Feeling jittery, could use some good wishes....
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Topic: Feeling jittery, could use some good wishes....
Posted By: LRM216
Subject: Feeling jittery, could use some good wishes....
Date Posted: Jan 02 2012 at 12:20pm
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Been going through some testing and I can't lie, I'm getting a bit apprehensive (a bit, ha!). It began last June at my annual gyno appt. Have had large fibroids on my uterus since my forties which were always checked on yearly, never any symptoms, so a hysterectomy was never recommended. This year she decided, since it had been five years since my last hospital sonargram and transvaginal (she did her own on each of my visits, but wanted everything checked again and sized on the big hospital machine), that I should have it done by the Womens Center. It found that I had a minimal amount of fluid in my pelvis, and they thought a fibroid had grown a bit. Then I had a pelvic MRI which assured that the fibroid did not grow at all, but that I had a tarlov cyst in caudal area and a mild amount of fluid in pelvis. Suggested another sonar and transvaginal in 3 months. Had the second one in September. No problems other than mild amount of fluid in pelvis, another sonar and TV at end of year. Just had it done last week and now shows that there appeared to be a left adnexal cystic mass and small amount of fluid in pelvis. She had all the reports reread by her favorite interventional radiologist, who suggested another MRI as the left adnexal mass was not there on last MRI, but he didn't feel it was a "cystic mass" at all. Had the MRI on this past Friday afternoon with Dr. Levy, my gyno's friend standing by to read it (how's that for service!) - and he said there is definitely no mass. There is a small pocket of fluid in the left adnexal mass that he is not concerned about at all. However the free fluid in my pelvis is a little bit more than last MRI, so he suggests just watching it and doing another sonargram and TV in six months. My gyno wants me to come in this week so that she can do a CA-125 blood test on me, since it will be the first I have ever had. My onc only does the CA 27-29 on me each visit. She is also - just as a back up as she doesn't want to waste any more time, should this prove to be a problem, is going to e-mail her friend - a gyno onc, to see if he suggests anything further. I can't imagine a gyno onc looking at an almost 65 yr. old's MRI with small amount of free fluid in her pelvis, saying - oh, nothing needs to be done! So - there you have it - and I'm scared. This will be my first real scare since diagnose - and I don't feel any more brave almost three years later than I did at the beginning of this journey.
Sorry this is so long, but just needed to get it out to all my friends here, as I know each of you will understand only too well where my thoughts are going. My family, as much as I love them all dearly, only want to think I have nothing to worry about, and that all is fine. I wish it was that easy, but they will never see it any other way. I'm told, basically, don't make problems where there are none. Yeah, sure - duh!
Anyway, I feel better already just knowing that those that may read this, understand, and are wishing me good luck! I'll post as I find out more.
Love,
Linda ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Replies:
Posted By: Genie
Date Posted: Jan 02 2012 at 1:22pm
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Linda, I can certainly understand that you anxious about these developments. My prayer is that God will give you a peace and calm about it all until you hear more about the results of the tests. I am going through something similar. Had my 6-month check-up with my onc the middle of Dec. and she said everything looked good. Then last week they called and asked me to come in for more blood work but didn't say why. Hopefully I will find out this week what the latest blood work shows. I'm really not too concerned - my onc is extremely cautious - I may just be a little anemic or something. Anyway, I'm sending positive thoughts and prayers your way. Love, Genie ------------- DX 3/10/08 at age 67, IDC. Stage 1, Grade 3, 1.5 cm. KI-67 99% at MX . Bilateral mastectomy 4/1/08 Node-, BRCA 1/2-,BARD1+, TX:Cytoxan/Taxotere x4,3 in family with TNBC |
Posted By: Grateful for today
Date Posted: Jan 02 2012 at 1:44pm
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Hi Linda,
Tons and more tons of good wishes. Have 2 responses: Objective response. Based on: "Had the MRI on this past Friday afternoon with Dr. Levy, my gyno's friend standing by to read it (how's that for service!) - and he said there is definitely no mass. There is a small pocket of fluid in the left adnexal mass that he is not concerned about at all. However the free fluid in my pelvis is a little bit more than last MRI, so he suggests just watching it and doing another sonargram and TV in six months." Based on this, seems very, very little to be concerned about objectively. Subjective response: With any situation that has the slightest possibility for being a problem, I and think most any one with a history of cancer would be concerned. Guess instead of the usual......give the cough or muscle pain 2 weeks.....this will take a 6 month sonagram to confim all is well. Think with what Dr. Levy said I would try (easier said then done) to concentrate on there is no hard evidence of a problem ( and of course, whatever your MD says). Regarding the CA-125 test. Am sure you know this test result can sometimes raise concerns when there are none. From http://www.medicinenet.com/ca_125/page2.htm - http://www.medicinenet.com/ca_125/page2.htm For general info about the test. Is CA 125 testing useful as a cancer screening test? Although CA 125 is a useful test in monitoring women who are being treated for ovarian cancer, a single CA 125 test is not considered to be a useful screening test for cancer. Some women with ovarian cancer (up to 20%) never have elevated CA 125 levels, while most women who do have elevated CA 125 levels do not have cancer. In fact, because CA 125 can be elevated in so many non-cancerous conditions, only about 3% of women with elevated CA 125 levels have ovarian cancer. REFERENCE: Hussain, Fazal. "Gynecologic Tumor Markers." eMedicine. Mar. 30, 2009. <http://emedicine.medscape.com/article/269839-overview>. Last Editorial Review: 10/22/2009 There are probably better references for the CA-125 test but think above gives some generally held information. The 3% sounds like it is referring to a screening use. With caring and hopeful thoughts and hugs, Grateful for today..............Judy |
Posted By: janet c.
Date Posted: Jan 02 2012 at 1:47pm
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Linda,
I am praying for you and hopefully it is nothing. It sounds like your doctors are just being cautious. My best friend just yesterday was saying that a mutual friend of ours says that a headache is never just a headache anymore once you have had cancer. I think this is so true. Just try to keep busy and try to think about other things and just pray for calm. Love, Janet ------------- dx 12/08 @47yrs.old TNBC stage 2a grade 3, 2.1cm. partial mastectomy sentinal node negative BRACA negative Cytocan/Taxatere x4 radiation 36 or 38rounds |
Posted By: 123Donna
Date Posted: Jan 02 2012 at 1:51pm
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Linda and Genie,< ="text/" ="" ="/B1D671CF-E532-4481-99AA-19F420D90332etdefender/huidhui.js?0=0&0=0&0=0"> All I can add is that I definitely know how you feel. We think we can put all this behind us, but when a test or exam shows something that might need investigating further, it just sends us to that anxious place again. Linda, it seems like you have a great medical team on top of it and looking at every possibility. I have a good feeling for you that it will turn out alright. I just wish you didn't have to go through this anxiety again. We're here for you! Hugs, Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: Lillie
Date Posted: Jan 02 2012 at 1:57pm
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Dear Linda,
I am so sorry you are having to go through this anxious time concerning pelvic fluid. I don't have a situation to compare with, but please know that I am praying for you. Hopefully nothing more than a harmless cyst. I know the waiting has to be difficult. Dear Genie, I am also sorry you are having to go through anxiety about your upcoming blood re-check. Praying it is something simple, like cholesterol or triglicerides and nothing to do with cancer. God Bless, Lillie ------------- Dx 6/06 age 65,IDC-TNBC Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED |
Posted By: denise07
Date Posted: Jan 02 2012 at 1:57pm
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Linda,
I am sorry you are going through this I know I have had my scares,but my onc told me as well as all of my other doctors any little change in anything they will check it out further because of my history. I am sure your doctor is bienging very cautious which is a good thing. I will be praying for you.
