Survivor Stories
Printed From: TNBC Foundation
Category: TNBC Forums
Forum Name: TNBC Talk
Forum Description: A place to chat
URL: http://forum.tnbcfoundation.org/forum_posts.asp?TID=7405
Printed Date: Mar 26 2026 at 11:24pm
Software Version: Web Wiz Forums 12.01 - http://www.webwizforums.com
Topic: Survivor Stories
Posted By: Tabatha00
Subject: Survivor Stories
Date Posted: Nov 05 2010 at 11:08am
| Let's hear some survivor stories!!!! I'm so sick of hearing TNBC usually comes back within 2 years. Yeah, well last time I checked the people saying that weren't God. Let's hear how many years you are past diagnosis and how you are doing!!!!! |
Replies:
Posted By: LRM216
Date Posted: Nov 05 2010 at 12:27pm
|
If I'm still here in 5 more years, then perhaps I may begin to consider myself a "survivor." I really hate that word - for any of us. I didn't even like it prior to being diagnosed! My stats are below - I just get really antsy - kind of like I'm afraid of jinxing myself. With this horrible triple negative - can we really ever feel safe?????? Was diagnosed 2/23/09 had first surgery March 23, 2009 and reexcision for DCIS in two margins April 8, 2009 - so I guess that would be the date I was deemed "cancer free." I am just so happy to feel pretty good today and to still be here! I pray it continues! ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: snugltz
Date Posted: Nov 05 2010 at 12:29pm
|
Tabatha00 I agree. Everyone is wonderful on this site, but it seems so many are having recurrances that it is rather disheartening and depressing. And those that do have recurrances should tell us and be able to share and get encouragement and prayers. But it would be nice to hear some more positive stories also. ------------- 1 cm, 0/2 neg nodes, lumpectomy 6/16/10, cytoxin/taxotere 4x every three weeks, rad start 11/8 33X |
Posted By: tninalabama
Date Posted: Nov 05 2010 at 12:59pm
|
I'd love to hear from those folks also! I'm one of those awfull two year recurrencies that Tabatha00 hates to hear about, but other than my cancer I'm healthy. I'm hopeful that my PET scan on the 29th will show the radiation worked on my mets.
Pam ------------- Dx 11/07,stII bgr3,1/8+, metaplastic, recurrence 11/09, lymph dis 12/13+ 07/10, rad,x28 9/10,02/11 mets BRCA neg 5-FMC since 03/12 PET 04/12,no progression Bone scan clear 06/12 |
Posted By: fighter_34
Date Posted: Nov 05 2010 at 1:37pm
|
I am 2 months out and I am claiming no recurrances. Stay strong and fight ladies!!!!! I walked the stairs during lunch today and ate a salad. I do all I can do that's all I 'really' can do.
By the way I had a DMX on 9/23/10, my first chemo treatment on 10/21/10, and now I am back at work feeling good! I plan on walking this afternoon when I get home. ------------- IDC, Stage 1, Grade 3, no node involved, DMX 9/23/2010 Chemo Taxotere and Cytoxin 6 rounds |
Posted By: becca
Date Posted: Nov 05 2010 at 1:46pm
|
Hi Ladies,
I am coming up on 3 years from DX and I was stage 3 /3A .. ...I had the lump removed and had chemo and radiation...I just had a check up last week and everything is great...I am feeling good except for arthritis in my knees , and I can live with that :) I know it is hard to not be scared all the time and that is something my husband does not understand and I don't know how you get over that...I guess just with time...I still worry everytime I don't feel well or have a pain somewhere....
My dr did tell me that even though it is an agressive cancer that does not mean that we can't cure it...so hang in there it does keep getting easier ...Hope I helped a little
Rebecca
------------- Age58 DX 12/07 Grand Junction, Colorado Lumpectomy 1/08/08 Stage IIIA grade3 5/19 nodes chemo 5/08 radiation 7/08 clear pet 9/08 |
Posted By: snugltz
Date Posted: Nov 05 2010 at 2:04pm
|
becca
Thanks for that wonderful word of hope. ------------- 1 cm, 0/2 neg nodes, lumpectomy 6/16/10, cytoxin/taxotere 4x every three weeks, rad start 11/8 33X |
Posted By: denise07
Date Posted: Nov 05 2010 at 2:18pm
| I am 3 years out and thank god feeling fine! Better yet I know someone who is 9 years out and feels great. |
Posted By: Tabatha00
Date Posted: Nov 05 2010 at 2:46pm
| See how encouraging this is!!!!!! I love it! |
Posted By: hhhh
Date Posted: Nov 05 2010 at 6:18pm
congrats to you! and did u say 9 years out??--i love that! ------------- Daughter of one of the most amazing women in the world... she was diagnosed 8/2010, had lumpectomy, TAC X 6, rads. 52 yrs, stage 2A (3cm, no nodes), triple neg, grade 3 |
denise07 wrote:Posted By: trip2
Date Posted: Nov 05 2010 at 6:52pm
|
My first dx I made it 4 1/2 years but then was diagnosed again. So had to start counting all over and am now about 3 1/2 years out. Altogether that's a long time! ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: LRM216
Date Posted: Nov 05 2010 at 10:38pm
|
Over on the Breastcancer.org site - a TNBC patient posted under the triple negative thread that she's 15 years out! We were all jubilant over that post, as you can imagine!!!!! ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: kirby
Date Posted: Nov 06 2010 at 12:41am
|
I feel like I've posted often that you must get tired of it but with this heading must say it again......will be 10 years this January ! Stats below. They didn't know what TN was when I was dx. I only knew what I wasn't. This was also before dose dense and they were only giving half the chemo that most of you get now. So no port. No decadron, no benadryl etc. SN was just starting so 13 nodes were removed. Surgeon felt better to remove more and be safe than sorry. It was considered lucky that I was readily given Zofran. I didn't meet anyone with my dx, negative for everything until 2007.
