I assume that the dizziness is just something everyone experiences? Do you have your chemo on Fridays and do you have it every 3 weeks as Lori does?
I don't know how you find the energy to get on the boards. I think about you and the other ladies all of the time, and seeing Lori after her first treatment, I know that those first 4 or 5 days were just a blur for her. Lori's next treatment is this Friday, and she said that she is determined that this one will not be as bad. I believe I did tell you that she got a new anti-nausea drug. Starts with an "E".
We, (Lori, her DH and I) went to the school again today to finish setting up her classroom. She had a wig on but as soon as she got home she said she took it off. She said her son (14) was avoiding looking at her. He said he just wasn't used to seeing her without hair. He is a sweetheart, and this has been very hard on him also. He is constantly doing for her. But then he always has even as a little boy. Lori and her hubby sure did a great job of raising these kids.
Lori did buy a few of those ball caps and the turbans to wear. She says she will wear the wigs to school, but I would think they will be very hot in the classroom.
I know that you said your daughter did not live close to you. I think that the majority of families live all over the world. It is not as it was when I was young. We all lived within blocks of each other. It is so difficult when our loved ones are ill and we cannot be there to care for them. My husband is a retired Army Master Sergeant, and for over 20 years we were away from his folks and mine. Now they have all passed away and we are the "old folks"
Thank you for your kind words in regards to our family, Pam, but you and your daughter and your family have been the ones who have been through some really tough times.
I believe that what really scares me is the fact that TNBC has a high recurrance rate. However, having said that, I know that after 3 years and no rec is a good thing. And as her DH said, if it happens again we will fight it again. Their faith is so very strong...mine...not so strong. I have always questioned everything. But...I love my family and just everyone...even strangers I meet...so I think only good thoughts and I do pray.
Well, Pam, I hope you have a better day tomorrow and are not as dizzy. I love sharing these tough times with all of you ladies. Even though Lori has not been keeping a journal, I feel as though I have been doing it for her by telling you and others what she is experiencing. And the wealth of info all of you have shared has helped her and me tremendously!
The "VICTORY ANGELS" are still being made. I have made 40 so far and I don't think I will stop. Now as I make one, I can say it is for Pam, Ronda, Jesse, and all of the others on this board.
I like Lori have my chemo every 3 weeks on a Thursday.
Well you know I think it does you a world of good to have a place like this to come and talk and share what you are going thru with Lori, you seem like such a sweet person and your feelings are very important here so it's good you can discuss what is on your mind too. That will help you alot, especially this being a board for triple negatives who understand. It does for me.
Just a thought....while I was having chemo I had terrible dizzy spells. One time I had to pull over on the freeway cause I thought I'd faint and crash!! Turns out I was dehydrated...It was kind of shocking to me because I thought I was drinking TONS of water...? Anyway, the doc told me to drink, drink, drink and they eventually went away.
Take care,
Vicki
Lb Lumpectomy, IDC, Stage 2, Grade 3, 1+ node, 4 x A/C, 4 x Taxol, 33 x Rads. NED almost 4 yrs.
Los Angeles, Ca.
Hey Vicki, now there is a thought. Dehydrated! Well I have had to slow down on my liquids because of the CHF and taking pills to get rid of fluid so maybe there is some connection although now that I think about it
I've been dizzy after chemo from the beginning. I'll give that some thought, thanks
Sometimes it's just something that simple. The funny thing was that I was terrified to tell my doctor about it. I was thinking the worst, of course. But it wasn't until I was in his office, and the nurse was taking my blood, I told her I thought I was going to faint....She panicked (not a good sign from a nurse..) and ran and got the doc. After he gave me a big hunk of chocolate (THAT should cure everything), he told me about being dehydrated. It worked and I never had that problem again while on chemo.
I still sometimes get a little dizzy but run for the water bottle now instead of freaking out!!!
Take care,
Vicki
Lb Lumpectomy, IDC, Stage 2, Grade 3, 1+ node, 4 x A/C, 4 x Taxol, 33 x Rads. NED almost 4 yrs.
Los Angeles, Ca.
As to the dizziness. I did tell Lori about drinking lots of water. However, during those first 3 days after chemo, she said she would probably just HURL!!!
