 9/13
final mri- no lymph 4mm or less residual
Lump right side on 10/16
7 nodes taken - all clear - clean margins



Posted By: denise07
Date Posted: Jun 24 2013 at 10:47pm
So sorry you are suffering thru this yeast infection is horrible enough but you will get thru this it is tough and draining,cancer sucks but life is incredable so we have to look at it this way..next year at this time this will all be one bad memory that is what my dad told me and I hang on to that thought each and every day and I believe the same for you, just rest and keeep drinking fluids if you really feel so awful please contact your onc but I hope you feel A-okay soon! I hope you don't mind me asking do you get a neaulasta shot the day after chemo?
Hang in there we care...
Denise


-------------
DX Idc 10/07,st2,gr3,2/6 lymphnodes


Posted By: tracyinva
Date Posted: Jun 25 2013 at 12:22am
Yeah i always get the neulasta shot Denise. For some reason I had such a hard hard time last week when my WBC fell to 0. My dr said I can take tylenol which has helped out tons tonight as long as I am not having the chills or  anything and its just a mild fever. Its dropped down from 99-100 to 98 to high 97's. That and my yeast infection is making my mouth even more dry. I haven't gotten any mouth sores yet but I use a baby toothbruth and  do mugard if needed. I am learning my appetite is getting less and less with each chemo.. Thats okay I guess. I manage to enough and what I don't I take my multivitamins.


Is taxol worse or easier than AC ?


-------------
Diagnosed 4/29
Lymph nodes clear on MRI on 5/20
2x2 statge 1 or 11A
AC and T 6/9 - 9/13
final mri- no lymph 4mm or less residual
Lump right side on 10/16
7 nodes taken - all clear - clean margins



Posted By: tracyinva
Date Posted: Jun 25 2013 at 2:10am
I also fee tonight that body is tryign to ovulate but cant...but been having pms symptoms all day. how will know if thiis sends me into menopause??

-------------
Diagnosed 4/29
Lymph nodes clear on MRI on 5/20
2x2 statge 1 or 11A
AC and T 6/9 - 9/13
final mri- no lymph 4mm or less residual
Lump right side on 10/16
7 nodes taken - all clear - clean margins



Posted By: sraetz
Date Posted: Jun 25 2013 at 9:52am
Hi.  I found the Taxol to be easier than the AC.  Didn't need any anti-nausea meds like with the AC.  The fatigue was less.  I did,  however, have an itchy rash that required a steroid pack after the first dose.  Then each week, I took Benadryl tablets for the first 3 or 4 days.  I got a chemo glow on my face on the day after my infusion.   Around week 8, my knuckles on both hands got red, alternating between pain and itch.  I am now four weeks past my last infusion, and my hands are almost back to normal.  Still some numbness and tingling.  Still some muscle aches and pains that make me feel older than I think I should feel!



-------------
Sraetz, DX 11/13/12 IDC,TNBC, Stage I, Grade 3, K1-67 97%, 1.6 cm, left mastectomy on 11/16/12, negative nodes, clear margins. Chemo: AC x 4, T x 12. Chemo finished on 5/28/13.


Posted By: tracyinva
Date Posted: Jun 26 2013 at 1:22am
Tonight my hair is really starting to come out in light to moderate strands. Should I just go ahead and buzz it now..My scalp is really painful to even touch it. Is that normal right before it all falls out.I am just scared to but in a way I want to just get it over with so I can start accepting it.

-------------
Diagnosed 4/29
Lymph nodes clear on MRI on 5/20
2x2 statge 1 or 11A
AC and T 6/9 - 9/13
final mri- no lymph 4mm or less residual
Lump right side on 10/16
7 nodes taken - all clear - clean margins



Posted By: tracyinva
Date Posted: Jun 26 2013 at 11:55pm
I shaved my hair today. I couldn't stand the horror and feeling of feeling like my  hair was being pulled everytime I touched it. It was very painful. I have stubble now but that will fall off soon. I am happy I did it though. So much hair was starting to come out. 

-------------
Diagnosed 4/29
Lymph nodes clear on MRI on 5/20
2x2 statge 1 or 11A
AC and T 6/9 - 9/13
final mri- no lymph 4mm or less residual
Lump right side on 10/16
7 nodes taken - all clear - clean margins



Posted By: tracyinva
Date Posted: Jun 26 2013 at 11:57pm
OH yeah...my dr palpated my tumor today and could not find any tumor at all or at least what she could feel..she was happy. They are lowering my dose from 60 to 50..not a big marker but in someways I am glad. Maybe it will ease up my s/e to a certain extent and won't land in the hospital

-------------
Diagnosed 4/29
Lymph nodes clear on MRI on 5/20
2x2 statge 1 or 11A
AC and T 6/9 - 9/13
final mri- no lymph 4mm or less residual
Lump right side on 10/16
7 nodes taken - all clear - clean margins



Posted By: 123Donna
Date Posted: Jun 27 2013 at 12:14am
Tracy,

Yes your scalp will hurt and be tender right before the hair falls out. I shaved mine too when that happened. Over the next few days when you are in the shower, rub your scalp and most of the remaining hair will fall out. I had stubble everywhere in the shower. Better there than on my pillow!

Donna



-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: tracyinva
Date Posted: Jun 27 2013 at 1:03am
Thanks Donna for the advice. I got some good scalp conditioner from the nice lady at the salon. I would personally rather be just bald.  My hair color is completely different and its the first time I had seen my real hair color in ages after they shaved it. I am going to rest on it tonight and take a nice shower tomorrow. Yeah, mine literally hurt to the point I just wanted the hair off. There is no more pain now and I actually feel much better now that much scalp is pain free now

-------------
Diagnosed 4/29
Lymph nodes clear on MRI on 5/20
2x2 statge 1 or 11A
AC and T 6/9 - 9/13
final mri- no lymph 4mm or less residual
Lump right side on 10/16
7 nodes taken - all clear - clean margins



Posted By: dawncoskren
Date Posted: Jun 27 2013 at 5:58am
Hi all. How long does it take for the pain and des the hair start to fall out ?


Posted By: 123Donna
Date Posted: Jun 27 2013 at 8:20am
For me, my hair started coming out day 15 after my first chemo.  The scalp pain/ache started a day or so before that.  It seemed to stop once the hair started coming out.  

-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: tracyinva
Date Posted: Jun 27 2013 at 11:39am
Mine was 2 days post 2 second chemo it began to literally hurt like someone was pulling on it everytime I touched it. I thought it would itch but it just hurt. Trust me you'll know when its getting ready to fall it.             

-------------
Diagnosed 4/29
Lymph nodes clear on MRI on 5/20
2x2 statge 1 or 11A
AC and T 6/9 - 9/13
final mri- no lymph 4mm or less residual
Lump right side on 10/16
7 nodes taken - all clear - clean margins



Posted By: tracyinva
Date Posted: Jun 27 2013 at 5:50pm
My period has been going on for 4 days now.   At what point do I call the nurse.     My head feels 100x better with no pain.   Just waiting for the stubble fall off.

-------------
Diagnosed 4/29
Lymph nodes clear on MRI on 5/20
2x2 statge 1 or 11A
AC and T 6/9 - 9/13
final mri- no lymph 4mm or less residual
Lump right side on 10/16
7 nodes taken - all clear - clean margins




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