New Posts New Posts RSS Feed - Yoga-an Integral Part of Sari's 9 year survival
  FAQ FAQ  Forum Search   Events   Register Register  Login Login

Yoga-an Integral Part of Sari's 9 year survival

 Post Reply Post Reply
Author
SagePatientAdvocates View Drop Down
Senior Advisor
Senior Advisor
Avatar

Joined: Apr 15 2009
Status: Offline
Points: 4748
Post Options Post Options   Thanks (0) Thanks(0)   Quote SagePatientAdvocates Quote  Post ReplyReply Direct Link To This Post Topic: Yoga-an Integral Part of Sari's 9 year survival
    Posted: Aug 25 2013 at 10:46am
My dear daughter's name is Sari. Not a name I picked from some book but one that was engraved in my heart as it was my Mother's name. My mother, at age 46, died when I was 20, from Metastatic Breast Cancer (most likely TNBC), and unfortunately never saw her first grandchild.

My first daughter was always going to be named Sari and not only does she carry her name but at times the warmth in her eyes reminds me of my Mother and at times the similarity is so striking that it makes me happy and sad, all at the same time. Happy that my mother is still here, not only in my heart but in some of my daughter's features and sad that they never met. A loss for my mom who adored children and for my children who never saw her except through my stories and as an deceased friend of mine used to say "pictures on a wall." Most BRCA families, like ours, have too many pictures on a wall. 

Through some magic that it not understood, but joyfully accepted, Sari is now a 9 year TNBC survivor. 

I had asked Sari if she wanted to post under her name and she would prefer that I do it but please send me a PM if you would like to contact her and I will pass her contact info along.

love to all, here, especially my dear Sari...so lovely to see your eloquent words on our beloved TNBC Foundation forum.

always,

Steve

..................................................

Here are her unedited words

I just spent two days in San Diego with my father celebrating my nine year battle and, thus far, victory over cancer.  I can't imagine deeply reflecting on this bittersweet anniversary with anyone else and am grateful we were both able to spend the time together.  At dinner last night, in discussing how my life has changed, I was describing my intense passion for yoga and with my Dad's encouragement, decided to share my experience with you.  This is a survivor story.

After a cancer diagnosis at age 36, lumpectomy, bilateral mastectomies, finding out I was BRCA positive, undergoing intense chemotherapy, having a total hysterectomy and not being able to have my own children ... I found myself spiritually, emotionally and physically in a black hole.  Although I still have my moments in these dark depths, I have found a tremendous sense of peace in yoga. 

I was concerned at first about doing yoga because the skin on my chest and the underlying  muscles had been severely compromised.  I didn't want more injury and didn't want to compromise the surgery, but also felt literally uncomfortable in my skin (chest) and weak overall.  Surviving cancer gave me not only the permission, but also the mandate, to take much better care of my physical health and since I wasn't a gym person and didn't  want to bounce around on the tennis court, I thought yoga would make sense.

I called a couple of local studios, tried a few classes and found my niche. I took a beginners series, started with level one classes and my love affair with yoga began.   The more I practiced, the more I felt the benefits .. and the better I felt, the more I went.  At  this point, although I continue to modify poses when necessary, I am on my mat 5 to 6 days a week and am actually amazed with how flexible and strong I have become - especially in light of how obliterated and depleted I felt by cancer.  

Yoga is so many things for me.  It's a slowing down of the body and mind. It's a time for me to forget about what happened that day, what might happen in the future and truly listen, and respond, to what my body needs.  It allows me to push myself to my physical edge mindfully and tenderly ... and to take rest when necessary.  It affords me a little over an hour where I feel both beautiful and strong... my insecurities about my reconstruction are quieted, my cancer demons are asleep and I am totally focused on breathing.  It also allows me to feel the deep, delicious sensations of stretch, length and twist in my spine and limbs and has kept my chest, back and hips as limber as they can be. I have cried (unintentionally) several times on my mat which has simply served as a much needed release of stress, tension and emotional pain.

Yoga detoxifies and helps me feel centered. It is a quiet, personal, graceful, and sacred space to take care of myself, stay strong (both physically and mentally) and love myself.   It is a form of exercise that is relaxing, challenging, spiritually fulfilling, peaceful, and healing all at the same time. The fact that I've shed some weight and am physically fit (for the first time in my adult life) is GRAVY. I can't imagine my life without yoga and don't leave home without my mat. If you have any questions, feel free to get in touch and if you get into yoga because of my story, I would love to hear about it!