But I will relate to her your episode on the freeway and at the doctor's. I do like the idea of the "big hunk of chocolate". I know that when a person has a potassium deficiency that you can experience dizzy spells. Of course I "think" that if you drink too much fluid that you can deplete your potassium levels, if you are not consuming enough potassium rich foods. Does anyone know if that is correct? I must get my degree as a doctor
You are dx with cancer and you have to go to school to become a doctor!!!
I wonder...do they record all of the info that each cancer patient reports? If thay don't, they sure should. There is a wealth of info out there from ladies like all of you and my Lori.
The anti-nausea med that Lori will take on Friday is Emend. I sure hope that this one works! She went out and bought watermelon, soups, jello, and she wants me to make the boiled ground beef and rice again. I thought maybe that she was just "humoring" her old Mom by asking for it. But she said that she thought it really helped because it was protein.
Vicki, when you drank all the water did it make you nauseated? Was that right after chemo? I'm not sure which one of you ladies said that you must drink lots of water to flush out the chemo.
I know that the first day that she goes back to class (Tuesday), that DH will probably take her and I will pick her up after school. She could not drive until Wednesday after the previous Friday chemo.
I'm not a doctor either (I just play one on the message boards )
My dizziness usually came, like clockwork, a week after my treatments. My chemo's were every other Friday. So the alternate Friday appts were just for blood work.( I had my treatments on Friday's so I would be able to work by Monday...I am a single mother of two and have NO help from the Ex...But that's for another post ) I think, for me, maybe I started slacking on drinking water after day 3? I figured I had flushed most of it out so I wasn't as good about it as I could have been, hence the dehydration.
I was VERY sea sick for 3-4 days after chemo and the thought of even water made me feel kinda sick. But the doctor said to drink, drink, drink then pee, pee, pee it out of me, so I forced it down. GULP!!
Yes my potassium levels went way down and the doctor had to put me on medication for it. After a while, I switched to eating a lot of bananas instead. I did NOT like those horse pills as they did a number on my stomach.
I hope the Emmend works for her. I've heard great things about it. I was given Zofran with Reglan and had okay luck with it. I only threw up after my 3rd AC. Never with Taxol though.
I'd say whatever sounds good to her, let her eat it. Even if it is chocolate
Take care all,
Vicki
Lb Lumpectomy, IDC, Stage 2, Grade 3, 1+ node, 4 x A/C, 4 x Taxol, 33 x Rads. NED almost 4 yrs.
Los Angeles, Ca.
Lori did take the compazine and Zofram. Neither worked. That's why she asked for Emend. The insurance was not going to cover it as I said in an earlier post, but the onc's nurse put in a request stating that the first two did not work. Lori has a co-pay of $50.00 for the Emend. That's probably cheap considering what the med probably costs.
Lori's chemo is evry 3 weeks. I know that she had a headache almost every day for at least 2 weeks. Maybe if she had really pushed the water they would have subsided sooner?
I fully understand you having to face this alone as a single mother. We have 2 daughters who were single moms and had no help from their ex for years. That is for another post and you should start one. There are millions of women fighting cancer and are going it alone. Not by choice, but by circumstance!!! You must work, you have no choice. I hope that you have an understanding boss and co-workers. i know how ill Lori was after the 1st treatment, and her 2 DD'S and DS and DH were right there for her. School had not started 3 weeks ago, but for this Friday's chemo she will have a substitute fill in for the afternoon and then Monday is a holiday.
She is more determined than the first time to not get sick.
Lori could not even walk straight for the first 4 days. She could not read or watch tv. Too dizzy, and as you said VERY sea sick. Bananas and tomatoes are such a good source of potassium. Potatoes also. But the skin contains the majority of the potassium. So we will get bananas tomorrow, just to be prepared. Drink....drink...drink...pee...pee...pee...eat bananas...eat bananas...eat bananas Sounds like a new song to me
This is a website for an organization that will create free indoor/outdoor gardens for folks going thru cancer treatment. It might be something to consider.
The article reads:
A landscape of hope for cancer patients
Colorful gardens create bright spots during dark times
August 26, 2007
When Roberta Hershon's childhood friend Beverly Eisenberg was
diagnosed with breast cancer in October 2004, Hershon and other friends
kept the woman's beloved garden healthy and filled her Sharon home with
flowers. The women all loved to garden, and Eisenberg, who was in a
wheelchair, could at least look out the window at what she had created.
