New Posts New Posts RSS Feed - daughter diagnosed triple negative
  FAQ FAQ  Forum Search   Events   Register Register  Login Login

daughter diagnosed triple negative

 Post Reply Post Reply Page  <12345 10>
Author
Nancy View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jul 23 2007
Location: Altoona, PA
Status: Offline
Points: 3814
Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Aug 26 2007 at 7:01pm
Hi Pam,
I assume that the dizziness is just something everyone experiences? Do you have your chemo on Fridays and do you have it every 3 weeks as Lori does?
 
I don't know how you find the energy to get on the boards. I think about you and the other ladies all of the time, and seeing Lori after her first treatment, I know that those first 4 or 5 days were just a blur for her.  Lori's next treatment is this Friday, and she said that she is determined that this one will not be as bad. I believe I did tell you that she got a new anti-nausea drug. Starts with an "E". 
 
We, (Lori, her DH and I) went to the school again today to finish setting up her classroom. She had a wig on but as soon as she got home she said she took it off. She said her son (14) was avoiding looking at her. He said he just wasn't used to seeing her without hair. He is a sweetheart, and this has been very hard on him also. He is constantly doing for her. But then he always has even as a little boy.  Lori and her hubby sure did a great job of raising these kids.
 
Lori did buy a few of those ball caps and the turbans to wear. She says she will wear the wigs to school, but I would think they will be very hot in the classroom.
 
I know that you said your daughter did not live close to you. I think that the majority of families live all over the world. It is not as it was when I was young. We all lived within blocks of each other. It is so difficult when our loved ones are ill and we cannot be there to care for them. My husband is a retired Army Master Sergeant, and for over 20 years we were away from his folks and mine. Now they have all passed away and we are the "old folks"Wink
 
Thank you for your kind words in regards to our family, Pam, but you and your daughter and your family have been the ones who have been through some really tough times.
 
I believe that what really scares me is the fact that TNBC has a high recurrance rate. However, having said that, I know that after 3 years and no rec is a good thing. And as her DH said, if it happens again we will fight it again. Their faith is so very strong...mine...not so strong. I have always questioned everything. But...I love my family and just everyone...even strangers I meet...so I think only good thoughts and I do pray.
 
Well, Pam, I hope you have a better day tomorrow and are not as dizzy. I love sharing these tough times with all of you ladies. Even though Lori has not been keeping a journal, I feel as though I have been doing it for her by telling you and others what she is experiencing. And the wealth of info all of you have shared has helped her and me tremendously!
 
The "VICTORY ANGELS" are still being made. I have made 40 so far and I don't think I will stop. Now as I make one, I can say it is for Pam, Ronda, Jesse, and all of the others on this board.
 
HUGS,
Nancy
 
 
 
 
 
 
 
 
 
 
Back to Top
trip2 View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jun 03 2007
Location: Under Palm Tree
Status: Offline
Points: 8549
Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Aug 29 2007 at 10:11am
Thank you for the hugs Nancy!
 
I like Lori have my chemo every 3 weeks on a Thursday.
 
Well you know I think it does you a world of good to have a place like this to come and talk and share what you are going thru with Lori, you seem like such a sweet person and your feelings are very important here so it's good you can discuss what is on your mind too.  That will help you alot, especially this being a board for triple negatives who understand.  It does for me.
 
Thank you too Nancy for being here.Smile
 
 
Stage 2 2003
Stage 1 2007
BRCA 1+
Back to Top
Vicki G View Drop Down
Groupie
Groupie
Avatar

Joined: Jul 06 2007
Location: United States
Status: Offline
Points: 48
Post Options Post Options   Thanks (0) Thanks(0)   Quote Vicki G Quote  Post ReplyReply Direct Link To This Post Posted: Aug 29 2007 at 12:13pm
Nancy,

Just a thought....while I was having chemo I had terrible dizzy spells. One time I had to pull over on the freeway cause I thought I'd faint and crash!! Turns out I was dehydrated...It was kind of shocking to me because I thought I was drinking TONS of water...? Anyway, the doc told me to drink, drink, drink and they eventually went away.