Good luck to all of you. ------------- kirby dx Feb. 2001. Age 44 Lumpectomy 2cm. no nodes stage 1 grade 3 4 rnds AC, 35 rads |
Posted By: kimm
Date Posted: Nov 06 2010 at 6:35am
|
Hi,
I am 3 1/2 years out from diagnosis. Although I will never be nieve enough to think I am cured, my life is a little more "normal" with each passing milestone & clear check up.
Best wishes,
Kim ------------- Diag 2/14/07 3cm Lt Breast grade III, stage III. Bilat Mastectomy A/C x4. Taxol x12 Rad x6 wks. |
Posted By: LRM216
Date Posted: Nov 06 2010 at 11:10am
|
Kirby and Kim, That is so wonderful to hear, and I am so happy for you. The posts with the good news help so much to dispel all the negatives we always hear. I wish you both a long, happy and healthy lifetime!
Linda ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: denise07
Date Posted: Nov 06 2010 at 11:59am
| Wonderful news everyone, Kirby 10 years thats what I like to hear keep reminding us! |
Posted By: 123Donna
Date Posted: Nov 06 2010 at 12:39pm
|
And there's Rena who's a 23 year(?) survivor!
------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: unklez
Date Posted: Nov 06 2010 at 12:42pm
|
Good to hear these stories.... ------------- Wife Dx: Jul/09. Age: 37. Size: 3cm. BRCA: -ve. Lumpectomy: Aug/09. Micromet 1/9 node. Chemo Start: Sep/09. E5103. DD ACB-> DD Abraxane (Taxol reaction). Zometa (S0307). Canadian Fraction Rads. |
Posted By: Tabatha00
Date Posted: Nov 06 2010 at 1:05pm
| See how having a little reminder can boost our confidence???? Awesome! |
Posted By: Lillie
Date Posted: Nov 06 2010 at 3:45pm
|
I have to jump on this "band wagon". On November 15th it will be 4 years since my last treatment. I am so thankful for every day and it does get easier the more time that passes. I am not naive enough to think it could never come back, but I'm headed to the zone where I feel safer. I wish that for all of you.
God Bless, Lillie ------------- Dx 6/06 age 65,IDC-TNBC Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED |
Posted By: denise07
Date Posted: Nov 07 2010 at 1:34pm
| Great stories keep coming!!!!! |
Posted By: Lorene
Date Posted: Nov 07 2010 at 1:53pm
|
Since many of you ask to hear from long-timers, I will repeat myself as well, as I've posted here before. I was 9 years out in Oct. I'm Doing good. No recurrences. I did have a couple biopsies in the summer, first the needle biopsy, which still left some uncertainty, so I asked for the excisional biopsy. The changes that had showed up on my mammogram from the previous year were near the scar where I'd had my lumpectomy in 2001, and were identified as scarring from biopsies, surgery, radiation, & stuff. Having had so much work in that area, it is so hard & my surgeon said it may always be that way. He also said he has several patients like me, long-timers, who have abnormal mammograms that continue & biopsies have to repeated again. I gave you all those details in the event it might be helpful to you down the road. However, I'm good today, thankful, blessed, and I'm praying healthy, long-time days ahead for you.
God Bless,
Lorene ------------- dx10/01@age59,IDC TNBC, St.IIB,Gr3,2.5cm,3+nodes, epirubicin,5FU,cytoxan,33Rads,No recurrence, 2018 |
Posted By: denise07
Date Posted: Nov 08 2010 at 3:54pm
| I met another women today who had tnbc stage 3 and is 2 years out and doing fine! |
Posted By: Sandra
Date Posted: Nov 08 2010 at 4:16pm
|
Tabatha00 where do you live in Alabama? ------------- DX 1/14/10 TNB IIIC with one lymph 8 taxol 3 cisplatin 4/7 Dr cant feel tumor occ in same breast and chest wall on 10/10 other breast and lymph Gemzar/Carboplatin lotto for Parp |
Posted By: Terri
Date Posted: Nov 08 2010 at 9:38pm
|
Thankyou for sharing Lorene and wishing great health long term to you too!
Lilly, Congrats on your upcoming anniversary!
Kirby, I, for one, NEVER get sick of hearing your story  !!------------- IDC DX 8/17/07 (age 41) Stage 1 Grade 1-2, 1.35 cm 2 nodes neg, Lumpectomy 10/07 Chemo: FEC 100 x 6, 35 rads BRCA 1/2 NEG PET/CT & Brain CT Nov 09 Brain MRI Aug 2012 NED |
Posted By: Tabatha00
Date Posted: Nov 09 2010 at 9:21am
| Sandra, I live in Florence, Alabama. Do you live in Bama too? |
Posted By: denise07
Date Posted: Nov 09 2010 at 4:01pm
| lorene, nine years out that is awesome! |
Posted By: Cherisk8
Date Posted: Nov 09 2010 at 6:01pm
|
Hello! I am new here and this is my first post. This is the first thread I clicked on because like all of you....I like to hear survivor stories and I feel blessed to be a 5 year Triple neg survivor!
