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Honeybea View Drop Down
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Joined: Feb 13 2012
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    Posted: Feb 13 2012 at 7:26pm
Hello everyone, i am new here, i am 47 and finished my treatment for grade 3 TNBC Oct 2011. I had the lump removed, 3 months of chemo and 20 sessions of radiotherapy. I had a gruelling time with the chemo and spent a total of 5 weeks living in my local hospital with such extreme side effects, and at one stage really thought i was going to die. I'm pleased to say that not everyone gets all these horrible side effects, i was just unlucky and was one of the 20% that gets every side effect going.

What i want to ask is this, where on earth can i find some pictures of inflammatory breast cancer, especially pictures of the peau d' Orange effect on the breast. I am suffering some symptoms similar to IBC, and i now have a strange patch on my boob, i would like to compare it to others with IBC but the only photo's i can find are ones where the ladies have extreme symptoms, i just want to see normal pictures.  if you know where i can find some please tell me.

Thanks

Honeybea.xx
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TNBC_in_NS View Drop Down
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Joined: Jul 26 2009
Location: NS Canada
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Points: 2028 		Post Options Post Options   Thanks (0) Thanks(0)   Quote TNBC_in_NS Quote  Post ReplyReply Direct Link To This Post Posted: Feb 13 2012 at 8:29pm
Welcome Honeybea! Sorry you have to be here but glad you found us!
I have pasted a couple of sites that explain IBC and I do hope you don' thave this but if you even think you do, go to your physician and be referred to an IBC specialist.
 
Keep us posted and let us know how you are doing.  Oh are you from BC?
 
Cheers,
Helene in NS
 
http://www.cancer.gov/common/popUps/popDefinition.aspx?term=peau+d'orange
Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear
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Honeybea View Drop Down
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Joined: Feb 13 2012
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Points: 7 		Post Options Post Options   Thanks (0) Thanks(0)   Quote Honeybea Quote  Post ReplyReply Direct Link To This Post Posted: Feb 14 2012 at 6:06pm
Thank you Helene for you reply, I am in England and i live in a part of the country called Surrey, about half an hour from London, if that. 

I clicked on the 2 links you kindly gave me, and the first one didnt work for me? The second one i have seen, but it does not show any pictures. I so would like to see pictures of IBC. I do go to see the dr again in a weeks time, so hopefully she will shed some light on what is going on with me, she did say she might do some biopsy's as well, which i am not looking forward to. 

Many thanks for your help,

Honeybea
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Grateful for today View Drop Down
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Points: 1835 		Post Options Post Options   Thanks (0) Thanks(0)   Quote Grateful for today Quote  Post ReplyReply Direct Link To This Post Posted: Feb 14 2012 at 6:33pm
Hi Honeybea,

Maybe try these links for pictures:
http://forum.tnbcfoundation.org/inflammatory-breast-cancer_topic8337.html
       and within that link is the pictures link of: http://www.ibcresearch.org/visual-symptoms-of-ibc/

If these links don't work to bring up the pictures, post again......and we'll try again.

Continue to follow your intincts......you need to see a specialist who is an expert in Inflammatory
Breast Cancer as soon as possible for an evaluation/consult.......to find out if you do or do not have it.

***Please also see the replies/additional posts on the other forum you posted on:
http://forum.tnbcfoundation.org/how-to-know-if-it-is-back_topic9606_post97690.html?KW=#97690
There are good and important posts there.***


With caring thoughts,

Grateful for today.........Judy
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Honeybea View Drop Down
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Joined: Feb 13 2012
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Points: 7 		Post Options Post Options   Thanks (0) Thanks(0)   Quote Honeybea Quote  Post ReplyReply Direct Link To This Post Posted: Feb 14 2012 at 7:26pm
Well thank you for your lovely replies, its so comforting to know there are others out there, though i am sorry you are all here. 
Steve has contacted me and i have replied. 

I am going to wait for my appointment on the 22nd Feb and may have to have some biopsy's done, but i will update as soon a i find anything out.

Thank you all so very much, and also for pointing out i had other replies, because of  my chemo brain, i totally forgot i had posted on that page lol.

Hugs, Honeybea.
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