Curious About a Couple of Things |
Post Reply 
|
Page 123> |
| Author | |
Ronda 
Senior Member 
Joined: Jul 31 2007 Location: United States Status: Offline Points: 587 |
 Post Options
 Thanks(0)
 Quote Reply
 Topic: Curious About a Couple of ThingsPosted: Aug 01 2007 at 10:02am |
|
I've heard alot of different things about triple negatives. It sounds like their may be a trend toward neo-adjuvant therapy. Wondering alot about chemical exposure, and vitamin D deficiencies. Race seems to be a factor too, I'm freckled white.
1). How old are you?
2). What is your race?
3). What was your diagnosis?
4). Are you over weight? If yes, how much?
5). Do you or did you dye your hair? What color?
6). Have you worn acrylic nails? If yes, how long?
7). Other Chemical exposure note worthy?
8). Did you have chemo prior to surgery? If yes, was it due to tumor size?
9). Do you use Splenda?
10). Do you get much sun? If yes, do you use sun screen?
11). What State do you live in?
12). Have you ever worn underwire bras?
13). Which breast had cancer?
Edited by Ronda - Aug 01 2007 at 11:18am |
|
 |
|
|
Lisa L
Senior Member
Joined: Jul 06 2007 Location: United States Status: Offline Points: 146 |
Post Options
Thanks(0)
Quote Reply
Posted: Aug 01 2007 at 2:33pm |
|
1). How old are you? 45, 43 at dx
2). What is your race? caucasian
3). What was your diagnosis? see signature
4). Are you over weight? If yes, how much? after chemo, about 25 pounds, prior to dx, about 15 pounds. was very thin until age 30
5). Do you or did you dye your hair? What color? never did before, but have after it grew back a yucky color
6). Have you worn acrylic nails? If yes, how long? never
7). Other Chemical exposure note worthy? worked with microfilm and developing chemicals for 20 years about 10 years prior to dx
8). Did you have chemo prior to surgery? If yes, was it due to tumor size? No, didnt know enough to ask, tumor was 4.5 cm
9). Do you use Splenda? some limited usage prior to dx
10). Do you get much sun? If yes, do you use sun screen? Not now, did when I was young. I am also fair skinned and freckled
11). What State do you live in? Illinois, born and raised
12). Have you ever worn underwire bras? never
13). Which breast had cancer? right, also had fibroadenoma in same breast 20 years earlier.
|
|
|
Dx 8/05 age 43
mast & lat flap 10/05 Triple neg BRCA neg IDC 4.5cm rt br 0/1 sen node 6 A/C 5 Taxol, 25 rads 11/05-6/06 Central Illinois Currently NED |
|
|
|
|
sstefano
Groupie 
Joined: Jul 04 2007 Location: United States Status: Offline Points: 72 |
Post Options
Thanks(0)
Quote Reply
Posted: Aug 01 2007 at 6:26pm |
|
). How old are you? 42
2). What is your race? caucasian
3). What was your diagnosis?32 and 39 and local recurrence at 41
4). Are you over weight? If yes, how much? No
5). Do you or did you dye your hair? What color? No
6). Have you worn acrylic nails? If yes, how long? No
7). Other Chemical exposure note worthy? No
8). Did you have chemo prior to surgery? If yes, was it due to tumor size? No, lump was 7 sm and 2nd time it was 3 sm
9). Do you use Splenda? No
10). Do you get much sun? If yes, do you use sun screen? Not now, yes as a child, no sunscreen.
11). What State do you live in? Mass
12). Have you ever worn underwire bras? No
13). Which breast had cancer? Both
|
|
|
|
|
CalGal
Senior Member
Joined: Jun 04 2007 Location: United States Status: Offline Points: 159 |
Post Options
Thanks(0)
Quote Reply
Posted: Aug 01 2007 at 7:43pm |
|
1) 42 at dx; 43 at recurr & mets; 44 at 2nd mets ...
