"Understanding TNBC" Brochure Update |
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trip2 
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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 Posted: Sep 26 2009 at 11:06am |
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Edited by trip2 - Sep 26 2009 at 11:07am |
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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Kellyless
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Joined: Jun 18 2009 Location: Dallas, Texas Status: Offline Points: 1154 |
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Posted: Sep 26 2009 at 11:34am |
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I'd be happy to distrubute in my area - your PM is full so I can't send you info! I'm in Dallas, TX, many places treat breast cancer in my area and I'd love to help get out the info! NOBODY gave me any info specific to my TN disease - especially my 1st surgeon and doctor! Give me a PM back!
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IDC, 2.2 cm, Stage IIb,lumpectomy 1/30/09 ACx4,Tx4 36 rads
6/1/16 Local recurrence same breast, same spot 1.8cm Carb.4x every 3 wks, Taxol 12x once wk. Dbl Mast. PCR!! Reconstruction fail, NED! |
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Cebo
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Joined: May 13 2009 Location: New Jersey Status: Offline Points: 103 |
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Posted: Sep 26 2009 at 11:55am |
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I'm in! I will PM you my info.
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Sister DX'ed 11/08
Lumpectomy & SN biopsy 12/08 1.1 cm tumor, node neg (0/2) Stage 1 DD A/C x 4, Taxol x 4, completed 4/17/09 33 rads (incl 8 boost), completed 6/22/09 |
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Cebo
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Joined: May 13 2009 Location: New Jersey Status: Offline Points: 103 |
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Posted: Sep 26 2009 at 12:06pm |
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Tried to e-mail you but your PM is still full
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Sister DX'ed 11/08
Lumpectomy & SN biopsy 12/08 1.1 cm tumor, node neg (0/2) Stage 1 DD A/C x 4, Taxol x 4, completed 4/17/09 33 rads (incl 8 boost), completed 6/22/09 |
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Sep 26 2009 at 2:44pm |
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She has been busy but hopefully over the week-end she will clear her PM box. Keep trying ladies. |
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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Barb-42
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Joined: Oct 26 2008 Location: Ohio Status: Offline Points: 88 |
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Posted: Sep 26 2009 at 6:26pm |
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I would be glad to help getting the brochure's passed out.
I will take some to the b/c center where I go to and also to the support group and local surgeon's that do breast surgeries. I will even take some to near by cities. I will pm you with my information. Thanks. Take Care, Barb |
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dx-1/2/08 @ 42 yrs.old
lumpectomy w/close margins/ 1/14/08- no nodes/stage 1/gr.3 1.5 CM IDC chemo-AC-3 Dose Dense Taxol wkly 12- 2/21/08-7/17/08 Rads-33 w/8 boosts 8/6/08-9/22/08 BRCA 1/2 Neg. |
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Suzanne
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Joined: Jun 13 2007 Location: San Francisco Bay Area Status: Offline Points: 191 |
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Posted: Sep 27 2009 at 11:44am |
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I think you all will be thrilled with the brochure, if it turns out anything like the rough draft. Natalia (a young Hispanic mother/lawyer from Miami, Florida), Raymon (Luv2Sing, a Black woman from Virginia), Lori (Nancy's daughter from Pennsylvania), Cheryl (Cheryl51, a psychotherapist in the San Francisco Bay Area), our very own Pam (trip2 from Oklahoma), and I (a teacher who lives east of Napa) made up the consumer advisory committee for the pamphlet.
Allison, please let us know when you empty your mailbox so we can pm our addresses. I'm sure many of us would love to distribute the booklets.
Suzanne Edited by Suzanne - Sep 27 2009 at 2:01pm |
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1/2/07 IDC, stage 1 (T1c), 1.56cm, lumpectomy 1/8/07, triple neg., grade 3, sentinel lymph node biopsy negative, BRCA 1/2 negative; 4 AC/4 Taxol dose dense, 30 rads 2/07-7/07
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Nancy
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Joined: Jul 23 2007 Location: Altoona, PA Status: Offline Points: 3814 |
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Posted: Sep 27 2009 at 1:13pm |
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I just sent Allison an email to tell her.