Take care,

Vicki
Lb Lumpectomy, IDC, Stage 2, Grade 3, 1+ node, 4 x A/C, 4 x Taxol, 33 x Rads. NED almost 4 yrs.
Los Angeles, Ca.
Back to Top
trip2 View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jun 03 2007
Location: Under Palm Tree
Status: Offline
Points: 8549
Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Aug 29 2007 at 12:18pm
Hey Vicki, now there is a thought.  Dehydrated!  Well I have had to slow down on my liquids because of the CHF and taking pills to get rid of fluid so maybe there is some connection although now that I think about it
I've been dizzy after chemo from the beginning.  I'll give that some thought, thanks
Stage 2 2003
Stage 1 2007
BRCA 1+
Back to Top
Vicki G View Drop Down
Groupie
Groupie
Avatar

Joined: Jul 06 2007
Location: United States
Status: Offline
Points: 48
Post Options Post Options   Thanks (0) Thanks(0)   Quote Vicki G Quote  Post ReplyReply Direct Link To This Post Posted: Aug 29 2007 at 12:28pm
Hi Pam,

Sometimes it's just something that simple. The funny thing was that I was terrified to tell my doctor about it. I was thinking the worst, of course. But it wasn't until I was in his office, and the nurse was taking my blood, I told her I thought I was going to faint....She panicked (not a good sign from a nurse..) and ran and got the doc. After he gave me a big hunk of chocolate (THAT should cure everything), he told me about being dehydrated. It worked and I never had that problem again while on chemo.

I still sometimes get a little dizzy but run for the water bottle now instead of freaking out!!!

Take care,

Vicki
Lb Lumpectomy, IDC, Stage 2, Grade 3, 1+ node, 4 x A/C, 4 x Taxol, 33 x Rads. NED almost 4 yrs.
Los Angeles, Ca.
Back to Top
Nancy View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jul 23 2007
Location: Altoona, PA
Status: Offline
Points: 3814
Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Aug 29 2007 at 2:24pm
Hi Vicki,
And yes a "Victory" Angel for VickiClap
 
As to the dizziness. I did tell Lori about drinking lots of water. However, during those first 3 days after chemo, she said she would probably just HURL!!!LOL
 
But I will relate to her your episode on the freeway and at the doctor's. I do like the idea of the "big hunk of chocolate". I know that when a person has a potassium deficiency that you can experience dizzy spells. Of course I "think" that if you drink too much fluid that you can deplete your potassium levels, if you are not consuming enough potassium rich foods. Does anyone know if that is correct? I must get my degree as a doctorBig%20smile
 
You are dx with cancer and you have to go to school to become a doctor!!!
I wonder...do they record all of the info that each cancer patient reports? If thay don't, they sure should. There is a wealth of info out there from ladies like all of you and my Lori.
 
The anti-nausea med that Lori will take on Friday is Emend. I sure hope that this one works! She went out and bought watermelon, soups, jello, and she wants me to make the boiled ground beef and rice again. I thought maybe that she was just "humoring" her old Mom by asking for it. But she said that she thought it really helped because it was protein.
 
Vicki, when you drank all the water did it make you nauseated? Was that right after chemo? I'm not sure which one of you ladies said that you must drink lots of water to flush out the chemo.
 
I know that the first day that she goes back to class (Tuesday), that DH will probably take her and I will pick her up after school. She could not drive until Wednesday after the previous Friday chemo.
 
Thanks Vicki,
Hugs,
Nancy
Back to Top
Vicki G View Drop Down
Groupie
Groupie
Avatar

Joined: Jul 06 2007
Location: United States
Status: Offline
Points: 48
Post Options Post Options   Thanks (0) Thanks(0)   Quote Vicki G Quote  Post ReplyReply Direct Link To This Post Posted: Aug 29 2007 at 3:00pm
Hi Nancy,

I'm not a doctor either (I just play one on the message boards )

My dizziness usually came, like clockwork, a week after my treatments. My chemo's were every other Friday. So the alternate Friday appts were just for blood work.( I had my treatments on Friday's so I would be able to work by Monday...I am a single mother of two and have NO help from the Ex...But that's for another post ) I think, for me, maybe I started slacking on drinking water after day 3? I figured I had flushed most of it out so I wasn't as good about it as I could have been, hence the dehydration.