Here are my stats:
diagnosed 2/4/05 at age 39
invasive, stage IIIA TRIPLE NEG 6 out of 6 nodes postive 2.5 cm chemo: 4 A&C, 4 Taxol Radical Mastectomy 7/20/05 30 Rads finshed 10/12/05 I am married and have a 10 year old son. I work in his school as a assistant teacher and my mail profession is that I am a Figure Skating Coach.
Looking forward to meeting and chatting with all of you! <3
Cheri
|
Posted By: trip2
Date Posted: Nov 09 2010 at 6:08pm
|
Hello Cheri, welcome and congratulations. Thanks so much for jumping in and sharing your good news, we look forward to hearing more from you. ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: Cherisk8
Date Posted: Nov 09 2010 at 6:11pm
Thank you Pam!!
|
Posted By: Alison41
Date Posted: Nov 09 2010 at 6:24pm
|
As you can see from my stats I am a 2 years and 1 month survivor and healthy, TNBC is agressive but not a death sentence. ------------- diagnosed Sep08,TNBC IDC 5cm tumour, 1+ node, Mastectomy and Axilla dissection May09, 4 of Fec and 4 of Taxotare. 15 Rounds of Radiotherapy. 2.5 years from diagnosis. Reconstruction November2010. |
Posted By: LRM216
Date Posted: Nov 09 2010 at 6:41pm
|
Hi Cheri and welcome aboard. We are sure glad to have you and all your good news! I wish you a whole lot of many of decades of good health and a happy life.
Linda
------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: TNBC_in_NS
Date Posted: Nov 09 2010 at 7:18pm
|
Cheri & Alison, CONGRATULATIONS!!!!
It is so good to hear GOOD NEWS!!!!!
Bless you both and keep on keeping on......
Hugs, Helen in NS ------------- Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear |
Posted By: hydeskate
Date Posted: Nov 09 2010 at 8:55pm
| I was dx right out of the gate with TNBC-MET at age 29 and postive for the Brac 1 gene, that was three years ago, I have official been in "remission/ned" for the last year even though my scans during my 2nd round of Abraxane showed no sign of disease. I was blessed that I got on Abraxane and had no side effects with my young age they where able to push the envelope with higher dosages of the Chemo. Know I make trips every 3 months to get scans and blood work. |
Posted By: 123Donna
Date Posted: Nov 09 2010 at 8:59pm
|
Hydeskate, Your story is so encouraging. I'm glad your treatment is working! Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: outnumbered
Date Posted: Nov 09 2010 at 9:03pm
|
Yay to all of us!!!!! I need to read more of this. We also need to remember that many ladies who are long time survivors are on with their lives and are not on this site.
I am getting antsy because my 6 month follow up is next week. I'm sure it'll all be fine. Until I hit the 5 year mark, I think I will continue to worry. Its just part of the new normal. See my stats, I am over 2 years out.
Hugs to all xoxo
PS: Kirby, I love hearing from you!!!!! ------------- ~Sara DX @ age 40 6/24/08 Stage 1 Grade 3 BRCA1+ 187delAG BMX (nipple-areola-sparing) 8/5/08 Redo BMX (remove nipple and areola) w/ Lat Flap 7/6/09 BSO 9/3/09 NED since 08/05/2008 |
Posted By: Lisa L
Date Posted: Nov 09 2010 at 10:38pm
|
I am a five year survivor! My stats are below. A couple of things to keep in mind, first, there was not testing for HER2 many years ago, so many who are long term survivors are assumed to be triple negative from their other statistics. Secondly, many long term survivors do not frequent these kinds of boards, they have either moved on, or don't even know these boards exist because they were not a part of their journey. ------------- Dx 8/05 age 43 mast & lat flap 10/05 Triple neg BRCA neg IDC 4.5cm rt br 0/1 sen node 6 A/C 5 Taxol, 25 rads 11/05-6/06 Central Illinois Currently NED |
Posted By: scared
Date Posted: Nov 09 2010 at 10:51pm
|
Hello old and new friends, We will be three years since diagnosis come June 2011. Becky started a no salt, no sugar, no dairy, and lean meats diet about five months ago. I thought it was better to join her than fight her and went on it too. Becky has since lost over 30 pounds and I have lost 35. She also goes to the local cancer center in Seattle and exercises. Today Becky was offered a job and she believes because of her new lifestyle she will have the energy to go back to work. Becky's last check-up her oncologist's nurse noticed Becky's big loss since her last treatment three months ago, over 10% of her body weight. Becky is feeling great, and that is one reason I have not been around much because I have been spending most of my time with her. Never forgetting my friends here, I thought I'd say hello. These are great stories, very uplifting. In case anyone wants to know the diet is called, "The Paleco Diet". For us it is not a diet but a lifestyle. I am looking forward to Thanksgiving, because it is the day we are allowing to skip the diet and celebrate. God bless you all! Dave ------------- Wife diagnosed 7/08 stage 2B 4.78cm with 3 nodes. 15 weeks of Adriamycin and Cytoxin, Mastectomy, 12 weeks of Taxol, and 6.5 weeks of radiation. |
Posted By: snugltz
