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sarahbeard1
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Joined: Apr 13 2010
Location: Salt Lake City
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Topic: Success Stories Posted: Apr 13 2010 at 10:04pm |
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I was diagnosed with tnbc (& brca1) last summer, and completed all my treatments a couple months ago. I would love to hear the stories of tnbc survivors who are 3+ years cancer free, to give the rest of us hope. If you are a survivor, please share your story with us!
Thank you!
Sarah
www.sarahvscancer.blogspot.com
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123Donna
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Joined: Aug 24 2009
Location: St. Louis, MO
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Points: 13510
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Posted: Apr 13 2010 at 10:08pm |
Sarah, Congratulations! There is a thread where several members shared their survivor stories. We need positive stories to give us hope and encouragement. I hope others will come along to share their success stories for you also. http://forum.tnbcfoundation.org/are-there-women-who-survive-tnb_topic4219_page11.html?KW=long+term+survivorsDonna
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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base
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Joined: Feb 11 2008
Location: United States
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Posted: Apr 14 2010 at 2:11am |
Hi Sarah,
I was diagnosed in June 2006 (see stats below) and am very lucky and happy to say that I am still having an affair with NED (No Evidence of Disease) :)
I don't post here often but check in from time to time.
Congrats on finishing treatment!
Saskia
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dx 6/06 @31
Stage IIIA, grade 3, ER-/PR-/HER2-, 5cm
BRCA1and2 negative
6/06 4 dd A/C, 4 dd Taxol
10/06 lumpectomy, SNB
12/06 radiation
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sarahbeard1
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Joined: Apr 13 2010
Location: Salt Lake City
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Posted: Apr 14 2010 at 1:16pm |
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Thank you! It is so encouraging to know there are others who have survived this.
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DX 7/2009 tnbc, IIb, BRCA1+, 4 dd AC, 2 dd taxol, 2 abraxane, bilateral mastectomy, 25 radiation, reconstruction, ovaries removed (brca1), hysterectomy. Age 32 at DX.
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dmwolf
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Joined: Jan 22 2009
Location: Berkeley, CA
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Points: 3619
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Posted: Apr 14 2010 at 4:15pm |
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Sarah, I know it helps to hear personal testimonials, but please know that many large studies have shown that around 60-65% of women who are diagnosed with TNBC are permanently NED after treatment. There are LOTS and LOTS of long term survivors; until notified otherwise, we each have a decent chance of being in that group. -Denise
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DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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dmwolf
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Joined: Jan 22 2009
Location: Berkeley, CA
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Points: 3619
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Posted: Apr 14 2010 at 4:23pm |
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One more thing - Sarah, I saw on your blog that you had a pCR (complete response to chemo). Your odds of being cured are excellent, in the 90% range. You are very lucky. Love, Denise
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DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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