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mainsailset View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote mainsailset Quote  Post ReplyReply Direct Link To This Post Posted: Mar 20 2010 at 5:07pm
Jodie, I'd suggest going for th D3 right away. You can get her up and going on the 2,000IU (there's not documented toxicity at that level so you're safe) It takes awhile for the D to take hold, and since she's still undergoing the chemo it's also a good bet to start it up as the chemo wrecks havoc on her bones and the D will help with that. Also, I really have had good luck with the super Vit B complex, it makes for a nice pickmeup on the days where I just don't feel like I'm everygoing to get through all this. Not a good idea to do the super every day, just occasionally. Also, be sure to have her take the calcium & mag with the Vit D.
dx 7/08 TN 14x6.5x5.5 cm tumor

3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Mar 24 2010 at 1:28pm
bump
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote jodiel1 Quote  Post ReplyReply Direct Link To This Post Posted: Mar 25 2010 at 9:15am

Thanks very much for all your help. I  think i will get the 2000 iu for now until my mums levels get checked. Does anyone elso take baby asprin and curcamin? if so how much curcamin do you take?

Thanks a lot Smile

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Post Options Post Options   Thanks (0) Thanks(0)   Quote tasoulla Quote  Post ReplyReply Direct Link To This Post Posted: Mar 29 2010 at 3:48am

Dear mainsailset,

 
how are you?
i just came back from the pharmacist who gave me Vitamin D3 FROM FISH LIVER OIL, 1000IU, to receive twice daily at night,(they don't have more IUs), it is Solgar,(twice per night)
CALCIUM FROM OYSTER SHELL which contain Vitamin D3 (Vitamin D3 300IU) and Calcium 600 mg.(one per night)
 
MAGNESIUM CITRATE HIGHLY ABSORBABLE 400 mg.(one per night)
 
All these 3 are Solgar. I can't find anything else.
 
I have also bought Omega 3.(one after lunch).
 
I dpn't know if all these are correct but are the best who i could find.
 
I'm wondering about Vitamin D3 which is from fish liver oil? is this ok?(it wirte: as cholecalciferol from fish liver oils).
 
Do you these are fine to be received by my mum?
 
I appreciate your opinion!!
 
Thank you
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Mar 29 2010 at 7:42am
Jodiel1,

There's been some discussion on curcurmin on the Support Group/Alternative Treatments thread.  I posted this about curcurmin.  There's another thread talking about baby aspirin.  I'll try to find it for you.

The only dosing information I've found was from the No Surrender website:

http://www.nosurrenderbreastcancersurvivorforum.org/post?id=4530242

"Minimal effective dosing is 500 mg/daily of curcuminoid component (one capsule daily), but this can be escalated to up to at least 1500 to 2000 mg daily . . ."  He goes on to detail when higher doses are recommended.  To me it seems that the dosing range can vary widely.  This was why I wanted to see the dose levels other women are taking.
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Apr 01 2010 at 7:50am

Vitamin D is Essential For the Prevention of Cancer, Heart Disease and Osteoporosis


http:///www.anticancerbook.com/post/Vitamin-D-is-essential-for-the-prevention-of-cancer-heart-disease-osteoporosis.html
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Apr 02 2010 at 1:09pm
Originally posted by 123Donna 123Donna wrote:

I wanted to give an update on my D3 levels.  I checked my D3 level a few weeks after finishing chemo and it was 19, very low.  My D3 level was never checked at DX.   I started taking D3 (between 5,000 to 6,000 iu) a day along with 2 Citracel and a multivitamin.  After about 8 weeks, my onc checked my D3 levels and it came back 47. 

Donna


Here's an update.  I was retested in March for D3.  It came back 50, which is just slightly higher than back in December (47).  Recently I was only taking 4,000 iu of D3, plus 2 Citracel (1,000 iu total) and multivitamin (500 iu).  My goal is to get my levels at least 60 or higher.  I'm going to increase my D3 intake to 6,000 iu a day along with the 2 Citracel's and multivitamin. 

DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote mainsailset Quote  Post ReplyReply Direct Link To This Post Posted: Apr 02 2010 at 1:17pm
That's interesting Donna. Once of the things that drives my impatient half crazy is how long it takes for all these things to take hold. My 8,000 IU took nearly 7 months to get me up to 60. Course, like you, this is wintertime so sunlight is pretty scarce.
dx 7/08 TN 14x6.5x5.5 cm tumor

3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Apr 02 2010 at 1:43pm
Mainy,

I know I feel like I'm taking baby steps in getting my levels up higher.  If I calculate it correctly, I'm getting about 7,500 ius total plus anything that's in the food I eat. 

