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brandy View Drop Down
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Joined: Dec 08 2009
Location: bandon oregon
Status: Offline
Points: 5 		Post Options Post Options   Thanks (0) Thanks(0)   Quote brandy Quote  Post ReplyReply Direct Link To This Post Topic: new user
    Posted: Dec 08 2009 at 11:36pm
I was diagnosed with tnbc on September 30, 2009. I am 28 years old and have two beautiful daughters, Brynn 2 years old and Jolee 6 months old.  After I have Jolee I noticed that my left breast never shrank down to it's normal size.  She was born in May and I mentioned it to my OBGYN in September when I went in because I was having back pain.  I didn't think anything of it I thought it was a clogged milk duct.  There is no cancer that runs in the family that I'm aware of.  they told me it was cancer and that it was stage IV.  It had spread to my liver and in my bones.  I started Chemoterapy in Portland and I am on a clinical trial for the PARP inhibitor. I didn't get on the arm that gets the parp first but the chemo has already shrunk my breast tumor by 67%.  I really don't  know that much about TNBC and everytime I get online I get discouraged and depressed.  I am trying to stay positive because I have so much to live for. 
 
 
 
 
 
 
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scared View Drop Down
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Joined: Nov 09 2009
Location: Seattle
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Points: 224 		Post Options Post Options   Thanks (0) Thanks(0)   Quote scared Quote  Post ReplyReply Direct Link To This Post Posted: Dec 09 2009 at 2:16am
That is what you need to do and you are right that you have a lot to live for Brandy.  I really do not know what I could say except that there is hope that you still could live a long life.  For example a co-worker of mine's wife has stage 4 colon cancer and has successfully been fighting it for the last eight years.

But as you know once it is stage four that means the only thing that doctors can do is to keep the cancer at bay.  It is possible that the new trial for the PARP inhibitor could be just what you need.  Stay positive and and don't go on line so much especially if it makes you feel that way.

You can stay here and get uplifting messages of hope and make some new friends here.  I live in Seattle and my wife had treatment at Swedish Cancer Institute.  Again, you do have lots to live for and I wish you all the best.

Dave
Wife diagnosed 7/08 stage 2B 4.78cm with 3 nodes. 15 weeks of Adriamycin and Cytoxin, Mastectomy, 12 weeks of Taxol, and 6.5 weeks of radiation.
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123Donna View Drop Down
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Joined: Aug 24 2009
Location: St. Louis, MO
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Points: 13510 		Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Dec 09 2009 at 7:59am
Dear Brandy,

Hello and welcome.  I'm glad you found this site.  It is such a wonderful place with great information and warm and caring people that will help you through your journey.  You are so right to stay positive.  Your beautiful daughters need you so do everything to fight this disease.  We are here to offer support any way we can.  If you have any questions or concern, just post it.  There is a lot of information in the resource section.  You can also use the Search button to search for topics that have been discussed in the past.

Have you been tested for the BRCA gene?

Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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