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Grateful for today 
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Joined: Sep 21 2011 Location: U.S.A. Status: Offline Points: 1835 |
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 Posted: May 29 2012 at 2:03am |
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Hi Becky,
Am not sure if I am reading your post correctly? Who made the decision of no radiation? It sounded like you have not seen a radiation oncologist. Usually, one has a consult with a radiation oncologist who reviews one's particular situation and goes over the pros and/or cons of radiation. Some thoughts if you have not seen a radiation oncologist. You know your situation best. You know the possible people you can ask about radiation and which one would be the wiser choice. Would you be comfortable in asking your current medical oncologist for a radiation oncologist consult? Is there anyway your PCP or your oncology advocate can help with this? Or maybe you may have heard some information about the radiation oncologists from other patients at the center you are at. Think back in January you mentioned you had a good call to your insurance company. You spoke with one of their oncologists, Lesli Glaser, who was to be your advocate and source of help and information. You posted.....You had a wonderful conversation. She was willing to make the calls for you so you did not have to deal with the brushoffs and attitudes of people. Also, you mentioned on one post there was a nurse practitioner who was helpful. Just wondering if any of the above can help you to get a radiation oncology consult with a MD who is up to date on TNBC and radiation. Not sure what your options are where you live. You mentioned going to a center hours away is not an option. Sometimes one may travel for the consult. If radiation is recommended, usually radiation at a local facility can be arranged if necessary. In any case, it would seem reasonable at a minimum to have a consult with a radiation oncologist. Then if you still have any questions about radiation, then maybe consider a second opinion. If I misunderstood your post and you have already seen a radiation oncologist, then you may think about asking the help of the people listed above to get a second opinion. With caring and positive thoughts, Grateful for today.............Judy -------------------------------------- Hi Amore, Realize you said in your post, you read just a little at a time. Please take your time in reading prior forum threads on metaplastic breast cancer. I put all the threads here in case having them in one place would be helpful. Here' s some prior threads on metaplastic breast cancer: http://forum.tnbcfoundation.org/metaplastic-carcinoma_topic9551_post96781.html?KW=metaplastic#96781 http://forum.tnbcfoundation.org/my-visit-to-md-anderson-and-metaplastic-bc_topic8853.html?KW=metaplastic http://forum.tnbcfoundation.org/any-metaplastic-bc-patients_topic8914.html?KW=metaplastic http://forum.tnbcfoundation.org/metaplastic-bc-mbc_topic8854.html?KW=metaplastic As suggested above, you can start a new thread forum thread if you would like. If you have questions on metaplastic TNBC breast cancer, you could also put the questions on one of the metaplastic threads. There are other members from the UK on the forum. I just started a new thread: "Members in the UK" http://forum.tnbcfoundation.org/topic9968_post102665.html#102665 You might post any specific questions you have about having TNBC in the UK there. With caring and positive thoughts to you, Grateful for today.............Judy Edited by Grateful for today - May 29 2012 at 2:46am |
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Becky D
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Joined: Dec 07 2011 Location: Illinois Status: Offline Points: 79 |
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Posted: May 29 2012 at 8:50pm |
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Judy, you're correct. I've not had a radiation consult. Onewas not assigned to my team. Both the surgeon and oncologist said no radiation. I"ve not really had any say in my treatment other then insisting on the bilateral masectomy. And since the last nurse who works for another onocologist prescribed the eye medication and vicodine I've not seen anyone outside my oncologists office.
