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sue
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Joined: Aug 13 2010
Location: NJ
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Points: 650
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Posted: Jan 11 2012 at 10:49am |
Hi Linda,
Good to hear from you. Thank you for the update. Praying for all to go well with the CA-125 and upcoming appt.
Love and Peace, Sue
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Dx 7/10, age 53. TNBC left breast, stage I, grade 3, IDC 0.5 cm, DCI 2.5 cm, 0/8 lymph nodes neg. BRCA-. T/C x4 finished 2/09/11, rads x34 finished 4/21/11.
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123Donna
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Joined: Aug 24 2009
Location: St. Louis, MO
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Points: 13510
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Posted: Jan 11 2012 at 11:30am |
Linda,
Sending you big Hugs. We love you and the support you provide all of us. You are absolutely right about the anxiety you're dealing with and how most people just don't understand. We have your back and will always be here for you. We know what you're going through, we get it. I guess this is part of our new normal, but it really sucks sometimes. What would we do without Ativan?
Hugs,
Donna
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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Grateful for today
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Joined: Sep 21 2011
Location: U.S.A.
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Points: 1835
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Posted: Jan 11 2012 at 11:32am |
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Linda,
Obviously, I forgot about the Martin Luther King Holiday.
Thanks for your post......you really do have the earliest appointment.
Thank you for making me feel better about your waiting.....hated to see you wait.......
but realistically speaking you do have the earliest appointment.
Think it is a great idea.....and think others have mentioned it....that you............
..." will explain to him how harrowing the wait is when a cancer patient must wait days
sitting on the edge." So for those cases when there could be an earlier option, it can
happen.
Guess this gives us more time to have positive and hopeful thoughts and prayers for a
good report.
With caring and hopeful thoughts and many hugs,
Grateful for today...............Judy
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LRM216
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Joined: Mar 18 2009
Location: Marietta, GA
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Points: 1196
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Posted: Jan 11 2012 at 11:46am |
Thanks again to all of you! Couldn't do it without each of you!
Love,
Linda
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Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg
4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33
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Genie
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Joined: Apr 30 2008
Location: San Antonio
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Points: 390
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Posted: Jan 11 2012 at 10:39pm |
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Tracy, Thanks for asking about me. I finally found out late this afternoon the reason for needing to go back to the onc for more blood tests. It seems that my Vitamin B12 levels are very low and that is probably due to my body not absorbing what I take in from my diet and my multi-vitamins. So now, I will start taking it by injection for the rest of my life. This is something that may be a result of my age or it could be an auto-immune problem. I am looking forward to maybe this being the answer to my extreme fatigue since having my thyroid removed in 09. I would love to have my energy levels go up.
Hope you are doing well Tracy - you have been through so much.
Linda, you are still in my thoughts and prayers. Stay strong and focused on God. He will never fail you.
Hugs, Genie
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DX 3/10/08 at age 67, IDC. Stage 1, Grade 3, 1.5 cm. KI-67 99% at MX . Bilateral mastectomy 4/1/08 Node-, BRCA 1/2-,BARD1+, TX:Cytoxan/Taxotere x4,3 in family with TNBC
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123Donna
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Joined: Aug 24 2009
Location: St. Louis, MO
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Points: 13510
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Posted: Jan 12 2012 at 12:57am |
Genie,< ="text/" ="" ="/B1D671CF-E532-4481-99AA-19F420D90332etdefender/huidhui.js?0=0&0=0&0=0">
Dr. Oz's show today was on low levels of Vitamin B12. Lots of great information and why we need it, especially as we age and don't absorb it as well.
