New Posts New Posts RSS Feed - FORCE Hereditary Breast & Ovarian Cancer
  FAQ FAQ  Forum Search   Events   Register Register  Login Login

FORCE Hereditary Breast & Ovarian Cancer
 Post Reply Post Reply
Author
  Topic Search Topic Search  Topic Options Topic Options
TNBC_in_NS View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jul 26 2009
Location: NS Canada
Status: Offline
Points: 2028 		Post Options Post Options   Thanks (0) Thanks(0)   Quote TNBC_in_NS Quote  Post ReplyReply Direct Link To This Post Topic: FORCE Hereditary Breast & Ovarian Cancer
    Posted: Sep 17 2010 at 6:43pm
Hi members:
I just wanted to let each of you know that FORCE has achieved having a designated day for "Hereditary Ovarian and Breast Cancer" and I wanted to leave you with the site to "Pass the Torch" which will be taking place in various states....
 
Bless us all,
Helen in NS
Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear
Back to Top
123Donna View Drop Down
Senior Member
Senior Member
Avatar

Joined: Aug 24 2009
Location: St. Louis, MO
Status: Offline
Points: 13510 		Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Sep 18 2010 at 12:16am
Thanks Helen for posting the link.  Very helpful.

Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
Back to Top
Cathy Leigh View Drop Down
Groupie
Groupie
Avatar

Joined: Mar 03 2010
Location: Chattanooga, TN
Status: Offline
Points: 72 		Post Options Post Options   Thanks (0) Thanks(0)   Quote Cathy Leigh Quote  Post ReplyReply Direct Link To This Post Posted: Sep 18 2010 at 12:20am
Helen, thanks for the link
Cathy
 
61 years old at dx 12/1/09
Left Mastectomy 2/4/10, 2 sentinel nodes negative and margins around tumor negative
Clean PET/CT scan on 3/2/10
ac/taxol began 4/2011-Finished 9/10. CT Scan 8/11 NED
Back to Top
TracyAMac View Drop Down
Senior Member
Senior Member
Avatar

Joined: Aug 01 2010
Location: Toronto, Canada
Status: Offline
Points: 401 		Post Options Post Options   Thanks (0) Thanks(0)   Quote TracyAMac Quote  Post ReplyReply Direct Link To This Post Posted: Sep 18 2010 at 10:07am
Hi Helen. Thanks for posting this. I am awaiting my gentetic testing results - this site has lots of good info.

Your fellow Canadian
Tracy
TN&non-TN tumors April/10 Gr3&2;1 metaplastic
Rmast.1/9 nodes w/isolated t.cells
Taxotere&Cytoxan x6
Bone cancer 1980 age17;surgery&chemo AC+Methotrexate
BRCA-ve
On hormone therapy & Metformin Trial
Back to Top
TNBC_in_NS View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jul 26 2009
Location: NS Canada
Status: Offline
Points: 2028 		Post Options Post Options   Thanks (0) Thanks(0)   Quote TNBC_in_NS Quote  Post ReplyReply Direct Link To This Post Posted: Sep 25 2010 at 10:11am
Tracy: 
 
Where in Toronto did you have your BRCA testing done and how long have you been waiting?
 
I am still waiting for my results since March 2010.  It is so hard but the blood had to be sent to Toronto to be tested?  I don't get this at all.  The first part was checked here in NS but was inconclusive??? What does that mean and what about the second part that is somewhere in Toronto??? Heavens they do things so far fetched....
take care, your sister on the journey, Helen in NS
Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear
Back to Top
123Donna View Drop Down
Senior Member
Senior Member
Avatar

Joined: Aug 24 2009
Location: St. Louis, MO
Status: Offline
Points: 13510 		Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Sep 25 2010 at 8:36pm
Helen,

You've been waiting since March 2010?  How did they send it - via carrier pigeon?  LOL  Do you think it got lost?  6 months it way too long my friend. 

Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
Back to Top
martyhensler View Drop Down
Newbie
Newbie
Avatar

Joined: Oct 25 2010
Location: Florida
Status: Offline
Points: 1 		Post Options Post Options   Thanks (0) Thanks(0)   Quote martyhensler Quote  Post ReplyReply Direct Link To This Post Posted: Oct 25 2010 at 8:17pm
I am BRCA positive, and Triple Negative.  My sister and brother want  to get tested anonymously,  not thru insurance. A nurse told me about F.O.R.C.E.  How do they proceed? Thanks.
Back to Top
CRod56 View Drop Down
Newbie
Newbie
Avatar

Joined: Jul 11 2010
Location: California
Status: Offline
Points: 17 		Post Options Post Options   Thanks (0) Thanks(0)   Quote CRod56 Quote  Post ReplyReply Direct Link To This Post Posted: Oct 09 2011 at 1:31pm
Hi;

I have two issues I'd love to get advice and to hear experiences about.  One is that my father had breast cancer and I was diagnosed May 2010 with TNBC.  I tested negative for BRCA 1&2.  I have 3 sisters and a brother and I'd like to get my father tested to rule out BRCA for all of them with one test instead of each of them having to do a test.  But the Veteran's Administration where he gets his care says its not medically necessary.  Any advice about how I can get my father tested? 
And the second issue is that when I tested negative, my oncologist said "well, you tested negative for what we can test for, but with your father having breast cancer I still consider you high risk and you might want to think about having a prophylactic bilateral masectomy and an oopherectomy."  I decided against that and have had a lumpectomy and ancillery dissection with chemo and radiation.  I am considering the oopherectomy since I don't really need my ovaries anymore.  Do any of you have advice, experience to share on this issue of testing negative yet still being considered high risk? 
Thanks - Cynthia
Back to Top
SagePatientAdvocates View Drop Down
Senior Advisor
Senior Advisor
Avatar

Joined: Apr 15 2009
Status: Offline
Points: 4748 		Post Options Post Options   Thanks (0) Thanks(0)   Quote SagePatientAdvocates Quote  Post ReplyReply Direct Link To This Post Posted: Oct 09 2011 at 2:17pm
Hi Cynthia,

some questions-

1. has anyone in your family tested BRCA+?

2. did you have BART testing as part of your BRCA testing?

3. where in California do you live? I am about to post about an event at USC that you may find interesting.

you may wish to keep certain info private...I am sending you my contact info if you would like to talk.

all the best,

Steve
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
Back to Top
cheeks View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jan 14 2011
Location: North Carolina
Status: Offline
Points: 676 		Post Options Post Options   Thanks (0) Thanks(0)   Quote cheeks Quote  Post ReplyReply Direct Link To This Post Posted: Oct 15 2011 at 1:13am
FORCE also has a page on facebook
Lump found 11/08
DX: 2/09 @52 TNBC
L. Mast. 3/26/09, SN-, BRCA-,
4.5 cm (post surgical)T2NOMO
Chemo: 4/09-10/09 Taxol x 12,
A/C x 4, No rad.No recon. NED 1/17. New Primary right breast TN, 2/2018.
Back to Top
TNBC_in_NS View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jul 26 2009
Location: NS Canada
Status: Offline
Points: 2028 		Post Options Post Options   Thanks (0) Thanks(0)   Quote TNBC_in_NS Quote  Post ReplyReply Direct Link To This Post Posted: Nov 01 2011 at 4:00pm
2011 News about Ovarian Cancer
 
 
Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear
Back to Top
 Post Reply Post Reply
  Share Topic   

Forum Jump Forum Permissions View Drop Down

Forum Software by Web Wiz Forums® version 12.01
Copyright ©2001-2018 Web Wiz Ltd.