I was VERY sea sick for 3-4 days after chemo and the thought of even water made me feel kinda sick. But the doctor said to drink, drink, drink then pee, pee, pee it out of me, so I forced it down. GULP!!

Yes my potassium levels went way down and the doctor had to put me on medication for it. After a while, I switched to eating a lot of bananas instead. I did NOT like those horse pills as they did a number on my stomach.

I hope the Emmend works for her. I've heard great things about it. I was given Zofran with Reglan and had okay luck with it. I only threw up after my 3rd AC. Never with Taxol though.

I'd say whatever sounds good to her, let her eat it. Even if it is chocolate



Take care all,

Vicki
Lb Lumpectomy, IDC, Stage 2, Grade 3, 1+ node, 4 x A/C, 4 x Taxol, 33 x Rads. NED almost 4 yrs.
Los Angeles, Ca.
Back to Top
Nancy View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jul 23 2007
Location: Altoona, PA
Status: Offline
Points: 3814
Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Aug 29 2007 at 3:31pm
Hello again Vicki,
 
Lori did take the compazine and Zofram. Neither worked. That's why she asked for Emend. The insurance was not going to cover it as I said in an earlier post, but the onc's nurse put in a request stating that the first two did not work. Lori has a co-pay of $50.00 for the Emend. That's probably cheap considering what the med probably costs.
 
Lori's chemo is evry 3 weeks. I know that she had a headache almost every day for at least 2 weeks. Maybe if she had really pushed the water they would have subsided sooner?
 
I fully understand you having to face this alone as a single mother. We have 2 daughters who were single moms and had no help from their ex for years. That is for another post and you should start one. There are millions of women fighting cancer and are going it alone. Not by choice, but by circumstance!!! You must work, you have no choice. I hope that you have an understanding boss and co-workers. i know how ill Lori was after the 1st treatment, and her 2 DD'S and DS and DH were right there for her.  School had not started 3 weeks ago, but for this Friday's chemo she will have a substitute fill in for the afternoon and then Monday is a holiday.  
She is more determined than the first time to not get sick.
 
Lori could not even walk straight for the first 4 days. She could not read or watch tv. Too dizzy, and as you said VERY sea sick. Bananas and tomatoes are such a good source of potassium. Potatoes also. But the skin contains the majority of the potassium. So we will get bananas tomorrow, just to be prepared. Drink....drink...drink...pee...pee...pee...eat bananas...eat bananas...eat bananasLOL Sounds like a new song to meBig%20smile
 
You sound like a fighter!!  
I will be thinking about you many times a day.
Hugs,
Nancy
 
 
 
 
Back to Top
Joan2844 View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jul 03 2007
Location: United States
Status: Offline
Points: 163
Post Options Post Options   Thanks (0) Thanks(0)   Quote Joan2844 Quote  Post ReplyReply Direct Link To This Post Posted: Aug 30 2007 at 9:35am
http://www.boston.com/news/local/articles/2007/08/26/a_landscape_of_hope_for_cancer_patients/

This is a website for an organization that will create free indoor/outdoor gardens for folks going thru cancer treatment. It might be something to consider.

The article reads:

A landscape of hope for cancer patients

Colorful gardens create bright spots during dark times

August 26, 2007

When Roberta Hershon's childhood friend Beverly Eisenberg was diagnosed with breast cancer in October 2004, Hershon and other friends kept the woman's beloved garden healthy and filled her Sharon home with flowers. The women all loved to garden, and Eisenberg, who was in a wheelchair, could at least look out the window at what she had created. And nurturing the indoor plants gave her something to do.

