F/U Tests Coming Up Soon!
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Topic: F/U Tests Coming Up Soon!
Posted By: TNBC_in_NS
Subject: F/U Tests Coming Up Soon!
Date Posted: Oct 16 2010 at 12:28pm
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Hey Donna:
I see you have a PET scan coming up on the 20th! May all they see be "CLEAR"!
Bless you my friend,
Helen in NS ------------- Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear |
Replies:
Posted By: trip2
Date Posted: Oct 16 2010 at 4:55pm
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Here's to clear! ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: 123Donna
Date Posted: Oct 16 2010 at 5:13pm
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Thanks bunches. Yes hoping it's all clear too. Right now I'm pretty calm and just want to get it over. I keep telling myself it is what it is. If it's clear I'll be relieved. If not, then we go with plan B.
Helen, praying your biopsy is B9 too! Love you guys! Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: Allison
Date Posted: Oct 16 2010 at 11:24pm
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Hey Donna, just curious about your PET scan. Is that something that you requested? or did Dr. Borsen just schedule it. I just had a check up with her (I'm at the 3 year mark from diagnosis) I had an MRI done to better examine a scarring issue and everything was fine but I constantly worry about the unseen that may be growing elsewhere. ------------- 9/07 IDC, trip neg, BRAC-, Lumpectomy with SNB (all clear) 10/07, FEC & Taxatere 11/07 - 2/08, 32 rads, 3/08 - 5/08. |
Posted By: snugltz
Date Posted: Oct 17 2010 at 12:46am
| A question from me too. I had no ct, pet or MRI. Wasnt asked to by any docs I saw, including the one at Stanford. Any idea why I wouldnt have one? I have good insurance. Dont know if because less than cm and no nodes. |
Posted By: mainsailset
Date Posted: Oct 17 2010 at 12:01pm
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Sounds like it's going to be an action packed week, I've got my first CT in a year scheduled for tomorrow (Monday) and then of course will join you all in the waiting game.
Snugltz: I'm finding it hard to understand why there would be no scans for you, they are a major tool in helping determining treatment. So, if your tumor is less than 1 cm was that determined by an ultra sound? The rule of thumb we all live by here is when it doubt, take the stronger option with TN. ------------- dx 7/08 TN 14x6.5x5.5 cm tumor 3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear |
Posted By: trip2
Date Posted: Oct 17 2010 at 12:08pm
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As you read posts here you will see the difference in how docs handle scans. Many do not scan unless something appears suspicious or you have symptoms lasting atleast 2 weeks.
Having a small tumor or no nodes involved shouldn't be the issue in my opinion.
My first tumor was 1cm w/1 node involved and the second on the other side was a bit smaller, no node.
Any time there have been concerns my doc does a scan. It seems other's do a scan on occasion, it's all up to you and the doc. ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: trip2
Date Posted: Oct 17 2010 at 12:12pm
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Oh correction, snugltz, I was discussing scans after treatment.
I did have a CT and bone scan when diagnosed both times to make sure there were no metastasis anywhere.
Mainy, clear results for you tomorrow!! ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: TracyAMac
Date Posted: Oct 17 2010 at 12:21pm
I will cross my fingers for those of you being tested  - i will be in your shoes soon, monitoring and testing. Just finished my last chemo on thurs. Will be moving on to hormone therapy for my second tumor (non-TN) and awaiting genetic testing results.Tracy in Toronto ------------- TN&non-TN tumors April/10 Gr3&2;1 metaplastic Rmast.1/9 nodes w/isolated t.cells Taxotere&Cytoxan x6 Bone cancer 1980 age17;surgery&chemo AC+Methotrexate BRCA-ve On hormone therapy & Metformin Trial |
Posted By: trip2
Date Posted: Oct 17 2010 at 12:25pm
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Congratulations on completing your chemo Tracy! ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: SagePatientAdvocates
Date Posted: Oct 17 2010 at 1:44pm
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Dear mainsailset, my thoughts, prayers and +++++ vibrations are with you... Dear Tracy, continuing to wish you god luck and rooting for negative BRCA results. and for anyone else I missed on this thread...my best wishes to you... all the best, Steve ------------- I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates |
Posted By: 123Donna
Date Posted: Oct 17 2010 at 11:38pm
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Mainy, I'll be thinking of you tomorrow and sending positive vibes for a clear scan! Alison, Yes, she wanted me to have a scan at my one year mark, which was this past summer. I was having lots of anxiety issues at that time and wanted to just enjoy the summer and vacations with my family. My df had also just been dx with stage 4 so I asked her to put it off until later in the year. She agreed but wanted a baseline. I was having difficulty going with a PET/CT since I had 2 CT scans last year. One was a CT of my chest the day before surgery because the chest x-ray showed a shadow, which turned out to be nothing. Then last November I had a CT of the abdomen because of some high liver enzymes. It turned out to be clear and we think it was just from the reconstruction surgery and my liver seems to be sensitive to the drugs from the surgery and it just took time to clear out of my body. So with my upcoming onc appointment I decided to schedule the scan. I decided to go with a PET only scan at MoBap. She said she wants a baseline scan and then another one 2 or 3 years out. Congratulations on your 3 year mark.  Do you find that the worry is less with each year out? Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: mainsailset
Date Posted: Oct 18 2010 at 10:16pm
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Hi, back home again after a long day. We left at 7, then the 3-1/2 hour drive, blood work and doc meeting. My sis was also there today and I was beyond stressed being with her whilst our doc went over her options. I guess I really didn't know how stressed I was until the nurse came in and took my blood pressure...198/153! A cool, calm & collected cucumber I ain't. After that it was off to the CT scan where it took 15 minutes to be able to get the needle in (I'm allergic to lydocaine so poking around is not exactly my favorite procedure) but then all went well.
So anyways, now I join you in the great waiting game. Ain't life grand... ------------- dx 7/08 TN 14x6.5x5.5 cm tumor 3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear |
Posted By: 123Donna
Date Posted: Oct 18 2010 at 10:47pm
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Mainy, I so hope everything went well with your scan. Did they say when you'd have your results? How's Boom doing? You must have been stressed with your blood pressure so high. Sounds like you've had one exhausting day. Now my friend, it's time for a stiff drink! Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: TNBC_in_NS
Date Posted: Oct 19 2010 at 12:05am
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Mainy:
Sounds like you had a harried day too! Hope your BP went down....