And nurturing the indoor plants gave her something to do.
"It lifted her spirits; it gave her hope," says Hershon, who lives
in Dedham. "She and I had talked about, once she got better, doing the
same thing for someone else." But Eisenberg died the following August
at age 55. Hershon decided to implement the idea in honor of her friend
and others stricken with breast cancer.
So began Hope in Bloom, a nonprofit that provides indoor and outdoor
gardens to those undergoing treatment for breast cancer. "We wanted to
improve the journey through the breast cancer maze," says Hershon. "The
hospital treats your illness, but it doesn't do anything for your soul.
Chemotherapy is so sterile and stark. Gardens are a way to have
something pretty at your residence."
The group, which installed its first garden -- after Eisenberg's --
in July, also in Sharon, tries to get wholesale prices from nurseries
and landscape design pro bono. They hope to complete 40 gardens, mostly
on the South Shore, by the end of September. "It's first-come,
first-served," says Hershon.
In Cohasset, Abigail Alves heard about Hope in Bloom. Her twin, Beth
Anderson, had been undergoing treatment for breast cancer for more than
a year. Alves knew her sister wasn't much of a gardener, but thought
color and greenery would boost her spirits. She called Hershon, and
this month Anderson's ordinary Hingham yard was transformed into a
lovely garden.
"I just wanted to give her something pretty to look at," says Alves
on a recent day, standing next to her identical sister, whose auburn
hair has begun to grow back. Anderson has undergone four surgeries,
four rounds of chemotherapy, and six weeks of daily radiation
treatments. She is now on an experimental anti-cancer drug.
"After 18 months of treatment, this is a very, very bright spot,"
says Anderson, 44, who has two young children. "Every time I pull into
my driveway and look at this, I'll smile."
She spoke amidst a flurry of activity unfolding around her: workers
uprooting bushes, replanting them, digging holes, and putting all sorts
of new things in the ground. Chris Kennedy of Kennedy's Country Gardens
in Scituate designed and supervised the project, and donated the
flowers and plants. Herzog Landscaping of Hingham provided free labor.
This project was the first one provided to Hope in Bloom completely
free of charge. The group relies on donations and fund-raisers for its
budget and volunteers for its planning and gardening.
Kennedy, whose mother died of breast cancer three years ago, says
the cause is important to him. "If we can do something nice for someone
who has breast cancer, we'll bring out the troops," he says. "This is
our gift to Beth. She doesn't have to get her hands dirty today."
Anderson stood by watching as workmen removed azaleas, hollies, and
rhododendron from the front of her house and transplanted them to the
side of her yard. They were replaced with boxwoods, provided by
Monrovia, the large California grower. Kennedy was also installing
tinkerbell lilacs in front: "What's really cool is that Beth is going
to walk out the front door and smell all the lilacs. We want to make it
a real colorful garden with lots of pink. Most everything here was
green before."
Workers were pulling up a border plant that "just didn't fit,"
according to Kennedy. A weeping cherry and some coral bells stood by,
waiting for their place in the plan. In fact, Kennedy's pickup truck
was filled with all sorts of plants: sedum, angelonia, phlox, dahlias,
mini-petunias.
Before the day was out, the yard was transformed into a lovely oasis
of colors, and Beth Anderson, it seemed, was destined to become a
born-again gardener. A new stone bench allows her to sit out and enjoy
the garden while keeping an eye on the kids. "I also love to sit and
read at the front window and look at the garden."
Her twin is also pleased. "When I called, I said my sister would
just like a container plant," says Alves. "But they redid the entire
front yard."
As for Anderson, her new garden has been a boon for the entire
family. "It's put a smile on all of our faces; it's like Santa Claus.
People think cancer is really bad. But it makes you see the incredible
goodness in people." She pauses and smiles. "I have always wanted a
weeping cherry tree."
Thank you for the link. This is a wonderful idea! If Lori could be outside 24/7, she would. She loves the outdoors. She is fortunate to have a beautiful garden at her home. She and hubby planted many, many rose bushes a few years back, and many other flowers. Unfortunately, the deer had breakfast, lunch and dinner for quite a while on the rose bushes. They live in a rural area and the deer population is out of control.