"It lifted her spirits; it gave her hope," says Hershon, who lives in Dedham. "She and I had talked about, once she got better, doing the same thing for someone else." But Eisenberg died the following August at age 55. Hershon decided to implement the idea in honor of her friend and others stricken with breast cancer.

So began Hope in Bloom, a nonprofit that provides indoor and outdoor gardens to those undergoing treatment for breast cancer. "We wanted to improve the journey through the breast cancer maze," says Hershon. "The hospital treats your illness, but it doesn't do anything for your soul. Chemotherapy is so sterile and stark. Gardens are a way to have something pretty at your residence."

The group, which installed its first garden -- after Eisenberg's -- in July, also in Sharon, tries to get wholesale prices from nurseries and landscape design pro bono. They hope to complete 40 gardens, mostly on the South Shore, by the end of September. "It's first-come, first-served," says Hershon.

In Cohasset, Abigail Alves heard about Hope in Bloom. Her twin, Beth Anderson, had been undergoing treatment for breast cancer for more than a year. Alves knew her sister wasn't much of a gardener, but thought color and greenery would boost her spirits. She called Hershon, and this month Anderson's ordinary Hingham yard was transformed into a lovely garden.

"I just wanted to give her something pretty to look at," says Alves on a recent day, standing next to her identical sister, whose auburn hair has begun to grow back. Anderson has undergone four surgeries, four rounds of chemotherapy, and six weeks of daily radiation treatments. She is now on an experimental anti-cancer drug.

"After 18 months of treatment, this is a very, very bright spot," says Anderson, 44, who has two young children. "Every time I pull into my driveway and look at this, I'll smile."

She spoke amidst a flurry of activity unfolding around her: workers uprooting bushes, replanting them, digging holes, and putting all sorts of new things in the ground. Chris Kennedy of Kennedy's Country Gardens in Scituate designed and supervised the project, and donated the flowers and plants. Herzog Landscaping of Hingham provided free labor. This project was the first one provided to Hope in Bloom completely free of charge. The group relies on donations and fund-raisers for its budget and volunteers for its planning and gardening.

Kennedy, whose mother died of breast cancer three years ago, says the cause is important to him. "If we can do something nice for someone who has breast cancer, we'll bring out the troops," he says. "This is our gift to Beth. She doesn't have to get her hands dirty today."

Anderson stood by watching as workmen removed azaleas, hollies, and rhododendron from the front of her house and transplanted them to the side of her yard. They were replaced with boxwoods, provided by Monrovia, the large California grower. Kennedy was also installing tinkerbell lilacs in front: "What's really cool is that Beth is going to walk out the front door and smell all the lilacs. We want to make it a real colorful garden with lots of pink. Most everything here was green before."

Workers were pulling up a border plant that "just didn't fit," according to Kennedy. A weeping cherry and some coral bells stood by, waiting for their place in the plan. In fact, Kennedy's pickup truck was filled with all sorts of plants: sedum, angelonia, phlox, dahlias, mini-petunias.

Before the day was out, the yard was transformed into a lovely oasis of colors, and Beth Anderson, it seemed, was destined to become a born-again gardener. A new stone bench allows her to sit out and enjoy the garden while keeping an eye on the kids. "I also love to sit and read at the front window and look at the garden."

Her twin is also pleased. "When I called, I said my sister would just like a container plant," says Alves. "But they redid the entire front yard."

As for Anderson, her new garden has been a boon for the entire family. "It's put a smile on all of our faces; it's like Santa Claus. People think cancer is really bad. But it makes you see the incredible goodness in people." She pauses and smiles. "I have always wanted a weeping cherry tree."

For details on the program, visit hopeinbloom.org.

Bella English of Milton can be reached at english@globe.com  


9/06 Stage2B. Pos Nodes; Neg BRAC; TAC/Lumpectomy/Rads/Xeloda.
4/08 Local Recurrence; Mast w/ Latissimus Flap;Taxol/Gemzar/Carbo. Zometa.