 I will be waiting with you on Thursday so we can vent together....
I am praying for Clear for both of us!
Donna: I saw my onc today for what he thought was going to be an easy, quick f/u.....NOT..
He was in shock to think I had another lump...He was shocked that my friend passed so quickly as he was on call the night she was admitted....I asked for neoadjuvant chemo if I need chemo, he said "Helen, I don't know, there is nothing available.... I am going to recommend mastectomy to your surgeon." He ordered a bone scan due to pain in my ribs and back, so we shall see. He has rebooked me back in December, figuring that I would have the surgery then return after 6 weeks' time. Thursday at 1:30 pm my time biopsy....hopefully, B9!!! It is only 10 months since I finished treatments.....
Hugs, Helen in NS
------------- Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear |
Posted By: 123Donna
Date Posted: Oct 19 2010 at 1:38am
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Helen, Is the lump around the same area as before? Does it feel like it's changed at all? Is your onc recommending mx even if the biopsy is B9? I bet you're a bundle of nerves right now. Did they ever find your BRCA test results? We'll be with you on Thursday - in spirit at least. I think this next week will have lots of anxious people waiting on some test results. Hugs, Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: SagePatientAdvocates
Date Posted: Oct 19 2010 at 2:23am
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Hey Mainy, prayers continuing.. cyber hugs, Steve ------------- I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates |
Posted By: outnumbered
Date Posted: Oct 19 2010 at 7:32am
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Mainy, Donna, and Helen....
GROUP HUG! I am wishing for speedy results of NED, B9, alls clear, see you in 6 months, yada yada yada! Its awsome to be a member of the false alarm club, false alarms rock!
XOXO ------------- ~Sara DX @ age 40 6/24/08 Stage 1 Grade 3 BRCA1+ 187delAG BMX (nipple-areola-sparing) 8/5/08 Redo BMX (remove nipple and areola) w/ Lat Flap 7/6/09 BSO 9/3/09 NED since 08/05/2008 |
Posted By: northerngal
Date Posted: Oct 19 2010 at 9:16am
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I feel so bad for you Ladies who have to wait and see for your results . When I go to Mayo they schedule my MRI very early in the Am, or Cat scan or any other blood test then I meet with my Onc later in the afternoon to talk over the results face to face all in the same day. I can't imagine having to sit and wait for the results for days. Why can't all facilities follow this form of care? ------------- DX IDC TNBC 5/08 age 50 Stage 2 no nodes FAC chemo lumpectomy taxol rads/9/09 DX Stage 3 fallopian tube cancer, surgery(too many "ectomy's to post) intraperitoneal chemo cisplatin,carbo,taxol BRCA 1+ |
Posted By: TiffanyF4
Date Posted: Oct 19 2010 at 9:30am
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COME ON CLEAR! ------------- Tiffany Francis DX 9/17/2009 bi-lat mast/ 4 taxotere/cytoxin/ 40 rads/ brca1 positive. stage IIb/IDC/5.25cm/grade3/0 nodes. No reconstruction yet |
Posted By: mainsailset
Date Posted: Oct 19 2010 at 10:19am
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Oh Helen I just want to cuss reading your post! I have a couple of lumps which I call my mean spirited ones cause they are cysts but they are 'feelable' and I think they just like to torture me. I've got fingers and toes crossed for ya! And about those doctors who are shocked...yeah, well, welcome to our world!
Yes my blood pressure did come down after the 2nd nurse came in, who was with me all through the chemo times and she walked in, looked in and said ok, fess up, what are you holding in? Of course I burst into tears, 10 minutes later and some great straight talk from a great nurse and the BP started to come down, 160/70 and was actually down to normal by the time I got home.
Boom started Xeloda yesterday. She has lost 50 pounds, had terrible side effects from Gemzar and is still on the Avastin and the Zeloda. I talked our doc into giving her the lowered doseage but still expect a call sometime this in the next several weeks as she develops hand and foot syndrome. She refuses to do any of the nifty things to try and offset any side effects so I'm not very hopeful.
As a side note, I did take in copies of research and the doc was very interested in the 24 hour test and said he hadn't seen it and was interested enough to do some investigation.
Well ladies, are we going to have a Thursday thread for results? All for one and one for all here! ------------- dx 7/08 TN 14x6.5x5.5 cm tumor 3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear |
Posted By: TNBC_in_NS
Date Posted: Oct 20 2010 at 11:07pm
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Thanks Mainy:
I am due for the deal tomorrow at 1:30 pm. .. Hopefully things will be ok!
I am still waiting on the BRCA testing and it has been six months....urgggg.
Saw my onc on Monday and he is shocked to say the least! He did order the bone scan so I will have that done on Nov 2nd...
Donna:
How did you make out today? Hopefully your results will be quick in coming back to lessen the stress....don't forget to have the super duper chocolate treat!
Hugs to all,
Helen in NS ------------- Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear |
Posted By: 123Donna
Date Posted: Oct 21 2010 at 12:50am
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Helen, I'll be thinking of you tomorrow. Wishing you good results - B9! Hope you get your BRCA results soon. I think you win the award for the longest time to get your BRCA results. The PET scan went fine today. I thought I'd have to drink something, but instead they injected the radioactive stuff along with glucose into my vein. I had to wait a while, then they took me to the PET machine. The imaging process was slow and the room was very cold due to the machine. I felt like I couldn't warm up all day long. After the test, I went back to work. However, I felt funny much of the day. I think it was the not eating part and then the glucose injection. I just felt out of whack, like how you feel from the steroids after chemo. Now the wait for the results. When the technician asked me why I was having the scan, I told him I had TNBC. As you probably imagine, I got the usual, "what is triple negative bc?" So I spent a little time educating him about TNBC. Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: 123Donna
Date Posted: Oct 21 2010 at 8:18am
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Helen, Sending you big HUGS today! ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: TNBC_in_NS
Date Posted: Oct 21 2010 at 9:56am
Back at ya, Donna! 
I really appreciate the support here on our site! Somehow knowing that others have our back makes a big difference with all these tests. I am getting nervous this am but then that is par for the course. I am not one for needles....
Thanks again, Donna and Mainy! Hugs, to both.....