Hugs,
Denise ------------- DX Idc 10/07,st2,gr3,2/6 lymphnodes |
Posted By: LRM216
Date Posted: Jan 02 2012 at 2:18pm
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Thank you, one and all, for each of your responses. I knew that they would pull me in and put me back on the straight and narrow. I don't know what I would ever do without all of you, and I mean that from the bottom of my heart. My gyno realizes that the CA-125 is not terribly dependable, but since I've never had the need for one, she just wants to cover every base. It is her that wants to do as much as possible and leave no stone unturned. Keeps assuring me that with no cysts or "masses" there, I should try not to worry, but the cancer-scarred part of my mind keeps reminding me just how sneaky and hidden ovarian cancer can be.
I love you all and thank you all for being here for me. Amazing to know that faces I have never met, and hands I have never held, could shelter me from my own fear better than those that I have loved all my lives. I know they are scared too, but they just can't grasp why a cancer-patient can't just push it away and not worry. Only another sister or brother can truly understand - and boy, am I sure grateful that I have each of you to come to!
Love,
Linda ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: LRM216
Date Posted: Jan 02 2012 at 2:38pm
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Genie:
I'll be hoping for all the best for you too with your blood tests.
hugs,
L. ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: majjers
Date Posted: Jan 02 2012 at 2:41pm
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Linda,
I loved reading your last paragraph. I think you put into words something most of us agree with and you said it beautifully! I pray you have good results with all your tests and that we continue to walk together into 2012 with great faith and high hopes for good things for all of us!
 Traci
------------- dx 5/25/07, Stage 2A,TNGr3 DD 4 AC,4 Taxol 32 rads BRCA 1&2 (-) 7/11 mets to lung; Too many lines of chemo to list! The saga continues but only GOD numbers my days! |
Posted By: 123Donna
Date Posted: Jan 02 2012 at 3:15pm
< ="text/" ="" ="/B1D671CF-E532-4481-99AA-19F420D90332etdefender/huidhui.js?0=0&0=0&0=0">
Linda, You so eloquently capture the essence of this forum and community. We can always turn to each other as we truly understand the journey we're on. At least we don't have to travel this road by ourselves. We have each other! Love, Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
LRM216 wrote:Posted By: mainsailset
Date Posted: Jan 02 2012 at 3:49pm
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Linda, a couple of thoughts. Don't forget when you get the new bloodwork that you don't really have a baseline on it because it will be the first, so no matter what it is, it's not as reliable as if you had several previous ones to do tracking with...
Also, my doc and I decided to do CEA's at each test and I would suggest you talk that over with your doc to see if it should be added.
And last, don't forget that the jitters are also telling you a story that you can have some control over. Anxiety is something we live with now and it's a good thing to start training yourself to recognize the symptoms and then do something about it as anxiety and stress are like candy to a body prone to cancer (yeah, that's my personal belief, please don't shoot me!) But since I take a regular anxiety med and then have a 'panic attack' bottle at the back of my drawer just knowing it's there gives me a certain amount of control that really makes a difference.
Double lastly, add an extra 1/2 hour or more to your regular exercise so that every time you feel the jitters coming on, take a quick walk around the block, do some stretches, jumping jacks... whatever you have to to use up that raw energy.
I need some chocolate
M ------------- dx 7/08 TN 14x6.5x5.5 cm tumor 3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear |
Posted By: CindyKS
Date Posted: Jan 02 2012 at 5:58pm
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Praying for good luck and hoping your anxiety is wiped away soon. Cindy ------------- Age 42; Dx 4/10; IDC; 2.1cm; lumpectomy; ACx4-taxolx4 every 2 wks; Radx37, BRCA 1/2 neg |
Posted By: sue
Date Posted: Jan 02 2012 at 7:45pm
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Linda, Can certainly feel your worry and hoping for only positive results and an end to all the testing for awhile at the least. Love and Peace, Sue ------------- Dx 7/10, age 53. TNBC left breast, stage I, grade 3, IDC 0.5 cm, DCI 2.5 cm, 0/8 lymph nodes neg. BRCA-. T/C x4 finished 2/09/11, rads x34 finished 4/21/11. |
Posted By: LRM216
Date Posted: Jan 02 2012 at 7:53pm
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Awww, Again, thanks so much my dear sisters. Mainy, I too have always kept a supply of Ativan on hand just for these moments, but the only time I have needed any was when Tiffany passed away. I have been taking a half in the morn and a half at night. It does quell this dang anxiety a bit, thank God. And I do keep in mind that this will be my first CA-125, and will remind the gyno also, which actually, she is also aware of. My regular onc (who I see on the 20th) always does a CEA also, but my last one was in late September and was fine, as was the CA -27-29, but as we all know, this monster can change in a heartbeat. I'm hanging on to "no symptoms, no cysts, no masses" - just can't let go of that small amount of fluid thats in the pelvis floating around. It would be normal if I wasn't 10 yrs. postmenopausal. Oh well, no way around it, just got to put on my big girl panties and go through it. Acutally a bit embarrassed to even be posting this with all that so many of our other sisters are presently going through, or have gone through. I don't even have any results yet, and I'm burying myself. Geez, sometimes I think the anxiety this disease produces in us is worse or just as bad as the disease itself. Yuk.
------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: Barbi
Date Posted: Jan 02 2012 at 9:30pm
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Linda and Genie: We are all glad you have a place to come and share, whether it be anxiety or something else. Prayers for both of you for "nothing to worry about" and decreased worry!! ------------- 10/10,age49,St3,gr3,5+cm,1 node,BRCA-,T+Cisplatin+Rad0001(or placebo),Lump 1+cm,AND 0/15,AC,rads finished 7/6/11.Mets bone, liver,mamm node 8/11,abrax/tigatuzamab failed.Started bicalutamide 11/16/11. |
Posted By: krisa
Date Posted: Jan 02 2012 at 9:53pm
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Linda, have your doctors discussed the cause of fluid in your pelvic area? .