I recently had a bone density scan and it came back in the low end of normal.  I had one at age 35 and it was excellent.  I guess chemopause and chemo drugs takes their toll on our bones.  I had to laugh when my onc's nurse called and said she recommended me increasing my D3 intake, calcium, exercise, weight train.  I said I do all that and the nurse just said she'd ask the onc if there was anything else I could be doing. 

I just want to recommend to everyone to get their D3 levels check periodically and do everything you can to increase the level if needed.  We have to stay on top of this!
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote mainsailset Quote  Post ReplyReply Direct Link To This Post Posted: Apr 02 2010 at 1:53pm
Donna, you know it's funny because just 2 years ago people would have congratulated you on how high you'd gotten your levels, now 50 almost seems ho hummm, unless of course you factor in just how hard one has to work to get the levels up and how many people you have to convince in your travels of how important it is. Hopefully the D will help those poor old bones.
 
Did you know that the D in milk is D2 not hte D3 we need. Shame on them!
dx 7/08 TN 14x6.5x5.5 cm tumor

3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Apr 02 2010 at 2:18pm
I just checked my milk and yogurt and it says Vitamin D3 added.  Maybe some producers have changed.

I know what you mean about 50 seeming average to me now.  I have some friends who just say I take a multivitamin and I get my Vitamin D from it.  Or maybe that add in a Calcium/D supplement and think that's all they need.  When I ask them if they've been checked they always say no.  RRrggggg!

Donna


DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote mainsailset Quote  Post ReplyReply Direct Link To This Post Posted: Apr 02 2010 at 3:54pm
Hey Donna that is way cool news about the milk and yogurt! There was an article less than amonth ago that pointed out it was all D2 so wow, they're listening!
dx 7/08 TN 14x6.5x5.5 cm tumor

3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Apr 08 2010 at 7:44am

Higher vitamin D levels could save thousands of lives a year: economic analysis

Canadian Press

04-07-10

TORONTO - A new study estimates that if more Canadians increased their intake of vitamin D, the death rate could fall by 16 per cent, or as many as 37,000 premature deaths a year.

The number crunchers factored in the association between vitamin D deficiency and a variety of diseases and conditions, including bone diseases, cancer, autoimmune diseases and cardiovascular diseases.

The research was published recently in the journal Molecular Nutrition and Food Research.

"The result of this study strongly suggests the personal and economic burden of disease in Canada could be significantly reduced if optimal vitamin D levels are increased," primary author William Grant, of the Sunlight, Nutrition and Health Research Center in San Francisco, said in a release Tuesday.

The study notes that Canadians have mean serum levels for vitamin D averaging 67 nanomoles per litre, and says the estimated benefits in disease reduction were based on increasing the level to 105 nanomoles per litre.

Many experts describe 75 nmols per litre as the minimum for good health, co-author Susan Whiting of the College of Pharmacy and Nutrition at the University of Saskatchewan said in an interview.

Statistics Canada reported last month that 65 per cent of Canadians who had their blood tested for vitamin D levels, in 15 communities across the country, failed to meet the threshold of 75 nmols per litre.

A primary source for producing vitamin D naturally is the sun, but Whiting notes that Canadians spend a lot of time indoors, and that it's been difficult to come up with a "rational sun exposure measure" given the concerns about skin cancer. Vitamin D can also be obtained through eating certain foods and supplementation.

As for economic impact, the study said that boosting vitamin D blood levels would reduce the burden on the health-care system by about $14.4 billion. However, there would be costs associated with ensuring the population had higher vitamin D levels if this is achieved by fortifying more foods.

The U.S. Institute of Medicine is currently working on setting new dietary reference intakes for vitamin D, and Canadian officials are involved in the process. A report is expected to be published in late summer or the fall.

Whiting said it will be important to "do something quickly after that" to raise the recommended levels of vitamin D intake for Canadians.

DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote mainsailset Quote  Post ReplyReply Direct Link To This Post Posted: Apr 08 2010 at 10:24am
We TN'ers are soooo ahead of the curve! Anyone want to bet on what the new RDA will be? 1,000? IU, 2,000IU. If they're smart they'll start breaking it down to layout times of year that is different as well as various illnesses, like ours. One can always hope. Thanks Donna!
dx 7/08 TN 14x6.5x5.5 cm tumor

3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Autumn10182001 Quote  Post ReplyReply Direct Link To This Post Posted: Apr 08 2010 at 12:46pm
Got my vitamin D3 results.. up from 12 to 31... and that is taking 4800IU a day... 6 days a week. I always give my body oine day without vitamins and supplements to kind of allow my body to detox...  My oncologist wants me at a minimum of 44... so  I am going to continue on the 4800 daily, adding the 7th day, and with the weather change , i have been sitting outside 20 miutes a day for natural vit d... so   we will recheck in 2 months instead of waiting to 3 months, he definetly wants my D3 level higher..   my tumor marker was 11, down from 18 3 months ago..
DX2/99 Stg I,ER+PR+ Chemo lumpectomy - Neg nodes,rads, tamox,femara. DX4/09, Stg IIB /III, TNBC IDC, Grade III, 2.5CM, mastectomy. 4AC DD,12 wkly taxol,BRAC1&2Neg, Right Mast 11/25/09
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Post Options Post Options   Thanks (0) Thanks(0)   Quote PattyB Quote  Post ReplyReply Direct Link To This Post Posted: Apr 08 2010 at 5:51pm
My oncologist did not want me taking any supplements except  a multivitamin during chemo, he said other supplements work against the chemo. I had low vitamin D previously in 2006 from a parathyroid tumor. No one has suggested to have my D3 checked since completing treatment but I'm going to ask my regular doc to do it.
Dx 6/09, stage 2, grade 3, nodes -, lumpectomy, taxotere & cytoxan x4, 30 rads
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Post Options Post Options   Thanks (0) Thanks(0)   Quote mainsailset Quote  Post ReplyReply Direct Link To This Post Posted: Apr 08 2010 at 10:27pm
D's the only one thatworks to enhance chemo as well as radiation. There is a ton of info on this site on the Vit D3 and it it very important for everyone who has bc and just an FYI, most TN's have a low count. Just be sure not to let Quest Labs do the testing through your GP.
dx 7/08 TN 14x6.5x5.5 cm tumor

3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Apr 17 2010 at 3:30pm
Nancy posted this on another site.  Thanks Nancy - we can all use this information!

Here are some basic guidelines:

-Make sure you are getting the right test. You must test for 25(OH)D, not 1,25(OH)D. They look similar, but 1,25(OH)D is a measure of kidney function, and is not the test you want for measuring vitamin D levels.

-Ideally, your blood level should be around 60-80 ng/ml, as this allows the body to have some vitamin D in reserve, and it duplicates the higher levels found in young, healthy individuals who spend a decent amount of time in a sun-rich environment.

-Begin taking vitamin D at least eight weeks prior to being tested. This will help you customize your dose once you receive your test results. To determine a basic, starting dose, it has been suggested, as per Dr. John Cannell of the Vitamin D Council (7), that you take 1,000 IU per 25 pounds of body weight. A person who weighs 150 pounds, for instance, would take 6,000 IU per day as a starting dose (150/25 = 6. 1,000 x 6 = 6,000). Do this for at least eight weeks, and then test. Perhaps this dose will put you in the ideal range, but there`s no guarantee since we are all so different, and have unique vitamin D receptor genotypes. The idea is to hopefully get somewhere in the ballpark with this method and then tweak your daily dose once the test results come back. If your results are still suboptimal, Dr. Cannell has estimated that each 1,000 IU increase in supplemental vitamin D will generally produce a 10 ng/ml increase in the vitamin D blood level (8). For example, if you have been taking 5,000 IU per day for 8+ weeks, and your results come back at 40 ng/ml, you would want to increase your dose to at least 7,000 IU (2,000 IU = ~20 ng/ml rise in blood level) to achieve a minimum of 60 ng/ml. Again, keep in mind that this is necessarily generalized, and additional blood testing every several months is recommended to further customize the dose appropriate to you.

DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote tasoulla Quote  Post ReplyReply Direct Link To This Post Posted: Apr 19 2010 at 8:34am
Hi all!
Is it better to have the Vitamin D3 in liquid or in softgel?
Which is the best?
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123Donna View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Apr 19 2010 at 8:51am
Tasoulla,

I get my D3 in softgels.  Sorry, but I don't know anything about the liquid version.

Donna

PS:  How's your mum doing?
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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