I had MRI's this afternoon and they said the oncologist will hve the results Thursday or Friday. She's supposed to call me with the results. I'll bring it up again. If I don't get anywhere, I'll call Leslie. I can't remember when she's supposed to call again. I have to call the surgeons office, too. I have a pocket of fluid on my left side and my right arm is a mess. I hae fluid buildup in the armpit as well as near the elbow. My arm is swollen a bit and hurts all the time. If I wear the sleeve, my hand swells. I didn't call today, because I didn't sleep well last night was in a fog all day - it didn't enter my mind. I've lost all the progress I"d made with the exercises even though I'm still doing them. I can't straighten the arm over my head with out excruciating pain. I need to get back in with the PT. So, that's on my list for morning. Hugs, Becky
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DX 10/25/2011 TNIDC
B,MRI,G,PET BM 11/25/2011 T-2.5cm N 1/8-3.9cm Stage 2b/3 Grade 3 |
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Grateful for today
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Joined: Sep 21 2011 Location: U.S.A. Status: Offline Points: 1835 |
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Posted: May 29 2012 at 11:54pm |
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Hi Becky,
Sending caring and positive thoughts to you on the MRI you had this afternoon. Glad to hear that you will be in contact with the surgeon's office about your side and right arm but so sorry to learn you are having problems there. Thank goodness you have a good PT....if I remember correctly. Hopefully, since the PT has seen you before, the PT will be able to see you quickly. Saying one is sorry to hear of this does not seem adequate. You do have my most sincere concern and good and caring wishes for a speedy resolution. Completely support you to ask for the radiation oncology consult. To me, it makes sense that it is the radiation oncologist who can best review your individual situation and give you the pros and/or cons for radiation treatment. You have been thru so much. You have gotten thru so much. You will get thru this current situation. With lots of hugs, Grateful for today...........Judy |
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Becky D
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Joined: Dec 07 2011 Location: Illinois Status: Offline Points: 79 |
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Posted: Jun 08 2012 at 11:34am |
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Judy, no luck. Even Lesli had no luck when she talked to them. Even the fact i just learned one of my counsins had ovarian cancer and my mother just died of pancreatic cancer made no difference. I've been estranged from my mother for more than 25 years - her choice - and she swore my sister to secrecy, she wasn't supposed to tell anyone even her own siblings.
As for the fluid buildup, they'll submit me again, but it hinders on whether or not they have room. I've not gotten a call from the Lymphodema clinic yet. I did get my arm to drain and the pain is much less. The MRI showed I have a bulging disk, so I'm supposed to see an orthopedic doctor to get it taken care of. I called and they won't see me without a referral. I asked for a referral and was told I'd have to get one from my primary doctor. When I asked why, I was told it wasn't their area. My doctor can request the results and set me up. I already have an appointment scheduled with him next week, but still - it's not his place. And from what I've read, nothing will be done, because I'm in no pain from it, so I'm not sure I want to even bother racking up more medical bills. I'm not in the mood for any of this. For the last few months, my bosses boss has been hounding him about whether or not I've gotten a release to return to work. Now that I have one, he's dragging his feet about approving my return. The law isn't on my side - I'd only been there four months when I had to take time off. It all gives me a headache and makes me want to scream. Hugs, Becky
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DX 10/25/2011 TNIDC
B,MRI,G,PET BM 11/25/2011 T-2.5cm N 1/8-3.9cm Stage 2b/3 Grade 3 |
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Grateful for today
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Joined: Sep 21 2011 Location: U.S.A. Status: Offline Points: 1835 |
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Posted: Jun 14 2012 at 1:45am |
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Hi Becky,
Was away for a long weekend and did not see your post until now. Really good to hear that you got your arm to drain......and the pain is less. If you still need the PT appointment, hope you get it real soon. Am at a loss of words on what to say about your situation of not having a radiation oncology consult. The only thing might be your medical oncologist and surgeon's concern about radiation and your lymph edema. However, in my opinion (and I am not a physician), it would seem the radiation decision would be made by a radiation oncologist. It could be that the radiation oncologist would not recommend radiation therapy in your situation BUT it certainly seems reasonable to have the radiation oncologist's input in your treatment plan. You mentioned that the insurance oncologist, Lesli, had no luck when she talked to them. Some thoughts......if Lesli and your PCP advocated for the radiation consult and got no where, then would you consider having it noted in your medical record (either in the physician's note or in a letter by you to your MD that a radiation oncology consult was denied to you......... or is there is patient relations or patient complaint office at the cancer center that could assist? Acknowledging that you are going thru a lot and these are just some thoughts to consider. You know your situation best. You have certainly tried to get the consult that most of us have gotten very easily. Sorry to hear about your mother realizing that you had a difficult situation there also. Will hope things turn out for the best at work. Take care of yourself. Be good to yourself. You are dealing with so much. With very caring thoughts, Grateful for today...............Judy |
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Becky D
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Joined: Dec 07 2011 Location: Illinois Status: Offline Points: 79 |
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Posted: Jun 23 2012 at 10:18pm |
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Hi Judy,
I'm waiting on the PT to call me. The surgeon's office sent them the required referral. My arm is behaving, but fluid has pooled on both sides of my chest. She taught me how to do when I saw her months ago, but it's not working. Lesli did request they put it in my file that I was denied a consult with the radiatio consult. She thinks of stuff like that whereas I'd probably never think of it or think of it too late. I'm doing better overall. Bored out of my mind. It's been six weeks since my last treatment. My bosses boss is dragging his feet about letting me come back to work. They were begging me to come back when I wasn't able to. I've given them everything he's asked for from the doctor. We're beginning to think they aren't going to let me come back. I'm not covered under the law since I was there only four months before I had to take time off. My husband is ticked off with how they're stringing me along.