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Posted By: dmwolf
Date Posted: Jan 03 2012 at 5:41pm
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Hugs, Linda! love, d ------------- DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10. |
Posted By: HappyGoLucky
Date Posted: Jan 04 2012 at 12:28pm
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Dear Linda Some cyber hugs coming to you. You're an inspiration to me and I pray the rsesults are good. Always love reading your posts with your positivity. Love, Karen ------------- 2/2009 7cm tumor, sent nod. pos. Lumpectomy 3/19/09,a/c dose dense+avastin clinical trial, taxol avastin stopped with pneumonia. 33 Rads 01/2010 ~ reccur 2011 supraclav.and internal mammary nodes. rad |
Posted By: LRM216
Date Posted: Jan 04 2012 at 6:35pm
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Just stopping by to let you know I am still breathing (I think!). Went for the CA-125 today, and, of course, my wonderful gyno is trying her very best to assure me that this doesn't have to mean it's cancer. Since she can't, nor can google, apparently, tell me what the heck else it could be, I am having difficulty feeling reassured. I do have an appt. on Friday, the 6th, with an excellent and highly esteemed (I hope) gyno-onc who heads up the ovarian cancer program at the hospital I have had all my cancer stuff done at (Northside Hospital, Atl., GA), and which is one of the 30 countrywide hospitals recognized by the NCI as a community cancer center. He also heads up and founded the Ovarian research center at GA Tech - long story short, his credentials are very impressive. He's 73, so I'm taking that as being very experienced and learned, and not just old (ha! listen to me, like I'm some spring chicken). He will meet with me and go over every sonargram and transvaginal and the two MRI's since July to the present time, and hopefully will come to some conclusion as to what our next step will be during this appt.
Will let you know what I find out, and again, thank you all so very much for helping me through this with all your support.
Hugs,
Linda ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: 123Donna
Date Posted: Jan 04 2012 at 8:29pm
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Linda, It sounds like you have a good plan. Now try to breathe and relax a little bit (easier said than done). Hugs, Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: mindy555
Date Posted: Jan 04 2012 at 11:56pm
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Wishing you the best of luck, Linda. You're in my thoughts and prayers. Like Donna said.. now breathe and relax a bit. I bet it all turns out fine. xxxx
------------- Dx July 2011 56 yo Stage I IDC,TN,Grade 3 Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia Daughter also BRCA1+ Mass grew on Taxol FEC 6x better BMX 3/19/12 pCR NED BSO 6/2012 |
Posted By: Lillie
Date Posted: Jan 05 2012 at 11:23am
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Dear Linda,
73 is definitely not old, just wise. I will be 71 on Monday the 8th and I am definitely not old???? Praying for a good outcome to all you are experiencing. God Bless, Lillie ------------- Dx 6/06 age 65,IDC-TNBC Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED |
Posted By: christina1961
Date Posted: Jan 05 2012 at 11:27am
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Linda, It sounds like you have a good doctor in place. I think experience matters most! I am sending you positive thoughts and support all the way! Love, Christina ------------- 2.5 cm TNBC, BRCA-, diag. 2/11, neoadj chemotherapy, uni MX, y2cm,2/16 nodes, RCBII, tumor retested 5-10%ER+,PR-,Her2-, rads, clin trial eribulin 10/11-2/12, tamox. |
Posted By: LRM216
Date Posted: Jan 06 2012 at 5:17pm
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Posting to let you all know that I saw the gynocologic oncologist today, and after going over all of my testing results and scans over the past 7 months, and a rigorous exam of his own, he does not feel that I have a problem. He ruled out hysterectomy and even an exploratory, as he doesn't feel either is necessary. My CA-125 was normal, as was my CEA. Since he cannot zero in on just why there is a small amount of fluid in my pelvis, not enough to be concerned about in his opinion, and because of my TN status, he has scheduled me for a CT next friday of the abdomen, rectal area and pelvis as he feels the CT is very definitive in what it shows. After that is done and the results are in, he will meet with me to go over it. He feels very optimistic about the situation, so I am going to hold onto that. Of course, we all know that scans can always surprise us, and I'm hoping that will not be the case here, but will be able to leave this all behind me once they are done and hopefully show nothing, as he suspects. A very heartfelt thank you to each and every one of you for being there for me. Words cannot describe how much all of your posts have helped me.
Love,
Linda ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: HappyGoLucky
Date Posted: Jan 06 2012 at 6:52pm
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Linda Thats so wonderful to hear. Happy for you, Karen ------------- 2/2009 7cm tumor, sent nod. pos. Lumpectomy 3/19/09,a/c dose dense+avastin clinical trial, taxol avastin stopped with pneumonia. 33 Rads 01/2010 ~ reccur 2011 supraclav.and internal mammary nodes. rad |
Posted By: Genie
Date Posted: Jan 06 2012 at 11:11pm
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Linda, that is good news. You will still be in my thoughts & prayers next Friday for good results from the CT. Love from Texas. Genie ------------- DX 3/10/08 at age 67, IDC. Stage 1, Grade 3, 1.5 cm. KI-67 99% at MX . Bilateral mastectomy 4/1/08 Node-, BRCA 1/2-,BARD1+, TX:Cytoxan/Taxotere x4,3 in family with TNBC |
Posted By: TracyAMac
Date Posted: Jan 07 2012 at 12:20am
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Linda, I am so happy for that results so far have been good. Keep us posted on the CT result Genie, any word on your blood test results? Sending you love and good thoughts from Toronto tracy ------------- TN&non-TN tumors April/10 Gr3&2;1 metaplastic Rmast.1/9 nodes w/isolated t.cells Taxotere&Cytoxan x6 Bone cancer 1980 age17;surgery&chemo AC+Methotrexate BRCA-ve On hormone therapy & Metformin Trial |
Posted By: mainsailset
Date Posted: Jan 07 2012 at 12:30am
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Doin a Friday Happy Dance here!
------------- dx 7/08 TN 14x6.5x5.5 cm tumor 3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear |
Posted By: Lillie
Date Posted: Jan 07 2012 at 9:41am
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{I will be 71 on Monday the 8th and I am definitely not old?????} posted earlier.....
Well, OK, so Monday is not the 8th, it is the 9th. You see all those question marks after my post. Anyhow, Linda is sounds as though the 73 year old doc is very optimistic and leaving no stone unturned. Here is hoping you have total peace of mind soon. God Bless, Lillie ------------- Dx 6/06 age 65,IDC-TNBC Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED |
Posted By: LRM216
Date Posted: Jan 07 2012 at 10:39am
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Oh, Lillie, that's funny! And I want to be the first to wish you a very happy birthday with a year of all good things and good health. I'm pushing for 65 myself in February.