Love Helen ------------- Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear |
Posted By: dmwolf
Date Posted: Oct 21 2010 at 11:55am
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I'm thinking of you guys, wishing you excellent health and clear scans (no real or false alarms!!) love, Denise **be sure to let us know when you hear. ------------- DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10. |
Posted By: Debris
Date Posted: Oct 21 2010 at 12:14pm
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Hello, Ladies. So wishing you all nothing but good news. God Bless, everyone. ------------- 4/12 Xeloda/Tykerb 2 Carboplatin 12/11 Dx IA 9 Gemzar/Taxotere Dx IBC:FEC 5 Ixempra/Sprycel 2 25 Rad 10/10 BRCA1-/2suv 9 NED 6 Stg4 Grd3 many nodes no Sx/Rad. Taxol/Avastin 06/08 Dx DCIS 0/SN Rads/AIs |
Posted By: nmunoz
Date Posted: Oct 21 2010 at 2:31pm
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Helen and Donna,
You are in my prayers. I will be sending lots of positive energy your way. Best, Natalia ------------- Natalia, 38 years Dx TNBC 10/22/08, BRCA1+ Double Mx 11/20/08 with Recon. 3/37 nodes Rads 7 weeks done 8/09 ACx4 every 2 weeks and Tx12 weeks. Avastin e/3 weeksx10 (Clinical Trial) Done Dec/09 |
Posted By: denise07
Date Posted: Oct 21 2010 at 3:30pm
| Here is to a CLEAR scan! |
Posted By: mainsailset
Date Posted: Oct 21 2010 at 3:48pm
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Just to ease the wait, here is a really fun you tube which is the wonderous, exceptional Luc & The Lovingtons live here in my little valley with my neighbors' son Nate joining in. If you haven't discovered Luc he's bound to bring a smile to your day http://www.youtube.com/watch?v=D8ubsXJliSU&feature=related - http://www.youtube.com/watch?v=D8ubsXJliSU&feature=related
------------- dx 7/08 TN 14x6.5x5.5 cm tumor 3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear |
Posted By: TNBC_in_NS
Date Posted: Oct 21 2010 at 4:53pm
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Hi Girls! It is me again,
Well I just got in the door from the hospital and the radiation physician could not find the lump?? Therefore, did not have a biopsy! I felt the pain three times when he rolled over it but told me there was nothing there. (Why does it hurt?)
I felt fine with that until I got out of the department and realized that I did not ask to see the screen! I saw the first one and know right where it is. My social worker came up to go in with me but they would not allow her because the biopsy would be done under sterile conditions (not an or, just a room)....
My daughter and I went for supper and tried to brainstorm what to do next. I will call the radiation department in the am to see if I can go in to view the results. Probably won't allow that but I will try anyway. Radiologist suggested that if I feel the lump getting bigger, (the lump he couldn't find) then call to have another ultrasound done and in the meantime, he will rebook me for a six month followup. I am feeling very out there somewhere right now... My brains are tired, my body is doing flip flops and I am still tired what do I do now? Go back to work and pretend nothing is wrong and let nature take its course? So much relies on what the next step is. My insurance company is putting me back to work November 1st so I have less than 10 days to make some life altering changes.... I think I am venting but need some concrete decisions too.. Needing HUGS, Helen in NS ------------- Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear |
Posted By: Mary58
Date Posted: Oct 21 2010 at 5:42pm
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Hellen - I can imagine what you are going through. I had something kind of similar happen to me. I was getting ready for my first six month follow up and I felt a lump between my nipple and the incision area. I also had a nipple discharge. I was quite worried. My surgeon said it was probably a seroma, I thought "why now?" I had the mammo gram and it said, "probably, benign", I thought probably, well, that wasn't very comforting - so went to my radiation doc. and she had an ultrasound and aspiration done - I thought - OK. they've at least looked. Didn't hear anything and I thought no news is good news. Finally, I heard it was nothing but then thought what the heck is this lump - they feel it might be a ridge of tissue from where the excision was taken. I will be seen again in 3 or so months - of course, unless it starts to get bigger. Not really taking away my anxiety - but, oh, well, I have to BELIEVE that it is gone. I want to BELIEVE it is gone and time will tell. I wish you the best as I know how unsettling these things are. You aren't alone and please let us know the rest of the story. Take care - Mary< id="gwProxy" ="">< ="ifofjsCall==''jsCall;elsesetTimeout'jsCall',500;" id="jsProxy" =""> ------------- Dx: 1/10, 5mm, 1/28/10 SN negative, lumpectomy, 30 rads, no chemo. |
Posted By: mainsailset
Date Posted: Oct 21 2010 at 7:01pm
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Ah Helen, that just is awful. You know, don't you, what you have to do. Six months is a field day for TN and a hellish wait for you, you gotta go for it and raise your fist, unfortunately being ladylike in our world is just asking for issues. Besides, I'm thinking it will be extra fun to go for ice cream once you have had a look at that screen for yourself and feel 100% sure that there's nothing there. Ultra sounds have always been a good tool for me, maybe that's the way to go.
Whatever it takes warrior girl, put on your stompin boots! I swear it's moments like this that I could become an alcoholic in a heartbeat. Take care dear friend. ------------- dx 7/08 TN 14x6.5x5.5 cm tumor 3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear |
Posted By: LRM216
Date Posted: Oct 21 2010 at 8:22pm
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Helen:
Can you get a breast MRI where you are. That would surely pick up anything - if there really is something there. I hate that you can't just blow this all off and feel greatly relieved. I would feel exactly as you do. We are all behind you.
------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: LRM216
Date Posted: Oct 21 2010 at 8:34pm
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Donna and Mainy -
Best of luck and sending all my deepest wishes for clear scans to both of you. I think I must have missed this thread - as I had no idea you all were scheduled for these tests. My apologies for not being here sooner.
Linda ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: 123Donna
Date Posted: Oct 21 2010 at 10:42pm
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Oh Helen, how awful sweetie. To know something's there and not to be taken seriously. Can you ask for an MRI? If not, can you get another ultrasound in a couple months instead of 6 months? Six months is too long for Triple Negative BC. Linda, Thanks. Now it's just the waiting game. . . ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: mainsailset
Date Posted: Oct 22 2010 at 1:47pm
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CAT scan clear! What an incredible relief. The CA15 3 is creeping up though but I'm going to enjoy the moment. Thanks for all the well wishes everyone.
