F/U Tests Coming Up Soon! |
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123Donna 
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Joined: Aug 24 2009 Location: St. Louis, MO Status: Offline Points: 13510 |
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 Posted: Oct 22 2010 at 2:27pm |
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Helen,
It sounds like you have a plan. Sometimes sleeping on things helps our mind work through the issues and come up with a clear plan of action. Keep up with the persistence and keep calling every day until you are heard. Did they ever find out what happened to your BRCA results? Donna |
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
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denise07
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Joined: Jun 26 2010 Location: pa Status: Offline Points: 997 |
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Posted: Oct 22 2010 at 3:59pm |
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Donna, Any news on your pet scan?
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123Donna
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Joined: Aug 24 2009 Location: St. Louis, MO Status: Offline Points: 13510 |
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Posted: Oct 22 2010 at 4:08pm |
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Denise,
No, not yet. I have my appointment with my onc next Wednesday. I'll get the results for sure then, unless they call me earlier. For some reason, I don't want to call and find out. Donna |
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
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denise07
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Joined: Jun 26 2010 Location: pa Status: Offline Points: 997 |
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Posted: Oct 22 2010 at 5:04pm |
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Donna, IF you dont mind me asking why did yiu need a pet scan is it routine?
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LRM216
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Joined: Mar 18 2009 Location: Marietta, GA Status: Offline Points: 1196 |
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Posted: Oct 22 2010 at 6:17pm |
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Happy, happy news, Mainy! So glad to hear it was clear. Donna, I know exactly what you mean by not wanting to call! We all do!!! Still sending all those positive thoughts out for you.
Helen, please push for a breast MRI if possible. That's the gold test for anything a mammo or US might miss. Hoping nothing is there, as was suggested, but gosh, you sure do need peace of mind about this.
Hugs to all of you,
Linda
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Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
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123Donna
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Joined: Aug 24 2009 Location: St. Louis, MO Status: Offline Points: 13510 |
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Posted: Oct 22 2010 at 6:42pm |
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Denise07,
My onc wanted a baseline test. |
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
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mainsailset
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Joined: Jul 27 2008 Location: Washington State Status: Offline Points: 5004 |
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Posted: Oct 22 2010 at 7:14pm |
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Helen, I am so proud of you!
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dx 7/08 TN 14x6.5x5.5 cm tumor
3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear |
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Oct 22 2010 at 7:27pm |
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Mainy, fabulous news!
Helen sending hugs, thinking of you and hoping you get this matter straightened out to your satisfaction..
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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unklez
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Joined: Sep 05 2009 Location: New Jersey Status: Offline Points: 1000 |
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Posted: Oct 22 2010 at 9:33pm |
Excellent news Mainy. |
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Wife Dx: Jul/09. Age: 37. Size: 3cm. BRCA: -ve. Lumpectomy: Aug/09. Micromet 1/9 node. Chemo Start: Sep/09. E5103. DD ACB-> DD Abraxane (Taxol reaction). Zometa (S0307). Canadian Fraction Rads.
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denise07
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Joined: Jun 26 2010 Location: pa Status: Offline Points: 997 |
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Posted: Oct 27 2010 at 1:49pm |
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Donna, Any news on your pet scan?
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dmwolf
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Joined: Jan 22 2009 Location: Berkeley, CA Status: Offline Points: 3619 |
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Posted: Oct 27 2010 at 1:51pm |
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Congrats, Mainy!!!
love, d |
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DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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123Donna
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Joined: Aug 24 2009 Location: St. Louis, MO Status: Offline Points: 13510 |
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Posted: Oct 27 2010 at 3:26pm |
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Well I visited my onc this morning and there was good news and bad? news. Everything looked fine except for a small indeterminate focus in the right anterior chest wall. It was about a 1.5 SUV uptake. My onc doesn't think it's anything serious, but we've scheduled an MRI for next Tuesday. The uptake matched the blood pool in the mediastinal area. It could be many things including a leaking implant (sure hope not). Nothing else showed anywhere in the body so I'm very happy about that. This indeterminate focus is a little confusing as to what it is, but I'm glad I'll be getting the MRI to let us know for sure.
