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Triple Negative Chemo Cocktails

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texasgirl View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote texasgirl Quote  Post ReplyReply Direct Link To This Post Posted: Sep 11 2007 at 8:14am

Looking over the cocktails I have had a very different treatment.  I just finished my 12 weekly taxol and had very little side effects.   My blood counts always stayed in normal range without any medications to bring them up.  Only problem with taxol was bone pain which I took pain meds and was fine.  I justed finished my first of 4 FAC treatments.  I got my FC on day 1 and then went home with a pump with A for 3 days and then another dose of F on day 3.  I also have had no medications with this cocktail to keep blood counts up.  So far so good, just tired and some bowel issues.  My nurse said that was due to the Zofran to help the nausea.  The good news is at week 7 of my weekly taxol the tumor had gone from 8.5 cm to 5cm and  most of the positive lymph nodes they could not see anymore on the utlrasound.   I really do think that everyone is different especially for us triple negatives and what works for some people may just not work for others just like any other diseases.  If something is not working or you are having too many side effects let your onc know and they might change your treatment. 

 

 

dx 5/11/07 (Age 41), Stage IIIC, Grade 3, 12 weekly taxol, 4 FAC, 8.5 cm, Extensive positive nodes, Masectomy 0/17 nodes, 30 Rads, Currently NED
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Post Options Post Options   Thanks (0) Thanks(0)   Quote lady4law Quote  Post ReplyReply Direct Link To This Post Posted: Sep 11 2007 at 9:52am
Thanks Texas Gilr
I have had a lot of se from the TC, mainly I think it was the Taxotere. The Nuelastia caused bone pain, but only for a day or two...I can live with that. I am very much afraid of the "A" drug. They let you take it HOME, and give it to yourself? WOW. My son had a number of treatments with it and it had to be given slowly and outside of his IV...so it coudl be watched drop by drop as it can distroy the veins.
IBC/TN 6/07 Lymph, Chemo, Mast w/rec, chemo, 2 infect surg, exchg (2x) redo rec (2x) 4 new tumors esophagus, colon, chest, mouth, (10/11- 5th SUV7)"Activity" in spine hip
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Post Options Post Options   Thanks (0) Thanks(0)   Quote texasgirl Quote  Post ReplyReply Direct Link To This Post Posted: Sep 12 2007 at 7:34am

Hi Ladylaw,

I too was afraid of the A.  As my nurse calls it Agent Orange.  I have a subclav cath where my chemo now goes instead of my a regular IV.  This allows you to take chemo home and it slowly drips into your body over a 72 hours period.  My onc said that way it puts less stress on your heart and less side effects.  Sorry you are having so many se with the T, I guess I was very lucky.   I might have had less se since I was getting it every week and maybe a lower dose.  I will ask the onc next time I see her.

 

dx 5/11/07 (Age 41), Stage IIIC, Grade 3, 12 weekly taxol, 4 FAC, 8.5 cm, Extensive positive nodes, Masectomy 0/17 nodes, 30 Rads, Currently NED
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Post Options Post Options   Thanks (0) Thanks(0)   Quote lady4law Quote  Post ReplyReply Direct Link To This Post Posted: Sep 12 2007 at 11:05am
WOW...that drug is so dangerous they will not add it to an IV. The infusion nurse must slowly administer the drug herself. There is no way I would ever take that drug home and give it to myself. It is not only the se that are at issue but the destruction of the veins.

I am hoping my Onc will decide on some other form of treatment than TAC. I am having enough se from the Taxotere. I really don;t think I could take another dose of TC.

Thanks for your reply - Jean
IBC/TN 6/07 Lymph, Chemo, Mast w/rec, chemo, 2 infect surg, exchg (2x) redo rec (2x) 4 new tumors esophagus, colon, chest, mouth, (10/11- 5th SUV7)"Activity" in spine hip
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Post Options Post Options   Thanks (0) Thanks(0)   Quote poookyquilting Quote  Post ReplyReply Direct Link To This Post Posted: Oct 04 2007 at 3:00pm
Hi...you and I were diagnosed on the same day. I have IDC, Stage IIIA, Grade 3, 1 of 10 nodes positive for cancer. I had a mastectomy and a lumpectomy on opposite breast. Lump. was okay. Am taking Adriamycin, Taxotere and Cytoxan..every six weeks and a shot a day of Neupagen for ten days after each chemo tx. Then when this is finished I will begin six weeks of radiation. Not feeling too good. VERY tired and weak, But do have an hour or two during the day that I feel close to normal. I also had polio and use braces and electric scooter to get around so some of the fatigue could be the polio after effects. Hope you do GREAT with your treatment.

jan
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Post Options Post Options   Thanks (0) Thanks(0)   Quote lady4law Quote  Post ReplyReply Direct Link To This Post Posted: Oct 04 2007 at 6:06pm
Hi Jan