She has even done her classroom in a forest decor. The students think this is "awesome". Now you know you have done a good job when the little ones use that word!
I do have a relative who is in the garden club in our area and I will definitely give her the info. We have many people with cancer in our area. Just the smells from a well designed garden has to provide therapy. I also think that all chemo treatment centers/rooms should be facing a garden and have accessibility to that garden. There should be flowers/plants in the room also.
I must tell you that Jeremiah 29:11 is the verse that she has looked to since her dx.
Vicki and Nancy, love your sense of humor and appreciate the information on water and potassium. I get confused on the potassium and yes Vicki, you are right, the pills are huge! lol
Well, Lori called from the treatment room about an hour ago. She was pretty upbeat
Onc was doing things a little differently this time. They said she could take all of the anti-nausea meds instead of trying one and then another. They gave her the Emend before the chemo. They were going to run a potassium IV simultaneously with the AC, but then found out they could not do that. She is pushing the water just like all of you said to do. (Especially Vicki ...with the drink ...drink... pee...pee...) She said she did not eat one thing today that she really liked, so that she won't be turned off by it when she goes to eat it after chemo. One of you ladies had said to do just that. She is listening!!!
Her white blood counts were down a little but the onc was not that concerned. She told him that she was eating foods with white sugar, simply because she had lost so much weight the week following chemo, and was stuffing herself with anything and everything. He said that was fine as she could stand to gain a few pounds.
It's a standing joke with our 5 girls that if their Dad says they look really healthy, ...........they go on a diet
I emailed her the article that Pam had posted today. I hope she can see to read it. If not, I will read it to her. As I said in another post that had to be the one her DH found.
When she fell off of the bike last weekend she said she was cocerned that she might bruise. She did bruise her knee, but it has already gone away. So, I am guessing that is a good thing.
Nurse could not use the vein that they used the last time. It was hard. Did find another. They said they might have to put a (I forget the name) in her arm if the same thing happens to this vein. She did not call it a port. Can't believe that I forgot what it is called from an hour ago!
She said yesterday when she went in for blood work that she saw a young woman who was pregnant. Her ONC is a very compassionate person and seemed distracted today. He said that he had several difficult cases and she asked if the pregnant woman was one of them. Yes was his answer. Lori did not know her, but she felt her pain.
ONC told Lori that he had not had dinner with his family in 7 years!! He just can't turn anyone down for an appointment and is there for their chemo. Yup! Cancer does not wait for anyone! It just keeps growing until nasty stuff kills it!!
She should be done now and on her way home. I told her she cannot stop at the wig shop this time She said she was going home and they were giving her something that will make her drowsy. Maybe if she justs go to bed she won't throw up. Keep your fingers crossed that she is not as ill.
After reading the message on the gal from Canada, I would say we are very fortunate to have the meds we have here. Having said that, we are still many years behind Europe. FDA has yet to approve some of the drugs that they are using, and have been proven to be effective. Guess that's why, if you have the financial resources... that you go to other countries for that extra "insurance" to make you well.
Only you ladies can relate to what Lori is experiencing right now, and I know that the empathy and compassion is there from all of you. I can read it in your posts. Thank you for listening to me go on and on sometimes.
Have a good evening ladies (I know I will be online later)
Well it is 12:16 pm Saturday, and Lori has not thrown up
I talked with her about an hour ago, and she said that she slept in a recliner last night and did sleep! She took that sleeping pill and more Emend for the nausea at 3am. She ate this am and was able to read!
Now, I have to tell all of you that the insurance company denied the prescription for Emend! She was able to get the script filled, but then they got a letter denying the payment. What a crock Her husband called the insurance company and they said that they would ok it . I sure hope that she can get it for the next time as that is what kept her from throwing up.
This is a medicine that has been proven to work for patients on chemo and the insurance companies hire people specifically to find ways to deny the payment.
Her onc said that she was not a success story from the first chemo treatment. She was in a very small % group who react this way. He also told her to really push the salt. So, while I was on the phone with her last night, she had cherry tomatoes covered in salt, chicken soup, and then chicken boullion. She also ate popcorn covered with salt, but without the butter.
