Feeling jittery, could use some good wishes.... |
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123Donna 
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Joined: Aug 24 2009 Location: St. Louis, MO Status: Offline Points: 13510 |
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 Posted: Jan 04 2012 at 8:29pm |
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Linda,
It sounds like you have a good plan. Now try to breathe and relax a little bit (easier said than done). Hugs, Donna
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
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mindy555
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Joined: Aug 13 2011 Location: Oklahoma Status: Offline Points: 980 |
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Posted: Jan 04 2012 at 11:56pm |
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Wishing you the best of luck, Linda. You're in my thoughts and prayers. Like Donna said.. now breathe and relax a bit. I bet it all turns out fine. xxxx
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Dx July 2011 56 yo
Stage I IDC,TN,Grade 3 Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia Daughter also BRCA1+ Mass grew on Taxol FEC 6x better BMX 3/19/12 pCR NED BSO 6/2012 |
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Lillie
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Joined: Jul 10 2009 Location: Eastern NC Status: Offline Points: 3616 |
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Posted: Jan 05 2012 at 11:23am |
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Dear Linda,
73 is definitely not old, just wise. I will be 71 on Monday the 8th and I am definitely not old???? Praying for a good outcome to all you are experiencing. God Bless, Lillie |
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Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED |
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christina1961
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Joined: Feb 08 2011 Status: Offline Points: 165 |
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Posted: Jan 05 2012 at 11:27am |
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Linda,
It sounds like you have a good doctor in place. I think experience matters most! I am sending you positive thoughts and support all the way! Love, Christina
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2.5 cm TNBC, BRCA-, diag. 2/11, neoadj chemotherapy, uni MX, y2cm,2/16 nodes, RCBII, tumor retested 5-10%ER+,PR-,Her2-, rads, clin trial eribulin 10/11-2/12, tamox.
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LRM216
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Joined: Mar 18 2009 Location: Marietta, GA Status: Offline Points: 1196 |
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Posted: Jan 06 2012 at 5:17pm |
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Posting to let you all know that I saw the gynocologic oncologist today, and after going over all of my testing results and scans over the past 7 months, and a rigorous exam of his own, he does not feel that I have a problem. He ruled out hysterectomy and even an exploratory, as he doesn't feel either is necessary. My CA-125 was normal, as was my CEA. Since he cannot zero in on just why there is a small amount of fluid in my pelvis, not enough to be concerned about in his opinion, and because of my TN status, he has scheduled me for a CT next friday of the abdomen, rectal area and pelvis as he feels the CT is very definitive in what it shows. After that is done and the results are in, he will meet with me to go over it. He feels very optimistic about the situation, so I am going to hold onto that. Of course, we all know that scans can always surprise us, and I'm hoping that will not be the case here, but will be able to leave this all behind me once they are done and hopefully show nothing, as he suspects. A very heartfelt thank you to each and every one of you for being there for me. Words cannot describe how much all of your posts have helped me.
Love,
Linda
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Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
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HappyGoLucky
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Joined: Apr 22 2009 Location: New Jersey Status: Offline Points: 454 |
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Posted: Jan 06 2012 at 6:52pm |
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Linda Thats so wonderful to hear.
Happy for you, Karen
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2/2009 7cm tumor, sent nod. pos. Lumpectomy 3/19/09,a/c dose dense+avastin clinical trial, taxol avastin stopped with pneumonia. 33 Rads 01/2010 ~ reccur 2011 supraclav.and internal mammary nodes. rad
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Genie
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Joined: Apr 30 2008 Location: San Antonio Status: Offline Points: 390 |
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Posted: Jan 06 2012 at 11:11pm |
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Linda, that is good news. You will still be in my thoughts & prayers next Friday for good results from the CT.
Love from Texas. Genie |
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DX 3/10/08 at age 67, IDC. Stage 1, Grade 3, 1.5 cm.
