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erinbarron
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Joined: Oct 25 2007
Location: United States
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Points: 2
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Posted: Oct 25 2007 at 6:52pm |
I am a new here. I had breast cancer at 29, this past July I found out it has come back ( I'm 34 now, I was a couple months shy of the 5 year mark) It was 1.5 cm with the nodes in the chest positive, so I had a mastectomy and I'm having chemo for the nodes. I can't have radiation because I did it last time. I have heard that once you feel the tumor it's been there for years, mine couldn't have been there for that many years because it was very close to the first tumor and would have been taken care of with the chemo/radiation/lumpectomy. But, I felt this lump in July, and it didn't show up on the mammogram but did on the ultrasound. I wonder if I had it the year before when I had my yearly mammogram and it just didnt' show up.
I'm on carboplatin/taxol now, I go Monday for my 3rd treatment of 6. I am excited to be done with this, I have found this much more mentally hard this time.
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English Jan
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Joined: Sep 23 2007
Location: United States
Status: Offline
Points: 97
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Posted: Oct 26 2007 at 1:39pm |
Hi Pookiequilting,
Thank you for the offer ...
Well my ONC's fantastic staff got the last 3 cycles of my chemo and even 3 shots of Neulasta (the new Neupogen) for free, the drug companies paid for them.
I paid the 1st treatment cycle and I'm delighted they are paying the other 3!!
I am on Cytoxan and Taxotere plus Neulasta.
I am paying for any antibiotics and pain meds.
So are you a quilter? I am trying to start a quilt but having a problem working out how to cut the material ie I need 40 .. 2" x 16" ...
Do you have any ideas?
Many thanks
English Jan
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FL. 58yrs DX LIDC 8/18/07. 08/23/07 Lump+SNB Node -ve. T2.5cms clear margins, TNBC, Stage 2A Grade 3. 9/18/07 TX Cytoxan+Taxotere.Neulasta.4x3 wks.Rads 30+5 FINISHED 28th Jan 2008.
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trip2
Senior Member
Joined: Jun 03 2007
Location: Under Palm Tree
Status: Offline
Points: 8549
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Posted: Oct 29 2007 at 8:42am |
Welcome erinbarron, bless your heart, too young for bc. We're glad you're here though and so sorry that the nasty bc has come back. Mine came back this year too and I found it harder to deal with this time like you.
That's wonderful that you are halfway thru your chemo!
I can't blame you one bit for wanting to get this over with. 
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Stage 2 2003
Stage 1 2007
BRCA 1+
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Tamara444
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Joined: Oct 28 2007
Location: United States
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Points: 1
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Posted: Oct 29 2007 at 3:59pm |
There is also a wonderful program called the Patient Advocate CoPay Relief Foundation where they will reimburse you for copays you pay for medicines associated with your disease. It has been a Godsend for me, as I have been fighting as a triple negative since 2004. Have had a recurrence, and have been on many medicines including Neupogen, Neulasta, Zofran, Decadron, and other meds used while being on chemotherapy. Please look into the foundation, it is a great thing!!!
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patricia
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Joined: Oct 26 2007
Location: United States
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Points: 15
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Posted: Oct 30 2007 at 3:32am |
Jan,
I'm so sorry you don't have insurance. This is hard enough to deal with when you do have insurance, I don't even want to think about not. Sometimes in our small town, we have benefits for people who need help with cancer treatments. A friend or relitive will team up with a fire department or lodge and put on a supper or music event. Hang in there, I hope all goes well. I started treatments in Nov. 06 and finished in June 07 so I know how expensive treatments are but I was blessed to have good insurance.
Let us know how your doing.
Patricia 
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trip2
Senior Member
Joined: Jun 03 2007
Location: Under Palm Tree
Status: Offline
Points: 8549
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Posted: Oct 30 2007 at 7:27am |
Hi Tamara, I just wanted to wish you a warm welcome to our board.
Fighting this since 2004 is a long time and I'm so sorry you've had a recurrence.
Best wishes for smooth treatments and wow that is great info on getting financial help, thanks for posting. 