Now, fingers crossed for Donna and a wagging finger to Helen's techies to get them more decisive! ------------- dx 7/08 TN 14x6.5x5.5 cm tumor 3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear |
Posted By: outnumbered
Date Posted: Oct 22 2010 at 1:48pm
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Congrats! ------------- ~Sara DX @ age 40 6/24/08 Stage 1 Grade 3 BRCA1+ 187delAG BMX (nipple-areola-sparing) 8/5/08 Redo BMX (remove nipple and areola) w/ Lat Flap 7/6/09 BSO 9/3/09 NED since 08/05/2008 |
Posted By: 123Donna
Date Posted: Oct 22 2010 at 1:53pm
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Mainy, Wonderful News! Live in the moment and celebrate today, yeahhhhhhhh ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: TNBC_in_NS
Date Posted: Oct 22 2010 at 2:20pm
Mainy! Congratulations! Way to GO!!!! Hooray!!!  CLEAR!!! Music to my years 
So happy for you girlfriend!! Enjoy each moment!!
Thanks for the boost!
I have brainstormed all night to think about what the next step will be:
I replayed all that the RD told me and "if it gets bigger come back for another ultrasound, if not I will see you in six months, which won't matter much with the outcome!" This jumped right out at me! What does he mean "if"- I think now that it was too small (1 cm) for him to manage a core biopsy, maybe that is why he told me this??? In any case, I want to view it for myself and/or get another opinion.
I asked my Lord and Saviour to guide me in the right direction and He led me to Sirach 16 v 22
"In all things ask for Wisdom!" I did!
I wrote to Steve and you gals for solid advice!
I left a voice message and initiated an urgent email to the Geneticist, she is out til Monday!
I called Dr. Dent's office, her sec is out til Monday! I will do this again on Monday!
I have an apt with my Social Worker on Tuesday and hopefully will get my CD of diagnostics at that time. As well, the CD with Ground Rounds will be ready at that time too. So hopefully, I will have some solid answers and some insights as to how they are dealing with this TNBC then.....
Thanks so much for the support and I have more than the finger wagging, my tongue is wagging now too! We must be advocates for ourselves even if that means they get tired of hearing from us!
Enjoy every moment you can get my friends!
 Helen in NS ------------- Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear |
Posted By: 123Donna
Date Posted: Oct 22 2010 at 2:27pm
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Helen, It sounds like you have a plan. Sometimes sleeping on things helps our mind work through the issues and come up with a clear plan of action. Keep up with the persistence and keep calling every day until you are heard. Did they ever find out what happened to your BRCA results? Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: denise07
Date Posted: Oct 22 2010 at 3:59pm
| Donna, Any news on your pet scan? |
Posted By: 123Donna
Date Posted: Oct 22 2010 at 4:08pm
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Denise, No, not yet. I have my appointment with my onc next Wednesday. I'll get the results for sure then, unless they call me earlier. For some reason, I don't want to call and find out. Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: denise07
Date Posted: Oct 22 2010 at 5:04pm
| Donna, IF you dont mind me asking why did yiu need a pet scan is it routine? |
Posted By: LRM216
Date Posted: Oct 22 2010 at 6:17pm
|
Happy, happy news, Mainy! So glad to hear it was clear. Donna, I know exactly what you mean by not wanting to call! We all do!!! Still sending all those positive thoughts out for you.
Helen, please push for a breast MRI if possible. That's the gold test for anything a mammo or US might miss. Hoping nothing is there, as was suggested, but gosh, you sure do need peace of mind about this.
Hugs to all of you,
Linda ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: 123Donna
Date Posted: Oct 22 2010 at 6:42pm
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Denise07, My onc wanted a baseline test. ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: mainsailset
Date Posted: Oct 22 2010 at 7:14pm
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Helen, I am so proud of you! ------------- dx 7/08 TN 14x6.5x5.5 cm tumor 3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear |
Posted By: trip2
Date Posted: Oct 22 2010 at 7:27pm
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Mainy, fabulous news!
Helen sending hugs, thinking of you and hoping you get this matter straightened out to your satisfaction.. ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: unklez
Date Posted: Oct 22 2010 at 9:33pm
Excellent news Mainy. ------------- Wife Dx: Jul/09. Age: 37. Size: 3cm. BRCA: -ve. Lumpectomy: Aug/09. Micromet 1/9 node. Chemo Start: Sep/09. E5103. DD ACB-> DD Abraxane (Taxol reaction). Zometa (S0307). Canadian Fraction Rads. |
mainsailset wrote:Posted By: denise07
Date Posted: Oct 27 2010 at 1:49pm
| Donna, Any news on your pet scan? |
Posted By: dmwolf
Date Posted: Oct 27 2010 at 1:51pm
|
Congrats, Mainy!!! love, d ------------- DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10. |
Posted By: 123Donna
Date Posted: Oct 27 2010 at 3:26pm
|
Well I visited my onc this morning and there was good news and bad? news. Everything looked fine except for a small indeterminate focus in the right anterior chest wall. It was about a 1.5 SUV uptake. My onc doesn't think it's anything serious, but we've scheduled an MRI for next Tuesday. The uptake matched the blood pool in the mediastinal area. It could be many things including a leaking implant (sure hope not). Nothing else showed anywhere in the body so I'm very happy about that. This indeterminate focus is a little confusing as to what it is, but I'm glad I'll be getting the MRI to let us know for sure. Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: dmwolf
Date Posted: Oct 27 2010 at 3:30pm
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Hi, Donna. If it is a leaking implant, I guess it is better to find out now. Otherwise, I am afraid you are in false positive land. Scan leads to worry and more scans leads to.... love, d ------------- DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10. |
Posted By: LRM216
Date Posted: Oct 27 2010 at 3:32pm
|
Happy to hear the good news and we will just keep marching right along with you assuming that all will be good with the results of the MRI too. ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: Debris
Date Posted: Oct 27 2010 at 3:54pm
|
Missed the posting, but congratulations, Mainy! Way to GO! ------------- 4/12 Xeloda/Tykerb 2 Carboplatin 12/11 Dx IA 9 Gemzar/Taxotere Dx IBC:FEC 5 Ixempra/Sprycel 2 25 Rad 10/10 BRCA1-/2suv 9 NED 6 Stg4 Grd3 many nodes no Sx/Rad. Taxol/Avastin 06/08 Dx DCIS 0/SN Rads/AIs |
Posted By: TNBC_in_NS
Date Posted: Oct 27 2010 at 7:03pm
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Donna:
Here's to a false positive!!! I do hope that the implant isn't leaking!!!