KI-67 99% at MX . Bilateral mastectomy 4/1/08 Node-, BRCA 1/2-,BARD1+, TX:Cytoxan/Taxotere x4,3 in family with TNBC |
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TracyAMac
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Joined: Aug 01 2010 Location: Toronto, Canada Status: Offline Points: 401 |
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Posted: Jan 07 2012 at 12:20am |
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Linda, I am so happy for that results so far have been good. Keep us posted on the CT result
Genie, any word on your blood test results? Sending you love and good thoughts from Toronto tracy |
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TN&non-TN tumors April/10 Gr3&2;1 metaplastic
Rmast.1/9 nodes w/isolated t.cells Taxotere&Cytoxan x6 Bone cancer 1980 age17;surgery&chemo AC+Methotrexate BRCA-ve On hormone therapy & Metformin Trial |
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mainsailset
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Joined: Jul 27 2008 Location: Washington State Status: Offline Points: 5004 |
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Posted: Jan 07 2012 at 12:30am |
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Doin a Friday Happy Dance here!
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dx 7/08 TN 14x6.5x5.5 cm tumor
3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear |
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Lillie
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Joined: Jul 10 2009 Location: Eastern NC Status: Offline Points: 3616 |
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Posted: Jan 07 2012 at 9:41am |
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{I will be 71 on Monday the 8th and I am definitely not old?????} posted earlier.....
Well, OK, so Monday is not the 8th, it is the 9th. You see all those question marks after my post. Anyhow, Linda is sounds as though the 73 year old doc is very optimistic and leaving no stone unturned. Here is hoping you have total peace of mind soon. God Bless, Lillie |
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Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED |
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LRM216
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Joined: Mar 18 2009 Location: Marietta, GA Status: Offline Points: 1196 |
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Posted: Jan 07 2012 at 10:39am |
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Oh, Lillie, that's funny! And I want to be the first to wish you a very happy birthday with a year of all good things and good health. I'm pushing for 65 myself in February.
Can't say I'm not nervous about the CT next friday, but I do realize that all this goes with the territory - and appears it will for the rest of our lives. I just hate the anxiety that these tests bring on for each of us, and knowing I will have it on a Friday - I have no idea when I will be called to go over the results, so I'm sure I'll have some bumpy days ahead for sure until then. Just hate, hate, hate all this stuff we have to endure and suffer through. But - just have to hang in there and see what happens. Just hope they don't find anything else. I figure he's telling me he can't see any gyno problems, and even though he's not concerned about the amount of fluid in there, he still wants to make sure it's not coming from something else going on elsewhere. Either that or I am the worlds biggest pessimist!
Hope you all have a good weekend,
Linda
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Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
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denise07
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Joined: Jun 26 2010 Location: pa Status: Offline Points: 997 |
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Posted: Jan 07 2012 at 11:43am |
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Linda,
I am so happy that your tests are good so far and I think your ct will be fine also your doctor has to cover all grounds and he is doing a great job. I have had many ct scans and I usually get my results in a day or two if your are having alot of anxiety waiting for thr report I would just call for the results. I know I hate going for all of these test to I have a very difficult time when it comes time for tests so I know how you feel. I will be praying for you and I have a good feeling everything will be fine.
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DX Idc 10/07,st2,gr3,2/6 lymphnodes
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denise07
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Joined: Jun 26 2010 Location: pa Status: Offline Points: 997 |
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Posted: Jan 07 2012 at 11:44am |
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Lillie,
I have to wish you a very healthy happy birthday many more!!!!!!!!
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DX Idc 10/07,st2,gr3,2/6 lymphnodes
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TNBC_in_NS
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Joined: Jul 26 2009 Location: NS Canada Status: Offline Points: 2028 |
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Posted: Jan 07 2012 at 11:44am |
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Oh our dear lovely Linda:
I am so glad your "old" doctor is looking after you so well! You are blessed dear Linda and will be fine with this CT, for that I am sure! We have such a wonderful bunch of ladies and gents on this forum and they are all warriors in support, prayer, and love, so how can we loose with such a wonderful people in our lives....
My prayers will continue for you and all who are having tests, treatments and in transition!
Hugs, Helen in NS
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Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear
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HappyGoLucky
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Joined: Apr 22 2009 Location: New Jersey Status: Offline Points: 454 |
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Posted: Jan 07 2012 at 1:08pm |
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Happy birthday Lillie!
