Triple Negative IDC in the form of a Cyst? |
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Tina L 
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Joined: May 15 2009 Location: Peoria, Illinois Status: Offline Points: 12 |
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 Topic: Triple Negative IDC in the form of a Cyst?Posted: May 15 2009 at 4:19am |
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HI my name is Tina, I am 53 years old and was diagnosed with IDC on April 8th 2009. I have an 11cm Cyst in the inner left side of my right breast. I had a Diagnostic Mammogram and Ultrasound on April 7th which showed a fluid filled cyst, it was drained at the time and had a small nodule that showed up after the draining and was then biopsied. All the while the Doctor kept reassuring me that it was nothing but a cyst, WRONG, I got the call the next day telling me that I had IDC. Oh my gosh, I was devastated to say the least. I have always been very healthy and now this. So, anyway I met with all the Doctors the following week and was told that first, they had never seen it (IDC) present itself like this (the cyst thing) and second, that due to it's size that there was no way that I could have it removed until they could get it to shrink. So, I had alot of tests done ( Breast MRI,CT Scan,Bone Scan, Echo Cardiogram,etc.) all came back clear, good news I think, then had a Power Port implanted in my chest for chemo. Found out on my first Onc visit that I am triple Neg., don't know if that is a good thing or bad, I have heard alot of conflicting stories on that. Had my first chemo (Adriamycin/Cytoxan) on Monday May 4th, went back on Tuesday for Neulasta shot then back this Monday May 11th for blood counts, (WBC was 1.4) does this mean that the Neulasta shot didn't work? My Onc said that count was very low and she wanted me to take some antibiotic pills for the next 7 days. I couldn't get them because they cost $110.00 for 7 pills, I don't have that kind of money. So, I bought me some Ensure and am drinking those 2 to3 times a day hoping that will help. Has anybody else been on my chemo type and/or schedule? Does each one get easier? or worse? I will be doing these 2 drugs every 2 weeks for 4 rounds and then Taxol once a week for 12 weeks then hopefully this Cyst will become small enough to remove. Then my Onc said that after surgery I will get 33 radiation treatments. Sometimes this is just to much for me to deal with, I just want it to all go away and let me go back to being Normal again, but from what I hear, I guess I will never be Normal again at least not the same kind of normal as I was before.I hate all of this, I feel my body has betrayed me and sometimes I get so angry with myself. I want to Live and I want to beat this but sometimes I just get fed up with it all and just want to run away and try to forget that any of this has ever happened, am I crazy or what? So far the Chemo didn't make me to sick (only a couple times) and I think alot of the nausea came from them flushing my port with Heprin, that stuff stinks, to me. I couldn't get that smell out of my nose for anything, every time I got a whiff of anything remotely close to it I would want to puke! I taught myself a little trick about that the next time they flushed it, I plugged my nose, That REALLY helped! So, when I get my next chemo on Monday, I am gonna plug my nose again and hope it helps me again. Is that nuts or what? I don't know but I will do anything not to have that smell in my nose.....LOL Well, Ladies wish me luck and let me know if there is anything else I need to know about all this cause I am really nervous and scared and would appreciate any advice and/or help that you could give me! God Bless you all and Have A Beautiful Day! Hugs!!
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outnumbered
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Joined: Feb 02 2009 Location: New Jersey Status: Offline Points: 525 |
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Posted: May 15 2009 at 9:53am |
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Hi Tina,
Welcome to the place where you shouldn't have to come...
Everything you are feeling is normal. If you search the forum under news, resources and tips, there should be a link for chemo tips that should be helpful. I did not have chemo, but what you are receiving is the standard chemo for TN. I am sure you will hear from many others with more experience than I who will welcome you with all kinds of helpful information.
Hang in there...
HUGS!!!!