NED since May 2008 :-)
www.wow-matt14.blogspot.com
Back to Top
Nancy View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jul 23 2007
Location: Altoona, PA
Status: Offline
Points: 3814
Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Aug 30 2007 at 10:16am
Hi Joan,
Thank you for the link. This is a wonderful idea! If Lori could be outside 24/7, she would. She loves the outdoors. She is fortunate to have a beautiful garden at her home. She and hubby planted many, many rose bushes a few years back, and many other flowers. Unfortunately, the deer had breakfast, lunch and dinner for quite a while on the rose bushes. They live in a rural area and the deer population is out of control.
 
She has even done her classroom in a forest decor. The students think this is "awesome". Now you know you have done a good job when the little ones use that word!
 
I do have a relative who is in the garden club in our area and I will definitely give her the info. We have many people with cancer in our area. Just the smells from a well designed garden has to provide therapy. I also think that all chemo treatment centers/rooms should be facing a garden and have accessibility to that garden. There should be flowers/plants in the room also.
 
I must tell you that Jeremiah 29:11 is the verse that she has looked to since her dx.
 
Thank you for thinking of Lori,
Hugs,
Nancy
 
 
Back to Top
trip2 View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jun 03 2007
Location: Under Palm Tree
Status: Offline
Points: 8549
Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Aug 30 2007 at 12:29pm
Vicki and Nancy, love your sense of humor and appreciate the information on water and potassium.  I get confused on the potassium and yes Vicki, you are right, the pills are huge! lol
Stage 2 2003
Stage 1 2007
BRCA 1+
Back to Top
Nancy View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jul 23 2007
Location: Altoona, PA
Status: Offline
Points: 3814
Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Aug 31 2007 at 2:12pm
Hi everyone,
Well, Lori called from the treatment room about an hour ago. She was pretty upbeatSmile
 
Onc was doing things a little differently this time. They said she could take all of the anti-nausea meds instead of trying one and then another. They gave her the Emend before the chemo. They were going to run a potassium IV simultaneously with the AC, but then found out they could not do that. She is pushing the water just like all of you said to do. (Especially Vicki ...with the drink ...drink... pee...pee...)LOL She said she did not eat one thing today that she really liked, so that she won't be turned off by it when she goes to eat it after chemo. One of you ladies had said to do just that. She is listening!!!
 
Her white blood counts were down a little but the onc was not that concerned. She told him that she was eating foods with white sugar, simply because she had lost so much weight the week following chemo, and was stuffing herself with anything and everything. He said that was fine as she could stand to gain a few pounds.
 
It's a standing joke with our 5 girls that if their Dad says they look really healthy, ...........they go on a dietLOL
 
I emailed her the article that Pam had posted today. I hope she can see to read it. If not, I will read it to her. As I said in another post that had to be the one her DH found.
 
When she fell off of the bike last weekend she said she was cocerned that she might bruise. She did bruise her knee, but it has already gone away. So, I am guessing that is a good thing.
 
Nurse could not use the vein that they used the last time. It was hard. Did find another. They said they might have to put a (I forget the name) in her arm if the same thing happens to this vein. She did not call it a port. Can't believe that I forgot what it is called from an hour ago!
 
She said yesterday when she went in for blood work that she saw a young woman who was pregnant. Her ONC is a very compassionate person and seemed distracted today. He said that he had several difficult cases and she asked if the pregnant woman was one of them. Yes was his answer. Lori did not know her, but she felt her pain.
 
ONC told Lori that he had not had dinner with his family in 7 years!! He just can't turn anyone down for an appointment and is there for their chemo. Yup! Cancer does not wait for anyone! It just keeps growing until nasty stuff kills it!!
 
She should be done now and on her way home. I told her she cannot stop at the wig shop this timeLOL She said she was going home and they were giving her something that will make her drowsy. Maybe if she justs go to bed  she won't throw up. Keep your fingers crossed that she is not as ill.
 
After reading the message on the gal from Canada, I would say we are very fortunate to have the meds we have here. Having said that, we are still many years behind Europe. FDA has yet to approve some of the drugs that they are using, and have been proven to be effective. Guess that's why, if you have the financial resources... that you go to other countries for that extra "insurance" to make you well.
 