Can't say I'm not nervous about the CT next friday, but I do realize that all this goes with the territory - and appears it will for the rest of our lives. I just hate the anxiety that these tests bring on for each of us, and knowing I will have it on a Friday - I have no idea when I will be called to go over the results, so I'm sure I'll have some bumpy days ahead for sure until then. Just hate, hate, hate all this stuff we have to endure and suffer through. But - just have to hang in there and see what happens. Just hope they don't find anything else. I figure he's telling me he can't see any gyno problems, and even though he's not concerned about the amount of fluid in there, he still wants to make sure it's not coming from something else going on elsewhere. Either that or I am the worlds biggest pessimist!
Hope you all have a good weekend,
Linda ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: denise07
Date Posted: Jan 07 2012 at 11:43am
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Linda,
I am so happy that your tests are good so far and I think your ct will be fine also your doctor has to cover all grounds and he is doing a great job. I have had many ct scans and I usually get my results in a day or two if your are having alot of anxiety waiting for thr report I would just call for the results. I know I hate going for all of these test to I have a very difficult time when it comes time for tests so I know how you feel. I will be praying for you and I have a good feeling everything will be fine. ------------- DX Idc 10/07,st2,gr3,2/6 lymphnodes |
Posted By: denise07
Date Posted: Jan 07 2012 at 11:44am
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Lillie,
I have to wish you a very healthy happy birthday many more!!!!!!!! ------------- DX Idc 10/07,st2,gr3,2/6 lymphnodes |
Posted By: TNBC_in_NS
Date Posted: Jan 07 2012 at 11:44am
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Oh our dear lovely Linda:
I am so glad your "old" doctor is looking after you so well! You are blessed dear Linda and will be fine with this CT, for that I am sure! We have such a wonderful bunch of ladies and gents on this forum and they are all warriors in support, prayer, and love, so how can we loose with such a wonderful people in our lives....
My prayers will continue for you and all who are having tests, treatments and in transition!
Hugs, Helen in NS ------------- Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear |
Posted By: HappyGoLucky
Date Posted: Jan 07 2012 at 1:08pm
Happy birthday Lillie! ------------- 2/2009 7cm tumor, sent nod. pos. Lumpectomy 3/19/09,a/c dose dense+avastin clinical trial, taxol avastin stopped with pneumonia. 33 Rads 01/2010 ~ reccur 2011 supraclav.and internal mammary nodes. rad |
Posted By: mindy555
Date Posted: Jan 07 2012 at 7:41pm
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Linda- So good to hear your doc is confident! Way to go girl!!!!! Sounds from every indication ALL will be A-OK! Happy Dance for you! xoxoxo Sweet Lillie- Happy Birthday tomorrow!!!!.. and many, many more!!!!! xoxoxox ------------- Dx July 2011 56 yo Stage I IDC,TN,Grade 3 Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia Daughter also BRCA1+ Mass grew on Taxol FEC 6x better BMX 3/19/12 pCR NED BSO 6/2012 |
Posted By: mindy555
Date Posted: Jan 07 2012 at 8:00pm
Or is it Monday, Lillie?...LOL. Either way, I say start celebrating right this minute.. sort of a Lillie-Gras! And keep celebrating all month if ya want! You're still a young whipper-snapper in my book.  Linda- We're the same age if you reverse the 2 numbers.  What the heck! Age is overrated. Feeling GOOD is all that counts! ------------- Dx July 2011 56 yo Stage I IDC,TN,Grade 3 Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia Daughter also BRCA1+ Mass grew on Taxol FEC 6x better BMX 3/19/12 pCR NED BSO 6/2012 |
Posted By: Lorene
Date Posted: Jan 10 2012 at 10:55pm
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Hope your birthday was a happy one, Lillie, and 2012 is a happy, healthy year for you!
God Bless You,
Lorene ------------- dx10/01@age59,IDC TNBC, St.IIB,Gr3,2.5cm,3+nodes, epirubicin,5FU,cytoxan,33Rads,No recurrence, 2018 |
Posted By: Grateful for today
Date Posted: Jan 11 2012 at 12:03am
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Hi Linda,
You posted on other forum on 1/9/12 7:55pm" "............ As I've mentioned, I have my abdominal/pelvic CT scheduled for this Friday (the 13th!), and called today to find out when I will see him for the results of same. My appt is 10:30 a.m. on Wednesday. Ugh! ................" Would you be planning to wait until Wed appt or are you thinking of asking for results sooner? Don't know if it would be a possibility....or if it would be helpful......if any chance your regular gyn MD could see you sooner and give you the results? Just a thought. Sometimes it easier and less stressful to leave things as currently planned. Sometimes things can be adapted for a better plan. You know what would be more helpful to you. Of course, speaking with the gyn onc Friday or Monday would be best...........so maybe you could also ask about that! I usually feel all they can say is no. (Again, it could be better to leave planned Wed appt as is) With positive, calming and hopeful thoughts for a good report, Grateful for today...............Judy |
Posted By: LRM216
Date Posted: Jan 11 2012 at 9:15am
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Judy:
While I hate the the time elapsed between the scan and the actual appt. time with Onc- gyno, I think I am just going to leave it at that. This guy is a real big-wig, and since he ordered the scan and not my gyno, I don't want to put her in an uncomfortable position. I called the Scan Dept at the hospital and they explained that he probably wouldn't have the report until Saturday, or maybe even Sunday. His office explained to me that he then goes over the entire scan himself, despite what the report shows or tells, he will go over everything with a fine tooth comb. I guess that's why he is the Head of the Ovarian Cancer Research Center at Georgia Tech, professor at Emory, and is the founder and head of the Womens gynocological cancer center at Northside Hospital as well. Just don't want to step on any toes without yet knowing what direction I'm heading. Also, Monday down here in Ga is Martin Luther King day and is a recognized holiday by just about everyone. The doctor has surgeries on Tuesday, so Weds. is the earliest I can meet with him. Guess I'll just go with that. But I sure will explain to him how harrowing the wait is when a cancer patient must wait days sitting on the edge.