Date Posted: Nov 09 2010 at 10:51pm
|
Lisa
That is a very encouraging post. I am so glad you are doing well. Does the worrying get better as time goes on? Were you also told if you made it five years you were pretty much out of the woods. ------------- 1 cm, 0/2 neg nodes, lumpectomy 6/16/10, cytoxin/taxotere 4x every three weeks, rad start 11/8 33X |
Posted By: Lillie
Date Posted: Nov 10 2010 at 9:18am
|
Dear Scared,
I am so happy for Becky and you. I know losing the weight has been a moral booster for both of you. I am so glad she feels like going back to work. Both of you enjoy Thanksgiving and keep up the new you (both of you) lifestyles. God Bless, Lillie ------------- Dx 6/06 age 65,IDC-TNBC Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED |
Posted By: sharon in Mich
Date Posted: Nov 10 2010 at 10:28am
|
Hi all--Like Kirby i'm afraid you might get tired of hearing from me. Today is my birthday. I am 5 1/2 years post dx and NED. Five years ago on my birthday I was just one week out of rads, having done 4 months AC/Taxol neo adjuvant chemo bilateral mastectomy. I was just starting to get the post treatment jimjams. I feel so grateful to be alive and healthy today and to have all you good folks as support. Here's to kicking cancer's butt! Sharon ------------- dx 03/05 tn with lymph involvement, dd neo adjuvant AC+taxol, bil 08/05, 38 rads, BRCA-, NED. |
Posted By: snugltz
Date Posted: Nov 10 2010 at 12:16pm
|
I was told by my doctor that losing weight was as effective as chemo for TN if you are overweight. ------------- 1 cm, 0/2 neg nodes, lumpectomy 6/16/10, cytoxin/taxotere 4x every three weeks, rad start 11/8 33X |
Posted By: nmunoz
Date Posted: Nov 10 2010 at 2:39pm
|
Happy Birthday Sharon !
Thanks for all the survivors stories; they are all encouraging and inspiring. Best, Natalia ------------- Natalia, 38 years Dx TNBC 10/22/08, BRCA1+ Double Mx 11/20/08 with Recon. 3/37 nodes Rads 7 weeks done 8/09 ACx4 every 2 weeks and Tx12 weeks. Avastin e/3 weeksx10 (Clinical Trial) Done Dec/09 |
Posted By: denise07
Date Posted: Nov 11 2010 at 1:53pm
| Sharon, 5 and a half years that is wonderful, best birthday present you can get. Happy Birthday!!!!! |
Posted By: Terri
Date Posted: Nov 11 2010 at 2:53pm
|
Sharon,
Happy Birthday and Happy over FIVE YEARS!!
 Birthdays are so much more precious after what we`ve been through. Dave,
Congrats to you & Becky on your change to a healthier lifestyle!
 I also set out to be healthier post tx by losing 28 lbs by eating better and exercising when I feel up to it. I read the book Eat to Live and it helped me lose the last 10 lbs. Eating massive amounts of veggies & fruits while limiting dairy and animal products (I was a pescatarian already) has made such a difference. We must do what we can to stay healthy and you are a great husband to join your DW. My husband is eating beans for the first time in his life LOL.Snuglz, that is an amazing statement by your Dr. My sx says staying lean is VERY important for survival too. ------------- IDC DX 8/17/07 (age 41) Stage 1 Grade 1-2, 1.35 cm 2 nodes neg, Lumpectomy 10/07 Chemo: FEC 100 x 6, 35 rads BRCA 1/2 NEG PET/CT & Brain CT Nov 09 Brain MRI Aug 2012 NED |
Posted By: denise07
Date Posted: Nov 20 2010 at 2:53pm
| Feeling a little down today,Looking for some more inspiring survival stories they really help. Come on everybody there has to be more survivors out there! |
Posted By: trishiecat
Date Posted: Nov 20 2010 at 8:43pm
|
hello all, here I am looking on the dark side.... I wonder if my glass will ever overflow (sigh). so how many survivors do we have after a recurrence? trish |
Posted By: Pink Warrior
Date Posted: Nov 20 2010 at 9:17pm
|
I love this thread!! God bless us all! ------------- Dx:10/09,IDC Stg 2,Gr 3,TN BRCA 1&2 - Partial DD EC/AC Local recur 11/10 BMX 12/10 Right proph TC x 4 Rads x 33 9/11 Skin mets, mediastinal & hilar nodes Abraxane/Avastin |
Posted By: SagePatientAdvocates
Date Posted: Nov 20 2010 at 10:52pm
|
My daughter is 6 years + almost 3 months out...she is fit and doing well physically and better, psychologically.. For those of you who are newly diagnosed please know that chemo, as in my daughter's case, can be effective. Please try your best to find the beauty in each day and please know that our TNBC Foundation family is here for all of us...every day...this is a wonderful resource and a beautiful family.. my heart is with all here. always, Steve ------------- I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates |
Posted By: Sandra
Date Posted: Nov 30 2010 at 3:03pm
|
Yes, work in Decatur but live in Eva ------------- DX 1/14/10 TNB IIIC with one lymph 8 taxol 3 cisplatin 4/7 Dr cant feel tumor occ in same breast and chest wall on 10/10 other breast and lymph Gemzar/Carboplatin lotto for Parp |
Posted By: hhhh
Date Posted: Nov 30 2010 at 10:06pm
|
