FORCE Hereditary Breast & Ovarian Cancer
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URL: http://forum.tnbcfoundation.org/forum_posts.asp?TID=7124
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Topic: FORCE Hereditary Breast & Ovarian Cancer
Posted By: TNBC_in_NS
Subject: FORCE Hereditary Breast & Ovarian Cancer
Date Posted: Sep 17 2010 at 6:43pm
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Hi members:
I just wanted to let each of you know that FORCE has achieved having a designated day for "Hereditary Ovarian and Breast Cancer" and I wanted to leave you with the site to "Pass the Torch" which will be taking place in various states....
http://www.facingourrisk.org/events/passing_the_torch.php - http://www.facingourrisk.org/events/passing_the_torch.php
Bless us all,
Helen in NS
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Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear
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Replies:
Posted By: 123Donna
Date Posted: Sep 18 2010 at 12:16am
Thanks Helen for posting the link. Very helpful.
Donna
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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Posted By: Cathy Leigh
Date Posted: Sep 18 2010 at 12:20am
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Helen, thanks for the link
Cathy
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61 years old at dx 12/1/09
Left Mastectomy 2/4/10, 2 sentinel nodes negative and margins around tumor negative
Clean PET/CT scan on 3/2/10
ac/taxol began 4/2011-Finished 9/10. CT Scan 8/11 NED
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Posted By: TracyAMac
Date Posted: Sep 18 2010 at 10:07am
Hi Helen. Thanks for posting this. I am awaiting my gentetic testing results - this site has lots of good info.
Your fellow Canadian
Tracy
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TN&non-TN tumors April/10 Gr3&2;1 metaplastic
Rmast.1/9 nodes w/isolated t.cells
Taxotere&Cytoxan x6
Bone cancer 1980 age17;surgery&chemo AC+Methotrexate
BRCA-ve
On hormone therapy & Metformin Trial
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Posted By: TNBC_in_NS
Date Posted: Sep 25 2010 at 10:11am
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Tracy:
Where in Toronto did you have your BRCA testing done and how long have you been waiting?
I am still waiting for my results since March 2010. It is so hard but the blood had to be sent to Toronto to be tested? I don't get this at all. The first part was checked here in NS but was inconclusive??? What does that mean and what about the second part that is somewhere in Toronto??? Heavens they do things so far fetched....
take care, your sister on the journey, Helen in NS
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Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear
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Posted By: 123Donna
Date Posted: Sep 25 2010 at 8:36pm
Helen,
You've been waiting since March 2010? How did they send it - via carrier pigeon? LOL Do you think it got lost? 6 months it way too long my friend.
Donna
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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Posted By: martyhensler
Date Posted: Oct 25 2010 at 8:17pm
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I am BRCA positive, and Triple Negative. My sister and brother want to get tested anonymously, not thru insurance. A nurse told me about F.O.R.C.E. How do they proceed? Thanks.
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Posted By: CRod56
Date Posted: Oct 09 2011 at 1:31pm
Hi;
I have two issues I'd love to get advice and to hear experiences about. One is that my father had breast cancer and I was diagnosed May 2010 with TNBC. I tested negative for BRCA 1&2. I have 3 sisters and a brother and I'd like to get my father tested to rule out BRCA for all of them with one test instead of each of them having to do a test. But the Veteran's Administration where he gets his care says its not medically necessary. Any advice about how I can get my father tested?
And the second issue is that when I tested negative, my oncologist said "well, you tested negative for what we can test for, but with your father having breast cancer I still consider you high risk and you might want to think about having a prophylactic bilateral masectomy and an oopherectomy." I decided against that and have had a lumpectomy and ancillery dissection with chemo and radiation. I am considering the oopherectomy since I don't really need my ovaries anymore. Do any of you have advice, experience to share on this issue of testing negative yet still being considered high risk?
Thanks - Cynthia
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Posted By: SagePatientAdvocates
Date Posted: Oct 09 2011 at 2:17pm
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Hi Cynthia,
some questions-
1. has anyone in your family tested BRCA+?
2. did you have BART testing as part of your BRCA testing?
3. where in California do you live? I am about to post about an event at USC that you may find interesting.
you may wish to keep certain info private...I am sending you my contact info if you would like to talk.
all the best,
Steve
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I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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Posted By: cheeks
Date Posted: Oct 15 2011 at 1:13am
FORCE also has a page on facebook
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Lump found 11/08
DX: 2/09 @52 TNBC
L. Mast. 3/26/09, SN-, BRCA-,
4.5 cm (post surgical)T2NOMO
Chemo: 4/09-10/09 Taxol x 12,
A/C x 4, No rad.No recon. NED 1/17. New Primary right breast TN, 2/2018.
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Posted By: TNBC_in_NS
Date Posted: Nov 01 2011 at 4:00pm
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2011 News about Ovarian Cancer
http://www.bbc.co.uk/news/health-15494373 - http://www.bbc.co.uk/news/health-15494373
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Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear
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