Nancy
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Nancy
DD Lori dx TNBC June 13,2007 Lumpectomy due to incorrect dx of a cyst mastectomy July 6 2007 chemo ACT all 3 every 3 weeks 6 tx Aug-Nov 28 rads ended Jan 2008 |
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Sep 27 2009 at 1:17pm |
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Suzanne, forgot a name, I also participated as the rest of you.
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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Suzanne
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Joined: Jun 13 2007 Location: San Francisco Bay Area Status: Offline Points: 191 |
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Posted: Sep 27 2009 at 1:58pm |
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Pam, I had you down on my list but somehow didn't get you typed in. I'm SO sorry! I'm going to correct that right now.
Suzanne
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1/2/07 IDC, stage 1 (T1c), 1.56cm, lumpectomy 1/8/07, triple neg., grade 3, sentinel lymph node biopsy negative, BRCA 1/2 negative; 4 AC/4 Taxol dose dense, 30 rads 2/07-7/07
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Barb-42
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Joined: Oct 26 2008 Location: Ohio Status: Offline Points: 88 |
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Posted: Sep 27 2009 at 4:47pm |
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I have tried for the second time to send my information.
I will try again tomorrow. Take Care, Barb |
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dx-1/2/08 @ 42 yrs.old
lumpectomy w/close margins/ 1/14/08- no nodes/stage 1/gr.3 1.5 CM IDC chemo-AC-3 Dose Dense Taxol wkly 12- 2/21/08-7/17/08 Rads-33 w/8 boosts 8/6/08-9/22/08 BRCA 1/2 Neg. |
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tnbcexecdirect
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Joined: May 31 2007 Location: United States Status: Offline Points: 25 |
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Posted: Sep 27 2009 at 5:24pm |
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Soooo Sorry!! It is a holiday for me, so I have been a little distracted. There is room in my pm box now. Thank you to all of you that have volunteered to help distribute the brochure. I am so excited to get it out there! If you tried me before and couldnt get through, please try again.
Best,
Allison
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Nancy
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Joined: Jul 23 2007 Location: Altoona, PA Status: Offline Points: 3814 |
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Posted: Sep 29 2009 at 11:26am |
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Bump
Nancy
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Nancy
DD Lori dx TNBC June 13,2007 Lumpectomy due to incorrect dx of a cyst mastectomy July 6 2007 chemo ACT all 3 every 3 weeks 6 tx Aug-Nov 28 rads ended Jan 2008 |
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Nancy
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Joined: Jul 23 2007 Location: Altoona, PA Status: Offline Points: 3814 |
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Posted: Oct 07 2009 at 6:32am |
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Bump
Nancy
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Nancy
DD Lori dx TNBC June 13,2007 Lumpectomy due to incorrect dx of a cyst mastectomy July 6 2007 chemo ACT all 3 every 3 weeks 6 tx Aug-Nov 28 rads ended Jan 2008 |
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Nancy
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Joined: Jul 23 2007 Location: Altoona, PA Status: Offline Points: 3814 |
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Posted: Oct 14 2009 at 7:47am |
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bumping this forward for Juliette and any one else who may not have seen this.
Nancy
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Nancy
DD Lori dx TNBC June 13,2007 Lumpectomy due to incorrect dx of a cyst mastectomy July 6 2007 chemo ACT all 3 every 3 weeks 6 tx Aug-Nov 28 rads ended Jan 2008 |
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kidzrn
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Joined: Dec 11 2008 Location: United States Status: Offline Points: 175 |
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Posted: Oct 14 2009 at 10:18am |
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Can't wait to see it and spread it around!!!!!!!!!!!!! christi
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christi
2006,TNBC,Gr3 dbl mast, 4AC/4T {NED 4/07}, Lung Met 4/08, Carbo, Avastin, Taxol/Taxotere (CAT)x4, Lung Surgery 9/08, then Avastin every 3 wks until 2012...NED since 2/09 |
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