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DX 10/25/2011 TNIDC
B,MRI,G,PET BM 11/25/2011 T-2.5cm N 1/8-3.9cm Stage 2b/3 Grade 3 |
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Grateful for today
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Joined: Sep 21 2011 Location: U.S.A. Status: Offline Points: 1835 |
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Posted: Jul 15 2012 at 10:46pm |
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Hi Becky,
HOPE things worked out well with PT.....that you got the appointments you needed and that the fluid on the sides of the chest has decreased. Fingers crossed that you got the orthopedic consult about bulging disk seen on the MRI. Hopes too that things either have worked out.....or very soon will work out OK regarding your boss and work situation. With caring and supporting thoughts, Grateful for today...........Judy |
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Becky D
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Joined: Dec 07 2011 Location: Illinois Status: Offline Points: 79 |
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Posted: Jul 25 2012 at 4:38pm |
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Hi Judy -
I'm sorry to say, nothing has been worked out. I'm a waiting list for PT, the boss has been jacking me around and won't talk to me - he told my friend who works there that I don't have a job, that I'd need to reapply. This after going through all the ropes of getting them everything they asked for from the doctor and telling me he has to fill out the paperwork for my return. I'm on a new patient waiting list for the orthopedic clinic my insurance says I have to use.
Other than that - I'm good except for the moments my mind asks me if I'm ready to deal with it all. I tell it no and go on my way and pretend it never happened until reminders slap me in the face.
Live goes on and I intend to be a part of it.
Hugs,
Becky
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DX 10/25/2011 TNIDC
B,MRI,G,PET BM 11/25/2011 T-2.5cm N 1/8-3.9cm Stage 2b/3 Grade 3 |
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Grateful for today
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Joined: Sep 21 2011 Location: U.S.A. Status: Offline Points: 1835 |
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Posted: Jul 31 2012 at 11:31pm |
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Oh Becky,
Just don't understand all the waiting you are told you have to do. Can your PCP help if you are still waiting? Would love to hear that your PCP doesn't need to help because you have already seen PT and the Ortho MD. Good to hear your.......live goes on and you intend to be a part of it. I just wish things would go easier for you. With caring and supporting thoughts, Grateful for today............Judy |
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Becky D
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Joined: Dec 07 2011 Location: Illinois Status: Offline Points: 79 |
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Posted: Aug 08 2012 at 2:25am |
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Hi Judy,
My computer lost internet access. A brand new one was donated to me. I feel so fortunate. I'm still waiting for PT, it's been longer than they told me. When I called, I had to leave a message. No call back as yet. I have a third groin lump and when I called about getting the CT scan moved up, they said no. I have to wait for the scheduled appt on August 20th. I now have a lump just above my knee and it's really painful. I have constant pain in both legs and hips. Taking walks makes it worse. Sometimes when I'm walking, my legs feel floppy. Sitting too long makes me sore and stiff. For a couple of weeks I'd go to bed and wake up with bruises on my right arm. When one would go away, another appeared. In the last few days they've gone away completely. Today, I left the house to meet sissy at the bank and from there we went to lunch. From the time I left the house and we arrived at the diner I acquired a baseball size bruise on the inside of my right calf and smaller one just below it. What's with all these mysterious bruises? Granted, I'm a clutz, but all I did was drive my car six blocks and back four blocks. They were not there when I showered. Two of my classmates have recently been diagnosed with TNBC. They both just had their first AC treatments in the last two weeks. It's like an epidemic going on in this small town. I have to believe it stems back to having abestos in the schools we were in. I read an article about it a few months back. Oh, one of my classmates - her lump was 1.5cm with no lymph nodes involved -- she's having radiation. I was told my 2.5 & 3.9 lumps weren't big enough to warrant radiation. The only differences between us is that she had a lumpectomy and I had a bi-lateral mastectomy and I had lymph node involvement. We're both braca negative. We have the same surgeon and oncologist. In fact, so does my other classmate. My husband's doctor gave us a scare. He'd gone in for his check up and was that his heart murmur was loud. The doctor said he'd probably need a valve replaced and would send him to a cardiologist after he had an echocardiogram done. He also had to have an MRI on his knee which showed a tear. He's waiting for an appointment for with a surgeon for that. The cardiologist said no surgery at this point, that a change in med and diet would do the trick. He's diabetic, has high blood pressure, and high cholesterol. His numbers are way off the chart high and if he can get those down his heart won't have to work so hard and the thickening will go down. He told me the same diet would bring up my good cholesterol which has been low the last few years. No sugar, no caffiene, no salt, no rice, and no white flour products. Absolutely no potatoes. Whole wheat pastas instead of the norm - I'm a pasta person, but whole wheat, not my thing - I bought some and will try it tomorrow. I don't do whole grain bread. Other than all this, my world is terrific. The benefit sissy put together raised enough money to pay my medical bills. I saw some friends I hadn't seen in a while. I think sissy and I are going into the benefit business. lol We just volunteered to do three. What else do I have to do? Six weeks until I'm a grandma. That keeps me going. I can't wait to hold Karilynn. Take care, Becky |
