F/U Tests Coming Up Soon! |
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mainsailset 
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Joined: Jul 27 2008 Location: Washington State Status: Offline Points: 5004 |
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 Posted: Oct 19 2010 at 10:19am |
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Oh Helen I just want to cuss reading your post! I have a couple of lumps which I call my mean spirited ones cause they are cysts but they are 'feelable' and I think they just like to torture me. I've got fingers and toes crossed for ya! And about those doctors who are shocked...yeah, well, welcome to our world!
Yes my blood pressure did come down after the 2nd nurse came in, who was with me all through the chemo times and she walked in, looked in and said ok, fess up, what are you holding in? Of course I burst into tears, 10 minutes later and some great straight talk from a great nurse and the BP started to come down, 160/70 and was actually down to normal by the time I got home.
Boom started Xeloda yesterday. She has lost 50 pounds, had terrible side effects from Gemzar and is still on the Avastin and the Zeloda. I talked our doc into giving her the lowered doseage but still expect a call sometime this in the next several weeks as she develops hand and foot syndrome. She refuses to do any of the nifty things to try and offset any side effects so I'm not very hopeful.
As a side note, I did take in copies of research and the doc was very interested in the 24 hour test and said he hadn't seen it and was interested enough to do some investigation.
Well ladies, are we going to have a Thursday thread for results? All for one and one for all here!
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dx 7/08 TN 14x6.5x5.5 cm tumor
3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear |
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TNBC_in_NS
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Joined: Jul 26 2009 Location: NS Canada Status: Offline Points: 2028 |
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Posted: Oct 20 2010 at 11:07pm |
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Thanks Mainy:
I am due for the deal tomorrow at 1:30 pm. .. Hopefully things will be ok!
I am still waiting on the BRCA testing and it has been six months....urgggg.
Saw my onc on Monday and he is shocked to say the least! He did order the bone scan so I will have that done on Nov 2nd...
Donna:
How did you make out today? Hopefully your results will be quick in coming back to lessen the stress....don't forget to have the super duper chocolate treat!
Hugs to all,
Helen in NS
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Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear
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123Donna
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Joined: Aug 24 2009 Location: St. Louis, MO Status: Offline Points: 13510 |
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Posted: Oct 21 2010 at 12:50am |
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Helen,
I'll be thinking of you tomorrow. Wishing you good results - B9! Hope you get your BRCA results soon. I think you win the award for the longest time to get your BRCA results. The PET scan went fine today. I thought I'd have to drink something, but instead they injected the radioactive stuff along with glucose into my vein. I had to wait a while, then they took me to the PET machine. The imaging process was slow and the room was very cold due to the machine. I felt like I couldn't warm up all day long. After the test, I went back to work. However, I felt funny much of the day. I think it was the not eating part and then the glucose injection. I just felt out of whack, like how you feel from the steroids after chemo. Now the wait for the results. When the technician asked me why I was having the scan, I told him I had TNBC. As you probably imagine, I got the usual, "what is triple negative bc?" So I spent a little time educating him about TNBC. Donna |
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
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123Donna
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Joined: Aug 24 2009 Location: St. Louis, MO Status: Offline Points: 13510 |
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Posted: Oct 21 2010 at 8:18am |
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Helen,
Sending you big HUGS today! |
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
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TNBC_in_NS
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Joined: Jul 26 2009 Location: NS Canada Status: Offline Points: 2028 |
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Posted: Oct 21 2010 at 9:56am |
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Back at ya, Donna!
I really appreciate the support here on our site! Somehow knowing that others have our back makes a big difference with all these tests. I am getting nervous this am but then that is par for the course. I am not one for needles....
Thanks again, Donna and Mainy! Hugs, to both.....
Love Helen
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Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear
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dmwolf
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Joined: Jan 22 2009 Location: Berkeley, CA Status: Offline Points: 3619 |
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Posted: Oct 21 2010 at 11:55am |
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I'm thinking of you guys, wishing you excellent health and clear scans (no real or false alarms!!)
love, Denise **be sure to let us know when you hear. |
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DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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Debris
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Joined: Jun 07 2010 Location: Forsyth,Georgia Status: Offline Points: 756 |
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Posted: Oct 21 2010 at 12:14pm |
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Hello, Ladies. So wishing you all nothing but good news. God Bless, everyone.