Donna |
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
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dmwolf
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Joined: Jan 22 2009 Location: Berkeley, CA Status: Offline Points: 3619 |
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Posted: Oct 27 2010 at 3:30pm |
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Hi, Donna. If it is a leaking implant, I guess it is better to find out now. Otherwise, I am afraid you are in false positive land. Scan leads to worry and more scans leads to....
love, d |
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DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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LRM216
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Joined: Mar 18 2009 Location: Marietta, GA Status: Offline Points: 1196 |
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Posted: Oct 27 2010 at 3:32pm |
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Happy to hear the good news and we will just keep marching right along with you assuming that all will be good with the results of the MRI too. |
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Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
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Debris
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Joined: Jun 07 2010 Location: Forsyth,Georgia Status: Offline Points: 756 |
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Posted: Oct 27 2010 at 3:54pm |
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Missed the posting, but congratulations, Mainy! Way to GO!
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4/12 Xeloda/Tykerb
2 Carboplatin 12/11 Dx IA 9 Gemzar/Taxotere Dx IBC:FEC 5 Ixempra/Sprycel 2 25 Rad 10/10 BRCA1-/2suv 9 NED 6 Stg4 Grd3 many nodes no Sx/Rad. Taxol/Avastin 06/08 Dx DCIS 0/SN Rads/AIs |
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TNBC_in_NS
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Joined: Jul 26 2009 Location: NS Canada Status: Offline Points: 2028 |
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Posted: Oct 27 2010 at 7:03pm |
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Donna:
Here's to a false positive!!! I do hope that the implant isn't leaking!!!
Glad you are getting the MRI, it will put things into perspective for ya!
You are lucky your physician is right on top of this with testing, etc.!
Love Helen in NS
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Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear
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mainsailset
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Joined: Jul 27 2008 Location: Washington State Status: Offline Points: 5004 |
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Posted: Oct 27 2010 at 7:41pm |
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I'm going to color this one great news Donna, the MRI should give a specific detail which I'm sure is what you really want rather than no worries from even a great doctor. Helen, what's going on with you, have you gotten anywhere with your results on the next step?
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dx 7/08 TN 14x6.5x5.5 cm tumor
3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear |
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123Donna
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Joined: Aug 24 2009 Location: St. Louis, MO Status: Offline Points: 13510 |
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Posted: Oct 27 2010 at 8:10pm |
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Mainy,
Thanks, I'm keeping my fingers (and toes) crossed. I'm hoping this is all just a false alarm. I'm very thankful my onc is on top of things and has ordered an MRI. We should know for sure next week. I hope to be putting the gown back on (an maybe the tiara)! Helen, Can you get an MRI scheduled for your lump? Did they ever find your BRCA results? Donna |
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
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Morgan513
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Joined: Sep 06 2009 Status: Offline Points: 25 |
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Posted: Oct 27 2010 at 8:15pm |
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Good luck Donna! I'm sure everything will be fine and it is a false alarm!
Lorrie
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Lorrie,DX 04/08, Stage 2A Medullary, N0, M0; Lumpectomy, Chemo (TC x4) and Radiation. Enrolled in Bisphosphonate Phase III study.
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TNBC_in_NS
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Joined: Jul 26 2009 Location: NS Canada Status: Offline Points: 2028 |
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Posted: Oct 27 2010 at 9:04pm |
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Update:
Yesterday, I have been in touch with the Geneticist here, she says she will contact the lab to find out what the hold up is. ???
Yesterday, I had my diagnostics put on CD to take for second opinion when I hear back from Genetics. Radiologist documented he could not see lump on U/S, but I could palpate it. Return in six months for f/u.
Tomorrow, I will call to see when I can get into Dr. Dent and go from there.
I have not heard back from my boss about return to work???
Only one step ahead - still waiting on Genetics.
Today, realizing that I am only one out of the millions who are trying to stay alive so the urgency is lessened but the need is still very imminent! Was so relieved to hear about Connie, it gave me some calmness....
My daughter is ready to roll when I am....
God Bless her and all of you,
Love h
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Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear
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