I hope you are feeling better...I am feeling terrible. Got out of the hospital yesterday after a week. I had my mast&reconst (bilateral) and my Pacemaker moved for rads. It looks like I will have 4 txs of AC followed by 4 taxotere. RIght now I feel like vomiting and my right side is very swollen, the BC was on the left
Jean
IBC/TN 6/07 Lymph, Chemo, Mast w/rec, chemo, 2 infect surg, exchg (2x) redo rec (2x) 4 new tumors esophagus, colon, chest, mouth, (10/11- 5th SUV7)"Activity" in spine hip
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Post Options Post Options   Thanks (0) Thanks(0)   Quote poookyquilting Quote  Post ReplyReply Direct Link To This Post Posted: Oct 04 2007 at 7:04pm
Hi Jean, I'm sorry you are feeling bad. I have a prescription the onc. gave me to keep me from getting nauseated. It works quite well. I think it is called Clonopine. Also, when they did my first chemo, they put a bag of anti nausea in the IV first. That helped tremendously. I have not thrown up once yet and have had very little nausea. Ask your onc. about meds to help with the nausea and your next chemo, tell them to add a bag of anit nausea because they can control it. My left side is still very swollen too. Mostly from lifting. My masectomy was left side also. I didn't have reconstruction because my surgeon said because of my disability, polio, that it would take me alot longer to heal. The less you lift, the better the swelling will get. But I have two new twin baby granddaughters and no way I can keep from holding and hugging them. Any info I can give you, please let me know. take care..and i'm here if you need to talk.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote lady4law Quote  Post ReplyReply Direct Link To This Post Posted: Oct 04 2007 at 10:52pm
Congrates on the new G--Babies. I couldn't help but picked them up also. Have your daughter or dIL placed them ...one at a time...on your lap. Don't try lifted them yet....SOrry My typing is so bad...I am doing it in the dark, and in pain.


IBC/TN 6/07 Lymph, Chemo, Mast w/rec, chemo, 2 infect surg, exchg (2x) redo rec (2x) 4 new tumors esophagus, colon, chest, mouth, (10/11- 5th SUV7)"Activity" in spine hip
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Post Options Post Options   Thanks (0) Thanks(0)   Quote ruth Quote  Post ReplyReply Direct Link To This Post Posted: Oct 11 2007 at 12:39am
I am going to have my second chemo today.  I am being given cytox and taxotere.  I have this every three weeks.  There will be in all four treatments.  The first went O.K. not too many side effects. 
 
Good luck to all.
 
RuthLOL
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Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Oct 23 2007 at 6:21am
Hi Ruth, how are you doing?
 
You are half way thru your treatments, I sure hope they go well for you.
Let us know how things go,
 
Stage 2 2003
Stage 1 2007
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Galina2 Quote  Post ReplyReply Direct Link To This Post Posted: Nov 01 2007 at 9:58am

How did you treat the local cancer? Lumpectomy?

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Post Options Post Options   Thanks (0) Thanks(0)   Quote poookyquilting Quote  Post ReplyReply Direct Link To This Post Posted: Nov 01 2007 at 11:13am
i HAD MASTECTOMY ON LEFT SIDE ANDLUMPECTOMY ON RIGHT. AND 10 NODES REMOVED FROM LEFT WITH ONLY ONE POSITIVE FOR CANCER. WILL HAVE SIX COURSES OF CHEM AND IN FEB WILL START RADIATION 6 WEEKS OF RADS.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Galina2 Quote  Post ReplyReply Direct Link To This Post Posted: Nov 02 2007 at 8:39am
Hi, what type of surgery are you considering?
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Galina2 Quote  Post ReplyReply Direct Link To This Post Posted: Nov 02 2007 at 8:57am
Can you quote the article? Tx
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Post Options Post Options   Thanks (0) Thanks(0)   Quote lady4law Quote  Post ReplyReply Direct Link To This Post Posted: Nov 02 2007 at 9:01am
You may want to ask your onc about a new form of Adrimycin. I cannot recall it's name but it is the same drug but encased in some way that the body absorbs the drug in a different way that prevents heart damage.  If you have any doubts or questions tell your Onc you'd like to go over why he has chosen his treatment. Remember you will be seeing your Onc for years, it's important you two can talk.
IBC/TN 6/07 Lymph, Chemo, Mast w/rec, chemo, 2 infect surg, exchg (2x) redo rec (2x) 4 new tumors esophagus, colon, chest, mouth, (10/11- 5th SUV7)"Activity" in spine hip
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Broni Quote  Post ReplyReply Direct Link To This Post Posted: Nov 04 2007 at 3:38pm
interesting reading your comments - I commence my first round of chemo in a couple of hours, dose dense AC x4, then taxol x4 - I am scared to be sure, but figure if I go in expecting the worst, and it doesn't happen, then I must be doing ok!!
 
good luck to you allWink
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Post Options Post Options   Thanks (0) Thanks(0)   Quote poookyquilting Quote  Post ReplyReply Direct Link To This Post Posted: Nov 05 2007 at 12:21am
I pray that your treatment goes great and you have no side effects.. I do the same thing, think the worse and when it isn't that bad, I"m so tickled. Let's us know how it went. God Bless you and keep you in His care.
Jan in Michigan'
T3,N1,M0.Stage IIIA, Grade 3
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Post Options Post Options   Thanks (0) Thanks(0)   Quote lady4law Quote  Post ReplyReply Direct Link To This Post Posted: Nov 05 2007 at 6:44am
Broni
I hope your tx went well and without any complications, especially regarding the IV. It's strange but that seems to cause so much discomfort that I fear that more than the actual drugs.
IBC/TN 6/07 Lymph, Chemo, Mast w/rec, chemo, 2 infect surg, exchg (2x) redo rec (2x) 4 new tumors esophagus, colon, chest, mouth, (10/11- 5th SUV7)"Activity" in spine hip
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Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Nov 05 2007 at 6:51am
Hi Broni and welcome.
 
Me too, hope your chemo goes smoothly.  Post back when you can and let us know how you are doing,
 
Best wishes,
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Galina2 Quote  Post ReplyReply Direct Link To This Post Posted: Nov 05 2007 at 6:36pm
Hello, Charlene,
thanks for your description during AC treatment. I just wait for my oncologist appointment.  It's been from Oct1, 07.  When do you thing they can call me? Galina2
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