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Vitamin D Status

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Poll Question: What is your Vitamin D blood level?
Poll Choice Votes Poll Statistics
66 [48.53%]
23 [16.91%]
14 [10.29%]
16 [11.76%]
8 [5.88%]
9 [6.62%]
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Nancy View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Aug 13 2008 at 2:33pm
Krisa,
 
How low are your levels?
Nancy
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krisa View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote krisa Quote  Post ReplyReply Direct Link To This Post Posted: Aug 13 2008 at 4:03pm
nancy,
my current level is 21.5
 


Edited by krisa - Oct 11 2008 at 9:32am
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Nancy View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Aug 13 2008 at 4:56pm
Krisa,
 
Lori had done research on D also. You cannot get all the D you need or require for a healthy immune system from foods that you eat. That is why the need for the sunshine, and most important the supplement of D3.
 
If you read the articles I have posted, perhaps that will answer some questions you may have. There are quite a few, and each has links to other topics on D3.
 
21.5 is low. I thought mine were good at 57, but then Lori came in at 73. I will start to take 2000 iu's per day in about a month. We get so little sun here in Altoona, PA. Have had quite a bit lately, but that is not the norm.
 
Hugs,
Nancy
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Nancy View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Aug 14 2008 at 1:36pm
Ladies,
You really have to read the article that I posted a link to. I know that Ronda had said she was wrong as to normal D levels. She had said they are between 70-90.  Then stated that she was wrong, and levels are 50-70. However, if you read on page 3, it states:
 
"Natural levels, that is, levels found in humans who live or work in the sun, are ~50-70 ng/ml - levels attained by only a small fraction of modern humans".
 
Which means that Ronda is most likely right once again!Clap
 
AHHHHH! You gotta love that galWink
Hugs,
Nancy
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Nancy View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Aug 26 2008 at 4:15pm
Just for Lisa....bringing this forwardWink
nancy
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Lisa L Quote  Post ReplyReply Direct Link To This Post Posted: Aug 27 2008 at 2:11pm
Thanks Nancy!  I think I'll push the issue with my docs.  I am 3 years out from dx, I wonder if that matters?  Confused
Dx 8/05 age 43
mast & lat flap 10/05
Triple neg
BRCA neg
IDC 4.5cm rt br
0/1 sen node
6 A/C 5 Taxol, 25 rads 11/05-6/06
Central Illinois
Currently NED
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Nancy View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Aug 27 2008 at 3:35pm
LisaL,
I am no years out from dx and I really wanted to know. I have Osteopenia, and have been on Fosamax for years...now a generic. I have pushed for all my daughters, my sister and everyone I know to have their levels checked.
Nancy
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Terri View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Terri Quote  Post ReplyReply Direct Link To This Post Posted: Sep 04 2008 at 6:45am
Hi Ladies,
I just got my most recent Vit D level back. In Feb (during my last chemo) my levels were 47. Now, 4 months out of tx my levels are 57. My PCP did the tests for me because I asked him to. My onc said it was a waste of time during chemo and blew the whole subject off!
My PCP said normal ranges from 20-100. What?? Big range!!
 
Anyway, I just wish I knew what it was when I was dx but it had to have been decent since it was 47 during chemo.
 
Terri
IDC DX 8/17/07 (age 41)
Stage 1 Grade 1-2, 1.35 cm
2 nodes neg, Lumpectomy 10/07
Chemo: FEC 100 x 6, 35 rads
BRCA 1/2 NEG
PET/CT & Brain CT Nov 09
Brain MRI Aug 2012 NED
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Post Options Post Options   Thanks (0) Thanks(0)   Quote BrendaF Quote  Post ReplyReply Direct Link To This Post Posted: Sep 04 2008 at 11:38am
Mine was 23 and the lab report said the low limit of normal was 30.  I can't imagine how low it might have been last winter.  The 23 was in early August.
Dx 2005 2 cm, 5/12 nodes, A/C + T, 28 rads.
Dx mets 12/07 mediastinal and supraclavicular nodes, carbo + taxotere X 6.
brain, lymph, pleura, bone mets. Started Xeloda 8/24/09
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Post Options Post Options   Thanks (0) Thanks(0)   Quote cg--- Quote  Post ReplyReply Direct Link To This Post Posted: Sep 04 2008 at 12:00pm
I don't think so Terri 10-100 - what a huge range......I thought it was 50-70.
 
