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Xeloda - Oral Chemo - Any Suggestions?

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Barbs View Drop Down
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    Posted: Oct 27 2020 at 10:17pm
I am a 70 year old woman diagnosed in March of this year with TNBC in the left breast with 3 involved nodes.  I had 12 Taxol/Carboplatin chemos and 4 A/C chemos that resulted in significant shrinkage of the tumors.  Two weeks ago I had a lumpectomy and 16 nodes removed.  Pathology of the breast tissue showed no cancer cells and clear margins. However 2 of the 16 nodes that were removed tested positive for cancer cells.  Today my oncologist gave me a grade of B+ with regard to success.  However, he is now recommending an 8 course treatment of an oral chemo drug Xeloda (Capecitabine) over a span of 6 months.  Has anyone else had experience with this drug?  Side effects can be pretty bad - is it worth the time, expense and pain.  A recent study indicates a 10-20% improvement in odds of non recurrence. 
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SagePatientAdvocates View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote SagePatientAdvocates Quote  Post ReplyReply Direct Link To This Post Posted: Oct 28 2020 at 9:18am
Dear Barbs,

I don't think anyone here can tell you whether the Xeloda "is it worth the time, expense and pain?" We, including me, are not medical professionals and I suggest you speak to a 
Breast Medical Oncologist to get a second opinion on your case, if you are willing to, rather than relying on anyone here.

Depending on where you live, your insurance coverage and willingness to travel I may be able to find someone you can speak to who is knowledgeable about TNBC and 
may reaffirm the Xeloda suggestion or not.

I have helped many who have taken Xeloda and here is a link from Mayo Clinic that describes the drug and if you scroil down you will see many side effects listed. If you decide to take the drug you may experience some of the side effects, but, often, not all of them. From my experience you may experience some of them but everyone is different and the side effects are often different for each person. 

Here is the link-

https://www.mayoclinic.org/drugs-supplements/capecitabine-oral-route/side-effects/drg-20062501?p=1

wishing you good luck no matter what you decide.

Please send me a Private Message and I will send you my phone number if you would like to talk but, again, I will not tell you whether or not to take Xeloda or any other drug. 

warmly,

Steve 


Edited by SagePatientAdvocates - Oct 28 2020 at 9:21am
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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123Donna View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Oct 28 2020 at 9:26am
Hi Barbs,

There have been several members take Xeloda after neoadjuvant chemo.  I'll post the threads on the subject.  My only thought about this disease is we only get one chance to try and kill this beast the first time.




Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Debaura211 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Debaura211 Quote  Post ReplyReply Direct Link To This Post Posted: Dec 16 2020 at 8:42pm
Is anyone doing metronomic xeloda - about 1/2 the dosage of the 2 week on/one off 6 month regiment, but for a year?
Deborah
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