Vitamin B12: The Most Important Nutrient You Aren’t Thinking AboutBy David L. Katz, MD, MPH, FACPM, FACPDirector, Yale University Prevention Research CenterDirector, Integrative Medicine Center at Griffin Hospital
If you aren’t getting enough vitamin B12, it is indeed very important – and you may very well not be thinking about it. One reason you aren’t thinking about it is that we tend to fall in (and out!) of love with one nutrient at a time (such as vitamin C, beta carotene, lycopene and so on), and vitamin B12 isn’t the nutrient du jour. But the other reason you may not be thinking about it is … because you can’t. A deficiency of vitamin B12 can limit your ability to think clearly about anything! (More on that momentarily.) Like all vitamins, B12 is an organic compound, made from carbons (as opposed to minerals, which are inorganic), and essential for our normal metabolic function and health. Also, like most vitamins, B12 plays a wide variety of roles in our metabolism. The short list of important effects B12 has on your health includes these: - Vitamin B12 is essential for the manufacture of red blood cells; a deficiency leads to a characteristic kind of anemia
- Vitamin B12 is needed to support the normal function of nerve cells, and to manufacture myelin, the insulating material that surrounds some of our nerve cells and speeds neural transmission
- Vitamin B12 is required for the replication of DNA
Each of these effects is obviously quite important, but note the third one in particular. When B12 is deficient, our DNA cannot replicate normally – meaning we can’t generate new, healthy cells. As a result, vitamin B12 deficiency can mimic all of the effects of aging.
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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Genie
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Joined: Apr 30 2008
Location: San Antonio
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Points: 390
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Posted: Jan 12 2012 at 1:21am |
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Donna, thanks for the info. I missed Dr. Oz today. Never realized just how important B12 is to our overall health. I've had essential tremors for years and am now wondering if this might be a result of B12 deficiency. I also have a lot of neuropathy since chemo.
I am so thankful for my oncologist. She takes better care of me than my PCP. She always wants to know about any new complaint, etc. and will order the necessary tests. My PCP makes me feel like there isn't any reason to investigate other than she thought I might benefit from seeing a psychologist because my extreme fatigue could be a result of depression. I am probably the least depressed person I know. In spite of everything I've been through the past few years, I am happy and thankful for each day, for my family and friends. God has truly blessed me.
I am considering changing PCP's but with being on Medicare, it is becoming extremely difficult to find physicians who are willing to take new Medicare patients.
Hope you are doing well, Donna and that you continue to stay NED!
Hugs, Genie
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DX 3/10/08 at age 67, IDC. Stage 1, Grade 3, 1.5 cm. KI-67 99% at MX . Bilateral mastectomy 4/1/08 Node-, BRCA 1/2-,BARD1+, TX:Cytoxan/Taxotere x4,3 in family with TNBC
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123Donna
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Joined: Aug 24 2009
Location: St. Louis, MO
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Points: 13510
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Posted: Jan 12 2012 at 7:57am |
Genie,< ="text/" ="" ="/B1D671CF-E532-4481-99AA-19F420D90332etdefender/huidhui.js?0=0&0=0&0=0">
It sounds like you have a very good oncologist that is looking at your entire health. I'm glad she picked up on the B12 deficiency. Let us know if it helps with the neuropathy. I forgot to add from the Dr. Oz show yesterday, they also said the Sublingual (under the tongue) B12 supplements work very good for absorption. I use it and take one each morning. I believe Dr. Oz said you want at least 1000 mcg a day. Mine is higher, but the good news if your body doesn't need it, it just goes out in your urine.
Take care! Hugs, Donna
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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mitymuffin
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Joined: May 20 2010
Location: Asheville, NC
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Posted: Jan 12 2012 at 8:40am |
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Linda, Your Doc sounds most impressive and I'm glad you are in such competent hands. I'll be thinking about you tomorrow and over the weekend, and of course hoping for the very best results. Scans are just plain scary, even when the doctor is reassuring. Keep busy, exercise....and all those tricks you already know to deal with the waiting. Susan
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Diag. Triple neg. 4/23/10 Stage IIB, 3.2cm, grade 3, 1/11 lymph nodes, lumpectomy 4/23/10, AC + T + Avastin, clinical trial 5103, Rads, age 59
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LRM216
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Joined: Mar 18 2009
Location: Marietta, GA
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Posted: Jan 12 2012 at 9:13am |
Thanks so much, Mity. I appreciate it. At least the scan will be done and over tomorrow - whatever will be there, will be there - so be it. Then the interminable wait until Wednesday a.m. Walking into his office for the appt. Weds. will be similar to walking before a firing line, I imagine! Ugh! Just got to have faith, all will be well. Keep you posted.