I am awaiting my results...I will let you know.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote NancyJane Quote  Post ReplyReply Direct Link To This Post Posted: Sep 09 2008 at 8:59am
Hi Ladies:
I am so thankful to you all for the information you post to this site.  I would have never thought about my vitamin D levels but for reading this thread.  So, I asked my surgeon to order the test and I just received my results.  I live in the Florida Keys and am in the sun ALL the time.  My level is  15!!!!  I can't believe how low this is. 
 
I wear sun screen constantly.  Since I read this thread, however, I have been intentionally allowing a 30 minute per day sun exposure without sun screen. Hopefully this will boost my levels.  I plan on taking a suplement too once I clear it with my Dr.'s.  Wow.  This is mind blowing. 
 
I have a friend who is a PHD in pharmacy and we were talking and I told him about this cancer/vitamin D connection.  He was aware and encouraged my idea to increase sun exposure and supplemts including a calcium supplement.  He was shocked at my low level and thinks I should have a bone density test done even though I am only 41! 
 
The 6 months before my diagnosis were some of the worst months of my life re: stress and general unhappiness borderline depression.  Combine that with BRCA+ status and a vitamin D deficiancy, no wonder I developed breast cancer.
 
Well, I am addressing all of these unhealthy contributors as best I can.  Thank you again for raising my awareness!
 


Edited by NancyJane - Sep 09 2008 at 9:00am
41yr dx 7/25/08
Lumpectomy and ax node disection (38 nodes, all clean!) 8/12/08
T2 grd 3, N0, TN IDC
BRCA1+
ACx4,Tx12 10/08-3/09
prophylactic hyst, ooph,mast & one-step recon 3/30/09
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Nancy View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Sep 09 2008 at 2:35pm
Nancy Jane....Nancy Jane...Nancy Jane!! (My Mom and Dad would repeat my name just like that when I did something that displeased them)Wink
 
15!!! Florida Keys! Sunscreen!! Toss the sunscreen sweetie!
 
The sunscreen has chemicals in it also. I look at it this way...why would I want to put chemicals on my skin. Did you read what Lori's levels are? 73! She has never used sunscreen in her life. I will be curious as to what your doc tells you to take. I am taking 1000 iu's per day, and Lori takes about 4500-5000 per day. If you read the links that I and others have posted as to toxicity levels, it is very unlikely that anyone would have a problem taking 30,000 -40,000 iu's per week.
 
Read the post from me as to the "normal ranges for those living and working in the sun".
 
Lori had felt her "lump" a few years ago. She and I were talking a few weeks ago as to the D3. She said that during the Summer months that the "lump" would be smaller. In the Winter, when she felt it, it was bigger. This was not her imagination. So, apparently the D that she gets as much as she can in the sunny times of the year boosted her immune system, and the cancer stopped growing, possibly shrinking?
 
It would be interesting to know when all you gals felt your lump, and the rate at which it grew, and what time of the year it was. For you, living in a sunny climate, one would think that your levels would be normal. You would have to be in the sun constantly as the article states. We do not get the amount of D3 that we need, form the sun alone. We have to supplement it daily. We can't get all we require from the foods we consume either.
 
We live in Central PA, where there are days that go by without seeing the sun. I am stocking up on the D3 as I just know they will start to raise the price. Not too much as I really want it to be fresh. In the Fall, and then again in the Winter, I will increase the iu's daily.  
 
Get that beautiful Florida tan that I hear so much about!
Hugs,
Nancy
 
 
 


Edited by Nancy - Sep 09 2008 at 3:20pm
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NancyJane View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote NancyJane Quote  Post ReplyReply Direct Link To This Post Posted: Sep 09 2008 at 2:51pm
Nancy (I can't beleive you are Nancy Jane too, or the number of Nancy's on this site.  I wonder if our name is a BC risk factor! Tongue):
 
I lived in fear of skin cancer because of my Father's melanoma.  I am fair skinned, blond hair, blue eyed, so I took great care to protect my skin.  Go figure! I guess my Mother's ovarian cancer won out.
 