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~Sara
DX @ age 40 6/24/08 Stage 1 Grade 3 BRCA1+ 187delAG BMX (nipple-areola-sparing) 8/5/08 Redo BMX (remove nipple and areola) w/ Lat Flap 7/6/09 BSO 9/3/09 NED since 08/05/2008 |
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Sunris
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Joined: May 08 2009 Status: Offline Points: 252 |
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Posted: May 15 2009 at 12:07pm |
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Hi Tina,
You have come to the right place to learn more about Triple Negative Breast Cancer, as well as a great site to learn more about breast cancer in general. I can't say I've heard of the cyst situation before, however please know that most all of us have had or are still having the same feelings as you. We are all in this together, girl. I believe you will find a great source of strength here at this site. I am also taking neo-adjuvant therapy ( shrinking the tumor before surgery) ... I am taking 12 ( 1 x weekly) doses of Taxol, then will have FAC ( 1x every 2weeks) prior to having surgery. I can't say I can relate to the whole A/C drug yet, but as far as the Taxol, I believe you will find that it has much much less side effects regarding many things. I have been able to continue working 40-50 hrs a week so far. I've had 7 treatments of it so far and my onc says it is really really shrinking ( as I can feel for myself)...YAY!! Welcome to this site and be sure to know that you can kick this cancers butt and not allow it to kick yours!! *Hugs* Dawn |
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Nancy
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Joined: Jul 23 2007 Location: Altoona, PA Status: Offline Points: 3814 |
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Posted: May 15 2009 at 2:09pm |
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Hi Tina,
Welcome to the site and as someone else said we wish you didn't have to join, but now that you have, you will find a wealth of information here, and it will be from thse amazing women who have been there...done that, and will answer all you questions truthfully.
Mt daughter Lori's ultrasound was read as a "cyst", and was there in her breast for 2 years before she finally insisted that it be removed. The radiologist who read the ultrasound said it was a cyst. Not the same as yours.
Lori had Adriamycin, Cytoxan and Taxotere, all 3 every 3 weeks for 6 treatments and then 28 rads. She had a screwed up surgery to remove the "cyst" in which they cut into it and did not get clean margins and then a month later a mastectomy.
I just heard on the news yesterday that the pharmaceuticals are actually "giving meds free" to some patients who cannot afford them, and I also have many links for financial help and for meds which I will email to you. If you require antibiotics, The Ensure will not help an infection, or get those WBC's where they should be. Your doctor always has samples that he/she can give you and do not allow them to tell you that they do not!! That is ludicrous that they prescribe them and then do not see to it that you get them?
The Neulasta is supposed to build the wBC's so if you had not had it, I am sure your WBC's would have been lower than they were.
The chemo is different for everyone, but most say that they are "cumulative", which means that they do build up in your body, and have a tendency to make it worse over treatments.
Do not get angry with yourself as you did not do anything to get this bc, and my Lori still has times when she is just so pissed that she can barely stand it. She too did nothing to deserve being dx.
You might try putting vicks under your nose the next time they flush your port in an attempt to not smell the Heparin. That is not nuts to plug your nose, just as we tell the women to not look when they infuse the Adriamyicin, as it does a number on you psychologically.
I have already sent you a private message, and when you get back to me I will send an email with more information which I know will help.
Many hugs,
Nancy
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Nancy
DD Lori dx TNBC June 13,2007 Lumpectomy due to incorrect dx of a cyst mastectomy July 6 2007 chemo ACT all 3 every 3 weeks 6 tx Aug-Nov 28 rads ended Jan 2008 |
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: May 15 2009 at 7:13pm |
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Evening Lisa,
I am one of the rare birds and possibly you who Neulasta did not do it's job. Atleast 4 out of 6 treatments landed me in the hospital w/fever the day of my neulaster and my white count way too low.
It seems to work for most people.
I have had AC&T in the past but not using the same protocol so won't say anything about a treatment I've not had. One thing though they say taxol x 12 is an excellent way to go for TNBC.