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Stage 2 2003
Stage 1 2007
BRCA 1+
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English Jan
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Joined: Sep 23 2007
Location: United States
Status: Offline
Points: 97
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Posted: Oct 30 2007 at 10:31am |
Hi Patricia,
Thank you for your kind words and encouragement.
I have negotiated with the Surgeon, Onc Docs and the chemo drugs ( I paid full price for the 1st round and got the 2,3,4th rounds free -the drug company paid, I had to show tax returns.)
I also now get Neulasta for free.
I was supposed to have chemo today 3rd one (of 4) but I have this reddness in my left breast, I have seen the Breast surgeon twice, but today they wouldn't give chemo until she said okay again...so back to the next town and she fit me in .
So now I'm on 2 lots of antibiotics, in case it's infection which she does not think it is,. She thinks its chemo irritation to the breast tissue that's healing.
So chemo off until Thursday, so I have 2 days on board of 2 antibiotics.
No temp!
Glad you are doing well. Hope all the ladies are well on the board and Hi Nancy.
English Jan
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FL. 58yrs DX LIDC 8/18/07. 08/23/07 Lump+SNB Node -ve. T2.5cms clear margins, TNBC, Stage 2A Grade 3. 9/18/07 TX Cytoxan+Taxotere.Neulasta.4x3 wks.Rads 30+5 FINISHED 28th Jan 2008.
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poookyquilting
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Joined: Oct 04 2007
Location: United States
Status: Offline
Points: 45
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Posted: Oct 30 2007 at 8:19pm |
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i HAVE INSURANCE AND WILL HAVE TWO EXTRA VIALS OF NEUPOGEN LEFT...RIGHT NOW. CAN OR IS THERE SOMEONE I CAN DOANTE THEM TO? i HATE THROWING THEM AWAY WHEN THEY COST SO MUCH. ANYONE WITH ANY INFORMATION, PLEASE LET ME KNOW.
JAN IN MICHIGAN.
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trip2
Senior Member
Joined: Jun 03 2007
Location: Under Palm Tree
Status: Offline
Points: 8549
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Posted: Oct 31 2007 at 6:17am |
English Jan it is just great to see that those who need help hopefully can find it, I'm so happy for you.
I sure hope the antibiotics get rid of the redness so that you can get on with your chemo. Sounds like you are close to being done?
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Stage 2 2003
Stage 1 2007
BRCA 1+
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tckaren
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Joined: Oct 29 2007
Location: United States
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Points: 8
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Posted: Nov 03 2007 at 1:42pm |
I'm not an expert but heres what I have learned.
Triple Negative means your tumor tested negative for Estrogen, Progestron, and is HER 2neg.
30% of breast cancer is "Triple Negative".
Practically what this means is your tumor may be a bit more difficult to treat since it will not respond to the new drugs that target hormones.
I too am triple negative & am undergoing weekly treatments of Taxol & Avastin. This is my 3'rd reoccurence & I have already had Cytoxen & Adriamycin back in 2004.
I am feeling pretty good despite losing my hair again!
Best wishes, hope this helped.
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Galina2
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Joined: Nov 01 2007
Location: Canada
Status: Offline
Points: 250
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Posted: Nov 05 2007 at 8:03pm |
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Hello, Darla and anybody out there. You are talking of recurrance: anybody had a pain during cancer growth? I was in horrible pain when the cancer grew from beginning of July until surgery at the end of August and that's how I discovered my lump. When they removed the lump the pain was gone. Even before the surgery, I had a pain what I would call under clavical; now the pain is getting worse. I hope I will get to my oncologist within the next two weeks, but I am freaking out the cancer is spreading into lymph nodes in there. Anybody has similar experiences? Tx
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Darla
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Joined: Jul 24 2007
Location: United States
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Points: 162
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Posted: Nov 06 2007 at 2:10am |
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Hi Galina,
I am so sorry that you are having this pain and I don't blame you for freaking out. Is there any way you can see your oncologist sooner if you call him and let him know you are in a lot of pain?