OMG people, if you haven't done so yet go check out the topic "3+ year survivor stories please!" in the "triple negative" forum on breastcancer.org...wow it's so freakin uplifting i love it! ------------- Daughter of one of the most amazing women in the world... she was diagnosed 8/2010, had lumpectomy, TAC X 6, rads. 52 yrs, stage 2A (3cm, no nodes), triple neg, grade 3 |
Posted By: LRM216
Date Posted: Nov 30 2010 at 11:12pm
|
I read it all the time! Yes, it is full of promise and is very comforting. ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: Ghostie
Date Posted: Dec 01 2010 at 4:54pm
|
Hi snugltz, very interesting to hear that (about losing weight)! Through hard work and low-fat eating, I've lost 75+ pounds...and my oncologist got very upset with me, told me to stop losing. I think he is worried that the loss indicates something bad, although I explained how hard I've been working to get healthier. THANKS so much for sharing that, it's made me feel much better! ------------- Age 49, DX 8/27/09, 1.8cm, Stage I, Grade 3; lumpectomy 9/21/09, clear margins, 2 nodes removed, BRCA2+, Oncotype score 67. Finished 4 DD A/C + 4 DD Taxol on 3/18/10. Completed radiation in June 2010 |
Posted By: Desaree
Date Posted: Dec 01 2010 at 5:57pm
|
Hi Ghostie,
Very impressive weight loss! Good for you. My oncologist doesn't want me to work on my diet/weight loss until I'm done with treatment, but it seems to me it should be a good thing and helpful for my overall prognosis. You are a role model! ------------- Dx@41 yrs 5/5/10,, Gem/Carb/Parp failed, quadrantectomy 8/13/10 Stage III, grade 3, 0/11 nodes+, DD 4AC-12Tax 9/8/10, Allergic Tax,Abraxane (10) start 11/22/10, finished 2/18/11+ 33 rads done 2/8/11 |
Posted By: LRM216
Date Posted: Dec 01 2010 at 7:07pm
|
I'm 11 months out of chemo, and if I lose a few lbs. (have to work hard to lose them too!) - my onc freaks! Then I ease up - and gain 'em all right back! ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: Susie
Date Posted: Dec 02 2010 at 7:56am
|
I am 2 years out from dx and surgery...not when I ended treatment.(Never quite sure when to start counting) Yea!!!
On the weight loss thing, I too have read how important weight and exercise are. I gained 17pounds during treatment. I have just lost 10 of those and boy it was hard. Started exercising again, 6 days per week. It's all I can do and of course... PRAYER!!!!
------------- dx 10/08,age 56,.75 cm. Stage1 Grade3,lumpectomy,SN neg..,AC 12/08-02/09,35rads,03/09-05/09,BRCA2+(E1415X),06/09,oophorectomy 10/09, Zometa - IV/mo.,07/09-08/10, lumpectomy #2 10/20/10 NED |
Posted By: eltonswife
Date Posted: Dec 02 2010 at 8:20am
|
Hi there,
I was diagnosed in May of 2006 at age 45 and so am almost at the 5 year mark with no recurrance. Tumor was large at 3.2cm, grade 3, triple neg but all 22 nodes removed were negative for spread. Had mastectomy followed by FEC chemo, no rads. Fear of recurrance still there but settling down to a dull throb. In the beginning my onc emphatically stated that I "would be fine" which of course I knew wasn't foreseeable but man did I appreciate that woman's positive attitude. I cannot believe some of the stories on here that speak of the "other" kind of doctors. Not what we need when faced with such a life altering diagnosis.------------- dx 2006, stg 2, gr3, 3.2 cm, 22 neg nodes,r mast,brca-,FEC chemo. |
Posted By: Lillie
Date Posted: Dec 02 2010 at 10:53am
|
Dear Eltonswife,
You and I are very close in our diagnoses dates. June 2006 for me. My oncologist was very sort of emphatic that I would be fine also. That kind of positive attitude does help you get through the days. I know they cannot know for sure, but it helped my state of mind. God Bless, Lillie ------------- Dx 6/06 age 65,IDC-TNBC Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED |
Posted By: Ghostie
Date Posted: Dec 02 2010 at 12:56pm
|
I know I was not in my best health before treatment, so I tried to look at it as a "Reboot" sequence and an opportunity to emerge on the other side healthier. When you think about it, by the time we've lost our hair and all our cells have been napalmed, it's a little like being a baby again with a cleaned-out system! ------------- Age 49, DX 8/27/09, 1.8cm, Stage I, Grade 3; lumpectomy 9/21/09, clear margins, 2 nodes removed, BRCA2+, Oncotype score 67. Finished 4 DD A/C + 4 DD Taxol on 3/18/10. Completed radiation in June 2010 |
Posted By: Terri
Date Posted: Dec 04 2010 at 12:40am
|
Eltonswife,
Great to hear you are doing well! How many treatments of FEC did you have? ------------- IDC DX 8/17/07 (age 41) Stage 1 Grade 1-2, 1.35 cm 2 nodes neg, Lumpectomy 10/07 Chemo: FEC 100 x 6, 35 rads BRCA 1/2 NEG PET/CT & Brain CT Nov 09 Brain MRI Aug 2012 NED |
Posted By: trip2
Date Posted: Dec 05 2010 at 12:06pm
|
Hi Eltonswife and welcome.
Thank you for sharing your story, congrats on your upcoming 5 years! ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: eltonswife
Date Posted: Dec 06 2010 at 3:25pm
|
Hi there, I had 6 treatments spaced 3 weeks apart. How about you? I see that you had the same chemo and I haven't found very many other women that have.