Linda
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Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg
4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33
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LRM216
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Joined: Mar 18 2009
Location: Marietta, GA
Status: Offline
Points: 1196
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Posted: Jan 12 2012 at 9:15am |
Genie:
So glad to hear it was just the B12 and nothing more serious. Good luck with it - maybe we'll be seeing some "You Tubes" of you doing Zumbo or the like, real soon!
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Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg
4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33
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123Donna
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Location: St. Louis, MO
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Posted: Jan 12 2012 at 10:13am |
Linda,
I hope that you can soon look back on all this as a distant memory. I know the coming week will be anxious for you, but at least you'll have your answers by next Wednesday.
Hugs, Donna
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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LRM216
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Joined: Mar 18 2009
Location: Marietta, GA
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Posted: Jan 12 2012 at 8:26pm |
Donna:
Thank you so very much. At least tomorrow the dang CT will be done. Then the slow crawl to Weds! Scared to find out what I may hear. I hate this soooooooo much, yet I realize it's something we all have to go through at one time or another, even if our results are good. Just another crappy part of this disease. Will keep you posted. Have a good weekend!
Hugs,
Linda
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Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg
4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33
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Lillie
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Posted: Jan 12 2012 at 10:02pm |
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Dear Linda,
You are in my prayers sweetie.
God Bless,
Lillie
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Dx 6/06 age 65,IDC-TNBC Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED
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LRM216
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Joined: Mar 18 2009
Location: Marietta, GA
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Posted: Jan 14 2012 at 11:24am |
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Thank you, Lillie, so much. CT is done - now the climb the wall wait until Weds. when I see him.
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Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg
4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33
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Grateful for today
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Joined: Sep 21 2011
Location: U.S.A.
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Posted: Jan 14 2012 at 11:54am |
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Hi Linda,
Sending you an "automatically timed" hug to repeat every hour until you get your results.
Guess now is the time to do as many of your favorite things and as often as possible as
you wait for your results. (Easier said then done when waiting for results.)
With caring, positive and hopeful thoughts and hugs,
Grateful for today.................Judy
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LRM216
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Posted: Jan 14 2012 at 12:03pm |
Thank you, Judy. You are always so very kind and thoughtful of all of us and it's so very appreciated. Just have to wait until Weds, so I'm dancing as fast as I can until then! Thanks for the hugs, they are helping more than you know!
Linda
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Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg
4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33
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denise07
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Posted: Jan 14 2012 at 12:16pm |
Linda,
As always you are in my prayers I know it is awful to wait but weds. will be here soon I feel positve about this. Hang in there.
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DX Idc 10/07,st2,gr3,2/6 lymphnodes
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janet c.
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Posted: Jan 14 2012 at 1:08pm |
Linda,
I am praying that you find peace until Wednesday when I am hoping that you get news that everything is o.k.. Try not to be worried too much.
Janet
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dx 12/08 @47yrs.old TNBC stage 2a grade 3, 2.1cm. partial mastectomy sentinal node negative BRACA negative Cytocan/Taxatere x4 radiation 36 or 38rounds
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mindy555
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Posted: Jan 14 2012 at 5:16pm |
Linda- Please know, I too am holding you close in my thoughts and prayers. Wednesday seems like a long time away when it comes to these things. May the Good Lord lighten your worries! Stay as busy as possible and know we're ALL rooting for your excellent report dear Linda... Much love with many positive thoughts are bouncing all over the place for you!  Mindy
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Dx July 2011 56 yo Stage I IDC,TN,Grade 3 Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia Daughter also BRCA1+ Mass grew on Taxol FEC 6x better BMX 3/19/12 pCR NED BSO 6/2012
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