Let us know how you are doing. Chemotherapy does seem to accumulate as times goest along. Try not looking too far ahead, one day or hour at a time. Our emotions play a big part in this diagnosis.
Heck we have just had the daylights scared out of us, here's comes stress. Many women use a mild sedative and sleeping pill especially during this time. Hour by hour, day by day, none of us know what will be down the road.
Come back and see us, ya hear?
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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Tina L
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Joined: May 15 2009 Location: Peoria, Illinois Status: Offline Points: 12 |
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Posted: May 16 2009 at 2:33am |
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Good Morning everybody, thanks so much for all of your input, it helps alot to hear other peoples ideas and experiences. I'm really scared about what you have said about chemo having a "cumulative" effect. My first treatment caused me to miss two days of work from being sick, I can't afford to miss alot of work from this as I am the only one working, my husband is disabled and is on a fixed income so, I really need to keep working. I have 10 personal days left but after that I would have to go on short term disability, which of course is better than nothing but it will only pay me a small fraction of what I am making now and also I would still hve to pay my medical insurance out of that which would leave me very little for myself. I do take anxiety meds and sleeping pills to help me stay calm and be able to stay asleep, they help quite a bit. I know that drinking the Ensure won't help with those things but I figure it has to help me in other ways especially being how I don't want to eat most the time. I can't tell you the stage of my cancer as they have never told me but I do know that is is a grade 3.Again, Thank-you all for your support, and I wish you all the best!
Tons of Love,
Tina
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Nancy
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Joined: Jul 23 2007 Location: Altoona, PA Status: Offline Points: 3814 |
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Posted: May 16 2009 at 8:21am |
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Tina,
Sweetie, it was not my intent to frighten you, and I am only stating what many of the women, including Lori has stated. These chemicals do build up in your system, and by drinking tons of water does help to detoxify the liver.
Lori had chemo on Fridays, and after the first chemo went back to work on Tuesday, which was a huge mistake, as she thought she was not going to make it through the day. She teaches second grade, so for the next 5 treatments, she did not go back to work until the following Wednesday. Lori was exteremly physically and mentally fit, and yet chemo did do a number on her body.
We have a member from Germany who said that when a woman is dx with bc, they have a paid leave of absence, but unfortunately, here in the states, unless you have medical leave coming to you, you are pretty much on your own, no matter how ill you are. Also, in Germany after all your treatments, they send you to a resort for healing therapies. Here, they just have you come back for check-ups and tell you that whatever you are feeling is your "new normal".
You must eat, no matter what it is, you must eat. The Ensure may hepl but that is no substitute for "real food", which your body needs at this time, or for that matter any time.
The stage of your bc will be on your pathology report, and as all the women will tell you, demand a copy of every test/report that you have, and put them all in a binder for future reference. This is your right and you must ask all the right questions. The women here will give you all the correct answers.
 In the information which I will send to you, there are links for financial help in cases such as yours, and you will find a list of questions which are pertinent for your care.
Hugs,
Nancy
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Nancy
DD Lori dx TNBC June 13,2007 Lumpectomy due to incorrect dx of a cyst mastectomy July 6 2007 chemo ACT all 3 every 3 weeks 6 tx Aug-Nov 28 rads ended Jan 2008 |
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: May 16 2009 at 8:54am |
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Tina,
Also we all respond to chemo differently. One woman could be on the same meds, do quite well, work full time with little problem. Then you can go clear thru to the other end and some women become very ill.
No one can know how they will respond until they are there. The Onc's office has many good things to help with side effects.
Good luck to you. Have you thought about disability? You have to get rid of this cancer one way or the other. How you do it is your decision.
I'm so sorry your husband is disabled. Many many women get in quite a pickle, lands knows the stories of hardship are everywhere. We just have find our path best we can.
There are many places online to find assistance plus alot of these drug companies will help and possibly give you the meds free but you will run across glitches, all is not as clear as they make it appear.