Darla
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poookyquilting
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Joined: Oct 04 2007
Location: United States
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Points: 45
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Posted: Nov 06 2007 at 2:34am |
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Hi Galina,
I too had severe pain one day though. I went to the ER and they gave me morphone and kept me for two days. It was from the Neupogen and Taxotere. If you have insurance, please don't try tolerating the pain it is more than our bodies can handle. they can give you something to relieve it right away. BUT take your anti nausea meds with you because by the time they got around to giving mine I was several hours late and threw up for what seems like two hours. good luck to you and God hold you and keep you in His care.
Jan in Michigan
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shellieh51
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Joined: Oct 10 2007
Location: United States
Status: Offline
Points: 218
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Posted: Nov 07 2007 at 2:20am |
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Who is pookiequilting? I too quilt - or attempt to do so.
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dx 11/6/2006 1.5cm IDC, Gr3, TN, BRCA-, lump, partial breast rads 1/2007, 4 AC, 12 wkly Taxol. Completed tx 8/2/2007. NED 12/2007. Malignant parotid tumor 4/2008. Clear head 4/09 & bones 11/08 -
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jabutler172
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Joined: Nov 07 2007
Location: United States
Status: Offline
Points: 22
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Posted: Nov 07 2007 at 5:06am |
I am new to this site. I was also told I am triple negative. I am 56 years old white female. I do not fit the 15% they say are triple negative. But here I am anyway.
I have completed 4 AC and 4 Taxotere of chemo on 8/30/07. The chemo shrunk my orginal size tumor of 5 cm to 1/8 of a inch. Followed by a lumpectomy and then a re-excerison for clear margins. I am now on my 6th out of 33 radiation treatments. I will not be using any hormone drugs. After radiation I have completed my treatments.
My oncologist says they are testing new chemo drugs for this type of cancer. So if I have a recurrence (he says 20% chance) the new drug will probley be available. They says the recurrence for this type of cancer usually happens within 2 to 3 years.
So I am on the every 3 month schedule fo seeing my surgeon and oncologist for a year.
My radiation will be completed on Dec. 13th.
Joyce
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poookyquilting
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Joined: Oct 04 2007
Location: United States
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Points: 45
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Posted: Nov 07 2007 at 5:47am |
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HI JOYCE....MY TUMOR WAS 5.2 CM BUT I HAD ONE POSITIVE LYMPH NODE SO I HAD MASTECTOMY AND 10 LYMPH NODES REMOVED. I AM ON MY 3RD TREATMENT FRIDAY AND WILL BE AT MY HALFWAY POINT FOR CHEMO TXS. I WILL START RADIATION IN FEBRUARY...SIX WEEKS. DID YOU HAVE ANY CANCER IN YOUR LYMPHNODES?
JAN IN MICHIGAN
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trip2
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Joined: Jun 03 2007
Location: Under Palm Tree
Status: Offline
Points: 8549
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Posted: Nov 07 2007 at 6:10am |
Hi Joyce and a warm welcome to you.
Whoopsie, hit the button too soon!
Edited by trip2 - Nov 07 2007 at 6:18am
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Stage 2 2003
Stage 1 2007
BRCA 1+
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trip2
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Joined: Jun 03 2007
Location: Under Palm Tree
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Posted: Nov 07 2007 at 6:14am |
Hi Joyce and a warm welcome to you.
It's good to hear you've completed your chemo and soon you'll be thru with your radiation. Hope you are doing well.
That is just wonderful that the chemo shrunk your original tumor.
Congratulations!
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Stage 2 2003
Stage 1 2007
BRCA 1+
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poookyquilting
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Joined: Oct 04 2007
Location: United States
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Points: 45
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Posted: Nov 07 2007 at 7:59am |
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i'M JAN FROM MICHIGAN. HAVEN'T DONE ANY QUILTING IN FIVE OR FOUR YEARS. AND REALLY NOT FEELING UP TO IT NOW. LOL MY QUILTS ARE APPLIQUED. I'VE DONE VICTORIAN WOMEN FOR MY OLDEST GRANDDAUGHTER, DINOSAURS AND BEARS AND FISH AND CARS FOR MY FIVE GRANDSONS.
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jabutler172
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Joined: Nov 07 2007
Location: United States
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Posted: Nov 08 2007 at 5:43am |
Hi Jan,
I am in Michigan too. No my lymph nodes were clear.
Joyce
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