Thanks for the suggestions though,
Hugs,
Linda ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: sue
Date Posted: Jan 11 2012 at 10:49am
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Hi Linda, Good to hear from you. Thank you for the update. Praying for all to go well with the CA-125 and upcoming appt. Love and Peace, Sue ------------- Dx 7/10, age 53. TNBC left breast, stage I, grade 3, IDC 0.5 cm, DCI 2.5 cm, 0/8 lymph nodes neg. BRCA-. T/C x4 finished 2/09/11, rads x34 finished 4/21/11. |
Posted By: 123Donna
Date Posted: Jan 11 2012 at 11:30am
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Linda, Sending you big Hugs. We love you and the support you provide all of us. You are absolutely right about the anxiety you're dealing with and how most people just don't understand. We have your back and will always be here for you. We know what you're going through, we get it. I guess this is part of our new normal, but it really sucks sometimes. What would we do without Ativan? Hugs, Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: Grateful for today
Date Posted: Jan 11 2012 at 11:32am
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Linda,
Obviously, I forgot about the Martin Luther King Holiday. Thanks for your post......you really do have the earliest appointment. Thank you for making me feel better about your waiting.....hated to see you wait....... but realistically speaking you do have the earliest appointment. Think it is a great idea.....and think others have mentioned it....that you............ ..." will explain to him how harrowing the wait is when a cancer patient must wait days sitting on the edge." So for those cases when there could be an earlier option, it can happen. Guess this gives us more time to have positive and hopeful thoughts and prayers for a good report. With caring and hopeful thoughts and many hugs, Grateful for today...............Judy |
Posted By: LRM216
Date Posted: Jan 11 2012 at 11:46am
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Thanks again to all of you! Couldn't do it without each of you!
Love,
Linda ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: Genie
Date Posted: Jan 11 2012 at 10:39pm
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Tracy, Thanks for asking about me. I finally found out late this afternoon the reason for needing to go back to the onc for more blood tests. It seems that my Vitamin B12 levels are very low and that is probably due to my body not absorbing what I take in from my diet and my multi-vitamins. So now, I will start taking it by injection for the rest of my life. This is something that may be a result of my age or it could be an auto-immune problem. I am looking forward to maybe this being the answer to my extreme fatigue since having my thyroid removed in 09. I would love to have my energy levels go up. Hope you are doing well Tracy - you have been through so much. Linda, you are still in my thoughts and prayers. Stay strong and focused on God. He will never fail you. Hugs, Genie ------------- DX 3/10/08 at age 67, IDC. Stage 1, Grade 3, 1.5 cm. KI-67 99% at MX . Bilateral mastectomy 4/1/08 Node-, BRCA 1/2-,BARD1+, TX:Cytoxan/Taxotere x4,3 in family with TNBC |
Posted By: 123Donna
Date Posted: Jan 12 2012 at 12:57am
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Genie,< ="text/" ="" ="/B1D671CF-E532-4481-99AA-19F420D90332etdefender/huidhui.js?0=0&0=0&0=0"> Dr. Oz's show today was on low levels of Vitamin B12. Lots of great information and why we need it, especially as we age and don't absorb it as well. Vitamin B12: The Most Important Nutrient You Aren’t Thinking AboutBy http://www.davidkatzmd.com/ - David L. Katz , MD, MPH, FACPM, FACP Director, Yale University Prevention Research Center Director, Integrative Medicine Center at Griffin Hospital If you aren’t getting enough vitamin B12, it is indeed very important – and you may very well not be thinking about it. One reason you aren’t thinking about it is that we tend to fall in (and out!) of love with one nutrient at a time (such as vitamin C, beta carotene, lycopene and so on), and vitamin B12 isn’t the nutrient du jour. But the other reason you may not be thinking about it is … because you can’t. A deficiency of vitamin B12 can limit your ability to think clearly about anything! (More on that momentarily.)
Like all vitamins, B12 is an organic compound, made from carbons (as opposed to minerals, which are inorganic), and essential for our normal metabolic function and health. Also, like most vitamins, B12 plays a wide variety of roles in our metabolism. The short list of important effects B12 has on your health includes these:
Each of these effects is obviously quite important, but note the third one in particular. When B12 is deficient, our DNA cannot replicate normally – meaning we can’t generate new, healthy cells. As a result, vitamin B12 deficiency can mimic all of the effects of aging. http://www.doctoroz.com/videos/vitamin-b12-most-important-nutrient-you-arent-thinking-about - http://www.doctoroz.com/videos/vitamin-b12-most-important-nutrient-you-arent-thinking-about http://www.doctoroz.com/videos/end-your-energy-crisis-vitamin-b12?hs317=billboard_1 - http://www.doctoroz.com/videos/end-your-energy-crisis-vitamin-b12?hs317=billboard_1 ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: Genie
Date Posted: Jan 12 2012 at 1:21am
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Donna, thanks for the info. I missed Dr. Oz today. Never realized just how important B12 is to our overall health. I've had essential tremors for years and am now wondering if this might be a result of B12 deficiency. I also have a lot of neuropathy since chemo. I am so thankful for my oncologist. She takes better care of me than my PCP. She always wants to know about any new complaint, etc. and will order the necessary tests. My PCP makes me feel like there isn't any reason to investigate other than she thought I might benefit from seeing a psychologist because my extreme fatigue could be a result of depression. I am probably the least depressed person I know. In spite of everything I've been through the past few years, I am happy and thankful for each day, for my family and friends. God has truly blessed me. I am considering changing PCP's but with being on Medicare, it is becoming extremely difficult to find physicians who are willing to take new Medicare patients. Hope you are doing well, Donna and that you continue to stay NED! Hugs, Genie ------------- DX 3/10/08 at age 67, IDC. Stage 1, Grade 3, 1.5 cm. KI-67 99% at MX . Bilateral mastectomy 4/1/08 Node-, BRCA 1/2-,BARD1+, TX:Cytoxan/Taxotere x4,3 in family with TNBC |
Posted By: 123Donna
Date Posted: Jan 12 2012 at 7:57am
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Genie,< ="text/" ="" ="/B1D671CF-E532-4481-99AA-19F420D90332etdefender/huidhui.js?0=0&0=0&0=0"> It sounds like you have a very good oncologist that is looking at your entire health. I'm glad she picked up on the B12 deficiency. Let us know if it helps with the neuropathy. I forgot to add from the Dr. Oz show yesterday, they also said the Sublingual (under the tongue) B12 supplements work very good for absorption. I use it and take one each morning. I believe Dr. Oz said you want at least 1000 mcg a day. Mine is higher, but the good news if your body doesn't need it, it just goes out in your urine. Take care! Hugs, Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: mitymuffin
Date Posted: Jan 12 2012 at 8:40am
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Linda, Your Doc sounds most impressive and I'm glad you are in such competent hands. I'll be thinking about you tomorrow and over the weekend, and of course hoping for the very best results. Scans are just plain scary, even when the doctor is reassuring. Keep busy, exercise....and all those tricks you already know to deal with the waiting. Susan ------------- Diag. Triple neg. 4/23/10 Stage IIB, 3.2cm, grade 3, 1/11 lymph nodes, lumpectomy 4/23/10, AC + T + Avastin, clinical trial 5103, Rads, age 59 |
Posted By: LRM216
Date Posted: Jan 12 2012 at 9:13am
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Thanks so much, Mity. I appreciate it. At least the scan will be done and over tomorrow - whatever will be there, will be there - so be it. Then the interminable wait until Wednesday a.m. Walking into his office for the appt. Weds. will be similar to walking before a firing line, I imagine! Ugh! Just got to have faith, all will be well. Keep you posted.