Only you ladies can relate to what Lori is experiencing right now, and I know that the empathy and compassion is there from all of you. I can read it in your posts. Thank you for listening to me go on and on sometimes.
 
Have a good evening ladiesSmile (I know I will be online later)
Hugs,
Nancy
 
 
 
 
 
 
 
Back to Top
Nancy View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jul 23 2007
Location: Altoona, PA
Status: Offline
Points: 3814
Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Sep 01 2007 at 7:36am
Good afternoon everyone!
Well it is 12:16 pm Saturday, and Lori has not thrown upClapClapClap
 
I talked with her about an hour ago, and she said that she slept in a recliner last night and did sleep! She took that sleeping pill and more Emend for the nausea at 3am. She ate this am and was able to read!
 
Now, I have to tell all of you that the insurance company denied the prescription for Emend! She was able to get the script filled, but then they got a letter denying the payment. What a crockAngry Her husband called the insurance company and they said that they would ok it . I sure hope that she can get it for the next time as that is what kept her from throwing up.
 
This is a medicine that has been proven to work for patients on chemo and the insurance companies hire people specifically to find ways to deny the payment.
 
Her onc said that she was not a success story from the first chemo treatment. She was in a very small % group who react this way. He also told her to really push the salt. So, while I was on the phone with her last night, she had cherry tomatoes covered in salt, chicken soup, and then chicken boullion. She also ate popcorn covered with salt, but without the butter.
 
And... Vicki,...she was consuming lots of water. LOL
 
Her first chemo she meditated and listened to a tape while they were administering the Adriamycin. Said she couldn't watch that go in. Well, now she can't listen to the tape anymore as it reminds her of that "red devil"Ouch
 
Just wanted to touch base with all of you to tell you that all you have told me is helping herClapSee, there is a reason I found this site!!!
 
Hugs to all for today,
Nancy
 
 
Back to Top
trip2 View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jun 03 2007
Location: Under Palm Tree
Status: Offline
Points: 8549
Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Sep 01 2007 at 9:42am
Hi Nancy, boy what a great mom you are and Lori is continuing to do pretty good, how super is that?
 
Good for her hubby complaining to the insurance company and getting the Emend approved!
 
We love hearing from you and keeping us updated on Lori.  Also you seem to be right up there with current information so you are also a big help for us, thank you for that.
 
I'm not sure what they are wanting to put in her arm, ouch them poking for an IV isn't funny though.  Why didn't she get a port?  They are so much easier for those needles.
 
Have a good holiday week-end and keep checking in Nancy,
 
 
Stage 2 2003
Stage 1 2007
BRCA 1+
Back to Top
Nancy View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jul 23 2007
Location: Altoona, PA
Status: Offline
Points: 3814
Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Sep 01 2007 at 11:01am
Hi Pam,
 
As soon as Lori calls we will be going out to see her. She said this morning that she was going back to the recliner to rest.
 
You know, I'm not sure if they offered her a port. I do know that the drainage tube from the mastectomy drove her crazy. They did say that they could put a "pick line" in her arm. However, yesterday the nurse said that since she has only 4 more times to go that she thought they would be able to find a vein. Only 4 more times to go? Seems like an eternityOuch
 
Lori does not want to tell her students that she has cancer. She feels they will not understand. Maybe she will later in the year. Perhaps that is another reason she doesn't want a line or port put in.
 
Our grandson who went for chemo every week for 3 years never had a port put in. Now that was amazing to me.
 
She has already made a hit with the children. One little boy said he wants her for a teacher every year. Another little boy left the classroom for the day and came back just to give her a hug. Could be that blonde wigWinkWinkWink 
 
I just got back from the store and I picked up a mango. On one of the posts someone said it was the "fruit du jour". She never had one and neither did I. I guess you eat it like an apple, but you can peel and slice it. Read that in a little book in the produce section. Hey! If it helps keep those nasty cancer cells away, eat it!
 