------------- dx 2006, stg 2, gr3, 3.2 cm, 22 neg nodes,r mast,brca-,FEC chemo. |
Posted By: susanb
Date Posted: Dec 06 2010 at 4:51pm
|
I was diagnosed 6/06 so I'm 4.5 years out. My surgeon considers me "cured", my onco is not quite as positive but will consider me ned. I had a bilateral mastectomy and 4 rounds of ac. I don't know my BRCA status but as that this disease killed both my mother and her mother at very young ages I've always assumed I'm positive (we are Ashkanzie Jews as well). I also had a complete hysterectomy in 07, just in case. My cancer was only stage 1 (1cm) no nodes but ki67 of 54 and grade 3/3. My gyno found the lump during a routine exam (it never did show on a mamo) and my surgeon swears that my gyno saved my life. I was 46 at diagnoses. My mother was 36 at diagnosis and we think that her mother was even younger. Chemo was brutal but it sure beats the alternative. ------------- Dx June 06 stage 1 at age 46, no nodes, clean margins, Ki-67 at 54, Bilateral Mastectomy, 4 rounds AC, complete hysterectomy Aug O7. Mother and Grandmother both died of breast cancer dx in their 30's. |
Posted By: Terri
Date Posted: Dec 06 2010 at 8:17pm
|
Eltonswife,
I had 6 treatments 3 weeks apart like you. My onc told me they usually do only 4 txs, but did 2 extra due to the triple neg. Yes, there aren`t many in the U.S who still get FEC, I`ve noticed mostly in Europe & Canada (like you). When I questioned my onc why I didn`t get a Taxane, he said the FEC was a powerful chemo that he believed does a good job on TN. I hope he`s right!! I donm`t know about you but it kicked MY butt! And I am a strong woman.
Susanb,
Thankyou for sharing your story. I`m so sorry for the losses of your Mom & Grandmother. I hope you are indeed "cured" and live to a ripe old age.
------------- IDC DX 8/17/07 (age 41) Stage 1 Grade 1-2, 1.35 cm 2 nodes neg, Lumpectomy 10/07 Chemo: FEC 100 x 6, 35 rads BRCA 1/2 NEG PET/CT & Brain CT Nov 09 Brain MRI Aug 2012 NED |
Posted By: trip2
Date Posted: Dec 06 2010 at 8:24pm
|
Hi Susan, yes it sure does beat the alternative! ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: eltonswife
Date Posted: Dec 06 2010 at 11:12pm
|
Hi Terri,
I must agree, the FEC Chemo really knocked me on my butt too. I've never been hospitalized, had surgery or any serious illness before my diagnosis. I considered myself very healthy and strong. Isn't it amazing what we can do to ourselves and still bounce back after?!
take care
Liane ------------- dx 2006, stg 2, gr3, 3.2 cm, 22 neg nodes,r mast,brca-,FEC chemo. |
Posted By: Terri
Date Posted: Dec 06 2010 at 11:15pm
|
Liane,
Yes, we Rock!
Love,
Terri ------------- IDC DX 8/17/07 (age 41) Stage 1 Grade 1-2, 1.35 cm 2 nodes neg, Lumpectomy 10/07 Chemo: FEC 100 x 6, 35 rads BRCA 1/2 NEG PET/CT & Brain CT Nov 09 Brain MRI Aug 2012 NED |
Posted By: conniec
Date Posted: Dec 07 2010 at 8:39am
|
A huge hurray for the survivors that hang out on this board and boost our cheering section. Those stories are so encouraging and I hope even more flow in. Connie ------------- Age 40, Felt lump 8/20/10 Lumpectomy 9/7 DX 1.5 tumor stg I 9/13 margin not clear Double MX w/ expanders 10/8 Final tumor size 1.7, 0/3 + nodes AC-T chemo 11/8 - 2/21 TE/implant exchange 3/29 |
Posted By: Lillie
Date Posted: Dec 07 2010 at 10:31am
|
Dear Connie and other TNBC sisters,
I do hang our here on the boards hoping to offer hope to women just being diagnosed, in treatment, or just finishing treatment. Just read my signature and see that my cancer was stage IIb, 1 positive node, triple negative; not the best scenario, but I decided to fight. I did not have reconstruction and don't plan to. I would add that my oncologists recommends that none of us should rush the reconstruction process. He recommends finishing all surgeries and treatments and a time of healing before begining reconstruction. Just some food for thought. God Bless, Lillie ------------- Dx 6/06 age 65,IDC-TNBC Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED |
Posted By: Debris
Date Posted: Dec 07 2010 at 10:59am
|
Thanks for posting, all. It is good to be able to read about positive outcomes! ------------- 4/12 Xeloda/Tykerb 2 Carboplatin 12/11 Dx IA 9 Gemzar/Taxotere Dx IBC:FEC 5 Ixempra/Sprycel 2 25 Rad 10/10 BRCA1-/2suv 9 NED 6 Stg4 Grd3 many nodes no Sx/Rad. Taxol/Avastin 06/08 Dx DCIS 0/SN Rads/AIs |
Posted By: Kristine
Date Posted: Dec 07 2010 at 1:31pm
|
Me too! Since October 30, 2009, was the date of my surgery - so just past a year and feeling great! :) ------------- 41 yrs at diag, Diag 10/09, Stage1, Grade 3, 0/5 nodes, Mast & reconst, TCx4 comp 02/10, BRCA-, http://kristine-livingmylife.blogspot.com/ |
Posted By: yowyow
Date Posted: Dec 16 2010 at 12:21am
|
Hi all, Gosh its been a while since I posted here
I was dx may 06 - the day I turned 36
IDC 1.4cm DCIS 5.5cm
2+ / 15 nodes
6 x FEC
loving life YAYYY !!!