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2/2009 7cm tumor, sent nod. pos. Lumpectomy 3/19/09,a/c dose dense+avastin clinical trial, taxol avastin stopped with pneumonia. 33 Rads 01/2010 ~ reccur 2011 supraclav.and internal mammary nodes. rad
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mindy555
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Joined: Aug 13 2011 Location: Oklahoma Status: Offline Points: 980 |
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Posted: Jan 07 2012 at 7:41pm |
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Linda- So good to hear your doc is confident! Way to go girl!!!!! Sounds from every indication ALL will be A-OK! Happy Dance for you! xoxoxo
Sweet Lillie- Happy Birthday tomorrow!!!!.. and many, many more!!!!! xoxoxox |
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Dx July 2011 56 yo
Stage I IDC,TN,Grade 3 Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia Daughter also BRCA1+ Mass grew on Taxol FEC 6x better BMX 3/19/12 pCR NED BSO 6/2012 |
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mindy555
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Joined: Aug 13 2011 Location: Oklahoma Status: Offline Points: 980 |
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Posted: Jan 07 2012 at 8:00pm |
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Or is it Monday, Lillie?...LOL. Either way, I say start celebrating right this minute.. sort of a Lillie-Gras! And keep celebrating all month if ya want! You're still a young whipper-snapper in my book.
 Linda- We're the same age if you reverse the 2 numbers.  What the heck! Age is overrated. Feeling GOOD is all that counts! |
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Dx July 2011 56 yo
Stage I IDC,TN,Grade 3 Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia Daughter also BRCA1+ Mass grew on Taxol FEC 6x better BMX 3/19/12 pCR NED BSO 6/2012 |
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Lorene
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Joined: Jul 10 2010 Location: Alabama Status: Offline Points: 211 |
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Posted: Jan 10 2012 at 10:55pm |
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Hope your birthday was a happy one, Lillie, and 2012 is a happy, healthy year for you!
God Bless You,
Lorene
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dx10/01@age59,IDC TNBC, St.IIB,Gr3,2.5cm,3+nodes, epirubicin,5FU,cytoxan,33Rads,No recurrence, 2018
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Grateful for today
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Joined: Sep 21 2011 Location: U.S.A. Status: Offline Points: 1835 |
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Posted: Jan 11 2012 at 12:03am |
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Hi Linda,
You posted on other forum on 1/9/12 7:55pm" "............ As I've mentioned, I have my abdominal/pelvic CT scheduled for this Friday (the 13th!), and called today to find out when I will see him for the results of same. My appt is 10:30 a.m. on Wednesday. Ugh! ................" Would you be planning to wait until Wed appt or are you thinking of asking for results sooner? Don't know if it would be a possibility....or if it would be helpful......if any chance your regular gyn MD could see you sooner and give you the results? Just a thought. Sometimes it easier and less stressful to leave things as currently planned. Sometimes things can be adapted for a better plan. You know what would be more helpful to you. Of course, speaking with the gyn onc Friday or Monday would be best...........so maybe you could also ask about that! I usually feel all they can say is no. (Again, it could be better to leave planned Wed appt as is) With positive, calming and hopeful thoughts for a good report, Grateful for today...............Judy |
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LRM216
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Joined: Mar 18 2009 Location: Marietta, GA Status: Offline Points: 1196 |
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Posted: Jan 11 2012 at 9:15am |
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Judy:
While I hate the the time elapsed between the scan and the actual appt. time with Onc- gyno, I think I am just going to leave it at that. This guy is a real big-wig, and since he ordered the scan and not my gyno, I don't want to put her in an uncomfortable position. I called the Scan Dept at the hospital and they explained that he probably wouldn't have the report until Saturday, or maybe even Sunday. His office explained to me that he then goes over the entire scan himself, despite what the report shows or tells, he will go over everything with a fine tooth comb. I guess that's why he is the Head of the Ovarian Cancer Research Center at Georgia Tech, professor at Emory, and is the founder and head of the Womens gynocological cancer center at Northside Hospital as well. Just don't want to step on any toes without yet knowing what direction I'm heading. Also, Monday down here in Ga is Martin Luther King day and is a recognized holiday by just about everyone. The doctor has surgeries on Tuesday, so Weds. is the earliest I can meet with him. Guess I'll just go with that. But I sure will explain to him how harrowing the wait is when a cancer patient must wait days sitting on the edge.
Thanks for the suggestions though,
Hugs,
Linda
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Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
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