2) caucasian 3) Initial dx - invasive on left breast, DCIS on right. 2nd dx - recurr of invasive, mets to liver & unrelated kidney cancer; 3rd dx - lung mets 4) Never overweight until chemo! Athletic w/curves. 5) Never dyed or colored my hair ... but had perms all thru my teens and 20s; 6) Never wore acrylic nails; 7) Chem Exposure: Foods, house where I grew up was built on former agricultural land (when my mom was dx'd with bc in her 40s, there were many other women in the n'hood who were also dx'd with bc in their 40s ... and this was in 1987!) PCB's along the backyard fence. Tetracycline for acne. 8) Bi-lat lump's & SNB on initial dx, followed by rad'tn. No chemo until recurr & mets. 9) Splenda - never 10) Sun - yes, too much thru my early 30s ... Nat'l blonde, but used to tan ... Used sunscreen from later teens on ... 11) California 12) Always wear an underwire bra! 13) Both! Invasive on left; DCIS on right. What about BRCA test? BRCA1. CalGal |
|
|
BRCA1
9/04 Bi-lat lump, clear SNB 38x Rad'tn 12/05 Recurr bc & mets to liver 06 the year of chemo NED for 13 mos until 7/07 Lung met. PARP trial until ... 2/08 Liver mets again |
|
|
|
|
Vicki G
Groupie
Joined: Jul 06 2007 Location: United States Status: Offline Points: 48 |
Post Options
Thanks(0)
Quote Reply
Posted: Aug 02 2007 at 2:10pm |
|
1). How old are you? 47, 48 in October
2). What is your race? White 3). What was your diagnosis? IDC, Stage 2, 1 node + 1.8cm 4). Are you over weight? No, never was 5). Do you or did you dye your hair? Yes, darker shade of brown 6). Have you worn acrylic nails? Yes, on and off for 10 years 7). Other Chemical exposure note worthy? Can't think of any now 8). Did you have chemo prior to surgery? No 9). Do you use Splenda? No, never 10). Do you get much sun? If yes, do you use sun screen? Used to tan at the beach. Rarely used sunscreen because I tan easily and never burn. 11). What State do you live in? California 12). Have you ever worn underwire bras? Always 13). Which breast had cancer? Left |
|
|
Lb Lumpectomy, IDC, Stage 2, Grade 3, 1+ node, 4 x A/C, 4 x Taxol, 33 x Rads. NED almost 4 yrs.
Los Angeles, Ca. |
|
|
|
|
Vicki G
Groupie
Joined: Jul 06 2007 Location: United States Status: Offline Points: 48 |
Post Options
Thanks(0)
Quote Reply
Posted: Aug 02 2007 at 2:32pm |
|
I would like to add something to the last post (mine). Chemo brain had set in and I couldn't remember.....
I have been restoring old furniture and fixing up houses for a number of years. I'm sure I have breathed in paint fumes, as well as a lot of other chemicals. I don't know why that didn't enter into my mind!! Thanks, Vicki |
|
|
Lb Lumpectomy, IDC, Stage 2, Grade 3, 1+ node, 4 x A/C, 4 x Taxol, 33 x Rads. NED almost 4 yrs.
Los Angeles, Ca. |
|
|
|
|
Shalom
Newbie 
Joined: Jul 01 2007 Location: United States Status: Offline Points: 22 |
Post Options
Thanks(0)
Quote Reply
Posted: Aug 02 2007 at 2:51pm |
|
1). How old are you? 61 2). What is your race? caucasian 3). What was your diagnosis? see signature 4). Are you over weight? yes If yes, how much? 5). Do you or did you dye your hair? Yes What color? Blond 6). Have you worn acrylic nails? no If yes, how long? 7). Other Chemical exposure note worthy? 8). Did you have chemo prior to surgery? yes If yes, was it due to tumor yes size? see signature 9). Do you use Splenda? no 10). Do you get much sun? when I was younger If yes, do you use sun screen? yes 11). What State do you live in? FL 12). Have you ever worn underwire bras? yes 13). Which breast had cancer? left |
|
|
Infiltrating ductal carcinoma 2cm mass & 8x5 cm extensive malignant disease grade 3
multiple sentinel lymph nodes Chemo FEC-X4 Taxol 12 weeks Surgery modified radical mastectomy no cancer found |
|
|
|
|
Bunnysmama
Senior Member
Joined: Jun 19 2007 Location: Newburyport, MA Status: Offline Points: 254 |
Post Options
Thanks(0)
Quote Reply
Posted: Aug 02 2007 at 4:40pm |
|
1). How old are you? 38, 37 at diagnosis
2). What is your race? Causasian
3). What was your diagnosis? Invasive Ductal Carcinoma
4). Are you over weight? If yes, how much? No
5). Do you or did you dye your hair? What color? Not now, but years ago had red/blond highlights
6). Have you worn acrylic nails? If yes, how long? Not now, had them for years up until about 3 years ago
7). Other Chemical exposure note worthy? No
8). Did you have chemo prior to surgery? If yes, was it due to tumor size? No
9). Do you use Splenda? Yes, if it's already in something, such as diet soda
10). Do you get much sun? If yes, do you use sun screen? When I was younger I loved the sun, but I burn easily so now I avoid exposure as much as possible
11). What State do you live in? Massachusetts
12). Have you ever worn underwire bras? Always wear them
13). Which breast had cancer? Right, on the outside not far from armpit
|
|
|
|
|
Ronda
Senior Member
Joined: Jul 31 2007 Location: United States Status: Offline Points: 587 |
Post Options
Thanks(0)
Quote Reply
Posted: Aug 02 2007 at 7:12pm |
|
Hi Gals, The reason I asked about Splenda is because I was using it quite a bit before my dx in March. I was having high blood pressure for the first time in my life and my left kidney hurt like hell. I was at a christmas party when the subject came up and I was told how poisonious it was. There's a web site out there that talks about the chemical make up which is close to chlorine. I quit and my blood pressure and kidney went back to normal within 3 days. The things we do to be thin!