------------- dx may 06, 1.4cm IDC 5cm DCIS WLE,re-Exc, skin & nipple sparing Bilat mast, 2/14+ 6xFEC NED |
Posted By: Terri
Date Posted: Dec 17 2010 at 6:47pm
|
yowyow,
Thanks for your post and congrats on being NED!!!! It makes me especially happy to see you doing well because we both had the same chemo which not many on this forum have had.
Keep loving life !! ------------- IDC DX 8/17/07 (age 41) Stage 1 Grade 1-2, 1.35 cm 2 nodes neg, Lumpectomy 10/07 Chemo: FEC 100 x 6, 35 rads BRCA 1/2 NEG PET/CT & Brain CT Nov 09 Brain MRI Aug 2012 NED |
Posted By: trip2
Date Posted: Dec 18 2010 at 11:05am
|
Congratulations YowYow!!! ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: 123Donna
Date Posted: Dec 18 2010 at 11:12am
|
Yowyow, Congratulations on NED!!!  ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: M Alison
Date Posted: Dec 18 2010 at 11:22am
|
I am over 2 years out from dx, my onc says first 2 years after chemo ends are the most risky. So my next milestone is March 2011. Then my onc visits drop to once every 6 months. Just had a clear MRI. My husband and I have booked a trip to Paris in May and I'm so hoping to go on that trip (we bought travel insurance though, just in case). I feel great, just super, but still follow this board on a daily basis because I empathize with all who are here and know that in a heartbeat I could be fighting again too. One upside to my bc experience: I recently spent an entire weekend trying to fly out to Calif to visit family, from our snow-bound Minneapolis airport. Yes, it was a hassle, but all I could do was sit there and think how lucky am I to be alive and sitting here in this airport. And yes, my daughter and I finally made it out and had a wonderful (shortened) trip. Best to All, Alison ------------- Age 55, Dx 9-08 TNBC, mast 10-08, stage 2, 1/6 nodes, AC + Taxol + Avastin, rad, BRCA1&2 neg |
Posted By: trip2
Date Posted: Dec 18 2010 at 11:33am
|
Alison good news on that clear MRI!
I've been seeing pics of the football stadium up there filled with snow, the workers working hard to clear it out all week on the news!
I have been snowed in after 3 blizzards in a row waiting to get out of town, sure do understand that frustration, glad you were finally able to get out of there!
The Paris trip sounds wonderful, something exciting to look forward to, enjoy planning and getting ready for that trip. ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: 123Donna
Date Posted: Dec 18 2010 at 12:19pm
|
Alison, Congrats on the clear MRI! I love your idea of celebrating with a trip to Paris. We took several trips this past summer and I'm so happy we did. I have all the memories and pictures to carry me through. I so hope you love your trip. You'll have to tell us all about it when you get back. Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: denise07
Date Posted: Dec 18 2010 at 12:40pm
|
CONGRATS!!!!! |
Posted By: Lillie
Date Posted: Dec 18 2010 at 3:04pm
|
Dear Alison,
Isn't it awesome how surviving cancer can make you thankful to be alive in a crowded airport and not complain about a shortened trip. I totally understand what you are saying. It has worked for me in so many ways since June 2006. God Bless, Lillie ------------- Dx 6/06 age 65,IDC-TNBC Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED |
Posted By: becca
Date Posted: Jan 09 2012 at 5:27pm
|
I am now 4 years from my surgery...I count it like that because I feel they removed the cancer then :) As you can see from my signature I was stage 3 with lumpnode involvment so I feel so soooooooooooo lucky to be here today to post this. I have been fine and have a mammogram and checkup coming up next week. The chemo did take a toll on my body...I am 57 and most days feel more like 67 with arthritis in both knees and have still not lost the 15 pounds I gained with the steriods they gave me during treatments but I am alive and was able to see my only child(daughter) get married last fall...I hope this gives some of you out there just starting so hope and to know that this is not a death sentence...you can make it thru and survive ...God Bless you all and thank God that I am here 4 years later. HUG
Becca ------------- Age58 DX 12/07 Grand Junction, Colorado Lumpectomy 1/08/08 Stage IIIA grade3 5/19 nodes chemo 5/08 radiation 7/08 clear pet 9/08 |
Posted By: Terri
Date Posted: Jan 09 2012 at 6:44pm
|
HAPPY ANNIVERSARY AND CONGRATS BECCA!! ------------- IDC DX 8/17/07 (age 41) Stage 1 Grade 1-2, 1.35 cm 2 nodes neg, Lumpectomy 10/07 Chemo: FEC 100 x 6, 35 rads BRCA 1/2 NEG PET/CT & Brain CT Nov 09 Brain MRI Aug 2012 NED |
Posted By: dmwolf
Date Posted: Jan 09 2012 at 6:58pm
|
Becca, congratulations!! d ------------- DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10. |
Posted By: 123Donna
Date Posted: Jan 09 2012 at 7:03pm
|
Becca, We love to hear stories like yours! Congrats Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: BamaRachel
Date Posted: Jan 09 2012 at 7:21pm
|
Congratulations, Becca. That's fabulous news. I have a very good friend who is six years out and is doing great. She, and stories like yours, give me hope!! ------------- DX 7/5/11, TN Invas; Lump w/clear marg., 7/21/11; Stage 2A. Grade 3, 2.6 c; 0/6 nodes; TX 8/22/11 4DD E/C; 4Taxotere; Chemo ended 1/3/12; 33 Radiation Treatments, ended 3/15/12. |
Posted By: janet c.