I say this because my sister has been struggling terribly, her chemo in pill form only is $800 a month. They don't have that kind of money. So they started looking at assistance and the drug company that makes her chemo and it has been a very bumpy ride. Thats not to say it can't be done but get ready for alot of phone work.
Good luck to you
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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Tina L
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Joined: May 15 2009 Location: Peoria, Illinois Status: Offline Points: 12 |
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Posted: May 17 2009 at 2:46am |
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Good Morning! Nancy, they told me that they can't tell me what stage my cancer is until they do the surgery (maybe due to the cyst part) I don't know. I noticed yesterday that my hair is starting to come out already, after only one treatment. I knew it was going to happen but I didn't think it would be this soon, I have to say that I am somewhat sad about this but I can deal with it. Also, I have been having trouble with my eyes here lately. When I get up in the morning they are very swollen and water like crazy for the first couple of hours, is this a side effect of my chemo? It really bothers me. I go tommorrow for treatment number two, that is if my wbc has come up to where she wants it. I think I am more nervous about this one than I was the first one because of this cumuluative effect you've told me about. The first one was bad enough, I don't want it to get worse. I really hate this whole thing (BC) I wish I could just forget it and go back to my life the way it was. I had a hysterectomy (total) when I was 34 due to fibroid tumors, the doctor was only supposed to remove my uterus but decided to go ahead and take everything, cervix and all. He said he did that because I had already had previous surgeries (2 C-sections, 2 incisional hernia repairs) and he figured by removing everything this would prevent me from having to have any more surgery. Have you EVER heard of such crap? I should have sued him for waht he did to me, forcing me through menopause, refusing to give me any hormone replacements or anything. I suffered terribly with hot flashes and mood swings for alot of years, also, lost ALL desire for sex (haven't had sex but a few times in that many years) and now this (BC), what's next?I told my daughter that I have alreasy lost all the inner parts that made me a woman and now I am facing losing the only things I had left (breast) on the outside that make me a woman. So what will I be now? Sorry, I am not feeling sorry for myself, I am just venting my frustration about things that happen to me that I have no control over. I want all this to be over with so bad, but I know that I am only beginning this journey.Sometimes I just hate my body, I feel that it has done nothing but betray me, I have always been healthy and now I am a mess, what kind of deal is this? Please forgive me for acting like a child , I try very hard to be strong but sometimes I just seem to lose control of myself, I am so thankful to have all of you to turn to for the answers that I seek and for the emotional support that I so badly need. Wish me luck for tommorrow, and I will let you know how it goes, ok? Thanks!
Love to you all! Tina
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Nancy
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Joined: Jul 23 2007 Location: Altoona, PA Status: Offline Points: 3814 |
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Posted: May 17 2009 at 11:58am |
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Dear Tina,
Well....sounds like you would have definitely had a winning lawsuit had you done so. That is unbelievable.
 Did you know that over 1 million hysterectomies are performed each year? For what reason? Because the doctors are not treating the woman, just symptoms which do not require this operation. For the male doctors...they should all have their penises and testicles removed as soon as they have a problem...bet that won't happen. Take away their manlihood? Not on your life!!It doesn't matter if a woman never has the feelings that she once had. Perhaps you are fortunate that you did not have the HRT, as that is/was a really bad med. They should have never been allowed to have that on the market along with the birth control. Both have altered what woman's body is to do naturally. Yep the birth control sure helped many women have their careers, but many put off having children way too long, longer than what their bodies could tolerate. The HRT...well that was a winner for the drug companies, but definitely not for the women who have taken it.
I too had a hysterectomy at age 30, and I have wished thousands of times that I had not had it. I still have my ovaries, but then in 1971, what did they know? Apparently they still do not know, or they just do not give a da** as to a woman's health, as they cotinue to perform these unneccesarily.
