2nd opinion
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Topic: 2nd opinion
Posted By: Kath72366
Subject: 2nd opinion
Date Posted: Nov 05 2014 at 9:30pm
My sister in law was diagnosed with stage 2 TNBC. She had a double mastectomy which was supposed to be followed by a course of chemo. So far she has only had 1 chemo. Her white cell count has been too low to take the chemo. I think she needs to get a second opinion. This has been going on for months.
Can anyone recommend a doctor or hospital near Fairfield county, Connecticut? Thanks.
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Replies:
Posted By: LaurieR
Date Posted: Nov 05 2014 at 9:37pm
Go to Dana Farber in Boston. It's not that far away and they are experts. It's important to get a second opinion ASAP.
Keep fighting,
Laurie
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DX 1/14, age 47, Lump 2/14, DD AC/T 2/14-6/14, BMX 7/14, Rads (now)
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Posted By: 123Donna
Date Posted: Nov 06 2014 at 12:25pm
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It sounds like she definitely needs a second opinion quickly! There was a thread a while back where members posted recommendations in their area. It hasn't been updated lately but here it is with some suggestions:
 Grateful for today wrote:
FYI: A member was looking for this thread today.
Thought I would bump it up for new members.
Following was posted above on September 14, 2012:
Grateful for today wrote:
When one is looking for oncologists knowledgeable about TNBC, there are various resources.
What is posted here is informational (general information) from members.
These are not recommendations from the TNBC Foundation.
The decision about your treatment team is yours.
Some things to consider when gathering information for your TNBC treatment team.
1. Check if there is a NCCN (National Comprehensive Cancer Network) Cancer Center
https://www.nccn.org/members/network.asp" rel="nofollow - https://www.nccn.org/members/network.asp
in your area.
2. Check if there is a NCI (National Cancer Institute) Cancer Center in your area.
For appointments at a NCI Center, ask for the TNBC oncologist.
http://www.cancer.gov/researchandfunding/extramural/cancercenters" rel="nofollow - http://www.cancer.gov/researchandfunding/extramural/cancercenters
http://www.cancer.gov/researchandfunding/extramural/cancercenters/find-a-cancer-center" rel="nofollow - http://www.cancer.gov/researchandfunding/extramural/cancercenters/find-a-cancer-center
3. Some members have 2nd opinions when making decisions on their treatment plan.
2nd opinions for any/all parts (chemo-surgery-radiation) of the treatment plan (when indicated).
If one's pathology report was not done by a breast pathologist, a pathology 2nd opinion by
by a breast pathologist (at a NCCN or NCI center if possible) is something to strongly consider.
4. Some members have a local oncologist and have a consult with a NCCN/NCI oncologist.
Then re-consult (2nd opinion) with the NCCN/NCI oncologist if needs arises
(when frequent travel to a NCCN or NCI center is an issue)
5. The physicians on the TNBC Foundation Scientific Advisory Board are listed at:
http://www.tnbcfoundation.org/ourpeople.htm" rel="nofollow - http://www.tnbcfoundation.org/ourpeople.htm
6. Some members newly diagnosed will post on this forum topic/thread asking for information
about resources in their area. Some members will start a new forum/thread with a title
like: Looking for TNBC MDs in the _________ area.
7. Start to obtain your reports (labs/imaging/xrays/consults/pathology reports etc) and organize your
own personal medical record.
