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Tiffany View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Tiffany Quote  Post ReplyReply Direct Link To This Post Posted: Mar 21 2023 at 8:13pm
Hi Wendy,

Your treatments are a bit more intense than mine.  I have had severe bone pain and exhaustion after the Neulasta.  The medication stimulates neutrophil production so it makes sense my bones will ache but good grief!  Itís bad.  Today is day 4 post Neulasta so Iím hoping I stop feeling my clavicles, pelvis and ears ache soon.  

How are you holding up?  If you are a bit fatigued and thatís it I think that is a win!  Iím glad you are not working now, this has been a tough few days.  Please try to stay positive and we will get through this!

Hugs and good thoughts!
Tiffany
Dx: Feb 2023 TNBC, Grade 3, Stage IIB. BRCA 2+ TCx6 treatments started 16MAR23.
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Wendjc View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Wendjc Quote  Post ReplyReply Direct Link To This Post Posted: Mar 23 2023 at 2:02am
hi Tiffany,
I hope your bone pain has improved, I had the odd shooting bone pain but nothing too bad. Have you got treatment today? If so, I hope it goes well.
I had just taxol yesterday and felt well enough to go to lunch. Today Iím feeling great, Iíve even done some reformer Pilates! I didnít expect to have any days this good so everyone I get is a bonus.
I really hope you feel better after this weeks treatment. Do you have the neulasta weekly? Is it worth having if it causes so much pain? Iíll google now!
Big hugs and lots of strength 😘
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Tiffany View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Tiffany Quote  Post ReplyReply Direct Link To This Post Posted: Apr 02 2023 at 9:55pm
Hi Wendjc,

How are you doing?  How are your weekly treatments?  I hope you are well and still able to lunch with hubby and do Pilates!  My 2nd treatment is Thursday and Iím ready.  Iím hoping the Neulasta aftermath isnít as bad as the last time.  I had such body aches for almost a week.  

I got my hair shaved off last week.  Iím glad I did because now it is starting to fall out.  Oh well...it will come back.  I hope you and your family are well and I am sending hugs and positivity your way!

All my best~
Tiffany
Dx: Feb 2023 TNBC, Grade 3, Stage IIB. BRCA 2+ TCx6 treatments started 16MAR23.
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Wendjc View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Wendjc Quote  Post ReplyReply Direct Link To This Post Posted: Apr 03 2023 at 8:35am
Hi Tiffany,

Sorry to hear you had a whole week of pain. Are  the Neulasta side effects worth the benefits? I donít know too much about it. My bloods took a bit of a dive last week but they were ok again this week, which was a relief.
I had my carbo and taxol (2nd round) today, early because of Easter and another holiday here this Wednesday. It went ok, feel fine so far but tomorrow might be different 🤞
The taxol only weeks have been completely fine! Double weeks are a bit worse but very tolerable.
I also shaved my head last week! Hair was coming out so my husband shaved both of heads and we had a Prosecco! Itíll grow back so I really wasnít at all bothered. Are you covering it yet? Iím just wearing mine as my Ďlookí, nobody seems to take too much notice really! I wish I could add a photo to show you!
Still walking dogs, doing light Pilates, having the occasional lunch out. It would be great if this 12 weeks stays like this! I know my second 12 is much harsher so these good days really are a bonus!
I hope youíre better this round. After the first week are you managing a relatively normal life also. I really hope so 🤞
Best of luck and big hugs for this next round
Xxx
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Tiffany View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Tiffany Quote  Post ReplyReply Direct Link To This Post Posted: Apr 04 2023 at 10:18pm
Hi Wendjc,  

It is so good to hear from you and I am happy you are well and still active!  I too am wearing my shaved head out, no wig or scarves.  I only wear a cap to protect from the sun when walking my dogs.  The sun feels fantastic on my head!  How is the weather in HK?