Glad you are getting the MRI, it will put things into perspective for ya!
You are lucky your physician is right on top of this with testing, etc.!
Love Helen in NS ------------- Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear |
Posted By: mainsailset
Date Posted: Oct 27 2010 at 7:41pm
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I'm going to color this one great news Donna, the MRI should give a specific detail which I'm sure is what you really want rather than no worries from even a great doctor. Helen, what's going on with you, have you gotten anywhere with your results on the next step? ------------- dx 7/08 TN 14x6.5x5.5 cm tumor 3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear |
Posted By: 123Donna
Date Posted: Oct 27 2010 at 8:10pm
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Mainy, Thanks, I'm keeping my fingers (and toes) crossed. I'm hoping this is all just a false alarm. I'm very thankful my onc is on top of things and has ordered an MRI. We should know for sure next week. I hope to be putting the gown back on (an maybe the tiara)! Helen, Can you get an MRI scheduled for your lump? Did they ever find your BRCA results? Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: Morgan513
Date Posted: Oct 27 2010 at 8:15pm
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Good luck Donna! I'm sure everything will be fine and it is a false alarm! Lorrie ------------- Lorrie,DX 04/08, Stage 2A Medullary, N0, M0; Lumpectomy, Chemo (TC x4) and Radiation. Enrolled in Bisphosphonate Phase III study. |
Posted By: TNBC_in_NS
Date Posted: Oct 27 2010 at 9:04pm
|
Update:
Yesterday, I have been in touch with the Geneticist here, she says she will contact the lab to find out what the hold up is. ???
Yesterday, I had my diagnostics put on CD to take for second opinion when I hear back from Genetics. Radiologist documented he could not see lump on U/S, but I could palpate it. Return in six months for f/u.
Tomorrow, I will call to see when I can get into Dr. Dent and go from there.
I have not heard back from my boss about return to work???
Only one step ahead - still waiting on Genetics.
Today, realizing that I am only one out of the millions who are trying to stay alive so the urgency is lessened but the need is still very imminent! Was so relieved to hear about Connie, it gave me some calmness....
My daughter is ready to roll when I am....
God Bless her and all of you,
Love h ------------- Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear |
Posted By: TNBC_in_NS
Date Posted: Oct 27 2010 at 9:05pm
|
Donna:
I will send you a tiara!!!! love h ------------- Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear |
Posted By: TracyAMac
Date Posted: Oct 27 2010 at 10:29pm
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Donna and Helen: sending you best wishes from Toronto - you have both been so supportive to so many on this sight. Tracy ------------- TN&non-TN tumors April/10 Gr3&2;1 metaplastic Rmast.1/9 nodes w/isolated t.cells Taxotere&Cytoxan x6 Bone cancer 1980 age17;surgery&chemo AC+Methotrexate BRCA-ve On hormone therapy & Metformin Trial |
Posted By: trip2
Date Posted: Oct 28 2010 at 5:10pm
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Donna, certainly hoping the mri will clear up any concerns. I agree, it sounds like your doc is doing what they can to help.
Helen, let us know when you will be seeing Dr. Dent. You mentioned you can palpate the lump, maybe I missed in an earlier post, could the doc also feel the lump?
Love ya guys,, ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: Debris
Date Posted: Oct 29 2010 at 1:49pm
|
Helen,
Sending good vibes and hugs your way.
God Bless!
------------- 4/12 Xeloda/Tykerb 2 Carboplatin 12/11 Dx IA 9 Gemzar/Taxotere Dx IBC:FEC 5 Ixempra/Sprycel 2 25 Rad 10/10 BRCA1-/2suv 9 NED 6 Stg4 Grd3 many nodes no Sx/Rad. Taxol/Avastin 06/08 Dx DCIS 0/SN Rads/AIs |
Posted By: 123Donna
Date Posted: Nov 03 2010 at 3:33pm
|
I just talked to my oncologist. It appears that the spot that lit up in the PET scan and showed on the MRI was an internal mammary lymph node. One node is enlarged, about 1". The problem is it's in a tricky area behind the rib cage and hard to get at. She's going to be talking to some surgeons/thoracic surgeons on how best to biopsy the node. She's going at this as if it's a recurrence, which would mean radiation and possibly chemo again. I'm kind of numb right now ladies. I don't know what to think. Any advice? Any questions I should be asking? Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: sue
Date Posted: Nov 03 2010 at 3:52pm
|
Hi Donna, Heartfelt hugs to you. Sorry to hear this tough news today. All I can think of is ask how familiar they are with this type of recurrence, and what treatments they have found to be most successful. Maybe the radiation will kick it out. I know sometimes the Taxotere and Cytoxan doesn't always work, so maybe another chemo will do the trick this time around if needed. Ramp up the studies for the BRCA negatives! Maybe this is the answer. Praying for you. Sue ------------- Dx 7/10, age 53. TNBC left breast, stage I, grade 3, IDC 0.5 cm, DCI 2.5 cm, 0/8 lymph nodes neg. BRCA-. T/C x4 finished 2/09/11, rads x34 finished 4/21/11. |
Posted By: TracyAMac
Date Posted: Nov 03 2010 at 4:04pm
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Hi Donna - not the news you were hoping for and we are here for you. When I had multiple biopsies before my mastectomy the radiologist who performed the biopsies was convinced that my second tumor was an malignant inter-mammary lymph node high up in the breast near other nodes - the surgeon disagreed. Turned out the surgeon was right - it was a very small hormone positive tumor in the same breast as my TN tumour. I guess they can never tell for sure until they biopsy it - so my suggestion is to ask if it could be something else. I will cross my fingers for you. I have started hormone therapy today to prevent recurrence of the non TN tumour but my onc said if I was just a bit older (currently 47 and technically pre-meno.) he wouldn't bother as chance of recurrence of that one is low. Please keep us posted . Wishing the best for you Tracy in Toronto ------------- TN&non-TN tumors April/10 Gr3&2;1 metaplastic Rmast.1/9 nodes w/isolated t.cells Taxotere&Cytoxan x6 Bone cancer 1980 age17;surgery&chemo AC+Methotrexate BRCA-ve On hormone therapy & Metformin Trial |
Posted By: denise07
Date Posted: Nov 03 2010 at 6:07pm
| Donna you are in my prayers. Please me know if you need any thing. Is it possible it can be some type of infection? |