Linda ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: LRM216
Date Posted: Jan 12 2012 at 9:15am
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Genie:
So glad to hear it was just the B12 and nothing more serious. Good luck with it - maybe we'll be seeing some "You Tubes" of you doing Zumbo or the like, real soon! ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: 123Donna
Date Posted: Jan 12 2012 at 10:13am
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Linda, I hope that you can soon look back on all this as a distant memory. I know the coming week will be anxious for you, but at least you'll have your answers by next Wednesday. Hugs, Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: LRM216
Date Posted: Jan 12 2012 at 8:26pm
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Donna: Thank you so very much. At least tomorrow the dang CT will be done. Then the slow crawl to Weds! Scared to find out what I may hear. I hate this soooooooo much, yet I realize it's something we all have to go through at one time or another, even if our results are good. Just another crappy part of this disease. Will keep you posted. Have a good weekend!
Hugs,
Linda ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: Lillie
Date Posted: Jan 12 2012 at 10:02pm
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Dear Linda,
You are in my prayers sweetie. God Bless, Lillie ------------- Dx 6/06 age 65,IDC-TNBC Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED |
Posted By: LRM216
Date Posted: Jan 14 2012 at 11:24am
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Thank you, Lillie, so much. CT is done - now the climb the wall wait until Weds. when I see him. ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: Grateful for today
Date Posted: Jan 14 2012 at 11:54am
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Hi Linda,
Sending you an "automatically timed" hug to repeat every hour until you get your results. Guess now is the time to do as many of your favorite things and as often as possible as you wait for your results. (Easier said then done when waiting for results.) With caring, positive and hopeful thoughts and hugs, Grateful for today.................Judy |
Posted By: LRM216
Date Posted: Jan 14 2012 at 12:03pm
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Thank you, Judy. You are always so very kind and thoughtful of all of us and it's so very appreciated. Just have to wait until Weds, so I'm dancing as fast as I can until then! Thanks for the hugs, they are helping more than you know!
Linda ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: denise07
Date Posted: Jan 14 2012 at 12:16pm
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Linda,
As always you are in my prayers I know it is awful to wait but weds. will be here soon I feel positve about this. Hang in there. ------------- DX Idc 10/07,st2,gr3,2/6 lymphnodes |
Posted By: janet c.
Date Posted: Jan 14 2012 at 1:08pm
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Linda,
I am praying that you find peace until Wednesday when I am hoping that you get news that everything is o.k.. Try not to be worried too much. Janet ------------- dx 12/08 @47yrs.old TNBC stage 2a grade 3, 2.1cm. partial mastectomy sentinal node negative BRACA negative Cytocan/Taxatere x4 radiation 36 or 38rounds |
Posted By: mindy555
Date Posted: Jan 14 2012 at 5:16pm
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Linda- Please know, I too am holding you close in my thoughts and prayers. Wednesday seems like a long time away when it comes to these things. May the Good Lord lighten your worries! Stay as busy as possible and know we're ALL rooting for your excellent report dear Linda... Much love with many positive thoughts are bouncing all over the place for you! Mindy ------------- Dx July 2011 56 yo Stage I IDC,TN,Grade 3 Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia Daughter also BRCA1+ Mass grew on Taxol FEC 6x better BMX 3/19/12 pCR NED BSO 6/2012 |
Posted By: LRM216
Date Posted: Jan 14 2012 at 7:58pm
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Thank you Mindy, I so appreciate your caring. I too wish your future to hold nothing but good health, with this beast left dead in it's tracks forever. Linda ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: Barbi
Date Posted: Jan 15 2012 at 4:52pm
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Thoughts and prayers are with you through and beyond Wednesday. I just feel it will turn out OK. Lots of love, Barbi ------------- 10/10,age49,St3,gr3,5+cm,1 node,BRCA-,T+Cisplatin+Rad0001(or placebo),Lump 1+cm,AND 0/15,AC,rads finished 7/6/11.Mets bone, liver,mamm node 8/11,abrax/tigatuzamab failed.Started bicalutamide 11/16/11. |
Posted By: LRM216
Date Posted: Jan 15 2012 at 6:03pm
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Thank you very much, Barbi. I'm hanging in there (ha, what choice do I have!). Very apprehensive about going in there to see him, but have to face the music, no matter what it may be. Hate, hate, hate this - for all of us. Love,
Linda ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: cheeks
Date Posted: Jan 15 2012 at 7:07pm
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Linda, Thinking of you over this long weekend for peace and calm and good health. December was my month of total craziness waiting on scans etc.  hate this cancer, the waiting too. Blair  ------------- Lump found 11/08 DX: 2/09 @52 TNBC L. Mast. 3/26/09, SN-, BRCA-, 4.5 cm (post surgical)T2NOMO Chemo: 4/09-10/09 Taxol x 12, A/C x 4, No rad.No recon. NED 1/17. New Primary right breast TN, 2/2018. |
Posted By: LRM216
Date Posted: Jan 16 2012 at 1:07pm
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Thanks so much, Blair. Will hear what I am meant to hear this Weds. Scared, for sure, but whatever it is, it is, at least this ungodly waiting will be over. Be well.
Love,
Linda ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: denise07
Date Posted: Jan 16 2012 at 2:00pm
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Linda,
Thinking of you it is almost Wednesday praying for good results. ------------- DX Idc 10/07,st2,gr3,2/6 lymphnodes |
Posted By: Grateful for today
Date Posted: Jan 17 2012 at 10:48pm
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Linda,
If you check this forum before your Wednesday appointment....or during or after it....... wanted you to know that lots of love, prayers, hugs and positive thoughts being sent your way. With very caring and positive thoughts, Grateful for today.............Judy |
Posted By: janet c.
Date Posted: Jan 18 2012 at 6:50am
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Linda,
Good luck today. Janet ------------- dx 12/08 @47yrs.old TNBC stage 2a grade 3, 2.1cm. partial mastectomy sentinal node negative BRACA negative Cytocan/Taxatere x4 radiation 36 or 38rounds |
Posted By: cheeks
Date Posted: Jan 18 2012 at 7:39am
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Linda, Thinking of you this morning. Blair ------------- Lump found 11/08 DX: 2/09 @52 TNBC L. Mast. 3/26/09, SN-, BRCA-, 4.5 cm (post surgical)T2NOMO Chemo: 4/09-10/09 Taxol x 12, A/C x 4, No rad.No recon. NED 1/17. New Primary right breast TN, 2/2018. |
Posted By: 123Donna
Date Posted: Jan 18 2012 at 7:52am
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Linda, Sending you a hug as you await your results today. Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: LRM216
Date Posted: Jan 18 2012 at 8:20am
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Denise, Judy, Janet, Blair and Donna (and all my other loving sisters):
So much love being sent your way for all your kindness, support and caring. I've got sweaty palms, loose bowels, and just downed half an ativan (I have to drive). My mom will be with me and I will let you all know the results later. God bless you all, and thank you so much again, you are all the best support system any human being could ever hope to have.
