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Chemo optional?

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123Donna View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Mar 26 2011 at 9:31am
Cinderwee,

The first time I only had 4 tx and didn't get a port.  It still did a number on the veins in my hand.  This time with many tx needed, I got a port and it's been wonderful.  I don't like the alien look on my chest where it protrudes but it sure has made infusions very simple and painless.
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote Cinderwee Quote  Post ReplyReply Direct Link To This Post Posted: Apr 01 2011 at 12:03am
I had a power port put in yesterday, too sore to use for the 2nd infusion (today) but look forward to using it going forward (at least 1 year). Today was my 2nd infusion took 4 hours instead of 6 and they did cut both the Benadryl & Decadron in HALF!  Yaay!! 2 (chemo) down, 10-14 (still debating Cytoxan) to go...... 

Peace & love,
Cindy 46
DX 11/29/10
Stg1 G3 IDC ER-PR-Her2-
<1cm,cln marg,0/1 neg
No BRCA
Lumpectomy 12/28/10
MammoSite rads 1/10-1/14
Taxol/Her x12 DONE!
CVP/Her ev 3wks x4 begin 6/23
Continue Her Mar2012
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Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Apr 01 2011 at 11:53pm
Thinking of you Cindy.
Stage 2 2003
Stage 1 2007
BRCA 1+
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Cinderwee Quote  Post ReplyReply Direct Link To This Post Posted: Apr 02 2011 at 1:15am
Thank you Smile  Heart
Cindy 46
DX 11/29/10
Stg1 G3 IDC ER-PR-Her2-
<1cm,cln marg,0/1 neg
No BRCA
Lumpectomy 12/28/10
MammoSite rads 1/10-1/14
Taxol/Her x12 DONE!
CVP/Her ev 3wks x4 begin 6/23
Continue Her Mar2012
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Post Options Post Options   Thanks (0) Thanks(0)   Quote SagePatientAdvocates Quote  Post ReplyReply Direct Link To This Post Posted: Apr 02 2011 at 1:19am
Hang tough, Cindy..you can do this...

and please try to find the beauty in each day...

all the best,

Steve
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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123Donna View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Apr 02 2011 at 11:07am
Cindy,

Thinking of you.  Stay strong, you'll get through this.  When I had my port put in I was sore for a few days, but it went away.  I didn't want it the first time around with only 4 treatments, but this time it's been a godsend.  It makes the infusions so much simpler than trying to go into the veins.  Wishing the best to you.

Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote sue Quote  Post ReplyReply Direct Link To This Post Posted: Apr 02 2011 at 11:23am
Hi Cindy,

Sending peaceful thoughts your way.  You will get through okay.  One thing I did was listen to soothing music on my Ipod for comfort and serenity.  I picked the quiet-sounding tunes like Moon River by Audrey Hepburn. Whatever makes you feel better is good though.    

Here for you if you have any questions or need to talk.  

Sue
Dx 7/10, age 53. TNBC left breast, stage I, grade 3, IDC 0.5 cm, DCI 2.5 cm, 0/8 lymph nodes neg. BRCA-. T/C x4 finished 2/09/11, rads x34 finished 4/21/11.          
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Cinderwee Quote  Post ReplyReply Direct Link To This Post Posted: Apr 07 2011 at 6:44pm
Power port used for the first time today (3rd infusion) , what a convenience!!
And I can never emphasize enough how much I appreciate all your wisdom and support....sometimes I wish we all lived in the same vicinity so we could have a face to face support group, but I am VERY grateful to have this one.

MUCH gratitude and respect to you ALL Hug


Edited by Cinderwee - Apr 07 2011 at 6:45pm
Cindy 46
DX 11/29/10
Stg1 G3 IDC ER-PR-Her2-
<1cm,cln marg,0/1 neg
No BRCA
Lumpectomy 12/28/10
MammoSite rads 1/10-1/14
Taxol/Her x12 DONE!
CVP/Her ev 3wks x4 begin 6/23
Continue Her Mar2012
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Cinderwee Quote  Post ReplyReply Direct Link To This Post Posted: Apr 08 2011 at 4:26pm
Well...the inevitable occurred this morning....hair is going....I'm viewing it as part of my metamorphosis.  And, it does prove the Taxol is working (killing the good as well as the bad) so...Other than this, I feel so much better than expected.  I am grateful.
 
Peace,
Cindy 46
DX 11/29/10
Stg1 G3 IDC ER-PR-Her2-
<1cm,cln marg,0/1 neg
No BRCA
Lumpectomy 12/28/10
MammoSite rads 1/10-1/14
Taxol/Her x12 DONE!
CVP/Her ev 3wks x4 begin 6/23
Continue Her Mar2012
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Martha Quote  Post ReplyReply Direct Link To This Post Posted: Apr 08 2011 at 6:52pm
Cindy,
I had very little side effects with the TAC chemo. My pre-meds and post chemo meds included decadron and emend. They kept me free from nausea. I got a pretty good buzz from the decadron, so had a high energy level too. Losing my hair was my hardest side effect to deal with. I had a few days of "metal taste".....but using plastic utensils helped with that.....starbursts also helped when it got really bad. I wish you the best of luck with this regimen. I hope it works for you.....and you are NED (no evidence of disease) when you're done.
Take care. Warm Hugs From Texas,
Martha
Dx 10/08;mastect 11/08; T2/N1/M0;TACX6;rads 5-6/09; recur 11/09;recur 3/10; xeloda + Ixempx5;recur 1/11; gem + carbo + iniparib 2/11; BRCA1/2 -; dx prog 1/12; Havalen Mar Apr 12;Abraxane, May-present.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Cinderwee Quote  Post ReplyReply Direct Link To This Post Posted: Apr 10 2011 at 9:16pm
I may be able to avoid the total buzz for a couple more days....what I am noticing are red, welt type bumps on my head and a couple on my face and back.  They are not pimples, but they hurt.  Has anyone else experienced this?  
Cindy 46
DX 11/29/10
Stg1 G3 IDC ER-PR-Her2-
<1cm,cln marg,0/1 neg
No BRCA
Lumpectomy 12/28/10
MammoSite rads 1/10-1/14
Taxol/Her x12 DONE!
CVP/Her ev 3wks x4 begin 6/23
Continue Her Mar2012
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Post Options Post Options   Thanks (0) Thanks(0)   Quote mjhoover@gmail.com Quote  Post ReplyReply Direct Link To This Post Posted: Apr 10 2011 at 9:23pm
when i was on abraxane and avastin i had bumps on my head and face. i showed it to my onc who prescribed a roll on type antibiotic. during the time i got tx i used the drug and ithelped clear up the bumps. good lucka mj
7/08 IDC L Br, mast 1/16 node +,St 2 gr 3, 6 rounds TAC
7/10 Mets to lungs, nodes abdomen BRCA-
8/10-1-11Abraxane/Avastin
7 11 3.3 cm tobrain sstem/rt cerribellium WBR 15 rds
Poss trial at MDA after
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Cinderwee Quote  Post ReplyReply Direct Link To This Post Posted: Apr 10 2011 at 9:25pm
Thank you Smile
Cindy 46
DX 11/29/10
Stg1 G3 IDC ER-PR-Her2-
<1cm,cln marg,0/1 neg
No BRCA
Lumpectomy 12/28/10
MammoSite rads 1/10-1/14
Taxol/Her x12 DONE!
CVP/Her ev 3wks x4 begin 6/23
Continue Her Mar2012
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