Congrats on completing #2!  Iím glad your treatments are tolerable.  Neulasta is worth the bone pain.  If I have to endure bone pain for neutrophils then that is what I will do.  At least I know now what to expect .  

Your husband is such a wonderful guy and Iím so happy you have each other!  Iím excited to get #2 done, then only 4 to go!  My tumor has decreased in size significantly already so Iím happy.  Any plans for the weekend?  

I hope your blood counts stay within normal limits and you are able to still do everything you love!

Sending hugs and positivity~
Tiffany
Dx: Feb 2023 TNBC, Grade 3, Stage IIB. BRCA 2+ TCx6 treatments started 16MAR23.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Wendjc Quote  Post ReplyReply Direct Link To This Post Posted: Apr 07 2023 at 8:07pm
Hi Tiffany,
I hope youíre feeling ok after your last treatment? Not too bad here. Iíd say that day 3 seems to be my worst day for lethargy and lack of appetite but again not too bad. I just hope the remainder of my time is like this!
My minimal remaining hair is starting to come out now so Iíve started to cover it as itís very patchy. Shame as I was just getting used to my new look.
Weather is humid but rainy this time of year. Hopefully weíll get some sun soon. Sounds like youíve got some nice sunshine going on there, keeps the mood up!
Do you keep having U/S to check ur tumour size? Great news that itís shrinking already.
Big hugs 🤗 
Hope ur well enough for an Easter egg 🐣 
Xxxx
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Tiffany View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Tiffany Quote  Post ReplyReply Direct Link To This Post Posted: Apr 25 2023 at 10:09pm
Hi Wendjc,

How are you?  Good grief, Iíve been so busy with work my head is spinning.  Iím sorry about my delay in response but I hope all is well and you are still feeling good.  I have treatment 3 on Thursday and Iíll be half way done!  

Do you only get one day of lethargy and decreased appetite?  Mine lasts about 4 days but thatís ok.  Iím happy I really didnít get too much bone pain this time around.  

I too liked my buzzed hair and I have bald patches too.  Iím actually not covering my head much except if Iím out in the sun.  I thought I would be more self-conscious about not having hair but it really does not bother me.  Iím enjoying not having to shave 😀!

My surgeon wants another breast MRI prior to surgery but thatís all for now.  After surgery Iím not sure of the plan but Iím guessing imaging every 3 months because of my BRCA mutation.  

Three colleagues or their family where I work have also been diagnosed with cancer this year.  My friends son was diagnosed with testicular cancer and he is only 28yo!  I have no idea why so many young people are being diagnosed with cancers.  Scary!

What season are you in now in Hong Kong?  We are in Spring and the sunshine definitely makes things better!

Please stay well and sending positivity your way!!
Dx: Feb 2023 TNBC, Grade 3, Stage IIB. BRCA 2+ TCx6 treatments started 16MAR23.
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Wendjc View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Wendjc Quote  Post ReplyReply Direct Link To This Post Posted: May 04 2023 at 10:04pm
Hi Tiffany,

How are you doing after your last treatment? I canít believe Iíve only got one cycle left and then Iím onto the dreaded Red Devil!
Iím still feeling mostly okay. I think it makes a difference that I donít have to go to work or take care of kids etc. I can rest as needed so I guess I donít notice how different I am feeling as I donít feel unwell the majority of the time. Iím getting fatter which Iím not happy about but I guess thatís steroids and water retention. I guess if thatís the worst of it!
I am expecting to feel much worse when I have my second lot of chemo, the EC 😬 but letís see!
Howís ur bone pain? I still havenít had anything to help my neutrophils and they are fairly low. Hopefully I wonít get an infection. 
I am a bit over it to be honest. Itís just such a long time. Then obviously the worry that none of it will be worth it.
Anyway, saying that, I am okay both physically and mentally. Very few tears or tantrums and no nausea, which is a bonus!
Take care and best of luck xxx



Edited by Wendjc - May 04 2023 at 10:05pm
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