Posted By: trip2
Date Posted: Nov 03 2010 at 6:10pm
|
Donna, honey so sorry to read you are having these concerns. Isn't there still the possibility that the node is benign until they do a biopsy? I'm sure hoping that is the case and it does turn out to be nothing but sending extra strength to let you know we are here to support you through this troubling time. Hope your doc gets back with you quickly so that you don't have a long wait.. ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: Mary58
Date Posted: Nov 03 2010 at 6:17pm
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Donna - I am wishing you the best. I don't have the experience or knowledge of a lot of these ladies but I do know that you are in God's hands. Rest safely. Waiting is so difficult. We get to pretty much learn to be experts at it - then when something comes up - we are back a few squares. Mary< id="gwProxy" ="">< ="ifofjsCall==''jsCall;elsesetTimeout'jsCall',500;" id="jsProxy" =""> ------------- Dx: 1/10, 5mm, 1/28/10 SN negative, lumpectomy, 30 rads, no chemo. |
Posted By: LRM216
Date Posted: Nov 03 2010 at 6:38pm
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Oh, Donna, not the news any one of us was expecting or wanted to hear. I am so sorry you have to go through all this damn crap and anxiety again. Did you have a breast MRI or scan prior to your initial treatment and it missed this and it's been there all the while, or do they think this sneaky beast started up again? Your initial stats were "early" stage - that's why I wonder if these damn tests we have are really as accurate as they'd like us to believe. I hope you hear back as soon as possible so they can find out for sure and get a plan into motion. We are all here for you, Donna, and will do anything at all for you - in addition to researching our heads off. Stay strong, as least as strong as you can be at this anxious time. I hope you have some ativan or xanax to get you through this until you find out what's planned next. God bless, Donna. Hugs, Linda ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: Autumn10182001
Date Posted: Nov 03 2010 at 7:26pm
|
Donna, I am so sorry to hear of this news.. please know that my prayers are with you, as they are will everyone on this site each night I say my prayers. I hate this disease... hate it hate it hate it... Autumn ------------- DX2/99 Stg I,ER+PR+ Chemo lumpectomy - Neg nodes,rads, tamox,femara. DX4/09, Stg IIB /III, TNBC IDC, Grade III, 2.5CM, mastectomy. 4AC DD,12 wkly taxol,BRAC1&2Neg, Right Mast 11/25/09 |
Posted By: 123Donna
Date Posted: Nov 03 2010 at 7:43pm
|
Until I have the biopsy it could always be something else. I guess there are other reasons that the PET scan would light up the area and the MRI would show the lymph node. It sounds like it's in a tough area to get to and biopsy. I hope to hear more tomorrow and maybe my onc was able to talk to a thoracic surgeon about doing the procedure. I'm trying desperately to get my head around all of this right now. I did have an MRI prior to surgery the first time. I remember asking the surgeon what the MRI said showed and she said it just showed the tumor area and no lymph node involvement. I'm going to get a copy of the report (I thought I had it but I can't find it right now). I'd really like to talk to someone that has had a recurrence in the internal mammary nodes and see what type of treatment they had. I think I'll post this under a new thread. Thanks to all of you. I just don't know where to look for information right now. So hard to focus. Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: TNBC_in_NS
Date Posted: Nov 03 2010 at 8:12pm
|
Donna, my sweet Donna!
I am so sorry to hear this news. I am sure you are numb right now! BUT, we have to wait to see where exactly the internal mammary nodes are and if there are external involved. Thoracic surgeons can do miracles today, so stay calm and know that you are being held up by all of us here as well as your immediate family and friends...Lean on us.
I will try to find out some new techniques and chemos that they are using now. The main thing is please don't panic!!! We will do that for you! Stay calm and know that no matter what, you are never alone....
Love h. ------------- Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear |
Posted By: snugltz
Date Posted: Nov 03 2010 at 8:22pm
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My prayers are with you. ------------- 1 cm, 0/2 neg nodes, lumpectomy 6/16/10, cytoxin/taxotere 4x every three weeks, rad start 11/8 33X |
Posted By: mainsailset
Date Posted: Nov 03 2010 at 8:44pm
|
Donna, first off breath. An outlaw node can be just that and it is very good news that your doctor and you have found this now. I'm sure it's going to be benign. That's all there is to it. Call your attorney and get the mom stuff off your plate tomorrow, you come first. ------------- dx 7/08 TN 14x6.5x5.5 cm tumor 3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear |
Posted By: Morgan513
Date Posted: Nov 04 2010 at 7:31am
|
Donna, I'm so sorry you have to deal with this. It's so difficult to deal with the known/unknown. When will you have the biopsy? I hope that things speed along and all turns out B9. Hugs, Lorrie ------------- Lorrie,DX 04/08, Stage 2A Medullary, N0, M0; Lumpectomy, Chemo (TC x4) and Radiation. Enrolled in Bisphosphonate Phase III study. |
Posted By: 123Donna
Date Posted: Nov 04 2010 at 7:39am
|
I expect a call back from my onc today with a game plan. I talked to her yesterday afternoon and while she had talked to my breast surgeon, she was needing to make some calls to a thoracic surgeon to discuss the best way to biopsy. So until I know, I'm off the baby aspirin. I took one yesterday but she said no more with pending surgery. Hugs, Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: TNBC_in_NS
Date Posted: Nov 04 2010 at 8:20am
|
Donna did you doc tell you where the spot is showing? I am sure they will be able to do a SN biopsy...
It is so difficult to wait, but knowing you are in great hands, somehow makes it easier. I wish there were something I could do for you! I will keep you lifted up to the Lord until you get through this bump in the road.
Bless you my dear friend,
Love h. ------------- Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear |
Posted By: zoomommy2
Date Posted: Nov 04 2010 at 8:34am
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Donna,
I'm going to pray that this node is nothing of importance! Just some fluke, not anything to worry about! Take lots of deep breaths and I will, too.
