daughter diagnosed triple negative

Oh what a proud and happy day this must have been for so many different reasons.,and what a very special young lady.Now she needs to let it start growing again and get another celebration for the trip neg 5 year mark or better yet when there are meds found that will help to control this beast.It would not hurt my feelings and I am sure she would gladly get another hair cut if her hair only got the chance to grow an inch before she had to get another cut.So proud for all of you.Huggggggs     Billie 

 

I just had to let all of you know that Lori got her results from the BRCA testing .................................and she is BRCA negative!! Not even a vraiant!

 

She was crying when she called and my heart just skipped beats. Then she told me the good news. She was so worried that she was going to pass this on to her children, and she does not have to worry anymore.

 

I wanted this to be on the thread that I had started for her in July of 2007. This is my journal for her.

 

Oh she just called again as she is driving home from school and she is sobbing.....she is so happy. She said she is going to go home and run for a very long time.

 

She has been so quiet ever since the testing. She sounded just like she did when dx. That little tiny voice, where it is all you can do to understand her.

 

I am so happy my friends.....I cannot begin to tell you how heavy my heart has been for her. My tears will not stop now...write more later

Nancy

 

 

 

Love,

 

Ronda

 

Lori called a couple of hours ago, and I asked her if she ran. She said she ran and ran and ran.....and her feet never touched the ground

 

This has been a good day! Although her daughters were very concerned as to the results, her son was more concerned. He is 15 and a very conscientious young man. He always thinks ahead and thinks of the consequences of situations. He knew that Lori being postive for the BRCA mutation would mean that he too could develop cancer. He was very upset. He wants to be a doctor. They can breathe easier tonight.

 

Until Lori had this test, I never realized how traumatic it was, just to have the test. The lives of your children/siblings can change so dramtically. I do not mean to imply that I ever took it lightly when one of you gals told us that you were BRCA+. I knew how devastating it has been for many of you. 

 

I wanted to tell you that Lori is going to write a book. She hopes to include all the women from the Blair County area, who have been dx with bc in this book. She will do kits/baskets for the new women dx and have them placed in her oncs office....if he will be certain to give them out.

 

She will have a brochure with chemo and rad tips, one of my angels, just many things which she knows from her experience will provide some comfort and support. Lori is extremely organized and any time that she has said she will accomplish something...she has. Graduated first in her nursing class and second in college.

 

I hope to help her accomplish this, as all of you have helped me so much since she was dx. I can still be "paying it forward" right here in our own community. 

 

If she goes on any more Forest Gump runs...I'll let you know.

 

Love and hugs,

Nancy

 

 

 

 

 

Last week Lori had an appointment with her rad onc. She has been having neck and back pain for a few months. She attributed the neck pain to the way she sits and reads to her students with a microphone on and twisted sideways in a chair holding a book. She bought a new pillow, which did nothing. She had, then what she believed to be bursitis in the shoulder on the mastectomy side. That went away. The neck and back pain lingered.

 

Her onc ordered a bone scan , and yesterday she had that at 3 pm. He read the scan immediately, and said he saw nothing in the spine, but areas in the neck "lit up". An MRI was ordered for Friday and she would not have the results until next Monday.

 

To say that we were worried would be a complete understatement. We were terrified. Lori has always said that if "it" came back that she would do nothing. So, today school was cancelled, Lori called the MRI facility, at 8 am, and asked if there were any cancellations....much snow and ice here, as everywhere. No there were none. She said to her husband...there will be one. 10 minutes later they called and told her to come in at 10 am.

 

She had the MRI and said that was the worst test that she has ever had in her life. No pain... nothing....just pure fear the entire time it was being done. She said that the look on the tech's face was a look of concern.

 

You see, she had this dream a few months ago. She was in a park and there was a lion and 2 cubs, and they were about to attack her...she got down on her knees and prayed to God, and the cubs had her around the neck....and she woke up. She had the same dream before she was dx with TNBC in June 2007.

 

After the MRI they went home, as they said it would be 45 minutes before they could read it. She said she only wanted a call...she was not staying there to get the results.  She called around 1:20 and said...no word...but she was postive that she had it in the C2 and C3 of the neck, and if that was it, then she would be paralyzed, and she would not live that way...ever.

 

 

 

 

 

 

 

Keep paying it forward ladies and gentlemen...it is a priviledge.

 

 

Thank you so much. I was so overwhelmed by all the support that I and Lori received over these past few days, that I just wanted to let you all know what a priviledge it is to "know" you.

 

You are always in my thoughts...every day....all the time. It is Lori who was dx...but as her mother I have a sense of what all of you have gone through or are going through. I have seen the fear and the joy in Lori's eyes...those big brown beautiful eyes, and it is through her eyes that I see all of you.

 

Much love,

Nancy