My uterus was "dropping out", due to having twins and then 3 more pregnancies. Little did I know that not having a period would affect me so very much. Just not natural not havig a period, and causes all sorts of problems. After the HYST, I never had any feeling in my breasts for stimulation. Had they told me the desire for sex would not ever be the same, or that not having a period would affect me so dramtically, I would have said no....let the thing drop where it may
 Connie and Donna and I have discussed this, as Connie said that all the women in her family had hysterectomies, and she feels that perhaps because she did not, that was the reaaon she developed bc. Of course here you are with bc, and had the operation. My mom had fibroid tumors also, and had a hysterectomy, but they did not take my mother's ovaries either.Her mother died of ovarian cancer.
Tina, you have a perfect right to feel sorry for yourself, as the medical profession has not helped you, just hurt you. Lori too hates her body as it is now, but she knows that she had to have the mastectomy, and did not have a choice, but that has not made it more acceptable. Your body did not betray you, the medical profession has, and no one knows why they are dx with cancer, and it does not matter how you have lived your life, as cancer is everywhere, and nothing is being done to stop it. Nothing!!
Please do let us know how tomorrow goes, and if you have a laptop, just
post when you can. As to the eyes being swollen, please tell your onc, as I know that Heather had eye problems but it was from the Taxol or Taxotere, not the AC. Never allow anything to cause you discomfort. You may not have the cumulative effect Tina, so just try some visual imagery or meditation even before you start treatments.
Many hugs,
Nancy Edited by Nancy - May 17 2009 at 5:05pm |
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Nancy
DD Lori dx TNBC June 13,2007 Lumpectomy due to incorrect dx of a cyst mastectomy July 6 2007 chemo ACT all 3 every 3 weeks 6 tx Aug-Nov 28 rads ended Jan 2008 |
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: May 17 2009 at 3:55pm |
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Hi Tina,
I am very sorry you are having a hard time. Going thru what we do is so hard on us.
I looked in 3 different reliable places online regarding your eyes and none of them mention in Adriamicyn side effects problems with eyes but that doesn't mean that isn't what is going on. But you must find out.
In 07 I was on Taxotere and my eyes teared alot. My sister is on Gleevec which is a pill chemo and her eyes swell and tear.
Chemotherapy as it goes thru out bodies kills the bad cells (hopefully) but while doing that it also kills the good cells and they are supposed to grow back. Sometimes there may be a problem with this so be sure and have it checked out.
I knew another woman, don't know her chemo but her tear ducts completely dried up and so for the rest of her life she will have to put drops of something in her eyes. Chemo can cause damage but it's still better than nothing. We give and take to get well and it can be rough.
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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Tina L
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Joined: May 15 2009 Location: Peoria, Illinois Status: Offline Points: 12 |
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Posted: May 18 2009 at 1:51am |
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Dear Nancy, Hi well today is dooms day.............LOL or at least that's how I feel about it. I have been feeling well for the past week and now I get to be sick again. My hair is already starting to fall out........yuck, and my eyes are still bothering me but other than that I am ok for now. I hope that my wbc has come up enough for me to get my treatment 'cause lord knows I want to get this crap over with ASAP, ya know? I sure wish I had a Mother like you, my Mother disowned me when I was 16 because I commited the unforgiveable sin of getting pregnant. I got married at 16 also to prevent my Mother from forcing me to give my child up for adoption. I was adopted and I knew what that was like and didn't want my child to go through the same thing.
It wasn't easy being a child raising a child but I did the best I could and Tammy has turned out to be a Great Daughter, she is the Love of my life and I thank God every day for her. I don't know if I told you this before but she (Tammy) is a 30 year survivor of Leukemia, so she is my inspiration to beat this BC that I have now. I Love her more than anything and don't know what I would do without her, she is not only my daughter but she is also my best friend! I have 4 other children, Andy (35), Julie (34),Eric (31) and Joshua (28) and I lost a son (Jason) to SIDS when he was 5 months old, he would be 33 now. I also have 7 granchildren, Tabitha (21), Tina (16), Trevor (14), Jacob (13), Nicholas (12), and Identical Twins, Jimmie and Jason (2). Oh and of course my husband of 37 years, Jules. So far my family has been pretty supportive and understanding of all this, but, Tammy by far has been my rock, I guess because of her past experience with cancer but also because we are and always have been so close. I wish all of us with BC could go to St. Jude Hospital as it is by far the BEST hospital in the world and always on the front line in research for childhood cancers.Don't know why I'm telling you all this, I guess that I just feel a connection with you and feel that knowing more about me will help you to get to know me better. I know I am strange but, that's just me.