In addition to the above, some considerations/information from members from recent posts are:
(Physicians are medical oncologists unless noted otherwise)
ALABAMA
Andreas Forero, MD
Cancer Center University of Alabama Birmingham, Alabama
http://www1.uabhealth.org/UAB_PF/physician_10084_AndresForero_Torres" rel="nofollow - http://www1.uabhealth.org/UAB_PF/physician_10084_AndresForero_Torres
CALIFORNIA
UCSF
- Hope S. Rugo, MD
UCSF Helen Diller Family Comprehensive Cancer Center San Francisco
http://www.ucsfhealth.org/cgi-bin/expertDetail.cgi?doctorid=1085" rel="nofollow - http://www.ucsfhealth.org/cgi-bin/expertDetail.cgi?doctorid=1085
http://cancer.ucsf.edu/people/profiles/rugo_hope.3648" rel="nofollow - http://cancer.ucsf.edu/people/profiles/rugo_hope.3648
- Michelle Melisko ,MD
UCSF Helen Diller Family Comprehensive Cancer Center San Francisco
http://www.ucsfhealth.org/michelle.melisko" rel="nofollow - http://www.ucsfhealth.org/michelle.melisko
Stanford
- Mark Pegram, MD
Stanford Cancer Institute Stanford CA
http://med.stanford.edu/profiles/frdActionServlet?choiceId=facProfile&fid=32170" rel="nofollow - http://med.stanford.edu/profiles/frdActionServlet?choiceId=facProfile&fid=32170
http://cancer.stanford.edu/breastcancer/" rel="nofollow - http://cancer.stanford.edu/breastcancer/
- George W.Sledge,Jr., MD
Stanford Cancer Institute Stanford, CA
http://www.tnbcfoundation.org/ourpeople_sledge.htm" rel="nofollow - http://www.tnbcfoundation.org/ourpeople_sledge.htm
http://med.stanford.edu/profiles/medicine/frdActionServlet?choiceId=facProfile&fid=38346" rel="nofollow - http://med.stanford.edu/profiles/medicine/frdActionServlet?choiceId=facProfile&fid=38346
FLORIDA
Edith Perez, MD
Mayo Clinic Jacksonville.Florida
http://www.mayoclinic.org/bio/12305359.html" rel="nofollow - http://www.mayoclinic.org/bio/12305359.html
http://mayoresearch.mayo.edu/staff/perez_ea.cfm" rel="nofollow - http://mayoresearch.mayo.edu/staff/perez_ea.cfm
INDIANA
-Kathy Miller, MD
IU Simon Cancer Center Breast Cancer Program Indianapolis, IN
http://www.cancer.iu.edu/patients/find_doctor/physician_bio.php?id=3008" rel="nofollow - http://www.cancer.iu.edu/patients/find_doctor/physician_bio.php?id=3008
MARYLAND
-Tatiana (Tanya) Prowell, MD
Johns Hopkins Baltimore MD
http://www.hopkinsmedicine.org/doctors/results/directory/profile/0012228/tanya-prowell?vip_doc=false&lastName=Prowell&nameSearch=Go&hch_doc=no&gs_doc=yes&jh_doc=yes&CLEARPAGECACHE=false&cp_doc=yes" rel="nofollow - http://www.hopkinsmedicine.org/doctors/results/directory/profile/0012228/tanya-prowell?vip_doc=false&lastName=Prowell&nameSearch=Go&hch_doc=no&gs_doc=yes&jh_doc=yes&CLEARPAGECACHE=false&cp_doc=yes
MASSACHUSETTS
-Eric Winer, MD
Dana Farber Cancer Institute Boston
http://doctors.dana-farber.org/directory/profile.asp?dbase=main&setsize=16&pgt=Eric+P.+Winer%2C+MD&grouptype_typeid_data=1&gs=c&nxtfmt=r&display=Y&pict_id=0000262" rel="nofollow - http://doctors.dana-farber.org/directory/profile.asp?dbase=main&setsize=16&pgt=Eric+P.+Winer%2C+MD&grouptype_typeid_data=1&gs=c&nxtfmt=r&display=Y&pict_id=0000262
http://www.tnbcfoundation.org/ourpeople_winer.htm" rel="nofollow - http://www.tnbcfoundation.org/ourpeople_winer.htm
-Ann Partridge, MD
Dana Farber Cancer Institute Boston
http://doctors.dana-farber.org/directory/profile.asp?dbase=main&setsize=16&last_name=P&pgt=Ann+H%2E+Partridge%2C+MD%2C+MPH&grouptype_typeid_data=1&gs=c&nxtfmt=c&display=Y&pict_id=0000306" rel="nofollow - http://doctors.dana-farber.org/directory/profile.asp?dbase=main&setsize=16&last_name=P&pgt=Ann+H%2E+Partridge%2C+MD%2C+MPH&grouptype_typeid_data=1&gs=c&nxtfmt=c&display=Y&pict_id=0000306
MICHIGAN
Lisa Newman, MD (Surgeon)
University of Michigan Cancer Center Ann Arbor, MI
http://surgery.med.umich.edu/general/patient/faculty/lanewman.shtml" rel="nofollow - http://surgery.med.umich.edu/general/patient/faculty/lanewman.shtml
http://www.tnbcfoundation.org/ourpeople_newman.htm" rel="nofollow - http://www.tnbcfoundation.org/ourpeople_newman.htm