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DX 10/25/2011 TNIDC
B,MRI,G,PET BM 11/25/2011 T-2.5cm N 1/8-3.9cm Stage 2b/3 Grade 3 |
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Grateful for today
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Joined: Sep 21 2011 Location: U.S.A. Status: Offline Points: 1835 |
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Posted: Aug 09 2012 at 8:55pm |
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Hi Becky,
Oh my goodness.....only 6 weeks until you are a grandma. How wonderful. Please let us know when the grandchild arrives and tell us all about Karilynn. Thrilled to hear the benefit helped pay the medical bills. But sorry to hear that 2 of your classmates have TNBC. Assuming your med onc and/or your PCP know about the bruising......if it's still occurring. Really hope things get easier and better for you With caring and supporting thoughts, Grateful for today...........Judy |
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Becky D
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Joined: Dec 07 2011 Location: Illinois Status: Offline Points: 79 |
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Posted: Aug 26 2012 at 2:54am |
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Judy,
I'm really wanting to never return to the Cancer Center again. I was supposed to have a CT scan on the 20th, then have labs and see the oncologist on the 27th. Last week, I received a letter in the mail, telling me there was a scheduling conflict so my appointment with the oncologist has been rescheduled for September 14 and I was now to have labs right before my scan. I was furious. I've had this appointment since May. I went through this with the surgeon only to end up catching them in a lie. I feel like I'm no more important than a sack of potatoes being thrown around. When the CT scan results came in, I was called and told it was good news, no cancer. I'm like, yeah, we knew that already. What's causing the lumps is what we were hoping to find out, I told the nurse. She said she had the sheet in front of her and it said nothing else. So it was another wasted test we have to pay for. I start physical therapy on Monday. She wants to work on both sides of the body. When she measured my arms - the upper part of my left arm is 2cm larger than my right and both are larger than they were when I ended therapy in January. To me that's a good thing. It means I've been using them and buidling up muscle, but she doesn't understand why I'm having so much more swelling and fluid retention on the left side since no nodes were removed. She has me wearing the sleeve on my left arm. And now to further screw us up, my husband's company is changing insurance companies which means we have to start over with a deductible. We're almost out of the funds the benefit brought in. We had three bills come in this past week, one over a thousand. It's crazy. I know we'll be fine, but it's frustrating that I lost my job -the boss has been avoiding me, but through the grapevine I was told he said his boss doesn't want me back which I don't believe since he's the one who put on the path of becoming a manager. Now it's the boss saying I have to reapply. Why? I wasn't hired via an application in the first place. And quite frankly, I know I can't handle being on my feet for four hours, much less eight - so maybe it's time to find a new line of work. I know right now, I couldn't get hired anywhere - I have at least two appointments every week through September, a family reunion, my husbands knee surgery, and Karilynn's birth. And my hair is coming in all different directions. It's salt and pepper instead of my normal blond with some gray in it. It makes me feel like I look so much older than I am. It's hard enough to find a job at 53 without looking older. And this morning, my six and a half year old bunny, Adam, passed away unexpectedly. We have no idea what was wrong. He was fine last night. He's my third to lose around the age of six. He was so happy and fun. He brought so much joy and happiness - they all do. On the up side of things, I'm keeping myself busy helping with other benefits and doing things with friends and family. It's tiring, but I get too depressed sitting here at home all day. The 50mg of Paxil I'm on isn't helping to keep the bad thoughts at bay. For my birthday, I got a ticket to see Melissa Etheridge in concert in November. I'm excited about that. I have all of her music and DVD's, but have never seen her live. I'm working on staying positive and getting on with my life. It's a constant struggle, because I have this urge to get things done for all the wrong reasons. Normally, I'd be gearing up for the holidays, my lists would be made and I'd be excited to decorate the house. Instead, the other day when I was planning holiday meals, I found myself giving step-by-step instructions for whoever is elected to cook the turkey and telling the boys where the cookie recipes are that I make every year. It's crazy, I know. I miss me - the happy go lucky girl who goes around singing Jingle Bells in June and playing jokes on the boys. I guess it takes time and effort - I have the time and will make the effort. Hugs, Becky