 You are an Angel and I am so glad to have met you, along with all the other people on this site! Thank-you for you continued support and I will let you all know how today goes. God-Bless us all! Tina |
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: May 18 2009 at 8:10am |
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Hi Tina,
You have really been thru some tough times. It sounds like you have a lovely family.
I sure hope things go well for you today and the following days.
Of course you want to get thru this and you will. We have to have patience, treatments takes awhile. Try taking it day by day and before you know it you will be finished.
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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Nancy
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Joined: Jul 23 2007 Location: Altoona, PA Status: Offline Points: 3814 |
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Posted: May 18 2009 at 11:33am |
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Dear Tina,
I am so sorry to hear that you lost a son , and I have read that they still do not know why SIDS happens. To lose a child is just unbearable. I also feel so sad as to your mother, as I can never imagine disowning any of our 5 daughters for any reason.
Well, we have more in common than you know. Our grandson was dx with leukemia at age 3 in 1991, and he is now 21 and at the Art Institute in Pittsburgh, and doing well, I just had an email from him today, as I send him vitamin D3, (along with Reese's Peanut butter cups)
to try and keep him healthy. He says he doesn't always remember to take them, (the D3), (not the peanut butter cups) , and I will now be sending him Selenium to take as Lori has suggested that for him as well. He is working at a restaurant while going to school, and is exhausted at times. Bryant went to Hershey Medical Center for treatments, and he had chemo for 3 years, every week. We have 12 grandchildren and 5 great-grandchildren and another on the way, but sadly our granddaughter is only 15. But...such is life, and she is an honor student, and I hope that she can still fulfill her dreams of becoming a veterinarian. Time will tell.
I hope that today went well, and you are not having a hard time, and I know that it never really "hit" Lori until about 36-48 hours after chemo. The one suggestion in our chemo tips of sleeping in a recliner was a godsend for Lori, and we didn't know about it until her second chemo The recliner then went into the bedroom and did not leave from there until after all her chemo treatments.
I too am pleased that I have now met you, and even though I may never really "meet you", we will be friends.
Had it not been for the amazing women on this site, I surely would have lost my mind, and Lori would have not known many many things as to what to expect from treatments. You will continue to have all the support you will ever need right here, and it is only a keyboard away
many hugs,
Nancy
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Nancy
DD Lori dx TNBC June 13,2007 Lumpectomy due to incorrect dx of a cyst mastectomy July 6 2007 chemo ACT all 3 every 3 weeks 6 tx Aug-Nov 28 rads ended Jan 2008 |
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Tina L
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Joined: May 15 2009 Location: Peoria, Illinois Status: Offline Points: 12 |
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Posted: May 21 2009 at 4:21am |
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Hi Nancy, Well, treatment #2 out of the way and 2 more to go for this type at least. I too feel ok until the third and fourth days after. Then i feel awful, the anti nausea meds don't seem to help as much in the pill from versus the iv kinds. I don't really get so much sick to my stomach as the headaches, those are what makes me feel nausea and the smells, everything smells bad to me. Don't know why but most smells make me feel sick. I asked my Onc about my eyes and she said that the meds can cause this, sje says that my tear ducts clog up and to just rub them for a little while first thing in the morning to see if that helps to get them to open up. So, far that has worked. I am confused as to the recliner thing you mention? What exactly does that do for a person on Chemo? Oh, by the way my WBC on Monday was 7.25 way up from the previous week, my Onc was extremely pleased with that reading, she also says that she thinks I am doing extremly well with the treatments and all . I guess I am but at times like this I don't feel like it. I really dislike this sickly feeling and the fact that I have to miss 2 days of work after every treatment, but life goes on, right? I am glad to hear that your son is doing well too! Tammy has done exceptionally well too over the last 30 years of her remission from Leukemia. I only hope that I do as well as she has, wouldn't that be great? I am happy to have met you also as I don't know what I would do without you and all the other wonderful people on this site that have helped me in more ways than they could ever know. Well, I am going to go lie down for awhile and see if this headache will lighten up. Take care and I will talk to you later, ok?