MISSOURI
- Dr. Matthew Ellis
Washington University School of Medicine Siteman Cancer Center St. Louis, MO
http://wuphysicians.wustl.edu/physician2.aspx?PhysNum=3106" rel="nofollow - http://wuphysicians.wustl.edu/physician2.aspx?PhysNum=3106
http://hematology.wustl.edu/faculty/ellis/ellisBio.html" rel="nofollow - http://hematology.wustl.edu/faculty/ellis/ellisBio.html
NEW YORK
Tiffany Traina, MD
Memorial Sloan Kettering Hospital New York, New York
http://www.mskcc.org/prg/prg/bios/955.cfm" rel="nofollow - http://www.mskcc.org/prg/prg/bios/955.cfm
NORTH CAROLINA
-Lisa Carey, MD
University of North Carolina-Lineberger Comprehensive Cancer Center Chapel HIll, NC
http://cancer.unc.edu/research/faculty/displayMember.asp?ID=25" rel="nofollow - http://cancer.unc.edu/research/faculty/displayMember.asp?ID=25
http://www.tnbcfoundation.org/ourpeople_carey.htm" rel="nofollow - http://www.tnbcfoundation.org/ourpeople_carey.htm
-Carey Anders, MD
University of North Carolina-Lineberger Comprehensive Cancer Center Chapel HIll, NC
http://cancer.unc.edu/research/faculty/displayMember.asp?ID=622" rel="nofollow - http://cancer.unc.edu/research/faculty/displayMember.asp?ID=622
http://findadoc.unchealthcare.org/directory/profile.asp?%20%20dbase=main&setsize=10&last=anders&pict_id=4060785" rel="nofollow - http://findadoc.unchealthcare.org/directory/profile.asp? dbase=main&setsize=10&last=anders&pict_id=4060785
PENNSYLVANIA
-Susan Domchek, MD
Abramson Cancer Center Philadelphia
http://www.penncancer.org/patients/find-a-doctor/85/" rel="nofollow - http://www.penncancer.org/patients/find-a-doctor/85/
http://www.tnbcfoundation.org/ourpeople_domchek.htm" rel="nofollow - http://www.tnbcfoundation.org/ourpeople_domchek.htm
-Massimo Cristofanilli, MD IBC - Inflammatory Breast Cancer expert)
Kimmel Cancer Center At Jefferson Philadelphia
https://www.jeffersonhospital.org/healthcare%20professionals/massimo-cristofanilli" rel="nofollow - https://www.jeffersonhospital.org:443/healthcare%20professionals/massimo-cristofanilli
http://www.jeffersonhospital.org/related?rel=vp&to=0fa744a3-c81a-4d7d-a9e4-cf04bbed896b&ri=eb9c9510-221c-4f38-a790-7c5beeb0bd76" rel="nofollow - http://www.jeffersonhospital.org/related?rel=vp&to=0fa744a3-c81a-4d7d-a9e4-cf04bbed896b&ri=eb9c9510-221c-4f38-a790-7c5beeb0bd76
TENNESSEE
Ingrid Mayer, MD
Vanderbilt-Ingram Cancer Center Nashville, TN
http://www.vicc.org/dd/display.php?person=ingrid.mayer" rel="nofollow - http://www.vicc.org/dd/display.php?person=ingrid.mayer
TEXAS
IBC (Inflammatory Breast Cancer) Experts
at MD Anderson Houston, Texas
Vicente Valero, MD
http://faculty.mdanderson.org/Vicente_Valero/" rel="nofollow - http://faculty.mdanderson.org/Vicente_Valero/
http://www.mdanderson.org/patient-and-cancer-information/care-centers-and-clinics/care-centers/breast/inflammatory-breast-cancer-clinic/index.html" rel="nofollow - http://www.mdanderson.org/patient-and-cancer-information/care-centers-and-clinics/care-centers/breast/inflammatory-breast-cancer-clinic/index.html
Naoto Ueno, MD
http://faculty.mdanderson.org/Naoto_Ueno/" rel="nofollow - http://faculty.mdanderson.org/Naoto_Ueno/
http://www.mdanderson.org/patient-and-cancer-information/care-centers-and-clinics/care-centers/breast/inflammatory-breast-cancer-clinic/index.html" rel="nofollow - http://www.mdanderson.org/patient-and-cancer-information/care-centers-and-clinics/care-centers/breast/inflammatory-breast-cancer-clinic/index.html
CANADA
There is some resource information on the TNBC Forum "Members in Canada"
http://forum.tnbcfoundation.org/members-in-canada_topic10264.html#111580" rel="nofollow - http://forum.tnbcfoundation.org/members-in-canada_topic10264.html#111580
Grateful for today.............Judy
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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Posted By: Kath72366
Date Posted: Nov 07 2014 at 4:51pm
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