My dad and I recognize that yoga may not help everyone but I wanted to share my story. I am sending all here my heartfelt best wishes and prayers that you find some peace.

With love,

Sari
 




Edited by steve - Aug 25 2013 at 11:39am
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
Back to Top
krisa View Drop Down
Senior Member
Senior Member
Avatar

Joined: May 21 2008
Location: Portland, OR
Status: Offline
Points: 1090
Post Options Post Options   Thanks (0) Thanks(0)   Quote krisa Quote  Post ReplyReply Direct Link To This Post Posted: Aug 25 2013 at 11:35am
Thank you so much, Sari, for sharing your story. You have been through so much, what a strong woman you are! (Even before Yoga)
my daughter will have a complete hysterectomy next month( 36 years old) it became apparent years ago she would not be able to have children. A concern I have is the lack of hormones after this surgery for young women. I will send my daughter your message.
Back to Top
Grateful for today View Drop Down
Senior Member
Senior Member
Avatar

Joined: Sep 21 2011
Location: U.S.A.
Status: Offline
Points: 1835
Post Options Post Options   Thanks (0) Thanks(0)   Quote Grateful for today Quote  Post ReplyReply Direct Link To This Post Posted: Aug 25 2013 at 10:19pm
Sari,

What an inspiring story you shared with us........how you found yoga, how beautifully you describe
your yoga experience, and being a 9 nine year survivor/thriver.   Thank you so much for being so
open and sharing with us.   

As you were describing yoga.........being centered, quiet, personal, graceful, sacred, caring, strong,
loving....as well as relaxing, challenging, spiritually fulfilling, peaceful, and healing all at the same time
I could not help but think..........those words also describe Sari.


Sending you heartfelt best wishes and prayers for peace
And with caring and positive thoughts,
Grateful for today..............Judy
Back to Top
Billi View Drop Down
Newbie
Newbie
Avatar

Joined: Jul 05 2013
Location: NYC
Status: Offline
Points: 4
Post Options Post Options   Thanks (0) Thanks(0)   Quote Billi Quote  Post ReplyReply Direct Link To This Post Posted: Aug 25 2013 at 11:24pm
Oh Sari...what a wonderful story...gives us all courage and hope, and I thank you for sharing it here.
9 years sounds like a dream, so glad you're living it to the fullest. Heartfelt wishes for much, much, more!
Billi
Back to Top
christina1961 View Drop Down
Senior Member
Senior Member
Avatar

Joined: Feb 08 2011
Status: Offline
Points: 165
Post Options Post Options   Thanks (0) Thanks(0)   Quote christina1961 Quote  Post ReplyReply Direct Link To This Post Posted: Aug 26 2013 at 10:59am
Thank you, Sari. It is wonderful to read what yoga has given emotionally and physically.  Also, nine years is very inspiring!  Best wishes.
2.5 cm TNBC, BRCA-, diag. 2/11, neoadj chemotherapy, uni MX, y2cm,2/16 nodes, RCBII, tumor retested 5-10%ER+,PR-,Her2-, rads, clin trial eribulin 10/11-2/12, tamox.
Back to Top
dmwolf View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jan 22 2009
Location: Berkeley, CA
Status: Offline
Points: 3619
Post Options Post Options   Thanks (0) Thanks(0)   Quote dmwolf Quote  Post ReplyReply Direct Link To This Post Posted: Aug 26 2013 at 2:11pm
Steve, give Sari a warm hug for me.   I'm so glad you posted her words, and even gladder that she has found peace through yoga, which I find very centering as well.
love,
d

DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
Back to Top
arabella View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jan 28 2013
Location: Alabama
Status: Offline
Points: 288
Post Options Post Options   Thanks (0) Thanks(0)   Quote arabella Quote  Post ReplyReply Direct Link To This Post Posted: Aug 26 2013 at 6:39pm
I love Sari's name!  Also enjoyed reading her inspiring words.  I attended a few yoga classes "before breast cancer".  Sari has inspired me to think about doing it again.....maybe this time at home with  a good dvd.  I do all I can to be in the present moment and I know how helpful this could be for me.
Steve, thanks for posting and thank Sari for taking the time to put her feelings into words.
Hugs to you & Sari,
Kaye
Dx TNBC 1/2013; age 63; 1.1 cm; Stage 1, Grade 1(?); lumpectomy clear margins; ALND -; severe SEs to first TC and treatment stopped; radsX25; BRCA -
Recur 6/2015 Mastectomy
Back to Top
SagePatientAdvocates View Drop Down
Senior Advisor
Senior Advisor
Avatar

Joined: Apr 15 2009
Status: Offline
Points: 4748
Post Options Post Options   Thanks (0) Thanks(0)   Quote SagePatientAdvocates Quote  Post ReplyReply Direct Link To This Post Posted: Aug 26 2013 at 8:11pm
Dear Denise,

Hugs....always so, so important to us...Denise, your warm hug will definitely be passed along. Thank you.

Before Sari's surgery, I used to hug her really hard, but with great tenderness at the same time. And she reciprocated. Beautiful hugs. I hug all my children tightly. Always have.

Sari and I discussed what to do regarding hugs just after her surgery and we came up with a game plan to adjust for things. She was very nervous, originally, that I might cause her pain or that her implants would be damaged so we decided she would control the pressure/strength of the hugs. We barely touched the first time but 9 years later, with Sari having a lot more confidence, our hugs a few days ago were pretty close to the originals.

I know in the overall scheme of things this may seem to be trivial to some; but for us, we both really missed those hugs and it is wonderful that they are back. I credit yoga playing a major role in Sari's ability to hug again and for that reason, I am so very, very grateful. 

The other thing that I find wonderful about Sari's yoga experience is that she encountered certain yoga instructors who were not especially knowledgeable about teaching various positions to women who have had mastectomies and the other day in front of a master class of instructors, Sari showed them why certain poses were especially difficult, even dangerous, for her to do.

I would suggest, for those of you considering yoga, that you make sure your instructors are knowledgeable about poses women, who have had breast surgery/surgeries, can safely make part of their routines. As Sari wrote, she would be happy to help if anyone has any questions about this. She is not a yoga professional but she "gets" what challenges various poses present. 

I hope that those of you who may possibly choose to become involved with yoga do so safely and may it bring you strength and peace.

with love to all,

Steve

p.s. Kaye, I love Sari's name, too and I adore her.


Edited by steve - Aug 27 2013 at 12:02am
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
Back to Top
btstark2003 View Drop Down
Senior Member
Senior Member
Avatar

Joined: Apr 24 2010
Location: St. Louis area
Status: Offline
Points: 426
Post Options Post Options   Thanks (0) Thanks(0)   Quote btstark2003 Quote  Post ReplyReply Direct Link To This Post Posted: Aug 26 2013 at 10:52pm
Thanks Steve and Sari for sharing.  Sari, I feel like I have known you for some time now because Steve has shared your story with me.  It is fabulous to hear about how you are thriving.  I too have been doing yoga as part of my anti-cancer lifestyle.  

There were times when I was very fatigued from chemo but I knew that I needed to keep moving and I also needed a way to quiet my mind, and yoga was perfect.  Sometimes I could only manage 5 or 10 minutes of stretching and gentle poses, but I also felt stronger and more peaceful afterwards.  I am happy to report that now I am strong and healthy and I feel like vigorous exercise is going to be key to keeping cancer at bay in the future!

Thanks again Sari for your word of inspiration!  Your description of what yoga does for you is moving and eloquent.

BIG HUGS!

Beth
2008 Stg1 TNBC, LX, FEC+T, rads
2010 2.5cm tumor BRCA-, BMX,CMF
2011 LN mets, Gem/Carbo, surgery, rads
2012 lung mets, PI3Ki/taxo
2013 anti-PD-1
2014/15 Xeloda, IMMU-132, eribulin
Aug 2015 Keytruda
Back to Top
123Donna View Drop Down
Senior Member
Senior Member
Avatar

Joined: Aug 24 2009
Location: St. Louis, MO
Status: Offline
Points: 13510
Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Aug 26 2013 at 11:17pm
Sari,

A beautiful name for a beautiful person.  Thank you for sharing your passion for yoga.  It reminds me why I need to get back to yoga again.   Congratulations on being a 9 year survivor.  

Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

Back to Top
 Post Reply Post Reply
  Share Topic   

Forum Jump Forum Permissions View Drop Down

Forum Software by Web Wiz Forums® version 12.01
Copyright ©2001-2018 Web Wiz Ltd.