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DX 10/25/2011 TNIDC
B,MRI,G,PET BM 11/25/2011 T-2.5cm N 1/8-3.9cm Stage 2b/3 Grade 3 |
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Wade
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Joined: May 15 2011 Location: SE Michigan Status: Offline Points: 108 |
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Posted: Aug 27 2012 at 8:49pm |
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Hi Becky,
I haven't been on on a while, but I read your post and thought I'd jump in. I don't have any sage advice, but I want you to know Kerri and I are pulling for you. I know many others are as well, and like me, don't really know what to say. So know that you are in our thoughts. We are sending positive, loving thoughts your way. I hope things turn around for you soon. Wade
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Wife DX 5/2011@52 2.5x3.1cm;6/2011 DD A/C 4x,Abraxane 4x; Lumpectomy, SN biopsy 10/2011; 10/27/2011 NED; Rads start 11-22-2011, Rads fin 1-11-2012; 10-2013 NED; 07-18-2014 NED; November 2018 NED
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Grateful for today
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Joined: Sep 21 2011 Location: U.S.A. Status: Offline Points: 1835 |
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Posted: Aug 28 2012 at 12:41am |
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Becky,
Sorry to hear of the passing of your 6 1/2 year old Bunny. Don't know what to say about the appointment changes, the job, the insurance change except am really sorry to hear this. What a great birthday gift..... a ticket to see Melissa Etheridge in concert in November. Someone (some people) must think you are very special.........and you are. Hmmmmm........wondering when your birthday was. Don't remember seeing it recently on the "Forum Home Page" at the bottom with "Today's Birthdays". Just looked at your Member Profile and it has 12-8 for your birthday. Maybe it really is 8-12???? The member profile asks for: day - month - year. Think most of us are used to: month - day - year. In any case, Becky, many good (belated) Birthday Wishes. And the awaiting of Karilynn. After things settle down a bit, please let us know that your grandchild arrived and tell us all about her.. With caring and supporting thoughts, Grateful for today...........Judy |
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Becky D
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Joined: Dec 07 2011 Location: Illinois Status: Offline Points: 79 |
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Posted: Sep 13 2012 at 8:46pm |
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Hi Judy,
Karilynn is due any day. Patient and impatient at the same time. Of course, Kara is tired of being pregnant. Last week the ultra sound said she was already 7lbs 14oz. I saw my primary yesterday. My blood pressure is back to normal. He noticed I have a slight limp - my right hip hurts all the time. I fell the other day on that side, so it didn't help matters. He scolded me for standing on a chair. I'm not supposed to be on ladders or standing on furniture - I don't recall ever being told that. He laughed when I told him I had to change a fly strip though. Flies are bad this year. Today, I saw the surgeon and she's puzzled as to why I have fluid buildup on my left side - no lymph nodes were removed on that side. I told her what my PT said and wanted to do and wanted me to do. She left the room and called her. Jennifer told her exactly what I told her. Get this -- she said she was glad I wasn't wearing a bra with fake boobs that it could make my chest worse. Her face turned red as she said it. Recall, she had been trying to force me to get them and I refused. The PT wants me to have a sleeve for both arms and a vest -- we're going to see if we can get the neoprene fabric at the fabric store and my sister will make it according to the measurements the lady at our local place gives us. Tomorrow, I see the oncologist. Another classmate was diagnosed with breast cancer - that's three in five months. That's a total of five in my class with breast cancer and three others have died from cancer. What are the odds? Take care! Becky
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DX 10/25/2011 TNIDC
B,MRI,G,PET BM 11/25/2011 T-2.5cm N 1/8-3.9cm Stage 2b/3 Grade 3 |
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Grateful for today
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Joined: Sep 21 2011 Location: U.S.A. Status: Offline Points: 1835 |
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Posted: Sep 14 2012 at 11:46pm |
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Becky,
Hope things went well with on your oncologist's appointment Friday. Glad your surgeon spoke with your PT. Good to hear that you were able to listen to your body and avoided making your chest worse. That does sound like a lot of cancer cases from your classmates. Did the town or state Public Health Department ever do a cancer survey of your area/school? After Karilynn arrives and you have the time, be sure to share the good news. With caring and supportive thoughts, Grateful for today.........Judy |
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Posted: Sep 20 2012 at 11:25pm |
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i think this very nice
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Becky D
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Joined: Dec 07 2011 Location: Illinois Status: Offline Points: 79 |
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Posted: Oct 23 2012 at 10:28pm |
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Thanks, Wade. I really appreciate it. I just saw your post. Keep sending those good vibes, because I'm really messed up.