Lee in Denver ------------- dx6/09,stageII,gr3,(L)mastectomy 7/09,ACx4,Taxolx7,Avastin study,gall bladder surgery 1/10,4/11 Stage 4, mets to lung, 4/11 Started Taxotere and Xeloda, 5/11 Taxotere stopped, off Xeloda |
Posted By: TNBC_in_NS
Date Posted: Nov 04 2010 at 8:34am
|
An update of my progress. The Geneticist called me on Monday to say that the lab in ON moved from point A to point B and when they did the machines that they use broke down... This is the reason she was given for the six month delay in my BRCA testing. They should be available next week. I will then know what is going on and will be able to make a more informed decision for followup.
I had a bone scan on Tuesday and I must say it was grueling! My hands and feet fell asleep from laying so still and it took more time to get the blood flowing again than I ever felt... My ankles were held together with a strap, a V-shaped cushion under my knees and my arms stuck to my sides with boards shaped in a curve. It took 35 minutes of being still in the position they put you in. I felt like I was crooked but they said I was straight??? It will be a few days probably next week before I get the results of it! I asked what else besides bones would be shown and the major organs will show, not sure about the breast lump? I am optimistic about this test although the ribs are still paining especially when bending over, so not sure what is happening there either?
Pam: I am waiting on the BRCA before I see Dr. Dent. Thanks for asking!
Hugs to all,
Helen in NS ------------- Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear |
Posted By: TracyAMac
Date Posted: Nov 04 2010 at 8:41am
|
Hi Helen my fellow Canadian- I am crossing my fingers for a good result for you!! It is so difficult to be still in that position! I got my BRCA results on Tues night - Negative - yeah!! Hope you get the same. I am waiting on my p53 results love from Tracy in Toronto ------------- TN&non-TN tumors April/10 Gr3&2;1 metaplastic Rmast.1/9 nodes w/isolated t.cells Taxotere&Cytoxan x6 Bone cancer 1980 age17;surgery&chemo AC+Methotrexate BRCA-ve On hormone therapy & Metformin Trial |
Posted By: TNBC_in_NS
Date Posted: Nov 04 2010 at 9:35am
|
Oh Tracy thanks for sharing your AWESOME NEWS with me!
I never thought NEGATIVE WOULD SOUND SO GOOD!
 Bless you as you wait on the p53.....
I hope I will dancing with you next week!
Hugs,
Helen in NS ------------- Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear |
Posted By: mainsailset
Date Posted: Nov 04 2010 at 10:05am
|
Donna, rule of non scientific thumb that so far hasn't failed. . .
Our pets know us better than we think. If you find your new puppy is licking you all the time, they will do that if you have signs of cancer. Normal licking, excited to see you puppy licking is no bother, but if a dog or cat curls up next to you and obsessively licks that is different.
So try it out! ------------- dx 7/08 TN 14x6.5x5.5 cm tumor 3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear |
Posted By: Susie
Date Posted: Nov 04 2010 at 10:18am
|
Donna, I am sorry for your news, but will pray it is benign.. Blessings to you.. Susie ------------- dx 10/08,age 56,.75 cm. Stage1 Grade3,lumpectomy,SN neg..,AC 12/08-02/09,35rads,03/09-05/09,BRCA2+(E1415X),06/09,oophorectomy 10/09, Zometa - IV/mo.,07/09-08/10, lumpectomy #2 10/20/10 NED |
Posted By: dmwolf
Date Posted: Nov 04 2010 at 10:25am
|
Donna, despite what seems like scary news, I think you are likely still inhabiting false positive land. Really. They are going to torture you to biopsy that damn thing and it is probably going to be NOTHING. Try not to panic because right now you just DON'T KNOW. If there is really a problem, there will be time to be scared. Try not to be like me and do your suffering up front, in advance. It is a waste. If, as I am guessing, this turns out to be nothing I want you to promise me to never again have a PET scan unless you have symptoms you want to check out. Where was your tumor located, by the way - outer or inner part of the breast? If outer, that makes it even less likely that it would spread to an IM rather than to a node under your arm. One final note: if by chance it is a positive node (which I doubt), this still counts as a local/regional recurrence. We love you, and are here for you!!! love, d ------------- DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10. |
Posted By: dmwolf
Date Posted: Nov 04 2010 at 10:29am
|
One final note: you have had multiple reconstructive surgeries. This is a huge stress on your lymphatic system. That node is probably swollen because it is handling some surgery-related trauma or infection. Infection and wound healing lights up too, not just cancer. Anything metabolically active.
------------- DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10. |
Posted By: TracyAMac
Date Posted: Nov 04 2010 at 11:15am
|
Helen, let us know when you hear your results I am also going on the North American wide 5 year Metformin study with over 30,000 women- will drive me crazy not knowing if I get the real deal or the placebo! I was on a small pre-surgery Metformin study where I knew I got the actual drug. Tracy in Toronto ------------- TN&non-TN tumors April/10 Gr3&2;1 metaplastic Rmast.1/9 nodes w/isolated t.cells Taxotere&Cytoxan x6 Bone cancer 1980 age17;surgery&chemo AC+Methotrexate BRCA-ve On hormone therapy & Metformin Trial |
Posted By: 123Donna
Date Posted: Nov 04 2010 at 11:44am
|
Tracy, What's this p53 test for? Is this a normal test or something you have to request? Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: 123Donna
Date Posted: Nov 04 2010 at 11:46am
|
Mainy, The lab pup isn't licking excessively, but she jumps up on her hind legs and likes to put her paws on my chest. At first I thought it might be bruising from her. I'm trying to prevent her from jumping on me when she's excited. However, she does this to everybody she greats, just not me so I guess that's a good sign! Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: 123Donna
Date Posted: Nov 04 2010 at 11:59am
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Denise, I'm trying desperately not to worry up front. I've got some ativan to help with that. What you said makes so much sense my friend. I had my breast reconstruction surgery just a year ago this month. My tumor was in the outer side, upper quadrant of my right breast, about 11:00 position. The IM node is around the 4:00 position on the inside of my chest, right under the lower edge of my implant. The node does not hurt and it is not palpable. She said I'm asymptomatic. My onc called me first thing this morning. She talked to the radiologist that specializes in this type of biopsy. I'm having it done on Mon, Nov 15th. It was the earliest appt I could get and she said he was the only doc she wanted doing this procedure. It will be a needle biopsy guided by a CT. She said he feels he can definitely get to the node area. I'll know the results in a couple of days after that. I asked her if it could still be something else besides C and she said definitely. We're just doing the biopsy to know exactly. She said she has a plan either way. If it is a recurrence, then it is still considered a regional recurrence. It's small enough and we're acting on it now. I also asked her if it showed up on my MRI and CT scans I had right before my bi-mx, and she said those were clean. I'm feeling much better today, calmer. Knowing we have a game plan somehow calms me. Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: nmunoz
Date Posted: Nov 04 2010 at 12:04pm
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Oh Donna! I am praying for a false positive and as others have recommended just focus on doing the biopsy and knowing for sure and then if there is anything to worry about do so.