Much love,
Linda ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: Lillie
Date Posted: Jan 18 2012 at 8:36am
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Dear Linda,
I'm praying for you today. God Bless, Lillie ------------- Dx 6/06 age 65,IDC-TNBC Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED |
Posted By: Genie
Date Posted: Jan 18 2012 at 9:11am
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Linda, Prayers & loving thoughts coming your way. Hugs, Genie ------------- DX 3/10/08 at age 67, IDC. Stage 1, Grade 3, 1.5 cm. KI-67 99% at MX . Bilateral mastectomy 4/1/08 Node-, BRCA 1/2-,BARD1+, TX:Cytoxan/Taxotere x4,3 in family with TNBC |
Posted By: K in Sugar Land
Date Posted: Jan 18 2012 at 9:11am
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Been praying for you for several days Linda, and I'm thinking about you this morning. Lots of good wishes being sent your way. ------------- Dx IDC TNBC MDA2/11 age 51 T2N0M0 Grd 3 4.8cm BRCA- vitD22 Taxol 12wk FAC once 3 wk for 12 wk Complete chemo8/11 Tumor not seen on scans Lumpsurgery 0/4 nodes9/11 pCR 30rads done11/11 NED vitD3903/12 |
Posted By: BamaRachel
Date Posted: Jan 18 2012 at 1:15pm
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Praying for a good report today, Linda.
------------- DX 7/5/11, TN Invas; Lump w/clear marg., 7/21/11; Stage 2A. Grade 3, 2.6 c; 0/6 nodes; TX 8/22/11 4DD E/C; 4Taxotere; Chemo ended 1/3/12; 33 Radiation Treatments, ended 3/15/12. |
Posted By: denise07
Date Posted: Jan 18 2012 at 2:19pm
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Linda,
Praying for a clean report today. ------------- DX Idc 10/07,st2,gr3,2/6 lymphnodes |
Posted By: mindy555
Date Posted: Jan 18 2012 at 4:08pm
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Prayers continue, Linda.. Mindy ------------- Dx July 2011 56 yo Stage I IDC,TN,Grade 3 Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia Daughter also BRCA1+ Mass grew on Taxol FEC 6x better BMX 3/19/12 pCR NED BSO 6/2012 |
Posted By: Wade
Date Posted: Jan 18 2012 at 4:31pm
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Linda, Here's hoping your meeting went well today... Best regards, Wade ------------- Wife DX 5/2011@52 2.5x3.1cm;6/2011 DD A/C 4x,Abraxane 4x; Lumpectomy, SN biopsy 10/2011; 10/27/2011 NED; Rads start 11-22-2011, Rads fin 1-11-2012; 10-2013 NED; 07-18-2014 NED; November 2018 NED |
Posted By: LRM216
Date Posted: Jan 18 2012 at 6:09pm
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I'm back, and again, a million thanks to all of you. The kindness and caring you have all given me will stay in my heart forever, and that is a promise. I do not have any gynocologic cancer or tumors. What I do have is in the left adnexal region (which all previous tests have shown) is a capsulated small pocket of fluid that he feels may have come from the fallopian tube on that side. There are no growths,masses, etc. and nothing on the ovaries, thank God. He suggests that I have another sonargram and TV in four months (May 21st) and if it has grown any larger in fluid, he will remove it laproscopically. If it remains the same size, it is my call as to whether or not I want to continue with 4 month sonargrams or have him remove it then. I will choose to have him remove it after the next sonargram whether it changes or not.
He then told me to "look in his face" which I did (not knowing where he was going with that) - he asked me if his face looked worried, as he smiled gently at me. I responded no, it did not - and he then said "good - because I am not the least bit worried about the next thing I am going to mention to you." Ummm - I'm sitting there not knowing what the heck is coming next, when he mentions that because I live in the day and age of such accurate and acute testing, it will pick up many things that none of us would know of otherwise. Apparently a small sclerotic lesion lit up on my lower spine, but he feels that it is either arthritis or just normal wear and tear for a 60+ aged person. But because it showed up, he had to report it, and he does want a full body bone scan to make sure it is what he suspects it is. I have had some lower back pain off and on for years - many years - that only occurs when I am not sitting correctly at my computer (which I am on at work/8 hrs, and at home at least 3 hrs -each and every day -including weekends) - or when I have been on my feet all day, such as Saturday shopping with my 16 yr. old grand, lol! It always goes away as soon as I sit down. So I am not going to allow myself to go through what I did with this round and destroy myself emotionally. Not that I want bone cancer, of course I don't, and I really don't feel that will be what it is, but should it prove to be - I think I'd rather combat that then an organ spread. So, I will have the bone scan as soon as his office sets it up with insurance (boy, my insurance co. must be loving me) and will let you all know how that comes out. But in the meantime, I feel a thousand lbs. lighter from all the fear I've been carrying.
You all mean so very much to me, and I send you all my love and thanks,
Linda ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: mindy555
Date Posted: Jan 18 2012 at 6:13pm
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AMEN, Linda!!!
------------- Dx July 2011 56 yo Stage I IDC,TN,Grade 3 Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia Daughter also BRCA1+ Mass grew on Taxol FEC 6x better BMX 3/19/12 pCR NED BSO 6/2012 |
Posted By: denise07
Date Posted: Jan 18 2012 at 6:20pm
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Linda,
I am so thrilled with your results I could cry probably will, I did feel very positive about this from the start and believe me I have not been very positive about much since I heard the words cancer for myself.Please let us know when you will have your bone scan fill positive about that also as always I will be praying for you. Thank god.
Hugs,
Denise  ------------- DX Idc 10/07,st2,gr3,2/6 lymphnodes |
Posted By: LRM216
Date Posted: Jan 18 2012 at 6:31pm
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So wonderful of you, Denise, and yes, I surely will let you know how I make out with the bone scan. I really appreciate your feeling positive about this one too! I'll glad take that positivity! Love,
Linda
------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: LRM216
Date Posted: Jan 18 2012 at 6:32pm
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Hugs to you, Mindy!