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DX 10/25/2011 TNIDC
B,MRI,G,PET BM 11/25/2011 T-2.5cm N 1/8-3.9cm Stage 2b/3 Grade 3 |
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Becky D
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Joined: Dec 07 2011 Location: Illinois Status: Offline Points: 79 |
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Posted: Oct 23 2012 at 11:25pm |
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Hi Judy,
KariLynn was born September 27 by c-section. Mom and Dad did awesome. KariLynn weighed 8lbs 14oz. and was 20 inches long. She was perfectly perportioned. She's a really good baby. I take care of her almost every afternoon so mom has a break. She'll be four weeks on Thursday already. She's the highlight of the year that's for sure. Now she needs cousins to grown up with. No word on that happening yet. On the other side of things - the oncologist appointment was a waste of time. She came in, said my blood was fine, I was still anemic but it was normal and nothing to worry about. Ordered me to get off the Super B Complex vitamins saying I don't need them. I told her I was taking them to boost my energy level and she said no, you don't need them. She wants me off everything including the Vit. D. She felt the lumps, said they were smaller and told me she'd do another CT scan on them in March. And she was out the door before I could finish with my questions. If she was in the room five minutes, I'd be shocked. Same ole thing with her. I sent my primary a message and told him about it and asked him what I should do. He had me come in to see him. The pain I'd been having in my hip and trunk joints had taken over my body. He feels like I do that it's muscle issues so he wrote me a prescription for Lyrica. Now the insurance company is not happy and wants an explaination from the doctor as to why it was prescribed right off the bat instead of trying others first and why it wasn't called in for preapproval. I talked to the pharmacy yesterday and they said give it until Wednesday and if it's not rectified then, they'll make the calls for me. Oh, we ended up not having the insurance changed. No explaination from the company, but when we didn't receive the new insurance information my husband called them to get it. I'm keeping busy, putting on a good front for everyone else, doing things that are expected of me and bottling up how I really feel, because no one wants to hear it. That's fine - I really don't want to talk about it. I man up and hope I make it through. I was measured for the night vest and two sleeves, so I'm waiting on them. I plan on calling them tomorrow. I would have thought they'd be in by now. At my family reunion, my cousin who's being going through breast cancer along with me and my uncle who is a surviver of two types of cancer both urged me to apply for disability. They had and it was approved. So I did. We'll see. With my luck with the doctors and all, I'm not too optimistic. I miss me. How do I get her back? |
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DX 10/25/2011 TNIDC
B,MRI,G,PET BM 11/25/2011 T-2.5cm N 1/8-3.9cm Stage 2b/3 Grade 3 |
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Lillie
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Joined: Jul 10 2009 Location: Eastern NC Status: Offline Points: 3616 |
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Posted: Oct 24 2012 at 1:28pm |
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Dear Becky,
I am so happy you have a healthy, good granddaughter. Enjoy!! Enjoy!!
I pray your lymphodema vest and sleeves work really well to bring you much needed relief.
I'm thankful that your Primary feels that your pain is muscular and I hope the medicine does the job. I have some muscular and arthritis pains, and I know how frightening it can be. We always worry about the "C" being the culprit.
I could write a 1,000 words saying how you shouldn't have to man-up or bottle your feelings. It wouldn't change a thing. I'm telling you, cancer changes everything.
I have experienced it first hand in my life. I've seen it (close up and personal) in my sister-in-laws life. I've observed it in the lives of friends and acquaintances. We discussed this subject last week at our cancer support group.
I don't write this to make you feel worse. On the contrary, I write it to let you know that you are not alone. I am sorry that it is happening to you, but WE UNDERSTAND.....
I'm praying for much success with the lymphodema.
I can vouch for the fact that it does get easier as time passes.
God Bless,
Lillie
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Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED |
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