I asked about underwire bras because people talk about cancer being caused by irritation, radiation, or chemical exposure. My cancer was on the left side right where the wire ended. My left boob was always a little bigger than the right so I went with the smaller size and it irritated it quite a bit.
I also wore acrylics for years. I joked that they were prosthetics as I have been a nail biter for years. I did quit however -yet another bennefit to having breast cancer! lol
The sun question is more about just before your diagnosis to see if there is a trend towards a vitamin d deficiency. They know cancer patients are deficient but there not sure is it's caused by the cancer or if it causes cancer. Thanks for the feed back
Ronda
age 44 dx 3/07
2 1/2 cm
Grade 3
node negative sent + 3
No vascular invasion
Left mastectomy
4ac 4 taxol dose dense
no radiation
brca not tested yet
Edited by Ronda - Aug 02 2007 at 7:16pm |
|
|
|
|
fd411
Groupie
Joined: Jul 04 2007 Location: United States Status: Offline Points: 62 |
Post Options
Thanks(0)
Quote Reply
Posted: Aug 03 2007 at 4:46pm |
|
1). How old are you? 42
2). What is your race? African American
3). What was your diagnosis? April 2006, Invasive Ductal Carcinoma, Grade III.
Stage IIIA, now Stage IV 4). Are you over weight? No
5). Do you or did you dye your hair? No
6). Have you worn acrylic nails? No
7). Other Chemical exposure note worthy? Exposure to Printing industry
solvents and photo chemicals 8). Did you have chemo prior to surgery? Yes, for breast conserving surgery
and to see how I would respond to chemo. Tumor was not that large, but I'm small breasted. 9). Do you use Splenda? No
10). Do you get much sun? Not intentionally. I use sunscreen if I'm going to
be at an outdoor event all day. 11). What State do you live in? New York state
12). Have you ever worn underwire bras? Never
13). Which breast had cancer? Right
|
|
|
Ferne
2006 - Stage IIIA IDC; TAC, lumpectomy, rads 5/07 Mets to lungs, chest, supe clav and axillary nodes 7/07 Skin mets, neck nodes 9/07 Liver mets, more nodes 1/08 Brain Mets, more nodes |
|
|
|
|
CarynRose
Senior Member
Joined: Aug 04 2007 Location: Robbinsville, NJ, USA Status: Offline Points: 960 |
Post Options
Thanks(0)
Quote Reply
Posted: Aug 04 2007 at 10:41am |
|
1). How old are you? 47
2). What is your race? Caucasian
3). What was your diagnosis? IDC Stage 2a, Poorly differentiated, triple neg; nodes negative. Recurrance -- in lymph nodes behind breast and in lungs
4). Are you over weight? If yes, how much? Yes -- 100 pounds
5). Do you or did you dye your hair? What color? Yes -- brown, with some highlights
6). Have you worn acrylic nails? If yes, how long? Yes, 4 years -- stopped about 2 years ago.
7). Other Chemical exposure note worthy? No
8). Did you have chemo prior to surgery? If yes, was it due to tumor size? No, the first time. Yes, this time, if they even decide to do surgery.
9). Do you use Splenda? A little.... used sweet n low too.
10). Do you get much sun? If yes, do you use sun screen? Not any more, but did younger. Mostly used sun screen.