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4/12 Xeloda/Tykerb
2 Carboplatin 12/11 Dx IA 9 Gemzar/Taxotere Dx IBC:FEC 5 Ixempra/Sprycel 2 25 Rad 10/10 BRCA1-/2suv 9 NED 6 Stg4 Grd3 many nodes no Sx/Rad. Taxol/Avastin 06/08 Dx DCIS 0/SN Rads/AIs |
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nmunoz
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Joined: Jan 20 2009 Location: Miami, FL Status: Offline Points: 371 |
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Posted: Oct 21 2010 at 2:31pm |
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Helen and Donna,
You are in my prayers. I will be sending lots of positive energy your way. Best, Natalia |
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Natalia, 38 years
Dx TNBC 10/22/08, BRCA1+ Double Mx 11/20/08 with Recon. 3/37 nodes Rads 7 weeks done 8/09 ACx4 every 2 weeks and Tx12 weeks. Avastin e/3 weeksx10 (Clinical Trial) Done Dec/09 |
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denise07
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Joined: Jun 26 2010 Location: pa Status: Offline Points: 997 |
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Posted: Oct 21 2010 at 3:30pm |
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Here is to a CLEAR scan!
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mainsailset
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Joined: Jul 27 2008 Location: Washington State Status: Offline Points: 5004 |
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Posted: Oct 21 2010 at 3:48pm |
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Just to ease the wait, here is a really fun you tube which is the wonderous, exceptional Luc & The Lovingtons live here in my little valley with my neighbors' son Nate joining in. If you haven't discovered Luc he's bound to bring a smile to your day http://www.youtube.com/watch?v=D8ubsXJliSU&feature=related
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dx 7/08 TN 14x6.5x5.5 cm tumor
3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear |
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TNBC_in_NS
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Joined: Jul 26 2009 Location: NS Canada Status: Offline Points: 2028 |
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Posted: Oct 21 2010 at 4:53pm |
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Hi Girls! It is me again,
Well I just got in the door from the hospital and the radiation physician could not find the lump?? Therefore, did not have a biopsy! I felt the pain three times when he rolled over it but told me there was nothing there. (Why does it hurt?)
I felt fine with that until I got out of the department and realized that I did not ask to see the screen! I saw the first one and know right where it is. My social worker came up to go in with me but they would not allow her because the biopsy would be done under sterile conditions (not an or, just a room)....
My daughter and I went for supper and tried to brainstorm what to do next. I will call the radiation department in the am to see if I can go in to view the results. Probably won't allow that but I will try anyway. Radiologist suggested that if I feel the lump getting bigger, (the lump he couldn't find) then call to have another ultrasound done and in the meantime, he will rebook me for a six month followup. I am feeling very out there somewhere right now... My brains are tired, my body is doing flip flops and I am still tired what do I do now? Go back to work and pretend nothing is wrong and let nature take its course? So much relies on what the next step is. My insurance company is putting me back to work November 1st so I have less than 10 days to make some life altering changes.... I think I am venting but need some concrete decisions too..
Needing HUGS, Helen in NS |
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Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear
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Mary58
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Joined: Feb 13 2010 Location: Wisconsin Status: Offline Points: 161 |
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Posted: Oct 21 2010 at 5:42pm |
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Hellen - I can imagine what you are going through. I had something kind of similar happen to me. I was getting ready for my first six month follow up and I felt a lump between my nipple and the incision area. I also had a nipple discharge. I was quite worried. My surgeon said it was probably a seroma, I thought "why now?" I had the mammo gram and it said, "probably, benign", I thought probably, well, that wasn't very comforting - so went to my radiation doc. and she had an ultrasound and aspiration done - I thought - OK. they've at least looked. Didn't hear anything and I thought no news is good news. Finally, I heard it was nothing but then thought what the heck is this lump - they feel it might be a ridge of tissue from where the excision was taken. I will be seen again in 3 or so months - of course, unless it starts to get bigger. Not really taking away my anxiety - but, oh, well, I have to BELIEVE that it is gone. I want to BELIEVE it is gone and time will tell. I wish you the best as I know how unsettling these things are. You aren't alone and please let us know the rest of the story. Take care - Mary< id="gwProxy" ="">< ="ifofjsCall==''jsCall;elsesetTimeout'jsCall',500;" id="jsProxy" ="">
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Dx: 1/10, 5mm, 1/28/10 SN negative, lumpectomy, 30 rads, no chemo.
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mainsailset
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Joined: Jul 27 2008 Location: Washington State Status: Offline Points: 5004 |
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Posted: Oct 21 2010 at 7:01pm |
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Ah Helen, that just is awful. You know, don't you, what you have to do. Six months is a field day for TN and a hellish wait for you, you gotta go for it and raise your fist, unfortunately being ladylike in our world is just asking for issues. Besides, I'm thinking it will be extra fun to go for ice cream once you have had a look at that screen for yourself and feel 100% sure that there's nothing there. Ultra sounds have always been a good tool for me, maybe that's the way to go.
