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Tabatha00 
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Joined: Jun 03 2009 Location: Alabama Status: Offline Points: 115 |
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 Topic: Survivor StoriesPosted: Nov 05 2010 at 11:08am |
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Let's hear some survivor stories!!!! I'm so sick of hearing TNBC usually comes back within 2 years. Yeah, well last time I checked the people saying that weren't God. Let's hear how many years you are past diagnosis and how you are doing!!!!!
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LRM216
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Joined: Mar 18 2009 Location: Marietta, GA Status: Offline Points: 1196 |
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Posted: Nov 05 2010 at 12:27pm |
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If I'm still here in 5 more years, then perhaps I may begin to consider myself a "survivor." I really hate that word - for any of us. I didn't even like it prior to being diagnosed! My stats are below - I just get really antsy - kind of like I'm afraid of jinxing myself. With this horrible triple negative - can we really ever feel safe?????? Was diagnosed 2/23/09 had first surgery March 23, 2009 and reexcision for DCIS in two margins April 8, 2009 - so I guess that would be the date I was deemed "cancer free." I am just so happy to feel pretty good today and to still be here! I pray it continues!
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Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
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snugltz
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Joined: Jul 10 2010 Location: Reedley Status: Offline Points: 438 |
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Posted: Nov 05 2010 at 12:29pm |
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Tabatha00 I agree. Everyone is wonderful on this site, but it seems so many are having recurrances that it is rather disheartening and depressing. And those that do have recurrances should tell us and be able to share and get encouragement and prayers. But it would be nice to hear some more positive stories also.
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1 cm, 0/2 neg nodes, lumpectomy 6/16/10, cytoxin/taxotere 4x every three weeks, rad start 11/8 33X
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tninalabama
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Joined: Aug 13 2010 Location: Alabama Status: Offline Points: 187 |
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Posted: Nov 05 2010 at 12:59pm |
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I'd love to hear from those folks also! I'm one of those awfull two year recurrencies that Tabatha00 hates to hear about, but other than my cancer I'm healthy. I'm hopeful that my PET scan on the 29th will show the radiation worked on my mets.
Pam
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Dx 11/07,stII bgr3,1/8+, metaplastic, recurrence 11/09, lymph dis 12/13+ 07/10, rad,x28 9/10,02/11 mets
BRCA neg 5-FMC since 03/12 PET 04/12,no progression Bone scan clear 06/12 |
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fighter_34
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Joined: Oct 01 2010 Status: Offline Points: 23 |
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Posted: Nov 05 2010 at 1:37pm |
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I am 2 months out and I am claiming no recurrances. Stay strong and fight ladies!!!!! I walked the stairs during lunch today and ate a salad. I do all I can do that's all I 'really' can do.
By the way I had a DMX on 9/23/10, my first chemo treatment on 10/21/10, and now I am back at work feeling good! I plan on walking this afternoon when I get home.
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IDC, Stage 1, Grade 3, no node involved, DMX 9/23/2010 Chemo Taxotere and Cytoxin 6 rounds
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becca
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Joined: Aug 20 2008 Location: Colorado Status: Offline Points: 153 |
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Posted: Nov 05 2010 at 1:46pm |
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Hi Ladies,
I am coming up on 3 years from DX and I was stage 3 /3A .. ...I had the lump removed and had chemo and radiation...I just had a check up last week and everything is great...I am feeling good except for arthritis in my knees , and I can live with that :) I know it is hard to not be scared all the time and that is something my husband does not understand and I don't know how you get over that...I guess just with time...I still worry everytime I don't feel well or have a pain somewhere....
My dr did tell me that even though it is an agressive cancer that does not mean that we can't cure it...so hang in there it does keep getting easier ...Hope I helped a little
Rebecca
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Age58 DX 12/07
Grand Junction, Colorado Lumpectomy 1/08/08 Stage IIIA grade3 5/19 nodes chemo 5/08 radiation 7/08 clear pet 9/08 |
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snugltz
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Joined: Jul 10 2010 Location: Reedley Status: Offline Points: 438 |
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Posted: Nov 05 2010 at 2:04pm |
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becca
Thanks for that wonderful word of hope.
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1 cm, 0/2 neg nodes, lumpectomy 6/16/10, cytoxin/taxotere 4x every three weeks, rad start 11/8 33X
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denise07
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Joined: Jun 26 2010 Location: pa Status: Offline Points: 997 |
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Posted: Nov 05 2010 at 2:18pm |
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I am 3 years out and thank god feeling fine! Better yet I know someone who is 9 years out and feels great.