I plan on using alot less sun screen.  I have a great dermatologist and have been using non-chemical sun screens for years (zinc oxide based).  These are "heavier" and only come in cream form, not sprays or other light weight application.  They are highly effective (apparently), however.
41yr dx 7/25/08
Lumpectomy and ax node disection (38 nodes, all clean!) 8/12/08
T2 grd 3, N0, TN IDC
BRCA1+
ACx4,Tx12 10/08-3/09
prophylactic hyst, ooph,mast & one-step recon 3/30/09
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Terri Quote  Post ReplyReply Direct Link To This Post Posted: Sep 10 2008 at 7:12am
Hey Connie,
 
My dr said normal was 20-100, not 10-100. But that still sounds like such a wide range!! When he went over my results he said the 47 in feb was in the normal range. My more recent test was 57 in august. I didn`t bother asking how much D3 I should be taking b/c he wasn`t really up on the research. I`m lucky he was cooperative enough to order my D testing at my request since my onc wouldn`t do it!! So I guess I will continue taking 2000 IU per day and getting sun as much as I can.
 
Did you get your results yet?
 
Terri
IDC DX 8/17/07 (age 41)
Stage 1 Grade 1-2, 1.35 cm
2 nodes neg, Lumpectomy 10/07
Chemo: FEC 100 x 6, 35 rads
BRCA 1/2 NEG
PET/CT & Brain CT Nov 09
Brain MRI Aug 2012 NED
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Sep 27 2008 at 9:48am
bump for lalala1000
Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008
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Post Options Post Options   Thanks (0) Thanks(0)   Quote tigojo Quote  Post ReplyReply Direct Link To This Post Posted: Oct 13 2008 at 4:02am
I had blood taken last week, and my onc. had Vit. D checked. Mine WAS ONLY 14!  I am now taking Vit. D supplements. He will check this monthly for me and see how it goes.Clap
 
I mentioned it to the PA and the doc on my last visit. They were VERY cooperative to check this, and doc seemed pleased that I was doing my homework and learning more about my disease, etc. Embarrassed
 
I would suggest that everyone get tested and stay ontop of this. Maybe there is a link, maybe not. Either way - just a good health fact to work on!
 
Tig
Dbl mast. 5/08
Class 3/Stage 3
2 nodes
50 yrs.old at diag.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote tigojo Quote  Post ReplyReply Direct Link To This Post Posted: Oct 13 2008 at 4:04am
The print out from the lab who did my Vit. D test shows 34-100 is normal for optimum health.
 
mine was only 14
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Oct 13 2008 at 6:02am
Tigogo,
 
Just this morning on MSNBC, they were saying that they are now recommending that children take the D3 in 400 iu's per day. The word is definitely getting out as to the importance! By the way, you have a great doc, and since you are proactive about your health, I'm sure you will get those D levels where they should be.
 
There is a link on the new forum "TNBC News, Resources and Tips" as to the correct test, and on page 2 of this topic I have a link from the vitamin D council.
Nancy
Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008
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Post Options Post Options   Thanks (0) Thanks(0)   Quote tigojo Quote  Post ReplyReply Direct Link To This Post Posted: Oct 13 2008 at 6:07am

I did not see the show, but my doc told me to buy the D3 formula, with choleclciferol, as it is better absorbed than the D2 type.  I am taking a multivitamin with 800 IU's, plus a 1000 i.u. every other day, then daily in week 2.  They will re-check in a week, then at two weeks, then monthly, if things go as planned.

I am going to try to get more sunlight without screen~! I am outside a lot but have used sunscreen for years, avoided mid-day sun, worn protective clothing, etc. due to a VERY large family history of melanomas.  I have not (yet?) had skin cancer. With no family history of BC, I always thought I would get skin cancer, not this!
 
Tig
 
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Oct 13 2008 at 6:25am
Tigogo,
If you want links to more articles, go to the TNBC Talk forum and "Vitamin D may help patients Survive cancer", page 1, posted by Skippy123. I had posted many articles ther on D. Yes it is the D3 which is what we all need to be taking.
 
Nancy
Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008
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