Whatever it takes warrior girl, put on your stompin boots! I swear it's moments like this that I could become an alcoholic in a heartbeat. Take care dear friend.
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dx 7/08 TN 14x6.5x5.5 cm tumor
3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear |
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LRM216
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Joined: Mar 18 2009 Location: Marietta, GA Status: Offline Points: 1196 |
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Posted: Oct 21 2010 at 8:22pm |
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Helen:
Can you get a breast MRI where you are. That would surely pick up anything - if there really is something there. I hate that you can't just blow this all off and feel greatly relieved. I would feel exactly as you do. We are all behind you.
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Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
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LRM216
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Joined: Mar 18 2009 Location: Marietta, GA Status: Offline Points: 1196 |
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Posted: Oct 21 2010 at 8:34pm |
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Donna and Mainy -
Best of luck and sending all my deepest wishes for clear scans to both of you. I think I must have missed this thread - as I had no idea you all were scheduled for these tests. My apologies for not being here sooner.
Linda
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Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
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123Donna
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Joined: Aug 24 2009 Location: St. Louis, MO Status: Offline Points: 13510 |
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Posted: Oct 21 2010 at 10:42pm |
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Oh Helen, how awful sweetie. To know something's there and not to be taken seriously. Can you ask for an MRI? If not, can you get another ultrasound in a couple months instead of 6 months? Six months is too long for Triple Negative BC.
Linda, Thanks. Now it's just the waiting game. . . |
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
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mainsailset
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Joined: Jul 27 2008 Location: Washington State Status: Offline Points: 5004 |
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Posted: Oct 22 2010 at 1:47pm |
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CAT scan clear! What an incredible relief. The CA15 3 is creeping up though but I'm going to enjoy the moment. Thanks for all the well wishes everyone.
Now, fingers crossed for Donna and a wagging finger to Helen's techies to get them more decisive!
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dx 7/08 TN 14x6.5x5.5 cm tumor
3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear |
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outnumbered
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Joined: Feb 02 2009 Location: New Jersey Status: Offline Points: 525 |
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Posted: Oct 22 2010 at 1:48pm |
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Congrats!
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~Sara
DX @ age 40 6/24/08 Stage 1 Grade 3 BRCA1+ 187delAG BMX (nipple-areola-sparing) 8/5/08 Redo BMX (remove nipple and areola) w/ Lat Flap 7/6/09 BSO 9/3/09 NED since 08/05/2008 |
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123Donna
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Joined: Aug 24 2009 Location: St. Louis, MO Status: Offline Points: 13510 |
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Posted: Oct 22 2010 at 1:53pm |
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Mainy,
Wonderful News! Live in the moment and celebrate today, yeahhhhhhhh  |
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
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TNBC_in_NS
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Joined: Jul 26 2009 Location: NS Canada Status: Offline Points: 2028 |
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Posted: Oct 22 2010 at 2:20pm |
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Mainy! Congratulations! Way to GO!!!! Hooray!!!
 CLEAR!!! Music to my years 
So happy for you girlfriend!! Enjoy each moment!!
Thanks for the boost!
I have brainstormed all night to think about what the next step will be:
I replayed all that the RD told me and "if it gets bigger come back for another ultrasound, if not I will see you in six months, which won't matter much with the outcome!" This jumped right out at me! What does he mean "if"- I think now that it was too small (1 cm) for him to manage a core biopsy, maybe that is why he told me this??? In any case, I want to view it for myself and/or get another opinion.
I asked my Lord and Saviour to guide me in the right direction and He led me to Sirach 16 v 22
"In all things ask for Wisdom!" I did!
I wrote to Steve and you gals for solid advice!
I left a voice message and initiated an urgent email to the Geneticist, she is out til Monday!
I called Dr. Dent's office, her sec is out til Monday! I will do this again on Monday!
I have an apt with my Social Worker on Tuesday and hopefully will get my CD of diagnostics at that time. As well, the CD with Ground Rounds will be ready at that time too. So hopefully, I will have some solid answers and some insights as to how they are dealing with this TNBC then.....
Thanks so much for the support and I have more than the finger wagging, my tongue is wagging now too! We must be advocates for ourselves even if that means they get tired of hearing from us!
Enjoy every moment you can get my friends!
 Helen in NS Edited by TNBC_in_NS - Oct 22 2010 at 5:51pm |
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Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear
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