Love,
Linda ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: 123Donna
Date Posted: Jan 18 2012 at 6:40pm
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Linda, I have a BIG smile on my face right now! So happy for you. Hugs, Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: cheeks
Date Posted: Jan 18 2012 at 6:46pm
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Linda, Fantastic news! Blair ------------- Lump found 11/08 DX: 2/09 @52 TNBC L. Mast. 3/26/09, SN-, BRCA-, 4.5 cm (post surgical)T2NOMO Chemo: 4/09-10/09 Taxol x 12, A/C x 4, No rad.No recon. NED 1/17. New Primary right breast TN, 2/2018. |
Posted By: rigatonismom
Date Posted: Jan 18 2012 at 6:55pm
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Hi Linda, Glad for your good news. Sometimes we just can't help going to that place. I'm glad you are not going to let yourself go there this time. Nita ------------- DX 09/10 TNBC Stage3c, grade3, Tumor 2.7cm, chemo started 9/29/10, AC x4, Taxol x12, lumpectomy 4/11/11-tumor .6cm, 3+/22 nodes, radiation x 30 finished 6/30/11.Clinical Trial Cisplatin,PARP 8/23/11 |
Posted By: Grateful for today
Date Posted: Jan 18 2012 at 9:11pm
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Linda,
What good news.........and may good news continue to always be yours. Lots of love and hugs.......and pleasant dreams tonight! Grateful for today............Judy |
Posted By: LRM216
Date Posted: Jan 18 2012 at 9:23pm
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Sending all my love and gratitude to each of you! Thank you, and no, I'm not going down that dark ugly road with this next test, I promise!
hugs to all,
Linda ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: hhhh
Date Posted: Jan 18 2012 at 10:35pm
Linda congrats!!! I'm so happy to hear about the b9 results. Truly so so happy  . Good luck with the bone scan, I'll check back in to hear the results and my thoughts r with you. Your dr sounds like a real gem. Have a restful night sleep today, u deserve it!------------- Daughter of one of the most amazing women in the world... she was diagnosed 8/2010, had lumpectomy, TAC X 6, rads. 52 yrs, stage 2A (3cm, no nodes), triple neg, grade 3 |
Posted By: Genie
Date Posted: Jan 18 2012 at 11:47pm
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Linda, So happy to hear your news! Thank you, Jesus, for this good news for Linda. Hugs, Genie ------------- DX 3/10/08 at age 67, IDC. Stage 1, Grade 3, 1.5 cm. KI-67 99% at MX . Bilateral mastectomy 4/1/08 Node-, BRCA 1/2-,BARD1+, TX:Cytoxan/Taxotere x4,3 in family with TNBC |
Posted By: mitymuffin
Date Posted: Jan 19 2012 at 6:49am
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Linda, I'm so happy for you! When I woke up this morning, the first thing I did was look for your results. This is a relief for all of us. Remember, I recently had a bone scan because of persistent pains in my ribs and spine, and it was osteoarthritis. I'm betting you will have the same. Susan ------------- Diag. Triple neg. 4/23/10 Stage IIB, 3.2cm, grade 3, 1/11 lymph nodes, lumpectomy 4/23/10, AC + T + Avastin, clinical trial 5103, Rads, age 59 |
Posted By: cheeks
Date Posted: Jan 19 2012 at 8:17am
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Linda, I would also like to add that my PET in December showed areas of uptake in my spine so an MRI was ordered afterwards (testing was done for a few reasons - pain in hip and lower back, increased markers on routine blood work). I had a total meltdown - turned out to be arthritis in 3 different areas and a thinning disc. Positive thoughts for your testing, Blair ------------- Lump found 11/08 DX: 2/09 @52 TNBC L. Mast. 3/26/09, SN-, BRCA-, 4.5 cm (post surgical)T2NOMO Chemo: 4/09-10/09 Taxol x 12, A/C x 4, No rad.No recon. NED 1/17. New Primary right breast TN, 2/2018. |
Posted By: debB
Date Posted: Jan 19 2012 at 10:36am
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Linda,
So very, very glad to hear your news! What an ordeal you have been through the last few weeks. With what we have all been through, I think all of us would go down that very same road. And that doc sounds absolutely wonderful! So glad there was a rainbow at the end for you!! Deb ------------- Dx 4/29/11, 46 yrs old, 3.9 cm tumor, Stg 2 Grade 3 chemo 4 rounds DD AC, 12 weekly taxol, finish. Lumpectomy, 2mm residual tumor. 37 rounds rads completed. Cisplatin/PARP trial |
Posted By: LRM216
Date Posted: Jan 19 2012 at 3:28pm
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Much thanks to all of you for all the positive thoughts and wishes. I am greatly relieved. Hopefully, my results will be good on the bone scan too, and am sure glad that those of you that recently had scans, also received such good news! Yeah to arthritis!!!!!
Love to all,
Linda ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: janet c.
Date Posted: Jan 19 2012 at 7:50pm
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So happy for you Linda! I will pray for a good bone scan.
Janet ------------- dx 12/08 @47yrs.old TNBC stage 2a grade 3, 2.1cm. partial mastectomy sentinal node negative BRACA negative Cytocan/Taxatere x4 radiation 36 or 38rounds |
Posted By: LRM216
Date Posted: Jan 19 2012 at 8:22pm
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Thank you, Janet, it's much appreciated.
Hugs,
Linda ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: Marlaina816
Date Posted: Jan 19 2012 at 8:50pm
| So glad everything turned out alright. |
Posted By: christina1961
Date Posted: Jan 20 2012 at 1:15am
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Linda, I am so glad that you got good news! Your doctor does sound like a wonderful person, too. Lots of love and support, Christina ------------- 2.5 cm TNBC, BRCA-, diag. 2/11, neoadj chemotherapy, uni MX, y2cm,2/16 nodes, RCBII, tumor retested 5-10%ER+,PR-,Her2-, rads, clin trial eribulin 10/11-2/12, tamox. |
Posted By: LRM216
Date Posted: Jan 20 2012 at 7:07am
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Thank you! I find out today when my bone scan for the "sclerotic" spot on lower spine is. Why is it that when they mention something to you - you suddenly start to feel it more???? Hoping it's just bone degeneration/wear and tear and nothing more. The power of suggestion, it's so strong. Too bad I don't seem to have the ability to channel that power into positive thoughts instead of negative! I'll find out soon enough. Today I have my regular 4 month appt. with breast onc. Doctors, doctors and more doctors - and they expect us to be positive all the while. Oh how I wish!
Wishing everyone nothing but the best,
Love,
Linda ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: LRM216
Date Posted: Jan 26 2012 at 4:25pm
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BONE SCAN CLEAR! Many, many thanks, again, to all of you, for holding my hand and keeping me a whole heck of alot calmer than I would ever have been able to be on my own.
Love you all,
Linda
------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |