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2nd opinion

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Kath72366 View Drop Down
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    Posted: Nov 05 2014 at 9:30pm
My sister in law was diagnosed with stage 2 TNBC. She had a double mastectomy which was supposed to be followed by a course of chemo. So far she has only had 1 chemo. Her white cell count has been too low to take the chemo. I think she needs to get a second opinion. This has been going on for months.
Can anyone recommend a doctor or hospital near Fairfield county, Connecticut? Thanks.
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LaurieR View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote LaurieR Quote  Post ReplyReply Direct Link To This Post Posted: Nov 05 2014 at 9:37pm
Go to Dana Farber in Boston. It's not that far away and they are experts. It's important to get a second opinion ASAP.

Keep fighting,
Laurie
DX 1/14, age 47, Lump 2/14, DD AC/T 2/14-6/14, BMX 7/14, Rads (now)
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123Donna View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Nov 06 2014 at 12:25pm
It sounds like she definitely needs a second opinion quickly!  There was a thread a while back where members posted recommendations in their area.  It hasn't been updated lately but here it is with some suggestions:

Originally posted by Grateful for today Grateful for today wrote:

FYI: A member was looking for this thread today. 
        Thought I would bump it up for new members. 
      
Following was posted above on September 14, 2012:

Originally posted by Grateful for today Grateful for today wrote:

 

When one is looking for oncologists knowledgeable about TNBC, there are various resources.
What is posted here is informational (general information) from members.
These are not recommendations from the TNBC Foundation.
The decision about your treatment team is yours.



Some things to consider when gathering information for your TNBC treatment team.

1. Check if there is a NCCN (National Comprehensive Cancer Network) Cancer Center      
    https://www.nccn.org/members/network.asp       
    in your area.

2. Check if there is a NCI (National Cancer Institute) Cancer Center in your area.
     For appointments at a NCI Center, ask for the TNBC oncologist. 
       http://www.cancer.gov/researchandfunding/extramural/cancercenters      
        http://www.cancer.gov/researchandfunding/extramural/cancercenters/find-a-cancer-center

3. Some members have 2nd opinions when making decisions on their treatment plan.
     2nd opinions for any/all parts (chemo-surgery-radiation) of the treatment plan (when indicated).
     If one's pathology report was not done by a breast pathologist, a pathology 2nd opinion by
     by a breast pathologist (at a NCCN or NCI center if possible) is something to strongly consider.

4. Some members have a local oncologist and have a consult with a NCCN/NCI oncologist.
    Then re-consult (2nd opinion) with the NCCN/NCI oncologist if needs arises 
    (when frequent travel to a NCCN or NCI center is an issue)

5. The physicians on the TNBC Foundation Scientific Advisory Board are listed at:
http://www.tnbcfoundation.org/ourpeople.htm

6. Some members newly diagnosed will post on this forum topic/thread asking for information
     about resources in their area. Some members will start a new forum/thread with a title
     like: Looking for TNBC MDs in the _________ area.

7. Start to obtain your reports (labs/imaging/xrays/consults/pathology reports etc) and organize your 
     own personal medical record. 



In addition to the above, some considerations/information from members from recent posts are:
(Physicians are medical oncologists unless noted otherwise) 


ALABAMA 

Andreas Forero, MD               
Cancer Center University of Alabama          Birmingham, Alabama 
http://www1.uabhealth.org/UAB_PF/physician_10084_AndresForero_Torres

CALIFORNIA 

UCSF
- Hope S. Rugo, MD       
      UCSF Helen Diller Family Comprehensive Cancer Center        San Francisco     
      http://www.ucsfhealth.org/cgi-bin/expertDetail.cgi?doctorid=1085
http://cancer.ucsf.edu/people/profiles/rugo_hope.3648    
- Michelle Melisko ,MD                                                                                                            
      UCSF Helen Diller Family Comprehensive Cancer Center          San Francisco
      http://www.ucsfhealth.org/michelle.melisko

Stanford
-   Mark Pegram, MD       
          Stanford Cancer Institute                                 Stanford   CA
        http://med.stanford.edu/profiles/frdActionServlet?choiceId=facProfile&fid=32170
        http://cancer.stanford.edu/breastcancer/
-    George W.Sledge,Jr., MD       
        Stanford Cancer Institute               Stanford, CA
        http://www.tnbcfoundation.org/ourpeople_sledge.htm
        http://med.stanford.edu/profiles/medicine/frdActionServlet?choiceId=facProfile&fid=38346 



FLORIDA 

Edith Perez, MD                                    

Mayo Clinic       Jacksonville.Florida 
http://www.mayoclinic.org/bio/12305359.html 
http://mayoresearch.mayo.edu/staff/perez_ea.cfm

INDIANA 

-Kathy Miller, MD   
   IU Simon Cancer Center Breast Cancer Program          Indianapolis, IN   
   http://www.cancer.iu.edu/patients/find_doctor/physician_bio.php?id=3008


MARYLAND 

-Tatiana (Tanya) Prowell, MD 
     Johns Hopkins                                Baltimore MD 
     http://www.hopkinsmedicine.org/doctors/results/directory/profile/0012228/tanya-prowell?vip_doc=false&lastName=Prowell&nameSearch=Go&hch_doc=no&gs_doc=yes&jh_doc=yes&CLEARPAGECACHE=false&cp_doc=yes

MASSACHUSETTS 

-Eric Winer, MD          
     Dana Farber Cancer Institute                   Boston
     http://doctors.dana-farber.org/directory/profile.asp?dbase=main&setsize=16&pgt=Eric+P.+Winer%2C+MD&grouptype_typeid_data=1&gs=c&nxtfmt=r&display=Y&pict_id=0000262
http://www.tnbcfoundation.org/ourpeople_winer.htm

-Ann Partridge, MD    
     Dana Farber Cancer Institute                    Boston 
     http://doctors.dana-farber.org/directory/profile.asp?dbase=main&setsize=16&last_name=P&pgt=Ann+H%2E+Partridge%2C+MD%2C+MPH&grouptype_typeid_data=1&gs=c&nxtfmt=c&display=Y&pict_id=0000306

MICHIGAN 

Lisa Newman, MD (Surgeon) 
      University of Michigan Cancer Center        Ann Arbor, MI
http://surgery.med.umich.edu/general/patient/faculty/lanewman.shtml
http://www.tnbcfoundation.org/ourpeople_newman.htm

MISSOURI

- Dr. Matthew Ellis
        Washington University School of Medicine     Siteman Cancer Center        St. Louis, MO
        http://wuphysicians.wustl.edu/physician2.aspx?PhysNum=3106
http://hematology.wustl.edu/faculty/ellis/ellisBio.html
       
NEW YORK 

Tiffany Traina, MD        
        Memorial Sloan Kettering Hospital                         New York, New York 
http://www.mskcc.org/prg/prg/bios/955.cfm 

NORTH CAROLINA 

-Lisa Carey, MD       
        University of North Carolina-Lineberger Comprehensive Cancer Center          Chapel HIll, NC 
        http://cancer.unc.edu/research/faculty/displayMember.asp?ID=25 
http://www.tnbcfoundation.org/ourpeople_carey.htm
-Carey Anders, MD           
        University of North Carolina-Lineberger Comprehensive Cancer Center          Chapel HIll, NC 
        http://cancer.unc.edu/research/faculty/displayMember.asp?ID=622
        http://findadoc.unchealthcare.org/directory/profile.asp? dbase=main&setsize=10&last=anders&pict_id=4060785

PENNSYLVANIA 

-Susan Domchek, MD           
     Abramson Cancer Center                        Philadelphia 
     http://www.penncancer.org/patients/find-a-doctor/85/
http://www.tnbcfoundation.org/ourpeople_domchek.htm

-Massimo Cristofanilli, MD     IBC - Inflammatory Breast Cancer expert) 
     Kimmel Cancer Center At Jefferson     Philadelphia
     https://www.jeffersonhospital.org:443/healthcare%20professionals/massimo-cristofanilli
     http://www.jeffersonhospital.org/related?rel=vp&to=0fa744a3-c81a-4d7d-a9e4-cf04bbed896b&ri=eb9c9510-221c-4f38-a790-7c5beeb0bd76


TENNESSEE 

Ingrid Mayer, MD 
       Vanderbilt-Ingram Cancer Center       Nashville, TN
       http://www.vicc.org/dd/display.php?person=ingrid.mayer 


TEXAS

IBC (Inflammatory Breast Cancer) Experts
at MD Anderson                        Houston, Texas
   Vicente Valero, MD    
        http://faculty.mdanderson.org/Vicente_Valero/
        http://www.mdanderson.org/patient-and-cancer-information/care-centers-and-clinics/care-centers/breast/inflammatory-breast-cancer-clinic/index.html
   Naoto Ueno, MD 
        http://faculty.mdanderson.org/Naoto_Ueno/
        http://www.mdanderson.org/patient-and-cancer-information/care-centers-and-clinics/care-centers/breast/inflammatory-breast-cancer-clinic/index.html


CANADA
     There is some resource information on the TNBC Forum "Members in Canada"
        http://forum.tnbcfoundation.org/members-in-canada_topic10264.html#111580



Grateful for today.............Judy





DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Kath72366 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Kath72366 Quote  Post ReplyReply Direct Link To This Post Posted: Nov 07 2014 at 4:51pm
Thank you.
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