Lori said that yesterday morning before the children came in she cried to the teacher with whom she had shared last years class. She didn't know why she was crying. Then she said it must have been psychological. Just thinking about going for chemo in the afternoon. Probably right? I know that I was crying yesterday and just waiting for her to call.
 
I forgot to watch that documentary...Crazy Sexy Cancer on TLC on Wednesday. My sister watched it and said it was great. Supposedly it will be on again September 30. I cannot forget that. Did you watch it?
 
How is your daughter this week? Has some of your energy returned?
How in the world do you keep up with even daily chores? Actually, none of that matters does it? Just get well!
 
Have a good evening,
Hugs to you and your daughter from me and my family,
Nancy
 
 
 
 
Back to Top
trip2 View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jun 03 2007
Location: Under Palm Tree
Status: Offline
Points: 8549
Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Sep 02 2007 at 12:11pm
Nancy let me know about the mango, I've never tasted one either.
 
My daughter's children are 6 and 9 and she spent alot of time trying to figure out how to handle this w/her little ones.  With momma having her sick times, being gone to the doc, having surgeries, losing her hair, on and on it can be very confusing for little ones and I hadn't realized very much how this has to be handled in a certain way too.  Your daughter has a classroom!  My first time I had c I had teens and so things weren't so fragile although I wouldn't go bald around them.  Now I do but then they are grown. lol  Got braver this time I guess.
 
Evidently the nurse thinks she can find good veins for the next few treatments, I know 4 sounds like alot but with the love and support Lori has she will be fine and done before she knows it.
 
My daughter is tired but doing a little decorating in her kitchen.
Me I haven't been able to keep up with chores in what seems almost a year with so much going on.   Hubby is a big big help but you know us women, we have our "things" we like done but I've learned to accept his help and be grateful, walk past that piece of lint on the carpet.
I'm not as dizzy now but my legs are so weak I can hardly stand for very long.  But I know it will be better soon. Smile
And I want to go shopping!  I've lost it. LOL  My head is one place and my body another.
 
Stage 2 2003
Stage 1 2007
BRCA 1+
Back to Top
Nancy View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jul 23 2007
Location: Altoona, PA
Status: Offline
Points: 3814
Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Sep 02 2007 at 3:17pm

Evening Pam,

I'll have to ask Lori what she thought of the mango.
I cannot even begin to imagine how your daughter is managing everthing in her life. 2 small children, the surgeries, chemo and rads, and just getting out of bed every day. How the H--- does she do it?  There are probably millions just like her going through all of this and to the vast majority of the population, they don't even know they exist. For those with substantial incomes, nothing changes. For everyone else...you must just go on, as you have no other recourse.
She is decorating her kitchenClap!!! Good grief! But she is WOMAN!! HEAR HER ROARLOL
 
Maybe this is something that should be considered for 'MICHAEL MOORE "!!   It is not a laughing moment...it is life. Life goes on and most of the time only the families are affected.
 
You...just like a redblooded woman...want to go shopping ...even though you can hardly walkLOL 
 
Just got off of the phone with Lori before I got on the puter, and today was not a good day. No throwing up, just feels as though a mack truck hit her. No dizziness or blurring just exausted. She went to church this morning...bad idea! Then they weny to Cracker Barrel, (UGH!!! hate that place), and she slept in the car until they could get a table. Then she went to Staples to make copies and it hit her!!!! She had to go home. Slept for a few hours on the recliner and is just really down. She said that if the cancer comes back she will not go through this chemo again!!
 
You know Pam, before she was dx, she was not sick at all! Then she had 2 sugeries as I told you, and came through those with flying colors. But the chemo....this is  horribleAngry all she ever wanted to do was teach, and she will do that, but not without much agony at times. 
 
She did look great last evening when we were there. Eating those ginger snaps and laughing and couldn't believe how great she felt...compared to the 1st chemo. Oh yeah, her hubby said that the milk she was dunking her ginger snaps in was spoiledLOL She didn't know because her taste buds are all screwed up from the chemo. Guess you ladies need a taster like the kings had in the olden days?
 