11). What State do you live in? New Jersey
12). Have you ever worn underwire bras? Yes
13). Which breast had cancer? Right
|
|
|
|
|
Jessie
Senior Member
Joined: Aug 07 2007 Location: North Carolina Status: Offline Points: 515 |
Post Options
Thanks(0)
Quote Reply
Posted: Aug 07 2007 at 4:37am |
1). How old are you? 63
2). What is your race? Caucasian
3). What was your diagnosis? Invasive Ductal
4). Are you over weight? Yes If yes, how much? 25 lbs
5). Do you or did you dye your hair? Yes What color? Highlighted
6). Have you worn acrylic nails? Yes If yes, how long? 1 yr
7). Other Chemical exposure note worthy? No
8). Did you have chemo prior to surgery? No If yes, was it due to tumor size?
9). Do you use Splenda? Yes
10). Do you get much sun? No If yes, do you use sun screen?
11). What State do you live in? NC
12). Have you ever worn underwire bras? Yes
13). Which breast had cancer? Left
|
|
|
|
|
Cylb
Newbie
Joined: Aug 08 2007 Location: United States Status: Offline Points: 6 |
Post Options
Thanks(0)
Quote Reply
Posted: Aug 09 2007 at 5:21am |
|
1). How old are you? 54
2). What is your race? CAUCASIAN
3). What was your diagnosis? INVASIVE DUCTAL CARCINOMA STAGE/GRADE 3; NO LYMPH NODE INVOLVEMENT; TRIPLE NEGATIVE
4). Are you over weight? YES If yes, how much? BY 60 LBS.
5). Do you or did you dye your hair? BEFORE I WAS DIAGNOSED I DYED MY HAIR EVERY 3 MONTHS. NOW, I NO LONGER DYE MY HAIR. What color? I USED TO DYE MY HAIR LIGHT BROWN. AFTER TREATMENT AND WHEN MY HAIR GREW BACK IN IT WAS SILVER/WHITE/GUN METAL GRAY - I'VE LET IT REMAIN THAT WAY NOW.
 6). Have you worn acrylic nails? NO If yes, how long?
7). Other Chemical exposure note worthy? I WAS EXPOSED TO SOME HEAVY BUG SPRAY TREATMENTS WHEN OUR APARTMENT COMPLEX WAS HIT BY A ROACH INFESTATION DUE TO SOME LOW LIFES WHO CAME TO THE COMPLEX. THE SPRAYING WENT ON FOR NEARLY 6 MONTHS. VERY STRONG CHEMICALS. PLUS, I'D CARRY A HANDHELD RAID CAN FOR ROACHES AND SPRAY ON SITE AS WELL. I'D SAY I WAS BREATHING A LOT OF THAT IN AND THAT HAPPENED A YEAR BEFORE MY DIAGNOSIS.
8). Did you have chemo prior to surgery? NO If yes, was it due to tumor size?
9). Do you use Splenda? YES
10). Do you get much sun? NO If yes, do you use sun screen?
11). What State do you live in? OHIO
12). Have you ever worn underwire bras? WHEN I WAS A TEENAGER; NOT AS AN ADULT
13). Which breast had cancer? LEFT
Edited by Cylb - Aug 09 2007 at 5:24am |
|
|
|
|
Coreen
Newbie
Joined: Aug 10 2007 Location: United States Status: Offline Points: 7 |
Post Options
Thanks(0)
Quote Reply
Posted: Aug 10 2007 at 4:00pm |
|
wow lots of ??
I am 43
Caucasian
stage 3 triple neg with node positive
yes overweight...by 70 pounds
yes colored my hair ashe Blondie to Blondie
no other chemos that I"m aware of but did live under power lines as a child
yes on the acrlics but only past year
Chemo prior to surgery: Yes, but when they gave me 4 weeks off of chemo to prepare the cancer came back after 2 weeks with a vengeance, so they moved up my surgery so it wouldn't metas. So I thought why did I go through 6 treatments and risk injury to other organs when i didn't have to.
Tumor ended up about the same size as pre chemo...really came back strong.
Sun: got bad sunburns as a child but since teenage years wear sunscreen
Grew up in Michigan reside in Cincinnati now.
Wore underwire bras seems like forever....always had large breasts.
Right breast was positive with 5- 7 nodes. BRACA 1 pos.
Hope this helps.
Coreen
|
|
|
|
|
Coreen
Newbie
Joined: Aug 10 2007 Location: United States Status: Offline Points: 7 |
Post Options
Thanks(0)
Quote Reply
Posted: Aug 10 2007 at 4:03pm |
|
seems like we have a lot in common. how are you doing?
|
|
|
|
|
liven42day
Newbie
Joined: Jun 27 2007 Location: United States Status: Offline Points: 12 |
Post Options
Thanks(0)
Quote Reply
Posted: Aug 12 2007 at 3:06am |
|
HI Ladies,
1). How old are you? 43
2). What is your race? Caucasian
3). What was your diagnosis? IDC Stage 2 trip neg, 2.4cm
4). Are you over weight? Yes If yes, how much? 60 lbs
5). Do you or did you dye your hair? No What color?