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Tabatha00
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Joined: Jun 03 2009 Location: Alabama Status: Offline Points: 115 |
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Posted: Nov 05 2010 at 2:46pm |
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See how encouraging this is!!!!!! I love it!
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hhhh
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Joined: Sep 09 2010 Status: Offline Points: 150 |
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Posted: Nov 05 2010 at 6:18pm |
congrats to you! and did u say 9 years out??--i love that!
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Daughter of one of the most amazing women in the world...
she was diagnosed 8/2010, had lumpectomy, TAC X 6, rads. 52 yrs, stage 2A (3cm, no nodes), triple neg, grade 3 |
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Nov 05 2010 at 6:52pm |
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My first dx I made it 4 1/2 years but then was diagnosed again. So had to start counting all over and am now about 3 1/2 years out. Altogether that's a long time!
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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LRM216
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Joined: Mar 18 2009 Location: Marietta, GA Status: Offline Points: 1196 |
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Posted: Nov 05 2010 at 10:38pm |
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Over on the Breastcancer.org site - a TNBC patient posted under the triple negative thread that she's 15 years out! We were all jubilant over that post, as you can imagine!!!!!
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Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
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kirby
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Joined: Oct 09 2007 Location: bay area,california Status: Offline Points: 1088 |
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Posted: Nov 06 2010 at 12:41am |
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I feel like I've posted often that you must get tired of it but with this heading must say it again......will be 10 years this January ! Stats below. They didn't know what TN was when I was dx. I only knew what I wasn't. This was also before dose dense and they were only giving half the chemo that most of you get now. So no port. No decadron, no benadryl etc. SN was just starting so 13 nodes were removed. Surgeon felt better to remove more and be safe than sorry. It was considered lucky that I was readily given Zofran. I didn't meet anyone with my dx, negative for everything until 2007.
Good luck to all of you. Edited by kirby - Nov 06 2010 at 12:43am |
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kirby
dx Feb. 2001. Age 44 Lumpectomy 2cm. no nodes stage 1 grade 3 4 rnds AC, 35 rads |
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kimm
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Joined: Jun 03 2008 Location: Amherst, New York Status: Offline Points: 49 |
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Posted: Nov 06 2010 at 6:35am |
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Hi,
I am 3 1/2 years out from diagnosis. Although I will never be nieve enough to think I am cured, my life is a little more "normal" with each passing milestone & clear check up.
Best wishes,
Kim
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Diag 2/14/07
3cm Lt Breast grade III, stage III. Bilat Mastectomy A/C x4. Taxol x12 Rad x6 wks. |
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LRM216
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Joined: Mar 18 2009 Location: Marietta, GA Status: Offline Points: 1196 |
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Posted: Nov 06 2010 at 11:10am |
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Kirby and Kim, That is so wonderful to hear, and I am so happy for you. The posts with the good news help so much to dispel all the negatives we always hear. I wish you both a long, happy and healthy lifetime!
Linda
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Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
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denise07
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Joined: Jun 26 2010 Location: pa Status: Offline Points: 997 |
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Posted: Nov 06 2010 at 11:59am |
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Wonderful news everyone, Kirby 10 years thats what I like to hear keep reminding us!
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123Donna
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Joined: Aug 24 2009 Location: St. Louis, MO Status: Offline Points: 13510 |
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Posted: Nov 06 2010 at 12:39pm |
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And there's Rena who's a 23 year(?) survivor!
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
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unklez
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Joined: Sep 05 2009 Location: New Jersey Status: Offline Points: 1000 |
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Posted: Nov 06 2010 at 12:42pm |
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Good to hear these stories....
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Wife Dx: Jul/09. Age: 37. Size: 3cm. BRCA: -ve. Lumpectomy: Aug/09. Micromet 1/9 node. Chemo Start: Sep/09. E5103. DD ACB-> DD Abraxane (Taxol reaction). Zometa (S0307). Canadian Fraction Rads.
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Tabatha00
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Joined: Jun 03 2009 Location: Alabama Status: Offline Points: 115 |
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Posted: Nov 06 2010 at 1:05pm |
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See how having a little reminder can boost our confidence???? Awesome!
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Lillie
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Joined: Jul 10 2009 Location: Eastern NC Status: Offline Points: 3616 |
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Posted: Nov 06 2010 at 3:45pm |
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I have to jump on this "band wagon". On November 15th it will be 4 years since my last treatment. I am so thankful for every day and it does get easier the more time that passes. I am not naive enough to think it could never come back, but I'm headed to the zone where I feel safer. I wish that for all of you.
God Bless, Lillie |
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Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED |
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