Neulastia |
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Darla 
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Joined: Jul 24 2007 Location: United States Status: Offline Points: 162 |
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 Posted: Oct 13 2007 at 6:21pm |
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Thanks Lady4law,
I thought I posted this already so if it appears twice I apologize. It's one thing for the Chemo to interfere with the Neulasta, I thought it was the other way around - so much confusion about this. I'm still upset that I was never told that the protocol was to wait 24 hours. Thanks Again Lady4law. Darla |
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Nancy
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Joined: Jul 23 2007 Location: Altoona, PA Status: Offline Points: 3814 |
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Posted: Oct 13 2007 at 6:48pm |
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Darla,
Thanks for replying. I am hoping then that the Neulasta will still do it's job.
I read that post way too fast. It means that the Neulasta will not be as effective if given less than the 24 hours after chemo. CarynRose needs to chime in here. She is so knowledgeable and she gets her shot right after chemo. Why can't all the oncs get together on these treatments. Where on the site did someone post that their onc stated that it didn't matter, (or something close to that statement). I will tell Lori to wait for the 24 hours. She read that you had to GIVE the shot no more than 24 hours after chemo, but not before. Last time she was so upset with herself that she was over one hour over the 24. As if you all don't have enoughto worry about.
Thanks again,
Nancy
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woolie
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Joined: Jul 11 2007 Location: Uruguay Status: Offline Points: 30 |
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Posted: Oct 14 2007 at 2:44am |
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The discussion about colonies are the neutrophils being formed in yur bone marrow. You need 24 hrs to clear the chemo so the Neulasta can do its job.I am not making comments about peoples doctors but they are probably not from a University setting. Small town doctors do not always stay on top of the most current info which is why forums like tis are great so you can learn.
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Darla
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Joined: Jul 24 2007 Location: United States Status: Offline Points: 162 |
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Posted: Oct 14 2007 at 5:42am |
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Hi Woolie,
Thanks for the info. As a displaced Buffalonian now living in Bloomington Indiana - and one of the few who received the Neulasta immediately I have to say this - this is no small town - It is the home of Indiana University (think Bobby Knight) and people come FROM the small towns of Southern Indiana to receive their treatment here. I have been very pleased with my care here and feel it has been top notch - which is why I assumed my onc was doing it the better way. When I meet with him I hope he is able to explain to me why they're in a very small minority in terms of their method of administering the Neulasta they way they do. I will definitely report back. Darla Edited by Darla - Oct 14 2007 at 12:28pm |
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lady4law
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Joined: Jul 12 2007 Location: United States Status: Offline Points: 274 |
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Posted: Oct 14 2007 at 11:35am |
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Darla:
You should download the product information and take it with you. We all tend to trust our Drs and many times should not be. I trusted my Drs and now am sitting here in unbelievable pain. Two weeks ago I had a bilateral mast w/reconstruction. I also had to have my pacemaker moved from one side of my chest to the other, so I could have RADS on my left side. I now have FOUR wires running across my chest and heart do to the move. GUESS what? My path report came back ...NO CANCER...anywhere. The entire surgery appears to have been in vain. Now I will suffer for months during this reconstruction, and my body will never be the same...not to mention the possible heart complications do tot he moving of the pacemaker. (The expanders could tug at one of these wires and damage my heart. ALL BECAUSE I TRUSTED MY DOCTOR. I guess my only option is to file legal action and then I will most likely loose my other doctors, as they tend to stick together. - Jean |
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IBC/TN 6/07 Lymph, Chemo, Mast w/rec, chemo, 2 infect surg, exchg (2x) redo rec (2x) 4 new tumors esophagus, colon, chest, mouth, (10/11- 5th SUV7)"Activity" in spine hip
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Nancy
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Joined: Jul 23 2007 Location: Altoona, PA Status: Offline Points: 3814 |
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Posted: Oct 14 2007 at 12:02pm |
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Hi Woolie,
You are correct as to small town dr's. However, apparently Lori's dr. was right...24 hours after chemo. I was wrong in telling her that she could give herself the shot earlier. She was only off by 2 hours, so hopefully the Neulasta will be able to work properly. Boy! I bet these dr's wish there was no internet
 They were very seldom questioned before all this info was available to the person receiving treatment.Nancy
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Darla
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Joined: Jul 24 2007 Location: United States Status: Offline Points: 162 |
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Posted: Oct 14 2007 at 12:49pm |
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Jean,
I am so saddened to hear what you've been put through for nothing. I can't imagine not taking legal action under the circumstances. It is so hard to know what to do sometimes. We all hear, "get a second opinion" but it's not always easy, practical, or affordable to do that and I cannot even imagine how the insurance companies deal with repeat consultations and tests. I'm sure everyone who participates in these discussion forums has heard about the woman who had a double mastectomy because they mixed up her biopsy tissue sample with someone else's. She was featured in a couple news stories last week. Jean, I don't know what your spiritual beliefs are but I hope you don't mind my praying for you while you recover from your surgeries. Please keep us all posted on your progress. Darla |
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