BRCA 1 Clinical Trials |
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trip2 
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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 Topic: BRCA 1 Clinical TrialsPosted: May 10 2009 at 12:49pm |
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Here is a list of 40 clinical trials at this one website studying BRCA 1 mutation and breast cancer.
I'm so sorry to have forgot to put in the link! What a dufus I am sometimes, shoot me at dawn! Edited by trip2 - May 11 2009 at 2:21pm |
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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gocat2you
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Joined: May 05 2009 Location: Taunton, MA Status: Offline Points: 2 |
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Posted: May 10 2009 at 3:51pm |
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Hi All,
Three weeks ago I started a clinical trial for TNBC. It is a bis-phosphonate study. I am taking 50mg/daily of Boniva. The purpose of the study is to see whether this dose of med decreases the chances of the cancer returning and/or if the cancer is to return, this medication is suppose to prevent bone mets. I am not sure if anyone else is in a study like this. So far, I have not had any adverse side effects, I was wondering if anyone else has joined a clinical study like this one. Prior to starting the study, I have 20 weeks of chemo and last month had a bilateral mastecomy. I am 41 years old.
Jodi
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: May 10 2009 at 4:03pm |
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Hi Gocat2you and welcome to the forum.
Thank you for participating in this trial and updates would be wonderful.
This trial you are on sounds like a good one.
Good luck to you,
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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SagePatientAdvocates
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Joined: Apr 15 2009 Status: Offline Points: 4748 |
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Posted: May 10 2009 at 7:21pm |
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Dear Pam,
I do not see the list of 40 trials... my computer crashed and I am using my wife's but I don't think that should make a difference...can you send me a PM with the link if it is just me.. and thanks for posting.. all the best, Steve |
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I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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MaryinSarasota
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Joined: Nov 08 2008 Location: Sarasota Status: Offline Points: 362 |
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Posted: May 11 2009 at 1:41pm |
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Steve, you aren't hallucinating. I did not see them either. Pam, could you repost please?
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53 @ Dx 5/08 Stage 1, grade 3, IDC 1.6 cm, 0 nodes, TNBC, lumpectomy, chemo TAC-6, radiation-34 12/18/08
NED-10/09, PBM w/TE recon. 7/10, removal of TE/infec 8/10. CT chest. Rec fat-graft & stem cells |
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HappyGoLucky
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Joined: Apr 22 2009 Location: New Jersey Status: Offline Points: 454 |
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Posted: May 11 2009 at 1:58pm |
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Hi newbie here: I have agreed to clinical double blind trials for Avastin in addition to chemo for non metastized triple neg bc. I am embarassed to tell you that my tumor had grown to 6cm by the time i had surgery Mar 19th. port cath w/be coming in this week. i heal slow because of rheumatoid arthritis so i hope i heal fast from the cath.
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: May 11 2009 at 2:25pm |
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Hi HappyGoLucky,
No need to be embarrased in this forum.
 I hope you heal quickly also good luck and let us know how you are doing.
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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MaryinSarasota
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Joined: Nov 08 2008 Location: Sarasota Status: Offline Points: 362 |
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Posted: May 11 2009 at 2:30pm |
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Pam, thank you for the link
 Mary |
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53 @ Dx 5/08 Stage 1, grade 3, IDC 1.6 cm, 0 nodes, TNBC, lumpectomy, chemo TAC-6, radiation-34 12/18/08
NED-10/09, PBM w/TE recon. 7/10, removal of TE/infec 8/10. CT chest. Rec fat-graft & stem cells |
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: May 11 2009 at 2:51pm |
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You are so welcome Mary.
When I signed in the this morning the first thing I saw was Steve's post.
Oh my gosh I'm like you are so dumb.
 Then we had to go out of town today and I just
now got it fixed, my apologies to all of you.
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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HappyGoLucky
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Joined: Apr 22 2009 Location: New Jersey Status: Offline Points: 454 |
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Posted: May 11 2009 at 3:33pm |
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thank you Pam, forgot to add bc surgery came after i got medicare.
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