Back to Top
Nancy View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jul 23 2007
Location: Altoona, PA
Status: Offline
Points: 3814
Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Sep 02 2007 at 3:20pm
Hey Pam,
I hit something on the puter and it went blank. Did post but I didn't get to sign.
Have a great what is left of the long weekend and send some hugs to that daughter of yours and to you family for loving and caring for you.
Hugs,
Nancy
Back to Top
Nancy View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jul 23 2007
Location: Altoona, PA
Status: Offline
Points: 3814
Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Sep 04 2007 at 5:09pm
Hi everyone,
The last 2 days have been horrible. Lori has been crying and I believe just angry. She was teaching today but said that she was "not a good teacher today". She went to bed when she got home and slept.
 
I just got off of the phone with her and she said that the vein in her arm was turning brown. What is that? Does it mean that the vein is collapsing?
Her arms are very small and they have to use the right arm due to the mastectomy being on the left.
 
She said that she will never go through chemo again. She doesn't even want to finish the last 4 treatments. I know that she is doing this for her family, and not for herself. I imagine that is what all of you do. She is back to talking in a whisper. What I mean is that she sounds like she doesn't want to talk. Her will is broken...maybe that's what I mean.
 
She had said yesterday that her heart was racing when she took a deep breath. She didn't have the time to call the onc today, but said that wasn't happening now. This damned chemo literally destroys the body to kill any microscopic cancer cell. And...will it work? Only time will tell. we just have to believe that it will!
 
She was so excited to start teaching and then just 4 days after school starts, she has another treatment and is down for the count. I just walk through the house crying and then I become more angry. Of course THAT doesn't help anything. Lori can't even go for a walk now as she is exhausted. She and hubby did go for just a short walk in the woods yesterday. But she loves to run, and can't do that!Angry
 
How do all of you do this? Take care of your families, work, and some of you do not have the help that you need. You are all true'WARRIORS"!
 
I am sorry, but it is just immpossible to feel "up" when Lori's world is in a tailspin. From the moment she was first dx she said that time was at a standstill for her and everyone else's life just "went on". She is right.
 
Hugs to all of you wonderful women out there,
Nancy
Back to Top
Nancy View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jul 23 2007
Location: Altoona, PA
Status: Offline
Points: 3814
Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Sep 05 2007 at 3:12pm
Evening everyone!
 
Well today was somewhat better. Lori decided to stop wearing the wig and go with a pretty scarf along with hoop earings. The students noticed right away and asked about it. She said she was the "Gypsy teacher" today. Their reply... great! One of the students asked if she was having a bad hair day.. and she replied yes she was. No more questions, just pure unadalterated (sp?)acceptance. She saw many of her students from last year and they all just greeted her with a ..."Hi! Mrs. C"! Out of the mouths of babes comes love and acceptance. Too bad it isn't that way with adults. They either stare and then turn away, put their eyes down, or get that look of pure pity on their face. That's what people did when our grandson lost his hair.
 
Lori said that the morning seemed very long today. She was exhausted by noon. This is the 5th day after chemo. After she ate lunch she felt better. She is still  sleeping in the recliner as lying down gives her a headache. Did any of you experience that? I told her I had read on one of the posts  that someone sat up to sleep and it made it better. Not sure if it was on TNBC.
 
There doesn't seem to be much "traffic" on this site. However, I must keep reminding myself that all of you are experiencing the same things as Lori, and she sure doesn't feel like even talking. That feeling of the flu, only 3000 times worse is the way she feels. She lost 3 pounds, and she has been eating everything in site. Do any of you lose weight during treatments?
 
Do many of you experience depression? Did any of you choose not to take chemo? Many of my friends dx with breast cancer went through depression.
 
Have a good evening ladies.
Many hugs and pleasant thoughts sent to all of you.
Nancy
 
 
Back to Top
 Post Reply Post Reply Page  <12345 10>
  Share Topic   

Forum Jump Forum Permissions View Drop Down

Forum Software by Web Wiz Forums® version 12.01
Copyright ©2001-2018 Web Wiz Ltd.