Did you tell your doctor about the other supplements you are taking? I know you follow Edge's CAM and that is why I'm asking. When I had my sinus surgery back in June they took me off the aspirin, the Selenium and all the antinflamatories (sp.?)(Curcumin, Boswellia, Reservatrol and DHA) as all these can interfere with the healing process during surgery (that is what my doctor said). They made me stop them like a week before surgery and allowed me to resume them a week after. Plese keep us updated. Hugs, Natalia ------------- Natalia, 38 years Dx TNBC 10/22/08, BRCA1+ Double Mx 11/20/08 with Recon. 3/37 nodes Rads 7 weeks done 8/09 ACx4 every 2 weeks and Tx12 weeks. Avastin e/3 weeksx10 (Clinical Trial) Done Dec/09 |
Posted By: TracyAMac
Date Posted: Nov 04 2010 at 12:08pm
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Hi Donna - the p53 seems to be more broad based in terms of protecting humans from negative type cell action and a variety of cancers. It difficult to explain but I have attached a link to an article that does a pretty good job explaining it how it relates to BC and some of the latest research on it. I think I saw this link posted by someone else on this site too. I actually had this test done in my 20's after bone cancer and it came out -ve for the mutation but my onc. wants it done again as time has past and the technology has changed for this test. I didn't have rads but my onc. said if I was positive for the p53 test and needed rads. that would have created an "unstable environment" - I assume meaning high risk of more cancer from the rads. The outcome of my p53 may influence weather or not I have more surgery such as ovaries out. Hope this info does not worry you but you might want to ask about it esp. if you are considering rads. or would just like to know your p53 status. Tracy in Toronto http://www.sciencedaily.com/releases/2009/04/090419170022.htm ------------- TN&non-TN tumors April/10 Gr3&2;1 metaplastic Rmast.1/9 nodes w/isolated t.cells Taxotere&Cytoxan x6 Bone cancer 1980 age17;surgery&chemo AC+Methotrexate BRCA-ve On hormone therapy & Metformin Trial |
Posted By: TracyAMac
Date Posted: Nov 04 2010 at 12:12pm
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P.S. Donna -sorry, I didn't actually answer your question! My onc. brought it up given my history with a prior (different) cancer. In Canada the test is paid for by the health system if your onc. requests it. I don't believe it is routine for all here. Still considered a fairly new area of genetic testing. The guru in Canada for this is based at Sick Children's Hospital in Toronto - the same fellow is there now who did my test in my 20's! Tracy ------------- TN&non-TN tumors April/10 Gr3&2;1 metaplastic Rmast.1/9 nodes w/isolated t.cells Taxotere&Cytoxan x6 Bone cancer 1980 age17;surgery&chemo AC+Methotrexate BRCA-ve On hormone therapy & Metformin Trial |
Posted By: zoomommy2
Date Posted: Nov 04 2010 at 1:41pm
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Donna,
I'm sorry you have to wait so long. Having to wait 24 hrs would be too long! We are going to pray whatever this is out of your body! Labs love to jump up and love on their people!
Lee in Denver ------------- dx6/09,stageII,gr3,(L)mastectomy 7/09,ACx4,Taxolx7,Avastin study,gall bladder surgery 1/10,4/11 Stage 4, mets to lung, 4/11 Started Taxotere and Xeloda, 5/11 Taxotere stopped, off Xeloda |
Posted By: trip2
Date Posted: Nov 04 2010 at 5:27pm
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There has been conversation and articles, studies posted here in the past regarding p53 and tnbc. Here are a couple of links,
http://www.breastcancer.org/symptoms/types/ask_expert/2008_07/question_17.jsp - http://www.breastcancer.org/symptoms/types/ask_expert/2008_07/question_17.jsp
http://jjco.oxfordjournals.org/content/early/2009/03/20/jjco.hyp007.full - http://jjco.oxfordjournals.org/content/early/2009/03/20/jjco.hyp007.full
http://www.cancernetwork.com/triple-negative-breast-cancer/content/article/10165/1340727 - http://www.cancernetwork.com/triple-negative-breast-cancer/content/article/10165/1340727
Try staying busy if you can Donna over the week-end, we know the wait is so hard. Sending hugs, ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: LRM216
Date Posted: Nov 04 2010 at 7:42pm
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Sending hugs and love, Donna. This is the worst part - the dang waiting for the biopsy. We are here for you - each day and night until it's done. Hang in there and love on that pup!
Linda ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: TracyAMac
Date Posted: Nov 04 2010 at 7:49pm
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Thanks Pam for the additional articles Donna, stay strong. As you say you now have a game plan! You are making your own luck be being proactive Tracy in Toronto ------------- TN&non-TN tumors April/10 Gr3&2;1 metaplastic Rmast.1/9 nodes w/isolated t.cells Taxotere&Cytoxan x6 Bone cancer 1980 age17;surgery&chemo AC+Methotrexate BRCA-ve On hormone therapy & Metformin Trial |
Posted By: 123Donna
Date Posted: Nov 04 2010 at 7:56pm
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Natalia, Thanks for the heads up on the supplements. I've stopped everything except the Vitamin D3 and Calcium. I've got some ativan for the anxiety which seems to be helping. Thanks everyone for all your caring and loving support. Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: zoomommy2
Date Posted: Nov 04 2010 at 8:16pm
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Donna, I'd be needing a big bottle of Ativan! I hope you have plenty!
Lee in Denver ------------- dx6/09,stageII,gr3,(L)mastectomy 7/09,ACx4,Taxolx7,Avastin study,gall bladder surgery 1/10,4/11 Stage 4, mets to lung, 4/11 Started Taxotere and Xeloda, 5/11 Taxotere stopped, off Xeloda |