Luv,
Tina
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Tina L Peoria,Il.
DX TNBC 4/8/09 Stage 1 Grade 3 AC x 4/Taxotere x 1 Simple Mastectomy/Sentinel Lymph Node Biopsy 7/22/09 O lymph node involvement clear margins.03mm tumor 33 RADS 10/09-12/09 |
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Nancy
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Joined: Jul 23 2007 Location: Altoona, PA Status: Offline Points: 3814 |
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Posted: May 21 2009 at 6:56am |
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Tina,
The suggestion for sleeping in a recliner was from someone here on the site, and all I know is that it helped Lori tremendously. As to why? I do not know. The headache that Lori had after the first chemo tx was horrendous, and then as I said she slept in the recliner for the remaining 5 and it did really help her. Many of the women say that it does. Just the elevation?
It is our grandson who was dx with leukemia, and just as Tammy, I hope that he continues to do well. Did Tammy have the weekly chemo also? It is my understanding that the boys have a longer treatment than the girls for Leukemia.
All smells made Lori very nauseated, and if you have read the chemo tips, you will see that someone reported that even soap made her nauseated. Glad to hear that your WBC's are where they need to be, which means you are doing something right and your body is adjusting. Just keep drinking those 3 liters of water every day to flush the chemicals from your body, as they can damage the liver.
Lori's "good" day usually came about the 9th day after chemo, and she was able to run, walk or bike by that time. Before that she was exhausted, and always felt as though her heart was going to explode even walking up a flight of steps.
Rest Tina, and yes we will talk later
Hugs,
Nancy
Just reast now, and remember to eat also, as that too is very important. Edited by Nancy - May 21 2009 at 11:01am |
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Nancy
DD Lori dx TNBC June 13,2007 Lumpectomy due to incorrect dx of a cyst mastectomy July 6 2007 chemo ACT all 3 every 3 weeks 6 tx Aug-Nov 28 rads ended Jan 2008 |
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dmayes
Senior Member
Joined: Apr 23 2009 Location: Alberta, Canada Status: Offline Points: 183 |
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Posted: May 21 2009 at 9:24am |
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Hi Tina,
Sorry to hear about your symptoms but great news on the improved WBC
 . Ask your onc if you can add tumeric to your diet - Connie or nancy can send you the links to this marvellous spice that has immune boosting properties. I am been addint 1 teaspoon to my eggs for lunch every day since tx - and have been lucky to be feeling well. I havent had a blood test to check my WBC (must ask the onc why not) - but I live 5 hours away from the cancer clinic so he probably just forgot.
I have not had the neulasta shot either - still checking the coverage with my insurance company and yes - the $1500 costs here is a bit prohibitive. I am taking each dose as it comes, currently on anitibiotics as a preventative. My second treatment is lined up next Thursday.
If the vicks doesnt help, try a lavender mist - lavender is very relaxing and good for the brain.
Good luck with every thing - sending you warm hugs and happy smiles
Deb Edited by dmayes - May 21 2009 at 9:27am |
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Debs | Laugh every day, Love every minute.
Dx Mar09 - LB IDC 4.5cm - 0 nodes. BRCA - Cytoxin/Taxotere x4 end Jul09. ReCon surgery March10. |
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