6). Have you worn acrylic nails? Yes If yes, how long? 2 yrs
7). Other Chemical exposure note worthy? Refinished antique furniture for 15 years off and on
8). Did you have chemo prior to surgery? No If yes, was it due to tumor size?
9). Do you use Splenda? Yes But I used Sweet and Low for 15 -20 years
10). Do you get much sun? yes If yes, do you use sun screen? no
11). What State do you live in? PA
12). Have you ever worn underwire bras? Yes
13). Which breast had cancer? Right |
|
|
Diagnosed 6/12/07 IDC Stage II, grade 3, trip negative, 7 negative nodes, 8 rounds of chemo 4xA/C done, 4x Taxol, almost done with chemo, then onto 35 rads
|
|
|
|
|
Jessie
Senior Member
Joined: Aug 07 2007 Location: North Carolina Status: Offline Points: 515 |
Post Options
Thanks(0)
Quote Reply
Posted: Aug 13 2007 at 4:21am |
|
Hey there Coreen, didn't "get my nap out" so overslept - late to work - good way to start a Monday, huh ?
Got my fingers crossed for this week. Scheduled to have a lump removed Wednesday -- hoping it's scar tissue, on an incision, on a rib, on the cancer side. That fear never goes away, does it?
How about you ?
Jessie
|
|
|
|
|
trip2
Senior Member
Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
Post Options
Thanks(0)
Quote Reply
Posted: Aug 13 2007 at 8:32am |
|
Hi Jessie, I'll have my fingers crossed too that everything is ok Wednesday when you have the lump removed.
Please let us know what you find out.
No that fear never seems to go away. Sometimes we can tuck it back in the closet for awhile but we know it's in there.
My best wishes for a good Wednesday,
|
|
|
Stage 2 2003
Stage 1 2007 BRCA 1+ |
|
|
|
|
victoria
Newbie
Joined: Jul 11 2007 Location: United States Status: Offline Points: 5 |
Post Options
Thanks(0)
Quote Reply
Posted: Aug 15 2007 at 6:50am |
|
HI Ladies,
1). How old are you? 31 dx at 30
2). What is your race? Caucasian
3). What was your diagnosis? IDC Stage 2a trip neg, 4cm, node negative
4). Are you over weight? Yes If yes, how much? 75 lbs
5). Do you or did you dye your hair? Yes What color? Ashe Blonde
6). Have you worn acrylic nails? No If yes, how long?
7). Other Chemical exposure note worthy? None that I am aware of
8). Did you have chemo prior to surgery? No If yes, was it due to tumor size?
9). Do you use Splenda? Yes plus equal and sweet n low
10). Do you get much sun? no If yes, do you use sun screen? always
11). What State do you live in? Massachusetts
12). Have you ever worn underwire bras? Yes
13). Which breast had cancer? Left |
|
|
|
|
CarynRose
Senior Member
Joined: Aug 04 2007 Location: Robbinsville, NJ, USA Status: Offline Points: 960 |
Post Options
Thanks(0)
Quote Reply
Posted: Aug 17 2007 at 4:24pm |
|
1). How old are you? 47
2). What is your race? Caucasian (Ashkenazi Jew)
3). What was your diagnosis? Orig: IDC, Stage IIa, Grade 3, Triple neg, node neg.... Recurrence: Poorly differentiated carcinoma in lymph nodes and mets to lungs
4). Are you over weight? If yes, how much? Yes... 100
5). Do you or did you dye your hair? What color? Yes, brown with highlights
6). Have you worn acrylic nails? If yes, how long? Yes, for abut 5 years (not anymore)
7). Other Chemical exposure note worthy? Second hand cig smoke as a child
8). Did you have chemo prior to surgery? If yes, was it due to tumor size? No
9). Do you use Splenda? rarely
10). Do you get much sun? If yes, do you use sun screen? I do not get much sun any more. Always use sunscreen.
11). What State do you live in? New Jersey
12). Have you ever worn underwire bras? Yes
13). Which breast had cancer? Right
|
|
|
|
Topic Options|
Post Reply
|
Page 123> |
Tweet
|
| Forum Jump | Forum Permissions You cannot post new topics in this forum You cannot reply to topics in this forum You cannot delete your posts in this forum You cannot edit your posts in this forum You cannot create polls in this forum You cannot vote in polls in this forum |