And... Vicki,...she was consuming lots of water.
Her first chemo she meditated and listened to a tape while they were administering the Adriamycin. Said she couldn't watch that go in. Well, now she can't listen to the tape anymore as it reminds her of that "red devil"
Just wanted to touch base with all of you to tell you that all you have told me is helping herSee, there is a reason I found this site!!!
Hi Nancy, boy what a great mom you are and Lori is continuing to do pretty good, how super is that?
Good for her hubby complaining to the insurance company and getting the Emend approved!
We love hearing from you and keeping us updated on Lori. Also you seem to be right up there with current information so you are also a big help for us, thank you for that.
I'm not sure what they are wanting to put in her arm, ouch them poking for an IV isn't funny though. Why didn't she get a port? They are so much easier for those needles.
Have a good holiday week-end and keep checking in Nancy,
As soon as Lori calls we will be going out to see her. She said this morning that she was going back to the recliner to rest.
You know, I'm not sure if they offered her a port. I do know that the drainage tube from the mastectomy drove her crazy. They did say that they could put a "pick line" in her arm. However, yesterday the nurse said that since she has only 4 more times to go that she thought they would be able to find a vein. Only 4 more times to go? Seems like an eternity
Lori does not want to tell her students that she has cancer. She feels they will not understand. Maybe she will later in the year. Perhaps that is another reason she doesn't want a line or port put in.
Our grandson who went for chemo every week for 3 years never had a port put in. Now that was amazing to me.
She has already made a hit with the children. One little boy said he wants her for a teacher every year. Another little boy left the classroom for the day and came back just to give her a hug. Could be that blonde wig
I just got back from the store and I picked up a mango. On one of the posts someone said it was the "fruit du jour". She never had one and neither did I. I guess you eat it like an apple, but you can peel and slice it. Read that in a little book in the produce section. Hey! If it helps keep those nasty cancer cells away, eat it!
Lori said that yesterday morning before the children came in she cried to the teacher with whom she had shared last years class. She didn't know why she was crying. Then she said it must have been psychological. Just thinking about going for chemo in the afternoon. Probably right? I know that I was crying yesterday and just waiting for her to call.
I forgot to watch that documentary...Crazy Sexy Cancer on TLC on Wednesday. My sister watched it and said it was great. Supposedly it will be on again September 30. I cannot forget that. Did you watch it?
How is your daughter this week? Has some of your energy returned?
How in the world do you keep up with even daily chores? Actually, none of that matters does it? Just get well!
Have a good evening,
Hugs to you and your daughter from me and my family,
Nancy let me know about the mango, I've never tasted one either.
My daughter's children are 6 and 9 and she spent alot of time trying to figure out how to handle this w/her little ones. With momma having her sick times, being gone to the doc, having surgeries, losing her hair, on and on it can be very confusing for little ones and I hadn't realized very much how this has to be handled in a certain way too. Your daughter has a classroom! My first time I had c I had teens and so things weren't so fragile although I wouldn't go bald around them. Now I do but then they are grown. lol Got braver this time I guess.
Evidently the nurse thinks she can find good veins for the next few treatments, I know 4 sounds like alot but with the love and support Lori has she will be fine and done before she knows it.
My daughter is tired but doing a little decorating in her kitchen.
Me I haven't been able to keep up with chores in what seems almost a year with so much going on. Hubby is a big big help but you know us women, we have our "things" we like done but I've learned to accept his help and be grateful, walk past that piece of lint on the carpet.
I'm not as dizzy now but my legs are so weak I can hardly stand for very long. But I know it will be better soon.
And I want to go shopping! I've lost it. My head is one place and my body another.
I'll have to ask Lori what she thought of the mango.
I cannot even begin to imagine how your daughter is managing everthing in her life. 2 small children, the surgeries, chemo and rads, and just getting out of bed every day. How the H--- does she do it? There are probably millions just like her going through all of this and to the vast majority of the population, they don't even know they exist. For those with substantial incomes, nothing changes. For everyone else...you must just go on, as you have no other recourse.
She is decorating her kitchen!!! Good grief! But she is WOMAN!! HEAR HER ROAR
Maybe this is something that should be considered for'MICHAEL MOORE "!! It is not a laughing moment...it is life. Life goes on and most of the time only the families are affected.