Date Posted: Jan 09 2012 at 10:51pm
|
Becca,
Congratulations and I wish you many, many more years. Good luck on your tests next week. All the best. Janet ------------- dx 12/08 @47yrs.old TNBC stage 2a grade 3, 2.1cm. partial mastectomy sentinal node negative BRACA negative Cytocan/Taxatere x4 radiation 36 or 38rounds |
Posted By: Lillie
Date Posted: Jan 10 2012 at 3:16pm
|
Hello Becca,
Thank you so much for your post. Congratulation on 4 years. Would you please post what chemo you were given. My SIL Faye will begin chemo tomorrow or Thursday. She is Stage III?, Grade 3 and had 11 positive lymph nodes. A PET scan, and MRI last week showed that there was no spread to other organs. I would like to print a copy of your post to give to her. Yours is such a positive story that I feel it would help Faye to see it. God Bless, Lillie ------------- Dx 6/06 age 65,IDC-TNBC Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED |
Posted By: gobluegirl90
Date Posted: Jan 15 2012 at 3:21pm
|
I always hate posting my survivor story, especially since I am about to go in for my mammo and 3 month check up at the end of this month...I don't want to jinx it. ya know?? I am going in for my 21 month check up, post lumpectomy. Almost to my 2 year mark.....i m nervous..as usual, I don't think that part will ever go away... Jennifer ------------- Age 38,Dx 4/8/10 IDC stage I, No Nodes, GradeIII, Brac I&II NEG lumpectomy, 2 nodes removed(neg)finished 4 AC& T on 10/1/10 33 Rads finished 10/2/10. Married 19yrs, 1 son 11yrs & 1 daughter 9yrs |
Posted By: overwhelmed
Date Posted: Jan 15 2012 at 4:09pm
|
Lillie, It's great to hear that the PET scan revealed no spread to Faye's organs. That is good news you all needed. I continue to keep you all in my thoughts and prayers. I do hope that the first round of chemo was not too difficult. I am sure you have been such a source of information and support for your SIL and family. Lori
< id="_npwlo" ="applicationpwlo" height="0"> ------------- DX ILC TNBC 3/10 at 50, Stage IIb; Grade 3; 5.1 to 7 cm,SNB neg;TC-6 rnds, 30 rads, Avastin-18 rnds, BRAC 1&2- |
Posted By: Terri
Date Posted: Jan 15 2012 at 8:39pm
|
Dear Jennifer, I know what you mean about not wanting to talk about your survivorship status. And the Scanxiety still happens to me to. But the day to day fear is getting less, being replaced by a sincere joy and appreciation of life! Good luck to you with your tests. May you always be NED :)
Hugs, Terri ------------- IDC DX 8/17/07 (age 41) Stage 1 Grade 1-2, 1.35 cm 2 nodes neg, Lumpectomy 10/07 Chemo: FEC 100 x 6, 35 rads BRCA 1/2 NEG PET/CT & Brain CT Nov 09 Brain MRI Aug 2012 NED |
Posted By: Charlene
Date Posted: Mar 09 2012 at 1:35pm
|
I just want to share that I have made it to the 2 year mark, having just had a mammogram, ultrasound, and breast MRI that all showed NED. My oncologist says that even making it this far is a positive sign. The biggest change for me since my diagnosis is that I have truly learned to "find the beauty in the every day" like Steve says. Even when bad things happen, I try to remind myself that I am still here to experience them and that it might have been otherwise. This site has helped me in many ways, and I pray for everyone here, especially those dealing with a recurrence. Have a great weekend everyone!
Charlene ------------- DX 3/10 @59 ILC/TNBC Stage 1, Grade 2, Multifocal; Lumpectomy/re-excision SNB 0/4 nodes, BRCA-; Taxotere/Cytoxan X4, 30 rads 3/14:NED |
Posted By: Lee21
Date Posted: Mar 09 2012 at 2:58pm
|
Charlene, let me the first to congratulate you on this momentous day. Many happy NED returns! Lee ------------- 12/9/11 @59,IDC,grade3, TNBC,3cm(MRI),SLNB0,stage IIA, BRCA1 variant 1/30/12 DD AC-T, 6/7/12 Lumpectomy, ypT1b(0.8 cm), 7/9/12 Rads x 30 11/9/12, clinical trial cisplatin/rucaparib, cisplatin-only arm |
Posted By: 123Donna
Date Posted: Mar 09 2012 at 3:09pm
|
Charlene, I'm so happy for you! Yeah 2 Years ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: Lillie
Date Posted: Mar 09 2012 at 3:44pm
|
Charlene,
Two years NED is great. I am so happy for you. I am also with you in praying for all who have had recurrence. God Bless, Lillie ------------- Dx 6/06 age 65,IDC-TNBC Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED |