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sweetpickle
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Topic: Working through treatment? Posted: Dec 10 2012 at 7:35pm |
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I know everyone is different but I was curious how many people were able to continue to work while being treated for TNBC. As the main bread winner for my family, I scared of the financial mess this will make for us on top of worrying about my health.
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11/13/12 DX TNBC, BRCA 1+ Grade 3, 4.3cm tumor, susp. node under arm, 4 A/C biweekly & 4 Taxol biweekly
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kirby
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Location: bay area,california
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Posted: Dec 10 2012 at 8:48pm |
I worked thru tx but I did only have 4tx of AC. I had a client, also TN that worked thru tx in 2006/2007 that had the more aggressive protocol that is still given today. I think it depends upon your job. I am a self employed hairdresser so was able to have control of work time. The first 2 tx I kept things pretty much the same but for the 3 & 4, I spaced out appts. to have a break inbetween to go to a quiet corner and regroup. I normally worked Wed. thru Sat. I would have chemo first thing Monday morning and be to work on Wed. The last chemo I took Wed. off, working 3 days that week. My customer that worked, worked for a construction outfit and had a private office. She would have chemo on Friday's and be ready for work on Monday. With having an office, she was able to take breaks when needed. Her employer was very supportive. My onc always told me to do what I felt able. He saw no reason to not work, even with it being with the public. I was also a single mom and had 2 daughters, 9 & 13 at the time. Being self employed, I pay privately for the state disability. I received compensation for being on a reduced work schedule. They dont volunteer this info but in talking to reps from EDD, found it was available. I used it again, just a few years ago, when I broke my knee. Certainly ask. And don't be afraid to ask for supervisors. I also did accupuncture, which i credit for maintaing my energy level. I didn't start accupuncture until the first week after my first chemo. After that, I had accupuncture scheduled for an hour after I finished chemo. The difference was tremendous. I've had accupuncture for various thing since, and always quit because I didn't notice any difference or benefit and it is costly.
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kirby
dx Feb. 2001. Age 44 Lumpectomy
2cm. no nodes stage 1 grade 3
4 rnds AC, 35 rads
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dldlogan
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Joined: Sep 02 2012
Location: Phoenix, OR
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Posted: Dec 10 2012 at 9:10pm |
Sweetpickle,
I just finished my fourth round of AC on November 29th. I start Taxol on December 20 for 12 weeks. I have managed to work thru things so far. I have chemo on Thursday, work on Friday and lay low all weekend so I'm back as best I can be on Monday. I also have been working 10 hour days when I can so I don't run short on hours. Oregon has no OT laws about more than 8 in a day are paid OT. I used up all my vacation hours going thru the surgery etc. I cannot exist on a short paycheck. I have the most understanding boss and manager. They let me work at my own pace, and as long as they don't have to cover for me all is great. I'm a bookkeeper, so keeping things straight is sometimes a struggle, but am able to keep it together.
I wish you all the best in your efforts and hope you have an understanding working situation. It can make all the difference in the world when you have people around you who are willing to work with you as long as you put out the effort.
Lots of Love,
Diana
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Diagnosis 6/25/12 Biopsy 7/20/12 Mastectomy 8/15/12 IDC 1.9 cm TN Gr 3 Stage I Chemo Start 9/27/12 ACT Done 3/7/13 BRCA Neg Reoccurence-Lung 12/3/13-Biopsy 12/16/13 Brain MRI 2/20/14 Stage IV
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debB
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Joined: Sep 14 2011
Location: Central Illinoi
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Posted: Dec 10 2012 at 11:00pm |
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Hi Sweetpickle,
I too am self-employed, so have some flexibility, but was able to work all the way through treatment. I had my treatments on Friday, laid low for the weekend and was back at it on Monday. There were days that I was able to rest a little in the afternoon, but never missed a day! You are right though, everyone reacts differently.
Best of luck,
Deb
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Dx 4/29/11, 46 yrs old, 3.9 cm tumor, Stg 2 Grade 3 chemo 4 rounds DD AC, 12 weekly taxol, finish. Lumpectomy, 2mm residual tumor. 37 rounds rads completed. Cisplatin/PARP trial
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sweetpickle
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Joined: Nov 28 2012
Location: North Carolina
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Posted: Dec 11 2012 at 6:57am |
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I have a very supportive Boss so I'm very grateful for that, thank you for sharing your experiences as it gives me hope that I can continue to work through this.
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11/13/12 DX TNBC, BRCA 1+ Grade 3, 4.3cm tumor, susp. node under arm, 4 A/C biweekly & 4 Taxol biweekly
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ann u
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Posted: Dec 11 2012 at 9:58am |
I think you have to "pick and choose" what is important to you. Be realistic with what you can accomplish. If you have to work, realize that this is what is probably going to zap all of your energy. The housework and/or yardwork can wait (hire someone if you can, or maybe make these things the "what can I do to help you" offers that you will get from friends). If you have a grocery store that offers delivery service, do it. Anything that will allow you to rest. It's sometimes hard for women to accept help from others, as we have that gene in us that makes us feel like we can do anything and everything. Now is the time to be selfish and make yourself the #1 priority. Ann
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8/06: IDC 1cm, 0/9 lymph nodes, lumpectomy, Mammosite radiation, 4 x A/C
5/07: BRCA1+ (5382insC)
11/09: IDC 3mm, double mastectomy w/reconstruction
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SKC2012
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Posted: Dec 12 2012 at 12:19am |
I have pretty much worked through lumpectomy so far (just took a few days off plus weekend) but my job is not physical. I plan to work through chemo, my doctor said MANY of his patients do the chemo on a Thursday and then are back to work by Monday. Not sure how frequently you might have your treatment; I am supposed to have mine every two weeks. I think taking a few days every couple of weeks would not be a problem for continuing to work.
I have an option not to work and go on partially paid short term disability, HOWEVER I think it will be best for me emotionally to keep a productive routine. Laying around at home staring at the walls all day while my kids are at school and husband and friends are at work would surely send me into depression.
But every person is different and everyone probably has different side effects. You may just have to wait and see how you feel.
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Dx IDC TNBC 10/24/12, 34 yrs old, Stage IIA, Grade 3, 2.1 cm, BRCA-
11/28/12 Lumpectomy and SLND 0/2 Nodes.
12/20/12 Dose Dense AC x 4 + Taxol x 4
Next: radiation
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turtle
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Joined: Feb 05 2012
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Posted: Dec 12 2012 at 10:55am |
Sweet pickle,
I too am the main bread winner of my family. During my treatments (TAC X 6), I worked at Duke, where I was also being treated, and initially, my boss was very supportive and understanding. On the days I received chemo (Mondays), I would miss a day, then work the next day, then often start feeling really bad and take off Wed, then Friday as well, when the flu-like side effects of the Neulasta shot would hit me. The following 2 weeks I was always back at work as usual, and generally felt ok. There were two weeks during treatment that I felt bad enough that I stayed home for the entire week. Although I was able to go in, I was certainly not as productive as I normally would be. After chemo, I underwent 6 weeks of radiation, and again, since I worked and was being treated at Duke, I'd go to work, work for a bit, walk over the hospital and get zapped, then come back and work the rest of the day.
All things considered, I felt I did my best to contribute and be as "normal" as possible, never complaining about any symptoms or the emotional strain I was going through. Unfortunately, my supervisor must have perceived me as a whiny slacker, because she fired me before I was able to have my second surgery. Some who I worked with said maybe I should have just taken a leave of absence, so she wouldn't have these enormous misconceptions about my ability (or lack thereof) to just carry on as usual. I believe I was subconsciously discriminated against, so when I went to look for another job, I wore a wig, and did not, and have not, disclosed that I have cancer. At the end of my time at Duke, an article came out in the newsletter for employees about another employee diagnosed with BRCA2+ cancer (like me). In her case, her supervisor and co-workers donated their sick time so she could take a leave of absence (8 months) while undergoing treatment. She was then able to return to work, and carry on as normal (she is also NOT TN, but rather ER+). This infuriated me as I had been treated so differently...I would also like to add that I was a postdoctoral scientist in this position at Duke, the lab that I worked on was funded in part by a breast cancer grant, so it seems pretty remarkable that my boss could be so utterly lacking in any form of moral compass in my circumstance, but that's how it was. I say all this, because I am still angry (but trying to move on, and in fact, am quite happy in my new position), AND everybody's situation is different. How you do thru chemo depends on how healthy you are going in, and how you are treated at work will depend on the personalities of those you work for and with. It's just one more side effect that we have to deal with, unfortunately.
I wish you the best of luck in any case. Feel free to PM me if you like, I see that we are both in NC
Hugs
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DX IDC TNBC 1/15/12 @ 46; MRI 2.4cm gr3 BRCA2+ 6174delT; LMX 1/31/12 2.5cm, pT2pNO(i)pMX, lymphovascular invasion present; 2/20/12 TAC X 6; 7/2/12 Rad X 25; 9/27/2012 2nd mastectomy & BSO surgery
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Lee21
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Location: Michigan
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Posted: Dec 12 2012 at 11:44am |
Hi Turtle Really good to hear from you and that you like your new job. The anger and frustration with your old employer is still a fresh wound but with time that phase of your life will fade into oblivion. You did the right thing not disclosing your medical history. By all accounts you are cured and don't anticipate being any different than all the other "well" employees. Your ability to move forward will be the most important thing- I am working on that with some success. Will be more successful once I am done with my current treatment. Lee
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12/9/11 @59,IDC,grade3, TNBC,3cm(MRI),SLNB0,stage IIA, BRCA1 variant 1/30/12 DD AC-T, 6/7/12 Lumpectomy, ypT1b(0.8 cm), 7/9/12 Rads x 30 11/9/12, clinical trial cisplatin/rucaparib, cisplatin-only arm
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sweetpickle
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Posted: Dec 12 2012 at 6:59pm |
Hi Turtle,
Wow, I'm so sorry that you had to go through that! Glad you found a new job and thank you for sharing your experience. I'm holding things together at work so far, I've been an emotional wreck on the inside but trying not to let that come out there. My poor family has to deal with it though when I get home. Ugh, hating this for all of us.
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11/13/12 DX TNBC, BRCA 1+ Grade 3, 4.3cm tumor, susp. node under arm, 4 A/C biweekly & 4 Taxol biweekly
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Katdoll
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Posted: Dec 12 2012 at 7:35pm |
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Sweetpickle,
Everyone is different, but here's my experience. I am a single mom and the primary provider for my child. I was in chemo for 18 weeks - 4 doses of AC every other week and then 4 doses of taxol every other week. I took every other Friday off for the infusions. I was able to work 35-40 hours a week during that period. Was also able to keep up a pretty rigorous daily exercise routine. It wasn't easy...but it wasn't as hard as I thought it might be. I think exercises really helped my level of functioning, and there are research studies backing this up.
Take care.
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Tested positive for BRCA1 mutation (187delAG) in 4/09 @ age 44; BSO 9/09; diagnosed w/TNBC in 10/09; 1 cm Stage 1 TNBC IDC, grade 3 + 1.5 cm DCIS; BMX 11/09, nodes clear; chemo (AC/T).
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SleepyDean
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Posted: Dec 14 2012 at 6:26pm |
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My mom is a total rock star. She is making it to work most days now as she goes through her 12 weekly Taxol treatments. Her work set her up to work from home as much as possible during her first couple of surgeries and the A+C chemo rounds. She goes in later than normal and leaves before 5, but her employer is surprisingly being really supportive. She is an exempt employee so she doesn't have traditional sick time, but they haven't docked her at all for the time she is missing out on.
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Caregiver to 57 yo mother, Stage IIb - 1 node. Lumpectomy 7/12. 4 rounds of AC down, and over half of 12 weeks of Taxol completed. Mastectomy and radiation to follow in early 2013. No BRCA mutations!
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Loafer
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Posted: Dec 23 2012 at 4:50pm |
Sweet pickle - I am working through treatment now. I had a lumpectomy and took a week off work. I also take off the day of chemo and have the ability to work from home during the nulesta side effects. For me, that 48 hours is the most difficult of all. I generally work 12 hours per day, including my 2 hour commute. I find myself pretty exhausted now around 4pm and have been working fewer hours. During this third treatment, I've been working from home on Wednesdays to eliminate the commute and rest midweek.
I also took a business trip after second chemo to Florida with no problems. It was therapeutic to be treated so normally - sunshine helped the body/mind/sole - many coworkers did not know i had cancer. i am only working, eating dinner and crashing at 8pm - not much of a life - but it certainly takes your mind off cancer!
You will need a strong support system and someone else to cook/clean if you intend to work full time. It's doable, as long as you listen to your body and have a supportive team at work!
People at work truly care about my well being so i don't need to be an overachiever and can take care of myself!
Good luck!
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