You...just like a redblooded woman...want to go shopping ...even though you can hardly walk
Just got off of the phone with Lori before I got on the puter, and today was not a good day. No throwing up, just feels as though a mack truck hit her. No dizziness or blurring just exausted. She went to church this morning...bad idea! Then they weny to Cracker Barrel, (UGH!!! hate that place), and she slept in the car until they could get a table. Then she went to Staples to make copies and it hit her!!!! She had to go home. Slept for a few hours on the recliner and is just really down. She said that if the cancer comes back she will not go through this chemo again!!
You know Pam, before she was dx, she was not sick at all! Then she had 2 sugeries as I told you, and came through those with flying colors. But the chemo....this is horrible all she ever wanted to do was teach, and she will do that, but not without much agony at times.
She did look great last evening when we were there. Eating those ginger snaps and laughing and couldn't believe how great she felt...compared to the 1st chemo. Oh yeah, her hubby said that the milk she was dunking her ginger snaps in was spoiled She didn't know because her taste buds are all screwed up from the chemo. Guess you ladies need a taster like the kings had in the olden days?
Hi everyone,
The last 2 days have been horrible. Lori has been crying and I believe just angry. She was teaching today but said that she was "not a good teacher today". She went to bed when she got home and slept.
I just got off of the phone with her and she said that the vein in her arm was turning brown. What is that? Does it mean that the vein is collapsing?
Her arms are very small and they have to use the right arm due to the mastectomy being on the left.
She said that she will never go through chemo again. She doesn't even want to finish the last 4 treatments. I know that she is doing this for her family, and not for herself. I imagine that is what all of you do. She is back to talking in a whisper. What I mean is that she sounds like she doesn't want to talk. Her will is broken...maybe that's what I mean.
She had said yesterday that her heart was racing when she took a deep breath. She didn't have the time to call the onc today, but said that wasn't happening now. This damned chemo literally destroys the body to kill any microscopic cancer cell. And...will it work? Only time will tell. we just have to believe that it will!
She was so excited to start teaching and then just 4 days after school starts, she has another treatment and is down for the count. I just walk through the house crying and then I become more angry. Of course THAT doesn't help anything. Lori can't even go for a walk now as she is exhausted. She and hubby did go for just a short walk in the woods yesterday. But she loves to run, and can't do that!
How do all of you do this? Take care of your families, work, and some of you do not have the help that you need. You are all true'WARRIORS"!
I am sorry, but it is just immpossible to feel "up" when Lori's world is in a tailspin. From the moment she was first dx she said that time was at a standstill for her and everyone else's life just "went on". She is right.
Well today was somewhat better. Lori decided to stop wearing the wig and go with a pretty scarf along with hoop earings. The students noticed right away and asked about it. She said she was the "Gypsy teacher" today. Their reply... great! One of the students asked if she was having a bad hair day.. and she replied yes she was. No more questions, just pure unadalterated (sp?)acceptance. She saw many of her students from last year and they all just greeted her with a ..."Hi! Mrs. C"! Out of the mouths of babes comes love and acceptance. Too bad it isn't that way with adults. They either stare and then turn away, put their eyes down, or get that look of pure pity on their face. That's what people did when our grandson lost his hair.
Lori said that the morning seemed very long today. She was exhausted by noon. This is the 5th day after chemo. After she ate lunch she felt better. She is still sleeping in the recliner as lying down gives her a headache. Did any of you experience that? I told her I had read on one of the posts that someone sat up to sleep and it made it better. Not sure if it was on TNBC.
There doesn't seem to be much "traffic" on this site. However, I must keep reminding myself that all of you are experiencing the same things as Lori, and she sure doesn't feel like even talking. That feeling of the flu, only 3000 times worse is the way she feels. She lost 3 pounds, and she has been eating everything in site. Do any of you lose weight during treatments?
Do many of you experience depression? Did any of you choose not to take chemo? Many of my friends dx with breast cancer went through depression.
Have a good evening ladies.
Many hugs and pleasant thoughts sent to all of you.
You cannot post new topics in this forum You cannot reply to topics in this forum You cannot delete your posts in this forum You cannot edit your posts in this forum You cannot create polls in this forum You cannot vote in polls in this forum